Neurological Complications and Celiac Disease
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- Опубліковано 9 чер 2024
- The Canadian Celiac Association chats with Dr. Iain Croall, PhD from the University of Sheffield, and Sonia Pereira, patient, to discuss the neurological complications of celiac disease. Dr. Croall explains the link between gluten exposure and celiac disease. Sonia Pereira shares her personal journey to diagnosis, including her neurological symptoms.
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#celiacdisease #celiacdiseaseawareness #glutenfree #glutenataxia #glutendisorder #anemia
Carol here, from Melbourne, Australia. I am now 68. I was diagnosed at 50. I too went through what the young girl went through. I too ... mental issues etc. It took 30 years! I did my own research in the end, after doctor after doctor. My GP reluctantly sent me to a gastro enterologist , on my request. I suggested that l wanted to explore the possibilty of coeliac disease. He changed my life. I lost so much quality of life for so many years. I am finally enjoying life. All the best.
It's hard to advocate for yourself, you did a fantastic job. We are happy you are on the right track
At age 60 and very healthy and fit, celiac basically killed me with a heart attack because after months of illness and no diagnosis (being female I was marked as a head case) my electrolytes - especially potassium - were almost nonexistent. My symptoms were severe tingling, dizziness and irregular heartbeat. The only reason I didn't die is because my body had started shaking uncontrollably and I was in the ER when I coded. It still took another five months and a myriad of specialists to be diagnosed. Celiac is a very sneaky disease and either has almost no symptoms until it is too late or after decades you finally put together all these little things that had bothered you your whole life but nothing big enough to get a diagnosis. Then the real fun begins when you try to wend your way through an entire world full of gluten and forget a social life! People generally don't know what celiac is or if you tell them they shrug their shoulders and treat you like you are a hypochondriac.
Thank you for sharing, ensure to check out this link: www.celiac.ca/living-gluten-free-menu/ to be able to continue navigating your life eating gluten-free
I'm glad that you are still here. I've been looking into Celiac and Non-Celiac Gluten Sensitivity and I'm amazed at how many symptoms I've had. I'm starting to wonder if this is truly the answer for many of my problems. If it is, I would be so relieved to at least have an answer.
Did a gluten free diet improved your symptoms? Did it cured them?
@@samimaaroufi4841 Absolutely and completely.
@@parvanirose Same here. A lifetime of little things that added up but our doctors are not trained in celiac like the European doctors are. I can eat European wheat because they don't allow Round Up to be sprayed on their crops.
I am so grateful for this information. I am going on 3 years since my diagnosis. I spent 1 year also frustrated in and out of the hospital. I also had a male doctor send me to a Counselor telling me I had severe anxiety and that is why I was behaving this way.
I ended up researching what tests to request and did it myself and honestly found out I had Celiac myself. US hospitals were not the most helpful, but I guess that is not a big surprise. Turns out that the flare up was causing severe depression, anxiety, GERD, nausea, exhaustion, joint pain, chronic headaches, and just within 3 months of changing my diet it all stopped!
Wow, what a journey you've had. We're so glad that you discovered this and are on a path to better health!
Most doctors thought I had MS because I was shaking so much.
I was so sick with horrible headaches and intestinal problems - and brain fog- no doc could help/ so I just took Tylenol sinus - and finally after many years of prayers - I had a dream I form me that I was allergic to wheat - instant relief when I gave it up ! Now I avoid dairy as well. What a shame so many years later people are still not diagnosed .
So true, many of us have found ourselves in a similar boat, taking allergy pills and trying to get by. So glad you are diagnosed!
Excellent....Thank you...Celiacs has been an upward battle...to live...for me for 11 years...
It was mentioned that the TTG-6 test cannot be obtained here in the states but it can if you find a functional medicine doctor who has access to Cyrex Lab testing. I had it done.
I have struggled with Celiac for five years now. It was so rough the three years before diagnosis. I am still seeking out information and have symptoms complicated with Lyme, mold exposure and Bile Acid Malabsorption, all of which nobody including doctors seem to understand. Since Celiac, my social life has gone to the dogs. Fortunately, I have a husband who is patient, loving and supportive. He agrees to keep our home entirely gluten free despite the fact he does not have Celiac himself. Thank you for your channel and all the important information!
I am 82 and diagnosed with celiac disease about 8 years ago and almost the same time with inclusion inflammatory myopathy, slowly progressing from many years before. I was wondering which was the chicken and which the egg. I am on a strict gf diet and no treatment for myopathy. This is the first ever comprehensive information I have found. Thank you. All I can do is fight depression, take my supplement an wait until the end ...
Been diagnosed with endometriosis, gastroperesis and celiac disease so hooray my life, love life is ruined by some stupid diseases
Sorry to hear that but we are always here to help. Please make sure to check out our website celiac.ca for additional resources.
Some people have worst things than you and dont whine as much. Maybe it is your attitude❤ you need to imorove.
