Yr 7:RV life BIG UPDATE Endometrial Carcinoma?! Women need to know!
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- Опубліковано 22 сер 2024
- The Roads of Faith in life are full of surprises. Some good, some troubling. This video is intended for adult women (and their spouses, boyfriends, Dads, etc) to learn of my experience, the symptoms, the regrets, things we would have done differently if we had known we could, and the preventative things you can do to decrease your chances of getting Endometrial Carcinoma...a cancer that affects about 66,200 women each year.
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ABOUT US: Gary is a retired pastor who occasionally "un-retires" to help fill a church vacancy as an Interim Pastor. I am Orlene, his wife and helpmate and Video Creator. We have family all over the USA and into British Columbia, Canada. In August of 2017, we went out in faith and bought a used 1998 Dodge Ram 2500 pick up and a used 2000 Jayco Eagle 5th wheel we named "Faith" and began our adventure! We live FULL -TIME in our tiny house on wheels and LOVE it!! Come along and experience our travels through this beautiful country, meet wonderful people, learn how to care for your RV, tips and hacks to live comfortably in a tiny house, improvements we're making to our RV HOME, how to stay healthy on the road, enjoy retirement and the amazing stories of how our faith has helped us through many of life's situations!!
This is invaluable information; I have never heard of a more comprehensive explanation covering the understanding of endometrial cancer. Thank you for your time and willingness to be vulnerable for the well-being of others. You will remain in my thoughts and prayers as you lean on the Lord for wisdom and peace. Blessings to you both.
Thank you for this incredible message. It made me cry with relief and joy, as my goal was to help others through it. And thank you especially for your prayers and lifting us up spiritually, from one Christian to another. It is much appreciated! 💕
@@RoadsofFaith Hi, in January 23 I was diagnosed with Grade 2 uterine Cancer and I had a total hysterectomy with a Bso then I had radiotherapy for 6 weeks for 5 days a week. In October of the same year i had a checkup. Then in march of this year I was told that I was cured and that I had a mutation that starts with a P that played in my favour. I now want to help others with education and support 😊😊😊..
@user-fb8uw1ui5x I am glad you came through it all ok! I won't know for sure if it is cancer or what kind until the pathology report comes back. Had my surgery on Friday, May 24. So far, other than moving much slower than normal, I am doing well. A CT scan was done 2 days prior to my surgery and it appeared everything was contained to the inside the utereus. We should have some answers in early June.
God bless! 💕
Powerful message! Thank you for sharing! Lots of prayers sent your way🙏🙏💕
Hoping for more answers this week! And I hope this video helps a lot of women! 💕
Thanks for sharing, Orlene and Gary. We pray for positive outcomes! On a lighter note, I hope your ring finger fills out soon, Orlene. ❤
Thank you!! The prayers are much appreciated!! And hopefully, the ring finger doesn't fill out to fit into the blue silicone "ring" I showed in the beginning of the video! 🤪 MD Anderson wants to use my case for research for someone who is a "low risk" for this type of cancer, and maybe learn how I got it...IF I actually have it. It will be 3 more weeks before we know the answer to that question. Argh
Praying for you and me
Thank you!! Im 49 going through medical nightmare similar.... Not to compare but to say thank you I needed this so very much!! ❤️
That brought tears to my eyes!
Women have been quiet about these things for too long...they kept their experiences to themselves. Maybe they felt embarrassed. Maybe they just wanted everything kept private. There are a lot of emotions surrounding a hysterectomy and the medical world's treatments for women's health in general. We feel intimidated to speak up, instead of following our gut instinct that there's a better way.
I am putting together another video on the emotions we go through, when faced with things like this. I hope that is helpful for you too. It's helping me just putting it all together!
God be with you and give you His peace! 💕🙏
I have seen a lot of videos from doctors here on UA-cam that explain how to starve cancer.I wish you the best God bless you
Yes...us too! We're already on an anti-cancer diet, and have been for years, but there's always more we can do. Currently using a powder into drink that alkalizes your body's ph and detoxes too. Also looking at a Keto diet, although, neither of us needs to lose weight, and at this time, I would be concerned that would happen. I need to build up more muscle instead. There are many ancient remedies out there used for decades or even centuries that are very effective against cancer. We keep looking for more ways to keep cancer away. Thanks for watching and leaving us a comment! Blessings! 💕
My wife started this battle and journey last August. She had a hysterectomy last August. The diagnosis was grade 1A carcinoma with everything contained. At the 3 month mark of her recovery, she started having cramping and mild bleeding which was chalked up to the healing process and vaginal atrophy. When she went in for 6 month checkup the doctor decided they needed to do a CT scan, which showed a tumor in front of the bladder. She is undergoing chemo every 3 weeks with three agents. After one round the symptoms improved and after 2 rounds they have disappeared. After the third round they did a CT scan and the tumor has shrunk by 90%. 4 rounds to go, and they think it will be gone. Not a fun experience for us but God is good and will see us thru. Prayers for you and your husband. It is difficult to watch your wife deal with this.
