MENTAL HEALTH STRUGGLES POST SURGERY | OSTOMY CARE TIPS
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- Опубліковано 11 вер 2024
- I am 4 weeks post surgery (2nd time around) and if I am honest my mental health has really taken a huge (unexpected) hit.
We speak a lot about recovery in terms of physical health but much less so in terms of mental health.
The reality is, surgery is a huge trauma for the mind and body and so it is super important to be aware of and taking care of your mental and emotional state post surgery.
I hope this video helps to open up a conversation around mental health recovery post surgery and why it is so important.
I would love to hear from you if you too have been through mental health challenges post surgery- comment below 👇🏼.
Stay strong 💪🏼 ❤️.
Connect with me on IG:
gutmylifeback
Doctors should have that conversation with patients before surgery. It is very common to feel like that, especially if going under general anesthesia. It is hard on brain and body
Mental health is the biggest issue. It is bigger than the original "problem". Be strong girl. You are not alone. Sending hugs.
This is really relatable! I had a very minor procedure done this week and didn’t really think about it at all before going in, I have been really surprised at how unsettled it’s made me feel.
Hey girl! Thanks for sharing!
I have crohns disease and have had my colon removed.
Having a stoma saved my life and it put my crohns in remission.
But my mental health is soooo messed up!
You are beautiful! I hope youre doing better!❤❤
I had surgery, hysterectomy 5 weeks ago. I feel like i had a false sense of what it would be like because the drs said no problem you will bounce back super quick and its not happening. And everything you said resonated with me. I didnt know it would be this hard. Most days i feel really down then towards evening especially i get such bad anxiety/palpitations and i cant calm down and i feel like i will die. Thank you so much for posting this video. Its a help to hear that although we have had different surgeries, you are saying everything i am going through emotionally. I hope you are doing well now.
Much respect for posting this video, definitely relatable right now, I know it shouldn't be, but it's kind of nice to know we're not alone
Thanks for sharing this, I can defo relate. I thought I was doing really badly and that I was the only one who felt like this. I was really positive in hospital and for a couple of weeks after coming out. But since I have been really struggling. I had surgery on my leg 6 weeks ago and have a long rehab process ahead. Also having difficulties in my relationship at the same time so struggling without that support. I haven’t been able to go back to my flat since the surgery because of all the stairs so have been going between my parents and my partners and friends. Really want some sort of stability and sense of normal right now. Your video has helped me feel more normal emotionally though so thank you!
Everybody and every BODY recovers at their own pace. The most important thing is never loose sight of the big picture of taking the time you need now so you can work through the things you need to. It can be easy to caught in despair when you have a "good" day and then have a "bad" day. There are always ups and downs and never let the [evil] voice that tries to drag you down win. You don't need to get it "right" every single day. Your process of recovery is unique to you, and being human means you're not perfect... but hey, at least on the latter you have A LOT of company. You're not alone and you are ALWAYS a worthwhile person...NEVER forget that! Please take care and let those who love you care for you as well. It's a big part of what loving someone is all about.
Thank you for this- I really needed to hear this (and I am sure others will benefit from this too). Appreciate it Jack ❤️
You are very brave. Thank you for sharing. It is very helpful. People don't talk about this. My doctor did not prepare me at all. I suffered too, but my spouse is not supportive. We always fight when it comes time to change appliances. I too, feel very alone. I'm so glad you have a supportive partner. It makes such a difference.
I can’t tell you how much your posts mean to me. I was perfectly healthy until I had an emergency ileostomy and immediately had a blockage that kept me in the hospital for 3 more weeks. The mental struggle you have gone through is exactly how I have felt and you helped me realize I am not alone and I don’t have to be ashamed to cry when things get hard...so thank you! I am being considered for a reversal on Thursday and would love your advice on how you are getting through it physically. Thank you sooooo much again for your posts!!
Thank you so much for the kind message and support. Oh I cry ALL THE TIME at the moment, but it gives me some sense of emotional release which i need. I really hope your reversal goes well, will be sending you healing vibes. The best piece of advice i could offer is to go in having no expectations and literally just take things day by day, focusing on the essentials like sleep, rest and nutrition. I planned too much too soon and then beat myself up for not being 'ready yet' which is why I say don't have expectations for how you are going to feel or be within a certain time frame. Good luck Taylor!
