More on Medical Gaslighting

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  • Опубліковано 15 січ 2025

КОМЕНТАРІ • 39

  • @cieluphantomhive2405
    @cieluphantomhive2405 3 роки тому +7

    self diagnosis one,, *"Somebody's gotta do it!!"* scream it for the people in the back!!

  • @herahagstoz6934
    @herahagstoz6934 3 роки тому +5

    Thanks for this. There’s no way to prove a negative and so once you are medically labeled as having a mental illness rather than a physical problem it’s 100 times harder to show you are not insane. However the more you insist the worse it gets.

    • @astoryrewrite2268
      @astoryrewrite2268  3 роки тому +1

      I can’t say you are wrong. 😩 it’s so hard to navigate our medical system. Sadly there are better ways but they generally aren’t available. So sorry for your experience. It’s so hard.

  • @thechronicillnessdiaries2773
    @thechronicillnessdiaries2773 3 роки тому +2

    Thank you for this. I have a Pulmonary Embolism and am in severe pain. 8 doctors told me they cause pain. My oncologist today told me that embolisms do not cause pain and that what I have is anxiety. Smh. So Embolisms can cause anxiety...because you can breathe well and are in PAIN. They also told me that my adrenal tumor wasn't cancer and it didn't cause pain. Turns out I have Stage 3 Adrenal Cancer and it 100% causes pain. It isn't anxiety.

    • @astoryrewrite2268
      @astoryrewrite2268  3 роки тому +1

      I am so sorry you have gone through this. It’s terrible!!!

  • @joshmaporter5007
    @joshmaporter5007 4 роки тому +6

    so few responses that it's stunning how many people are not thinking critically of the medical community

  • @SatumainenOlento
    @SatumainenOlento 3 роки тому +2

    What a good video! Thank you! And I am stealing that tip! I have an important rheumatologist appointment next week. It is making me extremely nervous as over 6 months ago I was totally dismissed in the same office (I have hope, because it was not the rheumatologist himself. So that's why I am even going back!). I need diagnosis and treatment.
    I am planning of typing&printing all of my symptoms out. And add supportive photos of my very PHYSICAL symptoms. I do not care how many pages it takes. Because how could they LEGALLY dismiss my symptoms then? I know that they can, but then it is already totally an another level of gaslighting. It is very clearly a misconduct.
    I am also having my best friend coming to the appointment with me. Not needing to directly advocate for me, but as a presence which limits the impact of my different nationality. Also, as she is a witness for my symptoms, it is harder to dismiss 2 persons. The best would be of course if I had a male in a suit with me. (Preferably a lawyer 😂😂😂😂😂😂)

    • @astoryrewrite2268
      @astoryrewrite2268  3 роки тому

      Maybe you could request the documentation you take with you be added to your file even if they deny you aDx.

  • @lindaedvardsson4218
    @lindaedvardsson4218 4 роки тому +2

    😳😲.. ooh myy.. YES.. Ill be back to you with a bit of my/our story.. stunned.. Thank you a million for this soo important video❣️🙏🏼♥️💚

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому

      I am so excited to hear! Thank you for your encouragement!!! 💜💜💜

  • @mimau2381
    @mimau2381 4 роки тому +1

    Thank you for this video :-) I have EDS myself and it's refreshing to hear you talking about all the stuff I experienced myself in a somewhat similar way. Please don't stop uploading (if you are well enough for filming, of course). Greetings from Austria

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому +2

      Thank you that is so meaningful to know! Do you have a request? I have been trying to figure out something to upload but I’m sort of out of ideas. I am getting more well enough for filming all the time but kind of blank. 💜 🦓 💜

    • @mimau2381
      @mimau2381 4 роки тому +1

      Oh, I would listen to everything you want to talk about ;-) but I think that you being a therapist and also having EDS is kind of a niche on youtube? Since I am a PhD student myself, I would also love to hear your view on student life with EDS and on working at a university (f.e. publish or perish, conferences, etc.).

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому

      So. You have shared exactly what some others have asked so I suppose it’s clear! I shall work this up. Congrats on being a PHD student. Whew. It’s a shoveling of piles experience. I think PHD actually stands for Piled High and Deep. 😂

  • @shahilagh
    @shahilagh 4 роки тому +1

    some months ago I asked u to comment and offer some ideas about my relationship with someone who was questioning my pain .. and your video that came afterward was a clear example of gaslighting . :)

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому

      Yay! I am glad to hear it was relevant!!! 💜💜💜 hope you are well!

