The Inspiring Tragedy of Sex and Disability
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- Опубліковано 28 сер 2024
- Hannah and Shane dive into the junkyard of misconceptions society has about disability. They also practice teaching their family the LA etiquette in another round of Hypothetical Freaks
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Executive Producers are Riley Peleuses + Michaela Garrison for YEA Networks / YEA Podcasts
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I really love watching you guys because being a disabled 16year old you give me inspiration to try and look for someone
Dude.....getting a girl like that is like winning the lottery, good luck because you're in competition with a million other guys!!
Don't listen to that dude. Go find your person. Clearly if this guy found her it's doable!
You will find your person who love you unconditionally
@@hotwheels1838 you're talking like there is a 10:1 ration of men and women, when the ratio is like ~1:1
@notalice... well..where is yout woman....like his?
I feel like you two are made for each other. You make me laugh, especially Shane's sarcasm 😆 My dad was disabled my entire life and I always felt like I needed to stick up for him.. until I realized he was the strongest man I ever knew. Physical strength isn't what makes a man, it's strength of character and spirit. I love you guys ❤
I love this comment
I feel the same way! It's like they recognized each other more than just met 💖
My dad was a strong able body his entire life. Until an accident left him a quadriplegic ❤didn’t make him less of a man.
beautiful comment !!
My dad got polio when he was 27 yrs old. He was in an iron lung for 3 months, then a wheelchair the rest of his life. He never really saw himself as handicapped. He was and always will be my hero! ❤
I have had 5 spine surgeries and am also "considered" disabled. I was married until 2020, when my husband, of 33+ years, passed away from cancer. I had 1 child on my own and 2 stepchildren and 7 Grands. I am working on greatgrands now. My life has nothing to do with my disability other than it is hard now, being alone. Love is what matters. Hold on to each other.
You are an inspiration to me and many others ❤️
I am so glad that you see the good parts in life. And I'm sorry for the tragedies you've had to go through. I can relate to quite a bit of it. Remember, this is possible for you to set up a channel like this and make money and take care of your family a lot easier. Especially with the grand kids, they know how to do. Social media is so much better with all the editing. And such, you have yourself quite a story. Now you always have this much strength i've kind of lost mine.
Thank you for sharing your experience. Your message and example of sharing are vital.
Have a great friend who died last year at 57. He had muscular dystrophy and was the coolest guy I've ever known. His favorite saying was , All you need is love. Miss him everyday. Shane reminds me of him.
20:26
Hannah: "I'm one of the lazier people that you might meet. I'm not a go getter. I enjoy leisure." Girl, same. 🙌
yes, i can relae to that too
Same.
Ah yes, lets inspire to be lazy. That's how we built america from ground up.
@@Youraveragedemon-n3r lucky for us idlers you hard workers take the pressure off of us 🙌 keep working hard im rooting for all whilst lying recumbent on my couch
I enjoyed you both so much!
I had a son in a wheelchair with myotonic dystrophy I was his main care giver. He also had a fantastic humour, I bet you and Mike would have had a great time together Shane 😂🤣
My son has autism and people feel sorry for me and my husband because they believe it’s sad that we have to this the rest of our lives. He’s our son and we love him. He is wonderful and brings us so much joy! We could never repay him for the joy he brings us
"They believe it's sad that we have to this the rest of our lives"?
What was that supposed to say.
@CraftyMagic Dollz I think it means they have to live with it the rest of their lives. Thats how I read into it.
It's sad that ppl dont have a better understanding about autism. As many ppl that have it I can't understand why everybody doesn't know someone with it. I love all the ppl I know that have autism. They're very cool ppl.
Us too!
Same we love both of our Autistic kids and we don't feel sorry or sad we love them and will love and support then as long as they need.
A drunk driver broke my neck and I am a quadrapelegic that is very happy. I have never felt sorry for myself. I understand what your saying.
Well that sucks. And here I am depressed that I never found love at almost 40..
Sending virtual hugs❤
@@TheFailedmessiahdon’t worry❤ crazy shit happens when you least expect it❤❤
@@TheFailedmessiahI didn’t find true love until I was 39. It will
Come.
I found the best man for me after retirement at 60. I use a wheelchair 24/7
Peoples intimacy is nobody’s business ugh. I have the experience of having been a professional caregiver for 15 years (& have supported people that required high level of assistance)- then dealing with a permanent disability myself affecting my mobility and everyday life- I was shocked how people I supported were treated & approached but did not truly understand how people’s attitudes can make you feel until I was on receiving end- your podcasts & videos are so important- I keep sharing them!
No one's BUSINESS,!????
It's no one's business but I think curiosity is natural. Just that respectful people understand that just being curious doesn't mean anyone owes them anything. I do think there can be value in talking about it (when the disabled person themself wishes to, and not any other time!). For example, many parents really fear having a child with a disability, and one of the things they fear is that their child will never have the opportunity for a romantic and sexual relationship. Letting them know that it is possible can make the whole idea of disability less frightening for them, which can be helpful to those people's children.
@@junbh2 Curiosity is totally natural. Why don't people ask every couple about their sex life? Could it be because people assume "normal" looking people have all the same "normal" private lives?
@@mandala314 I think it’s because how “normal” people’s sex life is widely known. So I guess people are curious - and I think it’s good education for them to talk about intimacy to normalise that disabled people are normal too and hopefully will make it less taboo to talk about etc…
I just need to know! Not really BUT I would pay to see it. 😂🎉 I would just find it extremely interesting
I wanted to chime in and say it’s VERY obvious that Hannah is not the only caretaker in the relationship. Shane is also a caretaker of Hannah in many ways in which you don’t see in a lot of relationships. It’s obviously a real partnership and you can easily see that neither one of them is burdened or else they would not be together.