No, they are not stupid and required attention. Gluten sensitivity by itself is no to ignore or joke about because it could make you suffer from lupus, cancer etc.. among other things but by giving it the appropriate attention and cared we could prevent a lot of problems. Some disastrous and permanent. Life changing and not for the good. Please take care so that you could live a normal healthy life. ❤
It sounds like my life story, symptoms started around the time of my brother’s death and I thought I was depressed, told my doctor about brain fog and he instantly put me on antidepressants and I had a heart attack a month later. Then they blamed it on weed smoking but I was using it for belly aches and vomiting, and depression, turns out it was gluten.20 years later
Thank you for sharing! We hope you are on a path to better health now!
Did gluten-free diet improved your symptoms? Did it cured them?
Yes The gluten free diet stopped the migraines gas and bloating. . It’s hard not to have soft delicious bread but that seems to be the one thing that is harder to make , I guess it’s the gluten free wheat
Thank you for this Webinar Series
Thank you for the feedback Bennett! Much appreciated.
Thank you for the information!
I was diagnosed celiac five years ago, and until I got off all grains and dairy, I didn’t heal.
My understanding is that dairy and all grains, especially wheat, cam mimic gluten in the gut and cause big time problems.
I’m following Dr. Osborne, Tom O’Bryan and Datia Kharrazian. They have all done their homework, and believe that if you’re gluten sensitive or allergic to gluten, and especially celiac, that you shouldn’t eat any grains or dairy. Good luck to all of us on our health journey 😊
Thank you for the doctors! I am going to start following them too.
Did a gluten-free diet healed you completely?
What about eggs?
I believe that adult onset coeliac disease may be due to modern food technology. Desiccating cereal crops with glyphosate and enzyme accelerators used in the baking industry.
My first symptoms way back in the sixties was migraine. Have had a healthy gall bladder removed because the endoscopy did not include a duodenal biopsy which would have been diagnostic. I did get the mind over matter lectures. Saw a very nice doctor at St Thomas’s Hospital who honestly professed that they didn’t understand the causes of IBS. It was many years later in my fifties, that I did get a diagnostic blood test. But yes dairy is also out. Sinusitis cured. Have managed to get to 80 but had some considerable difficulties due to doctors not checking my notes. I make sure I do my best to avoid further hospital stays due to bad reactions to some of the new generation antibiotics. In my case hypOtension is an issue.
2023. 72. Years of age., diagnosed as coeliac, on a full gluten free diet, spent the bulk of my life constipated prior to a gluten free diet, had two operations for haemorrhoids. stepped out of bed, March 2009, and my feet were on fire, nerve endings on the soul, of the feet.the next’s two and a half years, eight doctors, and three specialists, Nerve endings and rashes all over the body, headaches, memory loss, Brain fog, eye sight deterioration with floaters, blisters on the tongue, delamination of the roof of the mouth, Pins and needles across the face, loud tendinitis, attacks of nerve endings in X surgical sites, Locking up of muscles in hands, muscle attacks in the stomach, Felt like a eel was loose in there. All outside exits from the body were stinging. leg muscles and knees were losing strength. 72. Blood tests, but the Agi and Ttg were forgotten, a specialist in Tropical diseases cracked it in the end.
How are you feeling now? I am having almost the same problems at age 25. My mother also has it but has been feeling a lot better after going GF.
@@gmodrules123456789 The only problem that still remains, is the nerve damage to the feet and legs, I have refused to take pain relief since 2009, as I do not want other complications, I do hobble around because it is so very painful, I am a entrepreneur and Highcountry farmer, so basically mentally and physically very fit, no one seems to mention what happened to coeliac‘s in the centuries past. I looked at my parents. My father died at 94, only saw a doctor twice my mother, 89, but had blood pressure problems, but very fit and active. nothing on my mother’s line stood out, And with her documentation I could go back 800 years , on my father’s side was a different story, his world War, one medical records told a different story, very sickly and died at 62, now his mother was nicknamed little mother, and was very sickly and underperforming and accused people of poisoning her, I also recall many times thinking I was being poisoned from something, she ended up in one of the early 1800 mental asylum in New Zealand, I discovered that her mother in England believed that she was being poisoned, and also ended up in a mental asylum in England. So it looks like coeliac’s in the Centuries gone past, have been placed into mental institutions Of various descriptions as their condition deteriorated.
You are describing my symptoms. I seem to get flare ups still though and most are neurological. I’ve not had one medical professional who has paired my symptoms with coeliac. My neuro put it down to stress.
Do you still get neuro symptoms?
I’m 8 years diagnosed. Thanks
You may wish to bring our symptom checklist to your doctor. www.celiac.ca/celiac-disease-symptom-checklist/. We also have a page on our website with all of our atypical symptoms (neurological included) www.celiac.ca/gluten-related-disorders/atypical-symptoms/. We hope this helps!
Is there a link to the studies?
We do not currently have the links to Dr. Croall's studies, but I'm sure if you google his name his current research will appear. We hope this helps!
I find in the US that many doctors nurses and hospitals and not trained much for Celiac,s or either slept through that portion of their training. Many hospitals in the past could not even come up with any food for me in hospital. Nurses and Doctors ask repeatedly, "what's that". Europe seems to know way more than the Americas.
