👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
My daughter is going through absolute hell with neurological long covid symptoms. GP yelled at her and told me she must have a psychiatric disorder because the MRI & blood tests came back mostly normal (except for high iron saturation & high B12 levels, despite not having taken supplements.) Neurologist didnt even look at doctor's referral letter and upon hearing symptoms declared "nobody will be able to diagnose this" and prescribed an antidepressant. Daughter still suffering severe neurological symptoms months later : numbness down right side, pressure in head, insomnia, burning of skin as if skin on back has been flayed. If sitting or lying down severe burning sensation on skin. Difficulty walking. She was a very healthy young woman before getting covid and completed a Masters in Biomedical Science last year. Now she is being gaslit by doctors who dont seem to believe her symptoms. She is not the kind of person who would make this all up, she's absolutely desperate and I'm very concerned she may commit suicide. She says she feels "dirty and invalidated as if I'm a headcase" every time she tries to go to a medical doctor for help. I've heard this attitude by doctors is very common. When a patient is suffering this much it is cruel to gaslight them and deny the reality of their symptoms just because you're not a skilled enough doctor to effectively diagnose or treat the illness. Seeing how this disease has destroyed my previously smart, funny, vibrant, healthy daughter and the gaslighting of the medical fraternity when she has tried to get help, I have lost a lot of respect for the medical profession. Whatever happened to "duty of care" to their patients? Unfortunately we need a "Dr House" but all we ever seem to get is a "Dr Evil."
@RealSato, I got very sick at 14 from fluoroquinolone poisoning (though we didn’t know that at the time, as we didn’t think to suspect an antibiotic), and within months, my mom and I realized that the medical doctors were a joke, and were not going to be helping us. We quickly switched over to the alternative community, and that is where we began finding help. ❤ I really hope your daughter gets better, and I’m so sorry that she and your family are going through this. Much love to y’all!
You need to ignore the gaslighting, it is very common not to be believed ant that is not the patients fault. The patient knows what they feel. It gets better with time and intermittent fasting can help, antihistamine have helped some, moving your body and not thinking about stressing tasks can help
"Nobody else is coming to save me..." These words really resonate with me. I came to this conclusion myself after getting nowhere with the medical community. Family practitioners and ER doctors are largely uninformed about long-haul. For me, it has been lots of trial and see what works and what doesn't, keeping an open mind and trusting my gut. Many of my symptoms are neurological/vascular and I did have some success with a low histamine diet, but it is really hard to sustain this for a number of reasons. Symptom tracking for me is not helpful- my symptoms are highly varied and keep changing, so this is a bit depressing. I am better off tracking my nervous system state and using polyvagal strategies- weighted blanket, meditation, visualization, auditory aids (delta waves), using cold packs on my head and neck at bedtime - anything to calm my nervous system.
I’m sorry you are also suffering with long haul. I completely agree with you that GPs and others were largely no help. I do give my GP props though for “just going with it” and supporting whatever new thing I wanted to try. All of those things you mention at the end here I also find so helpful for my nervous system! I really love my weighted blanket and the ice hats for the head have been my saving grace. Wishing you all the best in your recovery journey 🙏🏻
I never had panic attacks until I got long Covid. Now it feels like I have to fight them every time I get a little bit stressed out. The cardiologist accused me of demanding to see doctors when nothing was wrong with me. The Pulmonologist wanted me to exercise but I couldn't get him to understand that I was not recovering from workouts. I use to play sports, I understand the difference in feeling between fatigue from not working out for a while and what I am experiencing now. It was a rheumatologist that suggested that I may have POTS from COVID. I am still not doing the best but I have felt so much better ever since I started salting the heck out of my food and drinking 3-4L a day to help manage the POTS. After 2.5 years of trying all these different medications, barely holding onto my job, and living about as well as a zombie does, there is finally some hope I can get better. I'm ready to live again. Heck, ready to just be able to clean my house without it making me feel drunk afterwards.
For anyone in the early stages, I promise you are NOT going mad. Start taking as much care of yourself as necessary and it is only a matter of time. Even if that timeframe is a year or two (or more), time flies. Good luck. We're all with you
So many of your symptoms resonated with me. The depression and anxiety was unlike anything I’ve experienced. I’ve recovered quite a bit - my last two symptoms are fatigue and brain fog. I just started on LDN and so far that is really helping. And to think the actual COVID illness wasn’t too bad. Boy, did it devolve into something otherworldly. I wouldn’t wish it on my worst enemy.
Absolutely! Crazy that the acute symptoms can be so mild and then we get hit with this demon! Happy to hear you are feeling better and the panic and anxiety has calmed down. Wonderful to hear LDN is helping you with your last remaining symptoms! 😀
What is insane is despite many young lives being essentially ruined, at least in my case because I've been gaslit so much, I actually have to question whether I'm going insane too. So if you get a horrible diagnosis for a 'normal' disease you at least have conviction and a plan of what to do, while with this it's just a horrible soup where you try and remember what it felt like to have a brain that works.
I contracted SARS-COV-2 the first week of December in 2021, and for 45 days it proceeded to strip life as I knew it away from me. Brain fog has been one of the most difficult things to deal with along with my blood pressure/pulse and oxygen saturation being all over the place. As a whole, a lot of Doctors look at us as "Problem children" and don't want to deal with us because we are Too Much Work
Did I have Covid. Currently I have neurology status diagnosed as Peripheral Neuropathy. Burning in legs and arms and face and burning tounge. Its a hell and trying force my way out from it. At 73 not much time left. The anxiety is a hell. Breaking down in tears. Not getting enough sleep. MRI scan found nothing beyond what was expected for my Age. It seems what relieves it a bit is getting up and doing something physical. May wish anyone suffering like this, the quickest recovery. Thank you Adam.
I had neuropathy as well. Check your meds. My doc changed my cholesterol med to a different one. I take R Alpha Lipoic Acid, Benfotiamine, and walking. I bought a Bob and Brad foot massager on Amazon. I’m now recovered. Good luck!
The neuropathy can be from LongCovid. I have it too and no one can figure out where it's coming from. Try an antiinflammatory diet and the fasting mentioned here. it helps a LOT.
@@TheSaraphic Have you been able to try brain retraining yet? Ben Ahrens has talked about how when the nervous system and brain relaxes, the inflammation in the body goes way down. It’s pretty amazing, and he had neurological Lyme disease and got over it by calming his nervous system as well as doing holistic treatments in conjunction, such as getting sunshine, etc., but the main key for him was changing his nervous system
Amazing interview ❤ i am only at the start of long covid, and it's a scary place , but i know now that i will recover in time. Hopefully, the powers that be that have done this to us are one day accountable and jailed. ..
Fasting and low dose naltrexone was definitely the start of my healing. Mine is autoimmune phenomenon caused by the JJ cov vax. Hell on earth and no help from medical doctors. Absolutely treasure your talk here and makes the world a less lonely place knowing you’re not the only one. 2.5 yrs and about 30% recovered.
Wow your one of the first I’ve found that has j&j injury like me. What are your symptoms? And I agree with fasting. A 7 day water fast was the 1st thing that made me feel better..
Day after started with bad headaches and each day progressed into full body pain, electric shocks in legs, couldn’t sleep, ringing in ears, snow vision, joint/bone pain, upper R side pain that radiated to back, dizzy and felt drunk. Each day muscles got weaker to where I couldn’t walk without assistance. Breathing was difficult. 4 weeks post, I lost consciousness and woke to my husband clearing vomit from my mouth to start cpr. That was my 1st of 3 trips to the er with BP in crisis stage 215/111. I never had health issues, BP on lower side and worked 70 hr work weeks self employed. I had to end my career and entire life changed. Doctors weren’t allowed through SSM Health to admit vaccine injury, however a rheumatologist listed in my chart autoimmune phenomenon caused by JJ vax. My immune system attacked every inch of my body - liver, thyroid, GI, muscles, joints, brain, nerves. I was stuck in fight or flight for 12 months. I was newly diagnosed with mesenteric panniculitis, fibromyalgia, osteoarthritis, tinnitus and essential hypertension. I no longer have blood pressure issues now that sympathetic nervous system had calmed down. I still have inflammation and starting to get nodules on my hands. Ugh, I’m too young for this. I haven’t gone 100% keto but know I have to for further healing.
Funny, I was just prescribed Naltrexone and Hydroxychloroquine last week. I was not vaxed, but I am having a lot of the same symptoms. I really feel like I've stumbled on the best possible resource today. I finally feel like there's some hope.
@thorinoakenshield5601 I have postvax syndrome as well. After first Pfizer vax my health declined. From very active 43 yo to not able running 50 meters. I have terribly itching legs and face and painful muscles which feel very acidic after every even soft and easy activity.
I'M ROB!!! Thank you for pointing out my story. I hope it inspires others to not give up the fight against this horrible disease. Adam your story is inspiring, thank you for sharing. I love that you say you gotta go find your "flavor" of people that you resonate with. I tell people all the time, If you dont resonate with me, GOOOO find someone who you do. So crucial to watch others who you resonate with. Thank you Raelan for being the cornerstone of this community, I recommend everyone that contacts me to build their hope or build their faith in healing by watching all of your interviews. 🙏❤
Hey Rob!! So happy to hear from you! Loved your story on this channel and so many of the things we did are so similar. Wonderful to watch your videos and know you are doing so much better! You are spot on about Raelan and how she is leading the charge in sharing all of this valuable information! We are all so grateful for this space. Wishing you all the best brother.
So grateful for this interview. I am one of the more rare cases, as well, that had severe neuro covid and I have heard very few stories(outside my own) of recovery and I was so happy to hear Adam's open and honest discussion. Talking about how a virus can completely alter how you see yourself in your personality bc of the mental health symptoms it causes has a touch of a stigma to it so I am very grateful to him. Having no history of anxiety or any mental health symptoms this was tremendously hard for me. I also had overnight(like a light switch) depersonalization and derealization plus more. My husband and I watched this interview together bc it was so meaningful(even though we are through this now) to hear of others who couldn't form sentences and were having terror attacks(I say this bc panic doesn't even come close to describing it). I couldn't watch a Disney movie without going into full blow adrenaline and terror. My brain was so inflamed I couldn't tell you my own name at times. I also had POTS and some other issues. I wish you all the best and a full recovery, Adam! Best wishes, Raelan!
@@stubousfield1352 There is so much I could share. I was an original neuro and cardio long hauler. I started having LH symptoms in March of 2021 and nearly overnight was cognitively and physically shut down. Everything Adam talked about plus other symptoms like cardiologist diagnosed POTS and was in total "freeze" mode in complete terror all the time. Had so much adrenaline that I lost 30 lbs in 4 weeks and was down to 3 foods in that same time. I couldn't watch anything on TV without going into full panic attack, depersonalization and derealization, and adrenaline surges for no reason about every 12 minutes day and night. Very quickly was bed bound and even the sounds of birds chirping would cause panic. My mind never stopped and had the most terrifying nightmares and thoughts. I didn't even know I could have thoughts like this bc I am a pretty sensitive person who never watched scary or gorey films or TV. I also had such deep brain fog I couldn't read, write or, at times, tell you my own name. I know now this was brain inflammation but back then no one knew anything. A lot happened in-between that time and understanding what was happening to me but here is the crux of what began my healing. The mental health symptoms made me think I was loosing my mind- (no history of depression, anxiety or any other mental illness before hand) and now I know it was my brain misfiring from inflammation and the inflammation couldn't detox bc I was in constant F3(fight, flight, freeze). My brain and body was being flooded with Cortisol and adrenaline every few minutes. The biggest helpers(I did A LOT so I am not suggesting that everyone needs to do all these things but it was what I did at the time based on my level of cognitive processing)- I started with DNRS based off of someone's post in a covid long haul forum and did that for 6 months. This worked so well that my POTS was gone within 2 weeks and my activity level was normal. Within 1 month my diet was back to normal eating all foods. BUT my brain was not. Everything I did re-triggered the neuro-inflammation. 1 month in I added acupuncture and that was very helpful. After 3 months of DNRS life was about 40 percent better and I added a community group through them. This was a HUGE help and proceeded to do this for 3 12 week sessions. This being a part of community, I know think, is one of the biggest things to support healing- as long as the community is a positive minded one. I also read all the GUPTA materials. I wanted to hear it all from a different angle. I learned, for me, the key to successfully reintegrating my brain was to focus, singularly, on one task esp writing. When I wrote something my mind cleared a little bit more. I started by writing one sentence responses in community forums. Typically, I tried to only post positive things, as I was trying to teach my brain to switch out of F3 and into rest and digest. I had to start believing that I was actually ok and stop asking questions in the forums that were always urgent and panicked and instead start participating in the culture of positivity and healing hope(one of the reasons I love what Raelan does here). I think the most important thing was when I finally had the lightbulb moment that I was not a victim and that everyday...every.single.day I was responsible for what I did that day and most importantly what I thought. This is what the DNRS helped me with the most was reorganizing a life time of negative, victim-based, thought patterns and deciding I wanted something different. I decided I could heal and I would and I would trust each day was working me towards that. I was still dealing with a lot of bodily anxiety and subsequently terrifying thoughts and a DNRS friend suggested the DARE program. This was HUGE and I can't recommend it enough! Read his book(it's short) and then download the app. Pay for the full service for one time and then listen to every single audio he has on the app and then everyday listen to Barry's daily dare. Just commit to it was what my friend said and since she had healed from what I was dealing with I believed her and she was right. I committed to listen to all the audios and the daily dare every day and Barry's voice is so calming and he has been there himself. A huge part of helping me get into parasympathetic was my faith. I would sit and meditate on scripture that was comforting to me whenever my mind would start going into panic thoughts and I would write it as well both for comfort and for focus writing practice. I started making myself go to events and church services and the emotions just opened up and while I was deeply neurologically triggered by the music and people engagement I knew by now I wasn't in any danger from it and each time I noticed a positive shift the next day. I felt like I was rebuilding my brain. After one year into rebuilding my brain no outsider would have been able to tell I had been so sick but I knew I was still in F3 a lot of time in my thoughts so I joined Primal Trust for continued support. I went though Dr. Kat's online program and then did the live level 2. She added in something that I had not yet been taught and that was somatics. From that point on somatic work was the biggest shift. She taught about orienting, grounding, eye exercises and these things finally took down that feeling of constant anxiety- not even kidding within 3 days of doing them. It's sort of like the idea behind EMDR. I hope this has been helpful. If I could recommend one thing overall I would say Primal Trust and if you can afford 2 I would say add DARE. I am no longer in either program bc I don't need to be but I think these were the single greatest resources that compiled the most helpful things, however I am eternally grateful to Annie Hopper and Connie at DNRS for what they do bc it found me first and was my introduction to what I believe God used to heal me. I think finding that sense of what comforts you is important and being able to return to that.
Hi Laurie! Just wanted to say thank you very much for this comment. Gave me some chills. My new nervous system firing in a good way. It’s absolutely crazy how a virus 🦠 can change who were are as a person at the very core! Touching to hear you found this valuable enough to share with your husband! It’s very true how important our partners are in our recovery! They endured the whole thing to and had to be even stronger for us! I know what that overnight switch of dp/dr is like… it was the scariest part of this whole thing! I couldn’t even comprehend how fast my life had changed… one of my most mysterious stempotoms and I’m not sure exactly what I did to cure that one… Wishing you all the best and stay well!
My understanding is that recovery is not a linear process. Lots of ups and downs with symptoms can be a normal part of the journey. Great interview and Adam, I hope you will soon be 100%.
Hey Kathy! You are so right. I call them windows and waves which is a bit of a term from the recovery community but it honestly suits what we are going through so well! I honestly am still finding I have flares, but it seems when I look back on the last one, each time it happens the “window” or stretch of feeling good is longer each time. Thanks for the well wishes ❤
You’re so right! I know it’s probably no where near what you do professionally but I have found so much inspiration from my data on daylio. It shows me what impacts my flares, symptoms and moods. I hope you feel better soon so you can put something like what you’re talking about together!