Yes, he is a full employed man that realizes he wants to make money besides disability. He has a brilliant mind and is very comical. Apparently because he's human.
Shane is typical he wakes up in the morning taking care of business. I'm like Hannah 😂 very laid back.
Hannah sacrifices her own vitality for her disabled partner. She could have had a healthy partner, but she wants to prove to herself that she is his holy angel!
@@yokestoreyokestore-fe8og I'm not sure if this is a compliment to her or not...
@@yokestoreyokestore-fe8og He’s got a psychical disability whereas you have an obvious intellectual one. Not all with intellectual disabilities are this ignorant, however most this ignorant are back woods mentality. I’m glad you could comprehend enough to learn something from this video.
I’m the mom of a young woman with Cerebral Palsy. I greatly appreciate your openness and honesty in your pod casts. I’m so glad I found you!
People on here are saying he has millions don’t be fooled if true that’s how he got her no doubt. How he has money I keep asking in the comments no one’s told me yet I thought he was on radio and it’s all of 1,200 a month but people say he had tons from a lawsuit thsts why she’s with him I mean no doubt
I’m a first grade teacher, and I often look for books with diverse characters for my classroom. Nearly every book that has a black character or disabled character etc. is almost always exclusively about being black or disabled. They are never just able to exist as characters. It’s a huge problem.
Yes!! We need more normalization of disability, race, and any other diverse people in our world.
I was actually really pleasantly surprised at how Mandy Mouse is written in the Peppa Pig books! I've only read a couple, but she seems to just be a character, like any of the other kids. I really loved it! 🥰
More diversity that's all our country needs right now. I've had my fill
@@jnolette1030 i believe the diversity has been there all the time. Just hidden if possible. POC cannot hide theirs. And i cant hide my ♿️. Those things should not hold us back from a full life.
@@caroljohnson3698 I don't really have a problem with it. I just don't want to hear about it all the time
My oldest daughter is intellectually disabled. I remember when she was a little girl a woman said to me that I shouldn’t chastise my daughter because she was disabled. I was amazed! My daughter may be intellectually disabled, but she worked out pretty quickly how to get what she wants and if we never told her off, she would have been running the house with us at her beck and call. No kid, disabled or otherwise, should be allowed to do what they want when they want all the time. An intellectually disabled person still needs to be taught appropriate behaviour and to learn right from wrong.
I always felt that my caregiving was just a part of partnership and that I was honoured to be trusted to such an extent with someone who was often vulnerable. It is an intimate trust
My brother who passed away in 2016 had a visible disability yet he was such a humble and giving person. Always willing to help whoever needed it. He was by far my best friend and his life will always remind me of what life is all about. No matter if you have a visible or invisible disability, we all have a purpose in this life. I look forward to seeing him again someday. God bless you both you are a true example of joy and love.
My heart goes out to you….
I don't understand why people think when people are disabled that they aren't still human. That they can't still have pleasure that their life is so depressing. They're human they have up-and-down days just like everyone else. Everyone in this world struggles with mental disabilities physical disabilities but it doesn't make them different from anyone else. I love watching your videos. My husband and daughter have epilepsy and my two youngest children are autistic. And they're just like everyone else. You two are honestly made for each. The love I see in your eyes when you speak about each other since day one has been amazing. I hope everyone finds love as amazing as you too ❤️ thank you both for being yourself and speaking about everything you do and support. I love you both!
I agree, please turn up Shane’s mic. He’s so soft spoken and it’s hard to hear him. Thank you. Great video today explaining about people with disabilities. You are so spot on! I think people just don’t know what to say. You two do an excellent job educating people on how to address and acknowledge people with disabilities. It’s tough and people can be so disrespectful. From my own experience: In my late twenties, my back went into a spasm. I was in traction for six weeks. Towards the end of six weeks I wanted to attend an awards event and the only way I could attend was in a wheelchair. So my surgeon released me from the hospital to attend for three hours. My husband took me to the mall in my wheelchair to get a new top to wear. People starred at my legs, walked by giving me a sad face and when I was at the blouse rack, these two women and there kids were staring at me and whispering. I was so hurt 😢by all of this treatment that I just stood up! They immediately walked away in a hurry.
I admire his input to try and educate stupid and disrespectful people. You guys do an amazing job with your books and videos. Keep going! ❤️👍
You can turn on CC 😊
I love how transparent you are about your lives and your love and humor. Thanks for sharing.
Could you guys please make Shane's mic louder? I always find his audio is much quieter than Hannah's, so it's hard to hear him without putting the volume too high.
Agreed, I didn’t totally notice it until you pointed out but now that I’m listening you’re right - Shane’s is a little low compared to Hannah’s. Boosting him a bit more would be great.
Ikr! I turn it up to hear Shane and then Hannah starts talking and I'm like Geezus H on a popsicle stick, that's loud!
I literally opened the comments just to say this. I literally can't hear him at all 😭
Her voice is stronger than his voice he tries. I don’t have any problems hearing them both.
I think it may just be his voice
My dad had a spinal cord injury when he was 19… my sister and I were both born after that 🤷🏼♀️
I have hidden disabilities so I'm often present when people are being ablest or mouthing off misconceptions because they have no idea that I am a part of the community they are doing that to - education is key and you two are doing an amazing job at getting the conversation out there. Thank you.
Same! I try to bring awareness of (dis)abled needs at my job and it’s weird to see people either 1) put more weight on what I say is needed because I’m not perceivably disabled or 2) think I’m making a bigger deal out of it than it should be on behalf of a small minority of other people.
