What's in my Stoma Bag? 💩 | Hannah Witton
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- Опубліковано 9 лис 2020
- Now that I've had a stoma bag for almost THREE YEARS (wow), let's revisit what's in my stoma care bag! You might be thinking... Hannah, isn't what's in your actual stoma bag... 💩💩💩? YES! We're going to talk about that too. Stoma care bag organisation AND poop! What a combo!
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SPINACH STORY...
I was doing a bag change and I could see some spinach coming out of my stoma so I gave my stoma a wipe but it didn't move. So I took one of the wipes and used it to pinch the end of the spinach that was sticking out and I pulled... and I pulled... and out came a very long piece of spinach. It was actually pretty satisfying to watch.
So is wiping your stoma like wiping your bum? And if you got worms, would you get an itchy stoma at night??
I found this video fascinating. Thank you for sharing!
😂 Been there!
I generally do carry the adhesive removal spray. However on flights I can't be bothered explaining the spray to security. So I use adhesive removal wipes. They are slower to use to remove a bag but do work without being painful. I have had to replace a leaking bag on a flight once.
That's definitely happened to me with lettuce!
I would've died if this was like a ten second video and you were jut like "poop. my stoma bag has poop in it"
and then I realized you meant your stoma care bag
that being said, those really are some sexy bags, theyre all sleek and stylish. Like I wish I knew someone with a stoma to give them a fancy gift of those bags
The designs of those bags makes me so happy!
Companies that make super specific products that actually think though the needs of its consumers are amazing. Those designers are geniuses!
How has it been THREE YEARS?! I'm kind of in shock. But then again, this year doesn't really exist in my head, so that might explain it.
THIS. howww!
BTW literally had the same thought
me too!
Dude yes and cool name lol my name is also Larissa
As a person without a stoma, This is still extremely interesting to me
I hope everyone with a stoma knows what's in their stoma bag.
my fiancé just had his ileostomy 3 weeks ago, so this is perfect timing! we've both watched you since before your surgery, but we've been doing a lot of rewatching! ❤
oooh hope his recovery goes well!
@@hannahwitton thank you so much! x
You can get adhesive remover spay wipes which are awesome! I’m my experience if you leak out of one side the other side is sill REALLY well stuck, so a wipe just helps not pull on you skin but doesn’t take up much room in a bag! 💜
Just watching this 1 year later and I do the exact same - I have the adhesive wipes in my emergency kit.
Where can you get these from
I was diagnosed with crohns thanks to your videos. I stumbled across your account about 1.5 years ago and happened to watch a couple about your uc. I went away and looked it up as it was so similar to me. In Jan 2020 I was diagnosed and started treatment that meant I'm shielded during national lockdown, but it has started to give me my life back. I think your attitude towards ibd and chronic illness has helped me to be open with my friends and family about what I am experiencing, and has opened up the ibd/chronic illness community for me that I was unaware of. Thank you for continuing to share and being so open with us about your stories.
thank you for sharing! watching videos of people sharing their experiences really helped me so I'm glad I can do the same for others 💛
Same here! Hannah's journey has helped a lot with my chrons diagnosis
That was hilarious ...you are so honest ...and it actually was fascinating to tell you the truth .can I ask this ...and forgive me if this is too personal but it is an honest question . During sex ...can you just remove the bag and put an adhesive patch on to cover your stoma ? Or is it something you just get used to having when you fool around ? Love your channel !
or does it always have to be on ?
I love poo stories >.< I have stomach issues so I get some abrupt violent gotta poo now situations and I always feel a little comforted when other are able to talk about their poo stories because idk, you can't help it, you're gonna poo at some point (or in some way) so you might as well be indifferent or find it fascinating
You could use the external zipped pocket to put a business card in, just in case the bag gets lost, someone can get it back to you!
