LIVING WITH DEMENTIA EP. 26 | WHAT'S JASON BEEN UP TO!
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- Опубліковано 10 вер 2023
- LIVING WITH DEMENTIA EP. 26 | WHAT'S JASON BEEN UP TO! Today, we share some footage of just some random things Jason has been up to lately.
Thanks for all the support! Dementia is a condition that affects millions of individuals and their families worldwide. Join us as we explore the challenges, triumphs, and everyday life of someone living with dementia. Our goal is to raise awareness, provide support, and foster understanding for those affected by this condition.
You are so sweet. Jason is so fortunate to have such a devoted, loving spouse. Jason is wonderful and I love to see these videos. God bless you both.
Your love for Jason has continued to be loving, caring, and unconditional ❤🙏
Glad to see Jason still wanting to do his yard work.
I am glad Jason is able to use his ‘boy toys’. He is having fun. Your house is constantly evolving with your decorating, modernizing. Enjoy.
What a beautiful video for you to share with us ! Thank you so much ! It makes me so happy to see Jason up and at it still !! Good job Jason and remember we All Love You 😘
My mother had dementia & alzheimers I have learnt more from you then I did from almost 10 yrs w/ Dr's. What u and Jason are doing is very special, I hope you realize how much this will help ppl today, tomorrow & many yrs in the future. Your knowledge is top notch.
So, I love mushrooms AND I delight in picking the weeds out of my grass. 😂 It is therapeutic!
I am struck by what a supportive, safe, and loving environment you provide for Jason. You are so good at preserving his dignity while having to set hard boundaries and limits. I know it cannot always be easy or pleasant.
Continuing to keep you both in my prayers.
It's great to see him active. He seems happy while doing those tasks.
GOD bless you and Jason
You are an amazing resource, inspiration caregiver and wife. Despite the constant heartbreak and grief you are showing up with so much Grace. ❤
One of the things that people don't understand about LBD is the long term memory thing. There really has to be more education and awareness about this horrible type of dementia. I am constantly reminding the people involved with my father about how this dementia presents because they really don't see beyond his ability to talk about long term memory things and they keep telling me that there is nothing wrong with him. It is frustrating because his showtiming kicks in for the short visits he gets from people and they don't witness the aftermath of the visits. Then they proceed to tell me that I am cruel for not taking care of him at home and why does he need to be in a LTC home. I did that for 11 years, to my own detriment. It totally wore me out and wreaked havoc with my mental health. Other peoples accusations on top of the verbal abuse I receive from my father just adds to the anguish. I didn't even tell anyone about having to deal with his bladder and bowel incontinence as well as his non-compliance about everything and his falls and setting himself and other things on fire, to just name a few.. He is also 96 1/2 years old and how much do people think one person can endure as the sole caregiver to someone in severe stage LBD. Leslie, thank you from the bottom of my heart, what you are doing in creating awareness is so, so valuable. I am so grateful for you and your videos. i found you from A Charming Abode and I'll stay with you for both vlogs. Hugs to you
No one should be judgmental about your decisions, especially after having been a caregiver for 11 years (!) People only know what they see, and sometimes it's just a tiny bit of reality. It must be super hard when you're trying to make videos like Leslie does, and she wants to show Jason at his best, but then people get confused because he SEEMS to be doing well.
I love to see Jason & him doing what he likes. You are a special angel on earth for your husband. I am sad for you but your both in my prayers 🙏. Take care of you, Leslie❤. 8:01
I don’t know your name but neither do I need it to add you to my prayer list. I will simply pray for torontokat and her Daddy because God knows who you are as well as all the difficulties, situations and struggles you face each day. I pray He will bless you with a very generous amount of His grace and mercy along with a huge amount of peace and strength to make it through each and every day. ♥️🛐♥️
A busy day in the life of our bud Jason!
God bless you for taking care of your father as long as you did! You have nothing to apologize for or explain. Try not to let the negativity get to you!
I got a chuckle when he called the machine, "the diggy thing". Praying for your continued blessings.
I told my hubby we are DONE with traveling. At some point you have to draw the line with them on things that are stressful and actually downright dangerous at this point. It's like traveling with a child, and I just won't do it anymore.
I so love seeing Jason, up and filling his life with projects to make life so real and productive on good days. You are such a good inspiration to him Leslie. God bless you both. 💕
Thank you so much for posting! I have been wondering what you and Jason have been up to! Love to see him working "in his element". Thank you also for explaining the difference between Jason's long term memory versus short term memory. You are both such a blessing to this community. I will continue to pray for you!
I pick weeds out of the grass also.
I confess, I pick weeds too (for hours)!!!
Me too 😊
Yup, same here. Can’t let them get started or they take over and pretty soon there are more less desirable things growing in the yard instead of grass.
