I have all these symptoms , I’m 19 I talk about it all the time with my mother especially when I stand up after laying down I see black for a few seconds and my heart races faster. But everytime i tell her she looks at me as if i’m lying or telling a joke. It actually sucks sometimes because i would really want her to understand how i feel and that it’s very difficult to breathe sometimes. This is not well known in my country my doctor also says that i don’t have to worry. The only medication he puts me on is paracetamol for my headache. But it sucks when you tell people how it hurts and they look at me as if i’m looking for attention or as if i’m lying
I’m Amelia well your doctor is an idiot and you can ask your doctor to be tested for POTS or if they can recommend you to someone who can. You’re 19 you can go and do it yourself.
I'm very sorry to hear that. I completely relate. POTS can be diagnosed through a Tilt Table Test, which can be ordered by a cardiologist. I recommend going to a good cardiologist. Feel better!
I have POTS and honestly I find dealing with brain fog to be more difficult than the other problems aside from the occasional fainting when I stand. Otherwise I forget I have it most days because I've lived with the symptoms all of my life.
I know this comment is old, but how do you deal with it? I have a multitude of allergies, get sick constantly, etc. , but I completely agree that the brain fog is by far the worst symptom. It gets to the point where I lay in bed for hours and don’t even realize it. I was taking 5 AP classes at my high school and now am getting to the point where I’m hardly passing. The worst part about it is it just keeps getting worse and no matter what I do it doesn’t get better. It almost hides the disorder from myself, because I hardly have any thoughts of my own anymore. It just feels like I forget that I’m sick and everyone else lives the same way, but they don’t.
I have POTS and it is hard sometimes. The hardest part is when i want to do exercise and my body don't want to. I need to be a fighter!! it can be done!!
Karla Leon / Mihai Nica is my facebook! I have P.O.T.S. !I am a fitness trainer, yes I do effort with my P.O.T.S. Send me friend request I will try to help you.
I’ve been waiting 4+ years for an appointment (no appointment yet) to see the only POTS doctor in Ontario, Canada....still no appointment after a third referral follow up. In Canada, we can do better than this....no one should have to wait an average of 8 years to get in to see a POTS specialist. Medical students need to be encouraged to go into these kinds of difficult specialities and mentored, or the lack of care and understand will continue to cause prolonged suffering.
I beat POTS with Functional Neurology and Functional Medicine. I got POTS during an osteopath treatment for concussion. I had big issues with my visual and vestibular plus POTS. Thank goodness I found the chiropractic neurologist in my province in Canada. He then referred me to the US to a Functional Neurologist who was able to properly assess my brain stem and remap it to work more properly. He also suspected I had genetic issues with methylation and detoxification. He was right. The genetic tests showed I need hydroxy B12 and Folinic acid. I don’t methylate well, AND I don’t tolerate the methylated forms of these vitamins well. I work closely with a certified functional medicine practitioner. I no longer have POTS. My heart rate is normal. neurologicwellnessinstitute.com/dysautonomia/. There are functional neurologists in Canada. Www.acnb.org. Look for one Carrick trained.
I was featured in this video. I have POTS and autonomic failure, I am pretty sure I have had POTS since I was a teenager. I think it got worse after I got necrotizing pancreatitis and became type 1 diabetic. Thank you for all you do.
Jennifer Carroll Barron Me three! I was just diagnosed with this today. I suffer from type 1 diabetes since age 11, and recently CMT1A as well. Thanks for sharing your story.
You know you have POTS when just watching that girl at the beginning go from reclined/legs crossed to standing/hands on hips makes you dizzy. Seriously, though, this is a fantastic video and explains POTS in such a simple yet accurate way. Thank you!
I have been having POTS symptoms for about 5 years now, and it has been a nightmare. My G.P. just sends me home every time with the advise "just don't stand up so fast". It has been absolutely exhausting especially when nobody believes you, because "you don't look sick".
I feel you. I have spent the majority of everyday for the past 2 years in bed. Even though I've been diagnosed by another doctor my current one doesn't take me seriously.
I'm a 15 year old female who has had many of these symptoms for a while and just yesterday when I was at my doctor for a whole different reason she heard all my complaints and said I might have dysautonomia. After looking all over I'm pretty sure I have POTS but, I still have no idea what tests they are gonna do to diagnose me for sure. After reading all over the internet I feel like I have never related so much to an illness, it explains so much and I don't feel hopeless anymore like that nothing was wrong and I wasn't just imagining all of this but, truly something is wrong with me and I can take some actions to make it somewhat better.
Code Make-Up My POTS was diagnosed through a tilt table test, it wasn't easy but doable. I hope everything works out for you, and that you get relief soon!!
i have this and i also have two small children living in fl where i can barley tolerate the heat it's really hard sometimes :( this video reasures me that im not just lazy or crazy like everyone thinks thank you for that
How do I bring this up to my doctor? They insist it is just because I'm tall, but I take my heart rate from sitting to standing and it goes from 50 BPM to 130 BPM. I also loose sight and hearing when this happens. Is this normal? Who should I talk to? How do I bring it up? And most importantly, will anyone believe me..?
