How to Hide a Tracheostomy Tube. My Favorite Tips & Tricks to Avoid Stares & Glares Life with a Vent
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- Опубліковано 17 вер 2024
- After having my tracheostomy tube for more than 7 years, one thing which has been a stumbling block for me is people staring at me. Yes, I am on life support, but I sometimes cannot tolerate people staring at me. Join me as I share some of my favorite tips and tricks for hiding a tracheostomy tube. #lifewithavent #trach
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I’ve had my trach for 10 days now and I bought some pretty scarves from the Dollar Tree, and ordered some from Temu that I’m very pleased with. I worry about getting stares, glares, and questions. From the bottom of my heart, I thank you for your videos. It sucks you had to deal with that woman like that, and I’m happy you didn’t have her on your other flight.
Thank you for sharing. I am so happy you have been able to get some scarves. I hope you do not get stares and glares. Thank you for your kind words.
I have a trach for 7 yrs now . I don't mind going in the public with the tube in. For me the people have the most respect for me . Sometimes kids look at me funny because they don't know what they are looking at
Thank you for sharing.
Wonderful presentation
Thank you.
great video. Glad the airport person didn't delay your getting to the gate. I'm sure flight attendants have seen trachs before the reason they said nothing....when is your next trip?
Thank you for your comment. I am not sure when I will next travel.
I like how you hid you trach with the scarf. How do you hide the ventilator?
To hide my ventilator, I often place it on the back of my wheelchair. People usually do not see it on the back of my wheelchair.
Marie, book your flight to buffalo ny. There are lots of things that you need to try.
Thanks for the tip!
Wonderful:) my dad currently doesn’t have the tube or venti attached so we need a really thin cloth so he can breathe through it / but he has extreme weight loss so I don’t take him out
Thank you for sharing.
Is it possible for a patient with a tracheotomy to do exercises to improve breathing while the tracheotomy is closed?
🤩💟🤍You can't tell you have one when you style it like you did. Has anyone ever bumped into your trach area?
No, no one has ever bumped into my trach area.
A little off topic but I was wondering how you cope when your POTS symptoms flare up when you’re traveling ?, or have you had some improvement over the last few years ? It seems as though you are able to start your day much earlier than you used to - in your earlier videos you seemed quite debilitated by the POTS and your Chronic Pancreatitis.
Hello. Thank you for your question. When traveling, I usually get up around the same time as I do at home. When on a cruise ship, on sea days, my days are nearly identical to at home. I get up around 10 or 11 a.m. When we are in port, I get up around 9 or 10 a.m., depending on when the cruise gets into port. (If the cruise does not get into port until 11 a.m. or noon, I sleep in longer.)
Also on a cruise ship, we book inside cabins. There are no windows in an inside cabin. We usually get done with supper around 6 or 6:30. I then go back to the cabin. With no internet access, no windows to tell my brain what time it is and no energy to leave the cabin to go to the numerous activities on the ship, I am often in bed by 9 p.m.
Cruise ships tend to be night oriented. With that, I mean food is served until 10 p.m. and many activities go until midnight. In the mornings, there are few activities (because most people are sleeping) and breakfast is served until 11 a.m. (And if you miss breakfast, lunch begins at noon.)
@@LifewithaVent Got it, Thanks
Will you ever get the tracheotomy out?
No, I will never get the tracheostomy tube out. It is permanent.
hi i have bilateral vocal cord paresis and my ENT drs insist that i need a trach as its difficult to breathe and i tire easily. i am scared to get one especially taking care of it so i wont get an infection. how do you eat? Do you hace difficylty swallowing too?please tell me how you manage to cope i really admore you and you are so young too.
@@estherboodoosingh4786 Thank you for sharing some of your story with me. I eat by mouth. I do not have difficulty swallowing. Taking care of a trach tube requires a little bit of learning, but on the whole, it is not too challenging. Please also note, getting a tracheostomy tube is a reversible procedure. If after getting a tracheostomy tube, it is too much work or you simply do not like having a tracheostomy tube, the tracheostomy tube can be removed and the hole will close up. You will then go back to breathing the way you are now.
For me, it was either get a tracheosotmy tube and live, or don't get a trach tube and die. My only regret about getting a trach tube is that I did not get one sooner. I struggled for a long time to breathe. I wish a doctor would have told me I needed a trach tube sooner. It would have saved me from spending many days in bed not being able to do anything because I was struggling to breathe.
You are are awesome love your channel
Thank you so much.