10 years ago, "Well, those don't look like typical lesions." Now today, " it's a migraine" (for 6 days?) "Yep" another MRI on Monday. Bad pain behind Rt eye. She looked and said I have a" pale nerve consistent with Chronic Optic Neuritis." Hummm, is there anything else with that?
@@missannie8012 MS can cause pain behind the eye, but migraine can also cause one-sided eye pain, so it's important to distinguish. With migraine, you would expect to have other symptoms at the same time as the eye pain, such as nausea, sensitivity to light, noise and smell, and just feeling generally out of synch with the world. If there's paleness of the optic nerve, then demyelination is more likely. I'm sorry you're having to go through this. Have you had your spinal cord scanned as well?
@@ladystrange4769 If you've got lesions in the spinal cord as well as the brain, then they shouldn't be ignoring them. But most neurologists are pretty useless, unless the disease jumps out and hits them in the eye.
Chronic issues are so overwhelming that one wants to solve them but simultaneously feels they should stop doggedly pursuing the issues because it can become one’s life. I pray for everyone with these possibilities, that the right help, doctors or healing come their way. 🙏🏻
Thanks for asking this. In fact, I've been thinking about making a video on some aspects of interacting in the office, giving a history, asking questions, what to ask, etc. I'll mull that over, too.
@@AndrewReevesNeurology I just tuned in as my 32 year old son has been “slightly” diagnosed as “possibly” having MS, but they are basing this on symptoms and two brain MRIs. The spinal MRI is this week. I am subscribing to your channel and I am hoping you decided to post a video of the pertinent questions to ask your neurologist. Thank you for being so devoted to your craft. Signed, a worried mom from Oregon.
I've been telling my Drs for years that something is going on. I have symptoms that cover multiple diseases. I suffer from migraines since I was teen and have white matter. Recently I've started having a tingly/numb sensation all over my head and face along with the joint and all over body pain that I've had for years and tingling in my hands and feet. Tests always come back fine. I suggested MS but because the MRI didn't show anything but white matter consistent with migraines they said no on that. The only thing that can get from anyone was fibromyalgia. The strange thing is when the tingling starts in my face sometimes my teeth even feel numb like I've been to the dentist.
Holly Grimm I have been experiencing the same symptoms for several years now,plus I have double vision and need to wear glasses with prisms in the lenses.I was diagnosed with Primary Myelofibrosis in 2012 and have been transfusion dependent for almost 5 years now.
Have you looked up Trigeminl neuralgia? It affects nerves in your face. However I know that doesn’t explain the issues going on in the rest of your body but you never know where one suggestion might bring you. 🤷🏻♀️ It’s just a thought. I’m not a doctor but I was a dental assistant for many years. Also did you ever have any dental work done where you had a problem with numbness not going away within a reasonable amount of time after injection? There’s damage that can be done to nerves that most people aren’t aware of because they don’t really read the consent forms. It’s not something that happens often but it does happen. I don’t know if you’ll see this considering your comment is a year old but I hope you’ve found some answers & relief in the meantime! Just knowing what we’re facing seems to be one of the biggest hurdles to get over. 🙏❤️
You have B1 deficiency and thiamine deficiency. Take that and you’ll see a difference. make sure they don’t have magnesium sterate in it tho! I thought I had MS and ALS but took those pills and I feel 1000% better
I have Autoimmune Encephalitis, Undifferentiated Connective Tissue Disorder, & AntiPhospolipid Syndrome. My docs thought I might have had MS when I came in for diagnosis at age 14... This makes sense now. I have never heard of a 14 year old with MS. A lot of my neurologic symptoms are so similar to MS. Thank God I do not have it. And I thank my doctors at Duke hospital in Durham NC for being amazing medical professionals.
I was diagnosed when I was 16 now I'm 19 .. I don't think it's ms because my symptoms are worsening and I'm too young for having ms ... do you have oligoclonal bands ?
You are so nice giving facts honestly, disseminating information doctors don't have the time to educate individuals with. I have double vision and major problems with ADL's. Thank you for being so concise. Reading medical articles becomes very difficult when I have double vision. You teach like a university professor. I was educated to be an RN and watched videos similar to this to get my degree. Thank you very much, I will include you in my prayers. 😊💐
What do you recommend for someone who has been tested (MRI) for MS 4 separate times, years apart, at the recommendation of 2 different doctors, because the symptoms are there? "Inconclusive" results each time. Very frustrating, because in the end, all I walked away with is thousands of dollars in medical bills and a prescription for Xanax. I just want to cry when I think about it. Numbness and tingling in back, legs and arms. Muscle strength in hands and upper body disappearing. Vision and balance problems. Foot drop. Vibrations in chest, and band of tightness around upper torso.
I have to wonder if you might have B6 toxicity and maybe have it bad as my brother has it to the point where his life seems to be destroyed and he is suicidal
Have them test your CNS fluid, I mean MS in my MRI scans, in any of them are very very apparent the T2 areas glow like a million lumen spotlight in the dark. Have them keep testing, and testing I have heard some people wait years for a diagnosis, mine was less than 30 days, my symptoms started over about a year which ignored until my eyes went crossed, I could only deal with that for about 3 weeks, iv steroids I was in the hospital for 10 days with test and left with the diagnosis of Clinically isolated syndrome, well with in a month or less I had another attack that left a t2 hyperintensity on my pons medullary region that covers the entire thing, ov steroids 10 more days in the hospital and a diagnosis that was 50% MS or 50% Progressive multifocal leukoencephalopathy, at which point I was told the test would take 48 days of the 90 I had left to live if it was that. Well it was MS and I can tell you after alot of doctors and ER visits, if the issues are there, they are there don't give up keep going let them call you nuts. Most doctors are arogant jerks that need to be knocked down a step or two.
@Se A I really wish that were true. :( Actually, a blood test is the least reliable way to measure magnesium levels in the body. This is because the body will take stored magnesium from the body's cells in order to keep enough magnesium in the bloodstream to regulate heart function (the relaxation phase, specifically). The reality is, your CELLULAR (storage) magnesium levels could be dangerously low or even depleted - which causes one to feel MISERABLE - while a blood test could show "normal" magnesium levels. The most effective way to check magnesium is at the cellular level...there's a test called "Spectra Cell" which purports to be the most efficient. A saliva test is even more reliable than a blood test. Bottom line is...a blood test for magnesium only tells you how much is in the BLOOD (to power the heart muscle)...it doesn't tell you how much magnesium is in the cells. Your entire body needs magnesium to function properly. Magnesium is known as "The Spark plug of the cell". If your cellular magnesium stores are very low, you will feel AWFUL (stiff achy muscles, headaches, low energy, sinus issues, muscle twitching, etc), but your HEART will still continue to beat - until magnesium stores are completely depleted...then you'll end up with irregular heart beat/rate, and sometimes even chest pain (or worse!). SOURCE: Personal experience; years of research after learning the hard way. 😢 And studying the published research findings of Dr. Carolyn Dean.
I'm really sorry, I know how you feel. Something may be causing your different sensations. It could be a vitamin deficiency. What if something like magnesium could make you feel better. It's an electrolyte that acts on every nerve fiber. So does potassium. Get a recommendation about testing your blood at new age labs from magazines at health stores. You want to get a grip the younger you are. Because of the huge amount of chemicals humans, animals and plants are exposed to They are not just killing the ocean. Anyway a vitamin deficiency is insidious. I'm trying to go to sleep so I'm sorry if this is disjointed. Must say my prayers and go to sleep.
Hi Doctor, I have had about five bad episodes of vertigo, in the past few years. The first episode lasted several days and I was in the hospital. In July 2021, I woke up very numb from the waist down. The next day, the numbness traveled to my chest. The next day it traveled to my neck. I drove to the ER that night, barefoot, so I could feel the pedals. I had a lumbar puncture to test for Guillian Barre, but it was negative. Also MRI done and no plaques. They treated me with IV drugs for Guillian and also high dose prednisone. Ever since then, I have extreme exhaustion! I fall a lot. I have major brain fog & concentration issues. Bladder control issues. My arms and legs have been constantly extremely numb! I am extremely exhausted! I do also have bulging and herniated discs from a car accident in 2013. I also ended up with a pulmonary embolism this past January. I’m frustrated and unable to work or live a normal life. Any suggestions?
This was very helpful. I was diagnosed with sarcoidosis(lymph node biopsy) three years ago. I have been having neurological symptoms for the past year. I am going through the fun process of medical testing to see if it is neuro sarc or something else. The more I learn, the more empowered I feel. Thank you for such an informative video.
I'm seeing a neurologist next week .Already had a videonystagmography and MRI. I'm 66 and noticed a change in my stride about 3 years ago. A sensation like I was being pulled along and dismissed it as the new orthotics from my podiatrist. But 2 months ago the symptoms amplified to feeling like I was walking on a trampoline or stepping into foam rubber. Also noticed an increase of weak muscle spasms in legs. Otherwise not experiencing any weakness, numbness, or pain.
I'm 66 also and I noticed a few years ago that sensation of being pulled alone, if I would lean forward it felt like the upper half of my body was heavy? Quitestrange that it comes and goes, and also that feeling of walking around on sponges And a poor gait especially when it's dark out And even more especially on uneven ground, what was your prognosis or diagnosis?
After a couple MRIs the problem has been diagnosed as moderate cervical myelopathy. Compression of the spinal cord in my neck by surrounding vertebrae. Effective treatment will require surgery and a lengthy recovery that my surgeon and I have agreed to delay unless symptoms worsen.
I recently had MRI, CT scans and have been seen by a neurologist, rheumatologist and a endocrinologist. Needless to say the tests have been abundant and I'm currently waiting results to see what certain doctors mentioned that might be M.S or Lupus being the culprit. Some of my symptoms are back and joint stiffness, numbness and nerve pain in my legs and arms with recent periods of tingling in my face, I also have large amounts of fatigue accompanied with lack of memory and focus. That being said, it took me over 15-20 minutes to write this paragraph.
Just yesterday I went to see my neurologist and he reviewed the spot on the front right of my brain said it was a bunch of blood vessels bunched together (by the looks of it), but still wanted to retest in six months to make sure it doesn't get larger the 7 mill size that showed up. The doctor also ordered a bunch of blood and urine tests to make sure it's not autoimmune disease. I still have to see my endocrinologist to review his tests and see if some of the symtoms might be hyper parathyroid. So to sum it up, test, test and more tests.
Doom Punk I wish you luck. Hang in there! I am in a very similar situation as you. Did you had spinal MRI and Lumbar puncture to make sure it is not ms?
Mafil, The neurologist wants to check a few things and see if the next step is a spinal tap. With the blood and urine he said he can look for any culprits that mimic M.S. Which were lupus, lime disease, and poisons like lead or chemical; I was a house painter for 27 years, so it could be poisoning of the blood. I've had the spinal M.R.I for the brain and neck which produced a 7 mill cluster or spot on my from right side, but they think its blood vessels and have to retest in six months. Mafil, if you don't mind me asking, what stage of tests are you going through?
Thank you so much for the really thorough explanations of symptoms and possible related diagnoses. I have Fibromyalgia Syndrome and it is a monster. I choose to manage it with diet changes, supplements, exercise as tolerated, breathing and meditation, cannabis products for pain. I still have Fibromyalgia but Fibromyalgia doesn't own me. Again, thank you for sharing your wonderful and interesting knowledge of these complex chronic illnesses. 💕
That’s amazing that your doing better! I would highly recommend seeing a functional medicine doctor! I recently talked to a women who fully recovered from fibromyalgia and chronic fatigue syndrome. A lot of times fibromyalgia pain can come from your adrenal glands not working properly and/or sibo, ebv virus, Lyme or some underlying issues! Take care!
I have as my pain management doctor calls it "severe" fibromyalgia. I feel your pain. Unfortunately I also have Sjogrens and a very progressed case of this hateful autommune disease that has destroyed my body systemically and total body destructive arthritis. Have had both hips replaced and waiting for the go ahead with the hospital in a large city in midwest to open doors for elective surgeries to have my first knee replacement surgery. Covid has taken me off surgery schedule until the icu beds and other floors even surgery floor. We still have extremely high covid cases in mt state of residence.
@@georgelopez9517 more times than not it is fibromyalgia with an autoimmune disease that goes undiagnosed because most doctors are too lazy to put the 2 together. So like me i went undiagnosed with my debilitating autoimmune disease for many long years. I was diagnosed by a rheumatologist first for fibromyalgia. None of my doctors ever thought to have me tested for markers for an autoimmune disease until i changed rheumatologists and she diagnosed me immediately with progressed Sjogrens. So you see theres so much more than fibrolmyalgia patients are actually ill with autoimmune disease Its less rare to find lymes disease and the others mentioned in those diagnosed with fibromylagia. Noone has fibromyalgia fully cured, but there are some things such as diet and exercising that relieve symptoms in some patient, but not all.
Thank goodness for UA-cam, Thank goodness for this girl's funky dabbing dad. This video is pure knowledge. I was about to go down the rabbit hole and see MS in everything but now I know that it's a lot more complex than that. Now I can chill and just find out more about what I didn't know.
First relapse left me permanently blind in my left eye due to ON. Was severe sudden onset (within a day) - this was 2 weeks after a C19 infection. Now almost 1 year officially diagnosed with MS. MRI found dawson's fingers and one or two spots on the spine. Could C19 cause/trigger MS or even lead to inflammatory damage in the CNS?
@@marconiki6302 as of yet no, sadly this is a very niche research topic where i think many researchers dont want to be branded as antivaccine for potential negative observations. I still strongly suspect c19 though as prior to my optic neuritis and diagnosis i didnt have a single indication of MS. C19 does seem to be related to a whole list of autoimmune issues though that has been proven.
I suffered from MS symptoms for almost a year before finally realizing on my own that it was connected to gluten. I went gluten free, and it cleared up within a week. If I cheat on my GF diet, the symptoms come back. I went through countless tests and doctor's appointments and not one of them recommended an elimination diet to see what was triggering symptoms. I was desperate, so gave it a try and am so glad I did! I went from walking with a cane and not being able to sign my name because of tremors to being completely "cured" all through diet.
The diagnosis of MS is, as you know, not based just on symptoms. It's a combination of symptoms, MRI findings, physical examination findings, often spinal fluid tests, sometimes evoked potential testing, etc. I'm glad your symptoms have improved.
Andrew Reeves Neurology Yes, I had the MRI and spinal tap, but no signs of MS showed up medically. Meanwhile I continued to require a cane to walk, had numb feet and hands, a tremor in my hands, etc. with no explanation as to the cause. I was glad it was not MS, but wish we had discovered that gluten was the cause much sooner. My hope is that others who have mimic symptoms but are not diagnosed with MS will give going gluten free a try just in case it affects them as it did me. 😊
Some professionals have suggested going dairy free plus gluten free if gluten free alone does not resolve the symptoms. I am not a professional, but found this on Dr. Clark's site. He is a neurologist who also manages his own symptoms with food. Worth asking your medical professional who knows how to set up and evaluate elimination diets.
@@newlynatural5374 Get a blood allergy test and not patch testing. There are a few different foods that can cause brain inflammation. Keeping your inflammation down is very important with any autoimmune issue. The three big things are Gluten, dairy, and sugar but it also depends on what you having reactions to.
I was misdiagnosed for years with MS, and languished in an MS clinic, until my skull began to deform. I went to another hospital’s neurosurgical clinic, where I was found to have an end stage brain tumour. Had a craniotomy, with a titanium mesh plate used to replace the damaged cranial bone. 25 years later, I developed two new brain tumours; both locations under the huge cranial plate, so craniotomy was ruled out. I was given cyber knife treatments, which caused severe brain swelling. I now have progressive neurological deterioration. Underlying all this, I have suffered since early childhood from the after effects of a viral infection, which had caused severe headaches and backache, and left me with a weak, spastic leg and epilepsy. It sucks!
Wow! That's about all I can say...wow. I wish misdiagnosis of MS (or anything, really) didn't happen. We are human, and so prone to error, which is why I teach the medical students and residents, "Always be suspicious! Always ask, 'Am I being fooled here?'"
I think alot of this issues start with mycroplasmas . They do exist. Systemic conditions and various chronic conditions..including tinnitus..central nervous system often becomes inflamed. Vasculitis is common an Ra..They can cause all kinds of Aotoimummune diseases plus cancers.. I wish more drs would and need to study this..and quit blowing off this kind of stuff..and get to the root of it and not just try and manage the systems and think outside the box.
I have white spots but ms was ruled out. I have been diagnosed with fibromyalgia and cfs/ me but my neurologist says that I have a brain function problem but with no explanation why. I have many of the same symptoms of ms
Sounds very similar to me! I have ME/CFS and fibro as well. Neuro said I had a lot of white spots on my brain normally seen in someone 15-20 yrs older. He had no clue why, and offered no possible explanation. Wanted to do a spinal tap, but I changed my mind about it, as it can be risky and quite debilitating afterwards (especially with having ME and fibro!) Wishing you all the best. I'm personally going to get a 2nd opinion.
Can stress bring on MS like symptoms? Every time my stress level gets to an unpleasent level, I get odd symptoms. I woke up one morning and my leg was paralized. This went away after about a week. Now, I'm getting jerky and I'm vibrating and forgetting stuff alot.
the doctors here look at me like I have two heads. The term idiopathic comes up a lot. I think it's because my symptoms come and go with my stress. But, I have had the dystonia for about a year and it keeps getting worse. About a year ago I fell down the stairs. things got a lot worse after that. My face jerks now. All of my jerks and weakness are mostly on one side. I'll check out your stress video.
@@whattowatchrightnow I think you should get checked by rheumatologist just in case you have some kind of autoimmune disease. Stress known to cause cancer, autoimmune disease etc. I suffered for decades with CFS (chronic fatigue syndrome). Always been careful with sugar levels and diet cuz dad & family have type 1 diabetes. (He finally developed type 1 after some stress events in his 40s). CFS diagnosed by my first ID doctor 2001, but a lot in medical community still thinks it's bogus or nothing, now I can't even be seen by ID doctor's on my plan. But then I'm getting more & more muscular symptoms, spasm, numbness, dead arm, old injuries aching, joint etc. I insisted something's wrong especially since my left arm suffered weakness can't even hold onto things, memory loss getting worse, gut/GI tract problem, flare ups, etc all accelerating last couple years. Taking prednisone seemed to take them away. My PD finally ordered for autoimmune and I tested positive. Nucleolar pattern suggesting scleroderma. Also another ANA test from pulmonologist came high for autoimmune liver disease and trace for some kind of hearing loss (Mienier? disease) So I think its important to get checked sooner than later!
