I have hypoplastic left heart syndrome and I am 21 years old and I have a pacemaker and I went through lots of surgeries my whole life and now I am perfectly healthy with half a heart and a pacemaker
@@wongjock648 he’s doing well! He was the INCU for 2 months😞 turns out my son has a rare syndrome called VACTERL his heart condition is called double ventricle outlet he’s had 1 surgery and he will need another one in a few months praying for you and your family everything will be ok❤️
@@nicolemontgomery4126 Just let him d:i:e: remember all those sick genes will go on the genetic pool of the world increasing the diseases over the time.
my 3weeks old baby is preparing for her first surgery in january, Im praying to you all guys. keep in faith that our angels will leave freely and safe and happy🙏💞 in Gods will🙏
The mom is so strong.. I would have been exactly like the dad and props for him too. I am glad their baby is doing well. I pray he stays well and thrives! God Bless!
I had this surgery when I was small, I actually didn't new about this till I was I think 8 years (14 now) and I wasn't restricted to anything, I only had asthma but now gone and now I am experiencing Gerd symptoms and will have an appointment in Saturday with the same doctor who did my surgery.
Beautiful baby boy u are blessed its so gd to see a father and mother with all the love in the world for their child enjoy ur bby boy god really gave u a gift
I got to know yesterday about my baby .. I am 36 week .. I hope my baby comes out stronger and sustains the surgery.. if anyone can please pray for me and my child.. We need this the most 😔
My first grandchild Samuel was born January 16, 2003 with HLHS at the University of Michigan. God answered our pleas, and he is thriving . . . . in college, and soon to be engaged! He has lived his life as a normal, beautiful child. His life is blessed in every way, and he brings me pure joy. Of course, I will pray for your family!
My son was also had hypoplastic left heart syndrome n he survived only 5days n i miss him so much 😭😭 n even i wasn't aware of his disease before his death he was on ventilator
I’m 29 week pregnant and the doctors told me my baby has hlhs but they said to me he’ll not breath after birth and he’ll die so don’t do it anything but you return hope to me , I’m syrian and living in KSA it’s very hard and expensive to do surgery here ! We didn’t even have an insurance 😔😔 I hope my baby be lucky like yours god blesses him ❤️
Hai. I am jisa. My baby have same problems. After delivery he had 1st surgery. Now 80days. We did surgery in abudabi sheikh khalifa hospital. Here everything is free.
Hi there im due next month and we recieved the same news as you vut we have hope that my baby girl will live so for now my hope faith relys on my god 😍your going to be just fine
@@jisanilson2728 so can you tell me how’s your baby after the 2nd surgery ?please answer me my baby has it also and tomorrow will do the first surgery I’m so sad and worried 😔😔
The medical system in South Africa has failed us the gynae did not pick up on this syndrome and there was no priority for my nephew ,he was born on the 11th of Aug 2021 and passed away 13th Aug 2021 ee are broken if only we knew we would of prepared 😢 💔
Hello keep praying . I gave birth a week ago.. My baby is due for surgery tomoro.. I can only trust in God as i am powerless.. Prayers to u and ur baby
@@fooddesserttavga_2774 thank you for replying my son will be here November 24... This is a scary thing... I'm glad your baby is doing good.... prayers ❤️
My 1st born was a boy born 2018 with HLHS. He survived 2 years and a few months. What a joirney we had in and out of hospital and all the appointments. He passed away October 2020 😭😭😭 Oh how I miss him 😭😭💔 Your kids are luck to have the help they can get. In Tonga my son couldn't get the help he needed 😭😭😭
My granddaughter was just born with this. She goes in for Glenn surgery next month. As a grandfather I’m scared to death but can’t let my daughter see that. These last 2 months have been insane. We lived at the hospital for the first month after her first surgery. Ronald McDonald house saved us. But yea it’s scary my daughter and granddaughter live with me and Mom my wife. It’s nothing but feeds meds oxygen checks over and over all day and night. It’s a rough thing to go through. Glad your son is doing great. I hope my granddaughter will be just fine she’s my best friend.🙏🙏🙏
I pray that your granddaughter will be ok, her surgery will be successful and she will be healthy. Ronald McDonald house is such a great blessing for families that need the assistance with accommodation.
