Hi Thaddeus, You can keep up to date with how Jessica's work is progressing directly through her Twitter account @BendyBrain twitter.com/BendyBrain She also includes shout-outs to other relevant research and people working in this area, so it's a good one to check out for more information. You can also see more recent talks and publications from Dr Eccles through the her page on the Brighton and Sussex Medical School website: www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx - such as this recent 30 minute talk vimeo.com/346710898
@@camybesterwitch6587 See a physiotherapist. If you experience joint instability and pain from hypermobility it is important to strengthen the surrounding muscles. I have the same issue with my shoulder (subluxation and pain) and have been referred by my doctor for physiotherapy. Hope this helps!
@@elliecain3761 If you have EDS you have to be extremely careful because physical therapy can actually make it much worse long term. make sure whoever you go to is extremely familiar with hypermobility
I had to hit pause, sit up, yell 'what?!!?' This is a life-changing discovery. As a person with hypermobility, anxiety, and inexplicable tachycardia I thank you for this!
Hypermobile here, with autism and adhd. For me I suspect a lot of the hypermobile anxiety/fight/flight component comes from the fact that our nervous systems are exhausted because it's constantly getting our muscles to do the supporting/stabilizing work that's supposed to be done by our joints. Even when laying down or sleeping our bodies can't fully relax or our skeletons would dislocate all night long, and that 24/7 muscle activation and work exhausts us, so we produce excess adrenaline during the day just to stay awake... which further tenses our muscles and compromises our deep sleep, and round and round we go for years and decades. So yeah, anxious and stressed in every possible sense.
Hello Gergory, Could i ask you have you were diagnosed with hypermobility? I suspect I might have it aswell as autism and adhd. I struggle badly walking all day at work and I just resigned because It was too tough.
@@performa1 I'm sorry to hear of your struggles. I was initially assessed by a sports physiotherapist, and his assessment was later confirmed by an orthopedist after several visits, with the help of an MRI and extensive medical history. If you suspect you're hypermobile, you probably are, but either way I'm not sure it matters because the most helpful thing you can do is physical therapy, strength training, and postural training. Having strong muscles that know when and how to work together, and knowing how to move in ways that are safe and efficient... this is the only sustainable way out of the cycles of pain and fatigue we get trapped in. I wish you all the best!
hi same here! i also thought about these things as well! another thought I had to add to this is also the feeling of our joints being loose and unstable can also potentially make us feel anxious because of that instability and looseness. I phrase it sort of like "it feels like my body is constantly about to fall apart" and anxiety also feels like things are falling apart/impending that they are going to fall apart but in a psychological way and I think there is a strong correlation between that as well. the physical instability of being hyper mobile in turn conjuring the anxiety.
This is me. I fainted all the time as a child, I am double-jointed, which led me to gymnastics as a child. I am currently in therapy to deal with a lifetime of dissociation, from childhood emotional trauma. And, currently, I am experiencing autoimmune issues, likely related to too much cortisol production over my lifetime. I feel like this makes my inability to deal with my emotional trauma, make more sense, as well as the reaction of my brain to self numb and shut down. I relate to everyone on here, I feel so seen. Keep posting your findings, and thank you for your research.
wulfgar3000 Are you serious dude? She meant that people call those with POTS “anxious” or label them with anxiety even when they are calm. You can’t stop your ANS being dysfunctional.
I have hypermobility, fibromyalgia, anxiety, and depression. I've always, ALWAYS thought everything was connected. Thank you for doing this research. I would love to see options for natural healing rather than medications...
if you are on other social media an excellent book is by claire smith its has SO much useful info in there, hypermobility is so so much more than just being bendy. DO checkout HMSA charity on twitter. I learned so much from there.
I have a hypermobile back and have suffered from anxiety and depression, and was diagnosed with OCD about 10 years ago. My suggestion for you is a high-quality, therapeutic magnesium supplement, preferably powdered. I am not a dr or naturopath but I take one (originally prescribed by a naturopath) and it has made an enormous difference to my quality of life.
I cried watching this from beginning to end. You have no idea how much it means to be validated by this kind of research. Thank you so much for all your work.
I'm only a teen. I went to a rheumatologist and apparently all my problems that I have had for so many years were symptoms of hEDS except for the twitching of my muscles. I had so many symptoms like me being flexible, having anxiety and depression for no reason at all, being so hungry and then not being able to eat after 2 bites because I had the sensation of being hungry, being light sensitive, scarring easily, my knees hurting a lot, joints feeling loose, heart beating really fast when I stand up or in the morning, craving salted popcorn and apparently I had a blue tinge in the white part of my eyes. My mom told me that she had noticed they were slightly blue but thought nothing of it. I nearly cried today because I finally knew what was happening. I hope that rheumatologist and any understanding rheumatologist out there wins the lottery at this point
You can have Mast Cell Activation Syndrome (MCAS). This is a newly discovered and very common disease that is still unknown to almost all doctors. MCAS is linked to diseases such as Postural orthostatic tachycardia syndrome (POTS) Hypermobil Ehlers-Danlos Syndrome (hEDS) Post-traumatic stress disorder (PTSD) Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS Post-Lyme syndrome Irritable bowel syndrome (IBS) Fibromyalgia syndrome (FMS) Attention-Deficit / Hyperactivity Disorder (ADHD) Autism spectrum disorder (ASD) Scientific articles NCBI Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome Mast cell activation symptoms are prevalent in Long-COVID Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome Mast Cells and Irritable Bowel Syndrome (IBS) Mast Cell Activation Syndrome: An Alert to Psychiatrists
I am Hypermobile Ehlers Danlos. I never thought of myself as predisposed to anxiety until I nearly bled to death and came down with full-blown POTS. An entire lifestyle of limbic retraining (breath work, walking, yoga, self-hypnosis, etc), fasting, and encouraging acetylcholine have helped me very much.
You're very welcome! Supporting early career biomedical researchers like Dr Eccles and helping people benefit from knowing about their work is a key part of what the Academy of Medical Sciences is here for.
I discovered my severe anxiety, depression, IBS and hypermobility are connected few years back. I'm yet to find a regime that would work for me. I wish more medical professionals connected the dots and treated us accordingly
For me the anxiety comes from the fear of doing a physical activity that will lead to another dislocation that will not pop back in place without medical treatment. It's that I don't want to go back to hospital and maybe have to face surgery
OMGG I don't have fear or anything but it's there. When I walk my feet will suddenly bend for no absolute reason just by the sole reason of walking and I have a thought that if I don't watch how I walk I might pull off a Stephen Hawking moment
This makes so much sense to me! I have hypermobility and anxiety and whenever I go to the doctors I have a very high resting pulse rate! I’m glad to know there is a reason behind it x
The reason is ligaments laxity causes your cervical spine bone ,specifically c1 &c2 to compress your adjuscent nerves and blood vessels like VEGAS nerve ,carotid artery snd vain ,automatically ur sypathetic nervous system fires by saying fight or flight! If this compression continues or worsen the vegus nerve degenerate and interapt the communication between the brain and the body causing DYSAUTONOMIA witch is the root cause of most of chronic diseases, leaky gut, inflammation, gastrointestinal problems, asthma, copd chest pain ,heart arrhythmia, palpitations, vocal problems taste ,smell ,vision, hearings problems, migrain ,stroke psychological and psychiatric problems, extrimity disorder ,hormonal inbalace ,sexual, fertility problems etc .......