I do too!!!
Who doesn't pick weeds from their lawn? I no longer have a lawn or garden but 1 hr weeding and watering was very relaxing and therapeutic and outside in the fresh air.
I find weeding therapeutic. I go out after a good rain and the weeds slide right out of the ground.
Thanks for the video! Jason really seemed to be in his happy place when driving the equipment, so nice to see. Not sure why people question what he does, I figure he wouldn’t be doing something you didn’t think was safe for him. Just love you two!
My grandfather, who lacked two months reaching 100, used to crawl all over his large yard and cut weeds out with his knife. When Jason was doing that, a flood of memories came over my grandfather doing that. He also couldn't see well, but he knew a weed when he felt it and cut it right out of there. He sure had a beautiful yard!! Moss him dearly!!
I love this music, Leslie. You are such a beautiful being of light and love. Your smile and laugh are infectious. I am a nurse who has worked with folks that are stricken with LBD. It’s such a tough road for families. They have so much guilt and pain for having to put their loved one in LTC, but I feel blessed, honored, and privileged to be able to care of these beautiful souls that need us not only from a nursing need, but also as they need love and patience and sometimes just sitting with them and talking with them. Love from Colorado. ❤
Thank you, Jason and Leslie! I love your videos. I feel like you're family.❤
BTW, it's music to my ears to hear Leslie laugh.☺️
My husband picks weeds too! Yes we are all at different stages. I like your explanation of one step in each camp. Dementia is not on or off!
Love seeing Jason doing everyday things.
Bless your pretty little sweet heart... ❤
Im 54 and trauma caused mine. Im very very early onset and drive still.
I got such joy watching Jason do those things he enjoys. Bless both of you. ❤
Your kindness, devotion, fears & frustrations have global reach. I honour you both for sharing these small portions of your ‘everyday’. 💜
Leslie, you and Jason are precious to open your hearts and lives to help others who struggle with dementia. We have learned so much from you and I know it is not easy for you to schedule making these videos for us. We thank you for letting God work through the two of you. You are amazing! Prayers!
Always look forward to these videos❤️❤️❤️
I can’t believe how much Jason’s symptoms compare to my husband’s. We saw a neurologist a few months ago when my spouse was diagnosed with vascular dementia. We are at year three with symptoms. There has been a big change in the last year. He was a commercial project manager and before that a custom home builder for most of his career. Now about the only thing he is able to do is mow the lawn. He will be 78 in February. The neurologist said my husband would probably pass with a stroke and that the normal longevity of the disease is about 4-5 yrs.after diagnosis. I have so appreciated your channel it has been a tremendous help in trying to navigate this horrible diagnosis.
Jason seems so with it and much more upbeat! Is the new medication helping?
So nice to see him being productive and you supporting him along the way (as always!).
This is great 👍 😊😊😊
Embrace the things he can still do and enjoy the pleasure he gets from feeling he’s accomplishing something. I know it can change moment to moment but I love seeing him enjoy his outdoor activities. I’m sure he’s going to be excited about a trip. Can’t wait to hear the details.
Maybe take short trips around your state. Thanks for sharing.
Don't feel bad, Jason. I pick weeds out of my grass too! Just did it this morning. Do what makes you happy!
I know what you’re going through beautiful lady. My husband had vascular dementia and I was his caregiver for 5 yrs. He was so sweet and never wanted to be alone.The sadness of it all is indescribable.We we’re so close the last 2 yrs together. He would forget we were married and ask me to marry him over and over. Only God and family has helped me cope without him since August 2021. He was still so healthy and strong and handsome for 84 yrs old. We were married 37 yrs. I’m praying for you both heart ❤❤God bless and give you strength and wisdom and patience.
You are the best person. EVER. ❤
Just love seeing him enjoying things. Pray for you guys in my prayers. ❤
Your and Jason are so special to me. Y'all make my day! A
Charming Abode and this channel are so informative. Thank you for sharing!
I appreciate you, and this video, and everything you and Jason share with us. I’m so irritated with dementia today, I’m in tears. I hate how it’s stealing my dad!!! Ugh. I just want to ask the Lord whyyyy. I’m 50 years old, my dad is 70, and dementia is taking him away in such unexpected ways. Similar to Jason, it’s his ability to be logical, rational, and empathetic that we have lost. And other people look at him and scoff. They doubt his diagnosis and it burns me up!! Like we would EVER want to pretend with this stupid illness!! …sorry for the rant…it’s not at y’all. It’s my heart’s rage against this disease and how it impacts so much more than one person. It’s not fair.
Love you both. You have a gift for explaining what is going on. Had not thought that long term memory allows him to do some things still. I pray he can continue to do some things he loves.