Here goes, Posting this here because I know some of you do research and think I may have stumbled upon a very important insight concerning the etiologies of various neurodegenerative disorders and maybe degenerative disorders in general. I’ll cut to the chase and ask the question and then explain how I got to the hypothesis. It is: Is it possible that distinct neurodegenerative and musculoskeletal degenerative disorders are in fact be specific symptom complexes that correspond to dysfunction of specific substructures of the cervical ganglia which subsequently alter certain functionalities of the choroid plexus and have downstream effects on the basal ganglia and spine? A recent medical situation in my life prompted me to conduct some personal research to better understand my condition. As a result, I became familiarized with the dynamics of a specific system of structures in the body that, if better understood and regarded as a unified whole, could potentially shed a brighter light in the etiologies of degenerative disorders. Essentially, my research led to make connections between three structures in the neck and head: the cervical ganglia, the choroid plexus, and the basal ganglia. A few observations became key in developing this idea about cervical ganglia involvement in degenerative disease. The first had to do with the basal ganglia. Basal ganglia dysfunction can cause a dearth of dopamine in the brain and subsequent cluster headaches and Parkinsonism/movement disorder symptomatology. This structure controls voluntary movement in the body and so in the case of movement disorders, it is usually the culprit. The question then becomes what is the fundamental cause of this dysfunction? jamanetwork.com/journals/jamaneurology/fullarticle/784785 Thinking about a specific syndrome called Eagle’s Syndrome which often presents with symptomatology similar if not identical to that of neurodegenerative/movement disorder. Eagle’s Syndrome is an abnormal ossification and elongation of the styloid process at the base of the skull that interferes with the cervical ganglia and carotid arteries in the neck and creates symptoms. actascientific.com/ASDS/pdf/ASDS-02-0202.pdf I wondered if superior cervical ganglia dysfunction could have downstream effects on the basal ganglia and cause disorder. So I began to attempt to understand the dynamic relationship between the cervical and basal ganglia. I began to look more closely at the cervical ganglia, in particular the superior cervical ganglia. This structure innervates the eye, parts of the face, the throat and sinuses, stimulates mucous production, has a part in regulating heartbeat (an aside: the disruption of the cervical ganglia when an Eagle’s Syndrome sufferer turns their head can result in panic symptoms: palpitations, dry mouth, gagging, so this could be a tool when thinking about mental heath physiopathologies as well), and also found that it is the only peripheral structure that sympathetically innervates areas of the head and brain. In particular, it innervates a structure in the brain called the choroid plexus. This was the next bridge on my way to the basal ganglia. en.wikipedia.org/wiki/Superior_cervical_ganglion The choroid plexus and found that it has a few very important functions: 1. To release transferrin that promotes iron homeostasis in the brain 2. Send agents to bind with antibodies to be flushed out of the system when infections are resolved and 3. Stimulate production of cerebrospinal fluid. That all struck me as fairly promising. en.wikipedia.org/wiki/Choroid_plexus I started with antibodies and found articles about post-infection movement disorders (specifically PANDAS, about which there is now literature about non-pediatric cases) where it is shown that sufferers have anti basal ganglia antibodies. www.ncbi.nlm.nih.gov/books/NBK333433/ It struck me that if a substructure of the cervical ganglia that innervates parts of the choroid plexus that promote production of antibody binding agents is dysfunctional, an infection could very well trigger an indefinite autoimmune response, attacking the basal ganglia and other systems. Some neurodegenerative and degenerative disorders like MS are thought to be autoimmune, and disruption of the cervical ganglia and subsequent introduction of infection could precipitate an indefinite autoimmune response. Symptom progression might depend on the nature of the ganglia dysfunction (if it is ongoing, say, due to injury and resulting occlusion, or intermittent, say, due to Eagle’s Syndrome, in which turning the head causes ganglia disruption), theoretically accounting for the different subtypes of MS. www.nationalmssociety.org/What-is-MS/Definition-of-MS/Immune-mediated-disease I also had the thought that if iron deregulation in the brain could be caused by dysfunction of a specific substructure of the cervical ganglia and subsequently the choroid plexus, maybe iron irregularities in the basal ganglia would be observed in sufferers of movement disorders, and sure enough, it’s observed in most, if not all of them. At this point I felt like I was really onto something. www.ncbi.nlm.nih.gov/m/pubmed/22266337/ And then a thought occurred to me: what if the first domino to fall in the etiologic chain of ALL of these degenerative disorders begins in the cervical ganglia? This could be why there are peripheral nervous system symptoms that manifest early in diseases like MS (the cervical ganglia innervates the eye and throat and heart, so vision dysfunction, dysphasia, heart rhythm problems etc would be some of the first symptoms you’d expect to see in this etiologic formulation). I’d seen papers talk about a corticothalamic basal ganglia circuit, but not much of anything about the cervical ganglia or choroid plexus, and I thought, “maybe the cervical ganglia is part of that circuit, affecting it indirectly but very profoundly.” Not everyone who suffers from degenerative diseases would have Eagle’s Syndrome of course, but maybe there would be occlusion/tortuosity of the ECA or cervical ganglia, or maybe a trauma shifted their positions leaving the cervical ganglia susceptible to injury, or maybe genetic degenerative disorders’ gene expressions simply omit instructions for certain substructures of the cervical ganglia to form and subsequently instruct the choroid plexus. So the idea is, if there are three main tasks of the choroid plexus, then there are seven combinations of those tasks (1; 2; 3; 1+2; 2+3; 1+3; and 1+2+3), and there are two ways for each of those tasks to dysfunction (over-firing or under-firing, although I’m not exactly sure about this detail), then each combination of simultaneous or sole dysfunction of cervical ganglia substructures which correspond to areas of the choroid plexus that are involved with completion of one of these three tasks would represent a distinct symptomatology-i.e., a distinct degenerative disorder. Important to note is that for antibody binding dysfunction due to lack of transferrin to become part of a neurodegenerative symptom complex, it may require an initial infection of a certain type to kick-start an autoimmune response strong enough to manifest in this way. In my reading about PANDAS I came across mention of “molecular mimicry,” and I thought maybe it was possible in the case of infections that feature such molecules, and in patients that have cervical ganglia dysfunction, that since the infection that the immune system (now totally unchecked by transferrin-aided antibody binding) is targeting resembles healthy structures in the body that all of these factors compounded could lead to ongoing destruction of healthy body tissue. It may be the case that I’m off base, or there are ways to easily prove false all that I’ve said, but I don’t know that. That’s why I’m posting, because in the unlikely event that this is not totally crazy, and might actually be plausible, it will be in the hands of people who can do something with it. A theory is judged by its explanatory power, and to me, this one seems to explain a lot. Could it be the skeleton key that unlocks understanding of these diseases and leads to new treatments and potentially cures? Is it simply that the cervical ganglia needs to be attended to more intensively when these disorders manifest? According to the literature, somewhere between 80-95% of Eagle’s Syndrome patients who undergo styloidectomies have complete cessation of symptoms. If I am right about the cervical ganglia’s role in degenerative disorders, and some of these patients’ styloid process was in contact with their ECAs and cervical ganglia, the neurological symptomatologies that presented may well have progressed into full-blown neurodegenerative disorder if left unaddressed. It could very well be the case that these successful surgeries represent instances of the curing of previously thought to be incurable neurodegenerative conditions. But again, Eagle’s syndrome merely represents one mechanism of action that could cause cervical ganglia dysfunction. I’d appreciate any response, even if it’s to tell me why I’m off base. I hope you’ve read with an open mind, and were willing to ask yourself “what if?” So, the question is: is it possible that superior ganglia dysfunction is the primary etiological feature of a host of neurodegenerative disorders? That this could be a unifying theory?
I have several thoughts. First, that's quite a dissertation! Second, yes, there is a LOT about brain and body function we still do not understand. Third, given the vast complexity of the brain and other organs, I doubt there is a single, unifying underlying process to explain many disparate disorders, especially degenerative disorders (e.g., Alzheimer's, FTD, Parkinson, MSA, etc.) for which we have identified some of the relevant genes. Personally, I view Eagle syndrome as a primarily mechanical disorder, in part because a mechanical treatment (surgery) is so often curative. So, I'm not sure your theory is right, but it's a big world out there; become a neuroscientist and do research on the cervical ganglia--you might find something which has been missed.
Thanks for the reply! And “unifying theory” is probably a little over-eager (over-eagle?). This is actually the short version of the summary of idea, and the reason I wrote it is because I’d been diagnosed with Eagle Syndrome and have had symptoms of Parkinsonism and Horton’s Syndrome and starting making all these connections to structures that the styloid process interferes with. I agree that it is a mechanical disease and can be easily treated with a procedure, but that’s the exciting thing! If cervical ganglia dysfunction DOES create all of these downstreams effects, it suggests that treaement options might be much simpler and more effective when we treat the potential root of the problem-the etiological foundation. What’s been striking me in my research is the fact that if you trace the logical path of cervical ganglia dysfunction, you can simulate sometimes on a molecular level these neurodegenerative disorders just by letting the dominoes fall. I have a friend in the governor’s office in PA who works for the department of aging and he’s going to talk over “the long version” of the summary with some people involved in research funding. We’ll see where it goes!
Also of note, I’m not citing Eagle Syndrome as the cause in all cases, just saying that SCG dysfunction might be observed in many, most, or (mostly likely not, but I can dream can’t I?) all cases of neurodegenerative disease. And maybe that gene expressions that correspond to these disorders work themselves out in this structure and it’s substructures. I mean, when we try to figure out how a gene expresses, we might test the blood or spinal fluid for substances that correlate with the presence of the gene, right? What if those substances are also downstream; and the SCG is that cause for their forming?
For instance, in Alzheimer’s, there is a certain substance that forms in the brain called an Ab-peptide that is an abnormal metabolic byproduct of endocytosis that can accumulate and link together to form plaque deposits. Here’s the thing: transferrin that’s produced in the choroid plexus which is innervates by the SCG is involved with the endocytosis of neurons, and is the SCG is dysfunctional for any reason at all, there would be inefficiencies that might lead to the formation and accumulation of Ab-peptides.
I had one of the 2 cases of bacterial Meningitis when I was 15, the other case was on the military base. Thankfully I fully recovered but now I'm having similar symptoms but no one can give me a straight answer.
I initially thought I had MS, because my mother has been diagnosed and my symptoms mimicked hers. But unlike her, it has not shown up through any MRIs and the lumbar puncture. I really wish I knew what it was though since this is debilitating.
I am going through exactly the same thing right now. It just doesn't get better and nobody wants to help me because they say its psychological, which is ridiculous...i lost so much weight. I just want it to stop, been going on for 2 months and im so weak by now.
This is a great video. Thank you for the information and how you present it in a way that is not condescending. I am going to reach out to your office for a second opinion.
I'm having MS symptoms like muscle spasms and cramps, spasticity, tremors, and urinary problems at one point. I know there could be other causes for these symptoms so that's why I'm here while I wait for my neurology appointment.
Good info. I have severe cramping fasciculations and they are spreading. Calves, ankle, feet, shin, shoulders, arms, hands, tongue, neck. This all started after a botched C5/C6 fusion in '08. During the worst episodes, the muscles that are affected will stiffen and cause a great deal of pain. When my hands are affected, the pinky knuckle is drawn down and inward causing a great deal of pain. Or, the muscle on the outer palm severely cramps. Usually, with my feet, my big toe is lifted and a great deal of pain follows. The most dreaded symptom is when my tongue cramps. I fall a lot. I still don't have a diagnosis.
I have had MS symptoms for 4 years. Tested positive for sjogren's instead. I saw a quick little pop up about that on your video. Could you possibly make a video about sjogren's? There isn't a lot of information about this disease. Thank you!
Dear Dr. Reeves, what a wonderful video, thank you! I was diagnosed with MS a few years ago. I was gradually declining, all my symptoms were bilateral, felt like my body was shutting down. A year ago, completely by chance, i started injecting b12. My symptoms started tp drop off like flies, starting the very same day i had the first b12 injection. What would you recommend to have the MS diagnosis looked at again? Any useful tests? Thank you!
In my practice I very frequently check B12 levels, for a variety of problems and symptoms. People who have been getting B12 by injection once a month (usually 1mg / 1000 micrograms) most often have nice and high levels. I'm glad you're doing well! Having a second opinion about a diagnosis certainly is often a good idea, especially if there is a reason to doubt the diagnosis.
Thank you for your reply Dr. Reeves. I did get a 2nd opinion (from a leader of the same MS clinic where I was diagnosed) and the line now is that I have both, B12 deficiency and MS and that the symptoms I had up until I started the b12 injections will return with vengeance. Its been a year since then and so far the opposite is the case, I gradually feel stronger and stronger. I am going to ask for a 3rd opinion from a completely independent professional, its just that now my system is flooded with b12 and it can't be proved that I was simply b12 deficient all along. I got my life back and time will tell. Thank you so much for all that you do, your work saves lives.
So I had exactly that scan with T2 flair, I’m 31 years old and I have other symptoms after a +LOC trauma. My doctor told me all my symptoms and pain is all mental and I need therapy.
I’m 32, and I have a ton of symptoms of something, don’t know what that something is, but they clearly saw I have slow generalized and focal brain waves, and they saw two huge brain lesions, but they told me my symptoms are stress-related.
*Dr. Reeves, I truly hope you can answer this. I was diagnosed with lupus about 20 years ago. Type II diabetes about 5 years later. My blood tests are run almost every 6 months to see what my A1C is, as well as, Anti-ANA, & ANA, etc. Something VERY weird has been going on with my body. A month ago, I went to bed, still half awake....I thought it was a tremor due an earthquake. After 10 seconds, I sat up, & realized it was my body vibrating very quickly. It continued for almost 2 more minutes. I didn't know what to think. It has happened about every 5 days, only when I lay down to go to sleep. I'm also usually on my back when that happens. My body is not shaking, it is a very fast vibration from my head to my toes, completely engulfing the inner being of my body. And I realize you are not my doctor, however, I would just like to know what you think about this. I also would like to mention the fact that I have had very bad problems with my balance and just walking for the past year. I have degenerative disc disease, and I also have spinal stenosis. The vibration thing is really bothering me as far as making me constantly worried. I will not be seen a doctor for at least another 30 days. I'm in my 50s. Thank you very much for your time. Have a beautiful day.*
It would be difficult indeed to know what is going on with you. I would certainly suggest you discuss this with your doctor, and maybe even see a neurologist. Sorry I can't be of more help.
Andrew Reeves Neurology *Thank you for your time. I have an appointment with neurologist next month. He's ordered an MRI, not the standard one, but one that is far more detailed or something. I'm sure you know what I am speaking about. Have a wonderful week.*
I've had the same vibrating feeling in my body when laying down. Haven't had it for a long time though. I was 33 when it was going on with me. My mother had all of the things you mentioned and also diagnosed MS. I feel the vibration was silent seizure activity with me. I'm 38 now. I too thought it was earth quake activity at the time.
What would you think if a patient presented the following symptoms: Myokymia of left upper eye lid for seven months, muscle twitches and spasms of the arms, legs, and back. Internal deep muscular itch in armpit and bicep as well as scalp and face, tingling in back near spine on both sides, deep and at times radiating pains in hands, arms, legs, and trigeminal region (not joints). Fatigue and cognitive disruption? Symptoms will be present for up to two weeks then normalize until they return 4-5 months later. (Excluding eye twitch, that is constant.) No vitamin or magnesium deficiency, negative lupus, no lyme, and negative epstein barr virus.
Very interesting. My mom was diagnosed at 70 with MS. But only after a spinal tap along with MRI. First symptom was dizziness and loss of balance. She gradually went to a Walker, now wheelchair. Issue with one eye, one ear, and now tremors. Never has pain but no mobility. She went downhill fast. Now at 77, new neurologists, they think it's not MS, but no other diagnosis. I wish one day she would wake up with her balance so she could function normally. Thanks for sharing.
70 would be extraordinarily old to develop MS. While primary progressive MS does indeed tend to start older than the more common relapsing-remitting MS, 70 would still be quite old even for PPMS. I'm glad she's getting a second opinion--hopefully from an MS/autoimmune neurology subspecialist. If she truly does have PPMS, there is now at least one medication approved in the US for treating it (ocrelizumab) as of this date; more to come, I'm sure.
My daughter was told true MS spots look like sparkles in the MRI, not just white spots. It’s similar to how radiologists see fluid in the lung tissues as opposed to inside the lung itself. They describe what they say is called a ground glass appearance. They know what the difference is and they describe it the most vividly as possible. But sparkles is what at least three doctors told her.
Acute (recent) MS lesions in the brain enhance when contrast is given by vein, so they look brighter than without contrast. Perhaps that's what they meant by "sparkles." Typical location, shape, and orientation of MS plaques have been well described, although there is quite wide variability--one thing which makes people mistake other things for MS quite frequently. (In fact, I saw another one yesterday, where a lesion in the spinal cord was mistaken for MS.)
I have all the symptoms of ms including white spots on the brain macular degeneration and sle. My legs look like twigs I am pale and my pancreas has a tumour on the lower portion and the rest has atrophied, doctors don’t really treat anything any more . I have a lot of specialist Nd if not for my go I’d be left without any treatment for rain or sle . Thank you btw it’s taken at least ten yrs for all my symptoms
What if you have many symptoms of ms, neurologist told me that's most likely what it is, then did a bunch of tests and ruled out many things but I can't have an mri. So then he told me I don't have ms. So got diagnosed with nothing. Now what?
@@desiderata333 Not true. MRI is a tool to help visually show changes over time. Period. It doesn't tell you whether you have MS or not, as the good Dr. spent most of this video explaining. It's because of thinking like this that I can't get a proper diagnosis, just like Alicia J. originally posted.
@@graceofgodtoday I don’t know what you mean. I have RR Multiple Sclerosis for 25 years. The tests for MS are MRI and spinal tap, which I didn’t take as my neurologist was 99% sure of my conclusive diagnosis AFTER my brain and cervical spine MRI’s.The lesions in the brain and cervical spine can be detected via MRI. You cannot base such a serious diagnosis without proper testing and on symptoms alone snd there is no blood test for it. Therefore, you are absolutely wrong.
@@desiderata333 This article does a good job of explaining my current understanding. www.everydayhealth.com/specialists/neurology/complications-of-ms-diagnosis/ It states - "The diagnosis of MS can be very difficult at times. It is still a “clinical diagnosis,” meaning there is no specific diagnostic test you can take. Rather, your doctor looks at your MRI and spinal fluid results in conjunction with a clinical history and exam to see if the results are compatible with a diagnosis of MS. MS can be present even with a normal MRI and spinal fluid test although it’s uncommon to have a completely normal MRI. Sometimes the MRI of the brain may be normal, but the MRI of the spinal cord may be abnormal and consistent with MS, so this also needs to be considered. Also, the symptoms typically associated with MS can occur with other problems in the brain or even blood. Other diagnoses may need to be considered if your MRI is normal." That is my understanding of M.S. diagnosis and progression tracking, and why it is incredibly frustrating for those who do not fit the common M.S. MRI/Lumbar Puncture expectations that have really only been around and emerging for about 30-40 years in the first place. Tools to help diagnose, and the preferred "confirming" evidence of M.S. - yes. Defacto standard for M.S. diagnosis - not quite. Maybe you're right and maybe I'm wrong.
I'm 30 and also have hydro..i had three very aggressive episodes if all ms symptoms..the drs were worried about shunt failure but ruled out. I still got no diagnosis..how about you?
Adhesive Arachnoiditis (inflammation lesion disease of the spine and brain) causes cerebral arachnoiditis (autoimmune meningoencephalitis). I have been diagnosed and have the same symptoms as primary MS. It started as meningoradiculitis (symptomatic tarlov cysts). The cysts were inoperable and after seven years I am homebound tethered to a freezer. Can this disease be thought of as a mimic? According to Dr. Kreiger from Mount Sinai inflammation lesions disease of the spine should be considered an more aggressive and painful version of MS as well. What do you think? What about smoldering MS where nothing shows up on MRI's?