@@mohammedabdulkadir2004 CCI is not the cause of most chronic illnesses, and although it is more prevalent among hypermobility disorders, there are many different factors that can play a role in the same symptoms developing. Even neck pain can be caused by something other than CCI in these conditions, such as lack of proper blood flow in the neck and head area or Chiari malformation, which are both more common than CCI to my knowledge. It’s really hard to identify what’s wrong sometimes because a lot of these symptoms are sooo generalized and broad (such as headaches, pain, GI issues, dyautonomia) and can be explained by so many different things. Sometimes, it even ends up being a combination of multiple different factors. I still haven’t been screened for chiari or CCI, so I still can’t rule them out for certain for myself🥲
I’ve been working on researching the nutritional side. I have hEDS and it really affects my life. To anyone reading this, get your Vitamin D and B12 levels tested. Also, take the methylated form of B9. Magnesium and K2 are other important ones to look into.
Are you in the Cusack protocol group yet? Lots of supplements there for EDS. Also I have a question maybe you could answer? Methylated B vitamins make me feel so tired which is the opposite of what I want. I’ve had to take Seeking Health’s methyl-free. Mind you my MTHFR test said I didn’t have it.
This makes so much sense! I have EDS, but I have to say that the anxiety I suffer from is even worse than the bodily pain. I am such an emotional person, and I do get panic attacks quite often. Learning how to breathe properly has helped luckily. But I do freak out quite a lot haha
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My 13 year old daughter was just diagnosed as having HEDS. We are so grateful for finally be getting answers. Thank you so much for this video. She no longer feels alone.
I had no idea. I have hypermobility and anxiety (plus dealt with depression for a while). Never thought they could be connected. Thank you for this research
This is a lightbulb moment for me. I have hyper mobility and am going through an awful time with anxiety. This describes exactly how I feel. I feel like I’ve possibly found an answer.
I have joint hypermobility syndrome including chronic fatigue and malaise. I struggle a lot with anxiety which mostly revolves around fear of having to do more things, because of how horrible needing to do things is due to feeling so ill and exhausted. Like, if my dog throws up I panic that he'll be sick all night or need to be taken to the vet. Everyday problems seem much bigger now I'm so unwell.
This is very interesting and backs up some other research articles I've read about the links between joint hyper mobility and anxiety levels. I am currently working alongside physios as I also score highly on joint hyper mobility (9 on the Beighton score) and I'm suffering with a lot of on-going lower back and leg pain. I've previously experienced panic attacks and would say I generally run on nervous energy and the pain I'm experiencing is making this worse. I've also found that when I'm stood up for an hour+ that I go very dizzy and often pass out. The doctor I saw yesterday dismissed the idea that my hyper-mobility would link all these factors together. He said that being hyper-mobile is just a physical attribute similar to someone being very tall. However, hearing research such as Dr Eccles, makes me feel like there is more going on and that perhaps my poor circulation, passing out when stood up & general anxiety levels could all be linked to my hyper-mobility. I was really hoping my doctor would take it a bit more seriously and look into this but he seemed to brush it off and got very annoyed at the mention of the word 'syndrome'.
That’s dizzy, passing out thing is POTS. It’s often part of Elhers Danos syndrome (EDs). They call us who have it Zebras because Doctors are taught to expect horses when they hear hoofs - but with our condition it’s unexpected- like hearing hooves and suddenly it’s Zebras not horses 🤷🏼♀️I hope that made sense. Anyways- Your doctor is wrong. Being super flexible is only possible if your connective tissues are too loose. It’s what Ehlers Danos is - there’s a mutation or malfunction of the genes that make collagen basically- or that control what collagen does perhaps in our bodies. It’s like saying someone who is 8 feet tall is just tall- No they have something wrong with their pituitary gland- it’s not normal to be 8 feet tall and so they test and deal with the cause. It’s also not normal to be as bendy as we are… sorry you’re going thru this. I’m going to see a rheumatologist soon hopefully to get a formal diagnosis- none of my other doctors have ever addressed EDS. From my understanding rheumatologists are the ones who should know about it.
i loath when doctors do that shit. and most of the time at that level it's not like they are continuously doing research like this Doctor here. I have realized that we have to be somewhat of researchers our selves and listen a little more to our intuition. I'm not sure if i have hypermobility but i have somethings going on with the musculoskeletal system and I try to bring up my insights and its like its over looked. smh
The link between joint hypermobility and anxiety is Mast Cell Activation Syndrome (MCAS). MCAS is linked to diseases such as. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Postural orthostatic tachycardia syndrome (POTS) Hypermobil Ehlers-Danlos Syndrome (hEDS) Post-traumatic stress disorder (PTSD) Gulf War Illness (GWI) Post-Lyme syndrome Irritable bowel syndrome (IBS) Fibromyalgia syndrome (FMS) Multiple chemical sensitivity syndrome (MCSS) Chronic inflammatory response syndrome (CIRS) Interstitial cystitis/bladder pain syndrome (IC/BPS) Attention-Deficit / Hyperactivity Disorder (ADHD) Autism spectrum disorder (ASD) Scientific articles NCBI Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) Mast Cells, Stress, Fear and Autism Spectrum Disorder Mast cell activation and autism Mast cell activation symptoms are prevalent in Long-COVID Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome Mast Cells and Irritable Bowel Syndrome (IBS) Mast Cell Activation Syndrome: An Alert to Psychiatrists
Wow the more I educate myself the more I learn. Lol, I started having an anxiety attack as you spoke, realised what was happening, chillaxed a while. Omfg just another thing about my life that now makes sense.
How many of the “anxiety” group actually had undiagnosed autism or ADHD? I have joint hypermobility and was misdiagnosed with generalised anxiety for a decade. Finally diagnosed with autism in 2021. There is a direct relationship with hypermobility disorders and neurological spectrum conditions, including autism, ADHD, epilepsy and others. There is very recent research out about this which hypothesises that is is all immune system and collagen related.
This is really nice, I have Joint hyper mobility syndrome, where besides being super flexy I'm also in constant pain no matter the time of day. I'm constantly sub-laxing, almost dislocating but not quite. I have PTSD, depression, anxiety, so having this makes my health feel even worse then it is.
Looking up some exercises for my hypermobile elbows, found this. Panic/anxiety disorder here. The nervous system has such an impact on your health without even realizing.
Yes this was spot on. Spent my whole life suffering as I didn’t have a clue and had a lot of mental health diagnosis along with major health issues. At 33 I was diagnosed with POTS hEDS and now suspected MCAS. Please if you are suffering in this way, check out these conditions and your GP if you feel this is you. It can be a bit of a battle in itself because most drs are ignorant to these and many related conditions. But things have come a long way since then and there is a world of support out there. Much love and thanks for this video. God bless
Oh my god it all makes so much sense!!!! I can’t believe I just now stumbled upon this. I’m definitely bringing up these connections with my doctors!!!
No way! I have fibromyalgia, hEDS, POTS, anxiety, AND depression (among other things)! I thought it was crazy weird to have all of them but being connected definitely makes sense.
As someone who just came back from their first aerials class and told I have hyper mobility, and was diagnosed with social anxiety at 9, this makes soo much sense. I nevef would have thought the two could be linked. This is mind blowing.
Fascinating. I have joint hypermobility syndrome and anxiety and my young daughter does too. Thank you so much for your research and this video. It is very reassuring to hear. Fingers crossed for further research!
Y’all I have never felt more seen. I have an appointment soon to see if this is truly what’s caused so much pain in my past, I’m so beyond hopeful now.
This popped up as a suggestion and I’m really glad I’ve watched it as my 9 year old daughter suffers with anxiety which has been pretty bad lately. She is also hypermobile. I had no idea the two could be linked. Will definitely mention her hypermobility to the doctor next time we go.