I'm a nurse on an ITU and we get patient's post stoma surgery all the time. I love to hear your views and stories as its a different insight and I hope it helps me help my patients better as we don't actually get any official training on stomas. The stoma nurses are already the experts so general nurses don't get any specific training we just learn to check stomas are working and help change and empty bags until the person is ready to do it themselves and has been taught by a stoma nurse. I actually had young patient recently who had emergency surgery that resulted in a stoma. They were obviously very upset about it and I told them about you Hannah. I wrote down your name for them so they could watch your videos, which I did see them do later on. So thank you for helping me help them!
3 years?!?!? Mad. Time is a lie.
As a nurse I have a recommendation we use, and can be brought online. Adhesive removing wipes.
I use them often on clients with sensitive skin and they work great.
Some companies also send samples, so you could get a couple and keep them in your small bag, just incase.
Or you could teach people how to heal and get healthy instead of thinking cutting them up is a cure. It's a drug business and incurable means for drug companies which doctors are the salesman for them and you're their little worker.
Hannah, here is my poo story. My stomach died and it was removed laparoscopically by four surgeons working as a team. When I was in my hospital room, they wanted to know when I had my first bowel movement after surgery. When I did , I was elated and "rang" for the nurse. When the nurse came, she asked me what my poo looked like. I said, "Chili." I didn't realize until later that I had accurately described the bits of intestine that had fallen into my small intestine during surgery and came out the other end. I thought the nurse was going to vomit. So, I have lived without a stomach 21 years and counting.
WE WANT THE SPINACH STORY. PLEASE AND THANK YOU.
Having a stoma when I was between 10-12, I was so conscious especially when I had mine reversed. Being almost 30 now, kids having a woman like this to help normalise this is so great. Well done Hannah :)
Hannah, its just been the 1 year anniversary of my ileostomy surgery. I cannot thank you enough for all your videos about your journey - it really inspired me and helped my mental health. Thankyou thankyou thankyou 💕
Have you got Instagram?
@@ostomyonline259 anna.ostomate :) xx
I actually used to work for a company that supplied stoma care stuff, and I used to sit and cut 100s of stoma bags to specific sizes and shapes and honestly the most relaxing and fascinating job I’ve had
Poo talk is THE BEST
Actually I didn't know about stomas until you got ill and started talking about it, at first I used to watch those videos just because I was so worried about you and it make me really happy to see that you where doing fine. The thing is... time past and I GOT OBSESSED and I study biology so is also kind of my thing being marvel at every little thing.
Also last year my grandma got ill and got a stoma but while it was such a shock and traumatic experience now SHE IS FINE. During the process we spend so much time with the amazing nurses that took care of her learning so so much, they are the most fantastic and wise people ever.
Thanks so much for what you do talking about this topics and normalizing them.
I know that I really don't know you but, in a certain way, you have been in my life for so many years that it became important to me knowing that you are safe, healthy, happy and curious about poo of course :)
My grandmother had colon c*ncer (censoring bc talking abt this around ppl w IBD can be upsetting) and to her, having a stoma was her worst nightmare. Older Irish catholic ladies don’t like the thought of internal organs becoming external and leaking. I’m glad your grandmother doesn’t feel the same and is doing well now 💜
One of my best friends has a stoma and your videos have helped me understand her condition way better. Thank you ❤️
Spinach story - stat! 🙏
Is it weird that I find pockets and compartments super satisfying? This video ticks all the boxes!
I started following you pre-stoma, and back when I thought I had IBS (cut to my flexible sigmoidoscopy, oh Isobel you sweet summer child). Your videos have been such a comfort and really helped to demystify ulcerative colitis, especially as my mum has it too and growing up all I knew was that she took tablets and was in pain a lot. I’m grateful that my case is currently considered mild, but if anything escalates in the future I feel like you’ve armed me with so many tools - practical and emotional - to understand my body better! This is a very long-winded (pun not intended) way of saying thank you!
Thank you for making all of these videos on uc and stomas! Seeing someone I follow be so open about something I've struggled with my whole life (uc) and was afraid might happen to me (ileostomy) is beyond comforting. It has made me more confident and unashamed to share that I have uc with people. Keep being wonderful ❤
Hannah I love how open you are! As someone studying for the healthcare field, this stuff is really interesting to hear from a person's perspective
Dear Hannah, my daughter has just had surgery for a stoma. I just want to thank you for your video and you beautiful positivity. You are inspirational xxx
I’m a nursing student and had my first experience with patient’s colostomy in clinicals today. Thank you for being a great information source!