When illness occurs and things go wrong in ones body we will rush to give a fancy name disease this is not the case. We don't catch anything, although we may be bitten by a bug, the overall cause will be because of a missing nutrient from our system. Every part of the body needs to be worked or it will begin to fail. Our diet must be complete to retain our health. We must avoid air, water, food and unhealthy people,places and situations that have toxins and poisons that will harm us. This is why living is not an easy task and the focus was never to keep the people healthy but to provide a living and profit for the medical institutions.
This is really interesting, thanks! I'm curious how you decide what tests you would run to make sure you're not just jumping to MS and missing another dx. Related to that, what process do you follow in order to not automatically blame every single symptom a patient may have on the MS? I find in my experience, doctors just want to call anything that looks remotely like MS just MS, and not test for anything else. And then everything that comes up must be caused by the MS. I mean, maybe they're right. But maybe not.
I live in Muskegon Michigan and cannot find a Neurologist. Theyre either too busy or there are years long waiting lists. Ive been trying for several years with no success. I'm getting worse all the time.
What of you have neurological problems white spots in the brain and in the spine? Have had numb hands for a year and symptoms for years here and there?
My only symptom is weird numb spots (tingling but feeling is not gone) on my skin usually about five inches in size on a leg, on an arm, on face, on my back all at different times
Interesting video. Just read some of the comments. Yes, seeing a variety of problems. Here.., I am sitting in front of my computer, reading these comments, though at this very time, I'm supposed to be in the Hospital, being pumped up with IV Prednisone for the next several days, lol. Thing is, friends.., I realized what was taking place day before yesterday, quietly summed up the [Nature], [Quality], and [Extent] of the Care I was receiving. .. As the hours passed, I was told., I'm being Admitted, and will need to remain in the hospital for the next 4-5 days for what appeared to be my First MS Flare-Up or Exacerbation. .. I told them: ...Yes, the doctor in 2016, did diagnose MS, but I haven't had any symptoms of MS since 2016, though the [Confluence] of my existing problems, e.g., might look like a MS Exacerbation. Yes, one Nurse I spoke to during my short stay, I asked..; I think my Balance and Dizziness Problem, is actually due to a severe upper molar from 2018-2021, that was not [Extracted] due to being on welfare, not having money to pay a dentist for an Oral Surgery, and the like, until such time as the Molar was eventually removed in Spring 2021, but the tooth infection, Festered, was treated with antibiotics, the infection clearly was not fully abated, and the problems continued, until such time as I had to Insist, was denied another regiment of Antibiotics, was told to go to Emergency, where they found Nothing, and after coming home.. still sick, took myself to the Urgent Care a few miles down the street, found a good doctor, who actually [knows how to listen to his patients], and based on my story and showing him the earlier Extraction site, then began to Prescribe: First: a Script for Liquid Prednisone for a Viral Infection; No Difference, then Amoxicillin with Augmentem; a stronger antibiotic. I began to respond after the 2nd Regiment. Later however, the symptoms never fully abated, as I have developed a balance and dizziness problem ever since. Yes, a month later, I identify and have a Primary Care Physician, though she did not fully diagnose this balance problem. Well, early this week, at 57, I had an involuntary bowel movement, ( I Had A Big Dinner, Didn't Go That Night, and Sharted To Be Honest), combined with having a problem in my right eye, with my vision, though from experience, I rate a 5 on a scale of 1-5 with regard to Mold Allergies, and as I am a serious sports card collector, I live in a room, sometimes filled full of [Dusty Paper Sports Card Boxes I Review For Self and Others.., that clearly have Dust and Mold that grows on their Surfaces. Yes.., and as my room is sometimes filled-up to the ceiling during a Review...; boxes and boxes of cards, stored in damp rooms, basements, and the like, means 'having a severe mold allergy problem, combined with dusty and sometimes mold cards. It's simply a recipe for breathing, touching,, and rubbing my eyes with residue from these moldy cards, lol.' ....No doubt, *I probably opened one of the boxes late last weekend, rubbed my eyes, plus.., - made my lower back sore after many hours of reviewing card after card, developed a loss of sensation in my right leg, and because of all of it happening in tandem, in conjunction with my 2016 medical visit and diagnosis, when I went back to them.., They Clearly Went Immediately into MS Mode for Me, diagnosing everything as being related, or as Symptoms of MS Disease Progression, lol. I said to myself; Seriously.., Mark: You have not had [Any Evidence] they can produce, that empirically demonstrates MS Disease Progression. Question: So: - !?? -Why the Hell, do they continue 'Pushing Me Down That MS Pathway'- each and every time I go to see these people for Medical Care..?' Answer: Probably because the Easiest Answer, is to simply attribute every medical problem henceforth, as an MS Sign or Symptom, though I keep telling them: I think the 2016 Diagnosis, was a False Read, as I used a Statin Binder back then to remove the presence of the Mycotoxins in my system at the time. Nevertheless, seems these people are trained to NOT Listen to their Patients. The Good One's that Do Listen in my experience now., seem to be the one's who get the Diagnosis right lately. Well, as things turned out, I got my answers. I did not have a stroke, a Nurse I asked to look into my ear to see if she saw Swelling in my ear, She Then Did Tell Me; *[Yes,..CORRECT..! - 'I Do See Fluid behind Your Ear Drum' (using the Otoscope with a light). Second: They never asked if my sensitivity to Mold could be the cause of the problem with diminished sight in my eye, and if sitting at 385 lbs. for 12 hours a day for months, could possibly be why my right leg is acting funny now, due to this shitty worn out and hard chair I have to sit in to work..could possibly be causing problems in the form of weakness in my legs...? eh..? - Nah.. that couldn't be it...., right..?]. Well, 'Fruck that Noise..' - I told the Desk Nurse: Since I am not being seen, sitting here now, for hours...., - just give me a Script for some Prednisone Pills, I'll go home, convalesce for a week or two, at home, on the couch, and watch television or something.. Nope.. And So.., I decided, after calling the Neurologist a Fuck for not knowing how to diagnose MS Disease Progression, as I used to be the Guy at National MS Society, here in my Town.., who patients called for Information and Counseling concerning MS, that his data and advice, was from 7 Years ago now.. and because I was not there for MS Problems, but to simply determine, whether or not I had a stroke, that the information he was using to Admit Me, was from 2016, and not from the data they put together the day before. - Rubbish.. Told the Neurologist Directly, and in front of the Staff: I'm a Lawyer: [We Lawyers are Trained In Law School, *To Not Believe A Word [You Doctors Ever Say..] - ['It's Our Super Power], and because I'm Professionally Trained in 'My Field, and Actually Worked at National MS..., - ' I can hear you Lying To Me, about Your Diagnosis, Your Data Gathering Methods, The Lack of Due Care.., and The Inconsistencies Between 2016, and this Sir.., is not 2016.., but 2023. Your Data showed No Disease Progression, No Plaques, and No Stroke.., So Thank You Very Much, but I need to go now, as I have to go home now, and get some work done.., so I asked for [ The Medical Refusal Consent Authorization Form], signed it, then Walked Out, down the Hallway, got into my Driver's 4x4, went home, sat and drank a cup of hot coffee while watching Star Trek, and made my dinner and relaxed and laughed in spite of myself, lol. - Simple. ;)
I had white brain matter found on an MRI 20 years ago, I saw multiple docs who said they werent in the right area for MS. I've lived with fear for years that theyre wrong and that its gonna be MS. Have your ever heard of Histoplasmosis causing spots ? I had that before .
Lawrence, very likely your answer is in your first sentence. When I face a question like this with a patient, I sometimes point out that spots on an MRI can be like spots somewhere else, say...in the lung. I mean that we don't spend 20 years wondering if a spot on the lung is cancer--it will declare itself long before that. If 20 years have gone by and the person isn't dead, I can tell them the spot isn't lung cancer--even without an x-ray. As far as histoplasmosis of the brain, it does happen. It's usually a pretty bad deal, and the person is usually pretty sick. Of course, you may want to review your situation with a neurologist to get a formal opinion.
I contracted Lyme and Babesia but am told I have PPMS. Last MD says former produced latter. I am unsure. Ocrevus didn't do that much. My balance is virtually non-existant still, only my ability to stand up slightly better.
I’ve been twitching and getting bad headaches out of nowhere and my vitamin D is Lvl 13 so it’s very low. Idk but I’ve been freaking out that it could be MS
You need magnesium. My vitamin D level was chronically low - Rx doses of 50,000 IU/week did not raise my D levels, in fact my D level dropped 6 points within the 16 weeks I was on high dose vit D. Over time I discovered (on my own) that I have chronic magnesium deficiency. My body can't seem to hang onto magnesium and I need to take magnesium citrate supplements every day or I will develop symptoms after about a week. I have now learned that magnesium is REQUIRED in order to process vitamin D in the body. In other words, if you don't have enough magnesium in your body, you won't be able to process and utilize vitamin D in your body, thus you will end up with vitamin D deficiency. If only I had known this info YEARS ago my life would be so much different now. :( Look up the amazing work of Dr. Carolyn Dean. She is a magnesium expert!
I was tested for MS in 2009. I had all these tingling sensations in my feet and sometimes face. MRI was normal. Except I had a the start if Chiari Malformation. The tingling lasted for a year or 2. And happened every now and again but would always go away. Now it’s happening more and more again just like in 09. I was tested for Lupus and Lyme B12 Deficiency...all negative. I am feeling tingling almost all the time now. Am debating on getting another MRI again.
I have been suspected of MS for years, but it isn't! I have all the symptoms but, my diagnosis now is, C.A.N,V.A.S. syndrome. It was only discovered a few years ago. Thanks for the video.
Doctor I am so glad to come across your video. I’m anxiety ridden over my 24 year old son who just recently was in the hospital with what appeared to be a TIA. He is considered quite an athlete and takes good care of himself. He eats clean and exercises on a regular basis. He doesn’t smoke drink or do any kind of drug. He takes no medicines or supplements. He had a momentary moment of body weakness followed immediately by whole face numbness(including tongue) which quickly turned to just right side of face numbness with impaired speech. Whole episode lasted perhaps 10-15 minutes. MRI shows 2 spots (3mm and 5 mm )of low attenuation. All other tests normal. Doctors are perplexed. Any advice?
@@andrespalacios6356so far so good. No reoccurrences. He’s been to a neurologist, a movement clinic and cardiovascular specialist. They have no answers but say it may never happen again. Thank you for asking.
I had many symptoms of MS, my gp was so concerned they sent me for an emergency mri and neurologist appointment, including nerve conduction tests. Nothing was conclusive, no lesions or anything, no interruption in the nerve conduction. Yet here I am 5 years later, still with tingling in my legs and arms, and loss of bladder sensation, during the summer months only, which is really weird. I have been diagnosed with fibromyalgia previous to this, and more recently as having generalised anxiety disorder. I don't know if these have anything to do with the symptoms I experience. It's very weird.
Sometimes it takes years of symptoms to get results on test. I had an MRI 5 years ago to check for MS and it was spot free. I recently developed optic neuritis in my left eye and had an abnormal VEP and only one lesion on the MRI I just had. I’ve been dealing with symptoms for years but no answers. I feel like I’m getting closer to them now and am waiting for my neurologist to get back from vacation so I can know what the plan is. Interestingly a year ago I went to a hematologist who said I have platelet antibodies. He didn’t know why and said that in my case it raised the MPV but didn’t cause any issues that he could see. I hope my neurologist takes the time to rule out these other conditions to come up with the best plan of action. Thanks for the informative video.
Ellency Conventional lyme tests are worthless. They always give false negatives. Igenix in CA is the only way to get a proper test for it.... and even that test isn't 100%, but way more accurate.
Bucket? Yes indeed.lesions on spine? Idk....spinal shock and a few others. Possibly tether cord.. So here's the thing..i have something not getting better. It's not seen as a real diagnosis except one. Tethered spine. However it hasn't yet relieved the tingling and the burning or cold feet. I go back for more doctors but am weary from 16 months of this. I had spine correction yet still don't know. Suggestions?
UCTD is that often confused . Scared to get this MS rules out and too many autoimmune disorders like Hashimotto UCTD and a post it I’ve smooth muscle antibody test .. all booked up here . Is it important to get me ruled out . ? Plated a little full. Thank you for the great information Doctor
Hello. I noticed you said something about meth. I know someone who was recently diagnosed with MS but two days before their first “flare up” they ingested some cocaine. Pretty sure the drug had something to do with the flare up whether its MS or not. If they had positive bands in their spinal tap does that for sure mean MS?
I was told that it can be a great mimicker. I am seeing a neurologist in January to rule out MS. I hope the gentleman I am seeing knows what he's doing. I don't care if it is MS at this point, or if it's something very simple (I don't know... like anemia, which wouldn't cause the symptoms but you get my point)... I just want answers.
😥 Getting answers is one of the hardest parts of all this! I have the exact same feelings about it now. If it’s MS fine I’ll figure out how to deal with it & if it’s not great! But not knowing is like being in purgatory. Also not being able to explain to people why sometimes you’re sort of okay & others times just the thought of taking a shower takes too much energy! We just want answers ❤️ I hope in the past couple years since you made this comment you got the correct answers. ❤️🙏
I am wondering what borderline Multiple sclerosis is?? I don't know but, I feel very strange like right now I'm having this you with walking my left leg feels like it's nami so it's hard to bend at the knee.. It's things like stress affects me more than most .. And I'm just wondering if my body could be stress to the point of it failing and if my adrenal glands could be effected.. I go see a neurologist next month to find out what the problem Could be... Help!!! 🙋♀️
@@Donna777 I apologize for for just now getting back to thank you so much for responding to my question.. I stopped taking magnesium several months back and I am so at a loss.. my MRI was not good... I think the stress I am dealing with has been a big issue with how I've been feeling.... I am going to start taking magnesium.. 🙏🤞.. Thank you again 🤗
I had a virus six weeks ago I lost my balance then that back to normal then I started getting cold tingles all over me then I got shaky hands lost grip feeling in them but feel like inside shakes weird . But now with all the worrying about that I tenced my body up all day I can’t stop tencing so when I try to relax my arms feel weak and biceps tremble when I move my arms up and down .. I had mri twice bloods all normal had a few neuro test of gp but she said there’s no history of anything serious but I still think I have somethin bad I have severe anxiety health anxiety I am so worn out with worry I think I have all neuro diseases it makes me worse
What about migraine headaches. Started with stumbling, rapid hearing loss, a feeling like I was walking in sand, extreme reaction to heat, hot showers started with tingling sensation starting at my feet and moving upward, sounding like whining in my ears, numbness of lip and upwards toward nose. I had an MRI and went to first neurologist and he ran blood test and said I was in the middle of an Epstein Barr occurrence-understand this is the family of mono. Went to ENT doctor and said I had vertigo. Second neurologist diagnosed me with reoccurring migraines that will cause all these symptoms. I don’t know what to think because for two years now I have had to change my lifestyle, quit work and have eliminated driving because I lose focus on where I’m supposed to go. Seeing new neurologist in about a month-I would like to know how to describe my symptoms because I think they hear a couple of symptoms and go from there. Thanks. Any direction would be helpful. By the way I am in my 60s.
Jim I have to wonder if maybe you have really bad B6 toxicity you should want to look up some of those symptoms but also I have to wonder if you have any form of spinal stenosis which could also affect a person and can be very serious if not painful I have known personally to people who had to have their spines rebuilt in several places because of it
Dear Mr Reeves, I am a 71 year old female and for the past 9 weeks have burning on both feet to the extent it bothers me at night. I do have some of the MS systems but not diagnosed with it. I have a brain with dye happening soon and also have B12 deficiency. The burning affect on both feet flared after a fall 9 weeks ago. I do get double vision when focusing on youtube. I have had vaculitis and itching of skin very annoying indeed. Bladder and bowel issues. Due have problems with spine as well including neck. Is there any information you can give me or questions to ask my doctor. Thank you.
What about people with symptoms of MS, neurological issues, but MRI brain is normal. What conditions mimic MS with normal MRI of brain and orbits. Thanks!
Hi there, thanks for a really interesting and entertaining video. I was diagnosed with lupus 16 years ago. (it's a family curse ) had the usual mono first then developed discoid lupus which a biopsy confirmed as S.L.E. fortunately symptom free after that until 13 years later. Got joint pain, numbness stinging burning sensations. bladder issues. exhaustion. brain fog etc. . . saw a rheumatologist who said that because bloods were ok it wasn't lupus. she pressed bits of my body and because I hurt all over said I'd got fibromyalgia. So I obviously don't feel like I have been properly diagnosed. Therefore I feel I am not receiving the right treatment. I have a hunch it's lupus related but if the blood work is clear (bar auto immune issues with my thyroid ) I am left thinking I want to see a neurologist. I am being told no because of the fibromyalgia label. Have you any suggestions as to how I get around the doctor to get me a referral? Many thanks 😊
That's a tough one. It can sometimes be hard for folks to get someone to listen to them. At times a new primary care doctor can be a good avenue to having someone listen without pre-judging.
my blood work keeps showing that I have Sjogrens, but when I went to a rheumatologist, I was told that I just have fibromyalgia, and was sent packing on my merry way. It was as if none of my medical history, symptoms, tests, etc... mattered, and my requests to be seen again have fallen on deaf ears. Even when she's the one that is supposed to approve the genetic testing to make sure my hypermobility isn't the cause for something worse, like Ehlers-Danlos syndrome, etc... Best of luck to you. I hope you get the help you need, and can start to feel better.
Could this be a MS? “A few tiny non-specific T2/ FLAIR hyperintense foci seen in the periventricular white matter of the left frontal lobe.” It’s my MRI report 6 months ago and my Dr said it’s nothing. I went to him because of pins and needles pain left side of my body including my head. Along with other things i feel i cant tell if it’s related to or not. Im also having weird pulsing in back of my head. I’m 33 years old
Can white matter issues also result from migraines? My only symptom is a persistent dizziness that usually happens after a headache. I had two small lesions that showed up on my MRI. I'm terrified to have a follow up one.
My son was diagnosed with MS. He had a drastic change in personality over a 2 week period. His symptoms don't line up with typical MS. He doesn't remember who his brother or sister is. He doesn't remember last events. He has bad headaches and vertigo. He has fatigue. His vision and hearing are excellent. His neurologist doesn't believe any of the symptoms have to do with his MS. He thinks it is his autism, but he didn't have autistic type symptoms until this one period of 2 weeks. He changed over night. What can I do. There aren't any neurologist I can see because the other neurologist doesn't see patients from his friend (my sons neurologist)
I have had everything else ruled out yet I’m having trouble getting approval for thoracic and brain mri. I have numbness and tingling all over my body.