No way this is the most accurate thing ever and i have never connected the two. I am sat here with really sore knees cause my legs are bending backwards and I am so so anxious and im thinking my body is breaking down. Also thinking the hyper aware interoception of every bodily sensation just adds to it as I am hyper aware if my hyper mobility and its impact, temperature change, breathing, tingling, a lump in my throat. Atm i cant sneeze. Then its like health anxiety to the max which i know is just a way of my general anxiety trying to disguise itself as a physical illness. Shit this is revelationary! I am on propanalol and I do find it v useful! This is incredible!!!! Thank you for your brain work and dedication to helping us! 👏
Getting more in medical realms to be more open to learn about hypermobility and EDS would be very good starting point. Because seeking medical help for diagnosis of such conditions is tough especially if Doctors don't believe it exists or don't know anything about such conditions.
I wanted to write this. I've been diagnosed with joint hypermobility, and I've been experiencing chronic pain for about 3 months now. Before that, I didn't see being flexible as a problem. I only had neck and back pain, which I didn't think was a big deal because I assumed everyone had it for about 10 years. Last month, I had to go to the doctor because my knees were hurting so much that walking was very difficult. My patella is worn out and doesn't stay in place. I'm 30 years old. I want to say that anxiety has increased so much in recent years that I can no longer drive a car. I used to be able to do it. I'm constantly afraid that danger could strike at any moment and that I might need more stuff. I've started traveling with a few extra bags. I always imagine the worst-case scenario. Living like this is tough. I'm sorry for everyone, and I hope that a new supplement, herb, medication, or treatment is discovered for us.
interesting i have eds and pots as does my son who is also autistic we both suffer chronic pain sadly the medical profession still treat us like we are crazy even though its been genetically proven you get accused of being a hypochondriac it took 6 hours having a heart attack for them to believe i was in fact having a heart attack thus causing long term damage more doctors need educating on these conditions
These conditions clearly cluster, the data is showing it more and more over the years. I also have EDS, POTS, & I’m autistic. I’ve had chronic pain for the vast majority of my life & most doctors tend to treat you like you’re lying or out of your mind when you have these issues. It’s absolutely maddening at times. I’ve learned to essentially treat myself because doctors haven’t been of any hell to me.
The instability of the joints sending constant alarms to the brain that something is wrong and joints are about to fly. Therefore, stabilizing the joints by strengthening the supporting muscles would seem like step 1. Here I have been doing extensive yoga which is increasing mobility. Not good medicine then. This is amazing work and connecting these dots is mind-blowing.
Yes! More of this. I know my health issues are related to my emotional state/issues. This gives me hope with therapy and healing of my whole self I can heal my physical body as well
Thank you so much, this makes so much sense. I was recently diagnosed with Ehlers-Danlos type 3 hyper mobile. When I was woken up for school by my mom back in the day I would go into full panic attacks- I mean I was hysterical and terrified even screaming once sitting/standing up after being woken up. And I did not have any “previous trauma” to cause this. The whole time the reason has been medical, and finally after 15 years now I know why. Thank you❤️
I have only just become aware of my hypermobile status. Suffered with anxiety and depression since the age of 16. Diagnosed as ADHD and have been medicated for 7 years now and nothing is helping the depression.
I literally just learnt about the link between hyper mobility and anxiety today after dislocating my shoulder and speaking to the fracture clinic, my legs bend backwards at least 20 degrees and have suffered with anxiety pretty much all my life…answered a lot of internal questions finding out about this.
hEDS & severe anxiety disorder here. Gave up on psych meds due to paradoxical reactions. Also gave up on docs for hEDS & arthritis b/c they don’t know what EDS is & assume it’s psychosomatic. Thank u for doing research
Thank you so much for your research and the excellent presentation of the results. As someone suffering from hypermobility, anxiety and unexplained tachycardia this is extremely valuable knowledge and I hope that your research will lead to progress in personalised medications for all sufferers.
I have anxiety/social anxiety and I’ve recently been going to physiotherapy for Hypermobile joints, my back shoulders and pelvis are messed up. This video makes sense and is actually quite informative. 👍🏻
Thank you so much for doing this research. Our bodies give us so much anxiety. The unknowns are constant. We only have one body and it has always failed us and never functioned properly. We may never know normal and it feels so chaotic.
This is extremely interesting and insightful. It’s always helpful to learn you are not the only person with such symptoms. I will be very interested to know what future treatments results from this research. I too however have reservations about the medications suggestion but still remain hopeful that a range of alternative treatments can be provided. On a more positive note I wonder what advantages people who are hyper mobile may have as the condition clearly has implications for the brain as well. This is really exciting research I hope that it continues long into the future and is given the funding and respect it deserves.
Thank you so much for your work! I am an Ehlers Danlos patient and when I get back to college (medical leave 😅) I want to study psychology and go into a similar practice focus. Very cool to learn about myself in this way. 💙
Wow! I’m 48 with history of ‘sprains’ some very severe, anxiety, and my heart rate may also fit. As a child I was extremely flexible and would sit on the floor in an ‘odd’ way, I did get sprains but they didn’t affect me the way they do as an adult. Injuries to my ankle, elbow scaphoid, lower back, hip, and knee persist with pain. Examination often results in a comment ‘joint still flexes well’. I’ve had surgery on ankle twice following grade 3 sprains. I’m on medication for chronic pain and also anxiety/depression. Everything has always been dealt with in a singular way, this video really makes me think their linked.
I would love a study by you that researches the relationship between vagus instability due to hyper mobility /connective tissue and the impact on anxiety. It has historically believed the conditions such as developmental chemical sensitivity, ME/CFS, POTS starts with an anxious mind vs seeking to see if the loop foundation is a vagus nerve being stimulated or not appropriately due to hypermobility. or connective tissue. Identifying the origins of the loop caused would be critical for appropriate treatment.
I have JHM. Have ADHD, anxiety, IBS, Urinary retention, insomnia. Gastritis, and pain in very joint in my body. I've had meniscus surgery, now I have carpal tunnel and tendonitis on my elbows. The anxiety is definitely the worse part of this syndrome. Tha k you for this video.
I bet there is direct link between people with hypermobile body with people with adhd and anxiety - if to look through the perspective of gatherers or hunters vs agriculturers - we can see first may have need to be designed like that to be more attentive to detect animals, changes of weather , enemies in the night
I have very strong heart palpitations during even certain activities that are considered normal. Like asking a question to my teacher in front of the class, I cant pee in a public restroom because of the same reasons. I have other health issues, but hypermobility and muscle laxity are contributing to my anxiety. Although I'm happy that I understand the reason behind my anxiety, I'm yet to find a permanent cure.
It’s like sometimes I can’t even trust my own body. If i don’t pivot the right way my hip feels awful. Sometimes it doesn’t happen but I get this rush of anxiety anyway.
I have eds hypermobility and was diagnosed with generalized anxiety disorder at 11 but wasn’t diagnosed with Eds and POTS until 32. I can’t believe there’s scientific evidence. I still need to get more treatment to deal with the pain. I am happy for any advice!
brilliant. Before i was diagnsed with Joint hypermobility Syndrome i was prescribed Propanolol beta blockers for anxiety and they work. Interestingly, mindfulness techniques do not as they are not addressing the overpowering stress responce caused by the activated amygdala, flooding my body with stress-related hormones. It's so good to hear a professional address this link
Amazing video , I was diagnosed with hypermobility by my chiropractor yesterday , As I have been having pains in my upper back on left side and in my left arm and under my armpit going into my chest but that’s more of a dull ache , Iv had 100s of tests on my heart and nothing found so this diagnosis explains a lot , I have also had horrendous anxiety and health anxiety for years since I was 11 I’m 31 now. I have 3 beautiful children and amazing fiancée and family and I’m always petrified of dying and leaving them. But amazing research your doing and will be keeping a close eye on this.
