NO MORE NECK BRACE!!! (After 4.5 years)
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- Опубліковано 16 тра 2023
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Rachel! This video is EXACTLY what I needed to hear. Thank you for making this video! Ive been exploring so many different problems with many doctors for 2.5+ years with sooo many dead ends. In recent months I had given up doctors, but your determination & success has reinspired me to try & find a great orthopedic doctor who supports PRP. Thank you Rachel! Please keep us updated!! God Bless you!
This is huge! I still need mine for being upright and walking etc. it’s such a tough journey and you did it!
Thank you!! I'm rooting for you, you will get there too!! ❤️️
Thank you!!! ❤️
This is great news! I’m so happy for you!😊
Glad to hear! Im glad things are on the up and up for you. I hope things keep getting better and enjoying life to its fullest. The smile on your face says a lot 😁
I'm so happy for you! This video gave me more strength to keep fighting! xo
This makes me smile! I am so happy for you! ❤
I have been loving these updates! I'm so proud of you for your hard work! I totally get trying to remember who you are from before all this. I also have PTSD from having symptoms and I just get that talking about those bad days just is so scary and uncomfortable. I am so excited for you to have another chance as you put it. I am praying for your continued healing! And also, on a personal note, your story and updates have been so incredibly helpful to my life. I use you as a mantra almost, like well she is doing it, you can keep trying. So just thought I'd put that in here because your bravery has been inspiring me.
I just had my prolotherapy today. I have been dealing with chronic cervical pain for 4 years, not nearly as bad as you have had it but I can relate. I had a disc disectomy that did not help, PRP is my last hope before trying fusion. I am really happy for you and hopeful for myself! I literally just found your blog today :). You are so lucky to have support from wonderful people too.
Please share ur updates. Im having severe neck pain with grinding popping and crunching sound. Im thinking to take prolotherapy but im really sacred. Please share how u feel after taking prolo
@@live12617 I don't think there's much to be scared of other than needles. Prolotherapy is natural and safe. I had significant improvement after the first session, but I've had to do a lot of physical therapy to improve my movement and stability in the muscles that support the neck, and to recover the natural curve. The atrophy from being in pain for so long extends to the legs and lower back, and I still have to correct my sleep posture to resolve this.
Congratulations Rachael!!!
God bless you Rachel. I am so happy to see your progress. Your strength and faith in the face of your challenges has been inspiring to me. Thank you so much for taking the time to share your life with the world.
What did you do other than the surgery? I have read that once the ligaments in the upper cervical spine stretch out, that they don't repair themsleves?
I'm not in as much pain as you were but every other symptom is present. The worst has been double vision, shortness of breath, and heart palpitations.
Unbelievable positivity from you gives me strength ❤️I’ve recently just come across cci and it makes so much sense now I always thought it was damaged ligaments in my cervical spine but didn’t fully understand the extent. I have had a hell of a lot of symptoms and pain. There was a really low time there where I couldn’t sit up for more than 15 minutes at a time for couple of months after really bad flare up.. been battling this for almost a year now tried physio chiropractic and had just caused flare ups and made things worse. Had a severe case of bobble head too and still find it hard to stay up for long periods at a time and I’m saying this to my family and they really wernt understanding things you nearly think your going mad.. feel I’m strong enough to tackle the prolotherapy now 💪 thanks for such positivity
Congratulations! So happy for you! On my own healing journey as well and I am loving the “Nature Heals” tee I got from your Etsy shop too! 😊
Hi Rachel . Thank you for sharing all the details . It’s very kind of you to keep posting and let us know . How would you do everything different if you had all the information you have . I am considering seeing dr Henderson soon in July
Congrats! That is so cool!!
Thank you very much for the positive message !!!!!!
Congratulations Rachael! It has been a very long road for you. This takes a terrible mental toll on people because there are so few options to help heal, as you know. I think your youth played a big role in your healing, yet it still took 4.5 years to get there. When you feel up to it I would like to hear a chat of your wild ride to healing. I have watched every video but to put it together in a less fragmented way would be helpful. I am at the hopeless stage right about now. Doctors are not too interested in a woman in her 60's. And to think in the midst of all this you found your husband! I think I read you got married sometime during treatment? He must be a gem off a husband! Patient and comforting for you to keep up the hope. Now you have so many years ahead of you and I am vert, very happy for you. Your neck look nice and strong!
❤Thank you, you give me strength and hope. Blessings!