I have had the same idea. We could do something with that by say setting up a website and having people fill in their medicines, supplements and other attempts at recovery and to have them rate what works and what doesn’t
To be more specific I’m a data scientist for a healthcare company, and I could have access to an algorithm that is able to find symptom trajectories towards conditions like e.g. diabetes. I hypothese that this could also be used for recovery trajectories. It would indeed require collaboration and a community to gather the data. The format of the data and how it should be asked can also be figured out by means of what works best for the algorithm. The problem is that I don’t have the energy to make it happen all by myself, if people want to collaborate and discuss the idea I’m down. The legal part with respect to gathering and storing health data is also something to be figured out.
When I got COVID I had a fever, pneumonia, tinnitus, hallucinogenic dreams, brain fog, anxiety, and depression. I thought I was going to get the common cold but was I ever wrong. I wouldn't wish this on my enemies. I felt my personality disappeared, no interests, and, physically, I felt like there was a lead pipe lodged in my brain. That must have been the inflammation. I was at the point where I thought of killing myself, and that I would never recover, especially from the acute tinnitus. What kept me going was the love that I had for my wife, brother, and our cats. I could never do that to them. I did slowly improve and a strict discipline with the guitar kept me together mentally, though I still have anxiety. Part of my personality came back -- not that it was gone, it may have been hidden by the symptoms -- and I find my old self returning more so at night. Maybe I'm more relaxed at night and the nervous system is working better. The mornings are the worst and I think that may be because of cortisol in your system. It has taken a long time -- a year and 1/2 -- and I'm not fully recovered. But things are improving slowly. It is good to have hope and something to look forward to, and I also think our bodies and minds will try to correct themselves over time. Things will return to normal. But you also have to work at it. COVID, IMHO, is a biological weapon and the world suffered immensely. Pray God it never happens again.
Absolutely agree with the comment on it being a bio weapon. It has to be treated as such in our recovery. I’m so sorry you suffered with so much of the same issues that I did! I’m happy to hear you are seeing improvements❤️🩹🙏🏻
@@fadatiko I tried Nac early on the pulmonologist said it’s in the tissues he suspected… That was early on when they knew nothing! Well. They still know nothing! Thank you for the recommendation and taking the time!
@@shelley7209 you are very welcome. Natural hebal remedies might be another option. There is one called lungwort complex by twenty first century herbs. You might want to give it a try. Read through the reviews on their website to see if it resonates with. Hope you find relief soon. Lots of love.
Have you recovered yet? As it's taking my friend a long time.... 3 years. The Braun Fogg is the worst and no sleep. She feels her brain is inflamed? Will any of the drugs help with the symptoms?
It has been a long journey for me. Long Haul had changed my life. I've done so much but still struggle with some things. There was a point where I thought about ending it all. I can't wait for the day when I'm back to normal. I'm not gonna lie it's been the hardest thing Iv ever had to face in my life. I'm tired, so tired and that's all I can say.
I too had many days when I didn’t want to be in this world. But, it does get better. There’s a lot of good information out there , in the video and comments. I know the hell you are going through as do apparently more people than I realized. Try to stay strong. Sending you best thoughts,wishes and prayers.
Omg I’m so tired of saying I’m so tired and no one gets it so I’m here to say I feel everything you have said I’m just taking baby steps and just keep the hope we will get better 🙏🏻
Thank you for this video!! I don’t know if I had covid, but I caught a virus at Christmas just gone and had the exact same post symptoms! Panic attacks, anxiety, racing heart beat, brain fog, unsteady when standing…really scary! Been doing regular walks, breathing exercises, getting more sleep, vitamins, even trying electrolytes. It’s slowly getting better, but I think it’s all about pacing and understanding that your body needs time for recovery and there’s no quick fix. Gradually coming out of the woods, and every small, daily victory needs to be celebrated. Thank you!
Thank you for this. I’m an 87 year old lady with ibs, afib, high blood pressure and gastritis. I have had Covid 3 times and am dealing with so many issues that seem to relate to long covid. None of my doctors know anything about it, nor does my hospital. I keep thinking I’m getting better but then relapse. The least little stress totally exhausts me. Ikve been looking for answers and your videos seem to be my best resource so far.
After mild covid , started experiencing below symptoms and after which incresed day by day 1 - head pressure on simple movements like walking feeling as if I may fall 2 - Extreme Insomnia - could not sleep or barely managed to sleep for few hours in the night , insomnia continued for 6 months 3 - uncontrollable anxiety , hunger to such extent that if i did not eat I , I felt as if I may become hypoglycaemic 4 - depression associated with insomnia which made my day time feel like hell, always sleepy during daytime , even i felt extremely tired still I could not sleep 5 - extreme sensitiveness of skin , simple tasks like bathing gave shivers and palpitations 6 - swallowing food issues , made my hunger symptom more scary 7 - unexplained palpitations on seemingly simple movement 7 - Continuous anxiety as stated in above comments , small triggers were enough to trigger anxiety symptoms I am on medication since past 9 months , and started to feel better with symptoms reducing day by day
Amazing interview. After getting a Covid Variant in June 2022 by August/ September 2022 I was diagnosed with persistent AFib/ Congestive Heart Failure ( heart transplant ejection fraction zone) and Restrictive Lung disease. I was told I would have to be on an inhaler drug the rest of my life. I went off of it after two weeks and never needed it since. Going the whole Cardiology route I was scheduled for heart surgery to correct AFib next August in Houston. After 14 months of AFib every day I was on a high dose of Amidarone for 14 days and it started to correct the AFib for two days but I backed down the dose and AFib came back the third day. Then the next week I heard about trying a 7 mg nicotine patch for 6 days which I did and after two days I went into normal sinus rhythm and now I’ve had no AFib for 75 days. I canceled my cardioversion at Stanford and I stopped the Amidarone after a week or so. I will be canceling the Houston heart surgery soon. The problem with that drug was that it affected my thyroid. My TSH levels are 3 times what it should be. I’m taking thyroid supplements not thyroid drugs. The congestive heart has improved 5% every 6 months and my next echocardiogram in February will hopefully reveal more positive improvements and less swollen left atrium. My blood pressure is still in hypertension area and I still have brain pressure which changes often. I do $600 a month on key nutrition supplements. Then I improved my diet, limit stress, sleep better, do infrared light on my chest, do infrared sauna and try to walk fast pace 2 miles a day. I have a grounding pad to sleep on. I was fasting every two weeks around 72 hours for two months before the nicotine patch treatment. I don’t know if the brain pressure is due to my heart and lower oxygen and hypertension or if it’s from long Covid? The head pressure and some short term memory issues ate now a big concern of mine but I have no answers at this point. I keep on like Adam researching almost 1-3 hours a day because this health issue forced me into retirement August 2022. Thanks for this interview!
I worked 7 days a week and worked out 6 days a week. LC hit me like a truck.😅 listening to this is crazy, he says the exact things im thinking about and went through.
Oh man. I’m sorry you can relate to this mess and had LC hit you hard as well! A lot of learning had to take place on my part to slow myself down and try and calm things down… How are you doing now?
It is such a horrible disease, I didn't know what was happening. It took away my balance, heart palpitations, anxiety, just walking became such a struggle. A vegan diet (anti inflammatory), breath work, physical therapy, intermittent fasting now, grounding, sun light, magnesium and lots of water. Strangely, added benadryl the last 7 days and have become more coherent. Thanks for this video. Millions are suffering.
I’m so happy to hear you are feeling a bit better! This is what it’s all about!! One little change or thing you trialed and it gave you some relief! Build on this Crystal and keep that patient lead reaserch going! You are the master of your ship. ❤️
@@beatinglongcovid thank you so very much because I did forget to mention that finding others like me was so critical. I no longer felt so alone and isolated. ❤️
@@crystalwebb5725 this is so important! I thought I was going insane… then I found anonymous strangers on Reddit with all of my symptoms and it was so helpful! Know your not alone anymore 🙏🏻
So happy to find this thru my lh facebook page. I had original covid in 2020. And had exactly what this man had. Noone around me at all had the neurologial issues, and drs couldnt help. It was scary. For me it was the ice cold shower every morning to reset the vagus nerve that seemed to help the most.
So happy you found this video! What group did you find this from? I’m sorry you suffered with this same issue. God it must have been scary that early on! There was absolutely no info out there on anything!! I hope you are doing better now. ❤
It's soooo much pressure to when you cannot work, you don't have family, you're under the poverty line, need money for these treatments. Unfortunately my line of work (nursing which involves fast and furious...). I couldn't do anything better with 'diet' BUT I did learn about seed oils, also that I needed more energy stimulating nutrition, collagen, enzymes, etc. I'm always out in nature but the photosensitivity, the sensation I had acid on my arms and legs when in the sun. Secondary lupus which I just got rid of when I started killing the lyme I didn't know I had, etc. Head pressure was helps by LDN as well. After exercise, my head feels like it's going to pop off. I can only just walk...BUT compared to people with out legs, I shouldn't complain. Thanks and God bless all. We owe Dr Bruce Patterson for being the FIRST to do the real labs to tell us where the spike proteins are and the amount, what to do, etc. CA, USA
Hey there, I’m particularly interested in your comment regarding secondary lupus and “killing” Lyme. Would you be willing to expound on that and what you mean by killing Lyme?
Thank you for the video. My wife has been the researcher in this journey, and she has been looking into Long Covid as possibly what I am dealing with. This paragraph after the first sentence is an edit: I have had Covid twice. The first time was before the vaccines, in February of 2021. I had a bad case, couldn't get out of bed the first week, fever, chills, headache and no appetite. The second week was breathing difficulties and a cough. I could not take full breaths without pain. I had Covid the second time last year, in March of 2023. No fever the second time, but headaches, chills and this time I lost taste and smell for a few days. Again, the second week was different symptoms, the worst of which was a bad sore throat. I got a prescription for a numbing type of cough medicine that really didn't do much. I have brain fog, forgetting simple words when putting a sentence together, and I have had a bloated feeling in my abdomen that prevents me from eating the way I had been eating up until last summer (2023). But the most difficult symptoms of what (12 ) doctors over the past (9) months have not been able to figure out the reason for is a continuous pain like cramping in my right flank / hip area. This is pain from when I get out of bed in the morning until I go to bed at night. The second most frustrating symptom is my right "love handle" area has been numb for the entire (9) months. People (doctors) almost run out of the room when I bring this up, like they didn't want to even think about diagnosing that. There are no breaks in the pain unless I lay on my back. This relieves most of the pain / pressure I feel. The numbness never stops, that's just there and has never gone away since July of 2023. I have had multiple X-rays, CT scans, Ultrasounds, and MRI's of my hip, spine, and abdominal and right flank area, but every time I hear the same answer. We have no idea what is causing your pain. This has been with three different medical groups; Providence, Cedars-Sinai, and Keck of USC, all here in Los Angeles. The problem with this, along with the fact all of my blood panels are normal, is when the doctors are not seeing physical damage in the imaging, and my blood tests are good, they do not think there is an actual physical problem. And I am now at the point where I'm literally being ignored by doctors. I was seeing an Orthopedic Spine specialist from October of 2023 until the last week of January, 2024. He performed an epidural for a disc in my thoracic spine, and tried a Cluneal nerve block in my right hip area (3) weeks after that. These were both in January, and neither of them had any effect on my condition. I had a follow-up video call with the doctor on February 8th, and he told me there were still options. He was looking at nerve stimulation, and said they could do a bone scan as well. However, I have not heard from this doctor since that February 8th video call. I messaged the office twice in February to find out what was happening, and finally a scheduler from his office replied on February 28th. Her message started with, "Sorry for the massive delay". Not a good sign. And even though this doctor had responded to one of my previous messages, he has never reached out since February 8th, and this is now April 8th. I've done several things on my own, chiropractic, acupuncture, physical therapy, and the latest, trigger point therapy, all with no change to my condition. This has now lead to researching Long Covid, as there are similar symptoms being reported that I have been dealing with. The one area I haven't heard being the same is the pain I have in my right flank. There was an article that mentioned flank pain, but it wasn't an all day, every day pain that no OTC medication does anything for. That is another area I feel I've been failed in, not a single medical "professional" I've worked with over the past (9) months has suggested pain management. How do you have a patient that is in pain from when they wake up until they go to bed, and you don't think they might want to alleviate that? It points back to them not believing anything is wrong.
Thank you both for putting out this video! I've been suffering from the same symptoms since I got Covid last month! Thank you for helping people to get on the right track!!
It's interesting that fasting helps some of us and harms others. Maybe it depends on the stage we're at or what sub category we're in. Personally fasting made me much worse and eating regularly with protein with every meal has helped a lot. I hope one day we find out why things like this work for some of us and not others.
Absolutely correct! I think you are right about the stage we are in and how that can determine if we see benefits. Funny you mention protein. I’m now on a very different diet than at the beginning of my long haul. I’m eating 200g of protein a day and I think it’s helping alot. Also trying to build my body back up as it was so wrecked from being so sick for so long… Hope you’re doing well and feel better soon!
I just want to point out that fasting CAN hurt you!! It's not for everyone. I got sick in 2007 with chronic fatigue syndrome. In 2020 I got a lot better and was almost fully recovered. I started intermittent fasting at the time and I loved it!! It was easy for me to do and I felt like it was beneficial. After months of intermittent fasting I suddenly got a lot worse. I was told by three of my health care practitioners that patients with CFS shouldn't be fasting because it's too hard on our already exhausted adrenal glands. I really wish I had known that before. Thank you, Raelen, for your tireless efforts. It is greatly appreciated!
Thanks for sharing your input. I’m sorry you have been dealing with CFS for so long!! It crazy what fasting can do for us. The autophagy is very much real. I don’t know much about CFS but for long COVID autophagy clears our viral particles that are hanging around in the body still after an infection. There are a lot of other things that can be done other than fasting that can induce autophagy. All of these things I learned about in TOMS fasting for LC group. Wishing you well and all the best of healing.
@@beatinglongcovid thank you for the well wishes! I do believe that fasting can be amazing for most people. Thanks for explaining what it does for long COVID. Thank you for sharing your story It was very interesting and informative
I recovered after 3 years it was hell … I was one of the first long covid patients out here In Los Angeles I feel pretty good now you will get better it just takes time.
Thanks for another great video, Raelan. I'm actually in recovery from CFS/ME. I'm about 75-80% recovered. Unfortunately, I got Covid about a month ago. I'm still doing pretty awesome. Yay, brain retraining and neuroplasticity! The only thing is that now I have some pretty bad hot flashes/flushes. Did anyone have these issues? Thanks again. These recovery stories really helped when I was deep in the trenches! ❤
Thank you for this interview! Adam, I hope you reach 100% recovery soon! You talked about Grounding/Earthing, and I've started doing more of it, and am feeling a teeny bit better for it. Raelan, would you consider interviewing the Grandfather of Grounding some time, Clint Ober? Wishing everyone well on their recovery journey.
Thanks for sending the warm wishes. I hope so to! I’m so happy to hear you are grounding and you have seen a bit of improvement from it! Keep up the great work.
It is a journey of self transformation. And it can be wonderful (and horrible and messy at the same time). The interview is wonderful and will help many people. I went thru neurological LC in the beginning of 2020. Nobody understood me. But I knew I was facing post viral problems ( I had other post viral problems in the past, so I recognized the situation). It was horrible, both the symptoms and the indifference and almost bullying from others. But I know a lot about healing, been meditating for over 2 decades etc, and so I decided to apply all the experience to my own life. Doctors can be helpful but they are not saviors. In my opinion, we’re the ones who need find the solution for our problems. Thank you
You are so right! We are the captains of this ship! No ones coming to save us. Took me half a year to realize that but once I did things started improving! Thanks for the comment and I’m glad your feeling better since e your 2020 Neuro LC 🙏🏻
This was a great interview. Had/have all of those symptoms as well. I constantly get a bigger and bigger picture of all of this from this channel. And as a mind-body "expert" who, I guess, never really believed what he has taught for 30 years, this has been amazing. There's a difference between knowing it and Knowing It
Thanks for leaving a comment! Sorry to hear you have and do suffer from a lot of the things that I do! You’re so right with the mind body connection. I never thought that I could heal my body with these things but as they say the proof was in the pudding lol.
