I have HLHS had my Norwood with a BT shunt in 85 then my Fontan in 87. Today I am healthy almost 34 and have an 18 month old baby. I had Dr. Norwood himself operate on me.
I have HLHS and have had the same surgery, I'm only 17 and have always been a little concerned about the future. I'm really happy to hear that. Thank you so much!! Truly!
As a hypo-plastic left heart patient, this video has helped me to understand what's going on. I'm almost 25, and have had numerous open heart surgeries.
I was born with HLHS and had to get a transplant for it. They weren't able to do the norwood and glenn procedures. The doctors were surprised I lived as long as I did (2 weeks old). I'm fine now, have the 6 month check up and cath every other year, but I'm all good now!
I've never appreciated surgeons more than i have now....these surgeons were BRRRIILLLIIIAAANNTT!!!bless them ... and thank you so much for teaching this to us as well..
I lost my first daughter three years ago to HLHS. She arrived 9 weeks early and was very underweight which was ultimately why she could not survive long enough for surgery. I’ve never really managed to wrap my head around the procedures she would have gone through had she arrived later. This was a really helpful explanation and, if it makes sense, has really provided me a degree of closure. Thank you.
my son was term lived eight days but had a kidney defect so could not survive a surgery i was told but also was in mexico tried to evacuate didn't work
amazingggg thank youu so much for explaining it so well in this video! as a nursing student preparing for my licensing exam, I was so confused how these procedures allow adequate flow through the heart but I understand now :)
I'm so depressed my 18 month old had the his Norwood and Glenn procedures. He had 3 cath interventions, resulting in balloon dialations and a shunt. He had stenosis in his descending aorta and pulmonary artery. He will be 2 in October and the Fontan may be very soon. I memorized this by heart it's so sad. Thanks for the illustration, very understandable.
I have HLHS and I'm 23, I'm doing good for the most part but working manual labor jobs has really taken a toll on me. I've recently developed a heart valve leak and can't lift over 10lbs.
Hey! I’m also a HLHS patient. I’m 24. I also have a leak and can’t lift heavy things either. Question, do you have varicose veins? I have many on my left foot
Thank you. Well explained. We are having a problem with the atrium septum. They have said its blocking flow he might need a surgery just to cut it out. Witch they might do with the fonta. we will see the next catch surgery can help or not
+kenneth pospisil Often the doctors can perform a procedure known as a balloon septostomy. In this case they use a catheter to thread a deflated balloon across the atrial septum in a region known as the foramen ovale (a naturally existing hole at childbirth). The balloon is either inflated while inside the foramen ovale or is inflated before then pulling back through the foramen ovale. The result is that a permanent atrial septal defect (or hole) is created to allow more blood flow though (from LA to RA). This type of procedure is normally considered first, if its unsuccessful or the patient is not suitable then a blade septostomy is considered.
She came through the Norwood but was put on ecmo about a week later she has since came off ecmo battled a yeast infection and we are looking into the Glenn surgery in the next couple weeks
Great instructive video, congratulations. Old true joke of adult cardiac surgeons: Do you know what's the 4. stage of HLHS correction? Barnard procedure (heart transplantation)...
Hi. What is the pathway of the catheter during right and left cardiac catheterization in an HLHS patient status post Norwood, Glenn and Fontan procedure? For right heart cath, the normal heart pathway is via the usual path is via femoral vein access, to the IVC, then the SVC then injections and pressure recordings of right atrium and right ventricle. But in an HLHS patient that underwent glenn and fontan, since the IVC and SVC are no longer connected to the right atrium, where will the catheter pass through? Will it be through the new aorta since it is connected to the right ventricle? How will they proceed with the pulmonary angiography? Will it be via injection in the pulmonary arteries via IVC and SVC? For the left heart cath, will catheter go through the new aorta and via the septal defect to the left atrium? Since the aorta is no longer connected to the left atrium aftee Norwood? I would really be grateful if someone can answer.
They have a video on this too -- If you watch it you'll realize there is basically a disconnect of circulation (2 seperate circuits). The surgery that repairs this is simply swapping the the PA and Aorta to their original positions.
why the purple blood flowing to the aorta is also flowing to the pulmonary artery and going to the lungs. I thought the blood flowing though the aorta is flowing to the body
Not a doctor, but I suspect the aorta is not developed enough to handle the flow, and so the pulmonary valve is doing the valve work when they are combined in the Norwood procedure. I suspect that without a pumping action (which comes from the right ventricle) the combined valve wouldn’t open- in other words, if the aorta/pulmonary were directly connected with the left atrium, it might be that there isn’t enough pumping action from the left atrium to get the blood out. It could also be too difficult (maybe impossible) to rotate the new pulmonary/aortic valve to accept blood from the left atrium
My wife is 5month pregnant and we found out that baby has hlhs syndrome everyody is telling us to do abortion, we are from georgia(in europe). Here is a joann university clinic where they do norwood operation. Reading comments gives me hope.
