My name's Rebecca. I have a beautiful little boy with microtia. Had a pretty rough day yesterday at the ENT. He made me feel bad for not wanting to give my child a cosmetic ear so that he looks more "normal" despite not having an ear canal. It made it seem since I don't want that that I should consider getting a CT scan to see if it's inner Bones would allow them to make a canal. Or even putting a screw into his bone so he doesn't have to wear a band for his hearing aid. It all just seems so crazy to me when he is so beautiful there's no reason to do with crazy procedure on his skull if it's not going to improve his hearing. Because of our talk yesterday I've taken to UA-cam though looking for information on what's right for him.
Hello Rebecca! I can understand how overwhelming the conversation went with your ENT yesterday. It sounds like your son has unilateral microtia. I know several people who never had any procedure with their ear or had hearing aid devices. I believe the screw they were referring to was the abutment implant for Bone Anchored hearing systems (BAHS). I have two implants for my Pontos devices, and the procedure is not as "traumatic" as you may believe. I have limited information about canal surgey, so I cannot get more information on it. Would you please check out my pages on Facebook or Instagram @Microtialife Also, another excellent resource for you is Ear Community! There are many parents, professionals, and people with Microtia who can provide their perspectives and experiences.
Hello :) I'm a 17 year old girl from India and I have microtia too. (It is unilateral tho) I could relate so hard when you said that you hated it and wanted to be be "normal". I always got teased because of it and absolutely hated (and still hate, sometimes) being born this way. I never found anyone else with my condition. Made me feel alone. So glad to find people like me here! Also, can microtia be passed on to your children? I had that question. Lots of love to you from India 🇮🇳❤️
My name's Rebecca. I have a beautiful little boy with microtia. Had a pretty rough day yesterday at the ENT. He made me feel bad for not wanting to give my child a cosmetic ear so that he looks more "normal" despite not having an ear canal. It made it seem since I don't want that that I should consider getting a CT scan to see if it's inner Bones would allow them to make a canal. Or even putting a screw into his bone so he doesn't have to wear a band for his hearing aid. It all just seems so crazy to me when he is so beautiful there's no reason to do with crazy procedure on his skull if it's not going to improve his hearing. Because of our talk yesterday I've taken to UA-cam though looking for information on what's right for him.
Hello Rebecca! I can understand how overwhelming the conversation went with your ENT yesterday. It sounds like your son has unilateral microtia. I know several people who never had any procedure with their ear or had hearing aid devices.
I believe the screw they were referring to was the abutment implant for Bone Anchored hearing systems (BAHS). I have two implants for my Pontos devices, and the procedure is not as "traumatic" as you may believe.
I have limited information about canal surgey, so I cannot get more information on it.
Would you please check out my pages on Facebook or Instagram @Microtialife
Also, another excellent resource for you is Ear Community! There are many parents, professionals, and people with Microtia who can provide their perspectives and experiences.
Hello :) I'm a 17 year old girl from India and I have microtia too. (It is unilateral tho) I could relate so hard when you said that you hated it and wanted to be be "normal". I always got teased because of it and absolutely hated (and still hate, sometimes) being born this way. I never found anyone else with my condition. Made me feel alone. So glad to find people like me here! Also, can microtia be passed on to your children? I had that question. Lots of love to you from India 🇮🇳❤️
Thank you for sharing your story. I have heard microtia being passed on to their children. My daughter does not have Microtia and Atresia