I have a physical disability that causes me severe pain, I can barely walk, barely go out of my house, doing hobbies I love, sleeping comfortably. I would take a cure in a second
I’m perfectly happy with my blindness. Despite my family wanting to be not blind, I really don’t care what they think anymore. I would happily turn down a cure.
I'm glad you are confident in your sense of self! This video has certainly been controversial, but I'm glad it's a conversation people can have and see the differences in opinion. :)
I'm sorry to hear of your difficult situation. It is very true that I am privileged to have the resources I do here. I know that it can be very difficult to have access in other places. Sending positive thoughts your way.
I feel the same! If there was a magic cure that would restore my eyesight, I’d pass on it. My vision loss forced me to grow and adapt, it gave me the ability to have empathy for others and not just sympathy for myself. My dearest friends are all blind or have low vision. So many good things came into my life when I went blind, I wouldn’t trade those incredible blessings just for convenience. Great topic of discussion!
It’s so important to remember the good, what we’ve gained, and how we’ve grown because of vision loss. I’m glad you’ve found so many positives in the challenge :)
@@UnsightlyOpinions I’m with you and @burnttoastspacegirlfriend8769 I have a rare disease where my immune system is destroying my retinas, it was diagnosed a few weeks before my 55th birthday. 7 years later hear I am living a full life. Almost all frustrations I have now are due to people who think cure is the only answer and those that gatekeep or block accessibility. I live in the UK and if I’d been promptly directed to the accessibility tools I needed (the doctors already knew the damage was irreversible) I wouldn’t have had to sink or swim alone for the first 9 months after diagnosis. I actually learned more from blind people on UA-cam than the the official and (supposedly) professional channels here in the UK. Thank you for being one of the people I learn from Tamara.
I can ask the same question. Do I wish to be able to have 2020 vision. And I say no and they ask me why. I say well I never had 2020 vision. I’ve been blind since six months old. And I’m happy and living my life The way I am and I embrace it.
I know what you mean. I've never had even remotely close to 20/20 vision so you get used to what you know and it's good to embrace yourself as you are. :)
Absolutely agree with you. I’ve been legally blind for most of my life and have accepted it and have learned to live an independent prdiductive life I would have if I hadn’t lost my sight. 😊
I know people with many different types of disabilities who feel this way. It's important people know it's okay to be okay with who you are. It's not a message I was ever presented with growing up. I was always told I was different, worse, not good enough. It took a lot of work to learn to love myself as I am. I'm hoping the younger folks who may come across this can hear that and be okay with who they are without the struggle I went through.
I’m disabled. I have AuDHD, Dyslexia, Dyspraxia, Dyscalculia, PTSD, Chronic Pain/weakness/fatigue from a Neurological Condition and Post Covid syndrome and that’s just to name a few. I’d gladly take a cure of any/all of them
I’m facing some vision issues right now. At my age (55), losing my site completely would be devastating because I haven’t adapted. Yet. I would eventually adapt, but it would be difficult. A lot of my life would have to change. I drive everywhere. Public transportation is horrible here (Durham, North Carolina, USA). So, for me, I would want the cure. Now hearing? If I lost my hearing, I would be fine. I know sign. The problem? Most people don’t know it. But we have cellphones for texting.
I know there can be a lot of different opinions about cures and what someone should or shouldn’t aspire to be, but I’m glad that I’m not alone in my convictions. :)
I think it's one of those things where I worry about when a cure comes around for a person with a disability that for some reason the people who don't have that disability feel the need to have an opinion on the cure. We see this a lot with deaf people for example and the conversations around hearing implants. People have a misconception and misunderstandings about these implants and because of that the implants might even be less effective because a person who has an implant doesn't necessarily have perfect hearing, they may be able to hear in some aspects but not in others and when a person sees the implant they may think that the person has perfect hearing but they don't, not always. I would love for if there was a cure that it was completely the choice of the disabled person but it often is not the case and often these things can be forced on to people and there is not really a consideration about how the cure mayor may not work in some cases or things like that. The other thing I worry about is that insurance companies would start pressuring people to take on a cure as the only thing they will cover and if they don't have the cure then they're not going to cover anything else. They're not going to cover their walking canes or they're not going to cover their interpreters or their, anything, because the insurance company sees that there's a cure and pushes that when in reality the insurance companies should not be in the business at all of determining what a disabled person or any person who needs healthcare should need.
Same goes for PTSD: At home you are fine (sort of), but it's the outer world that causes the problems. Especially since the barriers for people with mental illness or psychological injuries are invisible. So no one even assumes that those could exist. And in the end, it's the same experience: Ignorance, discrimination and inaccessibility.