I have heard the same thing - that I am tall and skinny and it is normal. Well, it isn't normal. We gotta keep fighting to see a doctor who believes us.
Katie On The Daily I was able to be diagnosed with pots after going to a health fair for an EKG and asked that they take one reading while I was sitting and one while standing. After seeing the results I was immediately given a cardiology appointment, but my condition was already terrible. Just gotta keep fighting!
ChewyWolf I believe you. You can actually have pots from being super tall. That’s exactly what’s wrong with me. I’m twelve and I am hoping that when I stop growing it will go away.
I have dysautonomia too. Few other things I struggle is, temp regulation, sweating when not needed/not sweating when needed, heart rate not increasing when needed (like waking up in the morning, or trying to exercise), and the crazy dizziness for no reason.
Satish- if you watch the comments I just want to say I literally felt invisible until you said “just because you don’t look sick doesn’t mean you don’t feel sick”. Literally bawling.
Hi Dr Grubb! I hope you are feeling well these days and that your family are also well. Thank you for this video. Its a very clear and concise explanation that I have used to pass around to many groups and for advocacy ( especially helping family members of us POTsies to understand). THANK you for remaining in our world and continually trying to help us.
For me it started when I got the HPV vaccine. Before I had always been the healthy kid that did gymnastics, but shortly after I started being lightheaded a lot. I also got a lot of headaches, I was very tired and I was sensitive to heat, light and sound. And when I stood for a couple minutes I would be very dizzy and sometimes even faint. It's sad but I had to quit doing gymnastics because I couldn't handle it anymore. When I went to the doctor he said that I was low on iron (even though I eat the same things as my parents but they're fine), didn't sleep enough, that what I said couldn't be true because it didn't exist, etc. Up to this day I still haven't been diagnosed but after watching this video I'm pretty sure this is what I have. Also because it feels like it reduces when I drink a lot of water. Thanks for putting up this video, because it helped me a lot.
My POTS started at 13, but I did not have the vaccine (it was not even invented when I was that young). Puberty is the most common start time and unfortunately vaccination doesn't seem to affect the onset positively or negatively. Too bad it was not as simple as avoiding vaccines -- it is a horrible disease.
I believe I have POTS which developed after my mild case of covid in November. I started suffering from anxiety, migraines & insomnia in my late teen years. Being outside has always made me feel exhausted, dizzy & lightheaded. I’ve also always ran low on B12 & hemoglobin but I’m more deficient than ever. I’m wondering if I’ve always had a mild form of this syndrome but covid exasperated it? Wish me luck on my journey and getting diagnosed as my doctor hasn’t been of much help & many people seem to share the similar journey on the road of Dysautonomia.
I have pots. Came with my dna testing. Until today, i never knew what it was! After researching this today, sooo much of my problems make sense! I realise all the diagnosis' ihave recieved now go together. I understand why i feel better on prednisone, yet no one wants to prescribe it. I started ivig therapy 2 months ago. Hoping my drs will work together so i can have quality of life back.
Guys, just because you have stood up too fast and you have gotten dizzy once or twice and this doesn’t effect your everyday life doesn’t mean you have POTS. This isn’t directed at everyone but one or two episodes doesn’t warrant a diagnosis of POTS.
As I was reading all the comments I was wondering the same thing. I took FQ's (Cipro) for 10 years from my early 20s. On top of having POTS / Dysautonomia and full range of crazy symptoms.. I started losing my hearing the year I started taking Cipro. I am now 50 and finally getting diagnosed (Dysautonomia Mitral Valve Prolapse) and I am about to have Cochlear Implant surgery as hearing aids are not longer helping me. Brain fog is also a huge issue for me. So, just to raise awareness... Cipro, Levaquin, Avelox -- this class of "antibiotics" is actually a failed Chemotherapy drug. It should not be handed out for so many minor medical issues as it is. For me, I had frequent UTIs. I wish I knew all of this, I'm sure there was another drug that could have helped me without causing SO much damage to my body.
I've been experiencing some weird and uncomfortable symptoms ( anxiety, fast heart rate, exhaustionn, blood pooling, patchy legs when standing for 10-15 minutes and pvcs) since the past 4 years now. I've had a series of tests done at different hospitals and every single time I'm told that's it's " nothing" and it's just anxiety. It's gotten to the point where I am experiencing a couple of pvcs ( skipped heartbeats) every single day and the doctors don't even bat an eye because all my heart tests always turn out to be just fine. ( except the pvcs; they all deems "benign") I know my body and what I am feeling and I KNOW it's not anxiety... in FACT these symptoms cause me anxiety. I've had many people tell me that I might have pots. Does anyone relate? :(
Tiffany you are not alone....I have this EXACT thing you describe.....exactly....it is not anxiety and besides all anxiety is caused by something physically being wrong with you anyway....so yes when this happens the rapid heart beats etc..it can put you into panic mode.....at least this is my theory on it...