That's great I'm so happy for you! 💖🙏 I don't even have to wear the brace all the time and it would still be amazing to not have to wear it at all. Must be great feeling to know that your neck is finally strong enough to not need it
You are such an inspiration thanks for sharing
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God bless you 🙏 and thank you for inspiring me to keep going in my healing journey.
We love you and your strength ❤❤❤❤
Congaculstion Rachel. You are very hopefull and have won. I am very happy for you. It is a very interesting neck braces. Can I buy it from you? Greetings from Jens
Hi Rachel. That's just awesome. I am really glad to hear that you have made such a huge improvement. May I ask you something if you do not mind? Sometimes I see you wearing the aspen vista collar and sometimes the aspen vista tx with the throatic extension. Do you have times you prefer one over the other? I would be super happy to hear from you. Take care :)
So so amazing!!
Hi Rachael. Thank you for all of the valuable information you’re providing! I’m just curious if there’s a particular brand/type of neck brace that you recommend?
Also, I’m wondering what the location of your primary pain is.. I’m currently having very bad “coat hanger”, neck pain/migraines, as well as excruciating pain in my arms and legs that migrates. I have been Dx with E-D among other things.
I had no pain prior to doing hyperbaric chamber therapy, and that changed literally overnight. I believe the pressure changes from the hyperbaric TXs triggered it, and then everything was further complicated after I had a diagnostic lumbar puncture and had a csf leak.. I hadn’t gotten the E-D Dx prior to those two things, otherwise I wouldn’t have done them.
Congrats! Do you have a best way to ask you questions? I’ve had 2x prolotherapy for cci but feeling like I’m losing ground, would love to talk to someone who’s been through it.
Thank you for your video. As usual your a super hero . And your experience have life changing effects. My 8 year old daughter had C1 laminectomy 7 years ago. Now they have detected C1-C2 instability etc. And recommend fusion. We want to try out al alternate theraphy before fusion. As life changes and might not be useful fully post fusion, esp at such young age of 8 year.
Can you share what your current diet and supplements are? I would love to know!
I have hEDS and CCI and needed to wear a neck brace and needed a OC Fusion
I’m so happy for you! Thank you Jesus for the wonderful healing your doing in her life
thank you so much scarlett!
@@HealingWithRachael your welcome!
I’m getting ready to start the DNRS program. I’ve been chronically ill for a long time. Are there any good online support groups that you’re aware of?
@@scarlettwinters5642 That's awesome! Yes, there are several good FB support groups :)
* Reclaim your life with DNRS (developed by Annie Hopper) facebook.com/groups/1475167669380796
* Neural Retraining Friends facebook.com/groups/1601483340076606
I believe DNRS also has a support group on their website, but I haven't checked that one out yet!
Congratulations! I wish I have the hope and the resources to feel better. Sometimes I wish my life will finish soon. I believe in God but it feels like he forgot me. I am happy for you. Blessings
I had the same surgery and same neurosurgeon as you. Plus he also fused my c4/5/6 anterior. I gotta wear my hard collar all night. My c3 is so unstable.
I have ACM type 1 without CCI and syringomelia BUT even with decompression surgery 3 years ago and good few months (all symptoms except memory and concentration issues) after it health status plumeted to worse then before the surgery. September last year I went to Institut Chiari & Siringomielia & Escoliosis of Barcelona (icseb) and I got diagnosis Filum disease where Filum is pulling spinal cord down and provides numerous health issues and they say it is the source problem for ACM. Now I gathered money for the surgery in september this year and hopefully it will resolve the problems. Beside Filum Disease here is also TCS or Tethered Cord Syndrome that it is little different. ICSEB has their own website and UA-cam channell with a ton of informations. I would post the link to the coresponding UA-cam video here but I do not know if I am allowed here.
Rachael I hope you are doing well and wishing same to everyone else strugling with whatever health issues you have 👍.
Hello rachel juat wondering when u had the problem with your neck did it cause any problems with the muscles aroind your neck any weakness ?
I have had surgery to remove the tumor for 1 year and have a device installed from the skull to c6. But I only used a neck brace for 6 months. I just saw your video. And now I'm starting to worry why I was only advised by the doctor to wear a neck brace for only 4 months.
where did you get your prolotherapy done?
Also who did your craniocervical fusion? I might need one but it's hard to find a neurosurgeon that does it.
Your Neck Range of motion seems amazing these last few videos ... I've been told i need Occiput to C5 fusion, is what you had Occiput to C2? i was told rotation was impossible if the fusion starts from the occiput.
