WOOHOO!!! I've been healing for about 13 months now. I am now exercising 3 times a week, taking daily walks, working part time and having more freedom. Next year I am going to start a UA-cam channel on CFS/ME Healing and share A LOT of what I've learned. I made a promise to myself to give back what I've learned. Having CFS/ME is like being in hell while being blindfolded.
Yea. These two together make me feel at home. Right now I feel like I’m in a dark damp forest and I can’t find my way out. Going to try guided experiences of Silo, and then create my own allegorical experience. Our Images are powerful. They have a tremendous effect on the psychism.
Thank you Raelan for coming to share your wisdom on the podcast and all the great positive advocacy work you do. I hope we can connect for another episode some time soon.
I’ve been brutal for the past seven years. I left a corporate job making 6-figures but working 60 hrs a week. I left a 3 bedroom home to live in a one bedroom apartment. I immigrated from a big city in the US to a smaller town in Mexico. I run an online business that allows me to work on my schedule, to sleep in without an alarm clock. I love my body as my best friend, and ask her what she needs from me. I putter around in the garden, I write (my life purpose), I dance for five minutes and I’m cool with that. I take time off before I go to a family event and rest after. I ground myself with feet on the ground. I trust my intuition with practitioners, with supplements, with food. And I realized that I am partially recovered, but was thinking that I wasn’t doing enough because I am not ‘cured’. I’ve walked a long journey and I’m proud of myself.
A Top Tier recovery video. 👏 The more this message gets in my brain the more I can see the end of this nightmare. For me, chronic stress and sympathetic dominance is by far the key to unlocking the cell door. In this current climate stress seems to be around every corner. The body wants to heal. The nervous system wants to regulate. The brain gets in the way every time. Whether it is our limiting beliefs or like you said Dan, our outright behavior. I thank God, the universe, and all that is good for both of you and those like you who are forces of light. Thank you.
If possible get rid of and avoid stressful situations and people in your life. Even though I'm recovered I can't handle stress and so I accept this and live accordingly. I don't watch the news and that's helped a lot! lol I just live each day in a way that makes me comfortable. I don't put any expectations on myself because I never know what I will be able to do or handle and it's been working. I'm less critical of myself and my limitations, I've just settled into who I am now. I wish you the best in your recovery journey :-)
@FreshAgenda, You're on the right track, keep it up! Just know you can relax about Climate Change, it's just the latest political money grab for their friends to get our money to fund their pet projects... ie Solyndra, solar panels from China, really? How about making them here so Americans can work?!
Wow! This is one of the most important videos I've seen so far. I can totally relate with everything you are saying. Thank you to both of you. You both have made a difference for me and my recovery. Im 70 % recovered for a while now and still going strong. I will not give up. I will fully recover. I just had a set back when my mom died. She was my biggest supporter and I know she wants me to continue fighting 🙏❤ Keep going all you fighters out there!
I've never thought I won't recover,just how much more I need to learn before it happens. I believe the quote. If you think you can,you're right and if you think you can't, you're right also.Thankyou both for a wonderful positive podcast.
I recovered at age 30 and relapsed at age 47 along with thyroid cancer and a vestibular disorder. My cfs is even worse this time around. I hope people do fully recover, but be aware it can come back
You are both helping me accept where I am and to move forward through this dreadful illness, now believing that I will recover....thank you so much....so grateful 🙏🏻❤
so good of you to talk about the depression element. I like Dan couldnt even go there when i was married with kids but when i seperated from the family depression and suicidal thoughts entered my head many times
Thanks for this, you two--very inspiring! I am in recovery (about 3 months in after being sick on and off for 20 years), and I've been wanting my recovery to go quickly (too impatient!), but just lately I've realized that it's ok to recover veeeeery slowly...and it's really the only way to recover. Little by little, day by day...patience and baby steps WILL get me there. 💖
Yes, I have had hesitancy about sharing those super fast recoveries because some people may feel a bit of disappointment when it doesn't happen for them. However, I think they are fascinating to study to learn WHY they recover so quickly so that the rest of us can improve our approach. Little steps Karen, keep building your recovery momentum.
Thank you so much for this dialogue, every minute inspiring.. My favorite quote: "Suspending the hunger for life FOR NOW" in order to live it fully later, that's just what I needed to hear in this stage of my recovery, as it is definitely getting better, but feels soo slow.. Love to both of you.
I have been taking a very slow path to recovery because I keep making the mistake you warn us of Dan and start re-engaging fully in life the moment I feel a bit better. I am so grateful for both you Ralean and you Dan: you have given me a clear idea of what it takes to recover. When I can finally surrender and cut back on the external things like work (which is not supporting my recovery), I know that I will fully heal. I look forward to doing a recovery interview with one or both of you in the future.
I recently got pots, didn’t get diagnosed yet but I’m in the process. I have many symptoms of dysautonomia. This video is giving me hope and especially because I live in a country where no one knows about these conditions. I’ve had a feeling from the beginning that I will recover from this and I will do everything it takes. But like everyone else I loose hope sometimes, that’s a part of the process I guess. I really appreciate this video! Thank you 💗
Yes, my Fibro started after I had a bad case of flu. 103° temperature and dehydration. A few short weeks later I got dehydrated again. I was also a single parent, in the military and trying to check all the boxes for both rolls. That’s when my health started going bad. My doctor ran every non-invasive test he could think of. One day he finally started pressing on me in different areas and they all hurt. His diagnosis was Fibromyalgia Syndrome and CFS. My efforts for healing started when I decided to keep changing my diet until something worked. I still have flare ups occasionally, but it’s my thought that I lived with this too long before I finally started healing. I agree, physical problems can cause a mental struggle. My edit here is adding that you are right about doing several things at the same time to promote healing.
For those of us who have major auditory issues and/or can't look at screens for long to read transcript, could you please provide a bullet point summary?
I agree nearly everyone I speak too knows someone who’s had it and recovered. Three of my pilates teachers have had it. My GP said he knows many who have recovered. I actually know more people who have had it and recovered than people who who haven’t. I’m currently one month into ANS rewire. I recovered once so obviously I can do it again right?
Right! ;) Go for it. Great to seeing these recoveries out in the community. It's weird how they appear once we're looking for them. I never heard of anyone recovering in all the years I was sick, and as I was writing my book, I met several within a period of a month - it was quite odd.
@@becoming_a_betty Hi Betty! And how did those people recover? I’m always curious for those who don’t share their stories on UA-cam but have had CFS... I personally know three women who have had CFS. Two of them are 95% recovered and one of them is still struggling.
I've helped to run the local support group for years and we've actively organised meetings with people who have recovered from things like the LP.I recently asked a friend who recovered to write her story on our local FB page.Many of us are more than happy to talk to recovered people.I for one always ask recovered people a tonne of questions and have learned a lot. Support groups can be positive places and it all really depends on who u end up talking to but i understand that there are ME sufferers who don't want to hear recovery stories as they don't believe it's possible or think that it's something fixed that requires a medical cure.
Thanks you both for the amazing work that you both out in. I just want to say that I love that there’s 2 different styles of interview and I really enjoy both of you. Raelan = I love that you let the person talks about their experiences and not interrupt and just let them tell their story. 👍🏼 Dan=I also love his style of really digging in for informations like on their symptoms, what they did to recover etc. 👍🏼
Almost 4 years in. Better than I was but not fully better. My body keeps dragging me back. Trying everything I can think of to get better. Ozone helped the most. Feeling sorry for myself right now. I'm so jealous of people who get their life back while I am still in hell.
I really needed to hear this today. I adore both of you and your approaches. I found out about ANS rewire through Raelan’s channel, and had begun making good progress until my C vaccine and now I’m bed bound. I have hope for recovery, it’s just much further away now. Thanks for the work you do and spreading the good word!
A vaccine is a stressor designed to get the immune system to react for the purpose of creating immunity. As such, it's normal that people get symptoms, but obviously people experience this illness have the potential for a stronger symptom reaction. Try to be patient, hopefully you will bounce back soon.
Absolutely Amazing 💓🙏 Thank you both so much, I was nodding along all the way through! So grateful you've shared your experience and knowledge. You are both wonderful xx
Got diagnosed last month with mono, but I’ve had CFS for two years (but didn’t really realize it!) and even though it isn’t great news I feel like a path is opening up. Very sorry to hear about your mother though 😢
Thank you, I like how you used the word brutal when considering options. My 25 yr old who lives with me and is mostly bedridden with RA...I think she has fibromyalgia (for sure pots), it means changing everything, getting unstuck. I'll have to start yoga to entice her back into it...she was super healthy doing it. I'll pick up multivitamins. Like third party neutral thinking...I'm having to be that in my kids and in my own healing. Very challenging. I NEVER EVER GIVE UP. I cannot as a mom.