3yrs I’m just getting close, 8-12bms daily.. stool testing normal. Advised to add fiber peripheral 😢 water poisoning ptsd headache tingling hands feet, buckling bi lateral knees bi later mass torn shoulders, cervical, lumbar
People expecting to get an answer for various symptoms which could be Celiac need only to educate themselves on what constitutes a strict GF diet. Then start the diet and see if the symptoms change for the better. If the symptoms disappear then what else could it possibly be? Celiac is one of the few condtions that can be self-diagnosed and effectively treated by the patient. As someone who was misdiagnosed years ago I would recommend trying the diet before any testing just to see what happens. Just my opinion.
Please email me this video
I had the same problems, years and years I was sick , they told me it was in my head . I’m training to become a functional doctor and realised they didn’t take certain factors into account
I do intermittent fasting
I gave up gluten to a huge degree but had cheat days of gluten packed treats . I’d get episodes of hell .
I also have a rare blood group
None of mine showed up in bloods . I can’t talk at times very tired
Rashes
Depression
Anxiety
But all of those will cause vitamin deficiency causing depression and anxiety because your body isn’t healthy enough to function properly.
My doctor always tells me it’s in my head
So I challenged my gp
And took my health into my own hands .
I took all my knowledge of 30 years of front line work with diseases and
Looked at my symptoms and did a gluten challenge and stopped fasting and ordered my own test and bingo it was positive.
Unfortunately G p’s don’t look at the bigger picture until that disease is at its peak .
I have now raynards because of all of this .
Pica, weird behaviours such irritability, anger explosions, hyperactivity, adhd, depression, muscle degeneration, androgen resistance, teeth enemal defects, anorexia ( afraid of eating ), compulsions and addictions, bipolar disorder 2.
Now since my celiac disease is seronegative I have been diagnosed with mthfr C667t mutation, insuline resistance, vitamin d deficiency, folate deficiency, metabolic syndrome, hyper homocysteine, subclinical hypothyroidism, heart dysfunction.
Now I am going to have an mri ( primitive reflexes compromised) with Babinski sign: I am pissed
Angel freedom how are u doing now?
You have to do exercise, stop eating sugar, dairy and gluten, take vitamin d, take iron one day and another day not, stop eating sugar, eat a lot of vegetables, take vitamin B, take your levothyroxine, check your heart and you are gonna be ok. It is just a lot of work. Eat healthy, do exercise like your cardio doctor tells you when you are have your heart in control, the you will see life clearer.
@@lesliemauserazpeitia5416 I am doing that already.
I am in a ketogenic diet since 2020.
Unfortuantely I have some weird cross contamination, most likely from some veggies, and lately I am more into a carnivore and fish diet.
In the veggie section I kept just broccoli, cauliflower, spirulina, cabbage.
I use just plain extra vergin olive oil served raw ( I am not frying any type of food).
@@angelfreedom911 have you tried Colin and inositol? iron and b vitamins, check your magnesium levels.
@@lesliemauserazpeitia5416 thanks fprnypur answer. I did my check up recently and iron is fine, calcium too, vitamin d also ( i currently take high dosage), b12 and folate also.
The ones that is still low is vitamin b2.
My ferritin levels are really high and I increased my fasting period.
As veggie I reuntroduced broccoli and cauliflower: the other I really cannot.
I’ve found help via a Chiropractic Neurologist.
I don’t think you “ become “ celiac. I figured out that I was a celiac all my life , just like diabetic type 1, had so many symptoms. Went to Drs for years for exhaustion, felt so tired it was hard to take a breath !! Only time I felt good was my early years up to 17 .. lived in the Caribbean so enjoyed fruit not unhealthy snacks. Went to England at 18 and that was where it all hit me. Of course England is known for its cakes and pastries. Gluten gluten gluten !
Thank you for sharing! Yes, celiac disease is always present, using become is a way to state when disease is recognized within the body.
Sorry I just saw this. Your video just popped up when I picked up my phone. . Must have been one of those God moments ! I’d forgotten I had talked to you before but after several years of falls , and more I was told that probably have Parkinson’s !This has turned out to be another horror show. I always thought that Parkinson’s was just about shaking. Oh, was I wrong so now type one diabetes, celiac disease, thyroid, osteoporosis and now Parkinson’s ! If only I I could have found all this out earlier in life, I’m 75 now and wonder why there are so many auto immune diseases out there. I also connected the dots back to Prolia shots I had been given when my bones were fracturing And wondering if that did something to my system to bring on the Parkinson’s. I pray that others will see this and hopefully figure it all out earlier in life.
I’m type 1 and I have so many of these symptoms. I’ve suffered for years of weird symptoms mostly mental and most doctors say it’s all in my head. I recently did some research and it sounds like testing for celiacs is something I should rule out.
Celiac disease and atherosclerosis ( lipid dysfunction) will lead to dementia.
that’s not very encouraging
@@susanedghill6597 not if you avoid the toxic obvious
miss universe harnaaz sandhu also suffering from Celiac disease
Yes, we also heard about this! So interesting.
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