Hemifacial Spasm Symptoms and Cure - Before and After Microvascular Decompression - MVD Surgery
Вставка
- Опубліковано 2 бер 2019
- This is an update: It's just been over 2 weeks since my MVD surgery for hemifacial spasm and I had my stitches removed at my 2 week follow up appointment. Recovery was a bit rough the first 10 days because I didn't feel like eating which made me feel really weak. And I didn't anticipate how much I'd be sleeping. However the nurse says I'm doing very well considering I just had a craniotomy.
I had almost full facial movement and control for over a week but a couple of days ago I realized the right side of my face is now super weak with facial palsy resulting in an inability to blink or smile on that side. Fortunately this is a temporary condition until swelling reduces and the facial nerve heals. I've been able to eat a bit more lately which has helped me regain strength.
The best part is that there have been absolutely no more spasms and I can definitely feel a huge boost in confidence! I feel excited knowing that I will have my smile back again soon! It's such a simple yet powerful thing! The video on the right was recorded one week after surgery.
Disclaimer: As an Amazon Associate I earn from qualifying purchases.
***Equipment I Use For My Videos***
Canon EOS M6: amzn.to/2pwQ0Vq
Canon EF-M 22mm f/2 Lens: amzn.to/31mLfLq
Tokina 11-16mm Wide Angle Lens: amzn.to/33TFaYH
Fotodiox EF to EOS M Lens Adapter: amzn.to/31u3AGq
Comica CVM-WM300A Wireless Microphones: amzn.to/31tbiAD
Aputure Amaran AL528W LED Light: amzn.to/2VRuwyK
Kamerar SD-1 Camera Slider: amzn.to/2VUB5Ax
AVermedia HDMI Game Capture Module: amzn.to/31phsSp - Навчання та стиль
Holy shit you healed quickly. I had a braim tumor that sat on a bunch of my cranial nerves for the same exact time period (7 years) which basically paralyzed one side of my face. It's been two years since the surgery and I still haven't healed as quick as you did in two weeks. This gives me hope that once the healing is finally complete, my face won't be permanently disfigured. So happy for you
Yes I was surprised I healed pretty quickly after my surgery. However, I did have the facial palsy which weakened the side of my face I had surgery for. The palsy didn’t start until 5-7 days after my surgery. At which point my right eye wouldn’t blink. Also my smile was only one sided and I couldn’t hold water in my mouth. Doctor said it was temporary so I had to trust him. I think it was about 3 months later and I regained most of the strength on my right side. It’s now 3 years after my surgery and I’d say I’m 99% back to to normal. My right eye is still weaker but it’s not easy to notice from the outside.
@@TheRenderQ hello sir , I am so happy to know your success, I am the one who has the same problem like you. May I know where did you do your surgery ？ Thank you
I had MVD surgery 16 days ago. I just had staples removed and feel great. The spasms are still occurring but with less frequency. My incision is healing nicely and have zero pain. I stopped all pain meds once I came home from the hospital. I took Tylenol for a few days but am off all meds.
I eat carnivore woe, so I consume eggs, meat, fats, and some dairy, and make my own bone broth. I have been eating this way for a year. I bounced back quickly and I attribute it to my carnivore lifestyle. My experience going in for the surgery was unknown, but I knew that my optimal way of eating had me at an advantage.
I applaud you for having a great experience and that your condition improved. Hopefully, I will have a complete recovery soon.
Hey liked to see you again, I'm so glad everything worked out fine for you I'm so happy for you.
Just amazing how humans can fix the human body, and how the human body heals. Thank you for the update...and congrats on the surgery and healing.
Yeah! I'm very happy with the results! Amazing that we have specialists that can fix our bodies!
Congratulations to you!
I'm glad you have more confidence!
Yes! It's amazing how I feel so much more confidence now that my face is calm!
Congratulations! Hope you get better!
Thanks! The recovery is getting better and better every day. There will be another update video I'm making once I'm further down the road of recovery and I'll be able to report a more complete experience I had with HFS and the MVD surgery so I can share with others facing the same condition.
Glad to see your feeling better.
Thanks! Day by day it's getting better and I'm feeling stronger. Was very tired the first 2 weeks!
Thanks, I called the clinic of Dr.Manuel Ferreira got from you had posted, they needed the referral from my primary Dr. it'll take two weeks for them to get that. I used to live there and still have family there so I'm glad to see your video. I should have seen your video sooner.
Excellent! I hope you get your questions answered and relief from your HFS! I’m approaching 3 years since my surgery and as mentioned in my videos I haven’t had a spasm since my surgery. Glad you enjoyed my video!
What a great series of HFS videos you have prepared for us. Thanks!!! I've been getting botox treatment for the past 11 years, I'll be 70 years old in a few months and I'm now considering the surgery. Due to my age I'm concerned about the impact that the surgery had on your driving, I hope it's not as much of an issue to drive now. I'm on Kaiser and I like the idea of interviewing a few surgeons but I'm not sure Kaiser will allow me to do that. Do you have advice on questions that I should ask the surgeons? I'm certainly going to ask about their specific success rate. Thanks for posting the videos which will help me in the determination of whether to move forward with surgery or not.
