I'm 69 have been in complete remission almost four years. I am starting to suffer neuropathy in my fingers and feet, loss of balance where I've had some bad falls in addition to cardiomegaly which causes me to black out completely. I hate that I am weak and uncoordinated. I know this is also the results of the meds I need to stay on. I wish I could get back somewhat of my normal life and pray that I will.
I am 66 and just diagnosed with smoldering myeloma. Had a hell of a life and bucket completion under way! Watched friends and family go thru the hell of the ups and downs of cancer not going to drag my family thru the ups and downs! Have no interest in being kept alive but sick and weak!
Last year it was just MGUS. In less than a year, just before my 74th birthday, it’s Stage 2. I’m giving treatment a try, and enjoying life moment to moment.
Hello my name is Lucinda from USA I was diagnosed with multiple myeloma at age 62 so I had this disease for 2 years now. I am so surprised that no one talks about the memory loss, no hair issues, neuropathy I am learning how to walk again, or the mental or physical pain that comes with this disease. AM I THE ONLY ONE STRUGGLING WITH THIS??? Please forgive me I hope I'm not being over the TOP😊. Good Share Love your inspiration, stay positive!
Hello Lucinda, TJ here from London, England. I had a bit of Neuropathy while going through chemotherapy but the consultant haematologist adjusted my medication and the situation improved. Hope you are keeping well. I try to read to keep my mind sharp and learnt to solve the rubik's cube to stimulate the brain. Finally, I have several sessions with a psychologist attached to hematology. I'm in a better place now. Take care and best wishes.
No Lucinda, we all are. If you can find a support group, by all means attend it. They can help when everyone in your family (like mine) don't want to address the 800 pound Gorilla in the room.
Was diagnosed with MGUS age 48, being screened regularly and dealing with Neuroendocrine tumour, it is a lot to deal with. Every undeclared symptom coming up, that wont resolve by itself is another questionmark. Openly speaking about it is necessary, but in my experience, even friends feel queasy, being confronted with a chronic health condition. Society really needs to normalize this, so we will not be confronted with too much pity, and just get accomodations for the times in which we need them.
I have multiple myeloma. Got it age 39 (2 weeks before my second child was born) now 44. Frankly it’s been fine. Had 8/9 months of chemo, was pretty stubborn, then had a stem cell treatment. Took about 18 months to get my health up to speed. I’m now fine still in remission, have my 3 monthly doc review. If you’re newly diagnosed try not to worry or make it bigger than it is (everyone loves being a victim these days), you’ll be fine.
Other people have other health issues with this cancer. It’s sad you can’t express even the slightest sign of being sick in front of people with out them saying your being over dramatic or wanting sympathy. I played that game for years: hiding being sick and in pain constantly. But after so many your body won’t allow you to hide it anymore. So I try to just be around my family that understands and I don’t go out much if any at all anymore because putting up a front is exhausting physically and mentally.
Everyone is different and everyone’s case would differ. Some people find it easier to cope than others. Some cases are more responsive to treatment than others. I’d imagine it must be hard for everyone at some point.
Glad you are living well with Myeloma but as others have commented, Myeloma affects everyone differently. For me, it has attacked every bone in my body, causing fractures and extremely painful lesions, making it very difficult to walk and move. So, telling fellow Myeloma sufferers to not "make it bigger than it is" was extremely disrespectful, dismissive, ignorant and arrogant. Things have gone fine for you up to now but Myeloma is an unpredictable demon that will attack when you least expect it, so revisit your comment when the demon decides to reveal itself again.
@@wxman2003 RELAX. No one is "pedaling" anything. Did I write, curcumin cures cancer...NO. I said "look into curcumin's benefits", if that translated into something more for you, than that's your issue. I have multiple myeloma and use curcumin because many studies have proven it can help make chemo more effective and helps lower inflammation in the body, which is a big driver of cancer. The one who should be ashamed of themselves is YOU for your arrogance and ignorance.
I'm 69 have been in complete remission almost four years. I am starting to suffer neuropathy in my fingers and feet, loss of balance where I've had some bad falls in addition to cardiomegaly which causes me to black out completely. I hate that I am weak and uncoordinated. I know this is also the results of the meds I need to stay on. I wish I could get back somewhat of my normal life and pray that I will.
