Knowledge Is Power: Symptoms, Diagnosis & Types of MS
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- Опубліковано 6 жов 2015
- From the National Multiple Sclerosis Society's Knowledge Is Power (KIP) resource for people newly diagnosed with MS and their families. Learn more at www.nationalMSsociety.org/KIP
Thanks to our featured individuals and families for sharing their time and stories: Denise Belle, Stephanie Croswait, Angel Muñiz and Kellen Prouse. And thank you to all the medical professionals who participated: Julie Follett, APRN, Barbara Giesser, MD, Lynda Harbert, LMFT, Rosalind Kalb, PhD, and Gabriel Pardo, MD.
an MS warrior here since 2005,17 years old then...Having faced so many symptoms and gotten so many remedies through all these years..I wish the best to all of you!
How are you now?
@@lucasluc7341 i'm in a stable condition though my MS has turned to Primary/Progr..I receive so many drugs to face my spasticity,depression and I'feel as being a robot alien...Fuckin' exhaustion...Unbearable...
Did you had zingers in your lower back ? Numbness on triceps
Symptom onset for me was 10 years old. The doctors blamed my symptoms on spinal issues! I wasn't diagnosed till I was 43!! I spent a lifetime struggling, not knowing what was happening to me why i was different!! But I went alkaline because disease can't survive in alkaline state, and I started the Terry walls Ms diet protocol and taking high doses of vitamin B12 sublingually!! I have been steadily improving for The last 5 years!! In three and a half months I'm coming out of retirement for my bicycling career and finish riding the miles around the planet, I have 7,401 miles to go and I am riding to raise money for MS!! Oh yeah, I can't take any disease modifying drugs they all have bad reactions like internal organs shut down with me!! Thank you for doing so much for those of us in need!!!
Heading to the coast in 1 month now to ride 1500 miles down to Mexico!! MS warrior since 1983!!
I am touring the coast right now!!! 🌎🚴😁😁😁😁😁
Hey may I ask why you took high doses of B12???
@@adamslilith-art because high doses of vitamin B12 is shown to help regrow myelin!!
Well I have completed the Pacific coast bicycle Tour 2022 with a 120 mi backtrack and a 150 mi side trip I put on a little over 1500 miles from fort Stevens State Park which is basically the Oregon Washington border to Ventura where I had to tap out due to severe arthritis flare up in the hands and fingers and wrists!! But still completed the ms-1500 Pacific coast bicycle Tour 2022 plus I did a 62 Mile in December challenge for St Jude's children research hospital which I have completed soon to be back on Tour!!! 🌎🚴
I pray that eyes are opened , doctors are great . But ms has so many symptoms it takes so long to find . I’m blessed to even find these videos. I hope things winden
My symptoms started after I knocked myself out... It started with brain fog and headaches, fatigue, then over time my hands and toes would cramp up and go numb and I'd get sharp pain in what felt like the bones of my extremities, stabbing pains in my head, back and chest, and the muscles of my ribs and back would lock up then my upper arm on my left side would feel on fire almost like mild sunburn all the while my mental state dived lower than ever before.... Still on the journey to diagnosis I hope to have answers soon
did you get your diagnosis now?? If I may ask.
Welp. I've had multiple systoms for over month now, shaky hands/index fingers, muscle twitches, floaters in the eye when looking at white screens, occasional numbness in toes and very occasional pin and needles in the feet. Neurologist thought it was post covid issues, but got an MRI to be sure, now have to do a follow up which is concerning. Pray for me yall.
Many don’t believe that Parkinson Disease can be reverse treated and cured, all they believe is that there is no cure but I am glad letting you all know that it is all wrong because my friends Mom that has being sick with Parkinson Disease for years just got her Parkinson Disease cured with a herbal supplements from DR MADIDA on UA-cam
What happened ?
@@calebwheeler3118 my neurologist thinks it's this condition called focal cortical dysplasia, have to go back in May to double check tho
@@BMW-sd6nn how are u
@sanjaykumar6599 so yeah, there were no changes in my MRI, but basically once they find something in an MRI they have to keep checking to be sure so I have to go back in three months
I got diagnosed a month ago turned 22. My neurologist said without treatment that the scary thing Is would have had a 60% chance that in 5 years I could have been in a wheelchair, so important to get looked at early, but so hard to get diagnosed, supposedly had it two years prior. This is a great video
Hey, Hannah! What were your first symptoms if you don’t mind me asking pls?
