I'm not sure if you've already considered this, but you should get a cast made of your teeth now. In the future, if you do have to do replacement teeth of any kind, if the dentist has a full cast of what your natural teeth look like (size and shape), they can make your replacements look very much the same as your naturals. I know it's hard to think about, but a small amount of planning now could make a huge difference of how you feel about your smile in the future. You are doing an amazing job of taking care of your teeth now, so hopefully it will be a long time before you have to deal with it!❤
This is brilliant! I am experiencing dentures now. My teeth lasted until I was 64. I had impressions made for immediate after extraction dentures, but my teeth were not as perfect as yours still are. Not saying you will need to replace your teeth, but wouldn't you like to preserve their shape and beauty for the future?
My daughter has cyclic vomiting syndrome and the dentist here in the USA has put sealants on her teeth and has saved her teeth. See if your dentist will try it on your teeth.
Missing you Amy.... watching this in your memory during gastroparesis awareness month. Your soul sister Chloe has asked people to watch this video in your honor. She is a true one. Hope heaven is treating you right. Luv u lots. 💓
Instead of brushing your teeth straight after you vomit you can rinse with water and baking soda to neutralise the acid from your stomach and it won’t damage your teeth as much.
Yeah I feel the toothpaste might be too harsh to use if she is getting sick so often . Maybe a mild natural vegan toothpaste or something ? Or even just warm salt water .
As a nurse in the US I really have learned a lot about what you go through daily and it has helped me know more about specialty patients. Oh and I like that you show the real life day in the life and not just use a model. You and tom do an amazing job living with chronic illness and still loving life and doing as much as you can everyday to enjoy it. Saw some Harry Potter PJ pants at Walmart last night and thought of you. Made me smile 😃 Have a lovely week♥️♥️♥️
Aw this makes me so happy to hear! I wish all medical professionals were like you (although in generaly nurses like you seem to almost always be lovely angels. There's a comment in the show, 'Nurse Jackie' about how doctors 'fix' and nurses 'heal' and I have always found that to be true; you nurses have always been my comfort in ER situations when I'm intimidated by the doctors due to past medical trauma. Thank you so much for what you do!)
I'm new to the chronic illness world, looking for clues. I didn't get a chance to follow amy's journey and I didn't already love and treasure her like so many others. But I felt oblidged to pay my condolences to her loved ones. I'm sure that your lovely Amy will continue to educate and support many people through her videos.💗💔
hi, amy. recently, i’ve been suffering greatly. i know you’ll never see this, but i wanted to share how you’re helping me push through. over the last year & 1/2, i’ve become very ill. it was all symptoms we’ve known you to suffer. today i got word that what i feared is potentially my reality: i more than likely have gastroparesis, as well. in my hardest moments over my struggle, i’ve thought of you and how you fought. you truly gave it everything you could until the very end. who knows, maybe a loved one here will see this. but i just wanted you, Amy, to know you’re making an impact even in spirit. stay resting peacefully, angel.
oh my goodness. My husband had gastroparesis. He passed away at age 32 5 years ago. I am so glad you are letting people know about how severe it can be. So many people would not believe how horrible it really was. He was constantly throwing up and couldn't stop with very little relief.
My husband has gastroparesis and has lost major weight. He was 287 and today is 231. He just can't eat. A feeling of CONSTANT nausea and vomiting mostly first thing in the morning. NOTHING helps. Any advice PLEASE
I remember when I was in the hospital as a kid in the gastro ward, the other patients and our moms would take little strolls down to the cafeteria. It was me, my friend with crohns, and my friend with gastroparesis basically just sitting there like that with the bloated belly and hot pack while everyone ate. It truly, truly, truly sucked. Even until now I never really understood what my friend with gastroparesis experienced and I'm kind of amazed that you have the hardiness you do!!
I have said it before and now again. I am a retired u.s. marine and combat vet. Watching what You deal with daily makes me look like i have had an easy life! I truly admire you and the great way you inform us of this condition. Keep your chin up and know that you are truly reaching others.
Watching her makes it feel like she's still here somehow still educating us and I feel like even though I didn't know her, this is what she would have wanted for her fans; to continue learning and becoming more aware of conditions like she had
I will be praying for you.. I found out a while ago I have gastroparesis, fibromyalgia and gout.. I'm grateful I found your videos, bc I have felt extremely alone and ppl dont seem to understand the pain.. thanks again.. God bless
I had to lose all mine- I had 25 remaining but because of health issues including bone cancer, they were literally crumbling and constantly infected. It was horrible the first time I saw my mouth without them, and I did it with no narcotics. I’m surviving though
Hey I've found your videos by accident, buy... Girl, I'm a grown ass man and I wouldn't be able to go through 1% of you're going through every day. I thought I'm pretty thick skinned but seeing you dealing with your condition like an absolute boss is really something else... Huge respect. I'd be too scared to move a muscle with tubes sticking out of my thorax and you're just casually dancing around the house talking about shampoo and stuff. You're an absolute masterpiece. High. Freaking. Five. Lady. Cheers.
You’re such an inspirational girl! I have quite a few chronic illnesses which make my day to day living hard, I struggle to do basic stuff and take extremely high pain meds! Watching your videos makes me feel less alone. All my love girl ❤️
I just ordered my patch MD about 3 weeks ago due to you, beautiful girl! I have severe osteoporosis at an early age and due to chronic ulcerative colitis, there’s no treatment options! I ordered the vitamin D/ calcium patches along with some others. I just had another bone density test last week and I’m beyond thrilled to say, the dr saw improvement in my bones!! They still resemble angel hair pasta but are looking stronger!! I’ve had zero side effects since using them so I am forever grateful to you for suggesting these little paper patches!! Stay strong and beautiful sweet girl!!