Thank you for sharing your story! I'm curious...did they suggest any radiation after the hysterectomy? I was Stage 1B, and they took utereus with tumor contained. The fallopian tubes, ovaries, cervix and 6 Sentinel lymph nodes that were also removed were all cancer free. They want me to have 5 low dose treatments of targeted radiation.
I am so sorry they didn't do a scan or something when she started having symptoms at the 3 month mark, but glad the tumor is shrinking with treatments! Our prayers are with you that she will fully recover and be cancer free!!
Gary wants you to know he greatly appreciates your understanding of his viewpoint. I know he prays a lot for me...and we have many friends and family praying for both of us. Such comfort those blessings give us!
Please keep in touch and let us know how things go. I will be posting a new video update soon. God bless!! 💕🙏
@@RoadsofFaith Glenda had a complete hysterectomy, just as you did. I asked the doctor when she went over the treatments for the tumor, if in retrospect should radiation or chem should have been offered for a 1A diagnosis. The bottom line is the insurance would not have covered it. I just watched your latest video and grade 1A has 1 % reoccurrence rate, and yet here we are. And the reoccurrence did originate off the vaginal cuff. To be fair to the doctors we lost 3 to 4 weeks in January because of Covid. We made it thru the height of Covid and catch it January. You have a hard call to make, but I pray you don't have what we are going thru. Chem is as bad as the disease. But it is working. And with God's help we will make it. I asked Glenda if she would have taken the option of having further treatment, would she have done it. And the answer was yes. All it takes is one bad cell to escape. You are in our prayers for your decision. I am driving her crazy with my constant how do you feel. I am sure Gary is the same way with you!
@mikemitchem4846 I have been praying for God to guide me and help me come to a decision. Stories like Glenda's is valauable to me! Thank you!!!!! 💝🙏
I know there are risks with and without radiation, and the struggle has been which risks are worse. I did everything to keep from getting cancer in the 1st place, and yet I got it anyway. I believe stress and heartache contribute to the majority of diseases. And controlling and managing those things are not easy. But that's just my theory. So will I get it back if I add even more healthy foods and make additional lifestyle changes? Maybe. Maybe not. Will radiation help those chances more? I don't know. Is the combination of doing BOTH the answer? That would be a wise plan, right?! God determined the number of my days before any of them came to be. No matter what I do or don't do, I will not live one more day than He planned for me. Which decision will give me the most peace of mind? I know that if I ask for His protection, He will give to me what is best for me and will carry out His purpose and plan for me. I need to trust in Him. That's not always easy, is it!! I sent the Radiologist Oncologist a message yesterday to explain exactly what the treatment entails. That will help bring more light to the decision.