My husband picks weeds and dandelions, on his knees, for hours.
Nice to see you both again. ❤️🇨🇦
Mine too but he’s 84 years old and it’s getting harder and harder for him to get up from the ground. Even those things are sporadic, sometimes the weeds can get two feet tall before he notices that they’re even there. He’s good at faking it so other people don’t notice.
@@sallyrunnalls9788 , Don is 78, groans when he gets up again (😁)and then he’s stiff. Gotta get those dandelions.
I really like watching Jason do his projects and even the cooking!! You are a wonderful lady!! Your love for Jason makes my heart happy. I feel your pain when and I am keeping you both in prayer. May you feel Gods arms around you. He is a proud Father.
I loved seeing him reclining with an eye cover . I get so over-stimulated and never thought to do that
I pick weeds out of the grass too😊. Grounding is so good for our bodies, the fact that Jason is sitting on the grass and doing this with his hands, it does a lot of healing our body.
I picked lots of chickweed from my lawn. And of course, dandelions. Go Jason!
I love seeing Jason active. I like Jason like to pull weeds from our lawn. I hope both of you can still travel a bit. Take care.
Great perspective added, I am 59 y/o w Vascular Mixed Dementia and was very active and I need to be able to engage in activities to the limit I can. I sue woodworking tools saws, etc and I am very aware when I am in an inoperable mental state and I stop (or don't start), what I don't know is if Ill always have that awareness. Props to you & Jason
I appreciate your dedication to each other and informing us that may be affected by this horrible disease. May God Bless you both,
My husband had amazing long term memory. No short term memory. He would say well I can watch a movie tonight and tomorrow it will be brand new again. Prayers for you
Thanks Leslie for the update, I am happy to see Jason still wanting to do things even though it tires him out. He is so funny. I want to say I appreciate you guys sharing your journey with us. I’ve taken away some useful information one being show timing and another with the Sertraline causing sweating. My husband has mild to moderate dementia Alzheimer. I know there is a difference between Lewy body and Alzheimer but some of the symptoms are similar. I was wondering how long Jason would be up to doing these videos, I understanding there will come a time when he will say enough is enough. Good luck on the travel possibilities, you guys are in my prayers. 🙏🏾
So great to see Jason out and about! 🌞🌞🌞
Until you walk in my shoes. It’s hard to understand the need to keep his life as normal as possible. For both of us
God Bless you Leslie. Thank you for sharing your life with us. Prayers for Jason, and you.
Leslie I love seeing you and Jason still enjoying little moments. You are such a loving care giver to Jason. I knew Jason was young yet I didn't remember how young he was. God Bless! 🙏🙏♥️🌴
I live in a condo now.. Ohhhhh how I miss pulling weeds in my yard... Fun memories with my neighbor pulling weeds in our yards!!! ❤️ ❤️ ❤️ ❤️
So glad that Jason is still able to do things he enjoys!! Glad you are at least going to try to travel with him. If the trip proves to be too difficult, I hope he loses his desire to travel. Praying for you always!! FYI; I pick weeds out of my grass at least once a week! 🤪
Leslie it is great to see you and Jason working together on cooking,home prijects,even cleanup!!!God bless you both with many more blessings. You are a wonderful and loving wife.😉👍🧡❤🙏❤🧡🎃🌻🦉🎃🍁🥧
Awww yay I'm so glad he's got a project to work on. So fun. This makes me so happy to see him working on this, especially with a "digger" which is every boy's dream from childhood, and I hope it goes well and he gets enough rest during the process!
It breaks my heart that you have to keep explaining this. I would never speak on something I didn’t fully understand or comprehend. Bless your heart 💜
God bless you and Jason! You are an amazing woman! ❤❤❤❤❤
My loved one with dementia was much like Jason in that he traveled extensively when he was younger. As the dementia progressed, he would be upset and agitated when he so much as left his own room…but still said all he wanted to do was travel. In his mind, he was a traveler until the day he passed away and was so frustrated that he “wasn’t allowed” to hop on a plane and go go go. He just couldn’t grasp how upsetting travel was for him and didn’t retain any memory of his distress even minutes after getting back to his room after being away from it for the shortest time.
Way to go Jason!
I love how you described so perfectly one foot being in one era and one foot being in another time. Not exactly how you phrased it but I know you get it. It did really help to see why Jason is so capable in some areas and not so much in others. You are a huge inspiration. Thank you two for the update.
My 87 year old Dad hand picks weeds out of the lawn too.
Jason has some cool moves for cutting corn:)
Thank you, Leslie and Jason.
