During the right times tho ! Going to sleep when the sun goes down and getting up with the sun. Sleeping all day messes with circadian rhythm from my experience
@@BubblesandcandyflossExcept, if you have ME, you generally need about 14 hours of sleep minimum. Sometimes, it can be 18 hours out of the 24. So there goes your circadian rhythm.
Ah the amazing Raelan is such a kind, compassionate and empathetic person that gives so much of herself to the CFS/ Long Covid community, she is pure gold! 🥰
Raelans ,,modulated exercise,, programme can work for some. It's what the medical profession pushed for the last two decades. But, have dropped it now. They have found it's not helpful for many ME sufferers, and cause a relapse. I'm not sure what Raelans condition was exactly, but it sounds as though she was one of the ME sufferers who was going to recover eventually anyway. She was just in a position to be able to help herself get there more quickly. The 25 per cent ME group are permanently disabled. They never recover, no matter what they do, or don't do. Science can't explain the differences, yet. Something to do with very damaged Mitochondria, deep in the cells.
I question just how ill Raelan really was. People with crippling ME, do not have the mental or physical energy to ,,take control of their diet,,. They have muscle weakness, chopping food is a long and laborious process. Cold showers ? Plunges ? Dear ones, if you have chronic fatigue ,really, you can manage a shower once a week if you're lucky. Crippling brain fog completely prevents you from doing any serious research. You can see the words in front of you, but they are not registering. Talking can be exhausting. Optimism requires Energy. With chronic fatigue. You don't have any. Most days it's a choice between washing the dishes, or preparing a bit of salad . You can't do both. And 70 per cent of ME suffered DO recover naturally, eventually. Sorry for the scepticism. But this is the experience of MOST serious ME sufferers. 😮😢
PS. And as for sleep. ME patients sleep the sleep of the deaf for 14 plus hours a day ight. They have no choice. It's as though they have been drugged. And when sleep is over, they rise, but still feel ,,drugged,,. Getting dressed is a serious EFFORT. !
@lottielane2486 Just no. People have different severities of all sorts of disorders and diseases. It's absurd to say someone isn't/wasn't really sick just because they don't suffer to the fullest extent.
@@akashajones6079 It's interesting you say that.When I wrote the above comments on Raelans own website, ahe deleted them. I tried several times ,and each time she deleted them. She obviously doesn't want people to know that MOST folk DO recover ANYWAY from Chronic Fatigue, quite naturally, over a period of months, or years even. I suspect Raelan herself was already on the way to natural recovery, but her protocols may have helped to speed up her progress. I take it you have read my comments about seriously affected ME patients. And it has Nothing to do with their psychology. But instead is a deep seated problem with the mitochondria. A comment of mine which she again deleted. You may very well ask why . I think the answer is obvious, don't you . !
@@akashajones6079 Yes, But folk do recover naturally from Chronic fatigue. I suspect her protocols helped speed up her recovery. She was obviously well enough to do them.
I was feeling pretty hopeless with Long Covid when I happened on to Raelan's channel. Too fatigued to do anything else I binged watched dozens of recovery stories until I had hope I could do the same. Following as many practices as I could I got to about 100% recovered from the fatigue but still struggling with the brain fog. And then out of the blue a big relapse. Continuing to follow the brain retraining exercises but not seeing the progress I did at first. I needed this today as I was starting to feel pretty hopeless again. Thank you for what you both do. I listen to every video you put out.
Yes. It is a form of dysautonomia, which means it is a condition characterized by autonomic nervous system (ANS) dysregulation. You can read more about POTS on our condition page on our website here www.re-origin.com/conditions
Oh gosh… She just reminded me of a guest she had on in the beginning of her u tube program and it was a girl Sophie (I think that was her name) and she used venom from a poison frog to heal.. and this was when I first got “sick” and I was like holy hell I’m never going to get better!!!! 😂
It’s frustrating when everyone says SLEEP is vital. Ha!! Don’t we know it!! But insomnia is a real thing in all of this. Of course, I want to sleep more!!!
These 2 compliment each other so well… both bring calmness hope and reassurance
You borh have helped me. I really needed this today.
Sleep at all costs! I wish more was shared about how to sleep more.
During the right times tho ! Going to sleep when the sun goes down and getting up with the sun. Sleeping all day messes with circadian rhythm from my experience
Have you tried meditation? That has helped calm my nervous system. Insight timer app has some great ones for free.
@@BubblesandcandyflossExcept, if you have ME, you generally need about 14 hours of sleep minimum. Sometimes, it can be 18 hours out of the 24. So there goes your circadian rhythm.