I’m 24, I started having vision issues in my left eye about 2 years ago where I had and still have a large blind spot. When looking at a light somewhat blank scenery I seee what looks like bacteria in a Petri dish jumping around my vision. It’s the craziest thing. I went to an ophthalmologist and was told I have ‘’macular changes’ in my left eye? No answers as to why? I asked if it’s macular degeneration and he said well if you were 50 and older we’d probably call it that. So NO answers? He requested an MRI of my brain to see maybe if there was something going on with my ocular orbits or optic nerve. The mri showed a hyper intensity in my right frontal lobe in the deep white matter of my brain. Findings were that they werent related to vascular issues or evidence of stroke etc and most likely from a brain infection and that they weren’t related to my current visual symptoms. I’ve been having other neurological symptoms since. Prickling in my finger tips, my right foot, a large area of my back is numb and tingly. Cognitive issues. Extreme fatigue. My vitamin d has been steadily low for 2 years even on 3000ui a day. My CRP is always elevated as well as WBC. I get hit hard with vertigo every few months and it lasts a week. I always feel like my head is swimming. I had an mri follow up about a year ago and apparently there’s one more hyperintensity in my left lobe now that my neuro nonchalantly mentioned as well as the previous one was slightly larger. NONE of my drs seem worried about this? My neuro brushed me off when I asked about it possibly being MS. He’s like well if you wanna talk fairy tails and unicorns let’s just stop here. I feel so disregarded... idk what to do. I’m having REAL issues. My vision is continuously worrying me because I’m noticing a blind spot in my right eye now.... what could this be 😢 I’m a single mother of an almost 4 year old I’m scared for our future and I’m tired of no answers and being tossed around between doctors who have no explanation for my symptoms. I feel crazy. None of my family takes me seriously and I have no one to talk to about this without being looked at like I’m crazy
Oh my gosh that is absolutely CRAZY how those doctors are treating you!!! I am so sorry! 😢😢 I have also gone through similar issues with being disregarded by doctors (for over 20 years!). If I were you I would immediately fire your current doctors and find a new one who actually CARES! Maybe join a Facebook group for MS patients and other related groups where you can get recommendations from others who can steer you in the direction of a good doctor in your area. My prayers go out to you and I wish you the best! 💜 PS. Magnesium deficiency can cause soooo many symptoms that mimic MS. Maybe in the meantime while looking for a new doctor you could supplement with magnesium citrate or another good magnesium supplement. Some people swear by magnesium malate and magnesium chelate. Pico-ionic magnesium is a great one for people with sensitive GI tracts as it's easier to absorb. For me personally, I find drugstore brand Nature Made magnesium citrate works the best. I've tried all the others I mentioned above, except for magnesium malate. I am going to try that one some day - many say It's the best kind for people with fibromyalgia. Oh, and topical magnesium oil is a fantastic way to get magnesium into your body; it's absorbed through your skin. Some say it's the closest thing to intravenous magnesium. I believe most diseases are caused by nutrient deficiencies and toxins, but most of all...nutrient deficiencies. I believe that when the body is equipped with all of the proper "ingredients" it requires for optimal function and health, then it will just naturally be strong enough to fight off and self-heal from a majority of toxins. If you think you may have a brain infection I would suggest taking a high quality olive leaf extract combined with oil of oregano that contains at least 80% Carvacrol. The stuff works amazingly (like a miracle!) for any type of virus, fungus, bacteria, etc. I am currently using it for a very stubborn Bartonella infection I acquired when my cat accidentally scratched my eyelid very badly. It's working much better than the Zithromax Rx I took for five days last month! It's good stuff! I buy mine on Amazon but they sell it on eBay too as well as their own website. I am not affiliated with the company in any way. The product is called Super Strength 225 Formula. Only $12 a bottle with free shipping. I would honestly pay $100 a bottle for that stuff it works so good. The stuff tastes awful, so to get around that I put mine into an empty size "00" capsule along with some organic coconut oil (use a dropper to fill the capsules with each). Coconut oil works as an excellent carrier for the oil of oregano (aka OOO) and helps prevent the OOO from instantly melting through the capsule. Plus coconut oil has it's own set of magical healing properties! It's a natural antibacterial, antibiotic, antifungal. I You have to work fairly quick or the capsule will start to melt because the OOO is so very potent! And always remember to take the capsule with a large glass of water because you want to make sure the capsule goes all the way down into your stomach - trust me you don't want that thing getting stuck half way down and it dissolve while in your throat or esophagus! 😱😫 It happened to me a few times when I was new to taking OOO, before I knew about the tricks and tips of taking it...OMG it was sooo NOT PLEASANT. If you want to see something that will absolutely shock and amaze you...the next time you get a cut or wound, skip the antibacterial ointment and instead put some organic unrefined coconut oil inside and on the cut, then cover it with a bandage that seals on all sides (or use a regular bandaid and put tape on the free edges). Disinfect the wound with hydrogen peroxide before applying the coconut oil and bandage. Repeat this process every 24 hours. Be prepared to see the most amazing sight when you take off the bandaid!! The cut will be totally sealed and literally about 50% healed! My mind was totally blown the first time I ever tried this! And I had a *BAD* cut that needed stitches! I couldn't drive to the hospital because I had just taken my sleep med (Ambien). I was out of antibacterial ointment which worried me even more, but I remembered reading a gal's comment online how her family always used coconut oil on wounds and it worked better than anything! I was skeptical but gave it a try since It's all I had. I thought for sure that cut would take weeks to heal and maybe even get infected because it was on the inside of my hand on my pointer finger right where it bends. The cut was nearly down to the bone so I could NOT BELIEVE my eyes when I took the bandaid off 24 hours later - expecting a horrific sight - and saw that not only was the cut completely sealed with no redness or swelling, no signs of infection, barely any pain....but it looked to be 50% healed! It looked like a 1-2 week old injury. I was sold on coconut oil for healing wounds right then and there! It also works as an amazing drawing salve to magically pull out slivers! It's just insane how good it works. The trick is that you have to cover it with a bandaid; for some reason it doesn't work as well if it's not covered and sealed on all edges. An airtight seal works best. Here's a fun tip for your little one! Sorry I couldn't resist sharing this, lol. When my son was little he was afraid of getting peroxide on his owies because it stung. So I got creative... I took a small clear bottle and glued a picture of the Teletubbies (my son's favorite!) on the bottle. The next time my son got an owie, I took out the TELETUBBIES MAGIC BUBBLE WATER!! 😉 My son's tears turned into smiles and laughter when he saw the little bottle with Tinky-Winky, Dipsy, Lala, and Po *ROFL* and their special bubble water that would magically fix his owies! 😂😂 Somehow the same fizzy stinging stuff from the big scary brown bottle was instantly transformed into a fun, tickly, magic healing bubble water when delivered by his favorite characters on the planet,! LOL! 😉😂 He was never afraid of the peroxide - aka Bubble Water - after that! He actually loved it...and made getting owies kinda fun! Try it for your little one. 😉 Okay I'm done writing a blog under your post! Haha. 😄😂💜🙏
You are so welcome Korrine. 😊 I forgot to say what you're seeing when you look at a blank wall sounds like "eye floaters". I have them too. They began (along with migraine auras) in 1996 when I was pregnant with my only child. Mine aren't as bad now as they used to be. I also have 4 brain lesions. My neurologist said "they allow one lesion per decade of life before they consider a degenerative disease". Since I was 41 when my four lesions were discovered, my neurologist wasn't totally concerned. He said that lesions can be caused by migraines. So that's what I assume mine are from. Magnesium deficiency causes migraines and auras. I know for a fact that my body has trouble holding onto magnesium and i have learned to quickly spot the early symptoms: sneezing; random muscle twitching; migraine auras; a bruised feeling on the back of my scalp, neck, and upper back; and when more severe, a sunburned feeling on my upper back that eventually spreads to my lower back and backs of my arms...and more. The ultimate worst magnesium deficiency I've ever had (in 2016) caused me to believe my fibromyalgia was getting worse or that I had MS. I could barely walk, pick up a glass, write, or even turn my head more than a few inches; it's like the signal from my brain wasn't reaching my extremeties so i had to REALLY concentrate hard to make my legs, arms, or fingers work. I literally felt like my body was slowly turning to stone and walking felt like i was walking through waist-high mud or against a strong current of water. And the bodywide pain and stiffness was HORRIFIC! I couldn't even roll over in bed and my son had to help me get out of bed. Another symptom that tells me my magnesium is very low: the bulging discs in my neck will crunch and crack which causes a severe headache and sinus pain. I had a hunch about this so I did some research one day and learned that magnesium is necessary for plumping up the intervertebral discs which prevent the vertebrae from rubbing against each other! My hunch was spot-on! Fascinating. BTW: Look up the amazing Dr. Carolyn Dean - omg she is INCREDIBLE. She is a naturopathic doctor as well as a scientist. She had done extensive research on magnesium and has published her amazing findings for free online. She has a website as well as countless videos here on UA-cam. I just can't speak highly enough about her! A great osteopathic doctor named Richard Becker says if you eat one medium sized carrot every day for a month, the floaters will go away. I have never personally tried his theory but I have tried other things he recommends and they have worked. Doctor Becker is amazing and I've learned so much from him (stuff they didn't teach me in RN school!). He has a daily one hour program you can watch for free multiple times a day online for free. I used to have a list of all the online "TV stations" with the times his show came on, but I haven't watched it in a couple years so i no longer have the list. But there is a Facebook group that shows the broadcast schedule if you're interested. The name of his show is "Your Health With Dr Richard and Cindy Becker". I HIGHLY recommend watching his shows as they're a wealth of knowledge. One last thing...fish oil is an amazing brain healer!! It will help your eyes too! Look up "The Omega 3 Protocol" . Omg I've done it and it helped immensely when i had a bad concussion years ago. Fish oil has literally brought people out of vegetative state comas! Google and read the article called "Fish Oil Saved Our Son". It really opened my eyes to the power of natural healing. I could go on and on with stories and things I've learned about the hard way! I hope this will help you and others who read my long post, lol. God bless. 💜
Please find a Lyme literate dr in your area go to ilads.org. It sounds so much like Lyme and maybe bartonella. Don’t trust the cdc Lyme test it’s so unreliable that’s why it’s imperative that you go see a Lyme dr to send your blood work out to a good lab.
I'm 26 and had an MRI last year when I experienced sudden sensorineural hearing loss. My hearing came back after a steroid injection, but there were small non specific white matter lesions found on my brain. The ENT said given my age it could be MS. Could white matter lesions occur for no reason at all?
Dear Dear Dr. Reeves, I have for the last 7 years been trying to receive a diagnosis , I have had maybe 7 MRI, 2 spinal tapes, 3 EEG (sleep and video) and the list goes on and on. In the beginning they thought limbic encephalitis , CNS , demyelinating disease of CNS, for the past and for the 4 years m/p MS. I am not really receiving any specific treatment. Last MRI white matter did not really change that much, but there is a new lesion. I will be having another MRI, just to rule out that it was not an artifact? In the meantime I am slow going down hill! Do you see patients? I am currently abroad, but would very much like to come home for help.....From my heart to yours......is there a way to speak or fly to US to see you? I hope that you see this, as I see that you posted this 3 years ago. I would however like to thank you for your post and smile!!! Blessings to you and your family!!!
Well im more confused than ever! Why i have sudden attacks of bilateral leg paralysis that hits at any time with excruciating pain up to my waist ????? Im at a loss!
Wouldn't my lumbar puncture have checked all those things? My Dr said that the lumbar puncture was to check for MS and it's mimickes. The results were negative for everything except "banding" which my Dr. Said is equivical. I am stuck with no diagnosis. Neurologist wants me to have another MRI but this time with contrast. I don't understand why. The Regular MRI showed lesions. I have read about people getting very sick after contrast so it doesn't seem worth the risk to me.
No. A lumbar puncture does not check all the things which can mimic MS. Not by a long shot. And a reasonable chunk of people who do have MS have normal results on the lumbar puncture.
I know I may be asking this a little late considering this video is a few years old. But would Raynaud’s have an effect on the results of an MRI? I was diagnosed with Raynaud’s when I was a kid. I’m now 44 and been having multiple symptoms for at least a decade now that really resemble MS symptoms. I’ve been trying to figure out what’s going on for years now but it’s a daunting task especially when you feel terrible. I just had more blood work done but haven’t gotten any results yet. I know my ANA readings were up & down for a few years. (I quit going to the doctors for a while because it was just too much especially when I couldn’t get any answers. However it’s gotten worse & I need answers! I don’t live anymore I just exist.) I have an MRI scheduled in a couple weeks & i’m just starting to realize how nervous I am about it. I’m nervous that it will come back showing signs of MS & I’m nervous that it won’t show anything! I’ve spent too many years just existing. If it’s not MS Great! But then I’m back at square one trying to figure out what’s really going on with me. Navigating the medical system by yourself when you have no energy, can’t think, & are constantly in pain is sooooo overwhelming!
I’m just reading through comments and saw your recent post. I am sending good vibrations and love your way and I completely understand the feelings you’ve described as I am having my own debilitating CNS symptoms and need a fulltime caretaker. No diagnosis after several years, multiple ER visits, and more than a dozen docs. The worst are the sinical and callous doctors whom only add to immense suffering. I’m seeing an team of Naturopathic Docs and a fantastic retinal surgeon who can hopefully keep me from going blind. Unlikely though. I’ve really surrendered the angst since being angry only fuels my illness and steals the time I have left on earth. Prayers for you my friend.
Went thru all the tests for MS back in 2009-2012 to see why I was weak in and losing control of my right leg. They ran all the tests, which were negative for MS, but thought it MIGHT be ALS. Here I am ... still alive, slightly worse, but they say not ALS because of how many yrs its been! Been watching lots of videos by physicians and now wonder if it could be POMPE disease? Everything seems to match up.
Yes. Strokes, for example, elevate the protein in the spinal fluid for a while. Anything which causes brain inflammation or tissue injury will tend to increase spinal fluid protein. However, it's not the same "increased protein" like we see in MS; that is more specific immune proteins which leads to "oligoclonal bands" on the spinal fluid special analysis looking for increased immune proteins in the spinal fluid.
The sle lupus flares I been having has been making me have all of these MS like symptoms I hope I don't have it, I been having burning sensation and numbness and tingling in my legs for months with weird eye pain and some blurred vision, I went paralyzed for an few seconds and hit the floor hard when I got out of bed one time I'm still freaked out about it. I see an neurologist next week.
@@AndrewReevesNeurology I really need a specialist advice. I have some days dizziness since October 2018 and I'm quite stressed since then. I've made am mri of my brain in April 2019 (due to the dizziness I was feeling) and they discovered some white spots (not many) that do not change with that weird substance they put into my vein. I don't have other symptomps except for migranes, but I have a bad neck. My cervical has issues since I was young, I fell and I have chronic pain since 18 years old. I don't have the natural curve anymore now its quite straight at A4 and A5. Now I'm 32. Tried everything. I'm afraid it can be ms because my other blood tests are OK except some neutrophils (light neutropenia) not sure how that is called. Not sure if its related to anything. My dad had lupus but he is cured now. I've done some antibodies tests for it and I was OK. I'm afraid its ms. I can't stand anymore these dizziness days. I really appreciate you had your precious time to answer to me a stranger. It really means the world to me. Thank you!!
I'm often surprised by the misdiagnoses I find in clinic. And of course I try to keep in mind that I'M just as prone to that, too. Still, there are mental habits which make misdiagnosis less frequent.
Dr. Reeves, I have Arachnoiditis. I've had falls, numbness, feelings as if water is running through my legs, eye twitches, horrible leg cramps, and bladder issues. I've not had a full MRI, and the last one I had they couldn't figure out and said lumbar radiculopathy. I would like to have a full MRI, but the local neurologists don't even want to see me once they hear "arachnoiditis ". This is becoming increasingly painful too. Any words of advice as to a course of action? Thank you. 🙂
what about alot of the symptoms but mri shows black spots begining with 5 and 7 yrs later have many more black or dark spots. could we be looking at m.s. thanks lynn
More serious is the number of people who really do have MS but DON'T get diagnosed because their white spots get disregarded.
Isisbridge AMEN holy fml- lesion in brain n LOTS of white matter- 2 lesions in L4,5 I mean my list goes onnnnn n onnnn n onnnnn omg. So tired of this
10 years ago, "Well, those don't look like typical lesions." Now today, " it's a migraine" (for 6 days?) "Yep" another MRI on Monday. Bad pain behind Rt eye. She looked and said I have a" pale nerve consistent with Chronic Optic Neuritis." Hummm, is there anything else with that?
Other than MS I'm hoping...
@@missannie8012 MS can cause pain behind the eye, but migraine can also cause one-sided eye pain, so it's important to distinguish. With migraine, you would expect to have other symptoms at the same time as the eye pain, such as nausea, sensitivity to light, noise and smell, and just feeling generally out of synch with the world. If there's paleness of the optic nerve, then demyelination is more likely. I'm sorry you're having to go through this. Have you had your spinal cord scanned as well?
@@ladystrange4769 If you've got lesions in the spinal cord as well as the brain, then they shouldn't be ignoring them. But most neurologists are pretty useless, unless the disease jumps out and hits them in the eye.
Chronic issues are so overwhelming that one wants to solve them but simultaneously feels they should stop doggedly pursuing the issues because it can become one’s life. I pray for everyone with these possibilities, that the right help, doctors or healing come their way. 🙏🏻
Very well said, and true.
Would you consider a video on the "Top 10 Questions to Ask Your Neurologist," during an MRI follow-up Appointment? Thank-you.
Thanks for asking this. In fact, I've been thinking about making a video on some aspects of interacting in the office, giving a history, asking questions, what to ask, etc. I'll mull that over, too.
Very enlightening video. Thanks
@@AndrewReevesNeurology I just tuned in as my 32 year old son has been “slightly” diagnosed as “possibly” having MS, but they are basing this on symptoms and two brain MRIs. The spinal MRI is this week. I am subscribing to your channel and I am hoping you decided to post a video of the pertinent questions to ask your neurologist. Thank you for being so devoted to your craft. Signed, a worried mom from Oregon.
Great suggestion! Now I’m going to scan through the videos to see if he took you up on this suggestion.
I've been telling my Drs for years that something is going on. I have symptoms that cover multiple diseases. I suffer from migraines since I was teen and have white matter. Recently I've started having a tingly/numb sensation all over my head and face along with the joint and all over body pain that I've had for years and tingling in my hands and feet. Tests always come back fine. I suggested MS but because the MRI didn't show anything but white matter consistent with migraines they said no on that. The only thing that can get from anyone was fibromyalgia. The strange thing is when the tingling starts in my face sometimes my teeth even feel numb like I've been to the dentist.
Holly Grimm I have been experiencing the same symptoms for several years now,plus I have double vision and need to wear glasses with prisms in the lenses.I was diagnosed with Primary Myelofibrosis in 2012 and have been transfusion dependent for almost 5 years now.
Have you looked up Trigeminl neuralgia? It affects nerves in your face. However I know that doesn’t explain the issues going on in the rest of your body but you never know where one suggestion might bring you. 🤷🏻♀️
It’s just a thought. I’m not a doctor but I was a dental assistant for many years. Also did you ever have any dental work done where you had a problem with numbness not going away within a reasonable amount of time after injection? There’s damage that can be done to nerves that most people aren’t aware of because they don’t really read the consent forms. It’s not something that happens often but it does happen.
I don’t know if you’ll see this considering your comment is a year old but I hope you’ve found some answers & relief in the meantime! Just knowing what we’re facing seems to be one of the biggest hurdles to get over. 🙏❤️
I am going through the same right now 😢
You have B1 deficiency and thiamine deficiency. Take that and you’ll see a difference. make sure they don’t have magnesium sterate in it tho! I thought I had MS and ALS but took those pills and I feel 1000% better
I have Autoimmune Encephalitis, Undifferentiated Connective Tissue Disorder, & AntiPhospolipid Syndrome. My docs thought I might have had MS when I came in for diagnosis at age 14... This makes sense now. I have never heard of a 14 year old with MS. A lot of my neurologic symptoms are so similar to MS. Thank God I do not have it. And I thank my doctors at Duke hospital in Durham NC for being amazing medical professionals.