Thank you for sharing with us… Yes, I missed seeing Jason and you! He still amazes me with his humor and conversations. Love you guys 🙏❤️
Thanks for the behind the scenes peek. I'm so happy for him that he still enjoys the work with his machines. I'm especially thinking of you on the coming trip. What a special person you are. As a caregiver, I hope (and suspect) you know the importance of taking care of yourself too. Anything you can do to streamline the trip sounds like a good thing. God bless you both.
Staying busy and as productive as he can❤❤
Yes, since I do have a family member that has dementia. I so understand exactly. Everybody’sdifferent everybody has their issues. Everybody doesn’t understand because they have never been around it so they do not understand it because they question. Yes…. we have to take one day at a time and that’s all we can do. Keep that beautiful smile… remember you Are loved
It is great that he can have the independence of driving the machinery, doing lawn care and preparing the meals. Mrs. Leslie, may love, light and peace surround you both. Enjoy the trips and create awesome memories together💖Kindest regards.
Haha! My husband gets down on his knees in our yard to pull weeds too. I’ll realize that I haven’t seen him in awhile and go through every room trying to find him- only to find him in our yard. He’ll spend hours out there. Funny we have that little thing in common.
Your videos are helping me tremendously on dealing with a recent diagnosis of my brother that I have lived with for 25 years. We are dealing with a lot of appointments and starting this whole process. Thank you for sharing and your help with this!!
Hi Jason, nice backyard plan. My dad picked weeds out of the grass, he always had a lovely lawn.
My husband is just like Jason. We are currently waiting for the Lewy Body test results to come back. The not knowing, the napping, the headaches and behavioral changes are such a challenge. Thanks for sharing your story with all of us.
I am glad you mentioned that there is a difference for memory between long term and short term. Seems like most of the time, long term stays more intact regardless of the dementia classification. Age is a factor also. My relative also wants to travel but then will decide not to go, often canceling at the last minute. What sounded "fun" to him two weeks ago is no longer what he will want to do. I let him make plans knowing 90% of the time a trip will not happen.
I always love getting these updates. I wonder if you have him keep a journal on your next trip about how he's feeling about traveling, then when he wants to travel again seeing his feelings in his own handwriting might make him think twice? Just a thought. It's a hard place to be where you both are at and I am praying for you both. God bless you both.
Thanks for the update! You two are amazing!
Love you guys!
Thanks for posting! Love y'all both ❤❤
Thanks so much!
My sister has frontotemporal dementia and her long term memory is fine. However, remembering new things is out of the question. I get why Jason has long term memories. Glad to see an update.
My husband had LBD and early onset Alzheimer at 56 and passed away 4 years after diagnosis. Very rapid decline. Jason is doing extremely well and you are taking great care of him and your family.
Thanks for showing me this video Ian and outside of the house. I know Jason really enjoys doing things even though it wears him out. You both are such a special couple.❤❤❤🙏🙏🙏.
Great to see you both xx
Thank you for sharing!❤️🤗🙏
thanks for the update, I just came to your channel yesterday or the day before to check on you guys
Thank you for the update❣️
So glad to see him out, doing things he enjoys 😊
I think it’s great that Jason does have his long term memory because it allows him to use his digger for example and I’m sure many other things he used to be interested in doing. It’s a blessing in a very sad situation.
I think it’s far worse than just sat there waiting.
My late Dad had Vascular Dementia but he still remembered things about his car/engine etc which was lovely. He was much older than Jason.
It’s important to allow anyone with dementia (or any illness) to have something that they chose to do unless it’s unsafe of course.
I’ve said this before, but to have such early on-set dementia is unbelievably cruel and I keep hoping there will be a significant breakthrough in early prevention, better treatment and one day, a cure!!
Hope you’re able to take a breather for yourself Leslie 🥰🍰🙅♀️🙅♀️
Jason, keep up the good Garden work oh and weeding the lawn!! I have OCD and used to be the same!!! 🥰🍦🍦🙅♀️🥰
I’m happy to see your update! Love to you both! 👍🏻❤️🙏🏻
My husband picks the weeds out of our lawn all the time! Lol
This was so fun to watch Leslie. Thank you for sharing.
Leslie, thank u for your explanation, it was very clear !!
So good to see you both smile…
Thanks for the update Leslie. You both look great!! ❤
Thank you so much for sharing.
Great to see Jason outside doing his thing. That’s a great way to share if he’s not feeling like talking.
Thank you also for the little chat about your lives. It’s really good to hear from you!
Jason sounds so much like my son- age 38.
All short term memory issues.
God bless you both xx
My kinda people. Love you guys!
Jason and his toys! Such a guy!
So awesome to see that he loves to do these things still. Sending prayers and love from canada
Thank you for the update Leslie 😊 it is good to see Jason doing things he loves, continued prayers for you both ❤