@@lottielane2486 yes but sleeping all day makes my crashes 100 times worse and last longer
I signed up for Re-Origin a couple of days ago, and it’s thanks to Raelan that I found out about brain retraining in the first place! So thankful! ❤
I did as well 4 months ago. My CfS is much lower already.
@@richardcerniglia8417
Oh that is awesome and great to hear!! Thanks for the encouragement! ❤️
Ah the amazing Raelan is such a kind, compassionate and empathetic person that gives so much of herself to the CFS/ Long Covid community, she is pure gold! 🥰
Raelans ,,modulated exercise,, programme can work for some. It's what the medical profession pushed for the last two decades. But, have dropped it now. They have found it's not helpful for many ME sufferers, and cause a relapse. I'm not sure what Raelans condition was exactly, but it sounds as though she was one of the ME sufferers who was going to recover eventually anyway. She was just in a position to be able to help herself get there more quickly. The 25 per cent ME group are permanently disabled. They never recover, no matter what they do, or don't do. Science can't explain the differences, yet. Something to do with very damaged Mitochondria, deep in the cells.
I have suffered with this for decades and an amazed to see it being addressed!!
I question just how ill Raelan really was. People with crippling ME, do not have the mental or physical energy to ,,take control of their diet,,. They have muscle weakness, chopping food is a long and laborious process. Cold showers ? Plunges ? Dear ones, if you have chronic fatigue ,really, you can manage a shower once a week if you're lucky. Crippling brain fog completely prevents you from doing any serious research. You can see the words in front of you, but they are not registering. Talking can be exhausting. Optimism requires Energy. With chronic fatigue. You don't have any. Most days it's a choice between washing the dishes, or preparing a bit of salad . You can't do both. And 70 per cent of ME suffered DO recover naturally, eventually. Sorry for the scepticism. But this is the experience of MOST serious ME sufferers. 😮😢
PS. And as for sleep. ME patients sleep the sleep of the deaf for 14 plus hours a day
ight. They have no choice. It's as though they have been drugged. And when sleep is over, they rise, but still feel ,,drugged,,. Getting dressed is a serious EFFORT. !
@lottielane2486 Just no.
People have different severities of all sorts of disorders and diseases. It's absurd to say someone isn't/wasn't really sick just because they don't suffer to the fullest extent.
@@akashajones6079 It's interesting you say that.When I wrote the above comments on Raelans own website, ahe deleted them. I tried several times ,and each time she deleted them. She obviously doesn't want people to know that MOST folk DO recover ANYWAY from Chronic Fatigue, quite naturally, over a period of months, or years even. I suspect Raelan herself was already on the way to natural recovery, but her protocols may have helped to speed up her progress. I take it you have read my comments about seriously affected ME patients. And it has Nothing to do with their psychology. But instead is a deep seated problem with the mitochondria. A comment of mine which she again deleted. You may very well ask why . I think the answer is obvious, don't you . !
@@akashajones6079 Yes, But folk do recover naturally from Chronic fatigue. I suspect her protocols helped speed up her recovery. She was obviously well enough to do them.
I was feeling pretty hopeless with Long Covid when I happened on to Raelan's channel. Too fatigued to do anything else I binged watched dozens of recovery stories until I had hope I could do the same. Following as many practices as I could I got to about 100% recovered from the fatigue but still struggling with the brain fog. And then out of the blue a big relapse. Continuing to follow the brain retraining exercises but not seeing the progress I did at first. I needed this today as I was starting to feel pretty hopeless again. Thank you for what you both do. I listen to every video you put out.
Anytime, and if we can help you at re-origin just let us know support@re-origin.com
Do you know if POTS is also an autonomic nervous system dysregulation?
Yes. It is a form of dysautonomia, which means it is a condition characterized by autonomic nervous system (ANS) dysregulation. You can read more about POTS on our condition page on our website here www.re-origin.com/conditions
Oh gosh… She just reminded me of a guest she had on in the beginning of her u tube program and it was a girl Sophie (I think that was her name) and she used venom from a poison frog to heal.. and this was when I first got “sick” and I was like holy hell I’m never going to get better!!!! 😂
It’s frustrating when everyone says SLEEP is vital. Ha!! Don’t we know it!! But insomnia is a real thing in all of this. Of course, I want to sleep more!!!
Both of these wonderful people have been a ray of light on my healing journey.can’t thank you enough ❤️🩹
So happy to hear that. Thank you for your support!
So much dismissiveness and shame from the medical community
Because they don't have the answers (yet). And that disturbs them.
@@akashajones6079They know it's something to do with the mitochondria damage in cells. But that's as far as they've gone.
@@akashajones6079 The science knows it's damaged mitochondria in the cells. But that's as far as they've got.
@@akashajones6079 They have a few answers. Not enough, though. Damaged mitochondria.
Very interesting and encouraging, thanks to both of you