Patch MD- Iron plus update. As promised l am giving an update to all, on the vitamin patches Amy is using. I ordered the Iron Plus 30 day pack for about $50 AUD from Las Vegas. They took 3 weeks to arrive to Melbourne Australia, there was no issues with importing them. My 16 yr old Daughter (who has no other medical conditions) has Iron deficiency due to heavy periods. We got our GP approval and have been on them for 2 weeks. We did a baseline test prior and there is an improvement already with absolutely no side effects like the tablets have. Will let you know after a full month of use but so far so good and yes they are working. Always always check with your Dr about your individual needs and do not take this as medical advice in any way. Im giving feedback not medical advice. Hope this information helps.☺
Jade: No stomach cramps (l even get tummy cramps when l take iron tablets) no rash from the sticker, no green poop obviously because it's not going in her gastrointestinal system and there has been an improvement in her blood test results. I also questioned how a topical patch could absorb iron but it does have additional vitamins in the patch to help absorbtion. In Australia we have along with pain patches Nicotine patches for smoking cessation and they work, so lm assuming it can be possible.
Another great video Amy! I just want to mention, for everyone here, that what also damages your teeth when you're vomiting a lot is the dehydration itself. Saliva acts like a second enamel, and is crucial to keeping teeth strong. This can be really insidious because someone with constant nausea who only vomits about once a week (like myself) may think their teeth are fine, but if they're avoiding eating and getting dehydrated .. well I had two teeth fall out last summer and it took almost a year of on and off appointments to get everything fixed. So PLEASE if you're suffering with anything that can really dehydrate you, make a point of seeing your dentist! (This is especially important for people with EDS because some of us also have naturally weaker enamel).
I am the type of person w chronic nausea and only vomits onceish a week despite feeling like I need to 24/7 But I didn’t know about saliva acting as a second barrier!
This channel was on my recommended have no idea how, clicked started watching now im binge watching like this is some Netflix series. I have to tell you WONDER WOMEN doesn't have crap on this women.
Hi Amy, I am your new subscriber. I'm having a depression, lotsa problems, and tbh your videos somehow is helping me. I've lost my will to live these past few weeks, and then I saw your videos, how you have so much will to live, meanwhile me... not so much. Thank you, thank you for positivity in every videos. It helps me to see clearly, that my problem is not bigger than me. I can overcome it, and I will. Thank you for giving me reason not to give up. Thank you.
I relate to you so much and I’m always so happy when you post, Amy. My partner has supported me so much during my health and diagnostic journey and I’m so happy on how far you’ve come 💕 thank you for all of these brutaly honest videos. The idea of losing our teeth is so scary and not talked about at all! Whether it’s vomiting or just dry mouth our oral health effects so much. 🖤
The more I watch you, the more I feel inspired by you. Even though I don't have as many medical problems, I admire the strength you have in your life and that helps me push through my days. Keep on rocking it, you're amazing.
Hey my girl will you think about doing a video about being sick in public? I know you go out frequentlyish and I’m sure you’ve had to deal with it. I guess what I’d like you to cover is like getting sick quietly if you can, how you prepare when you go out, and what things you do to try and prevent it etc If you’re in a social setting.
I didn't used to get sick in public but recently started to. I hate it because people often assume you're drunk or something (which shouldn't be a reason to refuse someone compassion and care anyway but I digress..). I know that Amy and others who get sick as often as her often have sick bags stashed everywhere just in case, and these bags are fairly discrete (I think they are refered to medically as, 'emesis bags'). In my opinion though, what has made getting sick in public easier is that I stopped caring what others think. I know this is easier said than do though. Sending you love and spoons
chronicallyvegann I appreciate you! I also carry sick bags and zofran but it’s always so stressful knowing I need to be sick and being fearful of doing so. I’m also heavier so people commonly think I have an ED so all around not a good time. But you’re right screw what people think!
@@bri6032 I feel so bad for laughing but I relate to this on such a personal level. I had to warn my boyfriend before it ever happened that when it did happen it would not sound pleasant LOL. I thought I was the only one
Love Amy alot she's my gfs best friend. She was soo hurt . But I watch the videos to just memember her voice and personality sense of humor . It shows alot about amy as a person. That bloat is brilliant I freak out and my anorexia coms out and takes over again. It's horrible for some of us. Glad she's no longer suffering
I've just started watching your channel, your such a remarkable woman, you have got a lot of illnesses and yet you still carry on as normal, your such a lovely person x
I find myself watching you SOOO much more I've watch alot before, but more so now I miss you so much even though we didnt know each other you have helped me threw my gastroparesis battle and journey and I can not thank you enough it hurts so much knowing your not here anymore....rest easy love xoxo ❤
I'm a chronic illness patient myself I have sickle cell anemia and I love watching your video because I get to learn about another aspect of the chronic illness world in it self which is helpful because I love being aware of other chronic illnesses because you get so used to what you go through on the daily it interesting to see what other chronic illness patient's experience are like.
So I have extreme reactions to patches such as pain patches and medical tapes and I’m sure you’ve tried it before but I typically spray nasal allergy spray on the spot where I apply the patch, let it dry and my reaction is less irritated doing so. I know unsolicited advice is rarely helpful and I’m sure you’ve tried it. Sorry I’m one of those people. Thank you for always posting and I love joy these videos so much!!
You are such a brave young lady, i wish the world for you. Live life on your terms, stay sweet. And I swear I will never ever complain about my disabilities again seeing there is always someone worse off, Much love Amy.
Girl, keep fighting with chronic illness i Believe your really pretty and you deserve to live a normal life ❤️❤️❤️❤️ im sending you all of the hugs and support to you
Your videos have gotten me through so much in my life thank you for being vulnerable and sharing this part of your life, it’s a good feeling knowing that I’m not alone ❤️❤️❤️
Hi from Colorado. Dear Amy, thank you so much for sharing your very difficult journey with everyone. Your hopefulness makes me very happy. I pray that you can one day heal from all of your chronic illnesses. I truly believe that all things are possible through God. God bless.
I do not have Gastroparesis, but your videos help me so much since I have a chronical illness too, which is ME/cfs and the positive energy you keep having even though beeing chronically ill helps me so much This shows me that it is possible to stay positive even when beeing in pain or the symptoms being bad atm
You are super strong, I'm not a chronic illness sufferer,just a subscriber but I'm rooting and praying for you. And I pray that God will heal you totally. Keep living and God bless you always.
