LIVING WITH DEMENTIA EP. 25 | KNOW WHEN TO CALL THE DOCTOR
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- Опубліковано 13 сер 2023
- LIVING WITH DEMENTIA EP. 25 | KNOW WHEN TO CALL THE DOCTOR. If you have any concerns about your love one, do not hesitate to contact your provider. If their behavior is making you feel unsafe, seek help. Waiting will only cause you and your loved one more harm.
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Why not charter a boat for a day, with a captain on board
Exactly.
What a great idea!! Let Jason sail it under supervision! I vote this! Lolol there ya go Jason!
A fantastic idea, because you could choose to experience different types nautical vehicles.....I think you’d both enjoy that!
Great update! Glad to see you both happier! I do think a little exercise would help the respiratory and possibly sleeping! Good luck! Much love to you both! Boat time!! 😆
Good idea
Jason “looks” much more relaxed in his face and eyes. Hallelujah. Before he almost looked in pain…or maybe the “spark” had gone away. Love you guys.
yes and upbeat and mister smarty pants 😁
You look wonderful Jason! I can see 100% difference in you on the increase of your medicine. I’m glad you’re are sleeping nights now too. It takes a while for you to get use to the increase so you might level out on your sleepiness. God bless both of you. I love you both so much. No no no, not ready yet for the boats. Maybe later. 😉😉😉
I was just coming to say similar - he looks really good in this video (as does Lesley :) )
And Lesley looks beautiful
I agree, big change!
What a wonderful way of educating people. No sailboat sadly. What an amazing caregiver you have. Beautiful lady.
I love the coffee pot joke, Jason! 🤣I'm glad that the recent change in meds has had a positive effect!
Thank goodness for Jason’s brilliant personality and humour. He made me laugh so much .
Ditto! He is a special guy for sure ❤
Rent a boat!
Happy to see you both relaxed and having the jovial banter. Maybe renting a boat and having a friend commandeer it.
@marywallace, that was my thought too. 🙂 Jason looks great!
I agree with all those who suggest to go on a weekend sailboat excursion with someone else commandeering ; a pro on hand ready to take over if needed. Saying ‘no’ to pleasures Jason would enjoy & add to his enjoyment & quality of life seems harsh to me, Leslie ! You always do it sweetly & with a laugh but I do think you should think of this possibility for your dear husband!
So glad Jason's mood is more stabilized!! Hopefully the tiredness will settle down a bit. It's like you have to sacrifice something in order to get something else...ugh! That has to be frustrating!
Wow This is so surreal… in this conversation he does not look like he has any health issues at all! Looks like you could be our neighbors just having a conversation. I think those medications are working! 😊
Lovely to see Jason feeling more like himself and for you too!
You're right we love Jason and therefore desperately want to say yes to the boat but I'm with Leslie on this one ❤
I'm glad things have improved for you guys. You deserve it!
I would Love for Jason to have his Sailboat, but....sorry. I love your videos where Jason talks a lot. His sense of humor is wonderful. I am thankful that your medication has you back on track. It must be miserable for the both of you when it isn't. Love You Both! Thank You Jason for the Gym idea. I'll start going to the "gym" more too. LOL
You two are such beautiful souls. What an honor it is for me to be invited into your lives through this channel. Thank you so much for helping the rest of us through our dementia journeys. My mom was diagnosed 11 years ago. How I wish I’d had someone to give me the advice and information you’re giving. I wasn’t given any information on what to expect or how to handle issues that would come up. Sadly, mom is in the last stage of her journey. I’m going to miss her so very much. One interesting thing though is that she stopped recognizing me a few years ago, but now she recognizes me and gets the most beautiful smile on her face when she sees me. Is this normal? It’s been the greatest honor and privilege of my life to have walked this path with her, as I’m sure you feel the same Leslie. Jason you look and sound great since you’re off that other medication. Thank you both for all you’re doing for each other and the rest of us. God bless you both.