Congratulations to you! Keep me update about your condition, I was thinking doing the surgery too. How long do you stay in the hospital? I live in North Carolina, if I see the doctor you seen, how many days would I need to stay in Washington?
Congratulations on your surgery I am thrilled for you as I understand what it's like. My Hemi facial spasm( 5 yrs now) is as bad if not worse than yours and my neuro sugeon won't operate. He said they couldn't see the nerves touching but then what is causing this??? I don't know was the answer. Which was very disappointing. So now I have to get Botox injections every three months for the rest of my life. I was told that they more redily do the surgery in the USA. I am in Canada.
My dad has undergone 2 surgeries and after the second one it got worse and moved to the other side of his face. I want to get more opinions because to me it don’t seem right.
Would you recommend this MVD surgery for 82 year old? Hemifacial is on left eye and left cheek.
Hi sir,hnvt you lose hearing at first week post op?tq
Hi. Is there any way I can speak with you more about this. My husband has had this for a long time. And his neurologist is recommending not doing it. He said it's too complex. I just think he doesn't know what he's doing.
Does also your Doctor works with bell palsy?
Im glad to see your recovery, and thanks for sharing! My upper eyelid has been twitching for over one month now, do you think I have hemifacial spasms? How long did it take for your condition do develop?
That is how it start.
is ur twitching gone or still there?
This is how it started for me. Doctors thought it was hemifacial spasms. Ran MRI's in Florida. Saw nothing. So hemifacial spasms was the diagnosis. It ended up getting worse and worse. Came back to my home state (CT) and got another MRI. Turned out there was a braim tumor that the first doctor somehow missed. Make sure you get an MRI immedielty and go to a good doctor off that bat before it gets worse and takes away your will to live lol
Hey whatever happened to ur twitch cuz I have the same upper eyelid twitch now
@@TheKRUTONZ It is gone. It lasted like 2 months. I took magnesium supplements and I think that's what helped due to its nerve healing properties
hey i wanted to ask..after the surgery i can see in the video that the side eyes of your affected area are not blinking at all..is it normal now?
Thanks for your question! You’re correct that my eye on the spasm side isn’t blinking in this video. The post surgery shot was taken about 2 weeks after my surgery. This condition was temporary but it did take time for it to resolve. It took about 8 to 9 months for my eye and facial strength on my HFS side to return to normal. They tell me it’s common and was nothing to worry about. In my case it wasn’t a permanent issue. But results and recovery time vary widely by individual.
Dear i m glad to see your courage to do it. Does it come back after the surgery?
My surgery was successful and I haven’t had any spasms since I got out of the hospital. But results vary. For some the surgery failed for some reason. Could be the skill of the surgeon or they missed the compression on the artery. For others they still have spasms up to 2+ years before it goes away. Others still have very mild spasms after surgery. So the results can be all over the board. The good thing is that MVD surgery for hemifacial spasm has around 90% success rate I think. Hope this helps!
@@TheRenderQ hey there, where abouts did you have your surgery? Glad to see you back with a smile on your face!
@@TheRenderQ is their any way you can help me out my mom has the same problem you had I was wondering if we can talk a bit more and if you can help us find the perfect solution or doctor please and thank you
Hi! I have a dear friend who has this condition. Unfortunately she is getting all negative advice from family and friends regarding having surgery. So she is scared to do anything. I had her watch your before and after videos, and I believe she is finally encourage! We live in Ohio, otherwise I would take her to your doctor. Do you know if your doc may have fellow doc friends in our general area that he/she would highly recommend? Or, could you give me your doctor's name and I will reach out to him. Either way, I am so happy for you and the success of your surgery! I hope I can help my friend get the same results!!!
Thanks for reaching out! Yeah hemifacial spasm is a rare condition that is not widely known even by neurologists. I have heard stories of people getting frustrated after speaking with experts who are not giving helpful advice. Is this the only video of mine you’ve seen? I have another one I made after my surgery that explains my recovery. I was fully cured after my MVD surgery and I am nearing my 4 year MVD anniversary and still have no spasms. Here’s my video: Hemifacial Spasm Surgery Recovery - Hemifacial Spasm Stories and MVD Surgery Cure
ua-cam.com/video/huJeZcaCX24/v-deo.html My neurosurgeon was Dr. Manuel Ferreira at the University of Washington Medical Center. There is also a great Facebook group called Hemifacial Spasm (HFS) Worldwide Support Group and you can get lots of advice and learn about other people’s experience with HFS. You can also ask about surgeons in your area. Last thing… here’s another video I made prior to my surgery explaining things I did and experienced before my surgery: ua-cam.com/video/46hzuevyqTk/v-deo.html Hope this helps!
