EGPA diagnosed in 2015 at age 62, Am a current, long term NJH patient. was placed on nucula in 2016, and it has stabilized the disease... i have had no further instances. Esinophils are at or near zero. 1st and only autoimmune attack was devastating affecting small blood vessels, nerves and muscle tissues below both knees. i was showing purpura on both shins. i had intense pain, numbness and loss of toe movement (cramping). As of 2024, nerves & muscle tissues have mostly regrown and damage is greatly resolved ..Several years prior to that attack (age 45) i began to have intense bouts of asthma, an extreme runny nose, gerd, ... all which eventually led to repeated bouts of bronchitis in 2014... then to pneumonia in early 2015. it took several years to develop to the 1st (and so far only autoimmune attack)...i have a strong family history of tobacco second hand smoke. From birth to age 39 i was constantly in a cloud of tobacco smoke from family members while living at the family home... as an adult we also worked together and smoking was constant during work and social interactions. my personal use was only 7 years, from 21 until age 28 when i quit tobacco. my childhood had no allergies, no asthma . i was very athletic, a runner. I did much physical work: jobs at warehouse grain truck loading, farm ranch work, carpentry, logging/forestry, irrigation, machine repair. had several instances of fighting forest fires with significant smoke inhalation. i grew up subjected to structural and house contents that contained various molds, rodent feces, mildew and insect infestation. coming from old barns, sheds and summers living at the family mountain cabin. ( not the healthiest of places to be.) Thanks for providing me with local and convienent access to your clinic. other drs (outside of NJH) had no clue what i had and under their care the disease would have gone largely untreated. the attacks could have been fatal but im confident that its now stabilized. ❤ thank you. ❤
EGPA diagnosed in 2015 at age 62, Am a current, long term NJH patient. was placed on nucula in 2016, and it has stabilized the disease... i have had no further instances. Esinophils are at or near zero. 1st and only autoimmune attack was devastating affecting small blood vessels, nerves and muscle tissues below both knees. i was showing purpura on both shins. i had intense pain, numbness and loss of toe movement (cramping). As of 2024, nerves & muscle tissues have mostly regrown and damage is greatly resolved ..Several years prior to that attack (age 45) i began to have intense bouts of asthma, an extreme runny nose, gerd, ... all which eventually led to repeated bouts of bronchitis in 2014... then to pneumonia in early 2015. it took several years to develop to the 1st (and so far only autoimmune attack)...i have a strong family history of tobacco second hand smoke. From birth to age 39 i was constantly in a cloud of tobacco smoke from family members while living at the family home... as an adult we also worked together and smoking was constant during work and social interactions. my personal use was only 7 years, from 21 until age 28 when i quit tobacco. my childhood had no allergies, no asthma . i was very athletic, a runner. I did much physical work: jobs at warehouse grain truck loading, farm ranch work, carpentry, logging/forestry, irrigation, machine repair. had several instances of fighting forest fires with significant smoke inhalation. i grew up subjected to structural and house contents that contained various molds, rodent feces, mildew and insect infestation. coming from old barns, sheds and summers living at the family mountain cabin. ( not the healthiest of places to be.) Thanks for providing me with local and convienent access to your clinic. other drs (outside of NJH) had no clue what i had and under their care the disease would have gone largely untreated. the attacks could have been fatal but im confident that its now stabilized. ❤ thank you. ❤