@@beatinglongcovid ur story is great and most people cannot fathom their physical symptoms are caused by a CNS in fight flight position and cortisol WAY too high. They keep looking for a illness or physical cause whilst key is calming the cns, removing stress situations and ways of thinking and calming down. Its like, rollercoaster is fun and we pay for ot and laugh during whilst same exact emotion and ups ajd downs during turbulence is literal hell. Why? Cause we perceive it as dangerous. All pain originates in the brain and is felt in the brain. Brain makes the pain real and when its feeling in danger its trying to protect the host by making it afraid so it doesnt move or do anything to worsen perceived danger.
I have the same symptoms but also more…tremors. Muscle pain ear pressure.! So hard for doctors to believe you. It’s taken me to dark places especially when you’re healthy one minute and then not the next. You really do have to take things into your own hands. Thanks for sharing
Yes I had those tremors to on the right side. Not the internal ones ppl talk about but more the left arm and hand. Your right so hard for docs to believe you and I think one of the hardest things was having a good day then crashing for 5…
Me too (Feb 2020) - was the first to walk into Emory Clinic with it and told i was crazy aka nothing wrong with me, but i felt i was dying. Normal life prior. Completely changed my life. On my way to health thanks to me. No doctor helped. Probiotics (solray 100k 34 v) Activated Charcoal and Oregano oil.
It's crazy. Your story is exactly the protocols that have worked best for me. Thanks for sharing. I found out what to eat, how to fast etc just by trial and error. If there had been this type of resource at the beginning it would have saved me a LOT of pain trying different treatments and supplements.
You are right! The medical profession isn’t much help. I have a great doctor for most problems but for this torture (long COVID), he was almost useless. I’ve had to become my own savior in reading and researching everything I could get my hands on to help myself. It’s like Adam said, you eventually come to the realization that you yourself will have to find the answers.
I am a long hauler for almost 3 yrs! I too have the neuro symptoms, head pressure, anxiety, depression, emotional instability, fatigue. I don't have the cognitive issues fortunately, but everything else. I have relapses/flares every 7 to 10 days, but can't figure out the trigger. I'm not good at fasting but I may have to try it. I'm trying to remain positive, but it's difficult when I flare.
I know how hard it can be to stay positive when you’re in a flare! Good idea! Try fasting when you come out of your flare and see how it works for you 😀keep in mind it can cause a short term flare if symptoms but you should feel better than you did before in a few days. Start small!
Thank you for sharing your story. I have had the same since the beginning of the pandemic. Good to be validated. What really worked for me is pacing to calm the nervous system. I also chronicled my journey through photography. Luckily, after almost 4 years, I am feeling better. I feel like me.
So happy to hear hear that after 4 years you are doing better. What a wonderful idea to focus everything through photos. When you are recovered it will be difficult but empowering to look through everything again.
Exactly my symptoms! But it was after an acute delta-variant infection, with high fewer and absolutely terrible sore throat. It was absolute hell, even with high blood presure (systolic up to 180, hr 120), insomnia, panic attacs, depression, personality changes.
Everything resonate Adam. Thank you. I have long covid since March 2020 and because dokters dont listen to you i have going to find my path alone in the beginning. Now its stil difficult in Holland to get medical help because here the coverment don.t reflekt on the corona time and dont trying to help people with long covid. As if it don.t exist. Thank you for Realen life and people like Adam how take afford to help ❤❤❤❤❤❤❤
Seen the video im happy for you Adam ! This is extremely hard to deal especially when its so new and not normal . My brain fog and neulogical symptoms are getting much better with chinese herbs . But the thing im having the hardest time dealing with is the fatigue and PEM . Ive been longhauling dor 3.5 years and after my reinfection back in January 2022 it put me in a wheelchair . I have a hard time with walking and standing my body just completely shits down and i crash . Im starting to adjust and have more freedom around my house while using a stool in the kitchen and shower etc. But i struggle so bad i cant wait for this to end . I was like u fit always working out and 50+ hrs work week . I struggle to care for myself often but i giess with time it will get better hopefully. Anyways just wanted to say i enjoyed the vodeo and am happy for you bro
Hey Kyle! Thanks for leaving a comment and watching. I’m happy to hear your neuro symptoms are getting much better with the Chinese herbs! So very sorry to hear your dealing with terrible PEM and fatigue. 3.5 years… that’s crazy!! So long to endure this demon. Keep doing what you’re doing as it sounds like it is working, even though if it’s happening so slowly. You’ll get back to working and the working out! Time is the biggest healer I think. Sometimes it’s just slower than we hope. Thanks for the well wishes. I really hope you start to see some great progress soon! 🙏🏻👊🏻
Go to an endocronolgist (is this the right word? I'm from Germany) it could be that you have a low Aldosteron Hormon it is regulating the blood pressure while after standing up and changing positions. If this is the case you will get a PreHormone
desperation will make you do anything. I was getting so much better, started cheating on eating healthy, stopped the infrared sauna and cold showers and honestly I feel terrible again. Now having GI issues, nausea and headaches. I am back to trying the cold baths and getting my sauna membership back in place as well as eating well. Also doing grounding, getting sunlight etc.
I’ve had pressure in the brain 24/7 365 no let up at all since June 18, 2022. I had Covid for the first time (mild Covid) the first week of June 2022. If this ever went away, I’d jump for joy and be able to have my old life back. I’m not able to drive or work. Everything is slowed down for me and I feel dumb, my brain pulsates and burns along with the massive non stop pressure, I’m dizzy 24/7 on top of that I’ve had derealization since 1997 when I was a child. My neurologist diagnosed it as IIH then cervicalgia and now in physical therapy and my physical therapist asked me if I had Covid around the time this happened.
Thank you so much for this video! I can relate to Adam to an unbelievable degree. The head pressure, the anxiety that just seems to have appeared out of nowhere... The adrenaline rush, which I was thinking this was anxiety at first... Right down to the giant box of supplements. That was the part where I actually paused and realized that it's not just me. I would love to share my story of recovery. I just have to get to some level of recovery. Right now I'm in the middle of the worst of what it's been. But this provides some hope. Just downloaded the Breathwrk app and I'm looking for a sauna near me. Thank you again!
Rick! I’m so sorry to hear you are struggling with this as well but happy to hear that you are what sounds like half way there! I really hope the sauna and brethwrk app help you.
@@beatinglongcovid Hey Adam, So I wanted to give you a quick update that I think is pretty interesting. I was going to try and email you directly but you don't have a published email address... so I'll keep this brief. I went to see an Immunologist and took a battery of tests. He told me that I have a condition whereby I am intolerant to B-6 and I have both copies of the MTHFR gene which makes me unable to take up Folate properly. He started me on MethylFolate and Methyl B-12. The second day after starting the Methyl B-12, the anxiety attacks and depression went totally away and have not returned now for around 10 days. I can't think of a 10 day streak since this started. So Hopefully I'm onto something there. Just food for thought. Hope all is well!
Thanks - I’m not a hauler, but helping family and friends. DO A VID ON LONG HAULER CAREGIVERS, Most are midway a frustrating stage cuz they don’t see the end. And they don’t stick to something constantly changing like daily the strategies. We have been so conditioned to take a pic to feel better NOW, Aaaarrrgh
Yes! I feel for my poor husband who would sit by my bedside while I was in a fetal position and cried for hours. That was for ten months. Im somewhat better now. He had to take over the running of the house, grocery shopping,cleaning all by himself. Thank God we are older and retired. I don’t know how anyone works with this horrible condition. I really appreciate him and hope all the caregivers take care of themselves too. LC is tough on all involved.
@@beatinglongcovid Yes, definitely better with relapses along the way, but that’s how we learn to improve our resilience to life stressors. 💜 Tell me more about earthing in the snow because 🤯. I do find earthing helpful too, but the mat didn’t work in my electrical outlets.
@@AnrupB oh my! I hope you’re ready haha. My family thinks I’m crazy. I walk barefoot in the snow ❄️. Just like with any cold exposure make sure you start small! Hit me up in December and we can commiserate together lol
@@beatinglongcovid LOL I’m on Ayurvedic doctor’s orders to stay away from the cold, so I’ll stick to an earthing mat! 😆 I really do feel way worse with cold temperatures or anything cold (food included), but hey we all have to do what feels good to us!
I was infected in march 2020 left with fatigue heart palpitations snf slow digestive system. It took me 2 years to recover.. then i was reinfected july 2022 and it all came back plus new symptoms like muscle aches anxiety.. and still recovering. Getting better with the fatigue, anxiety and palpitations a little but i think the high cholesterol is pushing that part because everytime i was infected my cholesterol went up! So working on that . Sunshine and walks helped me the most . I tried fasting but it wasn't a cure . Magnesium helps with palpation and Nicotinic acid. The anxiety Serene Saffron by Xtend-life helped and omega 3 fish oil. Warm showers help with the aching and longvida Tumeric specially with thr brain inflammation. Some research shows men and women with long COVID tend to have low testosterone, so looking into that . The ultimate treatment is blood washing in places like Germany but it's costly and its a last resot.
No the Cholesterol isn't bad its antiinflammatory thats why it goes up and thats why there are many Keto and Carnivore Guys with high Cholesterol who are getting way better on that diets. You can test your TH1/TH2 Immuneresponses. I bet you are to much on the TH2 side
Hey Jesse thank for watching and I’m sorry you are struggling with the same neuro issues I have. I hope things start to get better for you soon! I was taking bcomplex until I found benfotamine as well and I think it is very helpful!
Although I tested negative for Covid in 2020, I am convinced I contracted a milder Covid in Nov 2019. My main symptoms were exhaustion, staggering fatigue, monstrous heart palpitations, a dangerously high blood pressure which was unique in my life. Lungs were only affected slightly. I would exercise daily, sometimes I would make it thru the 90 min session, sometimes I'd have to go to bed. Multiple naps per day. Things began to turn positive in 2021 when I began a twice per day regimen of Ibuprophen. This finally mitigated the inflammation of my heart cavity, and the palpitations were defeated. From there it was months of regaining strength thru exercise.
After 2.5 years of almost full recovery from long covid, five months before same symptoms plus some more returned. I am in the process of slow recovery now. What the hell, I am scared for future attacks.
Interestingly, your symptoms are identical to what happened to me, but I got chronic dizziness, too. I’m at about 80%. Thank you for talking about what a number it does to one’s sense of self. Masking device for the ringing may help you-the brain started to hear the nervous system and can learn not to hear it. Again, thank you. You give me hope.
Go to an endocronolgist (is this the right word? I'm from Germany) it could be that you have a low Aldosteron Hormon it is regulating the blood pressure while after standing up and changing positions. If this is the case you will get a PreHormone You can also try high dosages of THiamin HCL 1000mg a day its for the nervous system
That's crazy, mine was always low in the past and after covid it went nuts. Glad to hear it has come down for you, though that is good news. @@piperaclark1
Great interview! I tried intemittent fasting and for me, while I felt good during the fast, overall it has made me worse, as it was too hard on my body. But, it has helped some people, so it may be worth trying.
You are so very right! I learned from some many other who were doing it and like you said, some saw great benefits and others didn’t. I believe my main problem was post COVID brain inflammation confirmed from PET scan. So I guess when I was fasting, my thought is my overall system wide inflammation was reduced and that’s what helped so much. But then again I did get a crash after I refed. These did seem to get easier as the fasts went on though.
@@Chelsea-mz4dn very interesting to hear! I had my hormones checked about 4 months ago and I had very high estrogen and very low T. Have been exploring my options on HRT. Maybe that will help bring my levels back to normal. I did speak with the specialist and he has seen a lot of hormone disturbance in both men and women after Covid.
It’s ALL neurological in origin. It’s all connected to Nervous System malfunction, including the breathing issues, digestive issues, POTS, etc. These functions are controlled by the Autonomic Nervous System. Any stress or trauma hammers the ‘stress-management’ nutrients like the B vitamins & Magnesium, etc. it’s no coincidence that symptoms of B1 (Thiamine) & B12 for instance, mirror many of those connected to CV & LC. Acute Thiamine deficiency is known as Beriberi, which translated from Sinhalese means ‘I can’t, I can’t’ - descriptive of the extreme fatigue & exhaustion that accompanies it. The extremely stressed & hypervigilant Nervous System creates a constant drain on those crucial nutrients plunging many into a constant ‘demand outstrips supply’ situation. But calming the Sympathetic dominance & calming everything down enables the nutrient deficit to finally catch up & help the body recover. Fasting may help initially, only because you are not digesting. When the body is in hypervigilant Sympathetic ‘fight, flight & freeze’ mode it cannot digest properly, as the body’s energy is diverted away from digestion, so fasting will help during that period.
I got an unknown infection in 2020, which exploited my underlying connective tissue disease…now I’m dying with complex neuro-immune disease, at 36 (33 when it started). *my disease is severe dysautonomia meets Sjogren’s with autoimmune vasculitis and NMO antibodies too. My muscle biopsy shows hystiocytes in the perivascular areas and rare macrophages…I’m 100% bedbound with joint and spine damage globally.
Did you try intermittent fasting or have you looked into supplements or herbs like moringa? There are lots of videos out there on vit D, NAC, grapefruitseed extract. Amd you will find more in the comments.
Looking back, I've had weird symptoms throughout my life. Random rashes, Hives, fainting, reactions to nickel, anxiety ect. After weird virus 2020, developed neuropathy in hands and feet. Numbness tingling. Reflux, Tinnitus, rashes, brain fog, cfs, high hr. Dec 2021 another weird virus, but this time my immune response was very weak. Mild. Tremors started. Inner and outer. Weak shakey legs, muscle atrophy, nystagmus, head pressure, air hunger, histamine intolerance, overall malaise with adrenal surges and major muscle spasms all over and nerve twitching. Audible hallucinations. Memory loss. Derealization. Depression. My bloodwork showed low wbc counts throughout the years. Low igg subclass 1. High chromoglanin a. Low ferritin, high iron and sat. Went to functional dr and diagnosed with eds, mcas, sibo, libo, kryptopyrrole, pots, mold, dysautonomia, possible lyme. Vascular disorder. Anti voltage calcium channel pos, anti purkinje cell, anti aquaporin 4, strep a. Mitochondrial dysfunction. Treatment for pots and mcas immediately. Diet protocol autoimmune/antihistamine/paleo. High protein, high healthy fats, low carb. No sugar, processed, dairy, gluten/grains. High dose NAC, glutathione, plasmalogens, phospholipids, bodybio balance oil, olive oil, tons of oils. Ox bile, tudca, sodium butyrate for digestive aids. Targeted protocol according to test results: vitamins, minerals, supplements. High quality salts. Hrv training. Brain rewiring. Sleep study. When more stabilized, antimicrobials and cavitations surgery. Sauna with gentle binders. Upper cervical adjustments. Bedridden to mostly functional. Set backs along the way. Still fighting. Taking 5 prescription meds( antihistamines, ldn, hormones, mast cell stabilizers), 40 supplements daily. Very specific and targeted approach. The brain does not know reality from non reality. When we think we are dying, our brain sends those signals out to our body. My functional dr will not treat without hrv training and limbic system training. He says you cannot heal without it. Interesting.
What breaks my heart is how many of us are out there being gaslit for years as we deteriorate. How many people have $$$$$$ to seek out functional medicine?
@@beatinglongcovid I’ve improved over time but still have neuro issues, numbness in extremities, a little pain in fingers, I manage activity so I don’t get shaky. The pots issues were helped by beta blockers , I do take alpha lipoic acid for nerves and that helps some and has good data behind it. I monitor stress heartrate sleep and activity regularly as well as clean eating. I think everything together helps. I’ve done an incredible amount of things to help but those are the worse remaining issues.