For places where there are 'no counter space sinks', a purse hanger might come in handy. You can use them on the edge of a table or some are even magnetic which might be handy
Hannah you’re voice is soooo soothing!! I could listen to you talk about anything! ☺️💞
My husband uses adhesive wipes instead of the spray very good for travelling
Love this!! As someone with a chronic illness with a lot of 'kit' I need to carry, I appreciate seeing how other people manage all their bits!
I'd say bring the adhesive spray. At least for me personally I do, if its not off a good chuck you will have a hard time getting it off. I'm also a hairy person and even with the adhesive I sometimes rip a few hairs out (I do shave to prevent this most of the time). I recon it would be somewhat painful for me otherwise haha
Food wise coconut does some weird stuff, its all like..stringy. 😅
coconut hmmmmm.....!!
I could imagine there are small bottles of that spray, so you don't have to bring the big one?
@@42donotpanic8 Not seen one tbf. Then again their are loads of products on the market so a travel spray might be possible.
Thank you so much for your videos about your stoma, your health, and what you've gone through. I have watched all the videos in the stoma playlist. I want you to know that you have saved me today. Literally! I truly cannot thank you enough from the bottom of my heart. I appreciative you and who you are. For being brave enough to share with the world your story. That takes great and incredible strength to do. You've given me hope or as I like to call it sunshine and rainbows when I feel like I'm in the most darkest place I've ever been to in my life and trust me, I've been in some really dark and bad places but nothing like I've experienced the last couple of weeks. So thank you again. I don't feel so lost and alone. I feel like there's hope. I knew I needed to find more information about stomas and how it all works from surgery to living with a stoma and everything that comes in-between. I did a Google search and read a few well known medical facilities pages on stoma but they just give you facts. None of them gave me what I wanted. I wanted actual visualization of stoma placements, surgery procedures, real talk. Real information from someone who's gone through it. So I clicked on the video tab of the Google search and there you were with a video where you show your stoma to the world. Real talk and real experience. Exactly what I needed. My back story really quick. I went through radiation treatment for prostate cancer in December of 2018. Starting in May of 2019 I was having internal and bowel issues. Within the next few months after lots of different tests and exams I was finally diagnosed with radiation colitis. That has gone on constant with no relief for the last year. Two weeks ago after my last colonoscopy, which had to be done because I had the gushing blood out of my butt like you experienced, I was told that I have a hole in my rectum due to radiation treatment about the size of a kiwi, right by the prostate. Right in the line of fire from radiation. That hole will never heal because radiation damage like that doesn't allow the tissue to heal and that I will need to have my bowels diverted to the stoma. This was all so foreign and weird to me. I didn't like it, I didn't want to have to deal with this, I didn't want to have to go through this, especially after the last two years I've spent in hell from radiation and radiation colitis. But here I am self-educating myself, learning what the doctors don't tell you, and feeling so appreciative and thankful for you and your real talk. I look forward to watching all your other videos and your future ones to come. Thank you again and again and again for these videos they have turned me completely around. You're the best! Take care and many blessings to you. Keep being fierce.
I love to see the confidence you've so obviously built up. It's very clear that you now know what's what, what works for you, what doesn't. I hope it works as an encouragement for folks who might get a stoma in the future and are possibly a bit scared or intimidated.
As med student I love hearing about all the fascinating details
As a very recent member of the stoma club, it's been so helpful and refreshing to hear you speak so honestly about your experiences. So I just wanted to say thank you! And I love your channel!
Omg! I can totally relate! I don’t have my stoma anymore but I definitely felt a weird sense of satisfaction cleaning a full bag and being able to see the contents. You were the first video I watched when I got my stoma bag and your content changed my life. It made me feel like what I was going thru was ok. Thank you so much for your openness
YAAAAS! Love this!!