I literally had some laugh when I told them I am disabled. Because I look “normal”. Needless to say, I was not happy.
Same here, I have a defibrillator implanted and it's not obvious. I have related health issues. I used a handicap parking spot legally and people yelled at me. I want to scream "I medically died 6x screw your parking lot nonsense."
I love hypothetical freaks! I have a kiddo that has a lot of anxiety. We started playing hypothetical freaks (he loves the name btw) when he gets anxious about a situation. It has helped so much!! He even says he does it in his head when I'm not around. Thanks for the idea.
That’s disgusting ppl have called Hannah a pedo. Clearly some don’t get the horrific act of it & how far it is from these 2 consenting adults who are in love. That’s a horrible thing, the worst thing to be called & I’m sorry you have to deal with that Hannah. 💕
I hope you have a good day, know that JESUS died for you and loves you so very much!
I love you guys so much, and love that you educate an ignorant society, but if people see Shane and come away more grateful, I dont think thats a bad thing. There are sooo many people that have NO obstacles or adversity in their lives and yet do nothing but complain. I'm not saying they should feel pity at all. Just to put things in prospective. The reality is, as you just pointed out at the beginning of your video, there are obstacles and situations that you guys have to overcome, so if able bodied people can say hey, I just learned, I really have nothing to complain about. Its a positive thing. Do you agree with this?
Can people be that stupid ? I mean really you have to be a complete idiot to even connect the two ! Adults who are disabled in ways still have a sex drive like what are they thinking ? It’s insane .
She is is not a pedo. She just sexualy attracted to disability.
Pedophile?!!! What is wrong with some people?!!! He is an adult and sounds VERY consenting to me.
What pisses me off about being disabled is that when my wife (able bodied) and I go into a store, the person always addresses her, and speaks over me. When we go out into public, she always puts her arm around my shoulder to show people that we a couple, and she is not my nurse/carer.
And what pisses me off is you two are actually the real deal. I'm sorry that the world has not trained itself to address all people respectfully. Idea with it and I have a hidden disability, But I dress differently than a lot of people do and the assumptions that I have about me. Range from junkie to thief.
Which I have never been either. In facts very far from it. I like individual humans in this world but humanity in general is pretty wicked. The way people treat other people the way they treat animals the environment. People can be very parasitic. I'm pointing out the bad parts right now because of what you said. But there are some good things in the world. But it's getting harder to look for them. When people ignore, you try speaking outwardly intelligently and friendly and surprise the heck out of them!❤
Yes spot on ❤
Same!!!
Speak to them and interrupt
Speak up so they know your cognitive ability?
I have ms and have been in a wheelchair for 30 odd years. I am happy to say that I only had someone talk over me a few times. I always make sure that I show them that there is nothing wrong with my brain and apart from being seated I am very capable. By chatting and as well as banter I put them at ease and as most people get to know me they say that they forget I am in wheelchair and no longer see it. To me that is a very good accolade. It shows that in my own way I am helping to educate people to see the real me and not a chair. I wish people would just open their eyes and see what is inside the person. The real person. I have seen you with Cole and Charisma who I love. I think you are wonderful too and have subscribed. Keep up the great work. ❤️👍🌺🇬🇧
As a carer myself, I think it's important to acknowledge the physical, practical and mental load that comes with caring. Even if it is a seamless part of your day, it can't be overlooked what that costs for the carer. You guys are such a great team though ❤
There’s a LOT of martyrdom involved in caregiving. Some of us enjoy it immensely.
People who love being parents don’t go around saying I have kids and love them but you must not forget the enormous toll it takes practically, mentally and physically on the mother….it’s life. Get over yourself and find joy!❤
My husband is in a wheelchair. I will never forget the first time that someone was shocked when I said this morning when we got out of bed and they stopped the conversation and said wait! He got out the bed by himself!?! Wait!?!! U guys have sex!?! Smdh. I just replied best of my life and walked away. People are just ignorant and so closed off to others situations. You guys are a beautiful couple.
They are just not familiar with a disability how can they be if they don't need to deal with it. Everything becomes normal if ur dealing with it daily...
Best response ever, good on you!!
@MsJatak That doesn't give them the right to say that, though. I bet that person wouldn't like someone saying that to them. Even if it is unknown to them, there is a difference of not knowing and being extremely rude about it. That's how I see it anyway.
You two are incredible people. The love and respect what you have for each other. Shane and Hannah you live a full and happy life. Don't stop...❤️🇳🇦
As a person with a disability I find from my experience that sometimes people with disabilities and those closest to us can perpetuate these misconceptions due to our own mindsets . Glad you guys are helping to dispel these negative narratives that are not always the norm . For some it becomes their identity that life with a disability is horrible a horrible existence . Thank you for addressing these important topics .
I never realized how great Hannah's voice is. It's like radio star or asmr worthy.
Actually on one of the shorts her voice sounded very different. I think all people in the industry have some sort of filter
I love watching you two. The love you have for each other is so wonderful. Anyone who says this is fake has never seen true love.
I have two highly disabled children, they are the happiest sweetest kids in the world. Pure spirits. I have to advocate for them pretty hard at our school since its the only one we have in alaska within a 95 mile drive. Its so hard living here and riding the school's back to do their job. In this way special education in schools need more advocacy and help.
Being disabled myself from birth (Arthrogryposis), I've encountered some of the same. I was shopping with my 4yr old daughter at the time and this guy asked me, is that your daughter!? I said yes, she's my shadow, goes with me everywhere. He then asked how old was she when I adopted her. I told him, "the moment she was born, I made this little person"! The look on his face. 😲 How?? I told him if he didn't know how to create babies, he might want to study sex ed. Can't wait to see little Shane or Hannah, be a cute baby guarantee! ✌😎 Rock on y'all!
JESUS loves you! Come to Him to experience indescribable peace, and the infinite love He has for you! He can heal all illnesses and disorders, and with Him you can overcome any and every crisis the world may put in your way. Repent of your sins and start a relationship with Him today. Call out His name and He will answer you!
People and their assumptions lol
@@DHU11 I have an even funnier one, 1983 I had a HOT 71 Chevelle SS and was hanging out with some guy's in the parking lot. I'm leaning on the front fender talking to a friend and this guy walks up and asked, do you drive!? I told him no, it follows me everywhere I go! 😂
@@PaulRhodes420😊
@@naoedouard4422 You've already posted this once. There's no reason to keep doing it. Further, God clearly says in His Word, the Bible, we are not to use "...vain repetition." And indeed it is vain for you to keep doing it.
Being Disabled is tough I am disabled since birth and it is hard at times but 85 to 90% of my days are good days and you can’t spend your life dwelling on it life has to go on
Me too man! 🤘😝🎸🎶 Let's Rock this place!!
Same here man agreed
Well said
Same here bud
@@theladyandsonplus2 Very well said
My fiancé is paralyzed, and I never think of him as disabled. We just love each other and have a normal life. Yes, we sometimes have to do things differently, but it's not a burden or a problem. We care for each other. He loves to cook for me, and I love cooking for him. We enjoy doing things for each other. We're neither extraordinary or special. We just are a normal couple.
Yeah, same I have never thought of my partner as 'my disabled partner' or anything like that, I just think of him as my partner, the man I love. The only time his disability would come up is in a conversation like this when it's part of the topic, part of the discussion. Some things we do differently than other people. No big deal. 🤷♀
Hannah and Shane has a real joy, their relationship is beyond question…God is with them the true source of joy.
As a person with chronic illness, this video is was so validating. While I’m sorry you both experience this, I’m glad I’m not alone and that someone else understands the truth about having a disability.
Hate how people often treat you! 😡 I am jealous of how you love each other- that’s what I see. Two people who love each other and are living their best life! ❤
Just started following you two, I have feeling I will be binging for days. As a 58 yo old man that's been married and divorced twice, I feel no pity for you, I feel a little jealous because you are lucky enough to have a wife that loves you for WHO you are and not what you can give her. It's nice to see two people in love.
I’m 58 YO, as well. Divorced once and remarried and have a wonderful husband but I struggle with serious depression so it’s inspirational to hear others who try to stay positive in whatever struggles they are enduring and yet brave enough to discuss it.
@@kenzierocks1240 JESUS loves you! Come to Him to experience indescribable peace, and the infinite love He has for you! He can heal all illnesses and disorders, and with Him you can overcome any and every crisis the world may put in your way. Repent of your sins and start a relationship with Him today. Call out His name and He will answer you!
Religion is a lie.
Take care!❤
@@kenzierocks12409
I totally can relate to peoples sometimes awkward reactions I myself have Cerebral Palsy and my husband is able bodied,we’ve been married for over 30 years. You are a proof of a great relationship and how you are not only having fun in life but at the same time are quietly educated others. Keep doing what you’re doing ❤
I so admire you guys. The way you bounce off of each other is next level. It's so heartwarming in this season of so many things being temporary and not quite whole, to see a husband and wife who are so steady and so caring of each other. I was in two long-term marriages that just never quite found their flow like yours clearly has, and it fills my heart to see a happily-ever-after such as yours. Shane, you remind me so much of my 28 yr. old son. You both have a very similarly sly sense of humor, and Hannah, you are always such a good sport, like my son's life partner, who is also brilliant in her own right, as are you! I'm so glad for your successes and for warmth. Thanks for letting us in to your world... it's a pleasure!
I work with a man ,50 ish , three years ago while tree trimming ,he fell and was paralyzed from the waist down .He was such a happy go lucky kind of guy , and still is. He works at Home Depot in hardware.What you are talking about rings so true with him . Thank you for making me think about things.
This is the way to get this message out...just keep making your hilarious, important content! I have worked in the employment field for over 20 years assisting people with disabilities in finding competitive employment. There is nothing more irritating than someone hiring someone because they "are so inspiring", when they could just hire them because they are THE BEST CHOICE FOR THE JOB!! Please never stop getting this message out! Thanks, guys!
The one I've experienced over and over is sadly from my husband's family. They grew up with him (baby of the family) dealing with learning challenges and a speech impediment, and they can't seem to understand how insulting it is to HIM that they accuse me, his loving partner of over 17 years, of only being with him to take advantage of him financially (yet he was literally making min. wage when we met LOL), and won't consider that maybe we're together because of our love and respect for each other. So insulting! For the record, we are an awesome team, and we have built a beautiful fulfilling life together filled with love and laughter. Yes, I handle some of the things that he struggles with, but he does the same for me, it's just not something visible or obvious.
Dude! I've seen, worked with, worked for and have relatives who are disabled both from birth and from accidents. My first thought when I see someone living like Shane is "your chair is so cool! How does it work? Do your batteries last long? How much does the seat adjust?" I know you are human and have lived with so much more than I could imagine doing that I am in awe of your strength and courage. I really don't want to pry into your physical life but your equipment is so cool. It's like seeing someone with a beautiful musical instrument. I have a cousin with Muscular Distrophy who married someone with the same condition. He is an attorney, uses a cane or electric scooter/chair that he has actually been in a car accident with. Thanks so much for sharing your life with us.