I was diagnosed when I was 16 now I'm 19 .. I don't think it's ms because my symptoms are worsening and I'm too young for having ms ... do you have oligoclonal bands ?
@@directioner2870 you might want to look into Sjogrens Syndrome. It mimics MS.
You are so nice giving facts honestly, disseminating information doctors don't have the time to educate individuals with.
I have double vision and major problems with ADL's. Thank you for being so concise. Reading medical articles becomes very difficult when I have double vision. You teach like a university professor. I was educated to be an RN and watched videos similar to this to get my degree.
Thank you very much, I will include you in my prayers. 😊💐
Thanks for your comments. I actually WAS a university professor earlier in my career. I got tired of the politics and the inefficiencies.
What do you recommend for someone who has been tested (MRI) for MS 4 separate times, years apart, at the recommendation of 2 different doctors, because the symptoms are there? "Inconclusive" results each time. Very frustrating, because in the end, all I walked away with is thousands of dollars in medical bills and a prescription for Xanax. I just want to cry when I think about it.
Numbness and tingling in back, legs and arms. Muscle strength in hands and upper body disappearing. Vision and balance problems. Foot drop. Vibrations in chest, and band of tightness around upper torso.
I have to wonder if you might have B6 toxicity and maybe have it bad as my brother has it to the point where his life seems to be destroyed and he is suicidal
Have them test your CNS fluid, I mean MS in my MRI scans, in any of them are very very apparent the T2 areas glow like a million lumen spotlight in the dark. Have them keep testing, and testing I have heard some people wait years for a diagnosis, mine was less than 30 days, my symptoms started over about a year which ignored until my eyes went crossed, I could only deal with that for about 3 weeks, iv steroids I was in the hospital for 10 days with test and left with the diagnosis of Clinically isolated syndrome, well with in a month or less I had another attack that left a t2 hyperintensity on my pons medullary region that covers the entire thing, ov steroids 10 more days in the hospital and a diagnosis that was 50% MS or 50% Progressive multifocal leukoencephalopathy, at which point I was told the test would take 48 days of the 90 I had left to live if it was that. Well it was MS and I can tell you after alot of doctors and ER visits, if the issues are there, they are there don't give up keep going let them call you nuts. Most doctors are arogant jerks that need to be knocked down a step or two.
I would say you have a severe, chronic magnesium deficiency.
@Se A I really wish that were true. :( Actually, a blood test is the least reliable way to measure magnesium levels in the body. This is because the body will take stored magnesium from the body's cells in order to keep enough magnesium in the bloodstream to regulate heart function (the relaxation phase, specifically). The reality is, your CELLULAR (storage) magnesium levels could be dangerously low or even depleted - which causes one to feel MISERABLE - while a blood test could show "normal" magnesium levels.
The most effective way to check magnesium is at the cellular level...there's a test called "Spectra Cell" which purports to be the most efficient. A saliva test is even more reliable than a blood test. Bottom line is...a blood test for magnesium only tells you how much is in the BLOOD (to power the heart muscle)...it doesn't tell you how much magnesium is in the cells.
Your entire body needs magnesium to function properly. Magnesium is known as "The Spark plug of the cell". If your cellular magnesium stores are very low, you will feel AWFUL (stiff achy muscles, headaches, low energy, sinus issues, muscle twitching, etc), but your HEART will still continue to beat - until magnesium stores are completely depleted...then you'll end up with irregular heart beat/rate, and sometimes even chest pain (or worse!).
SOURCE: Personal experience; years of research after learning the hard way. 😢 And studying the published research findings of Dr. Carolyn Dean.
I'm really sorry, I know how you feel. Something may be causing your different sensations. It could be a vitamin deficiency. What if something like magnesium could make you feel better. It's an electrolyte that acts on every nerve fiber. So does potassium. Get a recommendation about testing your blood at new age labs from magazines at health stores. You want to get a grip the younger you are. Because of the huge amount of chemicals humans, animals and plants are exposed to
They are not just killing the ocean.
Anyway a vitamin deficiency is insidious. I'm trying to go to sleep so I'm sorry if this is disjointed. Must say my prayers and go to sleep.
Hi Doctor, I have had about five bad episodes of vertigo, in the past few years. The first episode lasted several days and I was in the hospital. In July 2021, I woke up very numb from the waist down. The next day, the numbness traveled to my chest. The next day it traveled to my neck. I drove to the ER that night, barefoot, so I could feel the pedals. I had a lumbar puncture to test for Guillian Barre, but it was negative. Also MRI done and no plaques. They treated me with IV drugs for Guillian and also high dose prednisone. Ever since then, I have extreme exhaustion! I fall a lot. I have major brain fog & concentration issues. Bladder control issues. My arms and legs have been constantly extremely numb! I am extremely exhausted! I do also have bulging and herniated discs from a car accident in 2013. I also ended up with a pulmonary embolism this past January. I’m frustrated and unable to work or live a normal life. Any suggestions?
I’m sorry you are dealing with all of this. I’m praying for healing and peace over you now in Jesus name. Amen!
It's sounds so similar to what I experience...
Thank you so much for this video, knowledge is power. I really appreciate you taking the time to help clarify other possibilities out there.
This was very helpful. I was diagnosed with sarcoidosis(lymph node biopsy) three years ago. I have been having neurological symptoms for the past year. I am going through the fun process of medical testing to see if it is neuro sarc or something else. The more I learn, the more empowered I feel. Thank you for such an informative video.
How are you now
I'm seeing a neurologist next week .Already had a videonystagmography and MRI. I'm 66 and noticed a change in my stride about 3 years ago. A sensation like I was being pulled along and dismissed it as the new orthotics from my podiatrist. But 2 months ago the symptoms amplified to feeling like I was walking on a trampoline or stepping into foam rubber. Also noticed an increase of weak muscle spasms in legs. Otherwise not experiencing any weakness, numbness, or pain.
I'm 66 also and I noticed a few years ago that sensation of being pulled alone, if I would lean forward it felt like the upper half of my body was heavy? Quitestrange that it comes and goes, and also that feeling of walking around on sponges And a poor gait especially when it's dark out And even more especially on uneven ground, what was your prognosis or diagnosis?
After a couple MRIs the problem has been diagnosed as moderate cervical myelopathy. Compression of the spinal cord in my neck by surrounding vertebrae. Effective treatment will require surgery and a lengthy recovery that my surgeon and I have agreed to delay unless symptoms worsen.
Dr Reeves, you're such a gifted teacher. Thank you.
Thank you, and I'm glad you found the video useful, Jen. I have a strong belief in education, because the smarter we all are...the smarter we all are!
I recently had MRI, CT scans and have been seen by a neurologist, rheumatologist and a endocrinologist. Needless to say the tests have been abundant and I'm currently waiting results to see what certain doctors mentioned that might be M.S or Lupus being the culprit. Some of my symptoms are back and joint stiffness, numbness and nerve pain in my legs and arms with recent periods of tingling in my face, I also have large amounts of fatigue accompanied with lack of memory and focus. That being said, it took me over 15-20 minutes to write this paragraph.
What are the results of your tests?
Just yesterday I went to see my neurologist and he reviewed the spot on the front right of my brain said it was a bunch of blood vessels bunched together (by the looks of it), but still wanted to retest in six months to make sure it doesn't get larger the 7 mill size that showed up. The doctor also ordered a bunch of blood and urine tests to make sure it's not autoimmune disease. I still have to see my endocrinologist to review his tests and see if some of the symtoms might be hyper parathyroid. So to sum it up, test, test and more tests.
Doom Punk I wish you luck. Hang in there! I am in a very similar situation as you.
Did you had spinal MRI and Lumbar puncture to make sure it is not ms?
Mafil, The neurologist wants to check a few things and see if the next step is a spinal tap. With the blood and urine he said he can look for any culprits that mimic M.S. Which were lupus, lime disease, and poisons like lead or chemical; I was a house painter for 27 years, so it could be poisoning of the blood. I've had the spinal M.R.I for the brain and neck which produced a 7 mill cluster or spot on my from right side, but they think its blood vessels and have to retest in six months. Mafil, if you don't mind me asking, what stage of tests are you going through?
Thank you so much for the really thorough explanations of symptoms and possible related diagnoses. I have Fibromyalgia Syndrome and it is a monster. I choose to manage it with diet changes, supplements, exercise as tolerated, breathing and meditation, cannabis products for pain. I still have Fibromyalgia but Fibromyalgia doesn't own me. Again, thank you for sharing your wonderful and interesting knowledge of these complex chronic illnesses. 💕
Check for Lyme disease . Igenex lab might help to find confections
That’s amazing that your doing better! I would highly recommend seeing a functional medicine doctor! I recently talked to a women who fully recovered from fibromyalgia and chronic fatigue syndrome. A lot of times fibromyalgia pain can come from your adrenal glands not working properly and/or sibo, ebv virus, Lyme or some underlying issues! Take care!
I have as my pain management doctor calls it "severe" fibromyalgia. I feel your pain. Unfortunately I also have Sjogrens and a very progressed case of this hateful autommune disease that has destroyed my body systemically and total body destructive arthritis. Have had both hips replaced and waiting for the go ahead with the hospital in a large city in midwest to open doors for elective surgeries to have my first knee replacement surgery. Covid has taken me off surgery schedule until the icu beds and other floors even surgery floor. We still have extremely high covid cases in mt state of residence.
@@georgelopez9517 more times than not it is fibromyalgia with an autoimmune disease that goes undiagnosed because most doctors are too lazy to put the 2 together. So like me i went undiagnosed with my debilitating autoimmune disease for many long years. I was diagnosed by a rheumatologist first for fibromyalgia. None of my doctors ever thought to have me tested for markers for an autoimmune disease until i changed rheumatologists and she diagnosed me immediately with progressed Sjogrens.
So you see theres so much more than fibrolmyalgia patients are actually ill with autoimmune disease
Its less rare to find lymes disease and the others mentioned in those diagnosed with fibromylagia. Noone has fibromyalgia fully cured, but there are some things such as diet and exercising that relieve symptoms in some patient, but not all.
@@reason5591 Hope your are ok, God be with you and I hope pray that you feel better.
Thank goodness for UA-cam, Thank goodness for this girl's funky dabbing dad. This video is pure knowledge. I was about to go down the rabbit hole and see MS in everything but now I know that it's a lot more complex than that. Now I can chill and just find out more about what I didn't know.
Kirbubbles have you had a spinal tap?
How are you doing now?
First relapse left me permanently blind in my left eye due to ON. Was severe sudden onset (within a day) - this was 2 weeks after a C19 infection. Now almost 1 year officially diagnosed with MS. MRI found dawson's fingers and one or two spots on the spine. Could C19 cause/trigger MS or even lead to inflammatory damage in the CNS?
Good question....did you find out anything about it?
@@marconiki6302 as of yet no, sadly this is a very niche research topic where i think many researchers dont want to be branded as antivaccine for potential negative observations. I still strongly suspect c19 though as prior to my optic neuritis and diagnosis i didnt have a single indication of MS. C19 does seem to be related to a whole list of autoimmune issues though that has been proven.
I suffered from MS symptoms for almost a year before finally realizing on my own that it was connected to gluten. I went gluten free, and it cleared up within a week. If I cheat on my GF diet, the symptoms come back. I went through countless tests and doctor's appointments and not one of them recommended an elimination diet to see what was triggering symptoms. I was desperate, so gave it a try and am so glad I did! I went from walking with a cane and not being able to sign my name because of tremors to being completely "cured" all through diet.
The diagnosis of MS is, as you know, not based just on symptoms. It's a combination of symptoms, MRI findings, physical examination findings, often spinal fluid tests, sometimes evoked potential testing, etc. I'm glad your symptoms have improved.
Andrew Reeves Neurology Yes, I had the MRI and spinal tap, but no signs of MS showed up medically. Meanwhile I continued to require a cane to walk, had numb feet and hands, a tremor in my hands, etc. with no explanation as to the cause. I was glad it was not MS, but wish we had discovered that gluten was the cause much sooner. My hope is that others who have mimic symptoms but are not diagnosed with MS will give going gluten free a try just in case it affects them as it did me. 😊
Just gluten free- I'm going to try gluten free 😎😄. THANKS GF IS PROMISING!,😚☺🙂
Some professionals have suggested going dairy free plus gluten free if gluten free alone does not resolve the symptoms. I am not a professional, but found this on Dr. Clark's site. He is a neurologist who also manages his own symptoms with food. Worth asking your medical professional who knows how to set up and evaluate elimination diets.
@@newlynatural5374 Get a blood allergy test and not patch testing. There are a few different foods that can cause brain inflammation. Keeping your inflammation down is very important with any autoimmune issue. The three big things are Gluten, dairy, and sugar but it also depends on what you having reactions to.
Thankyou Dr Reeves for sharing
your knowledge , it alleviates worry.
I was misdiagnosed for years with MS, and languished in an MS clinic, until my skull began to deform. I went to another hospital’s neurosurgical clinic, where I was found to have an end stage brain tumour. Had a craniotomy, with a titanium mesh plate used to replace the damaged cranial bone. 25 years later, I developed two new brain tumours; both locations under the huge cranial plate, so craniotomy was ruled out. I was given cyber knife treatments, which caused severe brain swelling. I now have progressive neurological deterioration. Underlying all this, I have suffered since early childhood from the after effects of a viral infection, which had caused severe headaches and backache, and left me with a weak, spastic leg and epilepsy. It sucks!
Wow! That's about all I can say...wow. I wish misdiagnosis of MS (or anything, really) didn't happen. We are human, and so prone to error, which is why I teach the medical students and residents, "Always be suspicious! Always ask, 'Am I being fooled here?'"
I think alot of this issues start with mycroplasmas . They do exist. Systemic conditions and various chronic conditions..including tinnitus..central nervous system often becomes inflamed. Vasculitis is common an Ra..They can cause all kinds of Aotoimummune diseases plus cancers.. I wish more drs would and need to study this..and quit blowing off this kind of stuff..and get to the root of it and not just try and manage the systems and think outside the box.
@@hallieoop1 Hi Hallie, what are microplasmas?
I hope you gain more and more physical and spiritual peace with every new day. ❤️
Susan Ritter I honestly read your comment and I couldn't breath! How are you now? I send you my prayers and love. Stay strong!
I have white spots but ms was ruled out. I have been diagnosed with fibromyalgia and cfs/ me but my neurologist says that I have a brain function problem but with no explanation why. I have many of the same symptoms of ms
Sounds very similar to me! I have ME/CFS and fibro as well. Neuro said I had a lot of white spots on my brain normally seen in someone 15-20 yrs older. He had no clue why, and offered no possible explanation. Wanted to do a spinal tap, but I changed my mind about it, as it can be risky and quite debilitating afterwards (especially with having ME and fibro!)
Wishing you all the best. I'm personally going to get a 2nd opinion.
Can you please tell us what it turned out to be?
Get a Lyme test from a Lyme literate dr. Go to ilads.org
Find one in your area.
Sounds a lot like Lyme
Me too.. what could it be?
Can stress bring on MS like symptoms? Every time my stress level gets to an unpleasent level, I get odd symptoms. I woke up one morning and my leg was paralized. This went away after about a week. Now, I'm getting jerky and I'm vibrating and forgetting stuff alot.
Yes, stress can bring on MS-like symptoms. I do have a video on stress symptoms, too, in case that is of interest.
the doctors here look at me like I have two heads. The term idiopathic comes up a lot. I think it's because my symptoms come and go with my stress. But, I have had the dystonia for about a year and it keeps getting worse. About a year ago I fell down the stairs. things got a lot worse after that. My face jerks now. All of my jerks and weakness are mostly on one side. I'll check out your stress video.
@@whattowatchrightnow I think you should get checked by rheumatologist just in case you have some kind of autoimmune disease. Stress known to cause cancer, autoimmune disease etc. I suffered for decades with CFS (chronic fatigue syndrome). Always been careful with sugar levels and diet cuz dad & family have type 1 diabetes. (He finally developed type 1 after some stress events in his 40s). CFS diagnosed by my first ID doctor 2001, but a lot in medical community still thinks it's bogus or nothing, now I can't even be seen by ID doctor's on my plan. But then I'm getting more & more muscular symptoms, spasm, numbness, dead arm, old injuries aching, joint etc. I insisted something's wrong especially since my left arm suffered weakness can't even hold onto things, memory loss getting worse, gut/GI tract problem, flare ups, etc all accelerating last couple years. Taking prednisone seemed to take them away. My PD finally ordered for autoimmune and I tested positive. Nucleolar pattern suggesting scleroderma. Also another ANA test from pulmonologist came high for autoimmune liver disease and trace for some kind of hearing loss (Mienier? disease)
So I think its important to get checked sooner than later!
@@かんぐちあき You're full of good news. I'll call a rheumatologist next week. Thank you for your reply.
Stress depletes magnesium in the body. Magnesium deficiency causes MS-like symptoms.
Here goes,
Posting this here because I know some of you do research and think I may have stumbled upon a very important insight concerning the etiologies of various neurodegenerative disorders and maybe degenerative disorders in general.
I’ll cut to the chase and ask the question and then explain how I got to the hypothesis. It is: Is it possible that distinct neurodegenerative and musculoskeletal degenerative disorders are in fact be specific symptom complexes that correspond to dysfunction of specific substructures of the cervical ganglia which subsequently alter certain functionalities of the choroid plexus and have downstream effects on the basal ganglia and spine?
A recent medical situation in my life prompted me to conduct some personal research to better understand my condition. As a result, I became familiarized with the dynamics of a specific system of structures in the body that, if better understood and regarded as a unified whole, could potentially shed a brighter light in the etiologies of degenerative disorders.
Essentially, my research led to make connections between three structures in the neck and head: the cervical ganglia, the choroid plexus, and the basal ganglia.
A few observations became key in developing this idea about cervical ganglia involvement in degenerative disease. The first had to do with the basal ganglia. Basal ganglia dysfunction can cause a dearth of dopamine in the brain and subsequent cluster headaches and Parkinsonism/movement disorder symptomatology. This structure controls voluntary movement in the body and so in the case of movement disorders, it is usually the culprit. The question then becomes what is the fundamental cause of this dysfunction?
jamanetwork.com/journals/jamaneurology/fullarticle/784785
Thinking about a specific syndrome called Eagle’s Syndrome which often presents with symptomatology similar if not identical to that of neurodegenerative/movement disorder. Eagle’s Syndrome is an abnormal ossification and elongation of the styloid process at the base of the skull that interferes with the cervical ganglia and carotid arteries in the neck and creates symptoms.
actascientific.com/ASDS/pdf/ASDS-02-0202.pdf
I wondered if superior cervical ganglia dysfunction could have downstream effects on the basal ganglia and cause disorder. So I began to attempt to understand the dynamic relationship between the cervical and basal ganglia.