Well put... I have a heart condition preventing blood going to my brain while standing, this as well as years of seizures caused brain damage, my brain function just isn't what it used to be... And I'd turn down a cure too. It doesn't make sense to anyone I've spoken to but I'm HAPPY and that's what truly matters. A change to being 'normal' sounds like an overwhelming experience with a lot of consequent changes and I don't want to sign up for that after I've spent YEARS adapting to and learning what it means to be me! It also makes me a kinder and more accepting person because I look at absolutely everyone and recognize that they definitely have their own 'thing' going on, while a lot of people I've met are totally ignorant to the fact that we're all different and can't imagine being someone else.
Yikes! That should be a no questions asked thing. I can't believe they won't pay for your hearing aids. If I did not have the tools and technology at my disposal that I do making me independent, I would want my vision/hearing back too!
@UnsightlyOpinions I'm unsure if it is just the hearing aids themselves or if it is the doctor's office my dad and I go to. He's hearing impaired as well, and he's been stuck with one hearing aid for a while since the other broke.
I'm sighted, but I am also a recovering alcoholic. We ask ourselves this question, too. If there was a cure for me alcoholism would I take it? That answer shifts, sometimes yes, sometimes no. It saved and changed my life beyond all recognition but in a very good way. I'm not sure I would have done all the work on my mental health otherwise.
Yah me too I am ok with me and I think that for me it would be too overwhelming to try to relearn at this point what I can do without I needed this today it’s just a good reminder
I'm glad it spoke to you. It's a message I wish I would have heard earlier on. There would have been a lot less angst and feeling worthless before learning to love myself. P. S. I saw you put in an order. I hope you love your cards!
Just an fyi ❤ Your hair and make up is nicer then I could ever do with good vision. I know you can’t see it like I can, but girl you are beautiful!! Looking great hun!
I totally would accept. If someone came to me and said: "this is a pill that will give you some mysterious 6th sence that normal humans dont experience" - I'd say Yes 😅
I am just now going through it so I am scared so I would say I had hoped they could fix it before I go blind but there is no way to fix it so I am in the process of trying to except this
Я слышала, что те, кто обрëл новое зрение, оказываются дезориентированы ещё больше. Их мозг не приспособоен обрабатывать визуальную информацию, и они оказываются перегружены информационным шумом.
A lack of understanding about accessibility, government bureaucracy either stalling or preventing positive change, social barriers, financial barriers. It’s a complex issue. But good question!
@@UnsightlyOpinions Why is the inaccessibility an issue in the first place is because there is a disability in the first place, this issue wouldn't be an issue if there wouldn't be the disability, which would be the case in the case of the hypothetical cure
so the logic is that instead of taking a pill and joining the rest of us, and spending a few weeks getting up to speed, you want the rest of society to shift and center itself entirely around insert esoteric disability here?
"shift and center itself around" is a weird phrasing to describe "being kind and helpful towards". spoken truly like a person who can't comprehend the concept of kindness and empathy, very interesting
Um just close ur eyes when youre overwhelmed.. if you could have it ur dumb to turn it down, but not hoping for one and turning down a cure are.two very different things..
@raukuracave4714 oh dear the entitlement you feel by talking over Tamara makes you an anus. Next you’ll be telling me I should get my cataracts fixed though they are a secondary condition and there’s no cure for the condition that has damaged my retinas, and continues to damage what’s left of my retinas. If you actually listen to and understand what Tamara is saying you’ll realise you’re calling the wrong person dumb… I suggest you check your mirror. From a 62 year old who has been medically blind for 7 years with the sight remaining (everything beyond my elbow blurred to unrecognisable) steadily deteriorating (the blurry area steadily shrinking so my left eye is a 95 to 97% total blind spot; my right is a 25 to 33% total blind spot. Both dependent on lighting both angle and brightness). We are able to live full lives ( in many ways my life is fuller now than when I was considered “young, fit, and healthy”). So try listening and learning rather than telling us how we should live.
I have a physical disability that causes me severe pain, I can barely walk, barely go out of my house, doing hobbies I love, sleeping comfortably. I would take a cure in a second
I’m perfectly happy with my blindness. Despite my family wanting to be not blind, I really don’t care what they think anymore. I would happily turn down a cure.
I'm glad you are confident in your sense of self! This video has certainly been controversial, but I'm glad it's a conversation people can have and see the differences in opinion. :)
Yes i would definitely take it 🥺 it’s not easy being blind in my country ( Tanzania ) and i only recently lost my eyesight
I'm sorry to hear of your difficult situation. It is very true that I am privileged to have the resources I do here. I know that it can be very difficult to have access in other places. Sending positive thoughts your way.
How you typing 😂
@@yewy100 I use a function on my phone called voiceover which is basically a screen reader. And when it comes to typing, I dictate my words
@@yewy100 There's settings for that
@@yewy100phone settings
I feel the same! If there was a magic cure that would restore my eyesight, I’d pass on it. My vision loss forced me to grow and adapt, it gave me the ability to have empathy for others and not just sympathy for myself. My dearest friends are all blind or have low vision. So many good things came into my life when I went blind, I wouldn’t trade those incredible blessings just for convenience. Great topic of discussion!
It’s so important to remember the good, what we’ve gained, and how we’ve grown because of vision loss. I’m glad you’ve found so many positives in the challenge :)
@@UnsightlyOpinions I’m with you and @burnttoastspacegirlfriend8769
I have a rare disease where my immune system is destroying my retinas, it was diagnosed a few weeks before my 55th birthday. 7 years later hear I am living a full life. Almost all frustrations I have now are due to people who think cure is the only answer and those that gatekeep or block accessibility. I live in the UK and if I’d been promptly directed to the accessibility tools I needed (the doctors already knew the damage was irreversible) I wouldn’t have had to sink or swim alone for the first 9 months after diagnosis.
I actually learned more from blind people on UA-cam than the the official and (supposedly) professional channels here in the UK.
Thank you for being one of the people I learn from Tamara.
I can ask the same question. Do I wish to be able to have 2020 vision. And I say no and they ask me why. I say well I never had 2020 vision. I’ve been blind since six months old. And I’m happy and living my life The way I am and I embrace it.
I know what you mean. I've never had even remotely close to 20/20 vision so you get used to what you know and it's good to embrace yourself as you are. :)
Absolutely agree with you. I’ve been legally blind for most of my life and have accepted it and have learned to live an independent prdiductive life I would have if I hadn’t lost my sight. 😊
That's awesome!
Same for dyslexics it's who we are. And this is or so true for the deaf.
I know people with many different types of disabilities who feel this way. It's important people know it's okay to be okay with who you are. It's not a message I was ever presented with growing up. I was always told I was different, worse, not good enough. It took a lot of work to learn to love myself as I am. I'm hoping the younger folks who may come across this can hear that and be okay with who they are without the struggle I went through.
I definitely wish I didn't have dyslexia.
I have ASD and same but I suppose a cure for that would also rewrite my entire personality so it's a bit different.
I’m disabled. I have AuDHD, Dyslexia, Dyspraxia, Dyscalculia, PTSD, Chronic Pain/weakness/fatigue from a Neurological Condition and Post Covid syndrome and that’s just to name a few. I’d gladly take a cure of any/all of them
I’m facing some vision issues right now. At my age (55), losing my site completely would be devastating because I haven’t adapted. Yet. I would eventually adapt, but it would be difficult. A lot of my life would have to change. I drive everywhere. Public transportation is horrible here (Durham, North Carolina, USA). So, for me, I would want the cure. Now hearing? If I lost my hearing, I would be fine. I know sign. The problem? Most people don’t know it. But we have cellphones for texting.
To be honest, I suffer from glaucoma since birth. For me, I believe there will be a cure for blindness in the future.
If I was blind I’m 100% taking that pill
As someone who’s Legally Blind, I personally feel the same way as You, Tamara.
I know there can be a lot of different opinions about cures and what someone should or shouldn’t aspire to be, but I’m glad that I’m not alone in my convictions. :)
@@UnsightlyOpinions Very true and same
I think it's one of those things where I worry about when a cure comes around for a person with a disability that for some reason the people who don't have that disability feel the need to have an opinion on the cure. We see this a lot with deaf people for example and the conversations around hearing implants. People have a misconception and misunderstandings about these implants and because of that the implants might even be less effective because a person who has an implant doesn't necessarily have perfect hearing, they may be able to hear in some aspects but not in others and when a person sees the implant they may think that the person has perfect hearing but they don't, not always.
I would love for if there was a cure that it was completely the choice of the disabled person but it often is not the case and often these things can be forced on to people and there is not really a consideration about how the cure mayor may not work in some cases or things like that.
The other thing I worry about is that insurance companies would start pressuring people to take on a cure as the only thing they will cover and if they don't have the cure then they're not going to cover anything else. They're not going to cover their walking canes or they're not going to cover their interpreters or their, anything, because the insurance company sees that there's a cure and pushes that when in reality the insurance companies should not be in the business at all of determining what a disabled person or any person who needs healthcare should need.
Same goes for PTSD: At home you are fine (sort of), but it's the outer world that causes the problems. Especially since the barriers for people with mental illness or psychological injuries are invisible. So no one even assumes that those could exist. And in the end, it's the same experience: Ignorance, discrimination and inaccessibility.
Well put... I have a heart condition preventing blood going to my brain while standing, this as well as years of seizures caused brain damage, my brain function just isn't what it used to be... And I'd turn down a cure too. It doesn't make sense to anyone I've spoken to but I'm HAPPY and that's what truly matters. A change to being 'normal' sounds like an overwhelming experience with a lot of consequent changes and I don't want to sign up for that after I've spent YEARS adapting to and learning what it means to be me!
It also makes me a kinder and more accepting person because I look at absolutely everyone and recognize that they definitely have their own 'thing' going on, while a lot of people I've met are totally ignorant to the fact that we're all different and can't imagine being someone else.
AMEN!
I am going deaf and I think I'd either want my hearing back or for my insurance to pay for me to get freaking hearing aids.
Yikes! That should be a no questions asked thing. I can't believe they won't pay for your hearing aids. If I did not have the tools and technology at my disposal that I do making me independent, I would want my vision/hearing back too!
@UnsightlyOpinions I'm unsure if it is just the hearing aids themselves or if it is the doctor's office my dad and I go to. He's hearing impaired as well, and he's been stuck with one hearing aid for a while since the other broke.
I'm sighted, but I am also a recovering alcoholic. We ask ourselves this question, too. If there was a cure for me alcoholism would I take it? That answer shifts, sometimes yes, sometimes no. It saved and changed my life beyond all recognition but in a very good way. I'm not sure I would have done all the work on my mental health otherwise.
Sadly, those who claim to see are blind to the blind.
Yah me too I am ok with me and I think that for me it would be too overwhelming to try to relearn at this point what I can do without I needed this today it’s just a good reminder
I'm glad it spoke to you. It's a message I wish I would have heard earlier on. There would have been a lot less angst and feeling worthless before learning to love myself. P. S. I saw you put in an order. I hope you love your cards!
That is really well said thank you
Preach! I’m with you and back you, though our disability vary.
Just an fyi ❤
Your hair and make up is nicer then I could ever do with good vision. I know you can’t see it like I can, but girl you are beautiful!! Looking great hun!
I totally would accept. If someone came to me and said: "this is a pill that will give you some mysterious 6th sence that normal humans dont experience" - I'd say Yes 😅
I am just now going through it so I am scared so I would say I had hoped they could fix it before I go blind but there is no way to fix it so I am in the process of trying to except this
True if someone told me We can cure your adhd with this pill, Id slap it away and go back to my hyperfixation
Я слышала, что те, кто обрëл новое зрение, оказываются дезориентированы ещё больше. Их мозг не приспособоен обрабатывать визуальную информацию, и они оказываются перегружены информационным шумом.
What is the thing causing that the inaccessibility is an issue in the first place...
A lack of understanding about accessibility, government bureaucracy either stalling or preventing positive change, social barriers, financial barriers. It’s a complex issue. But good question!
@@UnsightlyOpinions Why is the inaccessibility an issue in the first place is because there is a disability in the first place, this issue wouldn't be an issue if there wouldn't be the disability, which would be the case in the case of the hypothetical cure
so the logic is that instead of taking a pill and joining the rest of us, and spending a few weeks getting up to speed, you want the rest of society to shift and center itself entirely around insert esoteric disability here?
"shift and center itself around" is a weird phrasing to describe "being kind and helpful towards". spoken truly like a person who can't comprehend the concept of kindness and empathy, very interesting
Um just close ur eyes when youre overwhelmed.. if you could have it ur dumb to turn it down, but not hoping for one and turning down a cure are.two very different things..
@raukuracave4714 oh dear the entitlement you feel by talking over Tamara makes you an anus.
Next you’ll be telling me I should get my cataracts fixed though they are a secondary condition and there’s no cure for the condition that has damaged my retinas, and continues to damage what’s left of my retinas.
If you actually listen to and understand what Tamara is saying you’ll realise you’re calling the wrong person dumb… I suggest you check your mirror.
From a 62 year old who has been medically blind for 7 years with the sight remaining (everything beyond my elbow blurred to unrecognisable) steadily deteriorating (the blurry area steadily shrinking so my left eye is a 95 to 97% total blind spot; my right is a 25 to 33% total blind spot. Both dependent on lighting both angle and brightness).
We are able to live full lives ( in many ways my life is fuller now than when I was considered “young, fit, and healthy”). So try listening and learning rather than telling us how we should live.