I just love how much Shane makes Hannah laugh and giggle. A sense of humor is first and foremost in my books. If a man has a sense of humor and the ability to make me laugh that's everything, I'm good!❤️💕❤️💕
You guys are so awesome! Mostly because you are so real and honest, I love how you just lay out the reality of your relationship. You're so normal and just like everyone else. It's clear you love each other deeply and you're both committed, you give me hope for any relationship, disability or not.
Huge fan of you both! I love the the fact that you use the platform to normalize the subject of disability and not make it a life stigma. I know Shane has a disability, but I don't see him as a disable person. For me I see an amazing and talented dude who works hard to make a difference in the world with his writing and story telling. Same goes for Hanna, who has as much talent and for which I've enjoyed seeing her grow into her multi-media skills over the years. You both are amazing and so lucky to complete each others lives in a very special way! Who ever sees you differently than amazing and true individuals are simply wrong. Cheers! :)
Agreed !! Hannah is loud and clear and Shane's is a little muffled or some thing .. I always turn the volume up then down , up then down .... I love you two and watch you guys daily ..
Thank you so much for both of your representations of the disabled world. It's people like you and media like this that will better the world.
You both are a breath of fresh air!
Thanks so much for sharing it’s been a joy to see your love for each other and the strong bond you share.
Keep educating and sharing this wonderful journey of life to many!
Stumbled on your channel and this is the first video I decided to watch. May I say, what a fantastic, warm, funny and informative talk! Good job, I enjoyed it.
I DO think Shane is inspirational. But he inspires me because he is cool. he is a successful author. hes in a happy relationship. He gets to travel a lot. He has so many privileges and fun things in his life that are so cool! Your life seems awesome
I get what you guys are saying. A friend of mine has a son who had a motorcycle accident and is now a paraplegic and he says the same thing as you. He says yes it’s a bummer that he can no longer walk but his life really hasn’t changed. He works has a girl friend still rides a motorcycle (adapted) and gets so tired of people say ( oh you are such an inspiration 😵💫). He’s is just living a great life like he was before his accident. I think people definitely need to change their thought process and realise people with a disability can and are just as happy as everyone else. The only thing that needs to be changed is as you say accessibility. Go you two. Great podcast Kim Australia 🇦🇺
I would LOVE to see a sarcastic "PSA" short film made by you two about this list. Shane's sarcasm and "sass" would make it amazing. Disabled life in the eyes of the stereotypes.
I'm so glad to see you guys highlighting that people with disabilities don't want to be seen as different but instead we just want to be seen for our amazing qualities. As a young woman who has lived with rare disease my whole life I say this all the time that I am so many things other than my disease. Thank you Hannah and Shane for highlighting these often not talked about issues. Have a great day everyone watching 🥰❤️
You two are improving my life in observable ways. My partner and I were arguing about something pretty mundane: should I trust that my postage was correct and leave my package in the mailbox and up to fate, or should I take it to the post office to be sure. I know. Jaw dropping stuff. Naturally, this silly subject became somewhat heated, my partner raising his voice in self-defense when I accused him of judging my laid-back approach. Normally, that's when my tears would start flowing. But instead, something I've seen in your videos clicked: this didn't have to be wounding for either of us. A smile spread across my face, I admitted I had jumped to conclusions, and we started having a meaningful, light-hearted conversation... Which is really what the situation merited.
Gosh! It was so nice to see the forest for the trees. You two model that all the time. I love the way you handle disagreements--I'm starting to catch on. Thanks!
I love being able to listen to this as a podcast on a walk and then coming back to the UA-cam to watch certain parts. Hannah's reactions can be hilarious.
You guys are wonderful and Shane is hilarious. I love his sense of humor. Perfect together 💙❤️
Can we acknowledge that the lived experience for someone who has lost their mobility overnight after having it for most of their life might be a little tougher than someone who was born with a disability? Cole just put out a video a few weeks ago about how he didn’t want to live anymore after his injury. Sure, he’s come to a place in his life where he’s happy and fulfilled, but that doesn’t diminish his struggle or his lived experience. I totally support trying to change the narrative and misconceptions of disability, but the reality is that a disability such as SMA has only become less traumatic due to modern science and medicine. It’s only been in the last 75 years (maybe) that the diagnosis wasn’t a death sentence or at least a “stuck at home in bed for the rest of your life” sentence. I don’t know why I feel so passionate about this, but it just seems wrong to ignore history and other people’s struggles to accept and overcome a loss of mobility. Love y’all tremendously and just want to have a nuanced dialogue on this subject. Feel free to correct my misconceptions. Thank you for your videos.
Agree! There are so many variables! I work in a hospital and have patients in their 80's who have lost their mobility and are grieving that loss. I think the overall theme I gleam from this discussion is that pity is destruction. People of all ages, shapes & abilities deserve dignity and respect.
They literally addressed this. Of course folks have different experiences. It's just that the main assumption seems to be disability=bad/sad. Not true.
I learned something new today. We all have challenges. Good days. Bad days. We all sometimes struggle whether it be in a physical way or any other way I have often been inspired by seeing someone w an obvious disability living their best life. I guess to me I looked at their challenges as being more so than my own. And I myself have said "if they can do it then I should be able to do it". Thank you for clearing up this misconception for me. It actually takes a little bit of weight off to know that it’s not necessary for me to feel that way. We see sports stars giving shirts and balls to people in wheelchairs. W tears in their eyes. We see singers at concerts giving attention to people in wheelchairs and everyone is cheering because they get that kiss or hug. Many many videos I see celebrate and play on our emotions showing people that have a wheelchair being treated w more concern than any one else. And I’ve always bought into it. I will always offer to open a door for or help anyone who needs help around me. As I always have But I will consider what you have taught me today as far as the way I have been raised to feel sorry for disabled people. I appreciate this so much. Ty. And. You guys are really fun and funny. I’m new to watching you. I like your videos.