Thank-you for doing this research (as a hypermobile person with anxiety disorder) and I hope you get all the funding (as a professor/researcher). Great work!!
I've been on a beta blocker for a few years now (I have continuous PVCs) and it hasn't stopped my anxiety from developing into panic attacks. I'm on two medications for that now...
My little sister has a clicking in her jaw because of hyper mobility. She has also autism spectrum, which makes it hard for dealing with anxiety and frustrations. Very interesting to see that there is a link
This is most interesting and have hyper mobility and fibromyalgia with constant pain which is often severe. My rheumatologist told me there is a relationship between the two.
Crazy how the body and mind connection plays out in different scenarios. I read today that people who suffer from hay fever are also more often anxiety sufferers as well.
I really found this video helpful, as I have hypermobility, fibromyalgia, GAD, EDD, Autism and a couple other things. And something called complex trauma, I've always said physical and mental health have always been interlinked. So thank you for this video. 😊
I am hypermobile and have anxiety. In current times there is a very thin line between being anxious and having anxiety all the time. Growing up I was quite an anxious kid but somewhere down the line I have realised most of the anxiety is not because of being hypermobile. Blaming ones anxiety levels on hypermobility is like saying "i met with an accident because I was crossing the road where there were cars" While modern medicine is helping us deal with anxiety it is not telling us that it is "home grown" and we accept , deal or resolve our home grown (in the head) issues. One has to understand that every aspect of our lives from childhood to the moment you are reading this is programming you for your future thought process. One can be born with hypermobility but no one is born with anxiety ? Until ofcource the seed has been sown during childhood which could be various things and by the time we grow up to understand whats happening and you have a medical name associated with it and life is not normal any more unless YOU do something about it.
i have hypermobile syndrome, it is so easily to get me nervous in my daily life, i have no idea with it, i also have anxiety too. i couldnt slp well in night. I am much more lower energy compare to my friend same age with me. this make sense, hope doctor on duty can watch this video and help more ppl like me
I was personally waiting for the issue os PROPRIOCEPTION to come up! A sense pf vague imbalance and unsureness of body position can do a lot to cause general anxiety, no?
omg now everything makes sense today my doctor said i have hypermobility i was always unsually anxious in situation i don't need to be anxious and also i thought other people r maybe feel this way!! thanks to doctor and i would also really like to know how to treat this condition!!
I have been hyper-mobile and suffered from anxiety most of my life. Five years ago my pancreas failed. It came with the most horrific anxiety attacks I have ever experienced. It woke me up out of dead sleep even with xanax. Year and a half later I was finally diagnosed with pancreatic insufficiency and was given zenpep. All my anxiety is gone. It turns out I never needed antidepressants.... I was misdiagnosed. I have EDS. Anxiety and hyper-mobility are both just symptoms. I still dislocate hips, ribs... and it's painful and that causes situational anxiety. I live in fear of pain. I am hyper aware of my body because of it.
There is a definite link between the two, however its important not to overlook the obvious root dysfunction in the adrenal cortex. Examining the chronic "see saw" effect between the cortisol and estrogen is key. The constant slamming and bumping of the two between various episodes of fight and flight have a clear and distinct affect on the collagen production as well as connective tissue and this is where we can see hypermobility and even EDS come into play. Pregnant mothers with lifelong environmental stressors and trauma can affect not only her offspring but future grandchildren since the eggs are being formed during gestational periods in female fetuses. Need to look at the family history of chronic trauma and collagen mutations. Anxiety is simply a very tiny speck of the whole puzzle. Thank you for connecting the dots. Keep up the great research. ❤
I am very Hypermobile, my Knee went backwards (Hyper extension) when I was 17, still dont trust the joint fully, just playing a bit of friendly football, I was told by a nurse that "It can't happen", i know it can, because it did, and it was very painful, was never very good at sport, especially running i would always do better at hiking or just using a cross trainer, lower impact stuff, balancing on one leg was always difficult, joints just sway. I have OCD (anxiety disorder), though its less of an issue these days, mainly due to CBT, glad someone has made a link between the two issues, I never did.
I have both hypermobility and anxiety, and what helps me most is not beta blockers (which just make POTS worse by lowering blood pressure, which is the last thing we need), but anything that raises GABA in the brain.
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Anxiety could be a response to hyper mobility speaking of the reflexes, proprioception( try to walk on the unstable, painful joints day after day; think about your future and see no light,etc) Each case needs a thorough investigation and an individual approach. For people with EDS anxiety,most likely, would be a primary priority dysfunction ( a mother's pregnancy, the stress level during that period of time). One thing is for sure- the psychosomatic factors must be considered during a patient's health evaluation.
Hi- do you any updates on this topic? Thank you
Hi Thaddeus,
You can keep up to date with how Jessica's work is progressing directly through her Twitter account @BendyBrain
twitter.com/BendyBrain She also includes shout-outs to other relevant research and people working in this area, so it's a good one to check out for more information.
You can also see more recent talks and publications from Dr Eccles through the her page on the Brighton and Sussex Medical School website: www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx - such as this recent 30 minute talk vimeo.com/346710898
@@acmedsci I have hypermobile knees how do I strengthen my hypermobile knees
@@camybesterwitch6587 See a physiotherapist. If you experience joint instability and pain from hypermobility it is important to strengthen the surrounding muscles. I have the same issue with my shoulder (subluxation and pain) and have been referred by my doctor for physiotherapy. Hope this helps!
@@elliecain3761 thank you
@@elliecain3761 If you have EDS you have to be extremely careful because physical therapy can actually make it much worse long term. make sure whoever you go to is extremely familiar with hypermobility
I had to hit pause, sit up, yell 'what?!!?' This is a life-changing discovery. As a person with hypermobility, anxiety, and inexplicable tachycardia I thank you for this!
Took the words out of my mouth 😢❤
I am these three things as well. wild
Hypermobile here, with autism and adhd. For me I suspect a lot of the hypermobile anxiety/fight/flight component comes from the fact that our nervous systems are exhausted because it's constantly getting our muscles to do the supporting/stabilizing work that's supposed to be done by our joints. Even when laying down or sleeping our bodies can't fully relax or our skeletons would dislocate all night long, and that 24/7 muscle activation and work exhausts us, so we produce excess adrenaline during the day just to stay awake... which further tenses our muscles and compromises our deep sleep, and round and round we go for years and decades. So yeah, anxious and stressed in every possible sense.
Hello Gergory,
Could i ask you have you were diagnosed with hypermobility? I suspect I might have it aswell as autism and adhd. I struggle badly walking all day at work and I just resigned because It was too tough.
@@performa1 I'm sorry to hear of your struggles. I was initially assessed by a sports physiotherapist, and his assessment was later confirmed by an orthopedist after several visits, with the help of an MRI and extensive medical history. If you suspect you're hypermobile, you probably are, but either way I'm not sure it matters because the most helpful thing you can do is physical therapy, strength training, and postural training. Having strong muscles that know when and how to work together, and knowing how to move in ways that are safe and efficient... this is the only sustainable way out of the cycles of pain and fatigue we get trapped in. I wish you all the best!