I've definitely been moving a lot more. I actually can't rotate directly right/left almost at all. When I'm moving its mostly diagonal movement if that makes sense.
I know you rarely ever answer comments on here but I was curious if you knew of a good pillow for CCI. No one ever talks about that. Not sure what to buy because I’m miserable when I sleep on my pillow
I’m a side sleeper and I use a very thin down pillow (I think from costco). I’m very particular about pillows and can’t sleep with a big standard sized pillow. If you’re a back sleeper it’s actually best to not use a pillow or use a small neck roll for neck support. That’s my goal one day, I’ll get there 😅
@@HealingWithRachael awesome! Thanks for answering. I am a side and back sleeper so it’s hard to find a happy medium lol. Appreciate the answer 😊
Hello so happy for u . Im also suffering from severe neck pain with grinding popping and crunching sound. The pain is severe im thinking to take prolotherapy. Is this beneficial are there any side effects and did u do chiropractice . I went to a chiro but my pain increased plz reply 🙏 . Stay healthy and happy
3 weeks ago I got prp in my c1 and c2 and c4-c5 ligament my doctor said they used to do prolotherapy and said it wasn’t affective and now just does prp for instability
Hi Rachel! Thank you so much for your regular updates!
I'd like to ask you a serious question and would love an honest answer because it effect my health and many others.
I'm seeing Dr. Hauser in August for serious cervical instability that causes me horrific dizzy spells for the last five years as well as a lot of pain.
I did have anterior cervical dissection and fusion surgery at the C5 and C6 levels which definitely helped at first but now I wish I never had it done for various reasons.
My main question to you is do you feel it is worth going to see Dr. Hauser because the reviews are so mixed everywhere you read that I'm concerned that not only will he hurt me, but I'll end up spending $12,000 for nothing.
Please let us all know your honest take.
Thank you so much and i hope you continue to heal up more and more each day!
Thank you for your comment! I'm so sorry to hear of what you've been through. Yes, it was 100% worth it for me going to Caring Medical. Honestly, most of the negative reviews I found were from patients who never even had treatments, but were upset about the cost. When I was there, I encountered dozens of people who's lives have been completely changed for the better. I don't share it as the most important part of my healing, but something that really helped to accelerate it. I made videos of my experience the entire time I was there if that's any help to you! Megan Klee also has a lot of great videos about her experience. Truly wishing you all the best!
@@HealingWithRachael Thank you so much for your response, Rachael! Yes, I saw many of your stories about caring medical, but being some time has passed, I wanted to see if you still felt that it was a very important part of your healing journey.
I am ecstatic to see how far you've come and that you're slowly regaining your life as well.
I do believe that Dr. Hauser will be the solution I'm looking for.
I had prolozone and neural therapy twice, about 2 months ago with no success at a location here in NYC where I live and I had PRP with prolozone and neural therapy done on April 16thv and procedure was very painful even with novacaine and there's no way I'm doing nitrous gas.
After my prp treatment, I was insanely dizzy for about 12 days and the neck pain was through the roof. I had about 40 injections in my neck and a bunch in my shoulders and a few in my thoracic spine.
My biggest fear is because they weren't using guided technology, that perhaps they hit the vagus nerve or who knows what other structure but I assumed that the dizziness is normal due to the micro inflammation from the injections.
So far over the phone with caring medical it seems like they are going to want to do prolotherapy with possibly PRP together.
I was also vegan for many years but I am now carnivore leaning and I'm definitely feeling better just from that alone over the last few months.
If you had to rank in order from greatest to least, what do you feel helped you most aside from support from your family and belief in God?
Thank you again for your reply and any additional info would be great!
Best!
What surgeries did you have
thats great! big step. i go to caring medical as well for treatment. im having my ankle done. once my treatment is done (not sure how many rounds ill need. going in for round 6 soon and they dont even know how many ill need yet) ive had a brace on my ankle for about a decade and when im done i wont need it anymore. i cant imagine how itll feel to be without it.
that's awesome!! i'm so excited for you to not need your ankle brace :)
@@HealingWithRachael im excited too. and to even be able to walk in general. havent for almost 9months. dr hauser has given me the ok to start doing some steps with support. it truly is amazing what they do. i almost lost my foot and with them i was able to keep it and will be walking again soon.
Have you found exercising/ climbing now that you are getting stronger is harder with your fusion?