I went through so much with doctors at age of 4 but I had 3 arthroscopic shoulder surgeries in 2005 and 2006. I didn’t understand why I was feeling really sad after the surgeries I had. My parents weren’t those kind of people you could talk to because they would tell me to suck it up or deal with it so deep down I had to hide my feelings and I mentally blocked everything out at that time in my life I was only a young teenager. I wish I was able to talk to the doctors and nurses how I was really feeling after the surgeries. I still have dreams that I’m having surgery and I sometimes wake up crying. I never talked about my surgery experiences and what was going through my mind at that time. I hope I can talk to someone who can help me. I’ve been dealing with these feelings for a long time. I do my best to put a smile on my face and go on with my day. I still cry about it.
So sorry you are struggling a bit. Know, that you have helped me tremendously. I am 10 weeks post op. I had one panic attack a week after surgery when I had an abscess. I relied on my family at first, then found your videos. Thank you for sharing. You are appreciated. I am glad this community is supportive. I believe in you. Thank you.
Thank you so much Mike for all your support with my channel and my journey xxx
i know it is kind of off topic but does anyone know a good website to watch new movies online?
@Atlas Leon try flixzone. Just search on google for it :)
@Dylan Ryan yup, I have been using Flixzone for since april myself =)
@Dylan Ryan Thank you, signed up and it seems like they got a lot of movies there =) I appreciate it!
I do the same thing: crazy activity one day, super happy, then can't get out of bed the next day. I'm 68.5 and my monster migraines are back. Worse, I've battled mental illness my entire life. My husband says I should be better after 8 weeks so I jump on the treadmill to please him. I try to smile and act happy and put him first. The thought of 13 people, even my beloved family, coming for Easter this weekend is overwhelming. My husband asks how I am feeling then taunts me for not asking about him first. Don't get me wrong, he took impeccable, tender care of me for five weeks after surgery, nut he does have a self-pitying streak. I can totally relate to you. Hugs.
Thank you for post :) I had emergency surgery for bowel cancer on 5/8/22, so about 1 month ago. This surgery left me with an ileostomy that prolapsed, more emergency surgery on 24/8/22 . I’ve also been on chemothera py since 6/6/21. A lot of ups and downs, but the emotional episodes I’ve had after the surgery have been on another scale. Uncontrollably crying, feeling like I was being chased, wanting someone to take me away and just sort it all out once and for all.
I’m still in this phase, trying to do too much and paying for it later.
No one had said anything about the chance of getting these sorts of issues. Your comment from your physio about it being fatigue was so helpful. Not only are we having adapt to a change in the way we put food/water into our bodies we’re also having adapt the way it leaves! 😫.
How are you now?
Wow, you just described what I am going through right now. I had total knee replacement 3 1/2 weeks ago and the rehab is tough. My PT told me to see pri.ary care physician to possibly prescribe something to calm and relax me. Just temporary . And to try meditation. Thank you for sharing. It helped me.
You are not alone. Be gentle & kind to yourself is the only advice I can give. We all go through the emotional rollercoaster after big life changing surgeries like yours/ours. It is however a very scary place to be when you don’t know about what tomorrow holds, but does anybody? My anxiety is worse in the evening as well, especially nights like tonight when I’m trying to figure out or how I should approach my blockage & hospital stay. Many prayers to you & your post op recovery.
Really appreciating your comments on my videos- and I’m sure they will help many more people ❤️
I really appreciated this video. I’m recovering from having a failed hip replacement removed that had become infected with staph over 2 months ago. I try to keep a happy face for my family, but I am having trouble accepting the worst fatigue when I try to do the littlest things. I’ve been incredibly anxious and did not know there was a connection to the fatigue. I hope that you are doing better. It helped hearing you say that we are not alone.
Sorry you’re feeling like this 😔 You’re doing a brilliant job sharing your experience, I hope you’re up & better soon x
Thank you Julie 😊❤️
I agree with you the last big surgery I had 18 years ago which was a major back surgery were my whole lower back was broken and had to have rods &screws place and I couldn't walk for like 8 months I had terrible pain and panic attacks, anxiety I lost down to 75lbs was really scary. So I'm really scared on having my total colectomy with ileo rectal anastomosis I'm scared to death about it.I feel what your going through your in my thought and prayers. Your doing great to come and talk to us and let us know what your going through. Thank you.I always tried to go outside and sit if only for 10 or 15minutes it helps to get fresh air and hear the birds (nature) listening to relaxing music of nature really helps, try some breathing ,meditation music, also maybe your partner can message your back,shoulders,feet to help you relax.also comedy movies always help.may try journaling your feelings to get them out of your mind to sort of release them .shelf talk helps to.I hope your feeling better soon.Look up on UA-cam post -op surgery depression and anxiety aswell there's others that have went through it.