Tiffany Russell I can totally relate. I have the exact symptoms that came out of nowhere a few years ago. I have been to several specialists and all the tests seem fine. They diagnosed me with an "anxiety disorder" although the mental health docs don't agree with that and neither do I. It is frustrating. I hope you get better and they find the cause. xx
I have been diagnosed with cyclical Cushing’s syndrome - bilateral adrenal hyperplasia was the cause. I am being referred for tests for POTS. I wonder if it is linked to cushings in any way?
Wait this is a syndrome? I thought this was just a thing that happened to every one. One time I got up and ended up passing out and hit my head on the door :p
my friend loves to diagnose other people! i get major dizziness, head rush, loss of vision, and get lightheaded literally every time i stand up, and she was like "honey you have pots" and i was like WHAT!,!?!, i feel better now though cause i've never fainted or anything. 😂
I'm 16, and have had these symptoms for a long time. My issue is that no one listens to me, so I need you to fight for answers. If they dismiss you, keep coming back until you get them to listen. Best of luck!
May God bless you for all that you do, Dr. Grubb. I continually pray for you as I can only imagine how difficult life has been taking care of all your patients while grieving the loss of your wife. You are a hero in my book. Thank you for keeping up the fight against this debilitating and devastating condition. Keep Shining!
I lay down its like in the high 60's I sit its high 80's I stand its in the 100's is that normal. I get bad headaches I've passed out on Thanksgiving and one time when I stood up if I do anything I breath heavy if I stand I get dizzy? Gonna ask my doctor if i do?! idk dose this sound like it?
Very good explanation. Ehlers-Danlos Syndrome patients have blood vessels that do not constrict well to hold the pressure...so where Fibromyalgia is involved, also think hEDS (Hypermobility Type Ehlers Danlos Syndrome) EDS...really more likely of a cause than Fibromyalgia
I m having this crazy rapid heartbeat when I stand up.it goes from 70 at rest to 120 just by standing and even 160 when walking but my blood pressure doesnt drop.my ecgs and echo were fine.could this be pots.its driving me crazy :'(
I HATE this syndrome!!! Have had it since I was a teenager and now I'm 42. Makes it SO hard to function in life especially work. I would file for disability if a person could AFFORD to live off that crap money 😭
I have had POTS for about 3 months and it sucks. I’m 14 years old and I find it so difficult to control . It sucks tbh, and I find it kinda better that there’s a whole society of people who can help everyone else out xx
I am also suffer post when i was 18 year old now i am 30 year old,and i am feeling i will die bec when i ealk i cant i feel some dizzy and cnt see the things properly and cant focous on things
I was just diagnosed today. Being sent for an echocardiogram and to a cardiologist... While it's scary it's reassuring that it's not in my head. It's real and I'm not alone. While I've been a chronic pain patient for 10 years now... And i keep collecting conditions like freaking Pokemon from doctors, this is just another one i have to learn to control and live with. One day at a time I'm learning more and more about this defective potato i call a body ( i mean honestly have you ever seen a perfect potato?)
Was looking for information on POTS and was amazed by this video! Not just because of the information but because the first doctor shown was my neurologist when I went into a coma and almost lost my life! Dr. Cook was the best doctor I have ever encountered and is the reason I am alive today!
Can you only have POTS if you get episodes of tachycardia right when standing up? What about random episodes of tachycardia and all the other symptoms mentioned in this video but not necessarily right upon standing.
I have started Ivabradine for my POTS with great effect. The new cardologist I was sent to had treated another female also with this drug with success.
The severe fatigue FRom low blood pressure and cranial pain. WHEN you can't take a breath cuz body deregulates. The feeling of toxicity. and the anxiety from the regulatory sytem tryIng to fix. It's SCARY.
I had severe POTS which developed after a sinus surgery and damage to sinus Turbinates. POTS is he'll on earth. I have spent over $15K in experimental treatments to try and heal the original damage. I can function again, but, I will never be the same. No matter what I do to help myself or which experts I consult, I still have exercise intolerance, trouble sleeping, difficulty breathing, etc.
Ash Legend Trust me it’s real and it’s hell to live with some days i can get out of bed and other days i can’t walk without fainting even when i’m on my meds.
Did the sinus damage trigger an autoimmune response? Just curious as both my son & I have chronic sinusitis & was on recurrent antibiotics for over a year before this, milder symptoms before, but pregnancy and recurrent infections seemed to tip the scale. My son is showing similar symptoms & has chronic sinusitis. Think it's all part of genetic joint hypermobility/EDS, but have wondered if sinuses connected somehow or a trigger??
My main symptom is fainting. I wake up feeling groggy, like I can never fully wake up. That let’s me know at some point that day I’m going to faint. It’s like knowing you’re about to get clocked in the face, you just don’t know when. People thought I was crying out for attention, and lying. It’s bittersweet. Scary, but hopeful for healing.
I’ve had POTS for 7 years and am currently 20 yrs old. It stole my teenage years. I missed so much school. If anyone reading this has POTS keep fighting. I barely have any symptoms anymore and am off heart medication.