Ask your Stoma Nurse for some Adhesive Wipes!!! They are like the barrier wipes, but remove adhesive! ❤️
Love this video!! As someone with IBD (crohn's) the possibility of ever getting a stoma bag had always terrified me out of my mind as I was once told I might need one but your videos about ostomies really helps reduce the fear as they stop it all being a big unknown.
My grandma has a stoma so it's super fascinating and helpful to understand it better x
Love your description of the bags :)
really interesting video!
that larger bag is so cool for having the middle/bottle section, I wish that was an option for different sort of bags
I'm a carer in a nursing home so am used to changing stoma bags etc.
Had no idea about the filter!
Love it!
I am 100% getting one of these for the guy I'm seeing's Stomaversary next year!
Another ileostoma wearer here. I use stoma paste and was surprised that you didn't need it. Needed since Feb 19 from after effects from pancreatitis. You're a wonderful example to those who deal with this appliance every day.
"I like to bring it up while eating" 😆 ... You have no filter, Hannah (a bit like your stoma)!
Haha makes sense! She probably sees things on menus and is like “nope can’t eat that it’ll come out so weird”
Had Ileostomy surgery last week and between you and Let's Talk IBD I have been feeling more comfortable about my stoma. Thanks!
Hannah I found this fascinating, thank you! I can't believe it's been 3 years??! Also can we address the no advertising on this video please, is there anything we as viewers can do to lobby for advertisment to be added to your video(s) ? Lots of love xxx
Hannah, I know that your openness about your stoma has to be helpful to others with a stoma. Thank you for being a role model for them.
I just want to tell you how much I appreciate how candid and informative you've been about having a stoma. I have IBS, at least one diagnosed instance of mild diverticulitis, and my family has a history of colon and bowel cancer. I feel like my chances of needing a stoma some day are definitely above zero. These kinds of conversations make me more comfortable with my body and discussing bowel movements, a thing that benefits me greatly NOW, and also gives me... I guess some sense of comfort in case I need a stoma myself some day. I'm also one of those weirdos fascinated by other people's bowel movements and I wish there were a lot less shame about these topics, so thank you for these videos. Keep it up!
The day to day bag is super cute and stylish. Looks like a clutch. As someone w/o a stoma,don’t be nervous carrying a bag like that bc no one would be any the wiser
I love when you talk about poo so feel free to keep the stories coming!
Olala I'm so happy to had discover your channel today!! 🤩 You are so positive & funny & inspiring!! It was recommended to me by someone on a comment section on another channel (the magic of internet : I asked for recommendations because I wanted to improve my English). I love your content and your speaking is clear to understand for me! Thank you so much for your videos 🤩🌼🌞🌸🌳🎉
When I did my first bag change after leaving hospital and switching bag types I didn’t know that the charcoal filter that’s adhered to the inside of my bag would come unglued and just float there. Imagine my surprise when I saw a black seaweed looking object ejected from my output... when I don’t even eat seafood or sushi or anything that could remotely resemble the mystery floater. Took me a second to figure out what happened, but fortunately I put two and two together lol.
I don't have a stoma. But when I was diagnosed with UC your channel really helped me. We still haven't found the right medication for me that keeps it at bay, but I feel way better. Steroids are my jam know. But for the mental part your channel been the best! Thank you ❤️ (btw also like to talk about poop know with everyone. :D )
Bodies are fascinating, would love to hear the spinach story even during lunch. I have never understood the stigma, I love talking about weird bodily functions!
Love your advocacy work Hannah! Thank you so much.
Top tip from me... Use Trebor mints in your bag after every time you empty. It reduces any odors significantly! Although you'll never look at Trebor mints the same way again!
As someone with a Stoma, this is very helpful! Thank you!
Hey beautiful I have the same thing as you. Same scar everything. I’m so happy I found your channel. I have always been embarrassed of my stoma. Thank you for making me feel better about my condition.
I like how there is a "💩" in the title of the video. 😂
Hannah I'm stunned that it's been three years!
the design of those bags brings me joy ohh yesss
THE HOOK/SHELF SITUATION THATS SO CLEVER
also unrelated but i really love that top!!