I began to look more closely at the cervical ganglia, in particular the superior cervical ganglia. This structure innervates the eye, parts of the face, the throat and sinuses, stimulates mucous production, has a part in regulating heartbeat (an aside: the disruption of the cervical ganglia when an Eagle’s Syndrome sufferer turns their head can result in panic symptoms: palpitations, dry mouth, gagging, so this could be a tool when thinking about mental heath physiopathologies as well), and also found that it is the only peripheral structure that sympathetically innervates areas of the head and brain. In particular, it innervates a structure in the brain called the choroid plexus. This was the next bridge on my way to the basal ganglia.
en.wikipedia.org/wiki/Superior_cervical_ganglion
The choroid plexus and found that it has a few very important functions: 1. To release transferrin that promotes iron homeostasis in the brain 2. Send agents to bind with antibodies to be flushed out of the system when infections are resolved and 3. Stimulate production of cerebrospinal fluid. That all struck me as fairly promising.
en.wikipedia.org/wiki/Choroid_plexus
I started with antibodies and found articles about post-infection movement disorders (specifically PANDAS, about which there is now literature about non-pediatric cases) where it is shown that sufferers have anti basal ganglia antibodies.
www.ncbi.nlm.nih.gov/books/NBK333433/
It struck me that if a substructure of the cervical ganglia that innervates parts of the choroid plexus that promote production of antibody binding agents is dysfunctional, an infection could very well trigger an indefinite autoimmune response, attacking the basal ganglia and other systems. Some neurodegenerative and degenerative disorders like MS are thought to be autoimmune, and disruption of the cervical ganglia and subsequent introduction of infection could precipitate an indefinite autoimmune response. Symptom progression might depend on the nature of the ganglia dysfunction (if it is ongoing, say, due to injury and resulting occlusion, or intermittent, say, due to Eagle’s Syndrome, in which turning the head causes ganglia disruption), theoretically accounting for the different subtypes of MS.
www.nationalmssociety.org/What-is-MS/Definition-of-MS/Immune-mediated-disease
I also had the thought that if iron deregulation in the brain could be caused by dysfunction of a specific substructure of the cervical ganglia and subsequently the choroid plexus, maybe iron irregularities in the basal ganglia would be observed in sufferers of movement disorders, and sure enough, it’s observed in most, if not all of them. At this point I felt like I was really onto something.
www.ncbi.nlm.nih.gov/m/pubmed/22266337/
And then a thought occurred to me: what if the first domino to fall in the etiologic chain of ALL of these degenerative disorders begins in the cervical ganglia? This could be why there are peripheral nervous system symptoms that manifest early in diseases like MS (the cervical ganglia innervates the eye and throat and heart, so vision dysfunction, dysphasia, heart rhythm problems etc would be some of the first symptoms you’d expect to see in this etiologic formulation). I’d seen papers talk about a corticothalamic basal ganglia circuit, but not much of anything about the cervical ganglia or choroid plexus, and I thought, “maybe the cervical ganglia is part of that circuit, affecting it indirectly but very profoundly.”
Not everyone who suffers from degenerative diseases would have Eagle’s Syndrome of course, but maybe there would be occlusion/tortuosity of the ECA or cervical ganglia, or maybe a trauma shifted their positions leaving the cervical ganglia susceptible to injury, or maybe genetic degenerative disorders’ gene expressions simply omit instructions for certain substructures of the cervical ganglia to form and subsequently instruct the choroid plexus.
So the idea is, if there are three main tasks of the choroid plexus, then there are seven combinations of those tasks (1; 2; 3; 1+2; 2+3; 1+3; and 1+2+3), and there are two ways for each of those tasks to dysfunction (over-firing or under-firing, although I’m not exactly sure about this detail), then each combination of simultaneous or sole dysfunction of cervical ganglia substructures which correspond to areas of the choroid plexus that are involved with completion of one of these three tasks would represent a distinct symptomatology-i.e., a distinct degenerative disorder.
Important to note is that for antibody binding dysfunction due to lack of transferrin to become part of a neurodegenerative symptom complex, it may require an initial infection of a certain type to kick-start an autoimmune response strong enough to manifest in this way. In my reading about PANDAS I came across mention of “molecular mimicry,” and I thought maybe it was possible in the case of infections that feature such molecules, and in patients that have cervical ganglia dysfunction, that since the infection that the immune system (now totally unchecked by transferrin-aided antibody binding) is targeting resembles healthy structures in the body that all of these factors compounded could lead to ongoing destruction of healthy body tissue.
It may be the case that I’m off base, or there are ways to easily prove false all that I’ve said, but I don’t know that. That’s why I’m posting, because in the unlikely event that this is not totally crazy, and might actually be plausible, it will be in the hands of people who can do something with it. A theory is judged by its explanatory power, and to me, this one seems to explain a lot. Could it be the skeleton key that unlocks understanding of these diseases and leads to new treatments and potentially cures? Is it simply that the cervical ganglia needs to be attended to more intensively when these disorders manifest?
According to the literature, somewhere between 80-95% of Eagle’s Syndrome patients who undergo styloidectomies have complete cessation of symptoms. If I am right about the cervical ganglia’s role in degenerative disorders, and some of these patients’ styloid process was in contact with their ECAs and cervical ganglia, the neurological symptomatologies that presented may well have progressed into full-blown neurodegenerative disorder if left unaddressed. It could very well be the case that these successful surgeries represent instances of the curing of previously thought to be incurable neurodegenerative conditions. But again, Eagle’s syndrome merely represents one mechanism of action that could cause cervical ganglia dysfunction.
I’d appreciate any response, even if it’s to tell me why I’m off base. I hope you’ve read with an open mind, and were willing to ask yourself “what if?” So, the question is: is it possible that superior ganglia dysfunction is the primary etiological feature of a host of neurodegenerative disorders? That this could be a unifying theory?
I have several thoughts. First, that's quite a dissertation! Second, yes, there is a LOT about brain and body function we still do not understand. Third, given the vast complexity of the brain and other organs, I doubt there is a single, unifying underlying process to explain many disparate disorders, especially degenerative disorders (e.g., Alzheimer's, FTD, Parkinson, MSA, etc.) for which we have identified some of the relevant genes. Personally, I view Eagle syndrome as a primarily mechanical disorder, in part because a mechanical treatment (surgery) is so often curative. So, I'm not sure your theory is right, but it's a big world out there; become a neuroscientist and do research on the cervical ganglia--you might find something which has been missed.
Thanks for the reply! And “unifying theory” is probably a little over-eager (over-eagle?). This is actually the short version of the summary of idea, and the reason I wrote it is because I’d been diagnosed with Eagle Syndrome and have had symptoms of Parkinsonism and Horton’s Syndrome and starting making all these connections to structures that the styloid process interferes with. I agree that it is a mechanical disease and can be easily treated with a procedure, but that’s the exciting thing! If cervical ganglia dysfunction DOES create all of these downstreams effects, it suggests that treaement options might be much simpler and more effective when we treat the potential root of the problem-the etiological foundation. What’s been striking me in my research is the fact that if you trace the logical path of cervical ganglia dysfunction, you can simulate sometimes on a molecular level these neurodegenerative disorders just by letting the dominoes fall. I have a friend in the governor’s office in PA who works for the department of aging and he’s going to talk over “the long version” of the summary with some people involved in research funding. We’ll see where it goes!
Also of note, I’m not citing Eagle Syndrome as the cause in all cases, just saying that SCG dysfunction might be observed in many, most, or (mostly likely not, but I can dream can’t I?) all cases of neurodegenerative disease. And maybe that gene expressions that correspond to these disorders work themselves out in this structure and it’s substructures. I mean, when we try to figure out how a gene expresses, we might test the blood or spinal fluid for substances that correlate with the presence of the gene, right? What if those substances are also downstream; and the SCG is that cause for their forming?
For instance, in Alzheimer’s, there is a certain substance that forms in the brain called an Ab-peptide that is an abnormal metabolic byproduct of endocytosis that can accumulate and link together to form plaque deposits. Here’s the thing: transferrin that’s produced in the choroid plexus which is innervates by the SCG is involved with the endocytosis of neurons, and is the SCG is dysfunctional for any reason at all, there would be inefficiencies that might lead to the formation and accumulation of Ab-peptides.
It just seems like every time another question pops up, it can be explained through the lens of this formulation. So who knows!
Thank you for your time.
Very informative. Thank you for taking your time to educate us.
I’m just gonna say, I love your videos. You are comical and real. Thanks. I need your knowledge.
Does he ever do MRI image consulting? I would be curious what he would have to say about my mri...
I had one of the 2 cases of bacterial Meningitis when I was 15, the other case was on the military base. Thankfully I fully recovered but now I'm having similar symptoms but no one can give me a straight answer.
I initially thought I had MS, because my mother has been diagnosed and my symptoms mimicked hers. But unlike her, it has not shown up through any MRIs and the lumbar puncture. I really wish I knew what it was though since this is debilitating.
I am going through exactly the same thing right now. It just doesn't get better and nobody wants to help me because they say its psychological, which is ridiculous...i lost so much weight. I just want it to stop, been going on for 2 months and im so weak by now.
Check for Lyme
How are you both today?
B1 deficiency and thiamine. Many people have it and never realize it
This is a great video. Thank you for the information and how you present it in a way that is not condescending. I am going to reach out to your office for a second opinion.
I'm having MS symptoms like muscle spasms and cramps, spasticity, tremors, and urinary problems at one point. I know there could be other causes for these symptoms so that's why I'm here while I wait for my neurology appointment.
Good info. I have severe cramping fasciculations and they are spreading. Calves, ankle, feet, shin, shoulders, arms, hands, tongue, neck. This all started after a botched C5/C6 fusion in '08. During the worst episodes, the muscles that are affected will stiffen and cause a great deal of pain. When my hands are affected, the pinky knuckle is drawn down and inward causing a great deal of pain. Or, the muscle on the outer palm severely cramps. Usually, with my feet, my big toe is lifted and a great deal of pain follows. The most dreaded symptom is when my tongue cramps. I fall a lot. I still don't have a diagnosis.
I have had MS symptoms for 4 years. Tested positive for sjogren's instead. I saw a quick little pop up about that on your video. Could you possibly make a video about sjogren's? There isn't a lot of information about this disease. Thank you!
Do u drool saliva in mouth? It happens to me on both sides of mouth and also have dysphagia :(
Hello Doc, is there a way to do a consultation with you?
Greetings from Italy
Well, you'd have to come to the United States! I don't do online consultations, sorry.
Thank you so much for this information doctor you have given me lots to discover and peace of mind.
Hi Ann, how's your day going with you?
Dear Dr. Reeves, what a wonderful video, thank you! I was diagnosed with MS a few years ago. I was gradually declining, all my symptoms were bilateral, felt like my body was shutting down. A year ago, completely by chance, i started injecting b12. My symptoms started tp drop off like flies, starting the very same day i had the first b12 injection. What would you recommend to have the MS diagnosis looked at again? Any useful tests? Thank you!
In my practice I very frequently check B12 levels, for a variety of problems and symptoms. People who have been getting B12 by injection once a month (usually 1mg / 1000 micrograms) most often have nice and high levels. I'm glad you're doing well! Having a second opinion about a diagnosis certainly is often a good idea, especially if there is a reason to doubt the diagnosis.
Thank you for your reply Dr. Reeves. I did get a 2nd opinion (from a leader of the same MS clinic where I was diagnosed) and the line now is that I have both, B12 deficiency and MS and that the symptoms I had up until I started the b12 injections will return with vengeance. Its been a year since then and so far the opposite is the case, I gradually feel stronger and stronger. I am going to ask for a 3rd opinion from a completely independent professional, its just that now my system is flooded with b12 and it can't be proved that I was simply b12 deficient all along.
I got my life back and time will tell. Thank you so much for all that you do, your work saves lives.
Ivana what symptoms did you have before the B12
So I had exactly that scan with T2 flair, I’m 31 years old and I have other symptoms after a +LOC trauma. My doctor told me all my symptoms and pain is all mental and I need therapy.
I’m 32, and I have a ton of symptoms of something, don’t know what that something is, but they clearly saw I have slow generalized and focal brain waves, and they saw two huge brain lesions, but they told me my symptoms are stress-related.
Get checked for Lyme disease. Use iGenex labs
Said that to me to I had spine pain..well that was a joke...needs to be sued..I had 2 surgerys. And was all most paralized
*Dr. Reeves, I truly hope you can answer this. I was diagnosed with lupus about 20 years ago. Type II diabetes about 5 years later. My blood tests are run almost every 6 months to see what my A1C is, as well as, Anti-ANA, & ANA, etc. Something VERY weird has been going on with my body. A month ago, I went to bed, still half awake....I thought it was a tremor due an earthquake. After 10 seconds, I sat up, & realized it was my body vibrating very quickly. It continued for almost 2 more minutes. I didn't know what to think. It has happened about every 5 days, only when I lay down to go to sleep. I'm also usually on my back when that happens. My body is not shaking, it is a very fast vibration from my head to my toes, completely engulfing the inner being of my body. And I realize you are not my doctor, however, I would just like to know what you think about this. I also would like to mention the fact that I have had very bad problems with my balance and just walking for the past year. I have degenerative disc disease, and I also have spinal stenosis. The vibration thing is really bothering me as far as making me constantly worried. I will not be seen a doctor for at least another 30 days. I'm in my 50s. Thank you very much for your time. Have a beautiful day.*
It would be difficult indeed to know what is going on with you. I would certainly suggest you discuss this with your doctor, and maybe even see a neurologist. Sorry I can't be of more help.
Andrew Reeves Neurology
*Thank you for your time. I have an appointment with neurologist next month. He's ordered an MRI, not the standard one, but one that is far more detailed or something. I'm sure you know what I am speaking about. Have a wonderful week.*
These vibration feelings worry me because I feel shaky from the inside (chest area) out and it travels into my arm pits when I stand.
I've had the same vibrating feeling in my body when laying down. Haven't had it for a long time though. I was 33 when it was going on with me. My mother had all of the things you mentioned and also diagnosed MS. I feel the vibration was silent seizure activity with me. I'm 38 now. I too thought it was earth quake activity at the time.
That has happened to me too; I thought I'd drank too much coffee.
What would you think if a patient presented the following symptoms: Myokymia of left upper eye lid for seven months, muscle twitches and spasms of the arms, legs, and back. Internal deep muscular itch in armpit and bicep as well as scalp and face, tingling in back near spine on both sides, deep and at times radiating pains in hands, arms, legs, and trigeminal region (not joints). Fatigue and cognitive disruption? Symptoms will be present for up to two weeks then normalize until they return 4-5 months later. (Excluding eye twitch, that is constant.) No vitamin or magnesium deficiency, negative lupus, no lyme, and negative epstein barr virus.
What do you mean by sudden hearing loss in one ear?
Do you mean significant impairment or total deafness that can resolve itself?
Very interesting. My mom was diagnosed at 70 with MS. But only after a spinal tap along with MRI. First symptom was dizziness and loss of balance. She gradually went to a Walker, now wheelchair. Issue with one eye, one ear, and now tremors. Never has pain but no mobility. She went downhill fast. Now at 77, new neurologists, they think it's not MS, but no other diagnosis. I wish one day she would wake up with her balance so she could function normally. Thanks for sharing.
70 would be extraordinarily old to develop MS. While primary progressive MS does indeed tend to start older than the more common relapsing-remitting MS, 70 would still be quite old even for PPMS. I'm glad she's getting a second opinion--hopefully from an MS/autoimmune neurology subspecialist. If she truly does have PPMS, there is now at least one medication approved in the US for treating it (ocrelizumab) as of this date; more to come, I'm sure.
My daughter was told true MS spots look like sparkles in the MRI, not just white spots. It’s similar to how radiologists see fluid in the lung tissues as opposed to inside the lung itself. They describe what they say is called a ground glass appearance. They know what the difference is and they describe it the most vividly as possible. But sparkles is what at least three doctors told her.
Acute (recent) MS lesions in the brain enhance when contrast is given by vein, so they look brighter than without contrast. Perhaps that's what they meant by "sparkles." Typical location, shape, and orientation of MS plaques have been well described, although there is quite wide variability--one thing which makes people mistake other things for MS quite frequently. (In fact, I saw another one yesterday, where a lesion in the spinal cord was mistaken for MS.)
I have all the symptoms of ms including white spots on the brain macular degeneration and sle. My legs look like twigs I am pale and my pancreas has a tumour on the lower portion and the rest has atrophied, doctors don’t really treat anything any more . I have a lot of specialist Nd if not for my go I’d be left without any treatment for rain or sle . Thank you btw it’s taken at least ten yrs for all my symptoms
Hi Leanne, how's your day going with you?
@@paulohlsson27 hi I’m good thank you how are you
@@leannemayor5755 I'm doing great and thanks for asking. How are you spending your spare time?
What if you have many symptoms of ms, neurologist told me that's most likely what it is, then did a bunch of tests and ruled out many things but I can't have an mri. So then he told me I don't have ms. So got diagnosed with nothing. Now what?
You need an mri. You will not know if you have MS without it. Find a good neurologist! OF COURSE you can have an MRI!
@@desiderata333 Not true. MRI is a tool to help visually show changes over time. Period. It doesn't tell you whether you have MS or not, as the good Dr. spent most of this video explaining. It's because of thinking like this that I can't get a proper diagnosis, just like Alicia J. originally posted.
@@graceofgodtoday I don’t know what you mean. I have RR Multiple Sclerosis for 25 years. The tests for MS are MRI and spinal tap, which I didn’t take as my neurologist was 99% sure of my conclusive diagnosis AFTER my brain and cervical spine MRI’s.The lesions in the brain and cervical spine can be detected via MRI. You cannot base such a serious diagnosis without proper testing and on symptoms alone snd there is no blood test for it. Therefore, you are absolutely wrong.
@@desiderata333 This article does a good job of explaining my current understanding.
www.everydayhealth.com/specialists/neurology/complications-of-ms-diagnosis/
It states - "The diagnosis of MS can be very difficult at times. It is still a “clinical diagnosis,” meaning there is no specific diagnostic test you can take. Rather, your doctor looks at your MRI and spinal fluid results in conjunction with a clinical history and exam to see if the results are compatible with a diagnosis of MS.
MS can be present even with a normal MRI and spinal fluid test although it’s uncommon to have a completely normal MRI. Sometimes the MRI of the brain may be normal, but the MRI of the spinal cord may be abnormal and consistent with MS, so this also needs to be considered.
Also, the symptoms typically associated with MS can occur with other problems in the brain or even blood. Other diagnoses may need to be considered if your MRI is normal."
That is my understanding of M.S. diagnosis and progression tracking, and why it is incredibly frustrating for those who do not fit the common M.S. MRI/Lumbar Puncture expectations that have really only been around and emerging for about 30-40 years in the first place.
Tools to help diagnose, and the preferred "confirming" evidence of M.S. - yes.
Defacto standard for M.S. diagnosis - not quite.
Maybe you're right and maybe I'm wrong.
@@graceofgodtoday thank you for this. I had no idea. Either way, MS sucks I can assure you.
I have Hydrosephalus. I'm 30 years old. lots of similar symptoms. Except for the slighty larger head
I'm 30 and also have hydro..i had three very aggressive episodes if all ms symptoms..the drs were worried about shunt failure but ruled out.
I still got no diagnosis..how about you?
Adhesive Arachnoiditis (inflammation lesion disease of the spine and brain) causes cerebral arachnoiditis (autoimmune meningoencephalitis). I have been diagnosed and have the same symptoms as primary MS. It started as meningoradiculitis (symptomatic tarlov cysts). The cysts were inoperable and after seven years I am homebound tethered to a freezer. Can this disease be thought of as a mimic? According to Dr. Kreiger from Mount Sinai inflammation lesions disease of the spine should be considered an more aggressive and painful version of MS as well. What do you think? What about smoldering MS where nothing shows up on MRI's?