My thoughts, precisel, Gregory; my thoughts precisely. That, and, "Ouch."
hi same here! i also thought about these things as well! another thought I had to add to this is also the feeling of our joints being loose and unstable can also potentially make us feel anxious because of that instability and looseness. I phrase it sort of like "it feels like my body is constantly about to fall apart" and anxiety also feels like things are falling apart/impending that they are going to fall apart but in a psychological way and I think there is a strong correlation between that as well. the physical instability of being hyper mobile in turn conjuring the anxiety.
That is very well said ‼️
I want to cry. This makes SO MUCH sense for me and my life experience. My mind is blown.
Same! my poor girls, I’m mortified 😕
I literally said "HOLY CRAP" when she started talking about postural tachycardia syndrome.
Look into the system called “functional patterns” it’ll change your life
Same here. It's like the puzzle just slid together and locked in place. 🤯
Same!
This is me. I fainted all the time as a child, I am double-jointed, which led me to gymnastics as a child. I am currently in therapy to deal with a lifetime of dissociation, from childhood emotional trauma. And, currently, I am experiencing autoimmune issues, likely related to too much cortisol production over my lifetime. I feel like this makes my inability to deal with my emotional trauma, make more sense, as well as the reaction of my brain to self numb and shut down. I relate to everyone on here, I feel so seen. Keep posting your findings, and thank you for your research.
And some people say it's all in our head.. thank you so much for this
@wulfgar3000 he meant like they made it up or like its just in there imagination
wulfgar3000
Are you serious dude? She meant that people call those with POTS “anxious” or label them with anxiety even when they are calm. You can’t stop your ANS being dysfunctional.
Apparently we can albeit lot of time TMS drs do this and neural tetraing
I mean anxiety is in your head
Oh the things that I’ve had said to me and the admiration now for how much my parents protected me and cared for me.
I have hypermobility, fibromyalgia, anxiety, and depression. I've always, ALWAYS thought everything was connected. Thank you for doing this research. I would love to see options for natural healing rather than medications...
if you are on other social media an excellent book is by claire smith its has SO much useful info in there, hypermobility is so so much more than just being bendy. DO checkout HMSA charity on twitter. I learned so much from there.
I have hyperlaxity joint syndrome and my mom has fibromyalgia
Amanda Moore congratulations nobody cares bitch
I have a hypermobile back and have suffered from anxiety and depression, and was diagnosed with OCD about 10 years ago. My suggestion for you is a high-quality, therapeutic magnesium supplement, preferably powdered. I am not a dr or naturopath but I take one (originally prescribed by a naturopath) and it has made an enormous difference to my quality of life.
sxfghsdgf asdfgadsf what is this supplement and where can I get some please?
I cried watching this from beginning to end. You have no idea how much it means to be validated by this kind of research. Thank you so much for all your work.
Kinda feeling this right now.
🥰♥
I'm only a teen. I went to a rheumatologist and apparently all my problems that I have had for so many years were symptoms of hEDS except for the twitching of my muscles. I had so many symptoms like me being flexible, having anxiety and depression for no reason at all, being so hungry and then not being able to eat after 2 bites because I had the sensation of being hungry, being light sensitive, scarring easily, my knees hurting a lot, joints feeling loose, heart beating really fast when I stand up or in the morning, craving salted popcorn and apparently I had a blue tinge in the white part of my eyes. My mom told me that she had noticed they were slightly blue but thought nothing of it. I nearly cried today because I finally knew what was happening. I hope that rheumatologist and any understanding rheumatologist out there wins the lottery at this point
You can have Mast Cell Activation Syndrome (MCAS). This is a newly discovered and very common disease that is still unknown to almost all doctors.
MCAS is linked to diseases such as
Postural orthostatic tachycardia syndrome (POTS)
Hypermobil Ehlers-Danlos Syndrome (hEDS)
Post-traumatic stress disorder (PTSD)
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS
Post-Lyme syndrome
Irritable bowel syndrome (IBS)
Fibromyalgia syndrome (FMS)
Attention-Deficit / Hyperactivity Disorder (ADHD)
Autism spectrum disorder (ASD)
Scientific articles NCBI
Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases
The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome
Mast cell activation symptoms are prevalent in Long-COVID
Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome
Mast Cells and Irritable Bowel Syndrome (IBS)
Mast Cell Activation Syndrome: An Alert to Psychiatrists
I am Hypermobile Ehlers Danlos. I never thought of myself as predisposed to anxiety until I nearly bled to death and came down with full-blown POTS. An entire lifestyle of limbic retraining (breath work, walking, yoga, self-hypnosis, etc), fasting, and encouraging acetylcholine have helped me very much.
Did it help with muscle pain I am hypobile and OCD from birth
How do you encourage acetylcholine? ❤
I’ve got HM and anxiety too. It was like everything I did caused a panic within me. This lady is a genius ❤️ you are not alone.
We're really glad that you find this helpful - we love sharing science that can impact people's lives direct from our researchers.
This is great iam hypermobile and have anxiety this was very informative thankyou
You're very welcome! Supporting early career biomedical researchers like Dr Eccles and helping people benefit from knowing about their work is a key part of what the Academy of Medical Sciences is here for.
Same
Chloe Webster shame didn’t know it was related until I came across this
mandar kumthekar
She says in the video
I have hypermobile and dwarfism
I discovered my severe anxiety, depression, IBS and hypermobility are connected few years back. I'm yet to find a regime that would work for me. I wish more medical professionals connected the dots and treated us accordingly
For me the anxiety comes from the fear of doing a physical activity that will lead to another dislocation that will not pop back in place without medical treatment. It's that I don't want to go back to hospital and maybe have to face surgery
Spot on! Exactly the same for me, it’s ruined my boxing career because of the fear of my shoulder popping out.
OMGG I don't have fear or anything but it's there. When I walk my feet will suddenly bend for no absolute reason just by the sole reason of walking and I have a thought that if I don't watch how I walk I might pull off a Stephen Hawking moment
Same here
This makes so much sense to me! I have hypermobility and anxiety and whenever I go to the doctors I have a very high resting pulse rate! I’m glad to know there is a reason behind it x
The reason is ligaments laxity causes your cervical spine bone ,specifically c1 &c2 to compress your adjuscent nerves and blood vessels like VEGAS nerve ,carotid artery snd vain ,automatically ur sypathetic nervous system fires by saying fight or flight! If this compression continues or worsen the vegus nerve degenerate and interapt the communication between the brain and the body causing DYSAUTONOMIA witch is the root cause of most of chronic diseases, leaky gut, inflammation, gastrointestinal problems, asthma, copd chest pain ,heart arrhythmia, palpitations, vocal problems taste ,smell ,vision, hearings problems, migrain ,stroke psychological and psychiatric problems, extrimity disorder ,hormonal inbalace ,sexual, fertility problems etc .......
@@mohammedabdulkadir2004 CCI is not the cause of most chronic illnesses, and although it is more prevalent among hypermobility disorders, there are many different factors that can play a role in the same symptoms developing. Even neck pain can be caused by something other than CCI in these conditions, such as lack of proper blood flow in the neck and head area or Chiari malformation, which are both more common than CCI to my knowledge. It’s really hard to identify what’s wrong sometimes because a lot of these symptoms are sooo generalized and broad (such as headaches, pain, GI issues, dyautonomia) and can be explained by so many different things. Sometimes, it even ends up being a combination of multiple different factors. I still haven’t been screened for chiari or CCI, so I still can’t rule them out for certain for myself🥲
I’ve been working on researching the nutritional side. I have hEDS and it really affects my life. To anyone reading this, get your Vitamin D and B12 levels tested. Also, take the methylated form of B9. Magnesium and K2 are other important ones to look into.