I admire you so much! I couldn't imagine having to go through what you do everyday, and you do it with such grace. I know you probably assume most of your subscribers are also chronic illness sufferers but I'm just a subscriber that is rooting for you! ❤
I suffered from a slow transit colon and it was so severe (I went 13 weeks without pooing while on the maximum dose of 8 different laxatives) that I ended up with an ileostomy. Has changed my life for the better
Stay strong! You are a warrior! I bet most people can’t go through a fraction of what you go through! I’ve been binging you vlogs for a few months now & I feel like recently you have the wind knocked out of your sails or you’re quite hurtin or down. So I’ll keep you in my prayers & send you some positive energy⚡️✨💫✨💫✨⚡️
How you can keep going and stay so positive is absolutely amazing.You are a real star.I don't know how you do it.People who moan about small aches and pains need to watch you so they can see what other people go through.God bless.
Thank you for posting this. I’m currently trying to get a GI doctor to diagnose me :( I’m suffering so badly. This video helped me feel like I’m not alone and there’s hope to get help. I hope that you do get better hun. I’m so sorry you are suffering. My prayers are with you ❤️
I'm glad your not in America! I'm living with AIDS I was diagnosed in 1980 so I'm late stage I have no immune system left and I have late stage COPD do I struggle daily . Nothing like what you go through ! Your a inspiration to me . I have Chronic Pain ! And the drug addicts have made it so I can't have more them 30 milligrams or equivalent to that a day they will not prescribe any more , it's a new law because of all the drug abuse . But I'm pretty tough , and people like you inspire me , I love you may God bless you
guardians animal rescue/ state certified 501c3 haha, problem is i am limited to basically all mush foods. not even proper foods. so it’s kind of 1/2 able to eat. if i eat solid food i’m just horribly sick😳
guardians animal rescue/ state certified 501c3 soft foods i keep down i just feel so so sick! anything solid makes me very sick, i can’t take any meds to aid digestion either as i’m allergic to some of the ingredients.....
Hi Amy Lee. I see your video and think, "WOW, this is awesome". I also have the ******* EDS and was about to give up. But you are still laughing and look great. You give me some energy back and i like to say "Thank You"
That was a great explanation, Amy. You are a strong girl. As a mother, you break my heart. I am hoping so much for you that the future holds better treatments and maybe even a cure. Take care, love. ❤️
You are so smart and educated, to have to have learned so many things and understand so much medical terminology due to your condition. I can barely keep track of what day my period starts, so you're a straight up baller. Thanks so much for making the videos and educating on gastroparesis.
When I was little I had kidney disease, and they managed to get it under control but an effect of the medicine that I took is that my teeth didn't for properly; basically, I have normal teeth but they are extremely discoloured and are covered in brown spots, I've had quite a few of my back teeth removed due to them being too weak and breaking. I understand entirely how you feel about your teeth, it's something so small that makes a massive difference!
came across your channel and found myself binging on your videos. you and the young man in some of the videos are very special people. While all this work may seem overwhelming at times I would give anything to be there helping may daughter deal with her chronic illness, unfortunately she passed at 19 from the affects of a blood disorder called PNH. Keep the faith and on those tough days remember people are sending you prayers, wishing you both well.
You've been in Aus for two years already?! I can't believe i've been watching you for so long! I'm currently undergoing tests to see whether i also have gastroparesis alongside my EDS and POTs. Your videos have always been super helpful and interesting :) I hope you're doing well!
Its been almost two years since my diagnosis and its a struggle daily. Just knowing my body isn't the same anymore when I see your videos it helps me out alot 💚💚
im struggling with something so small comparing to what you are dealing and because i overthink every little things and my mom wont take me to the hospital. Watching you gave me energy that i wont die easily and i will be fine and there are lots of people who suffer worse and mine is just nothing. I feel safer even though im not in doctor’s hand. You know when your symptoms kind of disappear when u reach the doctor? Yea Bc i cant go to the hospital this is my only place that i can feel safe and healthy
You are a gorgeous person inside and out! You are the very definition of courage and strength. Doubt not that you are a source of strength and courage for many. ❤
I get one two days from now. Whatever the results, I'm getting Mestinon. It treats gastroparesis, but it also treats POTS. Nice to have a two in one drug! They say it can counter fatigue and brain fog, too.
You’re looking extra fabulous these days Amy, I get an anti glare coating put onto my glasses so you don’t get that reflection that was annoying you, I love the style of yours they really suit you.
Amy I like how you lead your life with a lot of optimism I often complain about everything and I don't feel like living if I had your questions for sure I would die you have so much optimism and push I'm happy to find you and see your content ... I send you a big hug i'm ornella from argentina❤️
Thank you for talking about patch MD! I never knew about these and I cannot absorb or receive my vitamins orally so I am so happy to have come across this♡
I have a disease called ibs-c and when I was first diagnosed I thought I had it bad then i saw this channel and is saw that I have it pretty good and it made me sad to see that people have to go through things like this and I hope someday Amy that you get better and you gi system works again best of luck
Hey Amy, there is life after tooth loss. I won’t lie, it does suck at first, but like everything else you learn to adapt. After the loss you can turn around and get implants that won’t rot. Hang in there sweetheart, there is life with our autoimmune challenges.(Lupus, GERD, Gastro, migraines, REM Sleep Apnea)
WOW such a Strong,Positive Beautiful Lady have learnt so much Thank You. Sorry you have to go through this ugly disease may they find a solution for you luv n light gurlie 🦋🦋
Hello beautiful Amy Lee. Thanks for sharing all this with us. You're a very brave, strong & relatable young woman! Thanks again my dear! Sending positive vibes your way. Peace love dream's!🇨🇦 💞🌐📷📽️⭐⭐⭐⭐⭐⭐⭐⭐⭐⭐🌅🌏💜🌍💚🌎🌄✌🏼💗☁️🎬😉
hello :) I know you probably won’t see this.. but, I’m going for a gastric emptying test next week, and I am so nervous. I have celiac disease, and have dealt with my fair share of GI issues (bleeds, pain.. etc) but, 2 weeks ago, I got a new epigastric pain that is unbearable. no matter what I put into my stomach, I’m immediately nausea and have that pain. it feels like something is constantly backed up and at the top of my throat, and the bleeds are back and betta than evaaaa. lol it is helpful to see your videos, cause you answer a lot of the questions that are scary in my head. you’re truly beautiful and give so much hope to people like me. ❤️❤️❤️
I came across this page today. I was sorry to see she passed away from a different video. I was surprised to see function of beauty in another country.