@@bananaq8i yeah that’s the worst remaining issue for me. I had terrible pots and breathing issues as well which really I believe it’s all dysregulation and dysautonomia. Everything is malfunctions. See my other reply also. Hope you’re improving!
@@beatinglongcovidivermectin and naltrexone cleared most of my symptoms. Pfizer shot messed me up real bad and made me vulnerable to covid when i had it before and it was milder than a cold.
Fellow sufferer here. Im really starting to think that regardless of protocols, whih are all wide and varied, the only thing that really helps is time. Fill your time with these aids sure, especially antihistamines, but I really think its a waiting game at the end of the day.
Neurological long covid. Me too. How’s your driving? Mine is soooo bad when I’m over stimulated. It’s really shocked me. Road rage too…and I’ve never ever experienced before long covid. Thanks for sharing.
In the beginning my DP/DR made driving impossible and dangerous. My wife stepped up luckily and did all the driving at the beginning. Lucky we share a car so this wasn’t extremely difficult. The rage I understand as well. It’s crazy how something so small can set us off. I think the underlying frustrations of having a broken brain finally come to a boiling point.
@@beatinglongcovid M’y Occupational therapist described the rage to me. It’s so interesting. Basically the brain should have its own self regulator for behaviour…for example when people drink alcohol, it doesn’t work so well and behaviour is much less inhibited….same is true cos od the neuro damage I have. So when I’m in very stressful situations m’y brain is receiving no messages to stay calm or act appropriately, which is why I can flare into rage. It happens when I’m really over stimulated, like too many people talking (I can’t follow conversation) and driving on busy highway. So I have some strategies now and I haven’t experienced the rage in a long time. The strategies are aimed at reducing info sent to the brain so I can focus on what I’m doing and stay calm in body and mind. It includes wearing a wide brimmed hat and sunglasses (even if it’s not sunny) because it reduces the amount of info m’y Brian has to process because my field of view is simply halved and I don’t need to deal with harsh light. Also, I avoid highways as much as possible and I try to use roads that have greenery or lake view and I listen to classical music when I drive. It takes longer to get where I’m going but I avoid any rage and it doesn’t burn me out…the classical music (that might be personal for me) actually seems to rejuvenate me. Isn’t that crazy? So with this strategy I can turn around demanding chores like going to get groceries into partly a relaxing and rejuvenating activity. Oh, I also stopped going to large grocery stores and go to small ones with lower ceilings and no music. The lights are not so harsh and the noise is way less…it’s crazy how much of a difference that makes. If I do have to go to Costco or ikea , it’s hat on and glasses on…even then, it can trigger symptoms while I’m in the store. Listening to music on my AirPods helps in Costco but something about ikea has be running down the bathroom all the time…my gut doesn’t like Ikea! It helps me so much to understand it.
@@beatinglongcovid can I ask what type of work you do? My job is office based and if I’m not staring at spreadsheets and reading reports I’m leading meetings with large groups of people, and running to meetings with clients (usually large groups of people at a time). I’m finding it difficult to know how to get back to my job specifically as it’s project based, always a challenging schedule, and I have to react to client and team needs…every day is different….so basically I’m thinking hard all day long…..and this is the one thing I can’t seem to do right now. I can cook, I can drive, I can do some house cleaning so long as I pace…but it’s the thinking that’s very difficult and draining foe me and exacerbâtes symptoms even worse that physical exercise. Wondering how your back to work went. I’m so anxious to get back to work both in positive and negative ways…afraid I won’t be able to think and be effective or even capable as I was before.
@@maryfarrell9439wow! Thank you for putting into words the exact way I was feeling about going to the grocery store and driving on busy roads. I know only one person that had my symptoms of long COVID like mine. It’s hard for others to understand my behavior.
@@lindavid794 coincidentally, I read an article about this in The Rolling Stone today. The title is below. Don’t be put off by the mention of personality change. To me that is what it felt like, like I had a personality disorder. But I’m still here…just still finding ways to recognize and manage when I’m over stimulated. I really related to what was written in the article and so did my sister who also has had LC since 2020. I’m glad to see medics are picking up on this. I first talked about long covid rage with other long haulers on a Facebook group about a year ago, and I was so comforted to know others were experiencing the same thing, and I wasn’t just losing my mind or personality. ‘The Rage Would Come Out of Nowhere’: Personality Change Has Emerged as a Symptom of Long Covid
I’m sorry to hear that😢. Honestly this is the reason I claim I’m at 90-95% because there can still be symptoms! Hoping we can get to full healing soon ❤️
Thank you very much. By listening to this recovery story. I investigated Breathwrk, joined premium and started some areas. Fun healing, love that concept. BTW, my challenge is vaccine induced long covid, esp neurological sx. ❤❤
It looks to me that people with Long COVID can recover faster than people with ME/CFS. My ME/CFS triggered 5 years ago after getting Mononucleosis and not resting enough. My first year was the worst. I was bedridden. Now I have some good days, then I crash. I have two children to care for. It's hard to pace myself and I have Type 1 Diabetes. My sugar going up and down tires my body even more making the healing process more difficult. I'm not giving up. I've tried almost everything and will continue to do so. I'm much better than I used to. Now looking into the brain rewiring part. Raelen, I started watching your videos this week and you've been a blessing! I wish I found your channel before. Your story and your interviews are truly inspiring ❤️
How long did you fast and how many times? I am a vax injured with pretty much with all of your neuro symptoms but I believe it’s the same condition no matter if the vax or the virus itself.
I also believe this to be true. I stated with intermittent fasting, and then 24 hour fasts, then 48, and finally 72 hour fasts. I did one a month for about 8 months. I hope this helps you! If you have more questions feel free to reach out.
These videos are so helpful and encouraging for me but I just want to know if anyone else is experiencing the symptom of being aware while sleeping. The best way I can explain it is similar to a sleep paralysis of sorts and just being conscious while you're sleep.
Waking Up was the more in depth mediation app that escaped me during the interview! Amazing they have a 30 day beginner course that helps you learn more about mediation and what’s behind all of it.
I suffered LC since 2020. I achieved what I considered a full recovery earlier in 2023. That lasted for about 5 months, then symptoms started to resurface. Save all your supplements and other protocol in case this happens to you. I am feeling better again, but I will stay on the supplements that helped me. Good luck!
@@granda9689 The ones that I believe helped me the most are nattokinase in the NSK-SD form, rotated every other day with bromelain, each must be taken on an empty stomach. Niacin with food. Omega 3 fish oil (I use the Carlson's brand) Vit D and whole food Vit C. Best wishes!
With any serious illness think about Lyme and co-infections plus viruses. When ill this things have a great party in us. I am being treated again after twice covid and an operation iin the space of one year. I suffer from me/cfs, lyme plus co-infections and long ebv etc. Lyme disease is often tested by serious illness but not found. Lyme is bidding in tissue etc.
I thought a lot less about long-covid after getting back to 80-90% and then got re-infected last month and feel like I'm back on the recovery train - this virus is awful.
I hear this. Same thing happened to me in September. Took a few months but back to the 90% now. Still searching for that final piece to the puzzle though.
@@beatinglongcovid The struggle is real. I never felt quite like my old self since the first go round but I was at least able to get back to doing what I loved and just grateful to be moving around. This second time, the brain fog and anxiety was intense for about a month, finally coming around again, its unfortunate because it makes me not want to travel and that used to be something I looked forward to.
@@AlexiaHammond-rw7qq Hey Alexia! I’m happy to hear your coming around again ❤️🩹. I totally get what you mean about travel. I have been away twice now with another vacation coming up in June. First trip was awful. Second I was great so Its really a toss up! I think I will be ok this time and keeping my thoughts that way. If travel is on of your passions you will definitely get back there 😀. Keep pushing forward! Glad your brain fog and anxiety are dying down, those two are killers for our drive to take part in the things we love.
Pax is good and complexly necessary for acute infections. Trials are going on now for long COVID use. Fluvoximine is good for brain inflammation at lower doses. Same with LDN. I’m sorry you lost your job. Keep doing everything you can to heal and when you get well you will have some my things you can do again. Just believe my friend. ❤️🩹🙏🏻
@@beatinglongcovid- THANKYOU So Much.......I'm still not able to fo much? should I ask my Dr for Fluvoxamine? June 8 caught covid again? Appreciate any help I can get 🙏
@@Butterflywishes-rf9dt I would try and get an antiviral as well. If you just had Covid 5 days ago. Let your doctor know you are at risk with your already awful long COVID. Fluvoximine is also part of my acute COVID protocol. Please speak to your doctor about all of this as it’s important. Just giving you my experience and what I used.
I'd be interested in hearing more about the dpdr from Adam please. Adam maybe can you do a special on that on your channel please? I also didn't catch it, did you do the PET scan and did that yield anything?
Hey Chris. I will put together a video on the dp/dr. That was one of the toughest symptoms forsure. Always felt out of it.. staring out windows for 30 mins on end. Brutal. And yes to the PET scan showing brain inflammation.
Brain inflammation from the SP. regardless of those two situations. The more SP the more inflammation. Ice hats off of Amazon and peppermint halo Rolo on have been the best things to help with this for me!
Yeah you have to find support! I got ALOT of help from physical therapy..in fact one therapist HAD LC herself! It is a fking S L O W recovery and lots of set backs...i will prob never be 100% the person i was. sadly 1 1/2 years now!
Absolutely! PTs and OTs are so overlooked in recovery. They can be so helpful! So happy you found some support! I hope you get well soon. Like you say it’s a long road, but we will get there!
Hi, Adam for brain pressure and brain fog i used ACTOVEGIN injections( 10) an then 25 days ( tablets 2x tablets a day) I had brain fog and terrible headaches/preasure brain, head ( right side only) After covid. So thats really help me would recommend. Thank u
"Is this actually helping?"...yep...been there.Still there.Another odd way to see things..."MAYBE".....it simply cleared itself?Who knows.We're all trying to get well.God Bless.
We found found a doctor I n N.Y. that educated us on inflammation. Neltrexon and a low histamine diet helped my son who got myocardits then suffered from long covid this year and is working on getting better.As of today 1/7/24 we have discovered it is thyroid.Even though his numbers were 3.69 it was to high for him. .25 levo snd all symptoms good
He says look for fasting group by Tom Bunker, fasting for long covid, start with intermittant fasting. 6 to 7 months things started to shift. Breathwork to support the vagus nerve and reset the nervous system, grounding, breathwrk app has long covid breath tracks, sauna followed by cold water immersion start slow in terms of duration and temperature.
Hey there! Some of the things that helped the most are linked in Raelans video description, but here is more information on my long covid care box I used if that helps. ua-cam.com/video/_BrEPuID_Ps/v-deo.html&si=Gr4oi1g4LViNBkrU
👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
My daughter is going through absolute hell with neurological long covid symptoms. GP yelled at her and told me she must have a psychiatric disorder because the MRI & blood tests came back mostly normal (except for high iron saturation & high B12 levels, despite not having taken supplements.) Neurologist didnt even look at doctor's referral letter and upon hearing symptoms declared "nobody will be able to diagnose this" and prescribed an antidepressant.
Daughter still suffering severe neurological symptoms months later : numbness down right side, pressure in head, insomnia, burning of skin as if skin on back has been flayed. If sitting or lying down severe burning sensation on skin. Difficulty walking. She was a very healthy young woman before getting covid and completed a Masters in Biomedical Science last year. Now she is being gaslit by doctors who dont seem to believe her symptoms. She is not the kind of person who would make this all up, she's absolutely desperate and I'm very concerned she may commit suicide. She says she feels "dirty and invalidated as if I'm a headcase" every time she tries to go to a medical doctor for help.
I've heard this attitude by doctors is very common. When a patient is suffering this much it is cruel to gaslight them and deny the reality of their symptoms just because you're not a skilled enough doctor to effectively diagnose or treat the illness.
Seeing how this disease has destroyed my previously smart, funny, vibrant, healthy daughter and the gaslighting of the medical fraternity when she has tried to get help, I have lost a lot of respect for the medical profession. Whatever happened to "duty of care" to their patients? Unfortunately we need a "Dr House" but all we ever seem to get is a "Dr Evil."
Igenex test. Sorry this is happening to her.
@RealSato, I got very sick at 14 from fluoroquinolone poisoning (though we didn’t know that at the time, as we didn’t think to suspect an antibiotic), and within months, my mom and I realized that the medical doctors were a joke, and were not going to be helping us. We quickly switched over to the alternative community, and that is where we began finding help. ❤
I really hope your daughter gets better, and I’m so sorry that she and your family are going through this. Much love to y’all!
You need to ignore the gaslighting, it is very common not to be believed ant that is not the patients fault. The patient knows what they feel. It gets better with time and intermittent fasting can help, antihistamine have helped some, moving your body and not thinking about stressing tasks can help
Believe me I get it! Same thing has happened to me!
I agree with the benefits of fasting described in the video
"Nobody else is coming to save me..." These words really resonate with me. I came to this conclusion myself after getting nowhere with the medical community. Family practitioners and ER doctors are largely uninformed about long-haul. For me, it has been lots of trial and see what works and what doesn't, keeping an open mind and trusting my gut. Many of my symptoms are neurological/vascular and I did have some success with a low histamine diet, but it is really hard to sustain this for a number of reasons. Symptom tracking for me is not helpful- my symptoms are highly varied and keep changing, so this is a bit depressing. I am better off tracking my nervous system state and using polyvagal strategies- weighted blanket, meditation, visualization, auditory aids (delta waves), using cold packs on my head and neck at bedtime - anything to calm my nervous system.
I’m sorry you are also suffering with long haul. I completely agree with you that GPs and others were largely no help. I do give my GP props though for “just going with it” and supporting whatever new thing I wanted to try.
All of those things you mention at the end here I also find so helpful for my nervous system! I really love my weighted blanket and the ice hats for the head have been my saving grace. Wishing you all the best in your recovery journey 🙏🏻
I never had panic attacks until I got long Covid. Now it feels like I have to fight them every time I get a little bit stressed out. The cardiologist accused me of demanding to see doctors when nothing was wrong with me. The Pulmonologist wanted me to exercise but I couldn't get him to understand that I was not recovering from workouts. I use to play sports, I understand the difference in feeling between fatigue from not working out for a while and what I am experiencing now. It was a rheumatologist that suggested that I may have POTS from COVID. I am still not doing the best but I have felt so much better ever since I started salting the heck out of my food and drinking 3-4L a day to help manage the POTS. After 2.5 years of trying all these different medications, barely holding onto my job, and living about as well as a zombie does, there is finally some hope I can get better. I'm ready to live again. Heck, ready to just be able to clean my house without it making me feel drunk afterwards.
For anyone in the early stages, I promise you are NOT going mad. Start taking as much care of yourself as necessary and it is only a matter of time. Even if that timeframe is a year or two (or more), time flies. Good luck. We're all with you
Absolutely this is key!!
So many of your symptoms resonated with me. The depression and anxiety was unlike anything I’ve experienced. I’ve recovered quite a bit - my last two symptoms are fatigue and brain fog. I just started on LDN and so far that is really helping. And to think the actual COVID illness wasn’t too bad. Boy, did it devolve into something otherworldly. I wouldn’t wish it on my worst enemy.
Absolutely! Crazy that the acute symptoms can be so mild and then we get hit with this demon!
Happy to hear you are feeling better and the panic and anxiety has calmed down.
Wonderful to hear LDN is helping you with your last remaining symptoms! 😀
What is insane is despite many young lives being essentially ruined, at least in my case because I've been gaslit so much, I actually have to question whether I'm going insane too. So if you get a horrible diagnosis for a 'normal' disease you at least have conviction and a plan of what to do, while with this it's just a horrible soup where you try and remember what it felt like to have a brain that works.
I'm right there. What's LDN?
@@JoseSoto-eg8hkLow Dose Naltrexone
@JoseSoto-eg8hk
LDN might be Low-Dose Naltrexon. I'm not sure; so, maybe you can get a knowledgeable person to respond to your question.
