I went through this in Feb 2012. I hope your doing ok. When I found out it was after resection and by phone. It was scary. there wasn't a lot of info available for me. I later developed epilepsy and many other side effects. but that's manageable. so far no return of growth. I feel very blessed for that. I hope you find similar if not better outcome. And for others looking for answers, please keep a hold of hope.
@@munabhattarai4709 I was clear in 2018. I have some vision issues due to where the tumor was but all in all I’m doing great. I’ve graduated college and am about to start my masters to become a child life specialist
Thank you so much for sharing your experiences. I have a tumour but my radiologists can’t seem to agree what it is or where it is. One said it’s a meningioma in my petrous apex, another said it is a Intraosseous meningioma and the third says it’s a Trigeminal Schwannoma in the Meckel cave. My next MRI will be the crucial one as it’s grown 5mm in 6 months. I just want and need to know what it is and what the plan is.
its odd when I was told I had a tumor initially I was really hopeful that I would die swiftly and painlessly somehow. unfortunately my tumor was only grade 2 I had my surgery about a month ago. now I am back to my regular shitty life. idk for me having my parents around just felt even more suffocating too cause im a 23 year old NEET that has always lived iwth my parents lol. idk nobody is probably going to read this im kinda hoping for bad news kinda hoping for good news from my first visit to the neuro oncologist.
I went through this in Feb 2012. I hope your doing ok. When I found out it was after resection and by phone. It was scary. there wasn't a lot of info available for me. I later developed epilepsy and many other side effects. but that's manageable. so far no return of growth. I feel very blessed for that. I hope you find similar if not better outcome. And for others looking for answers, please keep a hold of hope.
I had this tumor at age 13, you can totally do this. It’ll be 10 years ago this September !!
She passed away :(
How r u now?
Me too have
@@guygadbois1068 that’s awful I’m so sorry 😢
@@munabhattarai4709 I was clear in 2018. I have some vision issues due to where the tumor was but all in all I’m doing great. I’ve graduated college and am about to start my masters to become a child life specialist
A truly inspirational woman. XXX
I went through the exact same thing!!!! God bless you
How are you now Michael?
Thank you so much for sharing your experiences. I have a tumour but my radiologists can’t seem to agree what it is or where it is. One said it’s a meningioma in my petrous apex, another said it is a Intraosseous meningioma and the third says it’s a Trigeminal Schwannoma in the Meckel cave. My next MRI will be the crucial one as it’s grown 5mm in 6 months. I just want and need to know what it is and what the plan is.
its odd when I was told I had a tumor initially I was really hopeful that I would die swiftly and painlessly somehow. unfortunately my tumor was only grade 2 I had my surgery about a month ago. now I am back to my regular shitty life. idk for me having my parents around just felt even more suffocating too cause im a 23 year old NEET that has always lived iwth my parents lol.
idk nobody is probably going to read this im kinda hoping for bad news kinda hoping for good news from my first visit to the neuro oncologist.
How are you doing now mate?
I read your comment and I care. How are you doing?
Did she end up doing to ketogenic diet?
Exact