I've been diagnosed with POTs for a few years now and the only thing that has helped was medication to reduce tachycardia. It helped my fatigue tremendously and I notice a difference if I miss a tablet. It hasn't totally cleared the symptoms of the conditon and it still has a big affect on me. I had no idea that fibromyalgia and chronic pain was linked to pots, I always thought it was due to my hEDS.
If someone with POTS underwent an EKG or echocardiogram, would anything show up? How would this be diagnosed... just through measuring the blood pressure when sitting and standing?
I've had an echo, nothing showed up. I also had a 24 hour heart monitor.... That got his attention. He asked me how much I exercised. I said none. Heart rate on standing goes to 130-150 from 60-80 on sitting. My blood pressure goes up on standing, if it dropped then you have orthostatic hypotension, which is different.
POTS is diagnosed based on an increase of pulse by 30 bpm in those over 19, and 40 in those under. You can have POTS without having blood pressure changes.
I have pots and I’m only 10 And I got told I was diagnosed I would have to quit basketball track and everything and so I did and I can’t do the stuff anymore but I’m not letting it stop me and you shouldn’t let it stop you I’m going to keep trying and so should you it’s hard but you’ll get through it just as I am
![PoTS Explained & Chronic Illness Tips [CC]](http://i.ytimg.com/vi/1etxgERhkDg/mqdefault.jpg)
"Just because someone doesn't look sick...Doesn't mean they aren't sick..."---AMEN!! PREACH👊
Exactly
I have all these symptoms , I’m 19 I talk about it all the time with my mother especially when I stand up after laying down I see black for a few seconds and my heart races faster.
But everytime i tell her she looks at me as if i’m lying or telling a joke.
It actually sucks sometimes because i would really want her to understand how i feel and that it’s very difficult to breathe sometimes.
This is not well known in my country my doctor also says that i don’t have to worry.
The only medication he puts me on is paracetamol for my headache.
But it sucks when you tell people how it hurts and they look at me as if i’m looking for attention or as if i’m lying
I’m Amelia well your doctor is an idiot and you can ask your doctor to be tested for POTS or if they can recommend you to someone who can. You’re 19 you can go and do it yourself.
I understand you completely!!! Try going to different doctors don’t worry I don’t think it’s permanent (I’m 20) especially cause we’re so young
I'm very sorry to hear that. I completely relate. POTS can be diagnosed through a Tilt Table Test, which can be ordered by a cardiologist. I recommend going to a good cardiologist. Feel better!
So sorry you don't have the support you need. I never had it from my parents either. 😪
I believe you! An invisible illness is hard when outwardly we “look fine:” I hope you’ve received the help you need!
I have POTS and honestly I find dealing with brain fog to be more difficult than the other problems aside from the occasional fainting when I stand. Otherwise I forget I have it most days because I've lived with the symptoms all of my life.
I understand that feeling I usually get it after I pass out.
I know this comment is old, but how do you deal with it? I have a multitude of allergies, get sick constantly, etc. , but I completely agree that the brain fog is by far the worst symptom. It gets to the point where I lay in bed for hours and don’t even realize it. I was taking 5 AP classes at my high school and now am getting to the point where I’m hardly passing. The worst part about it is it just keeps getting worse and no matter what I do it doesn’t get better. It almost hides the disorder from myself, because I hardly have any thoughts of my own anymore. It just feels like I forget that I’m sick and everyone else lives the same way, but they don’t.
Comi Raptor You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
I have POTS and it is hard sometimes. The hardest part is when i want to do exercise and my body don't want to. I need to be a fighter!! it can be done!!
Karla Leon / Mihai Nica is my facebook! I have P.O.T.S. !I am a fitness trainer, yes I do effort with my P.O.T.S. Send me friend request I will try to help you.
Do you ever get pvcs? Skipped beats?
It will be okay I promise:)
Same here girl. All my friend always talk about how great they feel when they workout. I personally feel horrible. It’s like my body just shuts down.
I realized I feel pretty good when I do pilates, because you do it mostly laying down and it's still fun if you get a good professor :)
I'm a male and a have this shit... It's awful. :)
Jose Castillo join the club
Jp Wolf_07 You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
@@bigchungus1924 did you do celery juice and his restriction diet?
ebec 1234 yes!
The sad thing is is it often just gets written off as just anxiety and they are sent home without help
I’ve been waiting 4+ years for an appointment (no appointment yet) to see the only POTS doctor in Ontario, Canada....still no appointment after a third referral follow up. In Canada, we can do better than this....no one should have to wait an average of 8 years to get in to see a POTS specialist.
Medical students need to be encouraged to go into these kinds of difficult specialities and mentored, or the lack of care and understand will continue to cause prolonged suffering.
I am so sorry for you that is Terrible!! Can you not come to America to see one of our specialist? I hope you get some answers soon!