My mom has had Alzheimers for close to 15 yrs and in late stages. Rarely recognizes me and i understand the grieving process is happening before they pass on. Recently I broke my ankle and had cellulitis so I wasn’t able to visit mom for almost a month. My brother told me mom missed me because she mentioned me often. When I say mentioned me it doesn’t make sense but she said my name frequently. Finally saw her yesterday and was I ever surprised when she said “Hi and my name” “where have u been?” I was shocked by this because she often can’t complete sentences nor recognize me. Every person has unique issues. She has trouble swallowing now. So the fact that she was so happy to see was amazing!! She no longer walks. But when I visited her she read the label on her newest wheelchair. Like seriously…how can the brain not complete a sentence anymore but still read. The wonders of those awful plaques in the brain are devastating and interesting all at the same time. She turned 90 last month. She no idea of whose BD it was but so happy to be with those who love her. The first 10 years were awful & difficult but now she is calm and peaceful. I thank God for that.
You both look so much better & at peace in this video. When things are good live in the moment and draw strength from them, when things aren't as great.
❤❤❤
Amazing how Jason can reason out with his feelings and actions!
My bro in law and brother certainly couldn’t do that.
And No. Jason, no sailboat! 🙁
Go for a sail with a boat owner. They will usually let you help with the sails and even the wheel on a little cruise.
Ha ha very sneaky Jason putting you on the spot! We went on a sailing boat that took passengers just for a 3 hour sailing. Was quite enough for me! I sleep all the time but that’s part of this disease as you have to concentrate so much harder on everything. About the breathlessness, I get very breathless and had problems with doing things because of it. Our brains (folks with dementia) don’t work automatically any longer, so everything we do has to be input again and again. It’s like changing from a modern wizardry computer to one made in the 80s. Hugs to both!
Yes you can.
I have to say, Jason looks and sounds much better, awake and positive.
Take care Leslie❤
God bless you both!
Jason, you are amazingly generous with your experiences......I have so much respect and admiration for you.
So glad med changes are working! How about a toy sailboat to play with your grandson?😊 You two are so sweet and Jason is so lucky to have you on his team! Tfs!❤
Jason looks so relaxed and happy its so good to see you both relaxed and happy xx
I just love Jason!! Tell him I am stealing the “going to the Jim/Gym” line from him.
Great update! So glad that you, Jason are having a smooth time and I know you, Leslie need this smooth time maybe more than Jason does. Jason, about the sailboat, don't you have friends that have sailboats that could take you and Leslie for a day trip just sailing around relaxing? I'll bet just feeling the gentle movement of the boat on water would be very soothing to your soul. Jason, I love you quick wit!
We appreciate so much your willingness to help us understand at least some of how dementia affects lives. We also know that we are seeing only a small part of what is happening; the day to day is surely filled with frustrations for you both. Yes, constant contact, for positive of negative reactions is necessary. Some folks are afraid to “bother” their doctor or feel this is just how things are progressing. Your medication change is a good example. Thank you!
Hahaha, you guys are adorable! I know this is so hard ( my mom just passed from dementia) but you are both educating people about dementia with vulnerability, grace, love and humor……..so much humor. My prayers are with you.
Jason seems so much more relaxed, I am glad the meds are working…
I know this won’t take the place of a sailboat, but in my 55 over community we have lakes and the men get these sailboats about 2 feet long that the men here gather and sail their sailboat toys… they look like the real thing only shrunken in size, if you have a park with a lake or even a pool he might enjoy sailing one with remote control
I love Jason he is so damn entertaining ❤
Love you too Leslie ❤️
So glad Jason is feeling better. Trying to get my husband on a med to help him.
Same...mine won't discuss Doctors visits with me and gets mad when I make suggestions!
My mum was like that, she wanted nothing to do with doctors and would get so mad at me. She wasn't even diagnosed with dementia until about 8 months before she died as I couldn't get her to a doctor before then! Good luck with your husband.
NO, Jason. You are not able to sail a boat by yourself. But, I love both of you!
It's great that you have Jason's "mood medication"adjusted and that he is more 'mellow' now.Leslie.. i have some idea of what you are experiencing, a family member of mine is having the same issues with her spouse and she is walking on eggshells too.Jason is incredibly charismatic and so witty! I will tell her about your channel as i think it will help her a lot. Sorry Jason but the sailboat is a firm no... Best wishes from Canada.
it's the side effect of the meds. if you want to know how it feels - just take one or tell her to take ONE. it's not going to hurt her at all and she will understand after trying it herself exactly how it feels. :)
This is so lovely to hear and infact it’s clearly obvious even in a small glimpse of your day that Jason seems so much more himself and the smile on your beautiful face shows things are better in this area. Beautiful amazing couple 💗 love from Donna in the uk xx
You two are a trip! No joke glad to see things are calmer! Love his sense of humor you can get through anything with laughter!