I'm disabled also. I got polio at 8 months,of age and I now have post polio syndrome. I was always told I would never be a mom and i would never finish school and I would never have a job. Well I have done all 3 and more. I have 3 grown kids, 3 grandkids and a great grand baby on the water. I have ran my own business and I have had several jobs and I can drive. I was raised to never so I can't. Don't let anyone tell you what you can or can't do.
Hypothetical Freaks makes me laugh every time. It's my favorite part of your show. Love your humor Shane and Hannah! Thank you for sharing your stories and showing the world that everyone is valuable 😊
I was at the mall with a very good friend who is also disabled and in a wheelchair. Someone came up to her and said, "hi little girl, your so pretty. They spoke to her in a baby voice. "Here have this dollar and buy yourself something sweet." My friend smiled and said, "thank you." They spoke to her like she was a little child. She graduated college with a 3.8 average. Smart and funny as a whip. We both busted out laughing after the people were far away. Its amazing how people treat people that are in a wheelchair.
I'd be annoyed. My partner has SMA too and sometimes people talk to me only, even if he is the one asking a question. And I have social anxiety so it doesn't just piss me off due to ableism, but also causes me extreme discomfort. There's been times I've told a person to speak to him, and they would still look at me and speak at me.
Woman: "lord give him a better life"
Shane: "I am happy with my life"
Woman: "IT'S A MIRACLE!"
🤣
I would have told her I'm broke and can she pray for me to get money 😉
I have a problem walking because of my disability, and had a well-meaning religious person shout and repeatedly strike my legs violently with his fists. Not knowing how to respond I actually thanked him.🤔
Oh, I ABSOLUTELY know how I'd respond to that. And they wouldn't likely ever do that again... :(
@HiltonT69 seriously though. It wouldn't end well for them.
Bless you both for the bravery to address the issues & misconceptions of the disabled community.
My grandson has SMA-1 and, admittedly, the real world frightens me with how he'll be treated. I sincerely hope your words and stories heal/adjust the minds of the clueless. This Grammy thanks you both!❤
The chemistry between the two of you is magical!! I'm sitting on my bed, binge watching your videos and cracking up!! Where there is this much laughter, even in times of utter crap... There is unconditional love!! Relationships are hard, and I love the way you both handle the obstacles that you face, with humor!!! So glad I've stumbled across your channel!! 🙌💪
You two are amazing together! I love that you're setting the world straight on these misconceptions!
I appreciate the perspective and real-life visibility and experience of disability that your channel offers. It’s truly changed my whole mindset. Not that it really matters, but I’m curious about Hannah’s perception of disability before meeting Shane, and how it’s changed.
Thanks for this. I’ve always been mentally disabled but only recently, physically. Covid triggered POTS for me and I’m about mid level disabled. Using a wheelchair was soooo hard for me at first, largely BECAUSE I believed some of these misconceptions
What is with this pots thing 😕 my son now has it bc of covid bless his heart he suffers and he Is trying for disability but it's hard any suggestions? And ❤️ u guys are awesome stay blessed
OMG! So much yes about this video! This has made me think of SO MUCH so if you don't want to read, I get it. First of all, the huge step is just brutal! I have been there. Steps definitely need to be regulated. Second, someone stopped to pray for me at university! I told them no thanks. Not in front of me at least. I remember a guy said I was struggling one time I was at a bar... I set him straight. Third, I remember a time I was at McDonalds. I was sitting in the lineup and waiting for my food. A little girl behind me asked her Dad why I was using my scooter. I answered for him, because it angered me that she asked him and not me. He then told her she should be grateful for her legs. I told him that I could walk short distances and had a great life. Fourth... I remember one guy in high school. I liked him a lot. He liked me too. Everyone knew that. Everyone could tell. Yet he wouldn't date me. Why? Because of my disabilities. Fifth, a few years ago, my hubby got asked how intimacy worked for us. If you haven't noticed, I'm pretty outspoken about my disabilities. Lol
I love your channel. I love the way you communicate with each other, tease each other, and support each other. All couples should be so lucky to have what you have! You are helping me to grow as a person and challenge some of my own misconceptions about the disability community and interabled couples. Thank you for sharing your information and perspectives.
“Makes my brain fizz” is my new favorite saying lol
Hi Shane, Hello Hannah!
I accidentally came across one of your short videos today, and I decided to watch a few of your videos, I’m already loving you guys!! You two are amazing people, very smart, humble, honest and funny , wishing you guys all the best in life and more happiness … can’t wait to see more of you two .❤❤️
Btw, you guys are going to be my #1 UA-cam couple from now on! 😉😁🫶🏼🫶🏼
i'm glad you guys brought up communication being important in intimacy. When I went to massage school, my final project was couples education - I would work with a couple and show them various massage techniques that they could use with each other. I was shocked to find out that couples don't touch each other much. I was also surprised that I had to educate them to communicate with each other about what they like and don't like, and that if someone didn't like what was being done, or needed it corrected somehow, it was not a personal attack.