Are you in the Cusack protocol group yet? Lots of supplements there for EDS.
Also I have a question maybe you could answer? Methylated B vitamins make me feel so tired which is the opposite of what I want. I’ve had to take Seeking Health’s methyl-free. Mind you my MTHFR test said I didn’t have it.
This makes so much sense! I have EDS, but I have to say that the anxiety I suffer from is even worse than the bodily pain. I am such an emotional person, and I do get panic attacks quite often. Learning how to breathe properly has helped luckily. But I do freak out quite a lot haha
herbs from Doctor Ani John on UA-cam is the best solution for all kind of health issues contact him now for help he cured mine completely within 12days with his natural herbs 🌿..
As a person with both Ehlers Danlos syndrome and C-PTSD I loved this!
I have hEDS and Orthostatic Intolerance and have struggled a lot with my mental health. Thank you for researching this!! Very interesting
My 13 year old daughter was just diagnosed as having HEDS. We are so grateful for finally be getting answers. Thank you so much for this video. She no longer feels alone.
I had no idea. I have hypermobility and anxiety (plus dealt with depression for a while). Never thought they could be connected. Thank you for this research
This is a lightbulb moment for me. I have hyper mobility and am going through an awful time with anxiety. This describes exactly how I feel. I feel like I’ve possibly found an answer.
Very interesting, I score highly for JHS and suffered anxiety even as a young child, my daughter the same, all intensified with periods and menopause!
I have joint hypermobility syndrome including chronic fatigue and malaise. I struggle a lot with anxiety which mostly revolves around fear of having to do more things, because of how horrible needing to do things is due to feeling so ill and exhausted. Like, if my dog throws up I panic that he'll be sick all night or need to be taken to the vet. Everyday problems seem much bigger now I'm so unwell.
Me to with hypomobilty we are prone to sycosomatic pain
How are you now
This is very interesting and backs up some other research articles I've read about the links between joint hyper mobility and anxiety levels. I am currently working alongside physios as I also score highly on joint hyper mobility (9 on the Beighton score) and I'm suffering with a lot of on-going lower back and leg pain. I've previously experienced panic attacks and would say I generally run on nervous energy and the pain I'm experiencing is making this worse. I've also found that when I'm stood up for an hour+ that I go very dizzy and often pass out. The doctor I saw yesterday dismissed the idea that my hyper-mobility would link all these factors together. He said that being hyper-mobile is just a physical attribute similar to someone being very tall. However, hearing research such as Dr Eccles, makes me feel like there is more going on and that perhaps my poor circulation, passing out when stood up & general anxiety levels could all be linked to my hyper-mobility. I was really hoping my doctor would take it a bit more seriously and look into this but he seemed to brush it off and got very annoyed at the mention of the word 'syndrome'.
That’s dizzy, passing out thing is POTS. It’s often part of Elhers Danos syndrome (EDs). They call us who have it Zebras because Doctors are taught to expect horses when they hear hoofs - but with our condition it’s unexpected- like hearing hooves and suddenly it’s Zebras not horses 🤷🏼♀️I hope that made sense. Anyways- Your doctor is wrong. Being super flexible is only possible if your connective tissues are too loose. It’s what Ehlers Danos is - there’s a mutation or malfunction of the genes that make collagen basically- or that control what collagen does perhaps in our bodies. It’s like saying someone who is 8 feet tall is just tall- No they have something wrong with their pituitary gland- it’s not normal to be 8 feet tall and so they test and deal with the cause. It’s also not normal to be as bendy as we are… sorry you’re going thru this. I’m going to see a rheumatologist soon hopefully to get a formal diagnosis- none of my other doctors have ever addressed EDS. From my understanding rheumatologists are the ones who should know about it.
You need a new doctor.
i loath when doctors do that shit. and most of the time at that level it's not like they are continuously doing research like this Doctor here. I have realized that we have to be somewhat of researchers our selves and listen a little more to our intuition. I'm not sure if i have hypermobility but i have somethings going on with the musculoskeletal system and I try to bring up my insights and its like its over looked. smh
I've got hypomobilty OCD and muscle pain I had pots got over that gone into muscle pain had IBS as child mum has ms same
The link between joint hypermobility and anxiety is Mast Cell Activation Syndrome (MCAS).
MCAS is linked to diseases such as.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Postural orthostatic tachycardia syndrome (POTS)
Hypermobil Ehlers-Danlos Syndrome (hEDS)
Post-traumatic stress disorder (PTSD)
Gulf War Illness (GWI)
Post-Lyme syndrome
Irritable bowel syndrome (IBS)
Fibromyalgia syndrome (FMS)
Multiple chemical sensitivity syndrome (MCSS)
Chronic inflammatory response syndrome (CIRS)
Interstitial cystitis/bladder pain syndrome (IC/BPS)
Attention-Deficit / Hyperactivity Disorder (ADHD)
Autism spectrum disorder (ASD)
Scientific articles NCBI
Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases
The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome
Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association
Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD)
Mast Cells, Stress, Fear and Autism Spectrum Disorder
Mast cell activation and autism
Mast cell activation symptoms are prevalent in Long-COVID
Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome
Mast Cells and Irritable Bowel Syndrome (IBS)
Mast Cell Activation Syndrome: An Alert to Psychiatrists
Wow the more I educate myself the more I learn. Lol, I started having an anxiety attack as you spoke, realised what was happening, chillaxed a while. Omfg just another thing about my life that now makes sense.
How many of the “anxiety” group actually had undiagnosed autism or ADHD? I have joint hypermobility and was misdiagnosed with generalised anxiety for a decade. Finally diagnosed with autism in 2021. There is a direct relationship with hypermobility disorders and neurological spectrum conditions, including autism, ADHD, epilepsy and others. There is very recent research out about this which hypothesises that is is all immune system and collagen related.
This is really nice, I have Joint hyper mobility syndrome, where besides being super flexy I'm also in constant pain no matter the time of day. I'm constantly sub-laxing, almost dislocating but not quite. I have PTSD, depression, anxiety, so having this makes my health feel even worse then it is.
Looking up some exercises for my hypermobile elbows, found this. Panic/anxiety disorder here. The nervous system has such an impact on your health without even realizing.
As one of the affected population, thank you very much for doing and sharing this research.
Yes this was spot on. Spent my whole life suffering as I didn’t have a clue and had a lot of mental health diagnosis along with major health issues. At 33 I was diagnosed with POTS hEDS and now suspected MCAS. Please if you are suffering in this way, check out these conditions and your GP if you feel this is you. It can be a bit of a battle in itself because most drs are ignorant to these and many related conditions. But things have come a long way since then and there is a world of support out there. Much love and thanks for this video. God bless
Oh my god it all makes so much sense!!!! I can’t believe I just now stumbled upon this. I’m definitely bringing up these connections with my doctors!!!
No way! I have fibromyalgia, hEDS, POTS, anxiety, AND depression (among other things)! I thought it was crazy weird to have all of them but being connected definitely makes sense.
Comorbid
As someone who just came back from their first aerials class and told I have hyper mobility, and was diagnosed with social anxiety at 9, this makes soo much sense. I nevef would have thought the two could be linked. This is mind blowing.
Fascinating. I have joint hypermobility syndrome and anxiety and my young daughter does too. Thank you so much for your research and this video. It is very reassuring to hear. Fingers crossed for further research!
Y’all I have never felt more seen. I have an appointment soon to see if this is truly what’s caused so much pain in my past, I’m so beyond hopeful now.