Thank-you so much for sharing this and for all those amazing tips which I know will help others xxx
Thank you for your video and heartfelt thoughts. I had an irreversible ileostomy 50 years ago, two huge scars (first surgery was caused by doctors perforating my colon), "clips and wires" left in me (from a review of x-rays taken due to a blockage problem a few years ago, thankfully it resolved without more surgery). So many things they didn't tell my then 10-12-year-old self. You are doing the right thing reaching out and talking. I wish I had the tools we have today. ♥️
I had dental surgery a week ago. I had 12 teeth removed. A few days ago I started having a pounding headache and my depression has gotten a lot worse.. I dont think I've been this depressed since I was a teenager. Thank you for making this video. I think I'm going to reach out to my oral surgeon today to ask what I can do to stop feeling like this.
remember always that you are valid, valuable, unique, irreplaceable and you matter more than you know! take care!
Sending you lots of love. Take it day by day. Your body, emotions and mental state have been through quite the rollercoaster. Better things ahead, but this is a real rough patch. Be patient with yourself ❤️
Thank you Nicole- patience is key :)
Each day of despair brings you closer to a day that is wonderful. Knowing that you were strong enough to go through those days that were terrible, gives you strength to overpower the feeling of despair when it starts to return. Hi from Australia. 🐨 🦘 💐
Thank you Kevin- and hello from Sydney!!!
@@hannahmyall Hi Hannah, I didn’t realise that you were from Australia too. You appeared to have an overseas accent. I hope you are having a nice day, if not, tomorrow will be awesome. 💐 Some flowers to cheer you up okay.
I just had the same surgery and a mini laparotomy incision. Whenever I get down time, I just break down and cry. It’s so hard physically, emotionally and mentally.
I’m going through this now, had Emergency surgery, After one month and four days I had another Emergency surgery because they left scissor✂️ in my stomach 😢 is not easy… anxiety is eating me up crying every single day… You video got a bit relieved. Thank you
You are not alone. I went into mine 2 months ago. I can identify with your feelings. Please try and rest its the best thing. You are in my thoughts and prayers. We both have this.
Thank you for this lovely comment and same to you darling xxxx
I struggle I barely can stand the loss of sleep and interrupting mess I had no help from the hospital itself but the home health care guy kept me from losing my mind
I cry often from the loss of a life I had I ended up with diverticulitis and blew up in my lower body..still have some rectum but not enough to reconnect. I lost weight after second surgery and didn't gain weight until this fall I had no gastro help until Oct and I finally got some weight back after getting new meds for slowing down my system.
I wish I could honestly say I'm happy about this new way to live but I just can't
My depression dx was bad enough and then this ..yeh. I'm depressed
My daughter is 11 and just had back surgery and shes fine until we get out in public and then she starts to freak out and get sick and dizzy. Hopping you get better soon.
I'm getting this too the past month since surgery, how is your daughter now?
@@josephinelerouge5494
She is way better now. We believe it was the medicine they had her on that was doing it.