Yes it definitely is harder because of the fusion! Lack of movement affects much more than you’d expect. But it’s still possible :)
Rachael may I ask, if you don’t consider that the surgery was the cause to your healing , what would you say are the most significant attributes to your recovery? Is it the PRP and the DNRS? Or something else
Brain retraining / nervous system regulation (including DNRS) and an animal based diet have been the most significant factors of my recovery. Prolotherapy was certainly something that helped accelerate my healing but I 100% believe I could have recovered without it!
Yay !!!!
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Curious if you had CCI induced sleep apnea? Wondering if the neck brace helps?
My head gets to where it feels super heavy, like my neck can't hold the weight, but I haven't gotten a neck brace, yet.
I had the same issue with heavy head. Have you tried exercises for neck muscles straightening? Cci has a lot to do with weak neck muscles too and reduced neck curve. Working those muscles will help .Wearing a brace will weaken those muscles even more, from what I was told by my neurosurgeon so don't reccomend long term use of a brace
@@mya92c17 Thanks for the suggestions. No, I haven't really found any neck exercises I thought were safe. No worries. I don't even have a neck brace, although I have often wondered if sleeping in one would help some of my symptoms.
@@AngelaGWillis as long as you don't have any bad herniations or trauma you can do most of neck exercises as long as you don't have pain and for at least 2.3 months for results
Why do you think you don't need it anymore? I know you did prolotherapy and also had the fusion, but were you making steady gains doing physical therapy?
I have shared a lot about this in previous videos! A combination of an animal-based diet (mostly carnivore), nervous system regulation / brain retraining, and prolotherapy and curve correction are what helped to heal my neck instability. My fusion surgery did not contribute to my recovery, in fact it has made it more difficult because of the surgery.
@@HealingWithRachael If your CCI fusion surgery was that much of a detriment then why did you even have it done? I have a hard time believing it didn’t help you whatsoever…..
@@LostNspace94 Your question doesn't really make sense to me. Nobody goes into a surgery thinking it won't help them. I was told it was my only option and didn't know everything I learned years after. Not every surgery helps people. A fusion surgery does not fix the root cause of neck instability. It made my airway worse, jaw worse, and lower instability worse. It's a very unnatural position for the skull/spine to be in and its not healthy to have limited motion in such a critical area of the cervical spine. No surgery comes without a drawback. I wish everyday I could go back and not have it. I was at my sickest 1-2 years after, and it has unfortunately made my recovery more complicated. Please be careful before you make assumptions! All the best to you.
If you do feel up to talking more about your surgery sometime, I'd really appreciate it. I am heading down that road and would love to hear why you feel like it was worse for your overall recovery. Is it mostly because of the limited range of motion? Are you aware of the surgery being helpful for some people? I'm aware of prolotherapy but that seems to have just as many negative outcomes as the surgery does. It's a scary decision to make.
From what I understand, spinal fusion is hardly ever a good idea bc you develop instability above or below the fusion bc of the extra stress that's put on those joints and you end up needing prolotherapy anyway. I feel your pain I'm scared too I'm going to Caring Medical but haven't started my prolo yet... but I know I need it. My upper cervical chiropractor knows Dr Hauser personally and she wants me to do it. She highly recommends him and says she always recommends prolotherapy before surgery esp a fusion. I know some have said the prolo didn't help them and some people may have gotten worse but there are so many success stories and what if we do it and we do heal and do not need surgery?! 😃🙏🙏 I know it's hard believe me I struggle with this everyday if I'm making the right decision but we have to try to have hope and think positive
Did you chiropractor mention the PICL procedure done in Colorado at all? Can you stabilize CO-C2 with prolotherapy?
@@MB-nd7fe No she just recommended Dr Hauser and Caring Medical says the picl procedure is usually not needed if the neck is treated comprehensively like they do. It's more invasive and more expensive. It may be something to consider if they are able to see that someone has severe instability or tears in their alar ligament but from my understanding usually not necessary to obtain c0 - c2 stability and relief of symptoms
Good to know! Thanks for the information!
@@MB-nd7fe No problem 💚💚 I watch a lot of Hauser's videos and I believe one of the graphs on the hr long vid of him and his assistant talking about prolotherapy showed that H3 prolo to cervical spine is about 67% effective n that's the whole neck stabilized including c0 thru c2. My problem is mostly c1, c2 and but I had some instability mid cervical too
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I’m so happy for you. You are such an inspiration ❤