I am 31 weeks now and We also informed that our baby is with HLHS through anomaly scan. Both of us are hopeless. Because doctors said that there are no facilities in sri lanka for such disease and sometimes he would be die after birth 😪😪Please pray for my baby🙏🙏
@@sureshkumar-ic4hv very sorry for this situations. Acutely my baby did not had half of the heart ( one part growth was stopped ) . We have tried a lot, but doctors said recover impossible. And scanned so many times,but every time we got same reports,so were gave up after suggestions from doctors and family.Pleae makesure follow your's doctors and family suggestions.Be possitive,this is way of life. We are just humans.
@Ankit Jindal we had twin boys. elder one is diagnosed hlhs.he felt trouble in breathing after 8 hours.was kept in ICU for 3 day..his condition worsened on each single day..finally he left us on his 3rd day.his mother not even seen him.. We blessed with his younger brother
I have hypoplastic left heart syndrome and I am 21 years old and I have a pacemaker and I went through lots of surgeries my whole life and now I am perfectly healthy with half a heart and a pacemaker
Kayla Standard my daughter has the same problem with heart, she will be born in October. Wish you good health! :)
I have it also and i always think im going to die in my 20’s or sooner and im always scared to live every day of my life and im only 16
Kayla Standard I have hlhs and just turned 23!! 💕
I hope youre doing well :)))
@@emmakzh4768 hi how’s your baby.?.. my baby has it also tomorrow he will do his first surgery please tell me something hopful😔
This gives me so much hope I’m 22 weeks and I’m so scared about my baby I hope his left side of heart gets better🙏🏽❤️
I hope yr baby is ok. How did you go with it all. We see the doctor tomorrow for a much more detailed ultrasound. Im terrified.
@@wongjock648 he’s doing well! He was the INCU for 2 months😞 turns out my son has a rare syndrome called VACTERL his heart condition is called double ventricle outlet he’s had 1 surgery and he will need another one in a few months praying for you and your family everything will be ok❤️
@@nicolemontgomery4126 Just let him d:i:e: remember all those sick genes will go on the genetic pool of the world increasing the diseases over the time.
my 3weeks old baby is preparing for her first surgery in january, Im praying to you all guys. keep in faith that our angels will leave freely and safe and happy🙏💞 in Gods will🙏
Hello , please tell me how’s your baby please answer me my baby will do his first surgery tomorrow I’m so sad and worried 😔
My baby also had hypoplastic heart syndrome... she survived without surgery and without treatment aftr birth...so she is miracle baby... 😍😍😊
My baby boy also had hlhs. His name was dhyaan...he survived 7 months...,..
Hey, do u have any update? Did u not choose any surgery? Hoping to hear thanks.
Woooow… how did that happen
Hlo..how are you bby...
How your bby
I have a little girl with HLHS and seeing this video helps me so much, to not fear what’s to come to my 2 month baby.
Just found out our baby has this at 20 weeks in the womb. Would appreciate if you had anything to share 5 years later
The mom is so strong.. I would have been exactly like the dad and props for him too. I am glad their baby is doing well. I pray he stays well and thrives! God Bless!
He’s so beautiful. My hlhs baby will be born April.♥️ I know my boy will survive just as much as you did ♥️
Natalie Herber my daughter also wirth hlhs, she will be born in October. How is your baby now?
@lisa jacobs Throughout her childhood was she restricted to sports or is on any strict diet? Is she living a normal life?