I have severe gastroparesis and am getting hydration infusions as needed. But am facing the high possibility of a g tube to vent my stomach and drain it and possibly a port for continued iv hydration. I cant eat or drink much of anything. Your videos have helped me a lot with not being so scared of everything. I am unable to handle NG tube placements as I have ptsd from a prior placement so it just wont work for me without trigger me constantly. Hope life is stable for you!
I've been watching your channel for a while now, I first found it when I was diagnosed with gastroparesis in 2018. I have a super mild case compared to yours, but it is nice to see someone with it.
Samir C. Cat same in a way but it’s got to the point now where I can’t keep down solids and I’ll quite literally go to sleep after eating cause it’s the only way I can deal with the pain and bloating but sometimes the pain stops me sleeping and having pain meds and I’ve become severely anemic I do have a scan coming up but my stomach is getting worse by the day
@@lily-maesummerton8103 I feel so sorry for you! I'm in a little bit better period now, but have had probIems since 2013. I don't have actual pain, more difficulties swallowing down and bloating and heart burn. I need to be physically still after meals, if I move or go out right after I get problems.
Hi!! I found your channel last year and I love you so much!!! I am eleven and don’t struggle with this diseases but I’ve learned so much from you and I want to be a nurse when I grow up!! 💕💕💕💕
I have a friend who had a gastric pacemaker for 10 years and it has just packed up. Fortunately the Uk have found funding for another gastric pacemaker for him, it is so expensive over here, Hoping that he will be well enough to have it do , you are an inspirational person xxxx
I was diagnosed with gastroparesis in 2011 after being hospitalized for a week for constant vomiting. Athe time, I didn’t understand it.l bc I don’t think I had doctors that fully understood it. According to my doctors where I’m from, I’m one of the youngest patients To be diagnosed with this and it’s always a shock to them that I have it since I’m also not diabetic. Thank you so much for your transparency it has greatly helped beyond words could express!
I just came across your channel today. You are so strong 💪🏻 and beautiful. Lots of “big strong men “ can’t even handle seeing their own blood. Keep on keeping on!
This girl suffered so much, and was so positive. Rest In Peace Amy.
She died ?
@@antoinettedavis2140 yes, you might want to look at her most recent video on this channel and it’s description
Omg she died?
@@rses916 yes April 1, 2021
I'm glad Amy isn't suffering anymore, but I will miss her. RIP Amy.
Was she die??🥺🥺🥺🥺🥺
I'm not sure if you've already considered this, but you should get a cast made of your teeth now. In the future, if you do have to do replacement teeth of any kind, if the dentist has a full cast of what your natural teeth look like (size and shape), they can make your replacements look very much the same as your naturals. I know it's hard to think about, but a small amount of planning now could make a huge difference of how you feel about your smile in the future. You are doing an amazing job of taking care of your teeth now, so hopefully it will be a long time before you have to deal with it!❤
This is brilliant! I am experiencing dentures now. My teeth lasted until I was 64. I had impressions made for immediate after extraction dentures, but my teeth were not as perfect as yours still are. Not saying you will need to replace your teeth, but wouldn't you like to preserve their shape and beauty for the future?
My lower teeth are grinding away my top teeth because of a bad orthodontist and I wish I had a cast
Yes! I'm getting a cast of my teeth soon!
@Phil S thanks for the tip, I didn't know that.. my teeth are getting bad..
Shannon Ash that’s really neat!
My daughter has cyclic vomiting syndrome and the dentist here in the USA has put sealants on her teeth and has saved her teeth. See if your dentist will try it on your teeth.
Another something I think should be like-boosted so Amy can hopefully see it
+++
Yes! I have cyclic vomiting syndrome & my dentist has helped a ton with protecting my teeth. Sealants are a great option.
@@sarahfortier7442 Have you tried an elimination diet?
Great advice
Missing you Amy.... watching this in your memory during gastroparesis awareness month. Your soul sister Chloe has asked people to watch this video in your honor. She is a true one. Hope heaven is treating you right. Luv u lots. 💓
Instead of brushing your teeth straight after you vomit you can rinse with water and baking soda to neutralise the acid from your stomach and it won’t damage your teeth as much.
Emelie Harrison 👍🏻
Yeah I feel the toothpaste might be too harsh to use if she is getting sick so often . Maybe a mild natural vegan toothpaste or something ? Or even just warm salt water .
R.I.P
Going through your videos again to remember you and your bright soul.
You were, and will continue to be, an inspiration. ♡
As a nurse in the US I really have learned a lot about what you go through daily and it has helped me know more about specialty patients. Oh and I like that you show the real life day in the life and not just use a model. You and tom do an amazing job living with chronic illness and still loving life and doing as much as you can everyday to enjoy it. Saw some Harry Potter PJ pants at Walmart last night and thought of you. Made me smile 😃 Have a lovely week♥️♥️♥️
Aw this makes me so happy to hear! I wish all medical professionals were like you (although in generaly nurses like you seem to almost always be lovely angels. There's a comment in the show, 'Nurse Jackie' about how doctors 'fix' and nurses 'heal' and I have always found that to be true; you nurses have always been my comfort in ER situations when I'm intimidated by the doctors due to past medical trauma. Thank you so much for what you do!)