3 YEARS! I Remember you being so so poorly and then having the op. I can’t believe it’s been that long! X
I have an ileostomy and related so much!! I use adhesive remover wipes. I’ve never used the spray, but wipes are definitely easier to pack. Also, I ate olives on nachos tonight and 100% have little chunks in my output.
Hi Hannah! I can confirm that having adhesive remover spray in your handbag is a must. I don’t have a stoma at the moment but I used to, I had an ileostomy for 18 months, currently have a j-pouch, looking at pouch reversal because of antibiotic-dependent pouchitis and infliximab doesn’t work. Anyway, my stoma was quite high-active, I needed to do an emergency change every now and again. And when that happened, only a small portion of the adhesive failed, so I definitely needed the remover spray to help with the rest of the bag. And there’s one memorable time flying when I needed to do an emergency change on the plane. Twice. On the same damn flight. I was only going to Rome, not a long flight from London at all! (I should point out that the flight home was fine, I didn’t have any issues that I remember).
But the worst part was always the middle-of-the-night leaks where I woke up completely covered from my waist to my knees. 3am shower, completely strip and remake the bed, the whole shebang. After that happened three or four times I had to set my alarm to go off roughly every 3 - 3.5 hours. It’s no wonder my stoma’s name was Etna!
I’m fascinated too...I haven’t got one so this is so interesting to me.
You are such an ambassador for the Stoma Community👍🏾
Having lived with a stoma (ileostomy) for over 43 years now, I'm really happy to see products coming out that help people organize and travel with ostomy products. I've always had a fear of having to change the appliance in a public toilet and I can see that the travel bag, in particular, would be helpful. I will say that having a stoma desensitizes one to all sorts of socially unacceptable experience and there is a tendency to talk comfortably about things that others find offensive or repulsive. As to foods, the ones that I can see that you didn't say: nuts, coconut, and fresh pineapple.
This is entirely unrelated to the video, but your rings look so nice together!! 🥺
How have I been watching you for over 3 years?!?! I was still in high school when I started watching you 🤭🤭🤭
I had a massive leak seeing my surgeon a couple of weeks after my surgery. She luckily had supplies in her office cause I was a newbie and didn’t have anything with me. It was a mess I had to rinse out my pants and wear damp pants. From then on I always carry extra yoga pants just in case with my supplies. Cause you never know. 🌸
I don't personally bring an extra bag with me but I do have wipes with adhesive remover similar to your skin protector ones as complement to the spray so maybe you could look those up and bring them instead of the spray?
Those bags seem very convenient for other disabilities as well. There are so many medical supplies that are difficult to store and bring with you... I am gonna recommend it to a person with a feeding tube, it would be perfect for those supplies!
Thank you so much for sharing your story. I had a complete cholectomy in February. I still have my rectum and refused a stoma at the time. After being attached to many medical devices over the years I didn't want to have another. I was hoping things would function normally and I wouldn't need one. Unfortunately that isn't the case. As time passes things keep getting worse and it's become unbearable. So in a couple of weeks I'll be getting my stoma. You'll have to help me name her lol. Your videos are a great educational resource for me. It's nice to learn from someone who had been through it because you know more than anyone what it's like.
I need one of these! I don't have a stoma but I use an insulin pump and the shelf thing in this bag would be a dream when changing my pump in a gross public bathroom. I'm late to the party but these are great.
Thank you for the videos on this you helped me alot as I prepared to have my surgury and now that I've had my stoma for almost a month now. In your day bag I would use the adhesive remover wipes instead of a whole can of the spray
thank you so much for the amazing content! fascinating watching this as a nursing student, and coincidentally i'm learning about stoma care in school! one question, have you ever used adhesive remover wipes to remove the adhesive residue on the skin? or it hasnt been a problem for you?