I have heard great things about Essiac Tea used with chemo or in place of other treatments is very good. I plan to look into that. I've also recently learned of a company called Bonafide and one of their products called Reveree. I will talk more about these new discoveries in future videos as I learn more about them. But they are something for you and Glenda to look into in the meantime and hope they are helpful to her recovery. God's blessings to you both!!! I appreciate your information and sharing your story so much!! Prayers and Hugs to you both!! 🙏🙏💕
@@RoadsofFaith We will check out the products you mention . Like you we have tried to eat healthy and do the right things. But a lot of has to do with genetics. Like you Glenda hit very few of the indicators, except for genetics she had an aunt that had endometrial cancer. Thanks for your videos. We are all in this together! Prayers for you and Gary
OMG! Orlene and Gary thank you for sharing your journey. Praying for you - seeing you whole and healthy!! Hugs, Pam
Thanks Pam! Prayers and friendship are so appreciated! 🙏💕
Hugs and prayers for you and Gary. Thanks for posting. I have no doubt that all will be well. Just give yourself time to fully heal. Love to you both, Lorna Bartlett
Thank you Lorna!! That means a lot to us! 💗 I was going to share "the news" with you, but glad you saw the video. We think of you two often! Hope you are both doing well! Love to you too!! 💕
It's hard to find comfort in words to say how we care about you 2. But I know in my heart prayer is always the answer. We love You Both
Oh Mark, your message came across very well how much you two care for us, and we appreciate you and your prayers so much!!!! Had hoped to see you on our way back this Spring...but guess we'll have to wait a little longer. Thank you for your friendship!!! Love you too!! 💕
Orlene and Gary, you are both amazing and I am praying for all three of the things you wish to happen. I have had irregular cells, had a biopsy and eventually was cleared for cancer. I hope you are blessed with the same outcome. I also had a fibroid that was a pound and a half that cut off my bladder, but luckily after fighting for my health and several trips to ER where I was told there was nothing that they could find wrong with me, I had surgery and after a few months recovered. The processes are very frustrating, and I hope the next phases are smooth and relieve you of all worries. Sending love and many prayers.💞🙏 I really do understand how this halts life for a bit and changes your course, but I have faith you will sail through. Just so you know, we are not the only ones to go through frustrations with appointments, my Mom went to a gynecologist and the Doctor lost a tool inside her! 🥺 A very uncomfortable experience. Thank you for sharing the warning signs and your experience ♥
Wow!! You've been through quite the experiences yourself!! Thank you for the prayers and for giving me hope! We know God is in control, and He knows ALL, and is way ahead of us on this journey. Whatever lies ahead, He will carry us through! Blessings to you! 💕🙏
Praying for you and a rapid recovery. Waiting is so hard, one day at a time.
Thank you Louise!! Yes. Learning patience is hard! We want everything NOW, right?! But all in God's timing as He knows best! 🙏💕
Thankyou for doing this and reminding us ladies what to look out for and to keep our health in check!! I like to be pro active in preventive activities and it’s super frustrating when my own family ( siblings) don’t want to listen! I love them so much but they keep putting checkups off and telling me they are too busy! I’d rather have scans, blood work, procedures done when due to be done than say should have, could have , would have when it’s too late!
Thank you for letting us know this video was helpful! In my case, even regular physicals wouldn't have shown this cancer, however, I would've been able to get things going faster if I could've gotten in with a Dr right away when I started having the symptoms. I can relate to the frustration of watching loved ones who continue to eat poorly, not exercise, and who smoke cigarettes. Sometimes they learn the hard way. And your love will still be there for them when they really need it. They will appreciate your words of wisdom and encouragement even more. In the meantime, we pray for them that they will realize how important it is to make better health choices.
We have a family member who went through this decades ago. She did have to go on Megace after surgery, and has been on it for years. Praying for you to go through this well.
Thank you! It is always helpful and encouraging to hear stories like this! And your prayers are much appreciated! 🙏💕
Same thing happened to me had a total hysterectomy that was 11 yrs ago no problems since.
Thank you! That's encouraging! God bless!
I had post menapausel bleeding 8/2023 after 20 yrs. Vaginal ultrasound , benign, D&C in 9/2023. All samples benign. February 2024 laparoscopic hysterectomy stopped when swollen ovaries & fallopian tubes, 10 cm mass found laying over colon NOT invaded colon. 15 lymph nodes taken & benign. Horrible experience with first male obgyn oncologist. He spoke poorly of my Obgyn, he told me I couldn’t go to hospital I wanted, couldn’t spend the night after surgery. IF my regular Obgyn couldn’t do surgery (rectocele repair day he did surgery, I’d need 2 surgeries). He recommended an Obgyn that he could convince her to do surgery same day HE was available. I looked him in his eyes & asked “is she your wife?” They have different last names. I called my Obgyn & told her what he said about her, I didn’t want him as my surgeon, & I wanted to make a complaint against him. Administration for hospital said I could still have surgery with a different oncologist at same hospital. This arrogant male oncologist called my obgyn stating that they don’t “swap” patients!!!! Meaning I had to find new Obgyn Oncologist at different hospital!!! By the grace of God, I was lead to The Best Obgyn Oncologist at teaching hospital! She asked many questions, had ekg, blood tests run, vaginal tests & results within 2 hours! Was scheduled for complete robotic hysterectomy. I’m on my 3rd chemotherapy out of 6. The male oncologist wife didn’t have rights at the hospital I wanted surgery completed at. I feel God blessed me with my regular obgyn who fought for me & to find an obgyn oncologist.