I have HLHS had my Norwood with a BT shunt in 85 then my Fontan in 87. Today I am healthy almost 34 and have an 18 month old baby. I had Dr. Norwood himself operate on me.
WOw! Thank you for your comment! God bless you
That's crazy! I'm glad you're healthy!
Thank you for sharing your experience with us! Viva science
I have HLHS and have had the same surgery, I'm only 17 and have always been a little concerned about the future. I'm really happy to hear that. Thank you so much!! Truly!
Yeah I'm always happy when my story helps others
As a hypo-plastic left heart patient, this video has helped me to understand what's going on. I'm almost 25, and have had numerous open heart surgeries.
I was born with HLHS and had to get a transplant for it. They weren't able to do the norwood and glenn procedures. The doctors were surprised I lived as long as I did (2 weeks old). I'm fine now, have the 6 month check up and cath every other year, but I'm all good now!
How old are u now??
Alaa Mezyed I’m 22
May the Almighty bless your heart.
Awesome! I am 24 with HLHS
@sarah hesoun
Wow , that’s amazing ! You are superwoman ❤. May I ask Why weren’t they able to do the Norwood and Glenn ?
I've never appreciated surgeons more than i have now....these surgeons were BRRRIILLLIIIAAANNTT!!!bless them ... and thank you so much for teaching this to us as well..
fantastic video, as a pediatric resident this is extremely helpful to put it all together. thanks !
I lost my first daughter three years ago to HLHS. She arrived 9 weeks early and was very underweight which was ultimately why she could not survive long enough for surgery. I’ve never really managed to wrap my head around the procedures she would have gone through had she arrived later. This was a really helpful explanation and, if it makes sense, has really provided me a degree of closure. Thank you.
my son was term lived eight days but had a kidney defect so could not survive a surgery i was told but also was in mexico tried to evacuate didn't work
My son lived for 3 years and and he was very underweight too... i miss him too much 😢😢😢😢😢😢
Amy, you are quite honestly amazing. Thank you for all of these CHD videos!
I can't thank you enough !! GREAT and clear explanation !!
maybe you can add the timing of the procedures - in days/months/years
This is a great way to explain it! I have no medical background and you really gave me everything I need to understand it.
I'm so glad I found this site! I'm transitioning to pediatric nursing and these are so helpful! thank you so much!
You've helped a lot with all those videos. Thank you ! :)
I lost my daughter to HLHS in June. It's been 2 months now. This video has just given me a well rounded explanation. Thank you.
So sorry for your Love Leaving you. I remember well. Sending Love to you all.♥️🌹
😢😢 my wife is pregnant with 5 month old baby with HLHS.
Many thanks sister for this amazing illustration , it really helped me a lot , may Allah bless your life , again thank you
My son goes in for this in 2 weeks! His nickname is
Little O
How it went if i may ask?
So nicely explained . Very conceptual video.
amazingggg thank youu so much for explaining it so well in this video! as a nursing student preparing for my licensing exam, I was so confused how these procedures allow adequate flow through the heart but I understand now :)
I'm so depressed my 18 month old had the his Norwood and Glenn procedures. He had 3 cath interventions, resulting in balloon dialations and a shunt. He had stenosis in his descending aorta and pulmonary artery. He will be 2 in October and the Fontan may be very soon. I memorized this by heart it's so sad. Thanks for the illustration, very understandable.
Hope all is well for you and your family
I have HLHS and I'm 23, I'm doing good for the most part but working manual labor jobs has really taken a toll on me. I've recently developed a heart valve leak and can't lift over 10lbs.
Hey! I’m also a HLHS patient. I’m 24. I also have a leak and can’t lift heavy things either. Question, do you have varicose veins? I have many on my left foot
this video gives a clear concept about hypoplastic left heart syndrome
thank you so much. i understood the procedure very well
this video is so insanely helpful!!
Really very nice to understand this video.... Expecting more videos
You are amazing
Great illustration! Thanks. Wondering whether the RV, now working against systemic pressure, tires out eventually...
Thank you for this, this has really helped me understand my heart!
