Thanks. Wondered when the stem cell trial by Roger Barker in Cambridge wasn’t mentioned. I’m big into exercise and know different exercise has different results for me. HIT and boxing increase energy, alertness and reduce tremor. Dancing and Tai Chi have the biggest impact on brain plasticity. Running, walking and cycling just make me feel relaxed and often after all tension is gone and dystonia gone. Also I know that major research programmes are not including many people like me (a fit menopausal woman), so many therapies that could work do me may have already been dismissed.
My wife has vicious Parkinson’s break downs. It’s getting unbearable. I wish there was a Parkinson’s emergency line I could contact and get some help when she goes nuts. I’m deaf and my speech is destroyed from medical errors. So I’m really screwed when she flips out. Usually at least once a week. A Parkinson’s 911 - I would pay for this service. I live in San Diego
We're sorry to hear you and your wife are facing this challenge. Your idea is a good one: on call support would be extraordinarily useful. Do you participate in our care partner meetup? You might find value in doing so. There are live captions available. davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/ Also, consider reaching out to us at blog@dpf.org if you have any questions we might help with.
We look forward to seeing results from larger clinical trials researching photobiomodulation in the future. At present, efficacy data is not conclusive.
Focused Ultrasound is an exciting treatment possibility for some people. While it is non-invasive, it is also not reversible, which is a factor to consider. Here is a blog post we produced about focused ultrasound in 2022: davisphinneyfoundation.org/focused-ultrasound-therapy/
Dr Mathur Idk how you do it I’ve only had PD since 2012… I’m not coping well, esp with my husband now being my care giver. Can you recommend anything ? A PD couples / chronic illness therapist? Thnk u in advance
Disappointing that after 50 years, along with billions of dollars, and C/L is still the “Gold Standard.” 90% of the “Parkinson’s Pipeline” is a sham with the only intent is to obtain paychecks by way of grants and donations. If one examines the reporting of some campaniles, financials are clearly of more importance than candidate product performance.
Our collective knowledge about Parkinson's changes almost daily, and there are many exciting developments, it's true! At present, though, there remains no proven way to alter the progression of the degenerative process of Parkinson's. That said, Everyone's path is different, and people living with Parkinson's, their families, and their care teams continually find new ways to adapt to the changes they face because of Parkinson's.
Thank you Dr Mathur for translating these technical developmets between the researcher and the community!
😊😊😊😊
It is exciting how much more optimistic this conversation is c/t 3 years ago.
Useful information. Okun is an able communicator.
Great webinar as always- useful information 👍
I love these updates
Great video. Too bad other people don't have the same Outlook as he does. Very honest. Larry Clemens
Thank you!
Thanks. Wondered when the stem cell trial by Roger Barker in Cambridge wasn’t mentioned.
I’m big into exercise and know different exercise has different results for me. HIT and boxing increase energy, alertness and reduce tremor. Dancing and Tai Chi have the biggest impact on brain plasticity. Running, walking and cycling just make me feel relaxed and often after all tension is gone and dystonia gone.
Also I know that major research programmes are not including many people like me (a fit menopausal woman), so many therapies that could work do me may have already been dismissed.
Me too!
My wife has vicious Parkinson’s break downs. It’s getting unbearable.
I wish there was a Parkinson’s emergency line I could contact and get some help when she goes nuts.
I’m deaf and my speech is destroyed from medical errors.
So I’m really screwed when she flips out. Usually at least once a week. A Parkinson’s 911 - I would pay for this service. I live in San Diego
We're sorry to hear you and your wife are facing this challenge. Your idea is a good one: on call support would be extraordinarily useful.
Do you participate in our care partner meetup? You might find value in doing so. There are live captions available. davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/
Also, consider reaching out to us at blog@dpf.org if you have any questions we might help with.
Call the Parkinson’s Association of San Diego to inquire if they have any resources to help you and your wife.
Did you include Red Light Therapy or Photobiomodulation for the treatment of Parkinson's?
We look forward to seeing results from larger clinical trials researching photobiomodulation in the future. At present, efficacy data is not conclusive.
What about HIFU, I am currently Spain for an evaluation of my condition for HIFU. It seems that it is formidable nonenvasive procedure.
Focused Ultrasound is an exciting treatment possibility for some people. While it is non-invasive, it is also not reversible, which is a factor to consider. Here is a blog post we produced about focused ultrasound in 2022: davisphinneyfoundation.org/focused-ultrasound-therapy/
Dr Mathur
Idk how you do it
I’ve only had PD since 2012… I’m not coping well, esp with my husband now being my care giver.
Can you recommend anything ?
A PD couples / chronic illness therapist?
Thnk u in advance
Please help me im 31 years old parkinson's disease
Please send us an email at blog@dpf.org if we can help with any particular questions you have.
Disappointing that after 50 years, along with billions of dollars, and C/L is still the “Gold Standard.” 90% of the “Parkinson’s Pipeline” is a sham with the only intent is to obtain paychecks by way of grants and donations. If one examines the reporting of some campaniles, financials are clearly of more importance than candidate product performance.
Agree
Agree
Totally agree. I think researcher are looking in the wrong places and playing it too safe so they can get funding.
:)
Great conversation. Can we say that not all "PD" is "progressive". It sounds like ALOT of what we know from old studies needs to be reexamined.
Our collective knowledge about Parkinson's changes almost daily, and there are many exciting developments, it's true!
At present, though, there remains no proven way to alter the progression of the degenerative process of Parkinson's. That said, Everyone's path is different, and people living with Parkinson's, their families, and their care teams continually find new ways to adapt to the changes they face because of Parkinson's.
P
Liar. "people smarter than me" - no such person
Depressing video.