Ep. #8 Getting a Proper Diagnosis
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- Опубліковано 6 лип 2024
- In this episode, we take a deep dive into the intricacies of getting a proper evaluation and diagnosis and the parent's instrumental role in that process. There are several components to an excellent evaluation and diagnosis. Getting as complete and well-rounded an understanding of the child as possible is crucial. Many children present differently, to a greater or lesser extent, when they are the subject of a clinical appointment. Add to this that late talkers are most often not adept in their communication, and many have particular temperaments, and the magnitude of the parent's vital role is plain. Your knowledge of your child is crucial, and it should feel that way. Still, there are many additional pointers presented to help assure that the parent(s) and the child experience a quality evaluation where insight, help, and the benefit of a dedicated professional's expertise are gained. There is a lot in this episode. You may want to listen twice!
Chapters
00:00 Welcome!
00:38 Why is getting a diagnosis important
01:40 Should you seek a second opinion
02:55 What if there is disagreement or question
06:06 Treatment indications
12:57 What is included w speech and language evaluation
13:57 Use widely accepted diagnoses
17:17 Steps for every parent
20:50 Questions every parent should ask
23:23 Is there truly “denial”
26:10 Experiences in school
30:16 Encouraging parent’s voice
The "schools" segment near the end rings true. My experience as a parent was that our district’s IEP committee is strongly in the habit of making a plan and steamrolling anyone who has any other ideas. They neglected to tell us about important options that we were entitled to, they were very pushy, they made us feel like we were the first parents in history who had ever rejected an offer of free services, etc. Thank god we had read your book first-we were prepared!
Hello We're delighted you have found our community! It is so true that increased parental awareness leads to better outcomes. Fortunately, most school districts and educators recognize this. Regrettably, there are those occasions when seeking assistance where the results fall short. This is one reason why it is crucial for parents to be well-informed and permit themselves to exercise their critical thinking and instincts when seeking support. I often think, a system where parents could meet teachers and talk before becoming enmeshed in the matriculation process (which can be overwhelming and off-putting), would be so insightful and helpful. The take home message I think is to continue to educate yourselves, continue to seek out those exceptional allies (fantastic schools and teachers do exist), and trust your instincts. Your child is benefiting from all your support. Thank you for watching The Late Talker Journey! :-) Mary Camarata.
We have custody of our grandson. He is 3y 4mo old. He says a few words we can understand but he is a blabber mouth, never quiet haha. He likes to organize things, he has very good coordination and he has various hand
gestures. What is odd to me is his particular interest in anything involving chaos. On tv he will watch parts of a movie or show where he knows there is a chaotic scene about to happen. Things like explosions or a big bar fight or car chases with crashes. His behavior is not chaotic, he is not intentionally destructive but he sure does like writing on the walls with sidewalk chalk. He never takes a nap, is usually asleep by 9 and up at the crack of dawn or before. He has mimicked us from a very early age. Things such as our daily tasks like cleaning or fixing things with tools. I should also mention he is above average in stature and muscle tone.
Could he be tongue tied or is he Einstein?
Hello, and welcome to the channel,
Your late-talking grandson certainly doesn't seem to lack for enthusiasm or energy! And, it sounds like he is a late talker who isn't very quiet :-). While this might appear contradictory, it's a phenomenon we do observe. I'm curious to know if you have any support in place, such as a teacher or therapist, to harness all that wonderful energy in a way that promotes his development and progress. These helpers can employ strategies that leverage his natural strengths and behaviors, such as mirroring you in everyday tasks, his impressive coordination skills, and his specific interests. Most importantly, they can coach and inform you! By doing so, we (and they) can encourage growth in areas like communication and impulse control, helping him choose more preferred behaviors.
I encourage you to seek out helpers that you find are a good match for you. Please see the Late Talker Journey's playlist "Travel Notes" and watch the episode titled: "LATE TALKER TRAVEL NOTES: Learn a -Valuable Step to Use When Seeking Help for Your Late-Talker." This video will get you started. At 3 years and 4 monthsof age, you can also approach your public school district preschool services in your state to see if your grandson is eligibility for an individualize educational program. This is a funded service. You will find more information with tips about this provcess, on the channel. Beginning the search for excellent support and helpers can be overwhelming if you are new to it! And, we only wanted you to move forward with support and helpers that feel like an excellent fit for you and your grandson. Please let us hear from you with your additional questions, or give us an update about your wonderful grandson. :-) we would love to hear from you. Mary Camarata.
@@Late-TalkerJourney we have not sought professional help for him yet. His vocal progression has been slow despite his obvious other abilities. We believe he understands nearly everything we say, especially when we’re talking to him. He has added a few words from flash cards but does not use any sentences. His favorite word is NO lol.
Last weekend we witnessed him opening a container of Easy Mac, took the cheese package out, used his step stool to fill the container with (too much) water, relocated the stool to the microwave, put his Easy Mac in it and start it using the popcorn setting which is the setting we use to heat it. We have not intently showed him the process, he has simply observed us making it for him and learned how to do it.
We have two sons, so we’renot new to raising kids, but we have never seen anything like this little guy.
I will definitely continue to watch your channel. It’s probably time to find some professional help for him. Thanks for the reply