How not to fall in love with Shane with such a sassy and comical personality 😂❤❤❤
I just came across the two of you and I am absolutely in love with you both. My son is 30, he was born with Spina bifida and at 10 diagnosed with Autism. You guys make me laugh and smile so much watching you. Thank you for setting the record straight on so many things. Keep up the amazing work!!! 😘🙏❤️
Здравствуйте, Ханна и шейн! Я ваш подписчик и пишу вам из Росиии а точнее из глубинки Сибири! Я с большим удовольствием смотрю вас,какие вы молодцы! Как вы любите друг друга и продолжайте всегда быть вместе,это так впечатляет! Вы просто супер. У меня у родного брата, такое же заболевание было как и у тебя Шейн! Мы его сильно любили! Но,болезнь забрала его в 2015 году. Я очень с большим восхичением смотрю вас!🙂 дай бог вам,быть вместе и быть здоровенькими! Я вас крепко обнимаю. 🤗🙏
Love you two so much! I believe in your love! My father worked hard his whole life blind from a childhood accident, my mother manic-depression-also a disability! They divorced when I was 17…Now, I am 70 getting a body of artificial bones😊 back, hip, knee. Lots of disabled folks in my life…highly inspirational! Keep up the great work.
Call me crazy, but I think it's strange that people are tacky enough to question or worry about your intimate lives
These people are super passionate sometimes too. And they’ll belittle fans for being “gullible”
I think it's normal to be curious...but not to ask! Lol
@Lorraine Sampson Colon I'm not sure what you mean by passionate? & I can't say I recall where they've belittled anyone. Please explain?
@Amanda O yeah, asking would be insanely rude, but people still feel that they can. I tend to think of my own life, & never have I ever been asked for specifics about if or how my spouse & I navigate our intimate life. Not by those nearest & dearest to me, nonetheless by strangers!
Unfortunately when you live with a disability, people seem to think they have the right to ANY & ALL of your personal information. 😕
“And then you ate the eggs Benedict and tator tots. Was that the brave choice?”😂 I just love you guys!
How dare anyone question a happy,married couple have children or not!! Love u guys
My husband would stand by that being married to someone disabled is like having a kid. I agree, in our circumstance. He has to help me dress, sometimes bathe, feed me (not fork to mouth, just handing me a sandwich etc). It makes sense to us to compare it with having a kid. But it’s not like that for every couple with disabilities. I think this coupled relationship is so cute, their banter is adorable. Keep being awesome you two!!! ❤❤❤
I have mental and physical disabilities. (6 mental and countless physical ones such as bipolar and severe asthma).
Honestly, y’all are living the dream, I wish I could get my husband to be on the internet (in videos) with me! Let Shane & Hannah be an example that putting yourself out there like Shane did in that Rainn Wilson video can sometimes bring the best people into your life! I love your story!
As to the caregiving part of your podcast. Caregiving is an everyday part of your life, whether it's with yourself, your kids, your significant other, friends, parents, siblings, or whoever. It shouldn't change or make a difference if the person is disabled or not.
Also, the two of you are amazing and a breath of fresh air.
❤️🇨🇦
Oh my gosh!!! The scream praying hands on the forehead is the most awkward experience ever!!!! I had that exact encounter at a bus stop because a woman apparently felt sooooo bad that I am blind. I was like *uhhhh what is happening right now* as she proceeded to scream pray and cry. AWKWARD.
I hope you have a good day, know that JESUS died for you and loves you so very much!
I love watching your channel. You both have a great sense of humor and we, your viewers, can see you are in love. I just had my 35th wedding anniversary. My heart still speeds up every time my husband enters a room. I wish for you two to have a long, happy, and challenging life together. Working together through the challenges is really hard at the time but afterward love is stronger (speaking from experience.). Always be true to each other and please don’t let negative comments influence you. Being there for each other, and keeping your sense of humor, will be very rewarding. Thank you for sharing your intelligent, thought-provoking comments with us. Be good or have fun being a little bad together. (Wink)
hi Im dharwin, from Philippines.. also a Person with disability (wheelchair user).. i really love watching you both.. i can relate to shane's situation.. praying also that one day i can meet a girl like hannah , who will truly love and accept me.. thanks to you.. you guys inspired me.. Godbless
I recently discovered you both and can’t stop watching! I’m so in love with your relationship, candor, and humor. And just when I thought I couldn’t be a bigger fan, Hannah wears an eagles shirt. I may be a few months late on this pod but never a bad time to say GO BIRDS!!
Had the most wonderful interaction. Upon being asking about the gender of our future baby. I told them we were not finding out and they responded “as long as it is healthy.” And a guy overheard and said it doesnt matter “you will love them either way”. And i thought about how people consider disability as completely unhealthy or sad. And it warmed my heart
I think you’re both blessed to have each other. Your love is so beautiful.
I find it disgusting that it is necessary that you guys have to have these types of informative videos on such personal topics. I just love watching you guys! Your banter keeps me in stitches. Ty for the laughter in this sometimes unkind world!
I don’t pity you. I’m inspired by you! You are agents of change on many levels! ❤️
Shane’s book is called “Laughing at My Nightmare.” Hannah said here that it doesn’t make sense for people to think it’s remarkable that he still has a sense of humor despite the circumstances. It seems like Shane’s notable and remarkable mentality to laugh and joke about his nightmare is why his book has that name.
Here are two of my favorite stories of people reacting to my disability, one that was very uncomfortable and one that was absolutely hilarious: Once I was dropping stuff off at the local thrift shop and the owner noticed my legs and was like "oh I'm so sorry, bla bla..can I pray for you?" I said sure, thinking she meant at a later time, like of course lady pray for whatever you like. Then she took my hands and started praying with me then and there. I didn't really know what to say and I didn't want to make HER uncomfortable, so I went with it and bowed my head, trying my very best not to laugh. I went about my day after that but I wish I'd said "Ma'am, I think you're more upset about my disability than I am, and that you should pray for your own peace of mind."