I have never used any of those white filter covers in 15 years! 🤣 or come up with an alternative use for them... 🤔
Glad you went to actual contents at the end! The colour changers are the best! Red velvet cupcakes always give me a shock, until I remember I ate one! 😂
I must say, the spinach story has me intrigued!!! 😂
Love the stoma videos! Get adhesive wipes I have them in my emergency kit. About the smells, I get the same thing when I've eaten cool original doritos! Also when i eat raisins alot of them still come out whole 😂
There are adhesive remover wipes! Same size as the individual barrier wipes! Way handier for on the go 🤗
As someone who used to work in care , I definitely remember adhesive removal wipes and adhesive wipes for a bit of extra stick. Might be worth looking into for your mini kit, no one needs to wrestle with a bag mid leak 😬
was v much expecting you to say ‘what’s in my stoma bag? Well, shit.’ end of video 🤣
I bring my adhesive remover spray and skin barrier spray in my ostomy bag whenever I go out. I think it's better than the wipes and worth it. Also the marbling effect 😆 So true! Kind of fascinating how our foods digest differently.
Your comment about having a preference for sinks inspired me to write an essay for Uni! We had to do a piece about making buildings more sustainable, so I wrote about stoma friendly bathrooms as part of social sustainability/inclusivity 😊
"There is a whole playlist if you're interested"
Me: is interested, has watched the entire playlist in 2 days 🙂 this being the last video (as I went chronological)
I dont have a stoma but I have severe IBS and currently am awaiting testing to see if its something more, I so relate to the colour of toilet changing and seeing bits of food too that is undigested, alot of foods seem to effect me and I know alot of them to avoid, sometimes days are not too bad others the pain and bloating makes me want to scream, thank you for this it was very interesting x
A plant based diet is amazing for IBD and IBD
This video is completely fascinating to me. I don’t have a stoma or know anyone who does but I love how you share so freely about yours. You’re doing amazing work to break down stigma and inspire others living with stomas 👏 A couple of questions - do you empty your bag into the sink rather than the toilet? And do you have to change it every time it has any poo in it or just when it’s full with poo? Oh and do you get an output, as I think you called it (sorry if wrong expression!) as often as others need to poo or is it more / less often? Thanks and, again, your channel is awesome x PS I’ve seen flaming hot Cheetos in my local corner shop so someone must be importing them somewhere! 😂
Hannah you can get special wipes with fluids that detaches the "stoma-plate" from the skin. It takes some time to perfect a method that is quick and precise, but the wipes are in the same sort of wrapping as the barrier creme, so it can definitly fit in the small back. Sorry I really don't know the correct words for it in english, so I hope it is understandable.
Hope it helps.
I take my adhesive remover spray with me all the time! When I leak in a public place, it’s usually a relatively small channel of adhesive that’s weaker so the output finds it’s way out - this usually means the rest of the bag is still stuck quite solidly! Also, my brand of bag when the adhesive is saturated (gone white and puffy) it actually gets stickier so I can end up having to pick super sticky bits off if I don’t have the spray!
OMG fish fingers - same! The stench is something else! I can’t even eat fish fingers any more because I just can’t deal with it. Regular fish = fine. Fish fingers = not fine 🤷🏻♀️ I do take adhesive remover out with me, as I think someone else said, it will typically explode out of one side only so the other side is still stuck on. One thing I keep in my ‘at home’ supplies is a tube of pure aloe vera gel - it is MAGICAL for any skin irritation, especially from the slight poop leakage around the hole. It dries completely (unlike a cream) so the bag still sticks perfectly.
FASCINATING.
You can buy adhesive remover wipes, same size as a skin prep or an alcohol wipe
I want all the gross stories! the human body is amazing
you look so lovely by the way!
This was so interesting! I have to say though, I lost it at the fish fingers haha.
Need to know about the spinach!!!
I don’t have a stoma but work with someone who does, she takes adhesive spray with her to work - turns out it’s very good for getting excess sellotape stuff off windows
Marble cake... Ha such a great comparison.
I call it changing of the guard!
Gorgeous bags
Bubblegum ice-cream changes my out put to blue! Most common thing I find is sweetcorn. I send my stoma bag provider a template and they use it to precut all my bags for me. I use that tape too but I put it on at the same time as applying my bag, makes it last longer before lifting.