I beat POTS with Functional Neurology and Functional Medicine. I got POTS during an osteopath treatment for concussion. I had big issues with my visual and vestibular plus POTS. Thank goodness I found the chiropractic neurologist in my province in Canada. He then referred me to the US to a Functional Neurologist who was able to properly assess my brain stem and remap it to work more properly. He also suspected I had genetic issues with methylation and detoxification. He was right. The genetic tests showed I need hydroxy B12 and Folinic acid. I don’t methylate well, AND I don’t tolerate the methylated forms of these vitamins well. I work closely with a certified functional medicine practitioner. I no longer have POTS. My heart rate is normal. neurologicwellnessinstitute.com/dysautonomia/. There are functional neurologists in Canada. Www.acnb.org. Look for one Carrick trained.
As I said to my friend, it’s only an invisible illness until they witness you faint. Helping you up makes it that change very quickly.
I was featured in this video. I have POTS and autonomic failure, I am pretty sure I have had POTS since I was a teenager. I think it got worse after I got necrotizing pancreatitis and became type 1 diabetic. Thank you for all you do.
Jennifer Carroll Barron Can you subscribe to my UA-cam? I think mine started after I had Mono as a teen. This crap is horrible :(
Jennifer Carroll Barron me to
Jennifer Carroll Barron Me three! I was just diagnosed with this today. I suffer from type 1 diabetes since age 11, and recently CMT1A as well. Thanks for sharing your story.
You know you have POTS when just watching that girl at the beginning go from reclined/legs crossed to standing/hands on hips makes you dizzy. Seriously, though, this is a fantastic video and explains POTS in such a simple yet accurate way. Thank you!
I have been having POTS symptoms for about 5 years now, and it has been a nightmare. My G.P. just sends me home every time with the advise "just don't stand up so fast". It has been absolutely exhausting especially when nobody believes you, because "you don't look sick".
I feel you. I have spent the majority of everyday for the past 2 years in bed. Even though I've been diagnosed by another doctor my current one doesn't take me seriously.
Did you get a tilt test exam?
I'm a 15 year old female who has had many of these symptoms for a while and just yesterday when I was at my doctor for a whole different reason she heard all my complaints and said I might have dysautonomia. After looking all over I'm pretty sure I have POTS but, I still have no idea what tests they are gonna do to diagnose me for sure. After reading all over the internet I feel like I have never related so much to an illness, it explains so much and I don't feel hopeless anymore like that nothing was wrong and I wasn't just imagining all of this but, truly something is wrong with me and I can take some actions to make it somewhat better.
Code Make-Up My POTS was diagnosed through a tilt table test, it wasn't easy but doable. I hope everything works out for you, and that you get relief soon!!
Mia P Aw thank you ❤️
Mia P I’m scheduled for a tilt table test
I was diagnosed with a poor man's table tilt. I guess it was enough to not need an official table tilt year test for me.
This is a great explanation 👌🏽
Thank you for the comment. We want everyone to understand how POTS works. Spread the word :)
Dr. Blair Grubb
I have all these symptoms. But my doctors can’t find out what’s wrong with me. What should I do.
Megan Gullett Show your doctor this video
i have this and i also have two small children living in fl where i can barley tolerate the heat it's really hard sometimes :( this video reasures me that im not just lazy or crazy like everyone thinks thank you for that
How do I bring this up to my doctor? They insist it is just because I'm tall, but I take my heart rate from sitting to standing and it goes from 50 BPM to 130 BPM. I also loose sight and hearing when this happens. Is this normal? Who should I talk to? How do I bring it up? And most importantly, will anyone believe me..?
ChewyWolf not normal at all. See a cardiologist or neurologist familiar with Dysautonomia.
I have heard the same thing - that I am tall and skinny and it is normal. Well, it isn't normal. We gotta keep fighting to see a doctor who believes us.
Katie On The Daily I was able to be diagnosed with pots after going to a health fair for an EKG and asked that they take one reading while I was sitting and one while standing. After seeing the results I was immediately given a cardiology appointment, but my condition was already terrible. Just gotta keep fighting!
POTS is not well know some doctors even think it is psychological and that you think you feel it when actually you might have POTS
ChewyWolf I believe you. You can actually have pots from being super tall. That’s exactly what’s wrong with me. I’m twelve and I am hoping that when I stop growing it will go away.
I have dysautonomia too. Few other things I struggle is, temp regulation, sweating when not needed/not sweating when needed, heart rate not increasing when needed (like waking up in the morning, or trying to exercise), and the crazy dizziness for no reason.
Excellent content, but the music playing behind/over the speakers is very distracting, especially for those of us with brain fog.
Satish- if you watch the comments I just want to say I literally felt invisible until you said “just because you don’t look sick doesn’t mean you don’t feel sick”. Literally bawling.
Hi Dr Grubb! I hope you are feeling well these days and that your family are also well.
Thank you for this video. Its a very clear and concise explanation that I have used to pass around to many groups and for advocacy ( especially helping family members of us POTsies to understand).
THANK you for remaining in our world and continually trying to help us.