Petersen 👍🏻
I'm new to the chronic illness world, looking for clues. I didn't get a chance to follow amy's journey and I didn't already love and treasure her like so many others. But I felt oblidged to pay my condolences to her loved ones. I'm sure that your lovely Amy will continue to educate and support many people through her videos.💗💔
hi, amy. recently, i’ve been suffering greatly. i know you’ll never see this, but i wanted to share how you’re helping me push through. over the last year & 1/2, i’ve become very ill. it was all symptoms we’ve known you to suffer. today i got word that what i feared is potentially my reality: i more than likely have gastroparesis, as well. in my hardest moments over my struggle, i’ve thought of you and how you fought. you truly gave it everything you could until the very end. who knows, maybe a loved one here will see this. but i just wanted you, Amy, to know you’re making an impact even in spirit. stay resting peacefully, angel.
oh my goodness. My husband had gastroparesis. He passed away at age 32 5 years ago. I am so glad you are letting people know about how severe it can be. So many people would not believe how horrible it really was. He was constantly throwing up and couldn't stop with very little relief.
My husband has gastroparesis and has lost major weight. He was 287 and today is 231. He just can't eat. A feeling of CONSTANT nausea and vomiting mostly first thing in the morning. NOTHING helps. Any advice PLEASE
I can appreciate the small things in that the things she says she feared the most didn't happen to her. Small comforts.
I remember when I was in the hospital as a kid in the gastro ward, the other patients and our moms would take little strolls down to the cafeteria. It was me, my friend with crohns, and my friend with gastroparesis basically just sitting there like that with the bloated belly and hot pack while everyone ate. It truly, truly, truly sucked. Even until now I never really understood what my friend with gastroparesis experienced and I'm kind of amazed that you have the hardiness you do!!
I have said it before and now again. I am a retired u.s. marine and combat vet. Watching what You deal with daily makes me look like i have had an easy life! I truly admire you and the great way you inform us of this condition. Keep your chin up and know that you are truly reaching others.
Watching her makes it feel like she's still here somehow still educating us and I feel like even though I didn't know her, this is what she would have wanted for her fans; to continue learning and becoming more aware of conditions like she had
I will be praying for you.. I found out a while ago I have gastroparesis, fibromyalgia and gout.. I'm grateful I found your videos, bc I have felt extremely alone and ppl dont seem to understand the pain.. thanks again.. God bless
I feel everything you said about the teeth thing so hard, I can deal with all the other stuff but the idea of losing my teeth terrifies me
Mandy Schaan 👍🏻
I had to lose all mine- I had 25 remaining but because of health issues including bone cancer, they were literally crumbling and constantly infected. It was horrible the first time I saw my mouth without them, and I did it with no narcotics. I’m surviving though
Hey I've found your videos by accident, buy... Girl, I'm a grown ass man and I wouldn't be able to go through 1% of you're going through every day. I thought I'm pretty thick skinned but seeing you dealing with your condition like an absolute boss is really something else... Huge respect. I'd be too scared to move a muscle with tubes sticking out of my thorax and you're just casually dancing around the house talking about shampoo and stuff. You're an absolute masterpiece. High. Freaking. Five. Lady. Cheers.
I'm so sorry,I didn't realise how bad this disease is, you're such a strong person 💜💜💜
You’re such an inspirational girl! I have quite a few chronic illnesses which make my day to day living hard, I struggle to do basic stuff and take extremely high pain meds! Watching your videos makes me feel less alone. All my love girl ❤️
No clue what you're suffering with but I feel your pain (literally, because I too am taking high amounts of pain meds and hate it)
chronicallyvegann thank you.! I’m here if you ever want to chat - my insta is @lourogers24, it’s nice to talk to others who are in the same boat x
Lou’s Life 👍🏻
I just ordered my patch MD about 3 weeks ago due to you, beautiful girl! I have severe osteoporosis at an early age and due to chronic ulcerative colitis, there’s no treatment options! I ordered the vitamin D/ calcium patches along with some others. I just had another bone density test last week and I’m beyond thrilled to say, the dr saw improvement in my bones!! They still resemble angel hair pasta but are looking stronger!! I’ve had zero side effects since using them so I am forever grateful to you for suggesting these little paper patches!! Stay strong and beautiful sweet girl!!
Southern Charm 👍🏻
Lo caro que debe salir el tratamiento x todo lo que veo
Patch MD- Iron plus update.
As promised l am giving an update to all, on the vitamin patches Amy is using.
I ordered the Iron Plus 30 day pack for about $50 AUD from Las Vegas. They took 3 weeks to arrive to Melbourne Australia, there was no issues with importing them. My 16 yr old Daughter (who has no other medical conditions) has Iron deficiency due to heavy periods. We got our GP approval and have been on them for 2 weeks. We did a baseline test prior and there is an improvement already with absolutely no side effects like the tablets have. Will let you know after a full month of use but so far so good and yes they are working. Always always check with your Dr about your individual needs and do not take this as medical advice in any way. Im giving feedback not medical advice. Hope this information helps.☺
Brilliant But Blue - Thanks for this. I was wondering how effective they really are. So no stomach pains or issues?
Jade: No stomach cramps (l even get tummy cramps when l take iron tablets) no rash from the sticker, no green poop obviously because it's not going in her gastrointestinal system and there has been an improvement in her blood test results. I also questioned how a topical patch could absorb iron but it does have additional vitamins in the patch to help absorbtion. In Australia we have along with pain patches Nicotine patches for smoking cessation and they work, so lm assuming it can be possible.
@@brilliantbutblue Well that all sounds great. Thanks for letting me know. I will ask my dr about them next time.
Thanks for this comment. I just saw they have 40% off on the website right now and got myself some iron patches. Here's to hoping!
Brilliant But Blue 👍🏻
You seem so happy despite everything you’re going through. You’re so strong. ❤️
During my gastroparesis flares you were my motivation to continue trying to stay positive. You are missed.