It's also important to remember self-care as a carer. We cannot 'fix' other people, we can only support them to go on their own healing journey. So encourage your daughter to find her path and support her in whatever measures she takes to move forward. She is lucky to have you. ;)
My mom got over her CFS with TCM - Traditional Chinese medicine (acupuncture, diet and herbs). She was already getting up more after 2 months of treatments, after a year of treatment, she was pretty much 100% (even ran her first marathon in celebration). There's still some weird stuff that crops up that I think is related to the CFS but she hasn't experienced the fatigue in like 30 years. That's why I don't think it's a cure but a treatment. If ppl are interested in exploring that option and are taking any meds just make sure the acupuncturist you see is a MD (most of them are these days). I really hope this can help some ppl struggling with this.
Thanks for sharing. Yes I have come across others that benefitted from TCM, whilst others find it less helpful - not a cure, but definitely worth exploring for many.
I just wrote a fairly long comment, sharing my story, what has worked for me, based on my own experiences. A few seconds after posting, it disappeared.... very strange!! Oh well, I guess that's UA-cam. Thanks for this great conversation. I bought your book years ago, finally, I think I'm well enough to read it now.
Oh no - sorry to hear that. Comments get moderated because there are always miracle cure spammers that spam the channel, but I didn't see another message from. Very frustrating. Gald you were supported by the podcast.
Amazing interview, thank you both for sharing your insights and wisdom, took a few gems from this and I'm sure I will glean more when I listen through again another time
How do I take the time to completely focus on my recovery for a year or more when I support myself , rent , bills, organic food etc??? I’m having a very hard time just working through the DNSR material. Im on the 3rd pillar and I started 41/2 months ago. I’m a single income , live alone . Even the dog requires a lot of time /energy it seems. The good news is I do love my work and life in general just tired of being in limbic system , anxiety etc I’ve come along way definitely make progress, but I am getting through this material seems to date forever and I really appreciate you guys. It’s good to know the community of people recovering or increasing and I like what you said about. It’s not what you do it’s how you do it and I’m pretty sure you’re referring to our attitude and going in with joy and love and appreciation.❤
Wow! So glad to come across your videos. Fibromyalgia is what I’m fighting and have yet to understand why doctors can’t explain this awful illness nor any type of treatment! I refuse to take a bunch of medication that doesn’t even help so I just lay here in pain. I feel hopeless so to hear this video and that there is recovery gives me some hope. 🙏🏾 thank you! Where do I begin? How do I start? I want to feel better 😢
I. Have had this since 11 years old i am now 50 years old and 20 years after my expiration date. I don't know how to fix this. I am just beginning to listen to this
It's quite a mindbend when we first hear of the concept of recovery after being ill for so long. Rather than looking for the single fix, see if you can adopt a fuller approach towards recovery. I hope the recovery stories support you.
@@CFSUnravelled1 i hope so too. Do you have a podcast somewhere or are you just here? I am just trying to figure out what will be best for me so that I can just keep listening to it all day long which is 10 to 12 hours. Thank you so much for your reply and for the knowledge that I too might be able to get my life back.
This is an episode of 'Wisdom from the Other Side' - you can hear this episode on all the main podcast channels. The recovery interviews are mainly on UA-cam for now - but I guess you can listen rather than watch if you use your mobile device. For podcast links - check out the website here: cfsunravelled.com/podcast/
You say if you could go back, the first thing you would have done is get psychological support. I did that with different therapists and it is not a magic key. To perpetuate that CBT is essential is toxic (based on my personal experience) and an added stressor. The way I see it today, as I watch more videos, some recover and some never do.
I’m confused by recovery stories that are based on expensive mind training programs, it just seems like it doesn’t make sense could it be they also changed a lot of things like improving their sleep schedule, I don’t know it just doesn’t make sense beyond the way it would help to relax and do relaxing things for any illness. And I’m a big fan of therapy I like therapy but it seems odd that it would cure this. I also had a remission and it had nothing to do with reducing stress or training my brain. My mom also has gotten better at times with diet. It’s weird the whole thing is weird
So I spent some time last night looking at Dans website and watching some videos, I’m going to get his book on kindle and sign up for the first 4 classes free thing bc I completely agree with him on the autonomic system being at the core of a lot of the symptoms and I’ve been thinking about it for a while now how to tap into that. I also was reading on the health rising site from a couple years ago about him and I was impressed by how he handled very critical and downright mean comments, I think I would tell people to F off after a while, so that and his interview with teitelbaum I found interesting and I’ve heard enough to look into it more. I’m really annoyed when people say this is a mental disorder or imaginary but I don’t think that’s what Dan is suggesting after looking at his ideas more closely.