For me it started when I got the HPV vaccine. Before I had always been the healthy kid that did gymnastics, but shortly after I started being lightheaded a lot. I also got a lot of headaches, I was very tired and I was sensitive to heat, light and sound. And when I stood for a couple minutes I would be very dizzy and sometimes even faint. It's sad but I had to quit doing gymnastics because I couldn't handle it anymore. When I went to the doctor he said that I was low on iron (even though I eat the same things as my parents but they're fine), didn't sleep enough, that what I said couldn't be true because it didn't exist, etc. Up to this day I still haven't been diagnosed but after watching this video I'm pretty sure this is what I have. Also because it feels like it reduces when I drink a lot of water.
Thanks for putting up this video, because it helped me a lot.
I'm so sorry. This is happening a lot with the Gardasil vaccine! Should be banned as well as all other poisonous vaccines (which is all of them).
The same happened with my daughter after the HPV vaccine...
You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
Vaccines...mercury......dental fillings......look into it...
My POTS started at 13, but I did not have the vaccine (it was not even invented when I was that young). Puberty is the most common start time and unfortunately vaccination doesn't seem to affect the onset positively or negatively. Too bad it was not as simple as avoiding vaccines -- it is a horrible disease.
I believe I have POTS which developed after my mild case of covid in November. I started suffering from anxiety, migraines & insomnia in my late teen years. Being outside has always made me feel exhausted, dizzy & lightheaded. I’ve also always ran low on B12 & hemoglobin but I’m more deficient than ever. I’m wondering if I’ve always had a mild form of this syndrome but covid exasperated it? Wish me luck on my journey and getting diagnosed as my doctor hasn’t been of much help & many people seem to share the similar journey on the road of Dysautonomia.
Thumb up if you’re a man with Dysautonomia
Who all here from mav channel
Who is here from daily dose
Me
I have pots. Came with my dna testing. Until today, i never knew what it was! After researching this today, sooo much of my problems make sense! I realise all the diagnosis' ihave recieved now go together. I understand why i feel better on prednisone, yet no one wants to prescribe it. I started ivig therapy 2 months ago. Hoping my drs will work together so i can have quality of life back.
Guys, just because you have stood up too fast and you have gotten dizzy once or twice and this doesn’t effect your everyday life doesn’t mean you have POTS. This isn’t directed at everyone but one or two episodes doesn’t warrant a diagnosis of POTS.
I have P.O.T.S. and Vertigo and sometimes I my legs feel like they aren't on my body, I close my eyes and I feel like I'm upside down.
this video is great however the super fast wiggles and shifting made it difficult to watch and a little nauseating... from a POTS perspective!
To those diagnosed with POTS, were you ever prescribed Levaquin, Cipro, or Avlox or any other Fluoroquinilones, prior to symptoms and diagnosis?
James Morton no. I now believe I have Celiac's and that celiac caused nerve damage that caused pots.
never
Alex B yes
As I was reading all the comments I was wondering the same thing. I took FQ's (Cipro) for 10 years from my early 20s. On top of having POTS / Dysautonomia and full range of crazy symptoms.. I started losing my hearing the year I started taking Cipro. I am now 50 and finally getting diagnosed (Dysautonomia Mitral Valve Prolapse) and I am about to have Cochlear Implant surgery as hearing aids are not longer helping me. Brain fog is also a huge issue for me.
So, just to raise awareness... Cipro, Levaquin, Avelox -- this class of "antibiotics" is actually a failed Chemotherapy drug. It should not be handed out for so many minor medical issues as it is. For me, I had frequent UTIs. I wish I knew all of this, I'm sure there was another drug that could have helped me without causing SO much damage to my body.
James Morton yes!
I've been experiencing some weird and uncomfortable symptoms ( anxiety, fast heart rate, exhaustionn, blood pooling, patchy legs when standing for 10-15 minutes and pvcs) since the past 4 years now. I've had a series of tests done at different hospitals and every single time I'm told that's it's " nothing" and it's just anxiety. It's gotten to the point where I am experiencing a couple of pvcs ( skipped heartbeats) every single day and the doctors don't even bat an eye because all my heart tests always turn out to be just fine. ( except the pvcs; they all deems "benign")
I know my body and what I am feeling and I KNOW it's not anxiety... in FACT these symptoms cause me anxiety. I've had many people tell me that I might have pots.
Does anyone relate?
:(
Tiffany you are not alone....I have this EXACT thing you describe.....exactly....it is not anxiety and besides all anxiety is caused by something physically being wrong with you anyway....so yes when this happens the rapid heart beats etc..it can put you into panic mode.....at least this is my theory on it...
Tiffany Russell I can totally relate. I have the exact symptoms that came out of nowhere a few years ago. I have been to several specialists and all the tests seem fine. They diagnosed me with an "anxiety disorder" although the mental health docs don't agree with that and neither do I. It is frustrating. I hope you get better and they find the cause. xx
You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
I have been diagnosed with cyclical Cushing’s syndrome - bilateral adrenal hyperplasia was the cause. I am being referred for tests for POTS.
I wonder if it is linked to cushings in any way?
MANCUK You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
May you please do a video on Inappropriate sinus Tachycardia
This is a fantastic video, and I wish everyone could see it! I've struggled with POTS symptoms for years and it is so good to know I'm not crazy!