    • @shahilagh
      @shahilagh 4 роки тому +1

      ​@@astoryrewrite2268 dear, darling, I mean, my impression was that, you were defending them as if I was too emotional for being sad and angry with their behaviours.
      in the past few months, I listened to many resources and realised narcissistic r famous for gaslighting and the mother I was dealing was, unlike my expectation!, had narcissistic behaviours. and that no contact was the only solution. I went back and forth a lot until to come to this conclusion that I have to take care of myself first.
      thanks. I hope u r well :xxx

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому +2

      Oh no! Never did I mean to give the impression I was defending anyone I don’t know. I’m very sorry if it came across that way. However you feel is normal and right for your situation. We, all people, must first care for themselves but any care can go to others. The whole oxygen mask on a plane analogy fits here. Friend, I am sorry if I caused you distress. You are the only one who knows how you are experiencing this hard deal of chronic illness. And only you know what’s right for your emotional process. But others can partner with you and be support and you deserve others to be supportive. It’s hard on both side. No one should ever shame you or have a voice louder than your own when it comes to what’s right for you. 💜💜💜

    • @shahilagh
      @shahilagh 4 роки тому +1

      A Story Rewrite :) I hope you upload videos soon and update how you r doing. :xxxx Yes I had tough time understanding my situation........ chronic illness really affects our feelings and we need support left alone ppl coming questioning our life ...

    • @astoryrewrite2268
      @astoryrewrite2268  4 роки тому +2

      That is one of the hard parts for sure! I haven’t uploaded in too long 🙁 stuff has been challenging but I gotta I’ll think on something that would be relevant and interesting and get a video up soon! I am happy to hear from you! 💜💜💜

  • @abigaild7304
    @abigaild7304 3 роки тому +1

    Me all my life: Wow, my joints slip so much and I have so many health problems. Rheumatologists: Naw, you're fine; toughen up. Me: Lifts heavy boxes for years because I'm 💪like that. Vertebra splits and calcifies with a protrusion jutting out and cutting into my spine and my brain falls down while on a walk and takes me out. Surprise! Had EDS all along. I now have POTS and likely MCAS that originated with this likely CSF leak excepttttt the medical field is mucho gaslight in the CSF leak area and good luck getting care with doctors who don't listen--including the experts.

    • @astoryrewrite2268
      @astoryrewrite2268  3 роки тому +1

      Isn’t it awful that there are sooo many stories too similar! 🦓❤️

  • @cynthialewis2096
    @cynthialewis2096 2 роки тому

    Oh my God, I have drop foot and the first 3 doctors I went to never asked to see foot, even when I asked them! Now, they diagnosed me with ms.

    • @astoryrewrite2268
      @astoryrewrite2268  2 роки тому +1

      It’s so incredibly wrong isn’t it? Something is going off on our body and we say hey this is malfunctioning and I need help- this wasn’t like this before to be met with “doctor knows more”

    • @cynthialewis2096
      @cynthialewis2096 2 роки тому

      @@astoryrewrite2268 it is so insane!! Yes, I believe I have ms, and have probably had it for many years and it has gotten progressively worse, but i do not believe many symptoms that i have are caused solely by my ms. I was hit head on a few years ago, and symptoms started shortly thereafter, but none of the doctors even listened to this...

    • @cynthialewis2096
      @cynthialewis2096 2 роки тому

      @@astoryrewrite2268 most of them are so arrogant, and it is easier to put you in a box, and then proceed to prescribe incredibly dangerous and expensive drugs, pt that doesn't help a damn bit. They all tried to convince me that the fact that I used to drink very heavily, but have been sober for 25 years. I am just appalled at all of this.

    • @cynthialewis2096
      @cynthialewis2096 2 роки тому +1

      @@astoryrewrite2268 the doctors always want to act like you are some nut case, trying to deny what is wrong with you... you are depressed, need therapy, in denial, etc... no I am not, I would just like to have all options explored. What the hell is wrong with that? If a doctor gets sick, I guarantee that they would explore all causes, and not allow themselves to be labeled without this.