I contracted SARS-COV-2 the first week of December in 2021, and for 45 days it proceeded to strip life as I knew it away from me. Brain fog has been one of the most difficult things to deal with along with my blood pressure/pulse and oxygen saturation being all over the place. As a whole, a lot of Doctors look at us as "Problem children" and don't want to deal with us because we are Too Much Work
Yes absolutely. They have no idea how to treat us. I think a major part of the problem is there is over 200 symptoms for this?
How are you doing now?
What is brain fog
Did I have Covid. Currently I have neurology status diagnosed as Peripheral Neuropathy. Burning in legs and arms and face and burning tounge. Its a hell and trying force my way out from it. At 73 not much time left. The anxiety is a hell. Breaking down in tears. Not getting enough sleep. MRI scan found nothing beyond what was expected for my Age. It seems what relieves it a bit is getting up and doing something physical. May wish anyone suffering like this, the quickest recovery. Thank you Adam.
I had neuropathy as well. Check your meds. My doc changed my cholesterol med to a different one. I take R Alpha Lipoic Acid, Benfotiamine, and walking. I bought a Bob and Brad foot massager on Amazon. I’m now recovered. Good luck!
@@cherrybb3888
Yes! High dose thiamine is helping many!
The neuropathy can be from LongCovid. I have it too and no one can figure out where it's coming from. Try an antiinflammatory diet and the fasting mentioned here. it helps a LOT.
@@TheSaraphic
Have you been able to try brain retraining yet? Ben Ahrens has talked about how when the nervous system and brain relaxes, the inflammation in the body goes way down. It’s pretty amazing, and he had neurological Lyme disease and got over it by calming his nervous system as well as doing holistic treatments in conjunction, such as getting sunshine, etc., but the main key for him was changing his nervous system
Amazing interview ❤ i am only at the start of long covid, and it's a scary place , but i know now that i will recover in time. Hopefully, the powers that be that have done this to us are one day accountable and jailed. ..
Fasting and low dose naltrexone was definitely the start of my healing. Mine is autoimmune phenomenon caused by the JJ cov vax. Hell on earth and no help from medical doctors. Absolutely treasure your talk here and makes the world a less lonely place knowing you’re not the only one. 2.5 yrs and about 30% recovered.
Wow your one of the first I’ve found that has j&j injury like me. What are your symptoms? And I agree with fasting. A 7 day water fast was the 1st thing that made me feel better..
Day after started with bad headaches and each day progressed into full body pain, electric shocks in legs, couldn’t sleep, ringing in ears, snow vision, joint/bone pain, upper R side pain that radiated to back, dizzy and felt drunk. Each day muscles got weaker to where I couldn’t walk without assistance. Breathing was difficult. 4 weeks post, I lost consciousness and woke to my husband clearing vomit from my mouth to start cpr. That was my 1st of 3 trips to the er with BP in crisis stage 215/111. I never had health issues, BP on lower side and worked 70 hr work weeks self employed. I had to end my career and entire life changed. Doctors weren’t allowed through SSM Health to admit vaccine injury, however a rheumatologist listed in my chart autoimmune phenomenon caused by JJ vax. My immune system attacked every inch of my body - liver, thyroid, GI, muscles, joints, brain, nerves. I was stuck in fight or flight for 12 months. I was newly diagnosed with mesenteric panniculitis, fibromyalgia, osteoarthritis, tinnitus and essential hypertension. I no longer have blood pressure issues now that sympathetic nervous system had calmed down. I still have inflammation and starting to get nodules on my hands. Ugh, I’m too young for this. I haven’t gone 100% keto but know I have to for further healing.
@@thorinoakenshield5601 any hypomobility
Funny, I was just prescribed Naltrexone and Hydroxychloroquine last week. I was not vaxed, but I am having a lot of the same symptoms. I really feel like I've stumbled on the best possible resource today. I finally feel like there's some hope.
@thorinoakenshield5601 I have postvax syndrome as well. After first Pfizer vax my health declined. From very active 43 yo to not able running 50 meters. I have terribly itching legs and face and painful muscles which feel very acidic after every even soft and easy activity.
I'M ROB!!! Thank you for pointing out my story. I hope it inspires others to not give up the fight against this horrible disease. Adam your story is inspiring, thank you for sharing. I love that you say you gotta go find your "flavor" of people that you resonate with. I tell people all the time, If you dont resonate with me, GOOOO find someone who you do. So crucial to watch others who you resonate with. Thank you Raelan for being the cornerstone of this community, I recommend everyone that contacts me to build their hope or build their faith in healing by watching all of your interviews. 🙏❤
Rob!!! So great to hear from you ❤️🙌🥰 And well said about finding your folks. So important!
Hey Rob!! So happy to hear from you! Loved your story on this channel and so many of the things we did are so similar.
Wonderful to watch your videos and know you are doing so much better!
You are spot on about Raelan and how she is leading the charge in sharing all of this valuable information! We are all so grateful for this space.
Wishing you all the best brother.
So grateful for this interview. I am one of the more rare cases, as well, that had severe neuro covid and I have heard very few stories(outside my own) of recovery and I was so happy to hear Adam's open and honest discussion. Talking about how a virus can completely alter how you see yourself in your personality bc of the mental health symptoms it causes has a touch of a stigma to it so I am very grateful to him. Having no history of anxiety or any mental health symptoms this was tremendously hard for me. I also had overnight(like a light switch) depersonalization and derealization plus more. My husband and I watched this interview together bc it was so meaningful(even though we are through this now) to hear of others who couldn't form sentences and were having terror attacks(I say this bc panic doesn't even come close to describing it). I couldn't watch a Disney movie without going into full blow adrenaline and terror. My brain was so inflamed I couldn't tell you my own name at times. I also had POTS and some other issues. I wish you all the best and a full recovery, Adam! Best wishes, Raelan!
My basket of symptoms is just like yours, it's a wild roller coaster ride for sure.
Hi Laura - what is your own recovery tips then?
@@stubousfield1352 There is so much I could share. I was an original neuro and cardio long hauler. I started having LH symptoms in March of 2021 and nearly overnight was cognitively and physically shut down. Everything Adam talked about plus other symptoms like cardiologist diagnosed POTS and was in total "freeze" mode in complete terror all the time. Had so much adrenaline that I lost 30 lbs in 4 weeks and was down to 3 foods in that same time. I couldn't watch anything on TV without going into full panic attack, depersonalization and derealization, and adrenaline surges for no reason about every 12 minutes day and night. Very quickly was bed bound and even the sounds of birds chirping would cause panic. My mind never stopped and had the most terrifying nightmares and thoughts. I didn't even know I could have thoughts like this bc I am a pretty sensitive person who never watched scary or gorey films or TV. I also had such deep brain fog I couldn't read, write or, at times, tell you my own name. I know now this was brain inflammation but back then no one knew anything. A lot happened in-between that time and understanding what was happening to me but here is the crux of what began my healing. The mental health symptoms made me think I was loosing my mind- (no history of depression, anxiety or any other mental illness before hand) and now I know it was my brain misfiring from inflammation and the inflammation couldn't detox bc I was in constant F3(fight, flight, freeze). My brain and body was being flooded with Cortisol and adrenaline every few minutes. The biggest helpers(I did A LOT so I am not suggesting that everyone needs to do all these things but it was what I did at the time based on my level of cognitive processing)- I started with DNRS based off of someone's post in a covid long haul forum and did that for 6 months. This worked so well that my POTS was gone within 2 weeks and my activity level was normal. Within 1 month my diet was back to normal eating all foods. BUT my brain was not. Everything I did re-triggered the neuro-inflammation. 1 month in I added acupuncture and that was very helpful. After 3 months of DNRS life was about 40 percent better and I added a community group through them. This was a HUGE help and proceeded to do this for 3 12 week sessions. This being a part of community, I know think, is one of the biggest things to support healing- as long as the community is a positive minded one. I also read all the GUPTA materials. I wanted to hear it all from a different angle. I learned, for me, the key to successfully reintegrating my brain was to focus, singularly, on one task esp writing. When I wrote something my mind cleared a little bit more. I started by writing one sentence responses in community forums. Typically, I tried to only post positive things, as I was trying to teach my brain to switch out of F3 and into rest and digest. I had to start believing that I was actually ok and stop asking questions in the forums that were always urgent and panicked and instead start participating in the culture of positivity and healing hope(one of the reasons I love what Raelan does here). I think the most important thing was when I finally had the lightbulb moment that I was not a victim and that everyday...every.single.day I was responsible for what I did that day and most importantly what I thought. This is what the DNRS helped me with the most was reorganizing a life time of negative, victim-based, thought patterns and deciding I wanted something different. I decided I could heal and I would and I would trust each day was working me towards that. I was still dealing with a lot of bodily anxiety and subsequently terrifying thoughts and a DNRS friend suggested the DARE program. This was HUGE and I can't recommend it enough! Read his book(it's short) and then download the app. Pay for the full service for one time and then listen to every single audio he has on the app and then everyday listen to Barry's daily dare. Just commit to it was what my friend said and since she had healed from what I was dealing with I believed her and she was right. I committed to listen to all the audios and the daily dare every day and Barry's voice is so calming and he has been there himself. A huge part of helping me get into parasympathetic was my faith. I would sit and meditate on scripture that was comforting to me whenever my mind would start going into panic thoughts and I would write it as well both for comfort and for focus writing practice. I started making myself go to events and church services and the emotions just opened up and while I was deeply neurologically triggered by the music and people engagement I knew by now I wasn't in any danger from it and each time I noticed a positive shift the next day. I felt like I was rebuilding my brain. After one year into rebuilding my brain no outsider would have been able to tell I had been so sick but I knew I was still in F3 a lot of time in my thoughts so I joined Primal Trust for continued support. I went though Dr. Kat's online program and then did the live level 2. She added in something that I had not yet been taught and that was somatics. From that point on somatic work was the biggest shift. She taught about orienting, grounding, eye exercises and these things finally took down that feeling of constant anxiety- not even kidding within 3 days of doing them. It's sort of like the idea behind EMDR. I hope this has been helpful. If I could recommend one thing overall I would say Primal Trust and if you can afford 2 I would say add DARE. I am no longer in either program bc I don't need to be but I think these were the single greatest resources that compiled the most helpful things, however I am eternally grateful to Annie Hopper and Connie at DNRS for what they do bc it found me first and was my introduction to what I believe God used to heal me. I think finding that sense of what comforts you is important and being able to return to that.
@@Dragonfly20233 you are a gem for putting the time and thought together to write the above. Best xx
Hi Laurie!
Just wanted to say thank you very much for this comment. Gave me some chills. My new nervous system firing in a good way.
It’s absolutely crazy how a virus 🦠 can change who were are as a person at the very core!
Touching to hear you found this valuable enough to share with your husband! It’s very true how important our partners are in our recovery! They endured the whole thing to and had to be even stronger for us!
I know what that overnight switch of dp/dr is like… it was the scariest part of this whole thing! I couldn’t even comprehend how fast my life had changed… one of my most mysterious stempotoms and I’m not sure exactly what I did to cure that one…
Wishing you all the best and stay well!
My understanding is that recovery is not a linear process. Lots of ups and downs with symptoms can be a normal part of the journey. Great interview and Adam, I hope you will soon be 100%.
Hey Kathy! You are so right. I call them windows and waves which is a bit of a term from the recovery community but it honestly suits what we are going through so well!
I honestly am still finding I have flares, but it seems when I look back on the last one, each time it happens the “window” or stretch of feeling good is longer each time.
Thanks for the well wishes ❤
I am a data scientist and sufferer of CFS, I would love to do something with CFS symptom and recovery data to find out what works for who.
You’re so right! I know it’s probably no where near what you do professionally but I have found so much inspiration from my data on daylio. It shows me what impacts my flares, symptoms and moods. I hope you feel better soon so you can put something like what you’re talking about together!
I have had the same idea. We could do something with that by say setting up a website and having people fill in their medicines, supplements and other attempts at recovery and to have them rate what works and what doesn’t
There is a site called Eureka - they compare medicine and supplements - but not other tools like brain retraining, cold water, breathing aso
Brilliant idea.
To be more specific I’m a data scientist for a healthcare company, and I could have access to an algorithm that is able to find symptom trajectories towards conditions like e.g. diabetes. I hypothese that this could also be used for recovery trajectories. It would indeed require collaboration and a community to gather the data. The format of the data and how it should be asked can also be figured out by means of what works best for the algorithm. The problem is that I don’t have the energy to make it happen all by myself, if people want to collaborate and discuss the idea I’m down. The legal part with respect to gathering and storing health data is also something to be figured out.
When I got COVID I had a fever, pneumonia, tinnitus, hallucinogenic dreams, brain fog, anxiety, and depression. I thought I was going to get the common cold but was I ever wrong. I wouldn't wish this on my enemies. I felt my personality disappeared, no interests, and, physically, I felt like there was a lead pipe lodged in my brain. That must have been the inflammation. I was at the point where I thought of killing myself, and that I would never recover, especially from the acute tinnitus. What kept me going was the love that I had for my wife, brother, and our cats. I could never do that to them. I did slowly improve and a strict discipline with the guitar kept me together mentally, though I still have anxiety. Part of my personality came back -- not that it was gone, it may have been hidden by the symptoms -- and I find my old self returning more so at night. Maybe I'm more relaxed at night and the nervous system is working better. The mornings are the worst and I think that may be because of cortisol in your system. It has taken a long time -- a year and 1/2 -- and I'm not fully recovered. But things are improving slowly. It is good to have hope and something to look forward to, and I also think our bodies and minds will try to correct themselves over time. Things will return to normal. But you also have to work at it. COVID, IMHO, is a biological weapon and the world suffered immensely. Pray God it never happens again.
Absolutely agree with the comment on it being a bio weapon. It has to be treated as such in our recovery.
I’m so sorry you suffered with so much of the same issues that I did! I’m happy to hear you are seeing improvements❤️🩹🙏🏻
@@shelley7209Try N-acetyl cysteine if you haven't done so yet. If opens up the Airways.
@@fadatiko I tried Nac early on the pulmonologist said it’s in the tissues he suspected… That was early on when they knew nothing! Well. They still know nothing! Thank you for the recommendation and taking the time!
@@shelley7209 you are very welcome. Natural hebal remedies might be another option. There is one called lungwort complex by twenty first century herbs. You might want to give it a try. Read through the reviews on their website to see if it resonates with.
Hope you find relief soon. Lots of love.
Have you recovered yet? As it's taking my friend a long time....
3 years. The Braun Fogg is the worst and no sleep. She feels her brain is inflamed? Will any of the drugs help with the symptoms?
Some days it feels so lonely. It is like all we have is each other on this life raft of internet. God Bless all of us warriors.
You guys are heros, thank you so much
Thanks brother ❤Raelan does an amazing job at this!
I feel you man , I’m so much better now about 90-97% healed
I know I will eventually be all the way through it
So happy to hear that brother!! Thanks for sending the healing vibes
How long did it take you to heal this much ?
Did you lose weight?
@mohammadnurulamin8903 I did bad .... and feels like im losing muscle.
It has been a long journey for me. Long Haul had changed my life. I've done so much but still struggle with some things. There was a point where I thought about ending it all. I can't wait for the day when I'm back to normal. I'm not gonna lie it's been the hardest thing Iv ever had to face in my life. I'm tired, so tired and that's all I can say.
I too had many days when I didn’t want to be in this world. But, it does get better. There’s a lot of good information out there , in the video and comments. I know the hell you are going through as do apparently more people than I realized. Try to stay strong. Sending you best thoughts,wishes and prayers.
Thank you for the kind words, I really appreciate it @@lindavid794
Omg I’m so tired of saying I’m so tired and no one gets it so I’m here to say I feel everything you have said I’m just taking baby steps and just keep the hope we will get better 🙏🏻
@@caraleecampbell3984 It will be 2 years in December for me. Praying we both get better soon.