Another great video Amy! I just want to mention, for everyone here, that what also damages your teeth when you're vomiting a lot is the dehydration itself. Saliva acts like a second enamel, and is crucial to keeping teeth strong. This can be really insidious because someone with constant nausea who only vomits about once a week (like myself) may think their teeth are fine, but if they're avoiding eating and getting dehydrated .. well I had two teeth fall out last summer and it took almost a year of on and off appointments to get everything fixed. So PLEASE if you're suffering with anything that can really dehydrate you, make a point of seeing your dentist! (This is especially important for people with EDS because some of us also have naturally weaker enamel).
chronicallyvegann 👍🏻
I am the type of person w chronic nausea and only vomits onceish a week despite feeling like I need to 24/7
But I didn’t know about saliva acting as a second barrier!
This channel was on my recommended have no idea how, clicked started watching now im binge watching like this is some Netflix series. I have to tell you WONDER WOMEN doesn't have crap on this women.
Hi Amy, I am your new subscriber. I'm having a depression, lotsa problems, and tbh your videos somehow is helping me. I've lost my will to live these past few weeks, and then I saw your videos, how you have so much will to live, meanwhile me... not so much. Thank you, thank you for positivity in every videos. It helps me to see clearly, that my problem is not bigger than me. I can overcome it, and I will. Thank you for giving me reason not to give up. Thank you.
I relate to you so much and I’m always so happy when you post, Amy. My partner has supported me so much during my health and diagnostic journey and I’m so happy on how far you’ve come 💕 thank you for all of these brutaly honest videos. The idea of losing our teeth is so scary and not talked about at all! Whether it’s vomiting or just dry mouth our oral health effects so much. 🖤
Jo Lochary 👍🏻
The more I watch you, the more I feel inspired by you. Even though I don't have as many medical problems, I admire the strength you have in your life and that helps me push through my days. Keep on rocking it, you're amazing.
This girl is so sweet. She deserves the world for what she has to go through xx
Hey my girl will you think about doing a video about being sick in public? I know you go out frequentlyish and I’m sure you’ve had to deal with it. I guess what I’d like you to cover is like getting sick quietly if you can, how you prepare when you go out, and what things you do to try and prevent it etc If you’re in a social setting.
I didn't used to get sick in public but recently started to. I hate it because people often assume you're drunk or something (which shouldn't be a reason to refuse someone compassion and care anyway but I digress..). I know that Amy and others who get sick as often as her often have sick bags stashed everywhere just in case, and these bags are fairly discrete (I think they are refered to medically as, 'emesis bags'). In my opinion though, what has made getting sick in public easier is that I stopped caring what others think. I know this is easier said than do though. Sending you love and spoons
chronicallyvegann I appreciate you! I also carry sick bags and zofran but it’s always so stressful knowing I need to be sick and being fearful of doing so. I’m also heavier so people commonly think I have an ED so all around not a good time. But you’re right screw what people think!
i am the LOUDEST vomiter for some reason so i could never imagine having to deal with this ☹️💘 stay strong bb
Lainie Beck 👍🏻
@@bri6032 I feel so bad for laughing but I relate to this on such a personal level. I had to warn my boyfriend before it ever happened that when it did happen it would not sound pleasant LOL. I thought I was the only one
Love Amy alot she's my gfs best friend. She was soo hurt . But I watch the videos to just memember her voice and personality sense of humor . It shows alot about amy as a person. That bloat is brilliant I freak out and my anorexia coms out and takes over again. It's horrible for some of us. Glad she's no longer suffering
I've just started watching your channel, your such a remarkable woman, you have got a lot of illnesses and yet you still carry on as normal, your such a lovely person x
You really inspire me. I love how no matter how you feel, you just get stuff done.
I find myself watching you SOOO much more I've watch alot before, but more so now I miss you so much even though we didnt know each other you have helped me threw my gastroparesis battle and journey and I can not thank you enough it hurts so much knowing your not here anymore....rest easy love xoxo ❤
Your information is incredibly vital girl. You have no idea how much you are helping people!
C v this actually made me cry! Thank you so much 😭😍❤️
Amy Lee Fisher Well gosh darn. I’m crying now because you’re crying. 🤣❤️
C v 👍🏻
You are the only channel I subscribe to that I don’t mind the sponsorship ads.
I'm a chronic illness patient myself I have sickle cell anemia and I love watching your video because I get to learn about another aspect of the chronic illness world in it self which is helpful because I love being aware of other chronic illnesses because you get so used to what you go through on the daily it interesting to see what other chronic illness patient's experience are like.
I can not believe she passed away. So awful and now I am seeing the videos everywhere Gone way too soon..RIP
So I have extreme reactions to patches such as pain patches and medical tapes and I’m sure you’ve tried it before but I typically spray nasal allergy spray on the spot where I apply the patch, let it dry and my reaction is less irritated doing so. I know unsolicited advice is rarely helpful and I’m sure you’ve tried it. Sorry I’m one of those people. Thank you for always posting and I love joy these videos so much!!
This is such an interesting idea! I will definitely be trying this!
Jo Lochary 👍🏻
You are such a brave young lady, i wish the world for you. Live life on your terms, stay sweet. And I swear I will never ever complain about my disabilities again seeing there is always someone worse off, Much love Amy.
Donald Alldredge 👍🏻
I hate going to doctors on bad pain days and the last thing you want to do is leave the house- when you got home and immediately napped I FELT that
Sarah 👍🏻
Love that you don’t let it stop you and you live a full and happy life! Love your channels
Girl, keep fighting with chronic illness i Believe your really pretty and you deserve to live a normal life ❤️❤️❤️❤️ im sending you all of the hugs and support to you
Your videos have gotten me through so much in my life thank you for being vulnerable and sharing this part of your life, it’s a good feeling knowing that I’m not alone ❤️❤️❤️
Hi from Colorado. Dear Amy, thank you so much for sharing your very difficult journey with everyone. Your hopefulness makes me very happy. I pray that you can one day heal from all of your chronic illnesses. I truly believe that all things are possible through God. God bless.