Oh my goodness!!! I'm so sorry you went through all that!!! I have heard other stories, good and bad, about experiences with their doctors. Wow! Our medical world isn't very comforting, is it!?
Grateful when we find someone who listens and knows what to do to help!!!
I am confused about why you are having chemo if the samples and mass were benign. I may misunderstood... did they find cancer? All your experiences are fairly recent...How are you doing now?
Found 10 cm mass laying across my colon (non invasive) took 15 lymph nodes (benign). High carcinoma, high grade fast growing cancer. Genetic testing shows I have BRCA 2 gene mutation. Runs in my family. 4 of my my moms 6 siblings died from cancer. Chemotherapy recommended 6 rounds every 3 weeks. I had 3rd chemotherapy a week ago Tuesday. Last chemo scheduled 7/30/24. Thank you for asking. Out of breath,shaky limbs returned to summer Secretary position yesterday. It helps to keep busy & try not to focus on symptoms while earning a living. God bless you & your journey! Hugs! 🤗
@jennyd6185 will be keeping you close in prayer!! Have you looked into natural methods that can enhance and protect during chemo? I have to carefully mention things I know of because I don't want to worry about getting in trouble. This is not a link, but put it into a search as one word: Chris beat cancer . org
Some say the C word comes from a fungus...others say it's from too much sugar...others turn to methods that increase oxygen that C can't survive in that environment. Others are turning to century old teas...check out genuine essiac tea...it can be used along with chemo. Maybe you already know of these things. Pray for help!
It isn't by coincidence that we met a couple in the rv park from another state, who came to Houston because one of the top naturopaths in the nation is here. Now I have a Plan B if needed.
I will keep you in my prayers!! God bless you with peace. 🙏💕
That really is unfortunate that you had such a difficult time. My gynecologist got me in quickly because of the spotting. Long story short - he did a test indicating that the endometrial lining number was high. Next a d and c then hysterectomy. Five easy radiation appts. Good to go…
Prayers for a speedy recovery. You will do well with the hysterectomy…
Always good to hear of the better experiences! Thank you for sharing! Glad you're ok!!! 💕
Im. Lynette from the uk i send my prayers to. You 🙏🙏🙏🙏🙏my thoughts are with you hope you get better soon
Thank you!! Much appreciated! It seems we all need prayers for one thing or another. God bless you! 💕🙏
God showed me your channel today 5/24. Praying for you.
Thank you!! Our God is an awesome God!! Had my surgery yesterday. Came home same day! I will post an update as soon as I'm able. So far, pain is minimal today, I slept a lot when we got home and am sleepy now. If you are on Facebook, I will be posting an update there sometime today. If not, know that I appreciate the prayers! Pathology report will take 10-14 days. Have a blessed day! 💕
I had endometrial carcinoma caught earlier because i just happened to mention that i had spotting. My spotting was actually vaginal atrophy so im really glad they didnt brush it off. My doctor was surprised it was cancer.
My uterus was full of cancer...i dont think its a solid tumor. It had not gotten into the uterine wall but it was lymphovascular invasion....which meant that it was in the blood vessels. I had cancerous blood clots in uterine blood vessels. I had to fight to get follow up scans. They only stage the "tumor".
Uterine biopsies are very painful.
Thank you for sharing this. Did you have a hysterectomy and did you need any further treatments afterwards? You are obviously a survivor or you wouldn't have written this... are you ok now? God's blessings to you!! 💕
@RoadsofFaith I had a full hysterectomy. No further treatments. I had insisted on "vaginal smears" instead of pap smears and the 3rd one came back with cells from my uterus. My uterus was full of cancer. It just went away. Not real reassuring.
Almost exactly 2 years to the day of uterus, I was diagnosed with thyroid cancer, incidentally found on a CT scan that I insisted be done. It was the better one of thyroid cancers but because of the location was in lymph nodes. Just had part of thyroid removed. There is some hormonal connection between endo, thyroid, breast. I don't think it's estrogen but I've yet to get an answer. Just be more vigilant.
I'm 3.5 years out from hysterectomy, which wasn't bad. I'd like to know if your hysterectomy is laproscopic or not. Mine was not, thru vagina. I have been told by other doctors that they should only be done the old way because of cancer cell "spillage" that can happen. When I asked my onc how those endometrial cells got on that vaginal swab, his reply was "during the surgery". I'm curious how MDA would have done it.