@@jvvallie2 years in December for me as well ❤️🩹
Thank you for this video!! I don’t know if I had covid, but I caught a virus at Christmas just gone and had the exact same post symptoms! Panic attacks, anxiety, racing heart beat, brain fog, unsteady when standing…really scary!
Been doing regular walks, breathing exercises, getting more sleep, vitamins, even trying electrolytes. It’s slowly getting better, but I think it’s all about pacing and understanding that your body needs time for recovery and there’s no quick fix. Gradually coming out of the woods, and every small, daily victory needs to be celebrated. Thank you!
😅😅
Thank you for this. I’m an 87 year old lady with ibs, afib, high blood pressure and gastritis. I have had Covid 3 times and am dealing with so many issues that seem to relate to long covid. None of my doctors know anything about it, nor does my hospital. I keep thinking I’m getting better but then relapse. The least little stress totally exhausts me. Ikve been looking for answers and your videos seem to be my best resource so far.
After mild covid , started experiencing below symptoms and after which incresed day by day
1 - head pressure on simple movements like walking feeling as if I may fall
2 - Extreme Insomnia - could not sleep or barely managed to sleep for few hours in the night , insomnia continued for 6 months
3 - uncontrollable anxiety , hunger to such extent that if i did not eat I , I felt as if I may become hypoglycaemic
4 - depression associated with insomnia which made my day time feel like hell, always sleepy during daytime , even i felt extremely tired still I could not sleep
5 - extreme sensitiveness of skin , simple tasks like bathing gave shivers and palpitations
6 - swallowing food issues , made my hunger symptom more scary
7 - unexplained palpitations on seemingly simple movement
7 - Continuous anxiety as stated in above comments , small triggers were enough to trigger anxiety symptoms
I am on medication since past 9 months , and started to feel better with symptoms reducing day by day
Sorry to hear you went through the same nightmare! I hope your symptoms continue to get better ❤️🩹🙏🏻
Amazing interview. After getting a Covid Variant in June 2022 by August/ September 2022 I was diagnosed with persistent AFib/ Congestive Heart Failure ( heart transplant ejection fraction zone) and Restrictive Lung disease. I was told I would have to be on an inhaler drug the rest of my life. I went off of it after two weeks and never needed it since. Going the whole Cardiology route I was scheduled for heart surgery to correct AFib next August in Houston. After 14 months of AFib every day I was on a high dose of Amidarone for 14 days and it started to correct the AFib for two days but I backed down the dose and AFib came back the third day. Then the next week I heard about trying a 7 mg nicotine patch for 6 days which I did and after two days I went into normal sinus rhythm and now I’ve had no AFib for 75 days. I canceled my cardioversion at Stanford and I stopped the Amidarone after a week or so. I will be canceling the Houston heart surgery soon. The problem with that drug was that it affected my thyroid. My TSH levels are 3 times what it should be. I’m taking thyroid supplements not thyroid drugs. The congestive heart has improved 5% every 6 months and my next echocardiogram in February will hopefully reveal more positive improvements and less swollen left atrium. My blood pressure is still in hypertension area and I still have brain pressure which changes often. I do $600 a month on key nutrition supplements. Then I improved my diet, limit stress, sleep better, do infrared light on my chest, do infrared sauna and try to walk fast pace 2 miles a day. I have a grounding pad to sleep on. I was fasting every two weeks around 72 hours for two months before the nicotine patch treatment. I don’t know if the brain pressure is due to my heart and lower oxygen and hypertension or if it’s from long Covid? The head pressure and some short term memory issues ate now a big concern of mine but I have no answers at this point. I keep on like Adam researching almost 1-3 hours a day because this health issue forced me into retirement August 2022. Thanks for this interview!
Cold showers are helping me enormously too. Intermittent fasting is helping too. Mild stressors = hormesis. Agitates the system a bit. Good stuff.
Thanks for sharing!!
You are so right! That’s what I read in that book!
Small stressors to the nervous system help build up tolerance to all of life’s real stressors!
Cold showers are the only thing that makes my symptoms disappear for ~45 minutes.
I worked 7 days a week and worked out 6 days a week. LC hit me like a truck.😅 listening to this is crazy, he says the exact things im thinking about and went through.
Oh man. I’m sorry you can relate to this mess and had LC hit you hard as well! A lot of learning had to take place on my part to slow myself down and try and calm things down…
How are you doing now?
It is such a horrible disease, I didn't know what was happening. It took away my balance, heart palpitations, anxiety, just walking became such a struggle. A vegan diet (anti inflammatory), breath work, physical therapy, intermittent fasting now, grounding, sun light, magnesium and lots of water. Strangely, added benadryl the last 7 days and have become more coherent. Thanks for this video. Millions are suffering.
I’m so happy to hear you are feeling a bit better! This is what it’s all about!!
One little change or thing you trialed and it gave you some relief! Build on this Crystal and keep that patient lead reaserch going! You are the master of your ship. ❤️
@@beatinglongcovid thank you so very much because I did forget to mention that finding others like me was so critical. I no longer felt so alone and isolated. ❤️
@@crystalwebb5725 this is so important! I thought I was going insane… then I found anonymous strangers on Reddit with all of my symptoms and it was so helpful!
Know your not alone anymore 🙏🏻
Benadryl helps me a lot too, likely because it’s an anti inflammatory
@@artstar4 I guess your right, I heard about it on the Survivors Corps FB group and I'm so glad that I did. I'm almost functional.
So happy to find this thru my lh facebook page. I had original covid in 2020. And had exactly what this man had. Noone around me at all had the neurologial issues, and drs couldnt help. It was scary. For me it was the ice cold shower every morning to reset the vagus nerve that seemed to help the most.
So happy you found this video! What group did you find this from? I’m sorry you suffered with this same issue. God it must have been scary that early on! There was absolutely no info out there on anything!!
I hope you are doing better now. ❤
It's soooo much pressure to when you cannot work, you don't have family, you're under the poverty line, need money for these treatments. Unfortunately my line of work (nursing which involves fast and furious...). I couldn't do anything better with 'diet' BUT I did learn about seed oils, also that I needed more energy stimulating nutrition, collagen, enzymes, etc. I'm always out in nature but the photosensitivity, the sensation I had acid on my arms and legs when in the sun. Secondary lupus which I just got rid of when I started killing the lyme I didn't know I had, etc. Head pressure was helps by LDN as well. After exercise, my head feels like it's going to pop off. I can only just walk...BUT compared to people with out legs, I shouldn't complain. Thanks and God bless all. We owe Dr Bruce Patterson for being the FIRST to do the real labs to tell us where the spike proteins are and the amount, what to do, etc. CA, USA
Hey there, I’m particularly interested in your comment regarding secondary lupus and “killing” Lyme. Would you be willing to expound on that and what you mean by killing Lyme?
Thank you for the video. My wife has been the researcher in this journey, and she has been looking into Long Covid as possibly what I am dealing with.
This paragraph after the first sentence is an edit: I have had Covid twice. The first time was before the vaccines, in February of 2021. I had a bad case, couldn't get out of bed the first week, fever, chills, headache and no appetite. The second week was breathing difficulties and a cough. I could not take full breaths without pain. I had Covid the second time last year, in March of 2023. No fever the second time, but headaches, chills and this time I lost taste and smell for a few days. Again, the second week was different symptoms, the worst of which was a bad sore throat. I got a prescription for a numbing type of cough medicine that really didn't do much.
I have brain fog, forgetting simple words when putting a sentence together, and I have had a bloated feeling in my abdomen that prevents me from eating the way I had been eating up until last summer (2023). But the most difficult symptoms of what (12 ) doctors over the past (9) months have not been able to figure out the reason for is a continuous pain like cramping in my right flank / hip area. This is pain from when I get out of bed in the morning until I go to bed at night. The second most frustrating symptom is my right "love handle" area has been numb for the entire (9) months. People (doctors) almost run out of the room when I bring this up, like they didn't want to even think about diagnosing that.
There are no breaks in the pain unless I lay on my back. This relieves most of the pain / pressure I feel. The numbness never stops, that's just there and has never gone away since July of 2023. I have had multiple X-rays, CT scans, Ultrasounds, and MRI's of my hip, spine, and abdominal and right flank area, but every time I hear the same answer. We have no idea what is causing your pain. This has been with three different medical groups; Providence, Cedars-Sinai, and Keck of USC, all here in Los Angeles.
The problem with this, along with the fact all of my blood panels are normal, is when the doctors are not seeing physical damage in the imaging, and my blood tests are good, they do not think there is an actual physical problem. And I am now at the point where I'm literally being ignored by doctors.
I was seeing an Orthopedic Spine specialist from October of 2023 until the last week of January, 2024. He performed an epidural for a disc in my thoracic spine, and tried a Cluneal nerve block in my right hip area (3) weeks after that. These were both in January, and neither of them had any effect on my condition. I had a follow-up video call with the doctor on February 8th, and he told me there were still options. He was looking at nerve stimulation, and said they could do a bone scan as well. However, I have not heard from this doctor since that February 8th video call. I messaged the office twice in February to find out what was happening, and finally a scheduler from his office replied on February 28th. Her message started with, "Sorry for the massive delay". Not a good sign. And even though this doctor had responded to one of my previous messages, he has never reached out since February 8th, and this is now April 8th.
I've done several things on my own, chiropractic, acupuncture, physical therapy, and the latest, trigger point therapy, all with no change to my condition. This has now lead to researching Long Covid, as there are similar symptoms being reported that I have been dealing with. The one area I haven't heard being the same is the pain I have in my right flank. There was an article that mentioned flank pain, but it wasn't an all day, every day pain that no OTC medication does anything for.
That is another area I feel I've been failed in, not a single medical "professional" I've worked with over the past (9) months has suggested pain management. How do you have a patient that is in pain from when they wake up until they go to bed, and you don't think they might want to alleviate that? It points back to them not believing anything is wrong.
Thank you both for putting out this video! I've been suffering from the same symptoms since I got Covid last month! Thank you for helping people to get on the right track!!
Sorry you are struggling with this as well!! I hope some of these things help you! ❤️🩹❤️🩹🙏🏻
It's interesting that fasting helps some of us and harms others. Maybe it depends on the stage we're at or what sub category we're in.
Personally fasting made me much worse and eating regularly with protein with every meal has helped a lot. I hope one day we find out why things like this work for some of us and not others.
Absolutely correct! I think you are right about the stage we are in and how that can determine if we see benefits.
Funny you mention protein. I’m now on a very different diet than at the beginning of my long haul. I’m eating 200g of protein a day and I think it’s helping alot. Also trying to build my body back up as it was so wrecked from being so sick for so long…
Hope you’re doing well and feel better soon!
I just hate the permanent headache I have. Living 17 months with headache/head pressure is hell
I just want to point out that fasting CAN hurt you!! It's not for everyone. I got sick in 2007 with chronic fatigue syndrome. In 2020 I got a lot better and was almost fully recovered. I started intermittent fasting at the time and I loved it!! It was easy for me to do and I felt like it was beneficial. After months of intermittent fasting I suddenly got a lot worse. I was told by three of my health care practitioners that patients with CFS shouldn't be fasting because it's too hard on our already exhausted adrenal glands. I really wish I had known that before.
Thank you, Raelen, for your tireless efforts. It is greatly appreciated!
Thanks for sharing your input. I’m sorry you have been dealing with CFS for so long!! It crazy what fasting can do for us. The autophagy is very much real. I don’t know much about CFS but for long COVID autophagy clears our viral particles that are hanging around in the body still after an infection. There are a lot of other things that can be done other than fasting that can induce autophagy. All of these things I learned about in TOMS fasting for LC group.
Wishing you well and all the best of healing.
@@beatinglongcovid thank you for the well wishes! I do believe that fasting can be amazing for most people. Thanks for explaining what it does for long COVID. Thank you for sharing your story It was very interesting and informative
I recovered after 3 years it was hell … I was one of the first long covid patients out here In Los Angeles I feel pretty good now you will get better it just takes time.
So happy to hear you are feeling better! ❤️🩹
How did you get better and what were your symptoms,if you don’t mind sharing!
And did you get covid again?
Thanks for another great video, Raelan. I'm actually in recovery from CFS/ME. I'm about 75-80% recovered. Unfortunately, I got Covid about a month ago. I'm still doing pretty awesome. Yay, brain retraining and neuroplasticity! The only thing is that now I have some pretty bad hot flashes/flushes. Did anyone have these issues?
Thanks again. These recovery stories really helped when I was deep in the trenches! ❤
Yes I’m going through them they are awful I’m always saying will there ever be a day I can feel better I still have hope
Thank you for this interview! Adam, I hope you reach 100% recovery soon!
You talked about Grounding/Earthing, and I've started doing more of it, and am feeling a teeny bit better for it.
Raelan, would you consider interviewing the Grandfather of Grounding some time, Clint Ober?
Wishing everyone well on their recovery journey.
Great idea, thanks! I'd love to interview Clint Ober on grounding. Glad you're feeling better! ❤️
Thanks, Raelan. @@RaelanAgle
Thanks for sending the warm wishes. I hope so to! I’m so happy to hear you are grounding and you have seen a bit of improvement from it! Keep up the great work.
@@beatinglongcovid Thank you, Adam! 🙂
It is a journey of self transformation. And it can be wonderful (and horrible and messy at the same time). The interview is wonderful and will help many people. I went thru neurological LC in the beginning of 2020. Nobody understood me. But I knew I was facing post viral problems ( I had other post viral problems in the past, so I recognized the situation). It was horrible, both the symptoms and the indifference and almost bullying from others. But I know a lot about healing, been meditating for over 2 decades etc, and so I decided to apply all the experience to my own life. Doctors can be helpful but they are not saviors. In my opinion, we’re the ones who need find the solution for our problems. Thank you
You are so right! We are the captains of this ship! No ones coming to save us. Took me half a year to realize that but once I did things started improving!
Thanks for the comment and I’m glad your feeling better since e your 2020 Neuro LC 🙏🏻
This was a great interview. Had/have all of those symptoms as well. I constantly get a bigger and bigger picture of all of this from this channel. And as a mind-body "expert" who, I guess, never really believed what he has taught for 30 years, this has been amazing. There's a difference between knowing it and Knowing It
Thanks for leaving a comment! Sorry to hear you have and do suffer from a lot of the things that I do!
You’re so right with the mind body connection. I never thought that I could heal my body with these things but as they say the proof was in the pudding lol.
morpheus says this very thing to Neo in the matrix: there is a difference between KNOWING the path and WALKING the path
@@DarkoFitCoach 100%!
@@beatinglongcovid ur story is great and most people cannot fathom their physical symptoms are caused by a CNS in fight flight position and cortisol WAY too high. They keep looking for a illness or physical cause whilst key is calming the cns, removing stress situations and ways of thinking and calming down.
Its like, rollercoaster is fun and we pay for ot and laugh during whilst same exact emotion and ups ajd downs during turbulence is literal hell. Why? Cause we perceive it as dangerous. All pain originates in the brain and is felt in the brain. Brain makes the pain real and when its feeling in danger its trying to protect the host by making it afraid so it doesnt move or do anything to worsen perceived danger.
I have the same symptoms but also more…tremors. Muscle pain ear pressure.! So hard for doctors to believe you. It’s taken me to dark places especially when you’re healthy one minute and then not the next. You really do have to take things into your own hands. Thanks for sharing
Yes I had those tremors to on the right side. Not the internal ones ppl talk about but more the left arm and hand.
Your right so hard for docs to believe you and I think one of the hardest things was having a good day then crashing for 5…
Four yrs later still dealing with all of this and autoimmune issues
I’m sorry to hear that you must be one of the OG long haulers. So sad that it’s been 4 years now. Crazy to even think about.
I’m right with you!
Me too (Feb 2020) - was the first to walk into Emory Clinic with it and told i was crazy aka nothing wrong with me, but i felt i was dying. Normal life prior. Completely changed my life. On my way to health thanks to me. No doctor helped. Probiotics (solray 100k 34 v) Activated Charcoal and Oregano oil.