@@TheRenderQ Thank you so much for your reply! My friend has been dealing with this for years now, and it has really affected her emotionally. She was always to outgoing, and now she hates to go out in public. My heart goes out to her... I will share this with her in hopes that through the Facebook site, she can find a solution in our general area! Congrats on your recovery!!! God bless~
Hi i had Hemi facial spasm it's take 4yrs now botox not working in scared about the operation but when I saw your video I encourage and is it hurt?im scared or how did they do that I mean your experience how long it takes thank you very much
Everyone’s recovery experience is going to be different after MVD surgery. I had no pain at all and I took 6 weeks off before returning to work. Deciding to have the surgery is a difficult choice. You should consider it if you want relief from hemifacial spasm. I have another video I made where I describe my recovery. It can help you know what to expect from surgery. You can watch my recovery video here: ua-cam.com/video/huJeZcaCX24/v-deo.html
Thanks for your reply Is your MRI show you have Microvascular Decompression? that's why you had the surgery? I have the same issue as you are and I have seen the neurology Dr. they said they can't do anything because my MRI is normal.
My neurosurgeon looked at my MRI and could see the compression on my facial nerve. You might want to get at least another opinion. From what I’ve heard not every neurologist knows what hemifacial spasm is or knows it exists. It’s a rare condition so it’s not known by all. That’s probably why the doctor you spoke with didn’t see anything. I would find someone in your area that has experience with HFS. At least that way you can consider your options! My surgery was almost 3 years ago and I haven’t had a spasm ever since!
I have been dealing with hemifacial spasms since 2014 I've seen 5 different Neurologist and they all say my MRI doesn't show a compression either , it's very aggravating to know you are just going to have to live with it , I've tried the botox injections but it causes more problems so I've now opted out of that
So now it's getting worse .
Congratulations on your successful surgery ! I know it must feel amazing to be spasm free !
Hello sir , can you please share me the doctor and hospital details from where you got the surgery done
Thanks
No problem! I got my surgery at the University of Washington Medical Center in Seattle. My surgeon was Dr. Manuel Ferreira.
Hello Sr.
I am glad you're recovered, how many money does that surgery cost ?
Hello I wonder how was your face after surgery? Any complicate ?
For me I had no real complications after my surgery. It was completely successful and I have had no spasms ever since. I don’t know if your saw my other video I created shortly after my surgery. I explain my experience in this video: ua-cam.com/video/huJeZcaCX24/v-deo.html
My eye is twitching. I’m gonna go to the doctor to see what’s going on. Did yours start as eye twitching? How long did it take for the face twitching to start?? Or did it start as facial twitching?
How are you now?
@@itselaaai it hasn't happened in a while 🤞🏾
Hi
How many days the spasm stays after MVD surgery?
For me, my spasms immediately went away after surgery. Results vary between patients and doctors. Some patients still experience spasms after surgery but will eventually go away from 2 to 12+ months. Hope this helps!
X cause me can you plz give me the details of exact symptoms do you experience
I made a couple of other videos about my HFS experience. This one explains why I chose to do surgery and explains what I was experiencing: ua-cam.com/video/46hzuevyqTk/v-deo.html
In this next video I describe my surgery and recover experience: ua-cam.com/video/huJeZcaCX24/v-deo.html
Hope these videos give you some answers you’re looking for!
Sir is ur spasm Immediately disappears after MVD surgery?
Yes! My spasms were gone immediately after my surgery.
Hey where u had your surgery?
I had my surgery in Seattle, Washington at the University of Washington Medical Center.
@@TheRenderQ okay.. my relative going through this hemifacial spasm.. what's the success rate for this surgery?
Just wondering how you recover?
Thanks for asking! My MVD surgery was about 3.5 years ago and my spasms were cured at that time. Here is my video describing my surgery and recovery. Hope it helps answer some questions! ua-cam.com/video/huJeZcaCX24/v-deo.html
@@TheRenderQ Congratulations! 🎉👏 I am happy for you. I also have an appointment with Doctor Sekular on 11/13/22 for the second MVD. I am so nervous every time I think about it.
Who did your MVD Surgery
My surgeon was Dr. Manuel Ferreira at the University of Washington Medical Center. I’m not sure if you saw my other hemifacial spasm video but below is the longer video where I talk about my surgery and recovery experience. ua-cam.com/video/huJeZcaCX24/v-deo.html
TheRenderQ Thanks for the info I had MVD surgery and it did not turn out the way I had hoped. I get Botox now and it helps a bit.
It seemed like 100 videos… I know people are not faking it. I know they are not. But why does it look like they’re faking it?
You can easily move the muscles on your face to simulate hemifacial spasm but I assure you I had no control of the spasms on my face. They were happening 24 hours a day. The pulling was tight also. But after my surgery the spasms were gone. It was a hard decision but really glad I did it!
How much is the cost of MVD sugery?
I think the actual cost of the surgery was around $90,000+ but with insurance it was significantly less. So it will vary with your insurance provider.