I am not sure there are any magic keys. People certainly have different experiences - I think a lot depends on the therapist and their experience with chronic illness. If something doesn't support you, adjust your approach. Indeed many people never recover, but that doesn't mean it's not possible for them.
Indeed it doesn't make sense, until we understand the common denominator being the ANS. When you listen to people's recovery stories, you will find that they usually do more than solely 'brain-training'. I make a point of digging for these other strategies.
I scared off a 2nd year medical intern, who thought he was going to read off the internet about my condition. I told him that I could have written that article and not to consult unless he was an expert.
I want to recover I am on my own . When I tell my doctor I can recover she 13:47 shakes her head like I am dreaming. I want to share what I have done so far but I know there is more. Any suggestions?
The channel has many education videos and recovery stories to support you with your recovery. So check out the podcast and also the book CFS Unravelled on the website! cfsunravelled.com/cfs-unravelled/
Question: so if an approach is multilateral, like in your program Dan, on the top of addressing ANS, there needs to be "searching" of other potentials by seeing many other doctors, wouldn't it be the slightly a similar experience of fear that you described in the video where the fear of not knowing what's the issue that is causing it all (maybe substracting the fact that ANS is always the constant variable to be addressed)?
What a great question. Indeed this is a bit of a double edged sword - being aware of this challenge is probably the biggest step towards solving it. I don't think we should endlessly search for other potential dysfunctions triggering us. However, as part of the recovery process (& diagnosis), we need to be thoroughly investigated and take stock of any issues that could be triggering our symptoms. If there are specific issues that are very severe and treatable, take some steps towards supporting the body to recover from these is helpful. But we don't want to endlessly search for problems, because that makes no sense once we understand the wider picture and that wouldn't be helfpul.
Hi there. I'm not giving medical advice, but I Would encourage you & other Covid "long haulers" to look into the ANS rewire classes. I have Mitochondrial Disease, which is a facet of CFS/ME & Fibromyalgia. And working the class has greatly improved many of my symptoms. Covid affects the Mitochondria as well. There are so many ANS dysfunctions that have improved since taking the class, most noticeably Pain! Good luck to you!
You dont suffer from post covid. You are ill and perhaps it lasts some weeks. Stay in your bed and drink tea. I suffer from severe me/cfs for years and I had covis last year. It lasts three months until it went away.
It really depends on whether you feel you can watch the lessons - so the best way to access this is to watch the 4 free intro lessons - if you can do those, then you can enrol - ansrewire.com/info%20request/
Do you know how many patients of yours have recovered percentage-wise and realistically? 1 year in this illness and already super fed up (also got covid and made it worse), I can’t believe there’s people out there who’ve suffered for so many years...
When,when will they realise, that it’s all,ALL SUPER STRESS!fibro,m.e./c.f.s.,gulf war,pots etc, etc it’s all built up stress,that ,more readily effects a certain kind of person,noteably a sensitive,type A personality, that usually resulted from childhood upbringing!!
WOOHOO!!! I've been healing for about 13 months now. I am now exercising 3 times a week, taking daily walks, working part time and having more freedom. Next year I am going to start a UA-cam channel on CFS/ME Healing and share A LOT of what I've learned. I made a promise to myself to give back what I've learned. Having CFS/ME is like being in hell while being blindfolded.
Waiting ❤️
What did you do?
How?
So how are things?
You deserve it, you’re a legend
Yea. These two together make me feel at home. Right now I feel like I’m in a dark damp forest and I can’t find my way out. Going to try guided experiences of Silo, and then create my own allegorical experience. Our Images are powerful. They have a tremendous effect on the psychism.
Thank you, Dan, for all the amazing work that you do! ❤️
Thank you Raelan for coming to share your wisdom on the podcast and all the great positive advocacy work you do. I hope we can connect for another episode some time soon.
I’ve been brutal for the past seven years. I left a corporate job making 6-figures but working 60 hrs a week. I left a 3 bedroom home to live in a one bedroom apartment. I immigrated from a big city in the US to a smaller town in Mexico. I run an online business that allows me to work on my schedule, to sleep in without an alarm clock. I love my body as my best friend, and ask her what she needs from me. I putter around in the garden, I write (my life purpose), I dance for five minutes and I’m cool with that. I take time off before I go to a family event and rest after. I ground myself with feet on the ground. I trust my intuition with practitioners, with supplements, with food. And I realized that I am partially recovered, but was thinking that I wasn’t doing enough because I am not ‘cured’. I’ve walked a long journey and I’m proud of myself.