Not intending to alarm you. Just be more viligant. I somewhat think I should have done preventative treatment because it gets to the lung, liver, etc... through the blood.
Good Luck. Everything will be ok. ❤️
@lmk0799 I will be having my surgery laparoscopically. I have concerns about that too.
After I put this video up, I ran across another video from a gynocologist who talks about a new study that just came out April 9, 2024. The study was done on 10 MILLION women! Effects of hormone therapy for women 65 and over. If you have estrogen, you also need progestin to balance. I mentioned that in my video, but what I also cautioned was that the 2 together may cause breast cancer. According to this newest study, that is not true! It can actually decrease chances of getting many cancers that affect women! So then I searched and found out that a woman's ovaries can produce estrogen for up to 20 years post menopause. That MAY mean that my body was getting only estrogen for the past 20 years and what may have caused my "probable" cancer. (Nothing has been proven yet. Will not know for sure if the mass is cancerous or not until after the surgery and pathology report). I am such a low risk for this type of cancer that I will be taking part in a research study for low risk at MD A. I wonder if the estrogen from ovaries is the connection.
I am sorry for all you have been through! There are also studies about iodine deficiency and thyroid and other cancers.
Too many studies suppressed or not out to the masses of people for the sake of profit. It's infuriating!
Yes! We must be vigilant in our own health care! Totally agree!
I pray you find answers and restore your health! The answers are out there, we just have to keep searching. I am looking into the Keto and Carnivore diets. Many many good things happening for people who are on them. I know one friend who has been doing Keto to lose weight for upcoming surgery. He can't wait to go back to his old diet after the surgery. 🤦♀️☹️
Went thru the change never did medication
and did not need it.
That was me too. There is a new study that just came out April 9, 2024 on 10 million women 65 yrs old and benefits of hormone replacement that was amazing to learn! I saw it after I posted this video. Huge study! Reduction for most of women's cancers!! Could change a lot moving forward.
💜 & 🙏🏻. I had missed your videos and wondered if something was up 💜🙏🏻
It's nice to know we were missed. 🥰 Thank you for the love and prayers!! Much appreciated!
Love from the Piney Ridge Gang and Faith Church Tyler
Thank you!!! 🥰
Praying Praying Praying 🙏
Thank you, thank you, thank you!! Your prayers are much appreciated!! 💕🙏
Praying for you
Thank you!!! We had hoped our travels would bring us back there to see everyone again... maybe in the Fall? 💕🙏
I wish I had a way to reach out to you in a different way, but see no way for a direct message here. I gave up on FaceBook years ago. Just know from a DMLC alum, that God will grant you the strength you need no matter what path He leads you down. You are loved. Never apologize for sharing (or the length of your sharing). Those who follow you are here for you. May God, the Great Physician, guard your way. May He Bless you and keep you. MAY his Light shine alone you. MAY He grant you His Grace and healing. Stay strong. He is with you and our prayers are strong for you before Him. You are loved.
Thank you!!! This message means so very much to both of us!!! God never ceases to amaze us...the people we have met through our travels and our channel is mind-boggling!!! People who have been such a blessing to us, like you through this heart-warming message.
Blessings to you as well!!
We do have an email address in the description under the video, but I'm glad you put your message here because it will surely help someone else who reads it besides us. 💕🙏
you've spent your life loving God..... Time to trust in God's care and love. Find peace through this... God will be close... I know...
Thank you! We know God knows what lies ahead for us and will carry us through. Our sinful selves get thrown off that knowledge at times, and He brings us back to Himself and reminds us....He's got this!! ✝️🙏💕
❤❤❤
Root canal hey...you don't realise what you have done to your health...ask the dentist what poisonous chemicals he just put into your mouth...so many with breast cancer had a root canal. I took everything you said seriously until you disclosed that. Tc
I don't claim to know everything, there are risks with many things.
Sugar is a beast that feeds cancer. I added a detox and alkaline green powder drink while doing the dental work and up until this week when I had to stop all my supplements and vitamins for surgery this weekend. Not happy about that...feels like I'm really vulnerable now. So lots of prayers are appreciated. Doing everything through food and sunshine to try and keep up what I'm not allowed to take. I question a lot with Western Medicine. Thanks for the info. Had a CT scan yesterday...no results back yet. Praying for the best. 🙏💕
@RoadsofFaith whilst you have those dead and infected teeth in your head...no amount of detox will do anything...look upnthe chemicals the chemist used