Other HLHS patients watching this trying to learn about their hearts more, please don't let the comments scare you. I'm not quite as healthy as someone with a normal heart, but I'm not too far behind either. sometimes It's frustrating knowing I have this weigh me down sometimes but it doesn't put many limits on what I can do. Just do your best to take care of yourself and your body. If you've had the Fontan it's likely you've already gone through the worst of it. Science is constantly changing. You can have a long life.
My sister has HLHS and she is now 22 and also has liver cancer so she is getting a heart and liver transplant in about 2 years. She is happily living in London with her boyfriend who has one working lung!
Question: If you help people with unhealthy _human_ hearts to become healthy at the Heart Center, can the center do the same thing to _animal_ hearts? If yes, can you explain how you do it?
There is no “real cure” for this heart issue since we can’t reverse the condition one the baby is born, but here in the USA, we can make a circulation that is good for a baby with HLHS.
Other HLHS patients watching this trying to learn about their hearts more, please don't let the comments scare you. I'm not quite as healthy as someone with a normal heart, but I'm not too far behind either. sometimes It's frustrating knowing I have this weigh me down sometimes but it doesn't put many limits on what I can do. Just do your best to take care of yourself and your body. If you've had the Fontan it's likely you've already gone through the worst of it. Science is constantly changing. You can have a long life.
My sister has HLHS and she is now 22 and also has liver cancer so she is getting a heart and liver transplant in about 2 years. She is happily living in London with her boyfriend who has one working lung!
any update?
@@puvv She didn't need the surgery that soon which is good but she still might need it somewhere in the future if it all goes bad again.
💀
Where is the other lung
@@orchardoforanges09 man idk someone took it. It didn’t work no more 😔
P.s. they broke up 🤷♀️
Proud mum to HLHS warrior ❤️💙
We love our HLHS warrior mums!
I lost my son in 2020
You are the information that keeps my healthy heart beating!
I also have a healthy heart
Can you do hypoplastic right heart syndrome
Yes. Please fill out this form (bit.ly/2iGkSig) and a member of our team will be in contact with you very soon.
I have 18 y old boy here. He plays hockey. 5 times surgery, 4 open hearted and one lungeys ?
I'm 22 yrsold and i was born blue baby. Is there any possibility to cure my heart syndrome at my age? Please enlighten me, I'm from Philippines btw
Question: If you help people with unhealthy _human_ hearts to become healthy at the Heart Center, can the center do the same thing to _animal_ hearts? If yes, can you explain how you do it?
My son did not survive this disease. My heart was broken. Until now. There is no cure for this disease in the Philippines
My son today die for this decies.rest in peace for my baby son.love you soo much.
There is no “real cure” for this heart issue since we can’t reverse the condition one the baby is born, but here in the USA, we can make a circulation that is good for a baby with HLHS.
У меня полная блокада левой ножки сердца.
I lost my son suffering from HLHS
lets gooo that's me
I just lost my baby due to these problem 11 days ago :(
My prayers 🙏🏻 be with you 🥺😢
Who came up with these names, why can’t they make simple, left heart, right heart, 😂😂😂😂
My baby is same problem plz help me any one 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
Hiii
How is your baby
Plzz reply
@@ruchivivektiwari2792 😭😭😭
Died.....
❤
My baby girl was born with this and died after dr galantowicz did surgery at nationwide children's😭😭😭😭😭😭😭
I’m so sorry to hear that. Was it her Norwood or glenn surgery?