Ive had pots for about 4 years now no one knew what was wrong with me i would have fairing spells and seizures spells
Wait this is a syndrome? I thought this was just a thing that happened to every one. One time I got up and ended up passing out and hit my head on the door :p
HOW DOES THIS HAVE SUCH LITTLE VIEWS
Still looking for a proper video to share with people, this one would be perfect if the pictures weren't constantly shaking. :(
The Tilt table test was HORRIBLE
I have have multiple sclerosis since 2003 now I have pots syndrome
I got diagnosed with inappropriate sinus tachycardia multiple sclerosis related cardiologist said
my friend loves to diagnose other people! i get major dizziness, head rush, loss of vision, and get lightheaded literally every time i stand up, and she was like "honey you have pots" and i was like WHAT!,!?!, i feel better now though cause i've never fainted or anything. 😂
I’m 12 years old and just learned I have POTS. I am trying to learn more about it and this video is super helpful. Thank you
I got diagnosed with inappropriate sinus tachycardia
I seem to have pots but I am only 13 can anyone help me
I do not clearly know what to do
Go and talk to your doctor. This is a serious issue. It doesn’t matter your age you could have it. But plz don’t self diagnose. Go to a doctor.
I'm 16, and have had these symptoms for a long time. My issue is that no one listens to me, so I need you to fight for answers. If they dismiss you, keep coming back until you get them to listen. Best of luck!
Yashwant Prattipati go to a cardiologist that is familiar with POTS
Yashwant Prattipati hey I have pots I’m 12
May God bless you for all that you do, Dr. Grubb. I continually pray for you as I can only imagine how difficult life has been taking care of all your patients while grieving the loss of your wife. You are a hero in my book. Thank you for keeping up the fight against this debilitating and devastating condition. Keep Shining!
I lay down its like in the high 60's I sit its high 80's I stand its in the 100's is that normal. I get bad headaches I've passed out on Thanksgiving and one time when I stood up if I do anything I breath heavy if I stand I get dizzy? Gonna ask my doctor if i do?! idk dose this sound like it?
Very good explanation. Ehlers-Danlos Syndrome patients have blood vessels that do not constrict well to hold the pressure...so where Fibromyalgia is involved, also think hEDS (Hypermobility Type Ehlers Danlos Syndrome) EDS...really more likely of a cause than Fibromyalgia
I cured mine by 99% by injesting or drinking stuff that has more salt in it. No my blood pressure did not go up.
30 years with this. I kick back POTS :)
Comment on your highest heart rate with POTS mine was 170
Turtlejerks 150 for me
179
I m having this crazy rapid heartbeat when I stand up.it goes from 70 at rest to 120 just by standing and even 160 when walking but my blood pressure doesnt drop.my ecgs and echo were fine.could this be pots.its driving me crazy :'(
histori jete that's how my pots started
Go see a cardiologist if you think you have pots don’t ask on UA-cam
You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
Exactly
And I have it
After struggling with this for as many years as I can remember I finally now in 2018 got a doctor to listen to me he is amazing
I need someone to listen!!
I just got diagnosed with pots syndrome 3 weeks ago unbelievable. Cardiologist gave me a beta blocker
This needs more veiws
I HATE this syndrome!!! Have had it since I was a teenager and now I'm 42. Makes it SO hard to function in life especially work. I would file for disability if a person could AFFORD to live off that crap money 😭
Is it only women?
Don't take ssri
I have had POTS for about 3 months and it sucks. I’m 14 years old and I find it so difficult to control . It sucks tbh, and I find it kinda better that there’s a whole society of people who can help everyone else out xx
I am also suffer post when i was 18 year old now i am 30 year old,and i am feeling i will die bec when i ealk i cant i feel some dizzy and cnt see the things properly and cant focous on things
I was just diagnosed today. Being sent for an echocardiogram and to a cardiologist... While it's scary it's reassuring that it's not in my head. It's real and I'm not alone. While I've been a chronic pain patient for 10 years now... And i keep collecting conditions like freaking Pokemon from doctors, this is just another one i have to learn to control and live with. One day at a time I'm learning more and more about this defective potato i call a body ( i mean honestly have you ever seen a perfect potato?)
Was looking for information on POTS and was amazed by this video! Not just because of the information but because the first doctor shown was my neurologist when I went into a coma and almost lost my life! Dr. Cook was the best doctor I have ever encountered and is the reason I am alive today!
Can you only have POTS if you get episodes of tachycardia right when standing up? What about random episodes of tachycardia and all the other symptoms mentioned in this video but not necessarily right upon standing.
How can put a different languages subtitles to this video? It's really important
My best friend Florencia izidora has this
She’s always with brain frog.
I have no income now because of pots. It's so debilitating. ☹
Great Video!! Dr. Grubb, I never knew you decided to take up UA-cam!! I think that maybe a NCS video may need to be done. :)
How about raising awareness with something like the ice bucket challenge?
Excellent explanation!