A Top Tier recovery video. 👏 The more
this message gets in my brain the more I can see the end of this nightmare.
For me, chronic stress and sympathetic dominance is by far the key to unlocking the cell door. In this current climate stress seems to be around every corner.
The body wants to heal. The nervous system wants to regulate. The brain gets in the way every time. Whether it is our limiting beliefs or like you said Dan, our outright behavior.
I thank God, the universe, and all that is good for both of you and those like you who are forces of light. Thank you.
If possible get rid of and avoid stressful situations and people in your life. Even though I'm recovered I can't handle stress and so I accept this and live accordingly. I don't watch the news and that's helped a lot! lol I just live each day in a way that makes me comfortable. I don't put any expectations on myself because I never know what I will be able to do or handle and it's been working. I'm less critical of myself and my limitations, I've just settled into who I am now. I wish you the best in your recovery journey :-)
@FreshAgenda,
You're on the right track, keep it up!
Just know you can relax about Climate Change, it's just the latest political money grab for their friends to get our money to fund their pet projects... ie Solyndra, solar panels from China, really? How about making them here so Americans can work?!
Wow! This is one of the most important videos I've seen so far. I can totally relate with everything you are saying. Thank you to both of you. You both have made a difference for me and my recovery. Im 70 % recovered for a while now and still going strong. I will not give up. I will fully recover. I just had a set back when my mom died. She was my biggest supporter and I know she wants me to continue fighting 🙏❤
Keep going all you fighters out there!
I've never thought I won't recover,just how much more I need to learn before it happens. I believe the quote. If you think you can,you're right and if you think you can't, you're right also.Thankyou both for a wonderful positive podcast.
Powerful interview. You guys are making me tear up. I resonate so much.
I recovered at age 30 and relapsed at age 47 along with thyroid cancer and a vestibular disorder. My cfs is even worse this time around. I hope people do fully recover, but be aware it can come back
I think these two are the best that there are
thanks raelan and dan - i am becoming obsessed with both your videos. i feel like each time i watch one more my belief in recovery grows a bit more!
You two have given me hope in a complete recovery. Not just my current existence, it will get even better. Thanks 🙏
You are both helping me accept where I am and to move forward through this dreadful illness, now believing that I will recover....thank you so much....so grateful 🙏🏻❤
Thank you so much!!! ❤️ you both relax my nervous system 💓 not only what you so, also the way you tell it, both. Thank you and bless you ❤️❤️
Glad you feel supported by the podcast.
Hey Janna! Thanks for watching and I'm so glad you enjoyed this ❤️
so good of you to talk about the depression element. I like Dan couldnt even go there when i was married with kids but when i seperated from the family depression and suicidal thoughts entered my head many times
Thanks for this, you two--very inspiring! I am in recovery (about 3 months in after being sick on and off for 20 years), and I've been wanting my recovery to go quickly (too impatient!), but just lately I've realized that it's ok to recover veeeeery slowly...and it's really the only way to recover. Little by little, day by day...patience and baby steps WILL get me there. 💖
Yes, I have had hesitancy about sharing those super fast recoveries because some people may feel a bit of disappointment when it doesn't happen for them. However, I think they are fascinating to study to learn WHY they recover so quickly so that the rest of us can improve our approach. Little steps Karen, keep building your recovery momentum.
Thank you so much for this dialogue, every minute inspiring.. My favorite quote: "Suspending the hunger for life FOR NOW" in order to live it fully later, that's just what I needed to hear in this stage of my recovery, as it is definitely getting better, but feels soo slow.. Love to both of you.
I have been taking a very slow path to recovery because I keep making the mistake you warn us of Dan and start re-engaging fully in life the moment I feel a bit better.
I am so grateful for both you Ralean and you Dan: you have given me a clear idea of what it takes to recover.
When I can finally surrender and cut back on the external things like work (which is not supporting my recovery), I know that I will fully heal.
I look forward to doing a recovery interview with one or both of you in the future.