Another time I was standing in line at the grocery store, it was moving slow and we were all talking to each other and joking about how everyone makes the same rounds on grocery day, small town, limited options. Pre-punch line context, I have lymphedema, my legs can get huge, usually people think I'm wearing crazy pants or boots, happens all the time. So this one guy I was talking with says to me "young lady, are you smuggling cantaloupe?" I nearly died of laughter! When I revived myself I said, still laughing, "no sir these are just my legs" and his face went white with embarrassment. He apologized and I said "no you're fine, it happens all the time and that is far and away the best one I've ever heard, you honestly made my day." And thus a friendship was born.
I've always been very polite and very humorous, and it doesn't usually upset me when people act weird about my disability. I kind of just laugh at them, occasionally laugh with them, sometimes if they stare I just make direct eye contact to make them feel uncomfortable. I really should work on my witty comebacks though.
Those are hilarious stories! 😂 Thanks for sharing.
I wish more people understood lymphedema and Lipodema including doctors
@@mb-the-enby there are so many haha glad I made someone else laugh.
The grocery story was hilarious! I have Apert Syndrome, which is a deformity of the hands, feet and face.and I'm the same way about people's reactions toward me. Every once in a while, I get a kid staring at me and I usually wave at them and generally they wave back. I used to work at Best Buy and a few times I had a kid ask me why my fingers are like that (I have 4 fingers), I tell them that I was born like that (not exactly accurate but I like to keep it simple), the parent with them is usually white with embarrassment. I don't mind it because it breaks down barriers. I asked my manager if they got a shoplifter, if I could show them my hand and say "this is what happens when you shoplift" he very sternly said "NO".
I love your response to the praying woman. If that happens again maybe you could say after the prayer "hey...but I still can't walk...I guess God just doesn't like you, oh well."
Because Shane has helped so many people, God brought him his perfect match of a wife. Thank you for sharing your experiences. I became disabled in 2014. Hearing both persepctives has been great. Hearing Hannah's experiences as a care giver, helps me to understand a spouse's perspective.
Hi guys! I now find myself disabled by a TBI a year and a half ago. I found your channel and love the chemistry between you. Thanks for addressing how people see disability. Mine is different but you are taking on a huge job by being patient enough to educate others. Thank you !!! So glad I found you!! Glad to learn from any content you put out and happy to make you new friends!! By the way, my husband has Parkinson's Disease and I will be caregiving for him as he ages. Thankfully he has been caregiving for me since my accident. I appreciate your open attitude about sharing both sides of your relationship as both my husband and I are both on two sides of the situation . Cheers!!!!
It has been an eye-opener to hear of your experiences, and I am grateful for you sharing. It means alot to me to understand my own disability. Being handicapped myself, though somewhat minor, I haven't had a lot of experiences from strangers, but I have had some. And the people who want to pray (they get me on the airplanes)...well, I didn't even associate it with my handicap the first time. The next experience I had, I did, and I declined. But they went for it anyway. I smiled and looked away.
I actually am beginning to remember some instances. Once I was at a hi-school theatre workshop and was in plays, etc there. Well, one of the guys there I thought was sweet on me, and then he said it was just amazing that I would go on stage (ie with my handicap, a brace accompanied with a limp-I was the only disabled person there). I stuck with him being sweet. It took me years to really realize/accept his prejudice toward me, sincere/sweet as his comments seemed. I am 70 now...I know that must sound crazy, but I couldn't believe people would think this way about me.
I have to admit, regarding movies, tv shows about disabled people, I see how they are so often depicted as angry, which really bothers me.
I worked for awhile in an institution for what used to be called MHMR (Mental Health Mental Retardation), and I have seen what can happen with a disability like Shane's when people assume a mental disability with it (apparently from the comments he has shared). Indeed, in this institution, because they had not other place to put her, was a young person with MS. She did not have any mental dysfunction like many of the residents with her. But I really don't know what that meant for her. She was a delight to talk to, as many of the residents were unable to carry on normal conversations with her, but she made friends, but was also lonely.
I am heartened to see the acceptance of Downs Syndrome and Autism more and more, but it is all very slow, and sometimes 2 steps back. Much work to be done, and so appreciate what you both bring to it. I know I am still learning about people with disabilities (even though I have had a physical one all my life) - those with very different brain processing; those with trauma of all kinds, and the physical disabilities as well.
Thank you both for this episode!! My husband and I have heard so many of these misconceptions over our 23 years together! I have Cerebral Palsy and especially while/after I was pregnant with my sons we used (and still do occasionally)get wild comments from people!🤦🏼♀️😂
Excellent points brought up about misconceptions.i have experienced some of these and especially disability porn.most people certainly do not know me and thus have absolutely no idea about the fact that i have a Ph.D. and five other degrees including my fields of rsearch....very disconcerting
More power to you both for arousing proper awareness
Too many people are sunk into the center of their own distorted universe and can't see beyond their pathetically limited view. They can never fathom that people's "disabilities" can actually broaden their horizons and make life richer and more nuanced than the sad prison of self centered importance.
Love this!!! Also have to say that I had quite the chuckle listening to you and Cole figuring out "elevator choreography" when the girls went ashore!!! Just keep being yourselves and doing what you're doing. The world might even catch up one day.
Wow. I have changed my perception. The good intentions and empathy many 'normal functioning' adults have could be misplaced.
As a non- native English speaker situated in an environment where standard English is not used, I find myself learning some English listening to Shane. 💙
I love you two! ❤ you are both so fun and totally awesome people! Thank you for this video. My son is autistic, my family suffers with anxiety, depression, ocd, and even cancer. All of these are a type of disability as well its just on the inside and people can’t see it. Thank you for showing the world that a disability doesn’t mean your life isn’t happy!! 😊
❤❤❤
PS I am also in MN so cool that you guys are too!!
I love you guys so much! Keep breaking down the ridiculous barriers that separate us! And BTW Shane - you were responsible for the Airbnb mess up! 🤣