@@trinityp8575 yeah funny thing is I had symptoms I didn't know it was even MS until my neurologist said later.. my first sign was severe vertigo, than vision problemz the month after.. But the ones I knew weren't right was when I I had numbness and tingles from my toes all the way up to my waist and fingers, strange thing was the traveled up completely mirrored and traveled up slowly over days.... it went away than came back again 2 month ago but worse, that's when I went to the hospital, had stiffness in my knees and, and a tight band feel around my stomach.
@@Hannah-hq9xs ok thank you. I am sorry you have it. Seems like such a young age as well, though I know it can happen at any age.
I have started experiencing frequent and urgent urinations for the past year especially. And recently for the past 3 days these strange tickling sensations in legs and arms but not everywhere, rather just as if little spider crawls at one spots for a second and then in a different spots later. Then it stops.
And yesterday I noticed strange twitching sensation in one part of my leg , similar to eye twitching sensation but nothing there.
But no numbness or pain or anything else.
I have always felt fatigued which came and went and some days it’s there and some it’s not. But it was always to do with severe PMS. Recently though I felt tired / fatigued even when not around that time of the month…
Oh the severe brain fog I get also. But that’s again around pMS time.
So after researching the symptoms of these strange skin sensation I came across MS (which also listed all the other symptoms I get sometimes) and I am a bit shocked/scared to say the least.
I will see how the next few days are and then perhaps opt for some blood tests 1st and chat with GP. Knowing how slow and dismissive they are here most of the time unless you are visibly really suffering… not sure if that is it or just temporary thing…
@@trinityp8575 hey thanks for sharing yeah I never knew what MS was and kinda all happened 2 months ago so fast, but really most of the time I forget I have it haha and I'll be going on treatment so I'll never get a flare up again and live a normal life 😁... I used to be tired often and get a lot of headaches too but didn't think any thing of it. they were surprised that my tingles were so even like that it's not that normal to act mirrored that way.. I did get blood work the first time I had tingles. But MS doesn't show up in blood so honestly be better if you go get looked at as soon as possible and get an CT scan, sooner the better if it is the case you do have MS you can get treated earlier.😊
@@Hannah-hq9xs thank you!
Yes I am currently very confused and wonder if it’s due to stress / anxiety / hormones or smth else like MS. Yes, will start investigating further. Thank you for sharing and I am glad you feel good most of the time. It’s really great to hear 😃
Went to the doctor recently. Had a number of symptoms. Doctor didn't outright say it, but ordered MRI, blood tests, psoriatic arthritis, mentioned electrical tests, additional tests.
I'm not dumb, I could add it up. I had a aunt that died of MS.
The doctor ordered a huge battery of tests.
With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on UA-cam medications. Thank you for saving me.......
@@sophiamia3742 what supplements?
@@dancer1 is herbal remedies contact DR RORPOPOR HERBAL with that link 💖
Did you get diagnosed with MS?
Many don’t believe that Parkinson Disease can be reverse treated and cured, all they believe is that there is no cure but I am glad letting you all know that it is all wrong because my friends Mom that has being sick with Parkinson Disease for years just got her Parkinson Disease cured with a herbal supplements from DR MADIDA on UA-cam
I have my first appt with a neurologist in 4 hours since I've been getting symptoms for a while now. 🙃 I'm so scared but also excited to hopefully get some answers. I just wanna feel normal for once. Finger's crossed it all goes well. I will come back to update soon.
How did it go?