I recently got pots, didn’t get diagnosed yet but I’m in the process. I have many symptoms of dysautonomia. This video is giving me hope and especially because I live in a country where no one knows about these conditions. I’ve had a feeling from the beginning that I will recover from this and I will do everything it takes. But like everyone else I loose hope sometimes, that’s a part of the process I guess. I really appreciate this video! Thank you 💗
Yes, my Fibro started after I had a bad case of flu. 103° temperature and dehydration. A few short weeks later I got dehydrated again. I was also a single parent, in the military and trying to check all the boxes for both rolls. That’s when my health started going bad. My doctor ran every non-invasive test he could think of. One day he finally started pressing on me in different areas and they all hurt. His diagnosis was Fibromyalgia Syndrome and CFS. My efforts for healing started when I decided to keep changing my diet until something worked. I still have flare ups occasionally, but it’s my thought that I lived with this too long before I finally started healing. I agree, physical problems can cause a mental struggle. My edit here is adding that you are right about doing several things at the same time to promote healing.
For those of us who have major auditory issues and/or can't look at screens for long to read transcript, could you please provide a bullet point summary?
I agree nearly everyone I speak too knows someone who’s had it and recovered. Three of my pilates teachers have had it. My GP said he knows many who have recovered. I actually know more people who have had it and recovered than people who who haven’t. I’m currently one month into ANS rewire. I recovered once so obviously I can do it again right?
Right! ;) Go for it. Great to seeing these recoveries out in the community. It's weird how they appear once we're looking for them. I never heard of anyone recovering in all the years I was sick, and as I was writing my book, I met several within a period of a month - it was quite odd.
I agree too! I know 3 people who have recovered and are living wonderful healthy lives again ☺️ xx
@@becoming_a_betty Hi Betty! And how did those people recover? I’m always curious for those who don’t share their stories on UA-cam but have had CFS... I personally know three women who have had CFS. Two of them are 95% recovered and one of them is still struggling.
@@andylopez6411 Can I ask how the two women recovered?
Loved, loved, loved this interview.
You're both heroes in my book.
I needed to hear this again 💜💜
I've helped to run the local support group for years and we've actively organised meetings with people who have recovered from things like the LP.I recently asked a friend who recovered to write her story on our local FB page.Many of us are more than happy to talk to recovered people.I for one always ask recovered people a tonne of questions and have learned a lot. Support groups can be positive places and it all really depends on who u end up talking to but i understand that there are ME sufferers who don't want to hear recovery stories as they don't believe it's possible or think that it's something fixed that requires a medical cure.
Thanks you both for the amazing work that you both out in. I just want to say that I love that there’s 2 different styles of interview and I really enjoy both of you.
Raelan = I love that you let the person talks about their experiences and not interrupt and just let them tell their story. 👍🏼
Dan=I also love his style of really digging in for informations like on their symptoms, what they did to recover etc. 👍🏼
Almost 4 years in. Better than I was but not fully better. My body keeps dragging me back. Trying everything I can think of to get better. Ozone helped the most. Feeling sorry for myself right now. I'm so jealous of people who get their life back while I am still in hell.
I really needed to hear this today. I adore both of you and your approaches. I found out about ANS rewire through Raelan’s channel, and had begun making good progress until my C vaccine and now I’m bed bound. I have hope for recovery, it’s just much further away now. Thanks for the work you do and spreading the good word!
A vaccine is a stressor designed to get the immune system to react for the purpose of creating immunity. As such, it's normal that people get symptoms, but obviously people experience this illness have the potential for a stronger symptom reaction. Try to be patient, hopefully you will bounce back soon.
Absolutely Amazing 💓🙏 Thank you both so much, I was nodding along all the way through! So grateful you've shared your experience and knowledge. You are both wonderful xx
Got diagnosed last month with mono, but I’ve had CFS for two years (but didn’t really realize it!) and even though it isn’t great news I feel like a path is opening up. Very sorry to hear about your mother though 😢
Thanks Dan🙏🙏
Love you two, you're both doing great, great work!
Two amaizing human beings 🙏
You are so sweet, Luka! ❤️
This is great stuff guys!Youv’e broken the mould!Please,give me more!Thank you!
Thank you both that was what I needed to hear at this point in my recovery. ❤
You are so welcome
this is so inspiring and helpful!! Thank you 🙏
My 2 favourite people in this community ❤ thank you both...you have helped me so much on my recovery journey. So very grateful for you 🙏
Thank you, I like how you used the word brutal when considering options. My 25 yr old who lives with me and is mostly bedridden with RA...I think she has fibromyalgia (for sure pots), it means changing everything, getting unstuck. I'll have to start yoga to entice her back into it...she was super healthy doing it. I'll pick up multivitamins. Like third party neutral thinking...I'm having to be that in my kids and in my own healing. Very challenging. I NEVER EVER GIVE UP. I cannot as a mom.
