Karen Stiles | Living with ALS

Поділитися
Вставка
  • Опубліковано 21 лис 2024

КОМЕНТАРІ •

  • @kellyhuffman2751
    @kellyhuffman2751 9 місяців тому +1

    Lovely lady and such and motivator! Thank you!

  • @kyndallherman5209
    @kyndallherman5209 Рік тому +3

    We love you aunt Karen! ❤

  • @kimspring8275
    @kimspring8275 5 місяців тому +2

    Wow! What grace she shows!

  • @caroll698
    @caroll698 10 місяців тому +2

    I'm going through this too and you express my feelings exactly. ❤❤❤

  • @stusherman1476
    @stusherman1476 11 місяців тому +2

    Karen, you are a very wise person who has many of the thoughts I have had. Only difference is you are much more articulate than I am. Keep living life and know that I will praying for yours to have a profound impact on your family and those who watch this. Thank God for the ALS Association. Our lives are better because of them.

  • @leaveittolefty
    @leaveittolefty 5 місяців тому +7

    i was diagnosed 4 weeks ago. i don't have anyone around like i see here i this video. she was lucky so many cared about her and miss her.

    • @elainerobertson1988
      @elainerobertson1988 5 місяців тому +1

      I’m so sorry and sad to hear this. Wishing you well.

    • @saradaniels
      @saradaniels 4 місяці тому

      Me to I’m sorry 😢

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      How are you now friend

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      And when you suffer in this disease

  • @kathy68921
    @kathy68921 6 місяців тому +3

    What a beautiful soul! I was diagnosed in February and felt like my whole world ended. You are such an amazing inspiration. Thank you for sharing your story.

    • @ALSNorthwest
      @ALSNorthwest  6 місяців тому +1

      Thanks for your comment! Please let us know if you need support - our Care Services Coordinators would be happy to connect with you. 503-238-5559 or careservices@alsnorthwest.org.

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      How are you now friend

  • @kellyhuffman2751
    @kellyhuffman2751 9 місяців тому

    Yes Dear One! Keeping busy and LIVE! ❤

  • @scootsalsstory7456
    @scootsalsstory7456 3 місяці тому +1

    U hit the nail on the head with your message. I feel exactly the same I also have this insidious disease

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      How are you now and when was you suffer in this disease

    • @scootsalsstory7456
      @scootsalsstory7456 Місяць тому +1

      I have good and bad days, but mostly we are doing well. I don’t believe in the idea of suffering from anything 🤪😂
      But I have been living with the disease since 2016. Officially diagnosed in 2022

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      @@scootsalsstory7456 means symptoms start initially in 2016

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      @@scootsalsstory7456 what was your first symptom dear friend

    • @scootsalsstory7456
      @scootsalsstory7456 Місяць тому

      @@Tayyab-hr1gpright leg weakness. I was limping and didn’t even realize it. We misdiagnose it to be a pinched nerve in my lower back. Did PT for a year with no change then opted for back surgery. Huge mistake.

  • @sarahlerchen6569
    @sarahlerchen6569 10 місяців тому +1

    Beautiful

  • @HDWorldclass
    @HDWorldclass 9 місяців тому

    You're a legend xxx

  • @elainerobertson1988
    @elainerobertson1988 6 місяців тому +1

    A beautiful and gentle soul. 💕🙏🏻

  • @watson666
    @watson666 6 місяців тому +1

  • @silviafady76
    @silviafady76 4 місяці тому

    Let's hope a cure can be found 😥😥😥

  • @polarnaaurora
    @polarnaaurora 4 місяці тому

    Нека вам Бог помогне ја сам изгубио оца од ове тешке болести,саосећам са вама. Поздрав из Србије.

  • @susankamaka745
    @susankamaka745 6 місяців тому +2

    Thank you so very much for sharing Karen’s story, and I’m deeply sorry for your loss. Karen’s loving spirit reminds me of my late brother-in-law. He passed away from ALS two years ago….but his spirit; a spirit of kindness, love and Grace remains. I hope and pray for a cure for this devastating disease….for those individuals given the devastating diagnosis that their lives will be cut short…and for the family members, who now have to continue to live their lives with an emptiness in their hearts. ❤️🙏

    • @Tayyab-hr1gp
      @Tayyab-hr1gp Місяць тому

      How many years he stay with this cruel disease