How did everything end up, I hope it went well ❤️
I had this surgery when I was small, I actually didn't new about this till I was I think 8 years (14 now) and I wasn't restricted to anything, I only had asthma but now gone and now I am experiencing Gerd symptoms and will have an appointment in Saturday with the same doctor who did my surgery.
@lisa jacobs My baby also with hlhs. How is your baby now?
Oh my god the father is so emotional my heart i feel this so hard my baby boy has hlhs too
Im 16 - u parents must be so so strong
Beautiful baby boy u are blessed its so gd to see a father and mother with all the love in the world for their child enjoy ur bby boy god really gave u a gift
My 3 year is due for her 3rd surgery this spring of 2020 her name is Elisabeth. I love every single comment I've read on this feed.
How’s your baby ?! Is she doing well?! Please answer me my son has it also and I’m very sad and worried he will do his first surgery tomorrow
oh yo, I got that heart thingy. im 19 now going strong, heart skips a lot and it's kinda annoying but for the most part I'm chill so ye.
I got to know yesterday about my baby .. I am 36 week .. I hope my baby comes out stronger and sustains the surgery.. if anyone can please pray for me and my child.. We need this the most 😔
we always with u
My first grandchild Samuel was born January 16, 2003 with HLHS at the University of Michigan. God answered our pleas, and he is thriving . . . . in college, and soon to be engaged! He has lived his life as a normal, beautiful child. His life is blessed in every way, and he brings me pure joy. Of course, I will pray for your family!
He's a miracle baby! What procedures did he have?@susanjohnson7422
Thank you for sharing!
My daughter was born with hlhs she lived to be a week shy of three months old, she's be 15 this year
My son was also had hypoplastic left heart syndrome n he survived only 5days n i miss him so much 😭😭 n even i wasn't aware of his disease before his death he was on ventilator
I have a huge amount of scars on my chest
This sounds like my story my baby boy is 17 now and he’s going in for his Cardio cath this January
Please pray for my granson whom is going for this surgery
im ayden and I have hlhs too
Hope you’re doing well :))
I’m 29 week pregnant and the doctors told me my baby has hlhs but they said to me he’ll not breath after birth and he’ll die so don’t do it anything but you return hope to me , I’m syrian and living in KSA it’s very hard and expensive to do surgery here ! We didn’t even have an insurance 😔😔 I hope my baby be lucky like yours god blesses him ❤️
Hai. I am jisa. My baby have same problems. After delivery he had 1st surgery. Now 80days. We did surgery in abudabi sheikh khalifa hospital. Here everything is free.
Hi there im due next month and we recieved the same news as you vut we have hope that my baby girl will live so for now my hope faith relys on my god 😍your going to be just fine
انا كمان هيك صاير فيني خبريني شو صار مع البيبي 😢
@@jisanilson2728 so can you tell me how’s your baby after the 2nd surgery ?please answer me my baby has it also and tomorrow will do the first surgery I’m so sad and worried 😔😔
My sister has this and it's sad
The medical system in South Africa has failed us the gynae did not pick up on this syndrome and there was no priority for my nephew ,he was born on the 11th of Aug 2021 and passed away 13th Aug 2021 ee are broken if only we knew we would of prepared 😢 💔
My baby boy was born with hlhs. He survived 7 months in his life...,...I am from India.,. Gujarat
my niece Passed away because this HLHS😢he was born and live,only 1 day
Just found out my son at 16 weeks has it. I am so scared.😢
My sons name is Aiden and he has hypo plastic left heart syndrome I want to make a UA-cam channel to tell our story too . He’s six years old
My name is Aiden and I have HLHS
Yes!! Tell your story!
Hello my son also has HLHS he is in operation now, I hope he will be find and I can see my baby soon😔
@@Mubina_anvarova1223 Hi. How did it go? Hoping all is well!