This popped up as a suggestion and I’m really glad I’ve watched it as my 9 year old daughter suffers with anxiety which has been pretty bad lately. She is also hypermobile. I had no idea the two could be linked. Will definitely mention her hypermobility to the doctor next time we go.
Look up ehlers danlos syndrome also
No way this is the most accurate thing ever and i have never connected the two. I am sat here with really sore knees cause my legs are bending backwards and I am so so anxious and im thinking my body is breaking down. Also thinking the hyper aware interoception of every bodily sensation just adds to it as I am hyper aware if my hyper mobility and its impact, temperature change, breathing, tingling, a lump in my throat. Atm i cant sneeze. Then its like health anxiety to the max which i know is just a way of my general anxiety trying to disguise itself as a physical illness. Shit this is revelationary! I am on propanalol and I do find it v useful!
This is incredible!!!! Thank you for your brain work and dedication to helping us! 👏
Getting more in medical realms to be more open to learn about hypermobility and EDS would be very good starting point. Because seeking medical help for diagnosis of such conditions is tough especially if Doctors don't believe it exists or don't know anything about such conditions.
I wanted to write this. I've been diagnosed with joint hypermobility, and I've been experiencing chronic pain for about 3 months now. Before that, I didn't see being flexible as a problem. I only had neck and back pain, which I didn't think was a big deal because I assumed everyone had it for about 10 years. Last month, I had to go to the doctor because my knees were hurting so much that walking was very difficult. My patella is worn out and doesn't stay in place. I'm 30 years old. I want to say that anxiety has increased so much in recent years that I can no longer drive a car. I used to be able to do it. I'm constantly afraid that danger could strike at any moment and that I might need more stuff. I've started traveling with a few extra bags. I always imagine the worst-case scenario. Living like this is tough. I'm sorry for everyone, and I hope that a new supplement, herb, medication, or treatment is discovered for us.
Look into prolotherapy . I feel for what you are going through. My experience is similar
interesting i have eds and pots as does my son who is also autistic we both suffer chronic pain sadly the medical profession still treat us like we are crazy even though its been genetically proven you get accused of being a hypochondriac it took 6 hours having a heart attack for them to believe i was in fact having a heart attack thus causing long term damage more doctors need educating on these conditions
Same here!
It's like we are twins
These conditions clearly cluster, the data is showing it more and more over the years. I also have EDS, POTS, & I’m autistic. I’ve had chronic pain for the vast majority of my life & most doctors tend to treat you like you’re lying or out of your mind when you have these issues. It’s absolutely maddening at times. I’ve learned to essentially treat myself because doctors haven’t been of any hell to me.
What pain does your son have had OCD all.my life pelvic pain muscle pain in shoulder feet armpits everyday.yes medical prossion waste of time
The instability of the joints sending constant alarms to the brain that something is wrong and joints are about to fly. Therefore, stabilizing the joints by strengthening the supporting muscles would seem like step 1. Here I have been doing extensive yoga which is increasing mobility. Not good medicine then. This is amazing work and connecting these dots is mind-blowing.
Yes! More of this. I know my health issues are related to my emotional state/issues. This gives me hope with therapy and healing of my whole self I can heal my physical body as well
Thank you so much, this makes so much sense. I was recently diagnosed with Ehlers-Danlos type 3 hyper mobile. When I was woken up for school by my mom back in the day I would go into full panic attacks- I mean I was hysterical and terrified even screaming once sitting/standing up after being woken up. And I did not have any “previous trauma” to cause this. The whole time the reason has been medical, and finally after 15 years now I know why. Thank you❤️
I have only just become aware of my hypermobile status. Suffered with anxiety and depression since the age of 16. Diagnosed as ADHD and have been medicated for 7 years now and nothing is helping the depression.
I literally just learnt about the link between hyper mobility and anxiety today after dislocating my shoulder and speaking to the fracture clinic, my legs bend backwards at least 20 degrees and have suffered with anxiety pretty much all my life…answered a lot of internal questions finding out about this.
hEDS & severe anxiety disorder here. Gave up on psych meds due to paradoxical reactions. Also gave up on docs for hEDS & arthritis b/c they don’t know what EDS is & assume it’s psychosomatic. Thank u for doing research
Thank you so much for your research and the excellent presentation of the results. As someone suffering from hypermobility, anxiety and unexplained tachycardia this is extremely valuable knowledge and I hope that your research will lead to progress in personalised medications for all sufferers.
I have anxiety/social anxiety and I’ve recently been going to physiotherapy for Hypermobile joints, my back shoulders and pelvis are messed up. This video makes sense and is actually quite informative. 👍🏻
@A c Thank you, I did and it was great. I was given exercises to help to
Are you pain free now
Thank you so much for doing this research. Our bodies give us so much anxiety. The unknowns are constant. We only have one body and it has always failed us and never functioned properly. We may never know normal and it feels so chaotic.
Amen ! Finally someone who understands ❤️
This is extremely interesting and insightful. It’s always helpful to learn you are not the only person with such symptoms. I will be very interested to know what future treatments results from this research.
I too however have reservations about the medications suggestion but still remain hopeful that a range of alternative treatments can be provided.
On a more positive note I wonder what advantages people who are hyper mobile may have as the condition clearly has implications for the brain as well. This is really exciting research I hope that it continues long into the future and is given the funding and respect it deserves.
Thank you so much for your work! I am an Ehlers Danlos patient and when I get back to college (medical leave 😅) I want to study psychology and go into a similar practice focus. Very cool to learn about myself in this way. 💙
Wow! I’m 48 with history of ‘sprains’ some very severe, anxiety, and my heart rate may also fit. As a child I was extremely flexible and would sit on the floor in an ‘odd’ way, I did get sprains but they didn’t affect me the way they do as an adult. Injuries to my ankle, elbow scaphoid, lower back, hip, and knee persist with pain. Examination often results in a comment ‘joint still flexes well’. I’ve had surgery on ankle twice following grade 3 sprains. I’m on medication for chronic pain and also anxiety/depression. Everything has always been dealt with in a singular way, this video really makes me think their linked.
Spot on. Im hyperflexible, have panic disorder, and beta blockers help more than any psychotropic.
I would love a study by you that researches the relationship between vagus instability due to hyper mobility /connective tissue and the impact on anxiety. It has historically believed the conditions such as developmental chemical sensitivity, ME/CFS, POTS starts with an anxious mind vs seeking to see if the loop foundation is a vagus nerve being stimulated or not appropriately due to hypermobility. or connective tissue. Identifying the origins of the loop caused would be critical for appropriate treatment.
OMG finally she discovered my struggle due to physical condition Thanks alot to choose a unique field of research i hope you'll find a solution also.
I have JHM. Have ADHD, anxiety, IBS, Urinary retention, insomnia. Gastritis, and pain in very joint in my body. I've had meniscus surgery, now I have carpal tunnel and tendonitis on my elbows. The anxiety is definitely the worse part of this syndrome. Tha k you for this video.
I had no idea I’m beginning to learn about it at 61
That's me. Thank you for giving us some light
im so happy i looked into this, i thought i was absolutely insane.. the fight or flight stuff makes soooo much sense
I bet there is direct link between people with hypermobile body with people with adhd and anxiety - if to look through the perspective of gatherers or hunters vs agriculturers - we can see first may have need to be designed like that to be more attentive to detect animals, changes of weather , enemies in the night
exactly
I have very strong heart palpitations during even certain activities that are considered normal. Like asking a question to my teacher in front of the class, I cant pee in a public restroom because of the same reasons.