@@lalittl it went well. The neurologist asked about my symptoms, then asked me some number and word questions to see how my brain is working, to see if I have any memory problems etc which I do. He then did a physical assessment asked me to walk in a straight line etc and then checked my reflexes and pricked a pin on different parts of my body to see which parts I don't feel the sharpness of the pin to check for numbness. I have alot of numbness in the lower parts of my body but not as much in the upper parts. He referred me for an MRI even though he didn't suspect MS but said that MS would show up on the MRI scan even if I didn't have any symptoms. So now I'm just waiting for an appointment for the MRI. I do suspect MS so id rather know, than continuing to wonder and worry. If u suspect u have MS then don't doubt your symptoms! Its always best to get it checked out if ur worried. Our Health is so important. I hope you don't have it! But its best to get it seen to early rather than wait until you feel worse. I've had symptoms for years but never went to the docs until I started getting worse symptoms so please don't wait! I wish you all the best for the future and please take care of yourself love. 🤗
I've had RRMS for about 25years. You're a conqueror and don't forget that. Stay strong and brave. After all what's life without changes?
@@kirantariq2228 how did the MRI scan go?? Did you get your answers now?
Many don’t believe that Parkinson Disease can be reverse treated and cured, all they believe is that there is no cure but I am glad letting you all know that it is all wrong because my friends Mom that has being sick with Parkinson Disease for years just got her Parkinson Disease cured with a herbal supplements from DR MADIDA on UA-cam
I've recently been getting numbness, itchy burning sensation in my feet and sometimes hands. Blurry vision sometimes. Tiredness and depression. I also get random spasms in my body mostly when I'm relaxed in bed etc.
Hi Han Man, Sorry to hear so. Did it improve or did you get diagonosed? Was your pain similar to stabbing pain. I experience most of your symptoms except the vision but the muscle spasms/ twitches are mostly when relaxed in bed. This is bothering me a lot.
Same!! Did you get a diagnosis?
sounds like some nerve damage
I will love to recommend everyone to Dr Okolo herbal medicine formula who has herbal medicine to cure any kind of diseases... He cured my Dad from deadly disease ALS
Bro I have ALL of your symptoms. What did you do to fix it and how are you doing today?
I got TMS at age 14 now I’m 24
I got diagnosed when I was 15
how are you now?
My MRI report suggests demyelinating disease. So my neurologist told me to do spinal tap test to be sure. But in spinal tap test 'no oligoclonal bands seen it comes. So the doctor says ms negative. The anti nmo test is also negative. But I have one side numbness, double vision, head heaviness, tingling. Tell me what I can do now?
How are u now
Has anyone tried psychedelics for MS? It seems to help with so many conditions
Can you tell me some more
For more information about the Buteyko method you can read the following 2 articles:
- Kazarinov V.A. (1990) "The biochemical basis of KP Buteyko's theory of the diseases of deep respiration"
- V.K. Buteyko, M.M. Buteyko (2005) “The Buteyko theory about a key role of breathing for human health: scientific introduction to the Buteyko therapy for experts”
I noticed tingling in different parts of my body since i was fourteen
I have not been diagnosed.
My head tingles too. In 2016, l stopped walking but later rgained my feet.
No money for proper diagnosis and treatment. My inner ear vibrates when the sound is much.
I know I'm not normal but i don't know how to get help
I'm having symptoms of having trouble in peeing such frequent urinating,,strain in pooping,a little bit of tingling in both legs,pain in groin for 2days but i think got it for doing kegel exercise wrong,every day feel stressed but if i'm not stress its almost like i dont have symptoms. I have this almost 3months now
I did also face some symptoms with urinating in the past..I could hardly start the flow..I wish you all the best mate..
@@andrikos1988 how are you now? yeah i need to wait 4-5 seconds until flow of my pee start. I did not still go to doctor yet if i still have it untill april i must get checked up
@@andrikos1988 i'm only 16 this gives me stress can you give me some home remedies to get this better?
may i ask if what symptoms you have right now?
@@lucasluc7341 my friend just live your life..everyone has their own problems..you are too young to paint it black..just hang out with friends, go walking, travelling,whatever..I'm almost 34 and before my disease became aggravated I wouldn't join my sisters in Italy,England,Scotland due to my depression..Now it's too late..Just try to do whatever you want and don't let anyone let you down or discomfort you.
My sister is 32 years old and she has suffered from meniere disease 🦠 for years and she always complains to me that I had to bought her Dr Madida herbs I saw on UA-cam and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus…