Living with Severe M.E | Severe M.E Awareness Day 2021 [CC]

Today is Severe M.E Awareness Day. 1 in 4 people with M.E will have Severe or Very Severe M.E. It’s a challenging illness to live with and it fluctuates so much with good and bad days. Many people think of M.E as just being a condition about chronic fatigue or it being a chronic fatigue condition. This is incorrect. M.E is a neurological or for some like myself a neuro-immune condition. And whilst chronic fatigue is a key symptom there are many other symptoms.
If you have any questions just leave them in the comments below.
M.E Organisations:
➜ M.E Association
meassociation....
Helpline: 0344 576 5326
➜ Action for M.E
www.actionform...
Helpline: 0117 927 955
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[@HelenePavey]

This is very brave of you to spend so much time explaining this. Thank you. Have you had your B12 levels tested and have you thought of having b12 injections? How are you now, I realise you published this ages ago?

[@jomaxspencer650]

Does ME affect fertility in women's health? Perhaps in the severe ME cases?

[@AGirlCalledNaomi]

Hi, a good question; not one I'd given much thought as I've never been interested in having children myself. I've always preferred to foster/adopt. This was even way before I ever became unwell so the topic has never made me think much. I do have fertility issues but the cause is unknown. I do know of one person who has severe M.E who has a child Jessica Taylor-Bearman (she's written two books on her story of living with the condition). On reading your comment I did some research and there was some mixed results. I always try to go for reputable sources of information so I've found this leaflet from the M.E Association (I'm not sure if you're in the UK or not) but it's not too long like the other link I was going to include: meassociation.org.uk/wp-content/uploads/pregnancy.pdf - Hope I have been of some help. Please do keep the conversation going it is so important to help raise awareness and understanding. Naomi
EDIT: I would guess that like with any condition things vary depending on how the illness affects you so I would guess and from the little bit of research that I did that fertility both in getting pregnant (was difficult for men and women with severe M.E) and carrying a baby for women was more difficult for those with the more severe spectrum end of M.E/CFS.

[@jomaxspencer650]

@@AGirlCalledNaomi Thanks for your perspective on this issue. I did know someone with ME that believe fertility issue is related with the condition. I am from the UK and just round the corner to yours actually. I've not heard complaints from Men with ME regarding their fertility, but I do think as you are an advocate for ME, it's an important area of research you can put forward to the ME associations to consider exploring. I'm on your facebook page aswell and keeping up with your posts. kudos