I have other health issues, but hypermobility and muscle laxity are contributing to my anxiety.
Although I'm happy that I understand the reason behind my anxiety, I'm yet to find a permanent cure.
impressive. Thank you for the support for us sufferers
It’s like sometimes I can’t even trust my own body. If i don’t pivot the right way my hip feels awful. Sometimes it doesn’t happen but I get this rush of anxiety anyway.
THIS IS ME
I thought my anxiety was partly down to all the physical effects of pain due to hypermobility and fear of injury.
Thank you! This validation means a lot to me! I’ve just started on HRT as my anxiety has become worse in menopause. Hoping it works.
I have eds hypermobility and was diagnosed with generalized anxiety disorder at 11 but wasn’t diagnosed with Eds and POTS until 32. I can’t believe there’s scientific evidence. I still need to get more treatment to deal with the pain. I am happy for any advice!
brilliant. Before i was diagnsed with Joint hypermobility Syndrome i was prescribed Propanolol beta blockers for anxiety and they work. Interestingly, mindfulness techniques do not as they are not addressing the overpowering stress responce caused by the activated amygdala, flooding my body with stress-related hormones. It's so good to hear a professional address this link
Amazing video , I was diagnosed with hypermobility by my chiropractor yesterday , As I have been having pains in my upper back on left side and in my left arm and under my armpit going into my chest but that’s more of a dull ache , Iv had 100s of tests on my heart and nothing found so this diagnosis explains a lot , I have also had horrendous anxiety and health anxiety for years since I was 11 I’m 31 now. I have 3 beautiful children and amazing fiancée and family and I’m always petrified of dying and leaving them. But amazing research your doing and will be keeping a close eye on this.
bro the same condition
I've got this everyday so much pain over the years
How are you now
Thank-you for doing this research (as a hypermobile person with anxiety disorder) and I hope you get all the funding (as a professor/researcher). Great work!!
everything makes so much sense now
I've been on a beta blocker for a few years now (I have continuous PVCs) and it hasn't stopped my anxiety from developing into panic attacks. I'm on two medications for that now...
Very insightful. Thank you for this!
Turning that volume up. Please for the love of god. Thanks.
My little sister has a clicking in her jaw because of hyper mobility. She has also autism spectrum, which makes it hard for dealing with anxiety and frustrations. Very interesting to see that there is a link
This is most interesting and have hyper mobility and fibromyalgia with constant pain which is often severe. My rheumatologist told me there is a relationship between the two.
Please research the connection between hypermobility , POTS and ED syndrome ( non classical subtypes)
I have hyper mobility, extreme anxiety and depression. I wish I could get help.
Crazy how the body and mind connection plays out in different scenarios. I read today that people who suffer from hay fever are also more often anxiety sufferers as well.
I really found this video helpful, as I have hypermobility, fibromyalgia, GAD, EDD, Autism and a couple other things. And something called complex trauma, I've always said physical and mental health have always been interlinked. So thank you for this video. 😊
I am a hypermobility and depression and anxiety. This is very informative and useful thank you Jessica and acmedsci
I am hypermobile and have anxiety. In current times there is a very thin line between being anxious and having anxiety all the time. Growing up I was quite an anxious kid but somewhere down the line I have realised most of the anxiety is not because of being hypermobile. Blaming ones anxiety levels on hypermobility is like saying "i met with an accident because I was crossing the road where there were cars" While modern medicine is helping us deal with anxiety it is not telling us that it is "home grown" and we accept , deal or resolve our home grown (in the head) issues. One has to understand that every aspect of our lives from childhood to the moment you are reading this is programming you for your future thought process. One can be born with hypermobility but no one is born with anxiety ? Until ofcource the seed has been sown during childhood which could be various things and by the time we grow up to understand whats happening and you have a medical name associated with it and life is not normal any more unless YOU do something about it.
i have hypermobile syndrome, it is so easily to get me nervous in my daily life, i have no idea with it, i also have anxiety too. i couldnt slp well in night. I am much more lower energy compare to my friend same age with me. this make sense, hope doctor on duty can watch this video and help more ppl like me
I was personally waiting for the issue os PROPRIOCEPTION to come up! A sense pf vague imbalance and unsureness of body position can do a lot to cause general anxiety, no?
I had that problem when i was a kid. Feeling that my body was weird. Posture, shoulders,etc. Hated people looking at me walking.
@@adv3117 Damn that's crazy I've never thought about that. Same here.
Dr Eccles has another talk on here about hyper mobility and neuro developmental conditions in which she discusses proprioception
omg now everything makes sense today my doctor said i have hypermobility i was always unsually anxious in situation i don't need to be anxious and also i thought other people r maybe feel this way!! thanks to doctor and i would also really like to know how to treat this condition!!
I have been hyper-mobile and suffered from anxiety most of my life. Five years ago my pancreas failed. It came with the most horrific anxiety attacks I have ever experienced. It woke me up out of dead sleep even with xanax. Year and a half later I was finally diagnosed with pancreatic insufficiency and was given zenpep. All my anxiety is gone. It turns out I never needed antidepressants.... I was misdiagnosed. I have EDS. Anxiety and hyper-mobility are both just symptoms. I still dislocate hips, ribs... and it's painful and that causes situational anxiety. I live in fear of pain. I am hyper aware of my body because of it.
There is a definite link between the two, however its important not to overlook the obvious root dysfunction in the adrenal cortex. Examining the chronic "see saw" effect between the cortisol and estrogen is key. The constant slamming and bumping of the two between various episodes of fight and flight have a clear and distinct affect on the collagen production as well as connective tissue and this is where we can see hypermobility and even EDS come into play. Pregnant mothers with lifelong environmental stressors and trauma can affect not only her offspring but future grandchildren since the eggs are being formed during gestational periods in female fetuses. Need to look at the family history of chronic trauma and collagen mutations. Anxiety is simply a very tiny speck of the whole puzzle. Thank you for connecting the dots. Keep up the great research. ❤
I am very Hypermobile, my Knee went backwards (Hyper extension) when I was 17, still dont trust the joint fully, just playing a bit of friendly football, I was told by a nurse that "It can't happen", i know it can, because it did, and it was very painful, was never very good at sport, especially running i would always do better at hiking or just using a cross trainer, lower impact stuff, balancing on one leg was always difficult, joints just sway. I have OCD (anxiety disorder), though its less of an issue these days, mainly due to CBT, glad someone has made a link between the two issues, I never did.
Time to exercise and calm the nervous system!
I have both hypermobility and anxiety, and what helps me most is not beta blockers (which just make POTS worse by lowering blood pressure, which is the last thing we need), but anything that raises GABA in the brain.
I would love to hear more from this doctor.
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This is wildly fascinating. Currently trying to learn more about HSD.
This is true. I'am hypermobile and iam very anxious
Anxiety could be a response to hyper mobility speaking of the reflexes, proprioception( try to walk on the unstable, painful joints day after day; think about your future and see no light,etc)
Each case needs a thorough investigation and an individual approach. For people with EDS anxiety,most likely, would be a primary priority dysfunction ( a mother's pregnancy, the stress level during that period of time). One thing is for sure- the psychosomatic factors must be considered during a patient's health evaluation.
Extremely interesting! So I wonder what the direction of causality is in the link between autism and hypermobility...
Wow, found this really interesting! I'm both hypermobile and have anxiety. Would have loved to have been a part of this! Or in future developments.
Goodness this is makes a lot of things make sense omg.
And how do you treat it ? Anything after 6 years of figuring this out ?