14 Years Old, Losing Muscle Every Day | The New York Times

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  • Опубліковано 26 лис 2024

КОМЕНТАРІ • 46

  • @muppetsmom
    @muppetsmom 5 років тому +10

    Such a beautiful, beautiful boy. I pray so hard that a cure is found for these boys.

  • @erichorbal2157
    @erichorbal2157 7 років тому +22

    The government better pay for the new drug.

    • @moderatesunited
      @moderatesunited 7 років тому +9

      Eric Horbal shouldn't have elected Drumpf.

    • @jaysimoes3705
      @jaysimoes3705 7 місяців тому

      @@moderatesunited While he is clear psychopath, Obama did nothing either. Ever seen a lot of change in America's policies when the new president was from the other party? No. They are both the same, not there for the people but for big companies. It is a wellfare system for multinationals mostly. Obama was no different at all. Words words words. That is why people lose all faith in politics. Because these people have no problem letting you down big time.

    • @KevinLyons-gn7eu
      @KevinLyons-gn7eu 4 місяці тому

      @@moderatesunited what is the name of the machine that sitting next to him?

  • @WoWfAnLoL50
    @WoWfAnLoL50 7 років тому +8

    I have this. Im 24 right now. My brother also has this but has since passed. This is a terrible sickness :(

    • @DeMiTriDreams
      @DeMiTriDreams 5 років тому +2

      I just made friends with someone with dmd.. looking at the life expectancy broke my heart.. but I want to be by his side either way, the whole way. This condition is vicious and unfair.

    • @DeMiTriDreams
      @DeMiTriDreams 5 років тому

      @Tech Shakib I will.. no one deserves to live with this. I'm so sorry you have this. I hope you're able to fill your days with joy, love and adventure while you're here. I don't know you but I'm sending you my love and compassion. None of us are promised tomorrow... Try to make the best of what you have ❤️ I love you and I'm sorry you're going through this but it doesn't mean you have to let it limit you. Apply for grants, go to school, or if that's not your thing, find a job that makes you happy, go on adventures. Don't let this condition keep you from living your life. I'll be praying for you. ❤️❤️❤️❤️❤️❤️

    • @cutedpanda00
      @cutedpanda00 5 років тому +1

      @@DeMiTriDreams i have it 2 milder form of dm i am 33

    • @cutedpanda00
      @cutedpanda00 5 років тому +1

      @Tech Shakib i have limb graded md also known as beckers md

    • @eminqeniyev4744
      @eminqeniyev4744 4 роки тому

      How do yo feel know?

  • @_carlos9407
    @_carlos9407 7 років тому +8

    this kid looks cool I wish I knew him in real life🙏🙏

  • @966minda
    @966minda Рік тому +2

    Is her son still alive?

  • @bhuvanbam8499
    @bhuvanbam8499 6 років тому +2

    I have polymyositis. Similar to mascular dystrophy but not genetic.

  • @zenist69
    @zenist69 7 років тому +1

    Give TCM a try.

  • @arafchowdhury4771
    @arafchowdhury4771 7 років тому +1

    is that malcom

  • @michaelnitsch4431
    @michaelnitsch4431 5 місяців тому

    SEE DR. WALLACH ON THE 90 FOR LIFE

  • @bhuvanbam8499
    @bhuvanbam8499 6 років тому +2

    Exondys 51

  • @rhonackimp
    @rhonackimp 4 місяці тому

    Ohh i have this very late, my son and i have the same 😢

  • @marcolafargue2851
    @marcolafargue2851 4 роки тому

    Try ataluren, it's better than corticosteroids at least...

  • @mistrotech8894
    @mistrotech8894 9 місяців тому

    Stem cell therapy?

  • @elisamondragon2849
    @elisamondragon2849 5 років тому +1

    I have a cousin with this and he ruined my life.

  • @KJVILOVEJESUS
    @KJVILOVEJESUS 7 років тому +10

    All this kid needs are SARMs. They prevent muscle wasting. It would literally solve all his problems, he just needs to get on a daily dose of ostarine every day in the morning and he should be fine. I hope the family sees this comment. Even testosterone would help.

    • @ianbonnar1801
      @ianbonnar1801 6 років тому +9

      Don't give false hope to us, there is no cure, how dare you even try to say that there is.

    • @YTMMS-hy6mz
      @YTMMS-hy6mz 5 років тому

      Lanboner imagine if that kid sees your comment he probably gonna be crying

    • @daminovanilufar1540
      @daminovanilufar1540 Рік тому

      Are you doctor

    • @ambermarie8885
      @ambermarie8885 Рік тому

      This is an incredibly irresponsible comment to leave.

  • @dowLoveTap
    @dowLoveTap 7 років тому +4

    does he even lift bro?

  • @julii5890
    @julii5890 Рік тому

    حبيبي 🤍

  • @floatingtothesurface
    @floatingtothesurface 7 років тому +7

    first