I'm going through this right now. I had colostomy surgery 3 weeks ago & somedays are bad. I feel alone & anxious. Thank u for the video
It’s my second surgery this one was much harder for me mentally the idea of going through the same thing with more pain and more struggles I am so weak physically and I’m losing my mind I don’t feel like my self anymore I have no appetite for anything I wish I can just go back to normal
I’m almost 2 months post op colostomy and my mental health is awful right now, mine was laparoscopic as well
❤ I try to pray 🙏 when this happens to me.. been on a ostomy 2 years now
I had my surgery in july ,i feel like that most of the time ,its one thing after the other i just get so fed up
It can be really tough mentally and yet nobody really talks about it. Take one day at a time and give yourself permission to be exactly where you are. (Resisting is the path to more suffering). Sending you so much love x
❤❤❤
Had an ileostomie april 22 2023 after being really sick for 6 years i was happy to go in surgery.. i didnt have a life.. having a ileo is not always easy.. but my life is so much better!! At least i can eat i can relate to feeling alone i have a really rare desease ganglioneuromatosis intestinal didnt find anybody with that.. and i would really like to found someone
Thanks so much for posting this, I had something more minor but a lacaroscopy to remove an unwanted guest on an ovary, the surgery went well and physically I'm fine which I know is lucky, I wa snot prepared for the emotions and feelings I got though in these few days afterwards, that awareness of my mortality and vulnerability that I'd not really considered until this year has been a bit harrowing (though I guess we've always been mortal its just that new awareness and understanding of it) and also the uncertainty and fear that comes with waiting for the histology results to come back (does it mean more surgery? They of course couldn't tell me at the time which is fair, I'm just struggling to sit with that waiting) I'm trying to keep busy and focus on the positives such as how this ordeal has actually made me more willing to stand up for my needs and not tolerate toxic situations, but it's still a roller coaster I'm still riding for a while.
Your video made me feel a lot less alone and I hope you're doing ok as this was from a year ago, yours was also a lot bigger than mine so I'm sending you all the hugs and best wishes, thanks again ♡
I had open heart surgery and its bin 9 months and I’m still not recovered. Feeling depressed and tired all the time. No matter what I have tried I’m not getting better. So frustrating.
I'm soooooo sorry you're feeling this way but I totally relate I've had cancer for the 4th time and had a major open operation to this time give me a colostomy and close up the illiostomy and remove tumours from my pelvic it was hard this surgery and I rested with a hot water bottle eventually my oncologist worked out for me a good painkiller eventually I know I've repeated eventually because that's what it was I was not givwn painkillers apart for paracetamol but eventually got painkillers I was in agony I RESTED and placed hot water bottle where it hurt up to now I lie down with the hot water bottle it helps I found it soooooo soooooo hard I totally get you and don't push yourself became I tried to but actually I gave up and rested I was blurred for a month and could not read no entertainment for me just pain and suffering but REST don't push my advice sorry for the long winded entry just had to hope it helps. Wishing you all the love peace and healing you're going to be OK feel safe affirmations ie. I am safe love and light to you ❤️❤️❤️❤️❤️❤️
Thanks for being so kind and caring Deborah this means so much to kenxxx
@@gutmylifeback7926 I love the name for you stoma♥️
@@deborahmeyers7839 haha it suits it! I originally called it Arnie because I thought it looked like an alien coming out of me!
@@gutmylifeback7926 I call mine Mr Stinky😋 (affectionately) he's a Colostomy different from my then illiostomy
@@gutmylifeback7926are you still posting please I have an illiostomy
I just had surgery on my bowel done and have been so depressed after. I dont even know why.
I hope you feel better soon 💓
Thank you!! 😘
Hey there, I have had a surgery due to Chrone's disease about 6 weeks ago. Initially I felt great and everthing went well for about 2 weeks. But then Things slowly got worse and now I feel very fatigued and overwhelmed and depressed with almost no appetite. And I also agree with you that it gets worse the more I try to be active. I read that this could happen due to a lack of cortisol...also I took prednisone before quite some time...I'm wondering wheather this has anything to do with it...no one has an explanaition for me...
5 years in almost. I feel like in the beginning I was able to handle it all
I had depression before it. Now it's worse than ever. The anxiety is horrendous
Sending hugs.
Take care
How are you now
Having a stoma stole my life from me
Do you remember your last time "normal" going to the bathroom?
About 16 years ago!
Open the bible, to any where actually. The psalms, psalm 27. Read it. Know it. FEEL it. See how you feel. I'm a homeless, disabled, 62 year old veteran, with cptsd, and no one. I live in my van for over 4 years, and must have a 5 level, lumbar spine fusion, which is rare, but it was scheduled for April 17 th. But got postponed the day before for other health issues. My rotton family, are narcissists, and flying monkeys, and could care less if I was dying on their floor. So, alone, no home, no bathroom, no help, no shower, no fridge, no anything. But my hope, is NOT ,for the things of this weak world. This IS, just a bus stop. I can tell you, that if it were not true, I would be long dead. But I am here still, suffering still, yay. But not for long. Read it.