It's also important to remember self-care as a carer. We cannot 'fix' other people, we can only support them to go on their own healing journey. So encourage your daughter to find her path and support her in whatever measures she takes to move forward. She is lucky to have you. ;)
My mom got over her CFS with TCM - Traditional Chinese medicine (acupuncture, diet and herbs). She was already getting up more after 2 months of treatments, after a year of treatment, she was pretty much 100% (even ran her first marathon in celebration). There's still some weird stuff that crops up that I think is related to the CFS but she hasn't experienced the fatigue in like 30 years. That's why I don't think it's a cure but a treatment.
If ppl are interested in exploring that option and are taking any meds just make sure the acupuncturist you see is a MD (most of them are these days).
I really hope this can help some ppl struggling with this.
Thanks for sharing. Yes I have come across others that benefitted from TCM, whilst others find it less helpful - not a cure, but definitely worth exploring for many.
Love the part about how to overcome impossible odds - brilliant suggestion for anyone on the road to recovery. ✨ Great episode Raelan + Dan!
What a fantastic discussion! I love your dedication Dan :-)
Thank you Lynne.
Thanks so much Dan, for everything that you do! Such a great podcast.
My pleasure! Thanks for the feedback.
I just wrote a fairly long comment, sharing my story, what has worked for me, based on my own experiences. A few seconds after posting, it disappeared.... very strange!! Oh well, I guess that's UA-cam. Thanks for this great conversation. I bought your book years ago, finally, I think I'm well enough to read it now.
Oh no - sorry to hear that. Comments get moderated because there are always miracle cure spammers that spam the channel, but I didn't see another message from. Very frustrating. Gald you were supported by the podcast.
Thankyou
Amazing interview, thank you both for sharing your insights and wisdom, took a few gems from this and I'm sure I will glean more when I listen through again another time
How do I take the time to completely focus on my recovery for a year or more when I support myself , rent , bills, organic food etc???
I’m having a very hard time just working through the DNSR material. Im on the 3rd pillar and I started 41/2 months ago.
I’m a single income , live alone . Even the dog requires a lot of time /energy it seems. The good news is I do love my work and life in general just tired of being in limbic system , anxiety etc
I’ve come along way definitely make progress, but I am getting through this material seems to date forever and I really appreciate you guys. It’s good to know the community of people recovering or increasing and I like what you said about. It’s not what you do it’s how you do it and I’m pretty sure you’re referring to our attitude and going in with joy and love and appreciation.❤
Love this podcast. So interesting for me.
Wow! So glad to come across your videos. Fibromyalgia is what I’m fighting and have yet to understand why doctors can’t explain this awful illness nor any type of treatment! I refuse to take a bunch of medication that doesn’t even help so I just lay here in pain. I feel hopeless so to hear this video and that there is recovery gives me some hope. 🙏🏾 thank you! Where do I begin? How do I start? I want to feel better 😢
I. Have had this since 11 years old i am now 50 years old and 20 years after my expiration date. I don't know how to fix this. I am just beginning to listen to this
It's quite a mindbend when we first hear of the concept of recovery after being ill for so long. Rather than looking for the single fix, see if you can adopt a fuller approach towards recovery. I hope the recovery stories support you.
@@CFSUnravelled1 i hope so too. Do you have a podcast somewhere or are you just here? I am just trying to figure out what will be best for me so that I can just keep listening to it all day long which is 10 to 12 hours. Thank you so much for your reply and for the knowledge that I too might be able to get my life back.
This is an episode of 'Wisdom from the Other Side' - you can hear this episode on all the main podcast channels. The recovery interviews are mainly on UA-cam for now - but I guess you can listen rather than watch if you use your mobile device. For podcast links - check out the website here: cfsunravelled.com/podcast/
@@CFSUnravelled1 i believe mine started because of my endometriosis and when my cycle started.
You say if you could go back, the first thing you would have done is get psychological support. I did that with different therapists and it is not a magic key. To perpetuate that CBT is essential is toxic (based on my personal experience) and an added stressor. The way I see it today, as I watch more videos, some recover and some never do.