"Listen Linda" cracked me up. Good one Jason.😂❤
I found myself absokutely smiling so much at how flattered you seemed in this video.
Truthful Kindness here. Sorry Jason, we have a sailboat, but my own energy and sleep patterns reflect yours with Lewy symptoms; wonderful to sleep now, even if it means i am sleeping 12 hrs a day. When i have no energy to tackle exercise, then it is obvious i do not have the energy needed to take part in sailboat responsibilities.
Jason seems happier and so do you Leslie----Great video.
Wow, Leslie, I can see an amazing difference in Jason!, so much more relaxed and not so agitated!! Such a wonderful blessing!! Always something to be thankful for!! Much love, sweetheart!! ❤️❤️💋💋
Such a refreshing upbeat video. Based on this video alone, I saw no evidence of Jason’s dementia. You are both looking good!
Totally agree with charter a boat with a captain and you can both enjoy the sailing without the stress. Nothing better than being able to walk onto 3:00 a boat and relax and walk off when it’s over, without all the work.
No sail boat. Get him a small table top model to add to your decor.
Love that Jason called you Linda
He was talking about that little boy on Facebook saying,” Linda, Linda, Linda listen!” 🤣😂😂
Getting the right meds is so important! My husband is now on Wellbutrin & Zoloft & this controls the anger & belligerence. His doc & I (an RN) feel this combo meshes nicely with the Aricept & Namenda.
Mood medications are trial and error. I am happy to see you are happier. Good advice to contact the doctor for adjustments. Sleeping at night is important. You are a beautiful couple. He has a funny sense of humor!
Jason just look so much better!!
Even his eyes are not as wild looking!!
THANK GOD FOR WORKING IN YOUR LIVES THE WAY HE IS.
AND I PRAY HE WILL CONTINUE TO BE IN YOUR LIVES AND HELP YA'LL EACH AND EVERYDAY
MAY GOD GREATLY BLESS
YOUR FAMILY
YA'LL ARE THE SWEETEST PEOPLE!!!!!!
He is so intelligent! He was really clear today .He carried it thoughts through and said all he meant to say. Encouraging to you both I know. Blessings to you both
I totally understand your frustration…. When the doctors determined that they needed to change ‘mood’ medications it was a nightmare. First they had to slowly stop the medication she was taking before they could start her on the new one. And when they started her on the new one they had to slowly increase that to the target dose. I know where you are. It is not easy and I know we only get a glimpse of your life in front of the camera but I have a very good idea what is going on throughout your day. As always, I will pray for the two of you!
Jason is consistent with his sail boat request. I know he is missing all his previous activities. So happy his moods are getting better after the med readjustment and that he still realizes how hard it was on you . Keep smiling Jason. Bless you Leslie ❤❤🙏🙏
It's amazing to see how Jason talks about his disease. My husband doesn't admit that anything is wrong with him. He definitely wouldn't talk about it!
Just stopping by to say hello! It’s been a couple weeks, so I just wanted you to know even if you can’t post, you are both still in my heart and I’m praying for you. ❤
I noticed right away that Jason looks so relax in his face. I am glad that things are getting back to his "normal" and he is feeling better. Would Jason love a Viking type cruise? It's kind of a "Sail boat" thing, just a bigger boat or maybe a sailboat cruise. Just thinking. Glad for you that he is feeling better also. Love your videos.
JASON DOES LOOK BETTER . THANK YOU GUYS FOR THIS. LESLIE, YOU ARE FANTASTIC, AND ALWAYS LOOK GREAT
Yes, charter a boat and crew!!! I support that. Life is short.
Awesome couple! ♥️Blessings always.
Again, thank you for this helpful video. I know you are making a difference for others in your situation. Sorry, Jason-no sailboat. Bummer I know. But remember that you are on the struggle bus with energy and stamina. Sailing take a LOT of both. Hugs to both of you!
Thanks for the up date. So glad to hear he is back on his reg meds and back to his normal Jason. NOPE, NO BOAT BUDDY!!!!! Not safe
It breaks my heart, as I'm sure it does yours too, Leslie that when Jason is feeling good you would think there is nothing wrong, therefore he still has adventures he wants to live out but realistically he cannot. That is why this disease is s devastating, to know the man Jason was, so full of energy and adventure and to see that diminishing is very very hard to say the least.