What about Tendon tightness?
When illness occurs and things go wrong in ones body we will rush to give a fancy name disease this is not the case. We don't catch anything, although we may be bitten by a bug, the overall cause will be because of a missing nutrient from our system. Every part of the body needs to be worked or it will begin to fail. Our diet must be complete to retain our health. We must avoid air, water, food and unhealthy people,places and situations that have toxins and poisons that will harm us. This is why living is not an easy task and the focus was never to keep the people healthy but to provide a living and profit for the medical institutions.
We are all challenged and refreshed by your unique view of how the world works.
This is really interesting, thanks! I'm curious how you decide what tests you would run to make sure you're not just jumping to MS and missing another dx. Related to that, what process do you follow in order to not automatically blame every single symptom a patient may have on the MS? I find in my experience, doctors just want to call anything that looks remotely like MS just MS, and not test for anything else. And then everything that comes up must be caused by the MS. I mean, maybe they're right. But maybe not.
I live in Muskegon Michigan and cannot find a Neurologist. Theyre either too busy or there are years long waiting lists. Ive been trying for several years with no success. I'm getting worse all the time.
Where in Minnesota do you practice, or what clinic are you associated with?
What of you have neurological problems white spots in the brain and in the spine? Have had numb hands for a year and symptoms for years here and there?
As a gulf war veteran 1990 I was diagnosed with MS ten years ago.. could this be gulf war syndrome mimicking MS ...
You can't be diagnosed with Gulf War Syndrome officially so they are always diagnosed with something else. Just accept the diagnosis and run.
My only symptom is weird numb spots (tingling but feeling is not gone) on my skin usually about five inches in size on a leg, on an arm, on face, on my back all at different times
Interesting video. Just read some of the comments. Yes, seeing a variety of problems. Here.., I am sitting in front of my computer, reading these comments, though at this very time, I'm supposed to be in the Hospital, being pumped up with IV Prednisone for the next several days, lol. Thing is, friends.., I realized what was taking place day before yesterday, quietly summed up the [Nature], [Quality], and [Extent] of the Care I was receiving. .. As the hours passed, I was told., I'm being Admitted, and will need to remain in the hospital for the next 4-5 days for what appeared to be my First MS Flare-Up or Exacerbation. .. I told them: ...Yes, the doctor in 2016, did diagnose MS, but I haven't had any symptoms of MS since 2016, though the [Confluence] of my existing problems, e.g., might look like a MS Exacerbation.
Yes, one Nurse I spoke to during my short stay, I asked..; I think my Balance and Dizziness Problem, is actually due to a severe upper molar from 2018-2021, that was not [Extracted] due to being on welfare, not having money to pay a dentist for an Oral Surgery, and the like, until such time as the Molar was eventually removed in Spring 2021, but the tooth infection, Festered, was treated with antibiotics, the infection clearly was not fully abated, and the problems continued, until such time as I had to Insist, was denied another regiment of Antibiotics, was told to go to Emergency, where they found Nothing, and after coming home.. still sick, took myself to the Urgent Care a few miles down the street, found a good doctor, who actually [knows how to listen to his patients], and based on my story and showing him the earlier Extraction site, then began to Prescribe:
First: a Script for Liquid Prednisone for a Viral Infection; No Difference, then Amoxicillin with Augmentem; a stronger antibiotic. I began to respond after the 2nd Regiment. Later however, the symptoms never fully abated, as I have developed a balance and dizziness problem ever since. Yes, a month later, I identify and have a Primary Care Physician, though she did not fully diagnose this balance problem. Well, early this week, at 57, I had an involuntary bowel movement, ( I Had A Big Dinner, Didn't Go That Night, and Sharted To Be Honest), combined with having a problem in my right eye, with my vision, though from experience, I rate a 5 on a scale of 1-5 with regard to Mold Allergies, and as I am a serious sports card collector, I live in a room, sometimes filled full of [Dusty Paper Sports Card Boxes I Review For Self and Others.., that clearly have Dust and Mold that grows on their Surfaces. Yes.., and as my room is sometimes filled-up to the ceiling during a Review...; boxes and boxes of cards, stored in damp rooms, basements, and the like, means 'having a severe mold allergy problem, combined with dusty and sometimes mold cards. It's simply a recipe for breathing, touching,, and rubbing my eyes with residue from these moldy cards, lol.' ....No doubt, *I probably opened one of the boxes late last weekend, rubbed my eyes, plus.., - made my lower back sore after many hours of reviewing card after card, developed a loss of sensation in my right leg, and because of all of it happening in tandem, in conjunction with my 2016 medical visit and diagnosis, when I went back to them.., They Clearly Went Immediately into MS Mode for Me, diagnosing everything as being related, or as Symptoms of MS Disease Progression, lol.
I said to myself; Seriously.., Mark: You have not had [Any Evidence] they can produce, that empirically demonstrates MS Disease Progression. Question: So: - !?? -Why the Hell, do they continue 'Pushing Me Down That MS Pathway'- each and every time I go to see these people for Medical Care..?' Answer: Probably because the Easiest Answer, is to simply attribute every medical problem henceforth, as an MS Sign or Symptom, though I keep telling them: I think the 2016 Diagnosis, was a False Read, as I used a Statin Binder back then to remove the presence of the Mycotoxins in my system at the time. Nevertheless, seems these people are trained to NOT Listen to their Patients. The Good One's that Do Listen in my experience now., seem to be the one's who get the Diagnosis right lately. Well, as things turned out, I got my answers. I did not have a stroke, a Nurse I asked to look into my ear to see if she saw Swelling in my ear, She Then Did Tell Me;
*[Yes,..CORRECT..! - 'I Do See Fluid behind Your Ear Drum' (using the Otoscope with a light). Second: They never asked if my sensitivity to Mold could be the cause of the problem with diminished sight in my eye, and if sitting at 385 lbs. for 12 hours a day for months, could possibly be why my right leg is acting funny now, due to this shitty worn out and hard chair I have to sit in to work..could possibly be causing problems in the form of weakness in my legs...? eh..? - Nah.. that couldn't be it...., right..?].
Well, 'Fruck that Noise..' - I told the Desk Nurse: Since I am not being seen, sitting here now, for hours...., - just give me a Script for some Prednisone Pills, I'll go home, convalesce for a week or two, at home, on the couch, and watch television or something.. Nope.. And So.., I decided, after calling the Neurologist a Fuck for not knowing how to diagnose MS Disease Progression, as I used to be the Guy at National MS Society, here in my Town.., who patients called for Information and Counseling concerning MS, that his data and advice, was from 7 Years ago now.. and because I was not there for MS Problems, but to simply determine, whether or not I had a stroke, that the information he was using to Admit Me, was from 2016, and not from the data they put together the day before. - Rubbish.. Told the Neurologist Directly, and in front of the Staff: I'm a Lawyer: [We Lawyers are Trained In Law School, *To Not Believe A Word [You Doctors Ever Say..] - ['It's Our Super Power], and because I'm Professionally Trained in 'My Field, and Actually Worked at National MS..., - ' I can hear you Lying To Me, about Your Diagnosis, Your Data Gathering Methods, The Lack of Due Care.., and The Inconsistencies Between 2016, and this Sir.., is not 2016.., but 2023. Your Data showed No Disease Progression, No Plaques, and No Stroke.., So Thank You Very Much, but I need to go now, as I have to go home now, and get some work done.., so I asked for [ The Medical Refusal Consent Authorization Form], signed it, then Walked Out, down the Hallway, got into my Driver's 4x4, went home, sat and drank a cup of hot coffee while watching Star Trek, and made my dinner and relaxed and laughed in spite of myself, lol. - Simple. ;)
I had white brain matter found on an MRI 20 years ago, I saw multiple docs who said they werent in the right area for MS. I've lived with fear for years that theyre wrong and that its gonna be MS. Have your ever heard of Histoplasmosis causing spots ? I had that before .
Lawrence, very likely your answer is in your first sentence. When I face a question like this with a patient, I sometimes point out that spots on an MRI can be like spots somewhere else, say...in the lung. I mean that we don't spend 20 years wondering if a spot on the lung is cancer--it will declare itself long before that. If 20 years have gone by and the person isn't dead, I can tell them the spot isn't lung cancer--even without an x-ray. As far as histoplasmosis of the brain, it does happen. It's usually a pretty bad deal, and the person is usually pretty sick. Of course, you may want to review your situation with a neurologist to get a formal opinion.
I contracted Lyme and Babesia but am told I have PPMS. Last MD says former produced latter. I am unsure. Ocrevus didn't do that much. My balance is virtually non-existant still, only my ability to stand up slightly better.
I’ve been twitching and getting bad headaches out of nowhere and my vitamin D is Lvl 13 so it’s very low. Idk but I’ve been freaking out that it could be MS
You need magnesium. My vitamin D level was chronically low - Rx doses of 50,000 IU/week did not raise my D levels, in fact my D level dropped 6 points within the 16 weeks I was on high dose vit D. Over time I discovered (on my own) that I have chronic magnesium deficiency. My body can't seem to hang onto magnesium and I need to take magnesium citrate supplements every day or I will develop symptoms after about a week. I have now learned that magnesium is REQUIRED in order to process vitamin D in the body. In other words, if you don't have enough magnesium in your body, you won't be able to process and utilize vitamin D in your body, thus you will end up with vitamin D deficiency. If only I had known this info YEARS ago my life would be so much different now. :( Look up the amazing work of Dr. Carolyn Dean. She is a magnesium expert!
@@Donna777 yes, and vitamin c is required for the body to absorb magnesium. Might help ya out.
How are u
I was tested for MS in 2009. I had all these tingling sensations in my feet and sometimes face. MRI was normal. Except I had a the start if Chiari Malformation. The tingling lasted for a year or 2. And happened every now and again but would always go away. Now it’s happening more and more again just like in 09. I was tested for Lupus and Lyme B12 Deficiency...all negative. I am feeling tingling almost all the time now. Am debating on getting another MRI again.
How long your numbness last? It last for few seconds or it last for long duration?
Maybe it’s clippers
Please read about how unreliable the lyme test is.
If possible, get it done with Igenex.
@@DS-gu6qi sorry never saw this. Well, the tingling disappeared again! Well, it would last a few minutes maybe? Then go away then come back
What tests differentiate between these disorders
What about IIH? Idiopathic Inter cranial Hypertension. I have that but three thought I may have has MS.
Hi Zara, how's your day going with you?
I have been suspected of MS for years, but it isn't! I have all the symptoms but, my diagnosis now is, C.A.N,V.A.S. syndrome. It was only discovered a few years ago. Thanks for the video.
Dr, do you talk about CFS/ME in your videos? 🙏
Hi Trish, how's your day going with you?
Doctor I am so glad to come across your video. I’m anxiety ridden over my 24 year old son who just recently was in the hospital with what appeared to be a TIA. He is considered quite an athlete and takes good care of himself. He eats clean and exercises on a regular basis. He doesn’t smoke drink or do any kind of drug. He takes no medicines or supplements. He had a momentary moment of body weakness followed immediately by whole face numbness(including tongue) which quickly turned to just right side of face numbness with impaired speech. Whole episode lasted perhaps 10-15 minutes. MRI shows 2 spots (3mm and 5 mm )of low attenuation. All other tests normal. Doctors are perplexed. Any advice?
Did u try vitamin b 100, and b12
How is your son now??
@@andrespalacios6356so far so good. No reoccurrences. He’s been to a neurologist, a movement clinic and cardiovascular specialist. They have no answers but say it may never happen again. Thank you for asking.
@@christinetilton4562 so glad to heard he is ok!
I had many symptoms of MS, my gp was so concerned they sent me for an emergency mri and neurologist appointment, including nerve conduction tests. Nothing was conclusive, no lesions or anything, no interruption in the nerve conduction. Yet here I am 5 years later, still with tingling in my legs and arms, and loss of bladder sensation, during the summer months only, which is really weird. I have been diagnosed with fibromyalgia previous to this, and more recently as having generalised anxiety disorder. I don't know if these have anything to do with the symptoms I experience. It's very weird.
Hey Sara, Try testing for Lyme disease. I know MS and LD have similar symptoms.
@@EllencyOfficial they tested for lymes too, nothing. Even syphilis. Etc
Sometimes it takes years of symptoms to get results on test. I had an MRI 5 years ago to check for MS and it was spot free. I recently developed optic neuritis in my left eye and had an abnormal VEP and only one lesion on the MRI I just had. I’ve been dealing with symptoms for years but no answers. I feel like I’m getting closer to them now and am waiting for my neurologist to get back from vacation so I can know what the plan is. Interestingly a year ago I went to a hematologist who said I have platelet antibodies. He didn’t know why and said that in my case it raised the MPV but didn’t cause any issues that he could see. I hope my neurologist takes the time to rule out these other conditions to come up with the best plan of action. Thanks for the informative video.
Ellency Conventional lyme tests are worthless. They always give false negatives. Igenix in CA is the only way to get a proper test for it.... and even that test isn't 100%, but way more accurate.
I'm not trying to diagnose but have you been tested for celiac disease celiac disease can mimic multiple sclerosis from what I've Been Told.
Thank you. Just thank you. Great information.
Bucket? Yes indeed.lesions on spine? Idk....spinal shock and a few others.
Possibly tether cord..
So here's the thing..i have something not getting better. It's not seen as a real diagnosis except one. Tethered spine. However it hasn't yet relieved the tingling and the burning or cold feet. I go back for more doctors but am weary from 16 months of this. I had spine correction yet still don't know. Suggestions?
UCTD is that often confused . Scared to get this MS rules out and too many autoimmune disorders like Hashimotto UCTD and a post it I’ve smooth muscle antibody test .. all booked up here . Is it important to get me ruled out . ? Plated a little full. Thank you for the great information Doctor
Hello. I noticed you said something about meth. I know someone who was recently diagnosed with MS but two days before their first “flare up” they ingested some cocaine. Pretty sure the drug had something to do with the flare up whether its MS or not. If they had positive bands in their spinal tap does that for sure mean MS?
I was told that it can be a great mimicker. I am seeing a neurologist in January to rule out MS. I hope the gentleman I am seeing knows what he's doing. I don't care if it is MS at this point, or if it's something very simple (I don't know... like anemia, which wouldn't cause the symptoms but you get my point)... I just want answers.
Hey did you end up getting answers?
😥 Getting answers is one of the hardest parts of all this! I have the exact same feelings about it now. If it’s MS fine I’ll figure out how to deal with it & if it’s not great! But not knowing is like being in purgatory. Also not being able to explain to people why sometimes you’re sort of okay & others times just the thought of taking a shower takes too much energy!
We just want answers ❤️
I hope in the past couple years since you made this comment you got the correct answers. ❤️🙏
I am wondering what borderline Multiple sclerosis is??
I don't know but, I feel very strange like right now I'm having this you with walking my left leg feels like it's nami so it's hard to bend at the knee..
It's things like stress affects me more than most .. And I'm just wondering if my body could be stress to the point of it failing and if my adrenal glands could be effected..
I go see a neurologist next month to find out what the problem Could be...
Help!!! 🙋♀️
Magnesium deficiency. Stress depletes tons of magnesium in the body. Magnesium deficiency symptoms mirror those of MS.
@@Donna777 I apologize for for just now getting back to thank you so much for responding to my question.. I stopped taking magnesium several months back and I am so at a loss.. my MRI was not good... I think the stress I am dealing with has been a big issue with how I've been feeling.... I am going to start taking magnesium.. 🙏🤞.. Thank you again 🤗
Any idea what could cause gradual vision changes, hearing, swallowing, and memory issues with micro hemorrhages on the mri?
I had a virus six weeks ago I lost my balance then that back to normal then I started getting cold tingles all over me then I got shaky hands lost grip feeling in them but feel like inside shakes weird . But now with all the worrying about that I tenced my body up all day I can’t stop tencing so when I try to relax my arms feel weak and biceps tremble when I move my arms up and down .. I had mri twice bloods all normal had a few neuro test of gp but she said there’s no history of anything serious but I still think I have somethin bad I have severe anxiety health anxiety I am so worn out with worry I think I have all neuro diseases it makes me worse
Been a year since this comment was made - any update?
@@AV_204 ye am ok now i had problem with my spine but sorted that out that’s what caused my tingles xx my balance was meniers inner ear problem x
Is shingles ever associated with outbreaks?
What about migraine headaches. Started with stumbling, rapid hearing loss, a feeling like I was walking in sand, extreme reaction to heat, hot showers started with tingling sensation starting at my feet and moving upward, sounding like whining in my ears, numbness of lip and upwards toward nose. I had an MRI and went to first neurologist and he ran blood test and said I was in the middle of an Epstein Barr occurrence-understand this is the family of mono. Went to ENT doctor and said I had vertigo. Second neurologist diagnosed me with reoccurring migraines that will cause all these symptoms. I don’t know what to think because for two years now I have had to change my lifestyle, quit work and have eliminated driving because I lose focus on where I’m supposed to go. Seeing new neurologist in about a month-I would like to know how to describe my symptoms because I think they hear a couple of symptoms and go from there. Thanks. Any direction would be helpful. By the way I am in my 60s.
Jim I have to wonder if maybe you have really bad B6 toxicity you should want to look up some of those symptoms but also I have to wonder if you have any form of spinal stenosis which could also affect a person and can be very serious if not painful I have known personally to people who had to have their spines rebuilt in several places because of it
Dear Mr Reeves, I am a 71 year old female and for the past 9 weeks have burning on both feet to the extent it bothers me at night. I do have some of the MS systems but not diagnosed with it. I have a brain with dye happening soon and also have B12 deficiency. The burning affect on both feet flared after a fall 9 weeks ago. I do get double vision when focusing on youtube. I have had vaculitis and itching of skin very annoying indeed. Bladder and bowel issues. Due have problems with spine as well including neck. Is there any information you can give me or questions to ask my doctor. Thank you.
What about people with symptoms of MS, neurological issues, but MRI brain is normal. What conditions mimic MS with normal MRI of brain and orbits. Thanks!
Are you talking about blood mutations like MTHFR and Celiac Disease which a neurological disease, not just disgestive?
Hi there, thanks for a really interesting and entertaining video. I was diagnosed with lupus 16 years ago. (it's a family curse ) had the usual mono first then developed discoid lupus which a biopsy confirmed as S.L.E. fortunately symptom free after that until 13 years later. Got joint pain, numbness stinging burning sensations. bladder issues. exhaustion. brain fog etc. . . saw a rheumatologist who said that because bloods were ok it wasn't lupus. she pressed bits of my body and because I hurt all over said I'd got fibromyalgia. So I obviously don't feel like I have been properly diagnosed. Therefore I feel I am not receiving the right treatment. I have a hunch it's lupus related but if the blood work is clear (bar auto immune issues with my thyroid ) I am left thinking I want to see a neurologist. I am being told no because of the fibromyalgia label. Have you any suggestions as to how I get around the doctor to get me a referral? Many thanks 😊
That's a tough one. It can sometimes be hard for folks to get someone to listen to them. At times a new primary care doctor can be a good avenue to having someone listen without pre-judging.