I was diagnosed with this about two years ago, mine isn’t real bad but I can tell it is getting worse. The bad days are really hard.
paschon01 👍🏻
I do not have Gastroparesis, but your videos help me so much since I have a chronical illness too, which is ME/cfs and the positive energy you keep having even though beeing chronically ill helps me so much
This shows me that it is possible to stay positive even when beeing in pain or the symptoms being bad atm
What a rough condition to live with. I feel so weak for ever complaining about any minor health issues I've had in the past.
I struggle with the same problems as you so sorry to hear you’re gone it’s so sad rip Amy! 😢😢❤️❤️🥺🥺🥺
You are super strong, I'm not a chronic illness sufferer,just a subscriber but I'm rooting and praying for you. And I pray that God will heal you totally. Keep living and God bless you always.
I admire you so much! I couldn't imagine having to go through what you do everyday, and you do it with such grace. I know you probably assume most of your subscribers are also chronic illness sufferers but I'm just a subscriber that is rooting for you! ❤
Morgan Campbell 👍🏻
I suffered from a slow transit colon and it was so severe (I went 13 weeks without pooing while on the maximum dose of 8 different laxatives) that I ended up with an ileostomy. Has changed my life for the better
Good luck girly I'm sooooooo sorry that you have to deal with this
Stay strong! You are a warrior! I bet most people can’t go through a fraction of what you go through! I’ve been binging you vlogs for a few months now & I feel like recently you have the wind knocked out of your sails or you’re quite hurtin or down. So I’ll keep you in my prayers & send you some positive energy⚡️✨💫✨💫✨⚡️
How you can keep going and stay so positive is absolutely amazing.You are a real star.I don't know how you do it.People who moan about small aches and pains need to watch you so they can see what other people go through.God bless.
eternalflame 👍🏻
Is no one else concerned that she hasn’t posted in a month?!
Kenna’s Life - I just saw that there’s an Amy’s life channel and she seems to be posting there
OMG, me too! I came back to this video just to check the comment section.
for future reference she has two instagrams - chronically.ams and _amieelee which she was active on during those 4 weeks.
Its been even longer now so yes that why I came here , to see if anyone knew how shes doing
Yes I’m concerned
Thank you for posting this. I’m currently trying to get a GI doctor to diagnose me :( I’m suffering so badly. This video helped me feel like I’m not alone and there’s hope to get help. I hope that you do get better hun. I’m so sorry you are suffering. My prayers are with you ❤️
Honestly she's so beautiful
I'm glad your not in America! I'm living with AIDS I was diagnosed in 1980 so I'm late stage I have no immune system left and I have late stage COPD do I struggle daily . Nothing like what you go through ! Your a inspiration to me . I have Chronic Pain ! And the drug addicts have made it so I can't have more them 30 milligrams or equivalent to that a day they will not prescribe any more , it's a new law because of all the drug abuse . But I'm pretty tough , and people like you inspire me , I love you may God bless you
I have been diagnosed with HEDS since 5. Its horrible you are the most informative person I have watched I love you so much!
i just got diagnosed with this along with my EDS and potential pots. i have no idea how to manage it and how to know what foods are good vs bad....
Your gastroenterologist will be able to help u. U r fortunate that u can even eat food. Many of us can't. But yeah I'd ask your doctor.
guardians animal rescue/ state certified 501c3 haha, problem is i am limited to basically all mush foods. not even proper foods. so it’s kind of 1/2 able to eat. if i eat solid food i’m just horribly sick😳
@@mysticalanimallover5741 can u keep it down? Or try ensure or like instant breakfast?
guardians animal rescue/ state certified 501c3 soft foods i keep down i just feel so so sick! anything solid makes me very sick, i can’t take any meds to aid digestion either as i’m allergic to some of the ingredients.....
@@mysticalanimallover5741 what does ur gastroenterologist say? May be time for a G J button.
This is so overwhealming :( rest in peace Amy
Hi Amy Lee. I see your video and think, "WOW, this is awesome". I also have the ******* EDS and was about
to give up. But you are still laughing and look great. You give me some energy back and i like to say "Thank You"
That was a great explanation, Amy. You are a strong girl. As a mother, you break my heart.
I am hoping so much for you that the future holds better treatments and maybe even a cure.
Take care, love. ❤️
You are so smart and educated, to have to have learned so many things and understand so much medical terminology due to your condition. I can barely keep track of what day my period starts, so you're a straight up baller. Thanks so much for making the videos and educating on gastroparesis.
When I was little I had kidney disease, and they managed to get it under control but an effect of the medicine that I took is that my teeth didn't for properly; basically, I have normal teeth but they are extremely discoloured and are covered in brown spots, I've had quite a few of my back teeth removed due to them being too weak and breaking. I understand entirely how you feel about your teeth, it's something so small that makes a massive difference!
came across your channel and found myself binging on your videos. you and the young man in some of the videos are very special people. While all this work may seem overwhelming at times I would give anything to be there helping may daughter deal with her chronic illness, unfortunately she passed at 19 from the affects of a blood disorder called PNH. Keep the faith and on those tough days remember people are sending you prayers, wishing you both well.
You look so.pretty! Makeup, clothes, attitude in life. You're a blessing. 🌷
OMG she was so pretty. R.I.P. Amy Lee.
You look like Ava Michelle from tall girl!! Both beautiful ladies !!!
Alejandra Garcia 👍🏻
You've been in Aus for two years already?! I can't believe i've been watching you for so long! I'm currently undergoing tests to see whether i also have gastroparesis alongside my EDS and POTs. Your videos have always been super helpful and interesting :) I hope you're doing well!