Yes, please do@danymilll707
Thanks for sharing ❤
I love you two. Thanks for the update! XO
Jason seemed really happy on the video. Glad things are going a little better. Take care.
Great couple, this is such a difficult adventure. My Mom is showing signs of dementia and it’s frightening to think of losing her mentally. I’m glad there is medicine that helps
God bless you, Jason!
Looking better. Thanks for taking time to update us.
Thank you both. These are great messages.
Thank you for being so transparent ❤️🙏🏻
Jason you rock!! God Bless from a Great Gran in MN
A sailboat! NO,no, no! You need to have to access to medical attention and having the energy and mental acuity to handle a crisis for either one of you!
It’s good you feel more normal. But it’s always nice to have nap time.
You 2 are special!!!
Thank you so much for opening your lives up to us all .
So nice to see the smiles❤
Thank you for sharing. You both are amazing ❤❤
I just love that you both share your ups and downs. You don't know how much it helps me watching and learning. My husband my not be doing things like Jason but sometimes they are simular.
Tom forgets where the light switches are and forgets how to get in and out of the vehicle. Gets lost real easy. May God bless you two. 😊
God Bless you both. You are awesome!
What about just plain old depression and loss of “HOPE”. His life was basically yanked out from under him and told your life is basically unrecognizable and downhill from here. I’m a nurse as well (ER) now retired. This happy, active, funny guy was told life is over. I would recommend talk therapy and guided on how to seek out interests that would help with the hopelessness. These ideas may have already been put in place. It’s the old nurse in me, what can I say…let’s fix the situation…Leslie?!?! Take care you two. Praying 🙏 for you.
Glad the medication switching is helping. I pray he gets an increase in energy! 🙏❤️
Y’all are so adorable!❤️ Love the humor and laughter! 🌬⛵️☀️
That was very informative. Thank you. Leslie, beautiful as always!
We're in your corner, Jason! Lot's of prayers and support coming your way!
Very informative and loving. Thank you.
Thanks for the share. God bless both of you and the journey you are on.
You guys are the best to explain this to us. I pray for the both of you.
Glad the change of meds helped. ❤
Jason , I can't believe how well you can have such insight.
Glad to hear he is feeling better
I went through so much of the same things. It’s wonderful that your sharing your journey
You both impress me so much. Such incredibly sweet and positive people. How nice that you do these videos!
Thank you both for your honesty and vulnerability, love you guys❤
Jason you are looking so good! I'm glad you are feeling better!
Jason, you’re a sweetheart and I love you but that’s a BIG NO to the sail boat.
Y’all are precious and love you both and pray for y’all 💗💙🙏🙏
I just love you two! I keep you in my prayers
I would say no on the sailboat.
My husband wanted to go to Italy with his mom & siblings; I had to make the decision not to go. Family didn’t understand, but I knew what I was doing at home would be impossible to do in Italy.
One of the side effects of the medication may be cardio. Check his labs and heart. Also, hopefully he’s getting in a little walk daily - even if it’s at the park from bench to bench. Check out day cruises for sailing.
Thank you for making these videos. I'm learning so much from your experiences. May God bless you both! 🙏 🙏
Safety is first priority.
So good to see your smiling faces, warms my heart. I am glad that the medication changes has helped you Jason and that you are sleeping better
I love you two together. What a blessing your story is for all of us.
Great update. Jason looks so refreshed. I hear ya loud and clear when it comes to the "energy thing." Things that I can carry are exhausting for Hubby to do. He's easily tired after 5 minutes or less of a project. I feel so tied down and held back when it comes to household things.
Did he just make a Slingblade reference with the Listen, Linda, Linda?. Sounded like it! Love you two. ❤
God bless you both for sharing your experience.
So encouraged to see your change. Was very concerned with the stress you all were experiencing .
You two are troopers!! Thanks for giving us perspective. It’s good to hear med adjustment can help both of you! Jason, you’re looking more rested, less tense 👏 Wish you didn’t have to go through any of this. Sending respect and compassion for how you’re working so hard to keep quality, to keep love in the time of caregiving. 🙏💖💙
This really is an important issue to explain to families! Thank u so much for telling us.
Simple and true, I just love the two of you and your amazing love story ❤️