What can a significant other of someone with POTS do to support them?
Thank you I share this with friends and fam when talking about my pots it's the best vid that I can find that explains it!
found out Im vitamin D deficient and maybe for years so make sure you check the D
Thank you for this video. It has been invaluable to me in educating those around me about my condition.
I am 12 and super tall and because of that I have pots so I am hoping that when I stop growing it will go away.
I am glad someone made this video my mom is suffering everyday from this
i just went to see glen cook in virginia!! great doctor!!
I have every single one of these symptoms :-(
Who has improved with treatments? Not me
Beautiful job!!! Great video!
I just got diagnosed with pots 4 months ago
Subtítulos en español por favor
I have started Ivabradine for my POTS with great effect. The new cardologist I was sent to had treated another female also with this drug with success.
What is your heartrate? And bp?
Hope you all will good soon who have pots ♥
The severe fatigue FRom low blood pressure and cranial pain. WHEN you can't take a breath cuz body deregulates.
The feeling of toxicity.
and the anxiety from the regulatory sytem tryIng to fix. It's SCARY.
Suzi Hazlove You have Epstein Barr virus, look up medical medium and he will give you answers. Thanks to him I healed my pots
This sounds unreal
Ash Legend well it’s real
I can assure you it is very real. And practically takes away any sort of normalcy you ever had.
I had severe POTS which developed after a sinus surgery and damage to sinus Turbinates. POTS is he'll on earth. I have spent over $15K in experimental treatments to try and heal the original damage. I can function again, but, I will never be the same. No matter what I do to help myself or which experts I consult, I still have exercise intolerance, trouble sleeping, difficulty breathing, etc.
Ash Legend Trust me it’s real and it’s hell to live with some days i can get out of bed and other days i can’t walk without fainting even when i’m on my meds.
Did the sinus damage trigger an autoimmune response? Just curious as both my son & I have chronic sinusitis & was on recurrent antibiotics for over a year before this, milder symptoms before, but pregnancy and recurrent infections seemed to tip the scale. My son is showing similar symptoms & has chronic sinusitis. Think it's all part of genetic joint hypermobility/EDS, but have wondered if sinuses connected somehow or a trigger??
What doctor should I see for this ?
I'm 24 years old and I recently been diagnosed with POTS syndrome. I also suffer from seizures. I cannot work or go to school...
are you cured
I've had pots for 20 years. The last 12 years bedridden. Im,70 years old. I'm screwed.
I pray things get easier for you 🙏🏼
My main symptom is fainting. I wake up feeling groggy, like I can never fully wake up. That let’s me know at some point that day I’m going to faint. It’s like knowing you’re about to get clocked in the face, you just don’t know when. People thought I was crying out for attention, and lying. It’s bittersweet. Scary, but hopeful for healing.
Ya. I’m waiting until I pass out cause then people will believe me but it hasn’t happened yet.
I’ve had POTS for 7 years and am currently 20 yrs old. It stole my teenage years. I missed so much school. If anyone reading this has POTS keep fighting. I barely have any symptoms anymore and am off heart medication.
So did it go away by itself ? Or did the medication help ?
I've been diagnosed with POTs for a few years now and the only thing that has helped was medication to reduce tachycardia. It helped my fatigue tremendously and I notice a difference if I miss a tablet. It hasn't totally cleared the symptoms of the conditon and it still has a big affect on me. I had no idea that fibromyalgia and chronic pain was linked to pots, I always thought it was due to my hEDS.
Hi! What the medicine you take for tachycardia? Thank you!
I had to go through a very painful ablation procedure (without the ablation) before I was diagnosed with POTS.
I've had two heart ablations.
If someone with POTS underwent an EKG or echocardiogram, would anything show up? How would this be diagnosed... just through measuring the blood pressure when sitting and standing?
POTS is diagnosed through a tilt table test
I've had an echo, nothing showed up. I also had a 24 hour heart monitor.... That got his attention. He asked me how much I exercised. I said none. Heart rate on standing goes to 130-150 from 60-80 on sitting. My blood pressure goes up on standing, if it dropped then you have orthostatic hypotension, which is different.
My POTS was diagnosed by making me lie down and stand up and taking my blood pressure. They told me that it went up a lot more than it should.
POTS is diagnosed based on an increase of pulse by 30 bpm in those over 19, and 40 in those under. You can have POTS without having blood pressure changes.
Naiya K. Pulse, not blood pressure.
Sir i think i have POTS
What should I do .......for healthy life
I have pots and I’m only 10 And I got told I was diagnosed I would have to quit basketball track and everything and so I did and I can’t do the stuff anymore but I’m not letting it stop me and you shouldn’t let it stop you I’m going to keep trying and so should you it’s hard but you’ll get through it just as I am
Stopping sport was the worst thing I could do.
Dont stop moving or exercising.
They need a G suit?
I hate having pots
I'm 12 and I have POTS😭 it's very hard
are you cured
At least I can say I'm rare,I'm a 14 year old male with POTS
C Wil Gaming same here haha
Mercury poisoning thru dental .....
Yup