Brain Drain: Candice's experience of fatigue after brain injury
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- Опубліковано 5 вер 2024
- Brain injury-related fatigue can affect every part of a survivor's life, from their sense of identity, ability to form and maintain relationships, capacity to work, and psychological wellbeing.
Candice Ridley, who is sharing her story as part of Headway's Brain Drain: Wake up to fatigue campaign, says that fatigue has completely stripped her of her independence and identity.
Candice share her story of living with fatigue in this film launched as part of our 'Brain Drain: Wake up to fatigue!' campaign.
Visit braindrain.org.uk to find out more.
Thank you I feel less alone knowing others have debilitating fatigue. I do 🙏 it gets better for you.
Ive had a severe TBI since 2015 and my biggest issue is cognitive fatigue. I have to be very careful on what and how I do things on a daily basis. I am good in 3-4 spurts but depending on what I am doing that dictates how big my crash will be. I find that I take things slow and in moderation I can engage with the world. Its a crappy way to live......but with mediation and exercise I do find joy.
God Bless You for sharing your experience My prayers are with you.. You are very beautiful inside and out.
This hit hard
Thank you for sharing. I can reallly relate to this. This channel has made me think about getting more help around the house so i dont have to feel like as much of a prisoner
Traumatic Brain Injury....The Invisible Disability....
I had a TBI last March when I fainted at work and smashed my skull on a concrete floor. I have no memory whatsoever of the event or even the week before when I had suffered a bout of Norovirus and became dehydrated. I was in intensive care in a coma for one week because of a brain bleed, and in a brain trauma unit for 7 weeks. I have loss of smell, sequencing memory problems and fatigue.
struggle is so real!!!
I fell, almost four months ago. My physical injuries are improving...but the blurry thinking and fatigue, the constant mistakes when I'm too tired, after pushing to get tasks done. All of that, mental and emotional difficulties keep coming, may be a few more months...
Our Helpline Team offer a free and confidential support service to help anyone experiencing the effects relating to brain injury.
Freephone: 0808 800 2244 | Email: helpline@headway.org.uk
The team are available 9am - 5pm, Monday to Friday, but you can leave a message at any time.
It's true only those of us who are 'there' get it.
So many times I've been looked upon as a fraud or time waster. If my bleed on the brain had been a lost limb I feel that in some ways the last 14 years would have been easier. I just dont have the energy to explain why, how, etc having to justify myself. Energy is precious, I wont waste it on the inquisitive ignorant.
I had a massive TBI which resulted in frontotemporal epilepsy. My mom disowned me because i didnt "just get a job". She looks down on my struggle and what my wife and i deal with and considers it a character fault of ours. "I'm a giver, you're just a taker " was one of the last things she ever said to me....The woman hasn't had a job in over half a century.
Thank you Candice & Headway. This fatigue is so misunderstood and is so very debilitating for us. And when I wake repeatedly because of pain then I'm even more exhausted and low and when I can't rest or relax because of stress and too many tasks and fear of homelessness etc. and feel I'm a useless burden, sometimes then I consider suicide but (at the moment) I'm too scared to try to do it. When people tell me 'go do X' or 'go and talk to X' they have no idea how hard it is for me and how I'll be wiped out after - and probably cry with the tiredness - which makes me very low and even more sad. We need understanding, acceptance and practical HELP with some things which were so easy before but now aren't. Sadly lots of us aren't considered disabled ENOUGH to qualify for the help we need so we struggle on alone the best we can or else if you're lucky enough to have friends/family nearby who are willing and able to help then they too get worn down and it destroys relationships, so awful and sad: sometimes I feel I have nothing left to live for now because I'm so exhausted from 13+ years of trying to do it all and being constantly told YOU must do it etc. or them offering 'solutions' which aren't right for me but they say I have no choice because I'm not wealthy. All the best to you.
Bless keep going proud of you x
@@debblackmore7460 thank you, it would be so nice if somebody was proud of me when I fail at so much so often! And I know there are so many like me and lots struggling even more...
@@jennyhughes4474 alot dont understand us only us gets us lol be proud of yourself who you are our far you have come gets better you will be stronger better dont give up on you I ain't you or me or anyone going through it if I can do it so can you I have faith in you keep going positive mind is a positive life sending luck and love from headway Nottingham UK xx
@@debblackmore7460 oh Deb, you're an ABI survivor too? Your lovely reply made me a bit tearful: feeling very lonely doing my art (& back+ pain) it's so wonderful to be understood & accepted - and even lovelier to be told I can be proud of myself when so many people put me down, ignore my struggles & what I tell them, get angry with me and tell me all sorts of nonsense as though they know better than me on everything = they don't. Sending you mega thanks and love from here down near Toulon, France - very rare rain here today, rather nice coz doesn't happen much!
@@jennyhughes4474 you are amazing read your comment absolutely amazing from mind and heart tell yourself your way or highway my lol you are on right path so positive with who you are so proud of you Jenny x
It's just so hard. Every single fucking day. And I'm not sure who I'm trying to "be". The old me is just some stranger that I'm trying to emulate every second of my life while the new me wants to stare at the clouds and wander into traffic.
HI, thank you so much for sharing your experience, I'm sorry to hear you are struggling.
If you live in the UK, our Helpline Team are here to offer support if you would like to give them a call:
Tel: 0808 800 2244 | Email: helpline@headway.org.uk
The team are available 9am - 5pm, Monday to Friday, but you can leave an answerphone message at any time.
There is also an online community platform called HealthUnlocked that you can access internationally: healthunlocked.com/headway that gives you the chance to connect online with other people who are affected by brain injury.
The community is primarily for people with a brain injury, their family and carers, but anyone is welcome to join in the conversation.
Find out more about this online forum, and follow our social media profiles, which are also great sources of support and community: www.headway.org.uk/supporting-you/online-communities/
I hope these links give you a good starting point for seeking help and support.
@@headwayuk Thanks for that. I'm in the States (Boston specifically) and have been very lucky to have some of the best neuro doctors in the country. They keep me grounded and help manage the old expectations that I still hold myself too.