My baby has hlhs and am in week 24 and i am scared please give me some hope 😭🙏🏻
Hello keep praying . I gave birth a week ago.. My baby is due for surgery tomoro.. I can only trust in God as i am powerless.. Prayers to u and ur baby
@@vanessagolda7725 please tell me how’s your baby my baby has it also and will do his first surgery tomorrow I’m very sad 😔 and worried
@@fooddesserttavga_2774 how is your baby doing... 🥺 I need to know I'm we ate in the same shoes......
@@209Checo he’s great now ..he is now 6 months old and did two surgeries ..he’s okay now .☺️ I know your baby will do his best ..sending prayers 🤲🏻
@@fooddesserttavga_2774 thank you for replying my son will be here November 24... This is a scary thing... I'm glad your baby is doing good.... prayers ❤️
I’m 19 years old had 3 surgeries and wondering if this could prevent me from joining the Air Force ):
Are you doing well?!
Unfortunately yes 😢
i have hlhs my pasward to my computer is HLHS hlhs i was born in mercy
I also have hypo plastic left heart syndrome😊😊 I realized that I’m 1 year older than Aiden…
i also have 2 month baby who have HLHS.we complete first stage of surgery.norword procedure
May god bless him/her with a healthy and beautiful life ahead ❤️
How is your baby now? I’m 14 weeks and my baby has hlhs
My 1st born was a boy born 2018 with HLHS. He survived 2 years and a few months. What a joirney we had in and out of hospital and all the appointments. He passed away October 2020 😭😭😭 Oh how I miss him 😭😭💔 Your kids are luck to have the help they can get. In Tonga my son couldn't get the help he needed 😭😭😭
My baby is same problem plz help me any one...🙏🙏🙏🙏
I had 3 surgeries
My granddaughter was just born with this. She goes in for Glenn surgery next month. As a grandfather I’m scared to death but can’t let my daughter see that. These last 2 months have been insane. We lived at the hospital for the first month after her first surgery. Ronald McDonald house saved us. But yea it’s scary my daughter and granddaughter live with me and Mom my wife. It’s nothing but feeds meds oxygen checks over and over all day and night. It’s a rough thing to go through. Glad your son is doing great. I hope my granddaughter will be just fine she’s my best friend.🙏🙏🙏
I pray that your granddaughter will be ok, her surgery will be successful and she will be healthy. Ronald McDonald house is such a great blessing for families that need the assistance with accommodation.
Pls mujhe bhi koi bataye humara baby b left heart syndrome hai..1 din ka baby hai
I have that same Hart syndrome
Luca Ryan me too
Me too
Hypoplastic left heart syndrome is my baby.but dont have surgery in sri lanka.we have no money going to other country for surgery.plz help me..
I am 31 weeks now and We also informed that our baby is with HLHS through anomaly scan. Both of us are hopeless. Because doctors said that there are no facilities in sri lanka for such disease and sometimes he would be die after birth 😪😪Please pray for my baby🙏🙏
@@binurimabharana6176 God will protect your baby and your family always.
It's my story
VonRueden Dale
Hi, Detected HLHS in fetal at 20 weeks, Who we can move to next step? Please give me any suggestions.
At 28 week my baby been diagnosed with hlhs
Give me suggestions
I m from tamil nadu
I need your reply sir
@@sureshkumar-ic4hv very sorry for this situations. Acutely my baby did not had half of the heart ( one part growth was stopped ) . We have tried a lot, but doctors said recover impossible. And scanned so many times,but every time we got same reports,so were gave up after suggestions from doctors and family.Pleae makesure follow your's doctors and family suggestions.Be possitive,this is way of life. We are just humans.
@Ankit Jindal we had twin boys. elder one is diagnosed hlhs.he felt trouble in breathing after 8 hours.was kept in ICU for 3 day..his condition worsened on each single day..finally he left us on his 3rd day.his mother not even seen him..
We blessed with his younger brother
@@sureshkumar-ic4hv I want to talk to you. Can you please provide your number?
Lia Mall
Walter Groves
We
Hhhh