I am 66 and just diagnosed with smoldering myeloma. Had a hell of a life and bucket completion under way! Watched friends and family go thru the hell of the ups and downs of cancer not going to drag my family thru the ups and downs! Have no interest in being kept alive but sick and weak!
Last year it was just MGUS. In less than a year, just before my 74th birthday, it’s Stage 2. I’m giving treatment a try, and enjoying life moment to moment.
Hello my name is Lucinda from USA I was diagnosed with multiple myeloma at age 62 so I had this disease for 2 years now. I am so surprised that no one talks about the memory loss, no hair issues, neuropathy I am learning how to walk again, or the mental or physical pain that comes with this disease. AM I THE ONLY ONE STRUGGLING WITH THIS??? Please forgive me I hope I'm not being over the TOP😊. Good Share Love your inspiration, stay positive!
Hello Lucinda, TJ here from London, England. I had a bit of Neuropathy while going through chemotherapy but the consultant haematologist adjusted my medication and the situation improved. Hope you are keeping well. I try to read to keep my mind sharp and learnt to solve the rubik's cube to stimulate the brain. Finally, I have several sessions with a psychologist attached to hematology. I'm in a better place now. Take care and best wishes.
No Lucinda, we all are. If you can find a support group, by all means attend it. They can help when everyone in your family (like mine) don't want to address the 800 pound Gorilla in the room.
I have MM and no, you are definitely not alone in this...I feel the same a lot of the time... please stay very strong and keep fighting 🙏🌹
What an inspiring attitude! All the best!
Was diagnosed with MGUS age 48, being screened regularly and dealing with Neuroendocrine tumour, it is a lot to deal with. Every undeclared symptom coming up, that wont resolve by itself is another questionmark.
Openly speaking about it is necessary, but in my experience, even friends feel queasy, being confronted with a chronic health condition.
Society really needs to normalize this, so we will not be confronted with too much pity, and just get accomodations for the times in which we need them.
Hope you are doing well dear Peter ❤️
I have multiple myeloma. Got it age 39 (2 weeks before my second child was born) now 44. Frankly it’s been fine. Had 8/9 months of chemo, was pretty stubborn, then had a stem cell treatment. Took about 18 months to get my health up to speed. I’m now fine still in remission, have my 3 monthly doc review. If you’re newly diagnosed try not to worry or make it bigger than it is (everyone loves being a victim these days), you’ll be fine.
Chemo and stem cell treatments costs money not everybody has
@@ottoavila9895 fortunately I live in a civilised country so all my (excellent) treatment was free.
Other people have other health issues with this cancer. It’s sad you can’t express even the slightest sign of being sick in front of people with out them saying your being over dramatic or wanting sympathy. I played that game for years: hiding being sick and in pain constantly. But after so many your body won’t allow you to hide it anymore. So I try to just be around my family that understands and I don’t go out much if any at all anymore because putting up a front is exhausting physically and mentally.
Everyone is different and everyone’s case would differ. Some people find it easier to cope than others. Some cases are more responsive to treatment than others. I’d imagine it must be hard for everyone at some point.
Glad you are living well with Myeloma but as others have commented, Myeloma affects everyone differently. For me, it has attacked every bone in my body, causing fractures and extremely painful lesions, making it very difficult to walk and move.
So, telling fellow Myeloma sufferers to not "make it bigger than it is" was extremely disrespectful, dismissive, ignorant and arrogant.
Things have gone fine for you up to now but Myeloma is an unpredictable demon that will attack when you least expect it, so revisit your comment when the demon decides to reveal itself again.
Pray that all will be well
Well said 👏 Sir.
Bless you, friend
True inspiration
I am at stage 2 and 39 year from india in fresh .about 15 days I shall get out of it Jesus shall get me God is great .
i wish you. maria mother of jesus. and mother of all humans to make you health very fast.
Ty🙏💓🌻
Anyone with multiple myeloma PLEASE look into the benefits of curcumin 🙏
Quit pedaling quackery and giving people false hope. Causing people to waste money chasing a lie. You should be ashamed of yourself.
@@wxman2003
RELAX. No one is "pedaling" anything. Did I write, curcumin cures cancer...NO. I said "look into curcumin's benefits", if that translated into something more for you, than that's your issue.
I have multiple myeloma and use curcumin because many studies have proven it can help make chemo more effective and helps lower inflammation in the body, which is a big driver of cancer.
The one who should be ashamed of themselves is YOU for your arrogance and ignorance.