Well done! Thorough explanation.
This is an awesome 😎 lecture thank you 😊
Nice explanation. Reading from Bangladesh.
Thank you. Well explained. We are having a problem with the atrium septum. They have said its blocking flow he might need a surgery just to cut it out. Witch they might do with the fonta. we will see the next catch surgery can help or not
+kenneth pospisil
Often the doctors can perform a procedure known as a balloon septostomy. In this case they use a catheter to thread a deflated balloon across the atrial septum in a region known as the foramen ovale (a naturally existing hole at childbirth). The balloon is either inflated while inside the foramen ovale or is inflated before then pulling back through the foramen ovale. The result is that a permanent atrial septal defect (or hole) is created to allow more blood flow though (from LA to RA). This type of procedure is normally considered first, if its unsuccessful or the patient is not suitable then a blade septostomy is considered.
Congrats for this work. Really amazing.
This was amazingly concise. Thank you so much for this.
Outstanding Presentation!
Thank you for this video very informative
Very well-illustrated video with calm and concise explanation. Thank you for uploading!
Very good explanation. Thank you very much~
I came here while listening to Mark Klimek NCLEX Lecture
I have had 3 open heart surgery
AJ_GAMING_27 2 me too!
That's really clear thank you!
Awesome work Mam.Thanks a lot.
Awesome job. good drawing. well explained
My newborn daughter will be having this surgery done once she is stable enough to do so
She came through the Norwood but was put on ecmo about a week later she has since came off ecmo battled a yeast infection and we are looking into the Glenn surgery in the next couple weeks
Great instructive video, congratulations. Old true joke of adult cardiac surgeons: Do you know what's the 4. stage of HLHS correction? Barnard procedure (heart transplantation)...
Thank u maa'm....u simplified it
I've been trough it
crystal clear
thank u
Hi. What is the pathway of the catheter during right and left cardiac catheterization in an HLHS patient status post Norwood, Glenn and Fontan procedure?
For right heart cath, the normal heart pathway is via the usual path is via femoral vein access, to the IVC, then the SVC then injections and pressure recordings of right atrium and right ventricle. But in an HLHS patient that underwent glenn and fontan, since the IVC and SVC are no longer connected to the right atrium, where will the catheter pass through? Will it be through the new aorta since it is connected to the right ventricle? How will they proceed with the pulmonary angiography? Will it be via injection in the pulmonary arteries via IVC and SVC?
For the left heart cath, will catheter go through the new aorta and via the septal defect to the left atrium? Since the aorta is no longer connected to the left atrium aftee Norwood?
I would really be grateful if someone can answer.
this video save me
Kann ich den Untermietvertrag unter Vorbehalt schreiben, wenn die Erlaubnis noch nicht da ist?
Hey, thank you so much.
The best I have seen
Amazing. Thank you!
Doesn't Pulm artery endothelium react and hypertrophy to. Stop the blood flow ? As in like in eisenmengers?
Is the force of the right ventricle same as the left?
Is it possible to do this procedures like glenn and then Fontan at the age of 4 years in case of baby with dextrocardia and D-TGA with ASD & VSD
they get arterial switch.
They have a video on this too -- If you watch it you'll realize there is basically a disconnect of circulation (2 seperate circuits). The surgery that repairs this is simply swapping the the PA and Aorta to their original positions.
why the purple blood flowing to the aorta is also flowing to the pulmonary artery and going to the lungs. I thought the blood flowing though the aorta is flowing to the body
Great ....
Thank you
I still Dont get why the aorta was not just connected to the LA , is it because there will be too much flow which can lead to HBP?
Not a doctor, but I suspect the aorta is not developed enough to handle the flow, and so the pulmonary valve is doing the valve work when they are combined in the Norwood procedure. I suspect that without a pumping action (which comes from the right ventricle) the combined valve wouldn’t open- in other words, if the aorta/pulmonary were directly connected with the left atrium, it might be that there isn’t enough pumping action from the left atrium to get the blood out. It could also be too difficult (maybe impossible) to rotate the new pulmonary/aortic valve to accept blood from the left atrium
My wife is 5month pregnant and we found out that baby has hlhs syndrome everyody is telling us to do abortion, we are from georgia(in europe).
Here is a joann university clinic where they do norwood operation.
Reading comments gives me hope.
You said Glynn and typed Glenn and def fucked up my nice pen notes lol
holy fk I mean u nailed the explanation perfectly in a way that even a 5 yo can get it, so damn great job
O tubo do fontan pode sair
❤
damnnnn girllll