Same here
I went through so much after covid as well.... Anxiety was off the charts.... Glad to be feeling much better...
I’m sorry you suffered with this as well! I hope you are doing better now.
@beatinglongcovid.... Thank you so much!❤️
A carnivore diet, intermittent fasting, breath work and a focus on sleeping... has all made a difference... continued success Adam...
Yes, same here.
Absolutely these have all helped me as well🎉 thanks for sharing.
It's crazy. Your story is exactly the protocols that have worked best for me. Thanks for sharing. I found out what to eat, how to fast etc just by trial and error. If there had been this type of resource at the beginning it would have saved me a LOT of pain trying different treatments and supplements.
Thanks for sharing man.. being in a caloric deficit and intermittent fasting seem to be the only things that truly help.
Of course! Those things are so important. I let go over Christmas a bit and could feel myself slipping! Back to the healthy eating now and fasting.
Bless you both. What I find amazing is that, with long covid being around for several years now, the medical profession can still be so clueless.
You are right! The medical profession isn’t much help. I have a great doctor for most problems but for this torture (long COVID), he was almost useless. I’ve had to become my own savior in reading and researching everything I could get my hands on to help myself. It’s like Adam said, you eventually come to the realization that you yourself will have to find the answers.
@@lindavid794 - best of luck to you in your healing
I am a long hauler for almost 3 yrs! I too have the neuro symptoms, head pressure, anxiety, depression, emotional instability, fatigue. I don't have the cognitive issues fortunately, but everything else. I have relapses/flares every 7 to 10 days, but can't figure out the trigger. I'm not good at fasting but I may have to try it. I'm trying to remain positive, but it's difficult when I flare.
I know how hard it can be to stay positive when you’re in a flare!
Good idea! Try fasting when you come out of your flare and see how it works for you 😀keep in mind it can cause a short term flare if symptoms but you should feel better than you did before in a few days.
Start small!
Carnivore/keto and dealing with emotional trauma are two huge aspects to healing
Thank you for sharing your story. I have had the same since the beginning of the pandemic. Good to be validated. What really worked for me is pacing to calm the nervous system. I also chronicled my journey through photography. Luckily, after almost 4 years, I am feeling better. I feel like me.
Wonderful to hear that. So happy for you! ❤️
So happy to hear hear that after 4 years you are doing better. What a wonderful idea to focus everything through photos. When you are recovered it will be difficult but empowering to look through everything again.
Exactly my symptoms! But it was after an acute delta-variant infection, with high fewer and absolutely terrible sore throat. It was absolute hell, even with high blood presure (systolic up to 180, hr 120), insomnia, panic attacs, depression, personality changes.
How long did ur high blood pressure last? Did it improve? It's been a year for me high blood pressure 😢
Everything resonate Adam.
Thank you.
I have long covid since March 2020 and because dokters dont listen to you i have going to find my path alone in the beginning.
Now its stil difficult in Holland to get medical help because here the coverment don.t reflekt on the corona time and dont trying to help people with long covid.
As if it don.t exist.
Thank you for Realen life and people like Adam how take afford to help ❤❤❤❤❤❤❤
Thanks for the hug!
Seen the video im happy for you Adam ! This is extremely hard to deal especially when its so new and not normal . My brain fog and neulogical symptoms are getting much better with chinese herbs . But the thing im having the hardest time dealing with is the fatigue and PEM . Ive been longhauling dor 3.5 years and after my reinfection back in January 2022 it put me in a wheelchair . I have a hard time with walking and standing my body just completely shits down and i crash . Im starting to adjust and have more freedom around my house while using a stool in the kitchen and shower etc. But i struggle so bad i cant wait for this to end . I was like u fit always working out and 50+ hrs work week . I struggle to care for myself often but i giess with time it will get better hopefully. Anyways just wanted to say i enjoyed the vodeo and am happy for you bro
Hey Kyle! Thanks for leaving a comment and watching. I’m happy to hear your neuro symptoms are getting much better with the Chinese herbs!
So very sorry to hear your dealing with terrible PEM and fatigue. 3.5 years… that’s crazy!! So long to endure this demon. Keep doing what you’re doing as it sounds like it is working, even though if it’s happening so slowly.
You’ll get back to working and the working out! Time is the biggest healer I think. Sometimes it’s just slower than we hope.
Thanks for the well wishes. I really hope you start to see some great progress soon! 🙏🏻👊🏻
Same. I was a triathlete and I almost need a wheelchair. Absolutely devastating.
Go to an endocronolgist (is this the right word? I'm from Germany) it could be that you have a low Aldosteron Hormon it is regulating the blood pressure while after standing up and changing positions.
If this is the case you will get a PreHormone
desperation will make you do anything. I was getting so much better, started cheating on eating healthy, stopped the infrared sauna and cold showers and honestly I feel terrible again. Now having GI issues, nausea and headaches. I am back to trying the cold baths and getting my sauna membership back in place as well as eating well. Also doing grounding, getting sunlight etc.
You are so right! I find when I slack I slip. I guess if all these things are our new normal than so be it if it keeps us at base line. ❤️🩹🙏🏻
I’ve had pressure in the brain 24/7 365 no let up at all since June 18, 2022. I had Covid for the first time (mild Covid) the first week of June 2022. If this ever went away, I’d jump for joy and be able to have my old life back. I’m not able to drive or work. Everything is slowed down for me and I feel dumb, my brain pulsates and burns along with the massive non stop pressure, I’m dizzy 24/7 on top of that I’ve had derealization since 1997 when I was a child. My neurologist diagnosed it as IIH then cervicalgia and now in physical therapy and my physical therapist asked me if I had Covid around the time this happened.
Thank you so much for this video! I can relate to Adam to an unbelievable degree. The head pressure, the anxiety that just seems to have appeared out of nowhere... The adrenaline rush, which I was thinking this was anxiety at first... Right down to the giant box of supplements. That was the part where I actually paused and realized that it's not just me. I would love to share my story of recovery. I just have to get to some level of recovery. Right now I'm in the middle of the worst of what it's been. But this provides some hope. Just downloaded the Breathwrk app and I'm looking for a sauna near me. Thank you again!
You're welcome to share your story at any stage of your recovery journey, Rick. I hope you'll find your missing piece ASAP! ❤️
Rick! I’m so sorry to hear you are struggling with this as well but happy to hear that you are what sounds like half way there!
I really hope the sauna and brethwrk app help you.
@@beatinglongcovid Hey Adam,
So I wanted to give you a quick update that I think is pretty interesting. I was going to try and email you directly but you don't have a published email address... so I'll keep this brief. I went to see an Immunologist and took a battery of tests. He told me that I have a condition whereby I am intolerant to B-6 and I have both copies of the MTHFR gene which makes me unable to take up Folate properly. He started me on MethylFolate and Methyl B-12. The second day after starting the Methyl B-12, the anxiety attacks and depression went totally away and have not returned now for around 10 days. I can't think of a 10 day streak since this started. So Hopefully I'm onto something there. Just food for thought. Hope all is well!
Thanks - I’m not a hauler, but helping family and friends. DO A VID ON LONG HAULER CAREGIVERS, Most are midway a frustrating stage cuz they don’t see the end. And they don’t stick to something constantly changing like daily the strategies. We have been so conditioned to take a pic to feel better NOW, Aaaarrrgh
This is such an important topic, Louis. Thank you for pointing it out! ❤️
Yes! I feel for my poor husband who would sit by my bedside while I was in a fetal position and cried for hours. That was for ten months. Im somewhat better now. He had to take over the running of the house, grocery shopping,cleaning all by himself. Thank God we are older and retired. I don’t know how anyone works with this horrible condition. I really appreciate him and hope all the caregivers take care of themselves too. LC is tough on all involved.
Totally neurological symptoms and I had Covid first in April 2021 that set it off. Great interview. Thanks neighbor! Love from Mtl!
Sound like you had a lot of the same things I did 😢
I hope you are doing a bit better since 2021.
Sending you healing vibes my fellow 🇨🇦
@@beatinglongcovid Yes, definitely better with relapses along the way, but that’s how we learn to improve our resilience to life stressors. 💜 Tell me more about earthing in the snow because 🤯. I do find earthing helpful too, but the mat didn’t work in my electrical outlets.
@@AnrupB oh my! I hope you’re ready haha. My family thinks I’m crazy. I walk barefoot in the snow ❄️. Just like with any cold exposure make sure you start small! Hit me up in December and we can commiserate together lol
@@beatinglongcovid LOL I’m on Ayurvedic doctor’s orders to stay away from the cold, so I’ll stick to an earthing mat! 😆 I really do feel way worse with cold temperatures or anything cold (food included), but hey we all have to do what feels good to us!
I was infected in march 2020 left with fatigue heart palpitations snf slow digestive system. It took me 2 years to recover.. then i was reinfected july 2022 and it all came back plus new symptoms like muscle aches anxiety.. and still recovering. Getting better with the fatigue, anxiety and palpitations a little but i think the high cholesterol is pushing that part because everytime i was infected my cholesterol went up! So working on that .
Sunshine and walks helped me the most . I tried fasting but it wasn't a cure . Magnesium helps with palpation and Nicotinic acid.
The anxiety Serene Saffron by Xtend-life helped and omega 3 fish oil.
Warm showers help with the aching and longvida Tumeric specially with thr brain inflammation.
Some research shows men and women with long COVID tend to have low testosterone, so looking into that . The ultimate treatment is blood washing in places like Germany but it's costly and its a last resot.
No the Cholesterol isn't bad its antiinflammatory thats why it goes up and thats why there are many Keto and Carnivore Guys with high Cholesterol who are getting way better on that diets.
You can test your TH1/TH2 Immuneresponses. I bet you are to much on the TH2 side
I just have to say, what a cool background he has!! 🙌🏻🌟✨⭐️💫✨🌟
I want to see more!!! 😂 And great interview! Thanks!! ❤
This is me. Totally. Along with the neuropathy and odd sensations. I’ve done b12 and benfotamine and it’s helped with fatigue.
Hey Jesse thank for watching and I’m sorry you are struggling with the same neuro issues I have. I hope things start to get better for you soon! I was taking bcomplex until I found benfotamine as well and I think it is very helpful!
Although I tested negative for Covid in 2020, I am convinced I contracted a milder Covid in Nov 2019. My main symptoms were exhaustion, staggering fatigue, monstrous heart palpitations, a dangerously high blood pressure which was unique in my life. Lungs were only affected slightly. I would exercise daily, sometimes I would make it thru the 90 min session, sometimes I'd have to go to bed. Multiple naps per day. Things began to turn positive in 2021 when I began a twice per day regimen of Ibuprophen. This finally mitigated the inflammation of my heart cavity, and the palpitations were defeated. From there it was months of regaining strength thru exercise.
Did the Ibuprofen protocol end up lowering your high BP back down to normal ranges as well? I am in a similar boat to you...
Hey Adam! High from Bolton Ontario. Nice to see someone so close
Good to see you here again as well! Hoping you are doing better since we last chatted.
After 2.5 years of almost full recovery from long covid, five months before same symptoms plus some more returned. I am in the process of slow recovery now. What the hell, I am scared for future attacks.
I had a lot of the same issues again in September with my reinfection 😟gettting back to myself now.
Interestingly, your symptoms are identical to what happened to me, but I got chronic dizziness, too. I’m at about 80%. Thank you for talking about what a number it does to one’s sense of self. Masking device for the ringing may help you-the brain started to hear the nervous system and can learn not to hear it. Again, thank you. You give me hope.
So glad to hear you're at 80% and thank you for the tip about the masking device! Here's to you hitting that 100% mark! 🌟 ❤️
Go to an endocronolgist (is this the right word? I'm from Germany) it could be that you have a low Aldosteron Hormon it is regulating the blood pressure while after standing up and changing positions.
If this is the case you will get a PreHormone
You can also try high dosages of THiamin HCL 1000mg a day its for the nervous system
Hi I suffer with this! What’s a masking device?
And thank you for the great interview! I like your interview skills and questions you have asked that matter . I just subscribed ✌️❤
Wow! Thank you! ❤️
Love the channel it has been enormously helpful. Anyone else get sudden onset hypertension from Long Covid?
Me! Intermittent. It has since normalized and gone back my typical level (which was low blood pressure).
That's crazy, mine was always low in the past and after covid it went nuts. Glad to hear it has come down for you, though that is good news. @@piperaclark1
Great interview! I tried intemittent fasting and for me, while I felt good during the fast, overall it has made me worse, as it was too hard on my body. But, it has helped some people, so it may be worth trying.
You are so very right! I learned from some many other who were doing it and like you said, some saw great benefits and others didn’t. I believe my main problem was post COVID brain inflammation confirmed from PET scan. So I guess when I was fasting, my thought is my overall system wide inflammation was reduced and that’s what helped so much. But then again I did get a crash after I refed. These did seem to get easier as the fasts went on though.
Somebody told me that fasting is good for men but not for women. Due to different hormones or such . If anyone knows more about this I’d love to hear.
@@Chelsea-mz4dn very interesting to hear! I had my hormones checked about 4 months ago and I had very high estrogen and very low T. Have been exploring my options on HRT. Maybe that will help bring my levels back to normal.
I did speak with the specialist and he has seen a lot of hormone disturbance in both men and women after Covid.
Do you get crashes also when you do healthy keto with antiinflammatory foods after the fast?@@beatinglongcovid
@@clemensh6214 hi there. I still do get them but definitely not as much!
It’s ALL neurological in origin. It’s all connected to Nervous System malfunction, including the breathing issues, digestive issues, POTS, etc. These functions are controlled by the Autonomic Nervous System.
Any stress or trauma hammers the ‘stress-management’ nutrients like the B vitamins & Magnesium, etc. it’s no coincidence that symptoms of B1 (Thiamine) & B12 for instance, mirror many of those connected to CV & LC. Acute Thiamine deficiency is known as Beriberi, which translated from Sinhalese means ‘I can’t, I can’t’ - descriptive of the extreme fatigue & exhaustion that accompanies it.
The extremely stressed & hypervigilant Nervous System creates a constant drain on those crucial nutrients plunging many into a constant ‘demand outstrips supply’ situation. But calming the Sympathetic dominance & calming everything down enables the nutrient deficit to finally catch up & help the body recover.
Fasting may help initially, only because you are not digesting. When the body is in hypervigilant Sympathetic ‘fight, flight & freeze’ mode it cannot digest properly, as the body’s energy is diverted away from digestion, so fasting will help during that period.
Couldn’t have said it better myself ❤️🩹🙏🏻
First interview you had that stated pressure in the brain, thats a symptom I have been challenged with, and others he mentioned
What a great interview!! Thank you both so much for sharing
Thank you for this
I got an unknown infection in 2020, which exploited my underlying connective tissue disease…now I’m dying with complex neuro-immune disease, at 36 (33 when it started).
*my disease is severe dysautonomia meets Sjogren’s with autoimmune vasculitis and NMO antibodies too. My muscle biopsy shows hystiocytes in the perivascular areas and rare macrophages…I’m 100% bedbound with joint and spine damage globally.
Did you try intermittent fasting or have you looked into supplements or herbs like moringa? There are lots of videos out there on vit D, NAC,
grapefruitseed extract.
Amd you will find more in the comments.
@@monicali2608 I’ve tried all of those. I’m trying to fast again now. Desperate…100% bedbound in a nursing facility. Really bad situation.
So sad to hear but try on. I pray for you! Read also about benfotamine, homeopathy .May be there is also something in FLCCC protocols.