Its been almost two years since my diagnosis and its a struggle daily. Just knowing my body isn't the same anymore when I see your videos it helps me out alot 💚💚
shyree wimberly 👍🏻
im struggling with something so small comparing to what you are dealing and because i overthink every little things and my mom wont take me to the hospital. Watching you gave me energy that i wont die easily and i will be fine and there are lots of people who suffer worse and mine is just nothing. I feel safer even though im not in doctor’s hand. You know when your symptoms kind of disappear when u reach the doctor? Yea Bc i cant go to the hospital this is my only place that i can feel safe and healthy
I have a paralysed bowl and bladder and I thought that was hard enough so much respect for you
You are a gorgeous person inside and out! You are the very definition of courage and strength. Doubt not that you are a source of strength and courage for many. ❤
Miss u amy😢😢still watching utube...R.I.P ANGEL
I’m getting my gastric emptying test done tomorrow I’m not excited for this.
Thoughts and prayers.
Yeah I really hated it
stay strong!
Holy Duck I hope it went well
I get one two days from now. Whatever the results, I'm getting Mestinon. It treats gastroparesis, but it also treats POTS. Nice to have a two in one drug! They say it can counter fatigue and brain fog, too.
You’re looking extra fabulous these days Amy, I get an anti glare coating put onto my glasses so you don’t get that reflection that was annoying you, I love the style of yours they really suit you.
Amy I like how you lead your life with a lot of optimism I often complain about everything and I don't feel like living if I had your questions for sure I would die you have so much optimism and push I'm happy to find you and see your content ... I send you a big hug i'm ornella from argentina❤️
Unfortunately I had mast cell reactions to the shampoo and conditioner half way through. I scared to use it again.. it was so nice while it lasted!
Love your videos!!! I have been using function for 6months and I absolutely love it!!!
Thank you for talking about patch MD! I never knew about these and I cannot absorb or receive my vitamins orally so I am so happy to have come across this♡
I have a disease called ibs-c and when I was first diagnosed I thought I had it bad then i saw this channel and is saw that I have it pretty good and it made me sad to see that people have to go through things like this and I hope someday Amy that you get better and you gi system works again best of luck
Hey Amy, there is life after tooth loss. I won’t lie, it does suck at first, but like everything else you learn to adapt. After the loss you can turn around and get implants that won’t rot. Hang in there sweetheart, there is life with our autoimmune challenges.(Lupus, GERD, Gastro, migraines, REM Sleep Apnea)
WOW such a Strong,Positive Beautiful Lady have learnt so much Thank You. Sorry you have to go through this ugly disease may they find a solution for you luv n light gurlie 🦋🦋
Hello beautiful Amy Lee. Thanks for sharing all this with us. You're a very brave, strong & relatable young woman! Thanks again my dear!
Sending positive vibes your way.
Peace love dream's!🇨🇦
💞🌐📷📽️⭐⭐⭐⭐⭐⭐⭐⭐⭐⭐🌅🌏💜🌍💚🌎🌄✌🏼💗☁️🎬😉
hello :) I know you probably won’t see this.. but, I’m going for a gastric emptying test next week, and I am so nervous.
I have celiac disease, and have dealt with my fair share of GI issues (bleeds, pain.. etc) but, 2 weeks ago, I got a new epigastric pain that is unbearable. no matter what I put into my stomach, I’m immediately nausea and have that pain. it feels like something is constantly backed up and at the top of my throat, and the bleeds are back and betta than evaaaa. lol
it is helpful to see your videos, cause you answer a lot of the questions that are scary in my head. you’re truly beautiful and give so much hope to people like me. ❤️❤️❤️
Your looking so much healthier!
Natasha Rowe 👍🏻
I love your day in the life videos, your honestly so strong! Stay beautiful and stay strong you are such an inspiration❤️
Cocaina X 👍🏻
I came across this page today. I was sorry to see she passed away from a different video.
I was surprised to see function of beauty in another country.
I have severe gastroparesis and am getting hydration infusions as needed. But am facing the high possibility of a g tube to vent my stomach and drain it and possibly a port for continued iv hydration. I cant eat or drink much of anything. Your videos have helped me a lot with not being so scared of everything. I am unable to handle NG tube placements as I have ptsd from a prior placement so it just wont work for me without trigger me constantly. Hope life is stable for you!
I've been watching your channel for a while now, I first found it when I was diagnosed with gastroparesis in 2018. I have a super mild case compared to yours, but it is nice to see someone with it.
What symptoms do you have? I have constant stomach issues and a slightly delayed stomach emptying, but the doctors refuse to do anything about it.
Samir C. Cat same in a way but it’s got to the point now where I can’t keep down solids and I’ll quite literally go to sleep after eating cause it’s the only way I can deal with the pain and bloating but sometimes the pain stops me sleeping and having pain meds and I’ve become severely anemic I do have a scan coming up but my stomach is getting worse by the day
@@lily-maesummerton8103 I feel so sorry for you! I'm in a little bit better period now, but have had probIems since 2013. I don't have actual pain, more difficulties swallowing down and bloating and heart burn. I need to be physically still after meals, if I move or go out right after I get problems.
Man your really brave, and you still go about your day. That's amazing honestly.
Hi!! I found your channel last year and I love you so much!!! I am eleven and don’t struggle with this diseases but I’ve learned so much from you and I want to be a nurse when I grow up!! 💕💕💕💕
I have a friend who had a gastric pacemaker for 10 years and it has just packed up. Fortunately the Uk have found funding for another gastric pacemaker for him, it is so expensive over here, Hoping that he will be well enough to have it do , you are an inspirational person xxxx
I was diagnosed with gastroparesis in 2011 after being hospitalized for
a week for constant vomiting. Athe time, I didn’t understand it.l bc I don’t think I had doctors that fully understood it. According to my doctors where I’m from, I’m one of the youngest patients
To be diagnosed with this and it’s always a shock to them that I have it since I’m also not diabetic. Thank you so much for your transparency it has greatly helped beyond words could express!
how are you doing now?
Just watching your videos makes me want to cry.
Raymond P. Kot II, Esq. 👍🏻
I just came across your channel today.
You are so strong 💪🏻 and beautiful.
Lots of “big strong men “ can’t even handle seeing their own blood.
Keep on keeping on!
Hi Amy, you are one of the bravest people I know. You are my hero!