I’m confused by recovery stories that are based on expensive mind training programs, it just seems like it doesn’t make sense could it be they also changed a lot of things like improving their sleep schedule, I don’t know it just doesn’t make sense beyond the way it would help to relax and do relaxing things for any illness. And I’m a big fan of therapy I like therapy but it seems odd that it would cure this. I also had a remission and it had nothing to do with reducing stress or training my brain. My mom also has gotten better at times with diet. It’s weird the whole thing is weird
So I spent some time last night looking at Dans website and watching some videos, I’m going to get his book on kindle and sign up for the first 4 classes free thing bc I completely agree with him on the autonomic system being at the core of a lot of the symptoms and I’ve been thinking about it for a while now how to tap into that. I also was reading on the health rising site from a couple years ago about him and I was impressed by how he handled very critical and downright mean comments, I think I would tell people to F off after a while, so that and his interview with teitelbaum I found interesting and I’ve heard enough to look into it more. I’m really annoyed when people say this is a mental disorder or imaginary but I don’t think that’s what Dan is suggesting after looking at his ideas more closely.
I am not sure there are any magic keys. People certainly have different experiences - I think a lot depends on the therapist and their experience with chronic illness. If something doesn't support you, adjust your approach. Indeed many people never recover, but that doesn't mean it's not possible for them.
Indeed it doesn't make sense, until we understand the common denominator being the ANS. When you listen to people's recovery stories, you will find that they usually do more than solely 'brain-training'. I make a point of digging for these other strategies.
Cbt is never toxic
I scared off a 2nd year medical intern, who thought he was going to read off the internet about my condition. I told him that I could have written that article and not to consult unless he was an expert.
Right! I knew I had to figure things out for myself when I was told there was no cure for this stuff!
I want to recover I am on my own . When I tell my doctor I can recover she 13:47 shakes her head like I am dreaming. I want to share what I have done so far but I know there is more. Any suggestions?
The channel has many education videos and recovery stories to support you with your recovery. So check out the podcast and also the book CFS Unravelled on the website! cfsunravelled.com/cfs-unravelled/
Question: so if an approach is multilateral, like in your program Dan, on the top of addressing ANS, there needs to be "searching" of other potentials by seeing many other doctors, wouldn't it be the slightly a similar experience of fear that you described in the video where the fear of not knowing what's the issue that is causing it all (maybe substracting the fact that ANS is always the constant variable to be addressed)?
What a great question. Indeed this is a bit of a double edged sword - being aware of this challenge is probably the biggest step towards solving it. I don't think we should endlessly search for other potential dysfunctions triggering us. However, as part of the recovery process (& diagnosis), we need to be thoroughly investigated and take stock of any issues that could be triggering our symptoms. If there are specific issues that are very severe and treatable, take some steps towards supporting the body to recover from these is helpful. But we don't want to endlessly search for problems, because that makes no sense once we understand the wider picture and that wouldn't be helfpul.
I am suffering from post covid symptoms from past 1 month, and it's not leaving me. Shall I try ANS rewire? Please please help me.
Hi there. I'm not giving medical advice, but I Would encourage you & other Covid "long haulers" to look into the ANS rewire classes. I have Mitochondrial Disease, which is a facet of CFS/ME & Fibromyalgia. And working the class has greatly improved many of my symptoms. Covid affects the Mitochondria as well. There are so many ANS dysfunctions that have improved since taking the class, most noticeably Pain! Good luck to you!
You dont suffer from post covid. You are ill and perhaps it lasts some weeks. Stay in your bed and drink tea. I suffer from severe me/cfs for years and I had covis last year. It lasts three months until it went away.
Hello. Is your programme for bed bound people with SEVERE ME/CFS/PoTS/Fibromyalgia?
Thanks
It really depends on whether you feel you can watch the lessons - so the best way to access this is to watch the 4 free intro lessons - if you can do those, then you can enrol - ansrewire.com/info%20request/
Do you know how many patients of yours have recovered percentage-wise and realistically? 1 year in this illness and already super fed up (also got covid and made it worse), I can’t believe there’s people out there who’ve suffered for so many years...
How are you now? I’m six months in
Could i have the SUBTITLES turned on please, please💕🙏🏻💕
It said it was published, but it's not showing. We're looking into this.
They are there now! Just hit the 'cc' button below the video 🙂
When,when will they realise, that it’s all,ALL SUPER STRESS!fibro,m.e./c.f.s.,gulf war,pots etc, etc it’s all built up stress,that ,more readily effects a certain kind of person,noteably a sensitive,type A personality, that usually resulted from childhood upbringing!!
And those stressors include: physical, emotional, psychological, psychic, etc etc etc…… toxic chemicals & psychological abuse are both stressors
Yes, there are definitely more highly sensitive people and empaths who experience chronic illness
Thank you so much!
Something about these two together is making it "click" for me. If that makes any sense.