You do know that often and im saying very often, Lupus can be very difficult to diagnose?
my blood work keeps showing that I have Sjogrens, but when I went to a rheumatologist, I was told that I just have fibromyalgia, and was sent packing on my merry way. It was as if none of my medical history, symptoms, tests, etc... mattered, and my requests to be seen again have fallen on deaf ears. Even when she's the one that is supposed to approve the genetic testing to make sure my hypermobility isn't the cause for something worse, like Ehlers-Danlos syndrome, etc... Best of luck to you. I hope you get the help you need, and can start to feel better.
Could this be a MS?
“A few tiny non-specific T2/ FLAIR hyperintense foci seen in the periventricular white matter of the left frontal lobe.”
It’s my MRI report 6 months ago and my Dr said it’s nothing. I went to him because of pins and needles pain left side of my body including my head. Along with other things i feel i cant tell if it’s related to or not. Im also having weird pulsing in back of my head. I’m 33 years old
My endocrinologist and neurologist want to test for mitochondrial conditions such as MELAS and Leigh's.
Yes, those are pretty rare, and they cause some other issues which are not so common in MS.
Can white matter issues also result from migraines? My only symptom is a persistent dizziness that usually happens after a headache. I had two small lesions that showed up on my MRI. I'm terrified to have a follow up one.
I have been told yes. Migraine can cause white spots.
My son was diagnosed with MS. He had a drastic change in personality over a 2 week period. His symptoms don't line up with typical MS. He doesn't remember who his brother or sister is. He doesn't remember last events. He has bad headaches and vertigo. He has fatigue. His vision and hearing are excellent. His neurologist doesn't believe any of the symptoms have to do with his MS. He thinks it is his autism, but he didn't have autistic type symptoms until this one period of 2 weeks. He changed over night. What can I do. There aren't any neurologist I can see because the other neurologist doesn't see patients from his friend (my sons neurologist)
Thank you for this video! It's really helpful!
Hi Linda, how's your day going with you?
I have had everything else ruled out yet I’m having trouble getting approval for thoracic and brain mri. I have numbness and tingling all over my body.
I’m 24, I started having vision issues in my left eye about 2 years ago where I had and still have a large blind spot. When looking at a light somewhat blank scenery I seee what looks like bacteria in a Petri dish jumping around my vision. It’s the craziest thing. I went to an ophthalmologist and was told I have ‘’macular changes’ in my left eye? No answers as to why? I asked if it’s macular degeneration and he said well if you were 50 and older we’d probably call it that. So NO answers? He requested an MRI of my brain to see maybe if there was something going on with my ocular orbits or optic nerve. The mri showed a hyper intensity in my right frontal lobe in the deep white matter of my brain. Findings were that they werent related to vascular issues or evidence of stroke etc and most likely from a brain infection and that they weren’t related to my current visual symptoms. I’ve been having other neurological symptoms since. Prickling in my finger tips, my right foot, a large area of my back is numb and tingly. Cognitive issues. Extreme fatigue. My vitamin d has been steadily low for 2 years even on 3000ui a day. My CRP is always elevated as well as WBC. I get hit hard with vertigo every few months and it lasts a week. I always feel like my head is swimming. I had an mri follow up about a year ago and apparently there’s one more hyperintensity in my left lobe now that my neuro nonchalantly mentioned as well as the previous one was slightly larger. NONE of my drs seem worried about this? My neuro brushed me off when I asked about it possibly being MS. He’s like well if you wanna talk fairy tails and unicorns let’s just stop here. I feel so disregarded... idk what to do. I’m having REAL issues. My vision is continuously worrying me because I’m noticing a blind spot in my right eye now.... what could this be 😢 I’m a single mother of an almost 4 year old I’m scared for our future and I’m tired of no answers and being tossed around between doctors who have no explanation for my symptoms. I feel crazy. None of my family takes me seriously and I have no one to talk to about this without being looked at like I’m crazy
Oh my gosh that is absolutely CRAZY how those doctors are treating you!!! I am so sorry! 😢😢 I have also gone through similar issues with being disregarded by doctors (for over 20 years!). If I were you I would immediately fire your current doctors and find a new one who actually CARES! Maybe join a Facebook group for MS patients and other related groups where you can get recommendations from others who can steer you in the direction of a good doctor in your area. My prayers go out to you and I wish you the best! 💜
PS. Magnesium deficiency can cause soooo many symptoms that mimic MS. Maybe in the meantime while looking for a new doctor you could supplement with magnesium citrate or another good magnesium supplement. Some people swear by magnesium malate and magnesium chelate. Pico-ionic magnesium is a great one for people with sensitive GI tracts as it's easier to absorb.
For me personally, I find drugstore brand Nature Made magnesium citrate works the best. I've tried all the others I mentioned above, except for magnesium malate. I am going to try that one some day - many say It's the best kind for people with fibromyalgia. Oh, and topical magnesium oil is a fantastic way to get magnesium into your body; it's absorbed through your skin. Some say it's the closest thing to intravenous magnesium.
I believe most diseases are caused by nutrient deficiencies and toxins, but most of all...nutrient deficiencies. I believe that when the body is equipped with all of the proper "ingredients" it requires for optimal function and health, then it will just naturally be strong enough to fight off and self-heal from a majority of toxins.
If you think you may have a brain infection I would suggest taking a high quality olive leaf extract combined with oil of oregano that contains at least 80% Carvacrol. The stuff works amazingly (like a miracle!) for any type of virus, fungus, bacteria, etc. I am currently using it for a very stubborn Bartonella infection I acquired when my cat accidentally scratched my eyelid very badly. It's working much better than the Zithromax Rx I took for five days last month!
It's good stuff! I buy mine on Amazon but they sell it on eBay too as well as their own website. I am not affiliated with the company in any way. The product is called Super Strength 225 Formula. Only $12 a bottle with free shipping. I would honestly pay $100 a bottle for that stuff it works so good. The stuff tastes awful, so to get around that I put mine into an empty size "00" capsule along with some organic coconut oil (use a dropper to fill the capsules with each). Coconut oil works as an excellent carrier for the oil of oregano (aka OOO) and helps prevent the OOO from instantly melting through the capsule. Plus coconut oil has it's own set of magical healing properties! It's a natural antibacterial, antibiotic, antifungal. I
You have to work fairly quick or the capsule will start to melt because the OOO is so very potent! And always remember to take the capsule with a large glass of water because you want to make sure the capsule goes all the way down into your stomach - trust me you don't want that thing getting stuck half way down and it dissolve while in your throat or esophagus! 😱😫 It happened to me a few times when I was new to taking OOO, before I knew about the tricks and tips of taking it...OMG it was sooo NOT PLEASANT.
If you want to see something that will absolutely shock and amaze you...the next time you get a cut or wound, skip the antibacterial ointment and instead put some organic unrefined coconut oil inside and on the cut, then cover it with a bandage that seals on all sides (or use a regular bandaid and put tape on the free edges). Disinfect the wound with hydrogen peroxide before applying the coconut oil and bandage. Repeat this process every 24 hours.
Be prepared to see the most amazing sight when you take off the bandaid!! The cut will be totally sealed and literally about 50% healed! My mind was totally blown the first time I ever tried this! And I had a *BAD* cut that needed stitches! I couldn't drive to the hospital because I had just taken my sleep med (Ambien). I was out of antibacterial ointment which worried me even more, but I remembered reading a gal's comment online how her family always used coconut oil on wounds and it worked better than anything! I was skeptical but gave it a try since It's all I had.
I thought for sure that cut would take weeks to heal and maybe even get infected because it was on the inside of my hand on my pointer finger right where it bends. The cut was nearly down to the bone so I could NOT BELIEVE my eyes when I took the bandaid off 24 hours later - expecting a horrific sight - and saw that not only was the cut completely sealed with no redness or swelling, no signs of infection, barely any pain....but it looked to be 50% healed! It looked like a 1-2 week old injury. I was sold on coconut oil for healing wounds right then and there! It also works as an amazing drawing salve to magically pull out slivers! It's just insane how good it works. The trick is that you have to cover it with a bandaid; for some reason it doesn't work as well if it's not covered and sealed on all edges. An airtight seal works best.
Here's a fun tip for your little one! Sorry I couldn't resist sharing this, lol. When my son was little he was afraid of getting peroxide on his owies because it stung. So I got creative... I took a small clear bottle and glued a picture of the Teletubbies (my son's favorite!) on the bottle. The next time my son got an owie, I took out the TELETUBBIES MAGIC BUBBLE WATER!! 😉 My son's tears turned into smiles and laughter when he saw the little bottle with Tinky-Winky, Dipsy, Lala, and Po *ROFL* and their special bubble water that would magically fix his owies! 😂😂
Somehow the same fizzy stinging stuff from the big scary brown bottle was instantly transformed into a fun, tickly, magic healing bubble water when delivered by his favorite characters on the planet,! LOL! 😉😂 He was never afraid of the peroxide - aka Bubble Water - after that! He actually loved it...and made getting owies kinda fun! Try it for your little one. 😉
Okay I'm done writing a blog under your post! Haha. 😄😂💜🙏
Donna thank you so much for all the amazing information ❤️ I will look into the supplement and extracts 100% 🙏🏻🙏🏻🙏🏻
You are so welcome Korrine. 😊 I forgot to say what you're seeing when you look at a blank wall sounds like "eye floaters". I have them too. They began (along with migraine auras) in 1996 when I was pregnant with my only child. Mine aren't as bad now as they used to be. I also have 4 brain lesions. My neurologist said "they allow one lesion per decade of life before they consider a degenerative disease". Since I was 41 when my four lesions were discovered, my neurologist wasn't totally concerned. He said that lesions can be caused by migraines. So that's what I assume mine are from.
Magnesium deficiency causes migraines and auras. I know for a fact that my body has trouble holding onto magnesium and i have learned to quickly spot the early symptoms: sneezing; random muscle twitching; migraine auras; a bruised feeling on the back of my scalp, neck, and upper back; and when more severe, a sunburned feeling on my upper back that eventually spreads to my lower back and backs of my arms...and more.
The ultimate worst magnesium deficiency I've ever had (in 2016) caused me to believe my fibromyalgia was getting worse or that I had MS. I could barely walk, pick up a glass, write, or even turn my head more than a few inches; it's like the signal from my brain wasn't reaching my extremeties so i had to REALLY concentrate hard to make my legs, arms, or fingers work. I literally felt like my body was slowly turning to stone and walking felt like i was walking through waist-high mud or against a strong current of water. And the bodywide pain and stiffness was HORRIFIC! I couldn't even roll over in bed and my son had to help me get out of bed.
Another symptom that tells me my magnesium is very low: the bulging discs in my neck will crunch and crack which causes a severe headache and sinus pain. I had a hunch about this so I did some research one day and learned that magnesium is necessary for plumping up the intervertebral discs which prevent the vertebrae from rubbing against each other! My hunch was spot-on! Fascinating.
BTW: Look up the amazing Dr. Carolyn Dean - omg she is INCREDIBLE. She is a naturopathic doctor as well as a scientist. She had done extensive research on magnesium and has published her amazing findings for free online. She has a website as well as countless videos here on UA-cam. I just can't speak highly enough about her!
A great osteopathic doctor named Richard Becker says if you eat one medium sized carrot every day for a month, the floaters will go away. I have never personally tried his theory but I have tried other things he recommends and they have worked. Doctor Becker is amazing and I've learned so much from him (stuff they didn't teach me in RN school!). He has a daily one hour program you can watch for free multiple times a day online for free. I used to have a list of all the online "TV stations" with the times his show came on, but I haven't watched it in a couple years so i no longer have the list. But there is a Facebook group that shows the broadcast schedule if you're interested. The name of his show is "Your Health With Dr Richard and Cindy Becker". I HIGHLY recommend watching his shows as they're a wealth of knowledge.
One last thing...fish oil is an amazing brain healer!! It will help your eyes too! Look up "The Omega 3 Protocol" . Omg I've done it and it helped immensely when i had a bad concussion years ago. Fish oil has literally brought people out of vegetative state comas! Google and read the article called "Fish Oil Saved Our Son". It really opened my eyes to the power of natural healing. I could go on and on with stories and things I've learned about the hard way! I hope this will help you and others who read my long post, lol. God bless. 💜
PS Korrine... I edited my original reply to you after I saw some typos... and then it kind of turned into a blog, lol. 😂😂
Please find a Lyme literate dr in your area go to ilads.org.
It sounds so much like Lyme and maybe bartonella.
Don’t trust the cdc Lyme test it’s so unreliable that’s why it’s imperative that you go see a Lyme dr to send your blood work out to a good lab.
I'm 26 and had an MRI last year when I experienced sudden sensorineural hearing loss. My hearing came back after a steroid injection, but there were small non specific white matter lesions found on my brain. The ENT said given my age it could be MS. Could white matter lesions occur for no reason at all?
Laura Green .... exactly same thing happening to my son.
Dear Dear Dr. Reeves, I have for the last 7 years been trying to receive a diagnosis , I have had maybe 7 MRI, 2 spinal tapes, 3 EEG (sleep and video) and the list goes on and on. In the beginning they thought limbic encephalitis , CNS , demyelinating disease of CNS, for the past and for the 4 years m/p MS. I am not really receiving any specific treatment. Last MRI white matter did not really change that much, but there is a new lesion. I will be having another MRI, just to rule out that it was not an artifact? In the meantime I am slow going down hill! Do you see patients? I am currently abroad, but would very much like to come home for help.....From my heart to yours......is there a way to speak or fly to US to see you? I hope that you see this, as I see that you posted this 3 years ago. I would however like to thank you for your post and smile!!! Blessings to you and your family!!!
Well im more confused than ever! Why i have sudden attacks of bilateral leg paralysis that hits at any time with excruciating pain up to my waist ????? Im at a loss!
Wouldn't my lumbar puncture have checked all those things? My Dr said that the lumbar puncture was to check for MS and it's mimickes. The results were negative for everything except "banding" which my Dr. Said is equivical. I am stuck with no diagnosis. Neurologist wants me to have another MRI but this time with contrast. I don't understand why. The Regular MRI showed lesions. I have read about people getting very sick after contrast so it doesn't seem worth the risk to me.
No. A lumbar puncture does not check all the things which can mimic MS. Not by a long shot. And a reasonable chunk of people who do have MS have normal results on the lumbar puncture.
I know I may be asking this a little late considering this video is a few years old. But would Raynaud’s have an effect on the results of an MRI?
I was diagnosed with Raynaud’s when I was a kid. I’m now 44 and been having multiple symptoms for at least a decade now that really resemble MS symptoms. I’ve been trying to figure out what’s going on for years now but it’s a daunting task especially when you feel terrible.
I just had more blood work done but haven’t gotten any results yet. I know my ANA readings were up & down for a few years. (I quit going to the doctors for a while because it was just too much especially when I couldn’t get any answers. However it’s gotten worse & I need answers! I don’t live anymore I just exist.)
I have an MRI scheduled in a couple weeks & i’m just starting to realize how nervous I am about it. I’m nervous that it will come back showing signs of MS & I’m nervous that it won’t show anything!
I’ve spent too many years just existing. If it’s not MS Great! But then I’m back at square one trying to figure out what’s really going on with me.
Navigating the medical system by yourself when you have no energy, can’t think, & are constantly in pain is sooooo overwhelming!
I’m just reading through comments and saw your recent post. I am sending good vibrations and love your way and I completely understand the feelings you’ve described as I am having my own debilitating CNS symptoms and need a fulltime caretaker. No diagnosis after several years, multiple ER visits, and more than a dozen docs. The worst are the sinical and callous doctors whom only add to immense suffering. I’m seeing an team of Naturopathic Docs and a fantastic retinal surgeon who can hopefully keep me from going blind. Unlikely though. I’ve really surrendered the angst since being angry only fuels my illness and steals the time I have left on earth. Prayers for you my friend.
I live in North Carolina will you take me as a patient one time?
Went thru all the tests for MS back in 2009-2012 to see why I was weak in and losing control of my right leg. They ran all the tests, which were negative for MS, but thought it MIGHT be ALS. Here I am ... still alive, slightly worse, but they say not ALS because of how many yrs its been! Been watching lots of videos by physicians and now wonder if it could be POMPE disease? Everything seems to match up.
Can any of the diseases you mention cause protein levels in the spinal fluid to increase but have normal levels of protein in a blood test?
Yes. Strokes, for example, elevate the protein in the spinal fluid for a while. Anything which causes brain inflammation or tissue injury will tend to increase spinal fluid protein. However, it's not the same "increased protein" like we see in MS; that is more specific immune proteins which leads to "oligoclonal bands" on the spinal fluid special analysis looking for increased immune proteins in the spinal fluid.
The sle lupus flares I been having has been making me have all of these MS like symptoms I hope I don't have it, I been having burning sensation and numbness and tingling in my legs for months with weird eye pain and some blurred vision, I went paralyzed for an few seconds and hit the floor hard when I got out of bed one time I'm still freaked out about it. I see an neurologist next week.
Good day, would you consider having online consultation during Coronavirus pandemic? With payment of course. Thank you.
Sorry, Laura, but I really can't do that for several reasons, including licensing issues with different states for starters.
@@AndrewReevesNeurology I really need a specialist advice. I have some days dizziness since October 2018 and I'm quite stressed since then. I've made am mri of my brain in April 2019 (due to the dizziness I was feeling) and they discovered some white spots (not many) that do not change with that weird substance they put into my vein. I don't have other symptomps except for migranes, but I have a bad neck. My cervical has issues since I was young, I fell and I have chronic pain since 18 years old. I don't have the natural curve anymore now its quite straight at A4 and A5. Now I'm 32. Tried everything. I'm afraid it can be ms because my other blood tests are OK except some neutrophils (light neutropenia) not sure how that is called. Not sure if its related to anything. My dad had lupus but he is cured now. I've done some antibodies tests for it and I was OK.
I'm afraid its ms. I can't stand anymore these dizziness days.
I really appreciate you had your precious time to answer to me a stranger. It really means the world to me. Thank you!!
Happy Pouring Go see a Lyme Dr and get checked for Lyme and coinfections ilads.org
Is it possible to misdiagnose fibromyalgia for MS?
I'm often surprised by the misdiagnoses I find in clinic. And of course I try to keep in mind that I'M just as prone to that, too. Still, there are mental habits which make misdiagnosis less frequent.
Dr. Reeves, I have Arachnoiditis. I've had falls, numbness, feelings as if water is running through my legs, eye twitches, horrible leg cramps, and bladder issues. I've not had a full MRI, and the last one I had they couldn't figure out and said lumbar radiculopathy. I would like to have a full MRI, but the local neurologists don't even want to see me once they hear "arachnoiditis ". This is becoming increasingly painful too. Any words of advice as to a course of action? Thank you. 🙂
Can you please tell me in the past 7 months what you have learned about your health situation ?
I really hope you have gotten a proper diagnosis are on your way to Healing
what about alot of the symptoms but mri shows black spots begining with 5 and 7 yrs later have many more black or dark spots. could we be looking at m.s. thanks lynn
hard to say without doing a history, physical, and evaluating the various scans. Best see a neurologist, maybe one who specializes in MS.
What about spots on the neck cervical spine? What other causes can mimic that if it’s not MS? I have Hashimotos but Drs are not pointing to that.
I have a question;
Can M.S. affect the parasympathetic or its counter part system(s)