Looking back, I've had weird symptoms throughout my life. Random rashes, Hives, fainting, reactions to nickel, anxiety ect. After weird virus 2020, developed neuropathy in hands and feet. Numbness tingling. Reflux, Tinnitus, rashes, brain fog, cfs, high hr. Dec 2021 another weird virus, but this time my immune response was very weak. Mild. Tremors started. Inner and outer. Weak shakey legs, muscle atrophy, nystagmus, head pressure, air hunger, histamine intolerance, overall malaise with adrenal surges and major muscle spasms all over and nerve twitching. Audible hallucinations. Memory loss. Derealization. Depression. My bloodwork showed low wbc counts throughout the years. Low igg subclass 1. High chromoglanin a. Low ferritin, high iron and sat. Went to functional dr and diagnosed with eds, mcas, sibo, libo, kryptopyrrole, pots, mold, dysautonomia, possible lyme. Vascular disorder. Anti voltage calcium channel pos, anti purkinje cell, anti aquaporin 4, strep a. Mitochondrial dysfunction. Treatment for pots and mcas immediately. Diet protocol autoimmune/antihistamine/paleo. High protein, high healthy fats, low carb. No sugar, processed, dairy, gluten/grains. High dose NAC, glutathione, plasmalogens, phospholipids, bodybio balance oil, olive oil, tons of oils. Ox bile, tudca, sodium butyrate for digestive aids. Targeted protocol according to test results: vitamins, minerals, supplements. High quality salts. Hrv training. Brain rewiring. Sleep study. When more stabilized, antimicrobials and cavitations surgery. Sauna with gentle binders. Upper cervical adjustments. Bedridden to mostly functional. Set backs along the way. Still fighting. Taking 5 prescription meds( antihistamines, ldn, hormones, mast cell stabilizers), 40 supplements daily. Very specific and targeted approach.
The brain does not know reality from non reality. When we think we are dying, our brain sends those signals out to our body. My functional dr will not treat without hrv training and limbic system training. He says you cannot heal without it. Interesting.
What breaks my heart is how many of us are out there being gaslit for years as we deteriorate. How many people have $$$$$$ to seek out functional medicine?
I am not joking. Some of the most spectacular results ive had ever have been with fasting : unfortunately i find it very difficult to do.
How long do you fast?
My story goes back to Dec 2020 the Delta wave. The neuro stuff was pretty common with the folks I know as well as pots and breathing issues.
Have you found anything that’s helped??
Anything helped? I got the delta and full-blown neuro symptoms
@@beatinglongcovid I’ve improved over time but still have neuro issues, numbness in extremities, a little pain in fingers, I manage activity so I don’t get shaky. The pots issues were helped by beta blockers , I do take alpha lipoic acid for nerves and that helps some and has good data behind it. I monitor stress heartrate sleep and activity regularly as well as clean eating. I think everything together helps. I’ve done an incredible amount of things to help but those are the worse remaining issues.
@@bananaq8i yeah that’s the worst remaining issue for me. I had terrible pots and breathing issues as well which really I believe it’s all dysregulation and dysautonomia. Everything is malfunctions. See my other reply also. Hope you’re improving!
@@beatinglongcovidivermectin and naltrexone cleared most of my symptoms.
Pfizer shot messed me up real bad and made me vulnerable to covid when i had it before and it was milder than a cold.
Fellow sufferer here. Im really starting to think that regardless of protocols, whih are all wide and varied, the only thing that really helps is time. Fill your time with these aids sure, especially antihistamines, but I really think its a waiting game at the end of the day.
Absolutely time is key!
Neurological long covid. Me too.
How’s your driving? Mine is soooo bad when I’m over stimulated. It’s really shocked me. Road rage too…and I’ve never ever experienced before long covid.
Thanks for sharing.
In the beginning my DP/DR made driving impossible and dangerous. My wife stepped up luckily and did all the driving at the beginning. Lucky we share a car so this wasn’t extremely difficult.
The rage I understand as well. It’s crazy how something so small can set us off. I think the underlying frustrations of having a broken brain finally come to a boiling point.
@@beatinglongcovid M’y Occupational therapist described the rage to me. It’s so interesting.
Basically the brain should have its own self regulator for behaviour…for example when people drink alcohol, it doesn’t work so well and behaviour is much less inhibited….same is true cos od the neuro damage I have. So when I’m in very stressful situations m’y brain is receiving no messages to stay calm or act appropriately, which is why I can flare into rage. It happens when I’m really over stimulated, like too many people talking (I can’t follow conversation) and driving on busy highway.
So I have some strategies now and I haven’t experienced the rage in a long time. The strategies are aimed at reducing info sent to the brain so I can focus on what I’m doing and stay calm in body and mind. It includes wearing a wide brimmed hat and sunglasses (even if it’s not sunny) because it reduces the amount of info m’y Brian has to process because my field of view is simply halved and I don’t need to deal with harsh light. Also, I avoid highways as much as possible and I try to use roads that have greenery or lake view and I listen to classical music when I drive. It takes longer to get where I’m going but I avoid any rage and it doesn’t burn me out…the classical music (that might be personal for me) actually seems to rejuvenate me.
Isn’t that crazy? So with this strategy I can turn around demanding chores like going to get groceries into partly a relaxing and rejuvenating activity.
Oh, I also stopped going to large grocery stores and go to small ones with lower ceilings and no music. The lights are not so harsh and the noise is way less…it’s crazy how much of a difference that makes.
If I do have to go to Costco or ikea , it’s hat on and glasses on…even then, it can trigger symptoms while I’m in the store. Listening to music on my AirPods helps in Costco but something about ikea has be running down the bathroom all the time…my gut doesn’t like Ikea!
It helps me so much to understand it.
@@beatinglongcovid can I ask what type of work you do? My job is office based and if I’m not staring at spreadsheets and reading reports I’m leading meetings with large groups of people, and running to meetings with clients (usually large groups of people at a time). I’m finding it difficult to know how to get back to my job specifically as it’s project based, always a challenging schedule, and I have to react to client and team needs…every day is different….so basically I’m thinking hard all day long…..and this is the one thing I can’t seem to do right now. I can cook, I can drive, I can do some house cleaning so long as I pace…but it’s the thinking that’s very difficult and draining foe me and exacerbâtes symptoms even worse that physical exercise.
Wondering how your back to work went. I’m so anxious to get back to work both in positive and negative ways…afraid I won’t be able to think and be effective or even capable as I was before.
@@maryfarrell9439wow! Thank you for putting into words the exact way I was feeling about going to the grocery store and driving on busy roads. I know only one person that had my symptoms of long COVID like mine. It’s hard for others to understand my behavior.
@@lindavid794 coincidentally, I read an article about this in The Rolling Stone today. The title is below. Don’t be put off by the mention of personality change. To me that is what it felt like, like I had a personality disorder. But I’m still here…just still finding ways to recognize and manage when I’m over stimulated.
I really related to what was written in the article and so did my sister who also has had LC since 2020.
I’m glad to see medics are picking up on this. I first talked about long covid rage with other long haulers on a Facebook group about a year ago, and I was so comforted to know others were experiencing the same thing, and I wasn’t just losing my mind or personality.
‘The Rage Would Come Out of Nowhere’: Personality Change Has Emerged as a Symptom of Long Covid
I thought a few times that it was gone, but it came back.
I’m sorry to hear that😢. Honestly this is the reason I claim I’m at 90-95% because there can still be symptoms!
Hoping we can get to full healing soon ❤️
Thank you very much. By listening to this recovery story. I investigated Breathwrk, joined premium and started some areas. Fun healing, love that concept. BTW, my challenge is vaccine induced long covid, esp neurological sx. ❤❤
Wow, I'm so happy to hear that! ❤️❤️❤️ Please keep me posted about Breathwrk, it sounds so promising!
Happy that you found the app and make sure you use the long covid breathing exercises they offer! Wishing you all the best.
Sorry did he mention also whether or not he had any covid vaccines ?
Omg twin!! I have a box too collecting dust in my closet !!
❤️🩹 sorry you had to make one of those boxes too! Let’s hope they continue to get dusty and stay put away!
It looks to me that people with Long COVID can recover faster than people with ME/CFS.
My ME/CFS triggered 5 years ago after getting Mononucleosis and not resting enough. My first year was the worst. I was bedridden. Now I have some good days, then I crash. I have two children to care for. It's hard to pace myself and I have Type 1 Diabetes. My sugar going up and down tires my body even more making the healing process more difficult. I'm not giving up. I've tried almost everything and will continue to do so. I'm much better than I used to. Now looking into the brain rewiring part.
Raelen, I started watching your videos this week and you've been a blessing! I wish I found your channel before. Your story and your interviews are truly inspiring ❤️
I hope the brain rewiring part helps you, just like it's helped many others! Wishing you all the best 🧡💛💜
@@RaelanAgle Thank you! ❤️
How long did you fast and how many times? I am a vax injured with pretty much with all of your neuro symptoms but I believe it’s the same condition no matter if the vax or the virus itself.
I also believe this to be true.
I stated with intermittent fasting, and then 24 hour fasts, then 48, and finally 72 hour fasts. I did one a month for about 8 months.
I hope this helps you! If you have more questions feel free to reach out.
These videos are so helpful and encouraging for me but I just want to know if anyone else is experiencing the symptom of being aware while sleeping. The best way I can explain it is similar to a sleep paralysis of sorts and just being conscious while you're sleep.
That happened to me with my me/CFS. I found it quite scary. Sorry to hear you are having it too 💛
Thank you so much your videos are truly helping me in my recovery process. God bless you and you’re an amazing person ❤
Nightly vivid dreams here, like I’m conscious and awake and able to interact like I would when awake. Ruining my life. Ever since Covid jabs.
Waking Up was the more in depth mediation app that escaped me during the interview!
Amazing they have a 30 day beginner course that helps you learn more about mediation and what’s behind all of it.
Thanks for sharing!!
Thank you. I want to look into that.
I do the Waking Up app by Sam Harris as well
I suffered LC since 2020. I achieved what I considered a full recovery earlier in 2023. That lasted for about 5 months, then symptoms started to resurface.
Save all your supplements and other protocol in case this happens to you.
I am feeling better again, but I will stay on the supplements that helped me.
Good luck!
Thanks for sharing! Just curious, what supplements helped?
Thanks for sharing Kim! Yes could you please tell us your top supplements to keep LC at bay?
@@granda9689 The ones that I believe helped me the most are nattokinase in the NSK-SD form, rotated every other day with bromelain, each must be taken on an empty stomach.
Niacin with food. Omega 3 fish oil (I use the Carlson's brand) Vit D and whole food Vit C.
Best wishes!
@@beatinglongcovid Reply is under granda9689 comment below, in case you don't see it.
Horrible chronic fatigue syndrome from the vaccine robust immunity reaction. Somehow also varicella zoster pox was created from the robust response.
With any serious illness think about Lyme and co-infections plus viruses. When ill this things have a great party in us.
I am being treated again after twice covid and an operation iin the space of one year. I suffer from me/cfs, lyme plus co-infections and long ebv etc. Lyme disease is often tested by serious illness but not found. Lyme is bidding in tissue etc.
Try a good Lomatiumextract its antilyme
Very helpful info--thanks! "..increments of awful..." Well put!
Glad it was helpful!
I thought a lot less about long-covid after getting back to 80-90% and then got re-infected last month and feel like I'm back on the recovery train - this virus is awful.
I hear this. Same thing happened to me in September. Took a few months but back to the 90% now. Still searching for that final piece to the puzzle though.
@@beatinglongcovid The struggle is real. I never felt quite like my old self since the first go round but I was at least able to get back to doing what I loved and just grateful to be moving around. This second time, the brain fog and anxiety was intense for about a month, finally coming around again, its unfortunate because it makes me not want to travel and that used to be something I looked forward to.
@@AlexiaHammond-rw7qq Hey Alexia! I’m happy to hear your coming around again ❤️🩹. I totally get what you mean about travel. I have been away twice now with another vacation coming up in June. First trip was awful. Second I was great so Its really a toss up! I think I will be ok this time and keeping my thoughts that way. If travel is on of your passions you will definitely get back there 😀. Keep pushing forward! Glad your brain fog and anxiety are dying down, those two are killers for our drive to take part in the things we love.
will Paxlovoid & Mulnupiravir help? what is fluoxetine? .....i lost my job ........if i get we'll what ....will i do to keep busy?
Pax is good and complexly necessary for acute infections. Trials are going on now for long COVID use. Fluvoximine is good for brain inflammation at lower doses. Same with LDN.
I’m sorry you lost your job. Keep doing everything you can to heal and when you get well you will have some my things you can do again. Just believe my friend. ❤️🩹🙏🏻
@@beatinglongcovid- THANKYOU So Much.......I'm still not able to fo much? should I ask my Dr for Fluvoxamine? June 8 caught covid again? Appreciate any help I can get 🙏
@@Butterflywishes-rf9dt I would try and get an antiviral as well. If you just had Covid 5 days ago. Let your doctor know you are at risk with your already awful long COVID.
Fluvoximine is also part of my acute COVID protocol.
Please speak to your doctor about all of this as it’s important.
Just giving you my experience and what I used.
Nac and nattokinase helped me.
NAC was also super helpful for me!
I'd be interested in hearing more about the dpdr from Adam please. Adam maybe can you do a special on that on your channel please? I also didn't catch it, did you do the PET scan and did that yield anything?
Hey Chris. I will put together a video on the dp/dr. That was one of the toughest symptoms forsure. Always felt out of it.. staring out windows for 30 mins on end. Brutal.
And yes to the PET scan showing brain inflammation.
@@beatinglongcovid wicked thanks for that. I live in dpdr, you're the first person I've seen mention it in this sort of space
@@beatinglongcovidYes please I’ve been real with DPDR for 3 years it’s hard to deal with I’d love to hear it
4oz of Castor oil before bed does wonders to me. Together with sleeping pill.
Try B12 shots and high dose benfotiamine for those remaining symptoms.
I will look into these! Thank you.
My partner had burning scalp, both after AstraZeneca and during Covid infection.
Brain inflammation from the SP. regardless of those two situations. The more SP the more inflammation.
Ice hats off of Amazon and peppermint halo Rolo on have been the best things to help with this for me!
Yeah you have to find support! I got ALOT of help from physical therapy..in fact one therapist HAD LC herself! It is a fking S L O W recovery and lots of set backs...i will prob never be 100% the person i was. sadly 1 1/2 years now!
Absolutely! PTs and OTs are so overlooked in recovery. They can be so helpful!
So happy you found some support! I hope you get well soon. Like you say it’s a long road, but we will get there!
Thanks!
Thanks for your support, Deka! ❤️
Hi, Adam for brain pressure and brain fog i used ACTOVEGIN injections( 10) an then 25 days ( tablets 2x tablets a day)
I had brain fog and terrible headaches/preasure brain, head ( right side only)
After covid. So thats really help me would recommend. Thank u
@@russovasiljev4562thank you very much!! I will look into this❤
@@russovasiljev4562 the headache/head pressure and the burning skin are the worst. That is an interesting medication and quite controversial
"Is this actually helping?"...yep...been there.Still there.Another odd way to see things..."MAYBE".....it simply cleared itself?Who knows.We're all trying to get well.God Bless.
Absolutely! It was always so hard to try and figure out what was helping or if it was just time. 🙏🏻❤️🩹
We found found a doctor I n N.Y. that educated us on inflammation. Neltrexon and a low histamine diet helped my son who got myocardits then suffered from long covid this year and is working on getting better.As of today 1/7/24 we have discovered it is thyroid.Even though his numbers were 3.69 it was to high for him. .25 levo snd all symptoms good
He says look for fasting group by Tom Bunker, fasting for long covid, start with intermittant fasting. 6 to 7 months things started to shift. Breathwork to support the vagus nerve and reset the nervous system, grounding, breathwrk app has long covid breath tracks, sauna followed by cold water immersion start slow in terms of duration and temperature.
You got it! Thanks for the TLDR 😊
Can someone tell me if he talks about what helped him to heal? Does he know exactly what helped him heal?
Hey there!
Some of the things that helped the most are linked in Raelans video description, but here is more information on my long covid care box I used if that helps.
ua-cam.com/video/_BrEPuID_Ps/v-deo.html&si=Gr4oi1g4LViNBkrU
watch it.
Hi from Canada too!
Hey 🫶🏻