My Disability Roadmap | An Emmy-Winning Op-Doc
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- Опубліковано 16 тра 2022
- With audio description, English and Spanish subtitles. Learn more about the film and listen to the audio description pre-show: likerightnowfilms.com/product...
Samuel Habib, 21, wants to date, leave home, go away to college. But for Samuel and millions of other young adults with disabilities, the path beyond public school and into adulthood is difficult to navigate.
Samuel lives with a rare neurodevelopmental disorder caused by a mutation in a gene known as GNAO1. He drives a 350-pound wheelchair, uses a communication device, and can have a seizure at any moment. In "My Disability Roadmap," co-directed by Samuel and his father Dan Habib, he seeks out guidance from America’s most rebellious disability activists.
He wants to learn how they built full adult lives as a road map for himself and others. “No one tells you how to be an adult, let alone an adult with a disability,” he says. “But there are badass people with disabilities who figured it out. Maybe they could be my mentors.”
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As someone with a disability, I really can't thank you enough for what you're doing. I have more of an "invisible disability", and this really helped me to understand what it's like to have a disability that's visible. You helped me come to realize that people with one type of disability can have misconceptions about and prejudices against people with other disabilities.
As someone with a CP too, I got frustrated by people telling me that I was a role model just because I decided to pursue my studies and my ambitions regardless of my physical disability. For me, there was nothing special about it as I thought that everyone can do it. I recently realized that the very thing that makes people believe that I am special is the positive response that I had throughout my entire journey despite the inherent adversity of dealing with limited mobility. I'm 24 y/o, I have a bachelor degree in finances, I have a job, and I have a very great social life. I can understand Sam when it comes to dating tho. I never got a gf (although I got close) and as time goes by, I am starting to have a complex in front of this fact. I tried to get matches on Tinder and Hinge for several months, yet I didn't make any significant progress. I feel that when people see the mention that I have a wheelchair, they might associate it with other issues beyond the wheelchair and that is a turn-off. I don't see any way to validate that feeling with fully able people because most of them don't feel comfortable talking about it or would pretend that they don't see any issues about it, and I understand that. Don't get me wrong, I am pretty satisfied with my life rn, but I can't deny the fact that I feel the urge to date girls and not having any opportunity to do so is a bit frustrating. This is way harder than what most people think, but I won't give up - never. Our true limit is in our mind, not our body. I am now considering changing my strategy by relying more on the network effect to get introduced to new people more organically. Anyway, this documentary is well done. Take care! ✌
I’m a adult, a Masters degree’d professional, mother, and I live with spinal cord injury.
I’m just living my life.
I do not want to be a role model.
Even moreso, I do not EVER want to be anyone’s “inspiration.”
I hate when anyone tells me that they think I’m brave.
What a stupid thing to say: I did not choose this.
There is a new app called dateability. I tried it but not many people in my less populated area, plus it's a new app so not a ton of users. Maybe that would work better than hinge or tinder.¯\_(ツ)_/¯
Finding the dating apps to be brutal and I can only handle them in fits and starts, before reclaiming my sanity.
Actually a Google search about dating with disabilities lead me to this video.😊 So glad I found it. Well done and great example of day to day as well as the weird interactions with people. Loved all of these role models/mentors + questions. Well done video.
🫶✌️
Strange how the lady at the airport couldn't stop talking like he was a child. Would she walk up to her boss and speak like that? Or any other adult? No. That's not how adults talk to each other. "How old are you? Are you 55? Are you 55? You're the CEO, hey?" Ugh.
It is really sad. I also have CP, and just like Sam, I hate when people are underestimating me. I mean, why do people think that only because you are using a wheelchair, you are not able to be a normal person. A person who studies and living a normal life. I am 19 now, lives in Norway on my own, and I am so happy that I have the opurtunity to do so.
Her dialogue was so cringe! 😬 I was like when will she stop?! Make it stop!
Sam's (filmmaker, sorry if I forgot first name) reaction said it all.🤬
I have CP too, although it doesn't affect my speech, and I was super frustrated on Sam's behalf at the lady in the airport (and Biden--yikes). At the same time, I understand that the lady didn't know how to handle waiting for Sam's response. The general population has never had the experience of conversing with someone who uses a communication device. Sam had to sit there while his dad talked about and for him. The audience only saw Sam talking back and forth with family and care assistants; all other communication was preprogrammed and cut away after the interviewee had spoken. I would really appreciate seeing a real-time conversation between Sam and a new acquaintance. Show us what that looks like when it goes well. That's what we need to see, to understand and to learn. Lovely work overall. We need more!
Same❤
The lady at the airport doesn't understand much! I have CP too, and those people are those I hate the most in the world. I get upset everytime people thinks that only because I am in a wheelchair, I can't do what everyone else is doing. I am proud of my opurtunity to study economics at the largest university in Norway (NTNU in Trondheim), far from my home in Oslo. I want to prove ableists wrong someday, prove that I can get a job and be part of the society just like anyone else. (hope that my English is not too bad)
Oh i wondered what your sobriquet meant until i read you are from NO and its an actual name, it makes sense. You english is impeccable and you live in NO, i am like 1/4 NO and i struggle with the language, i speak german . I wanted to get mad at the broad at the airport but then i realized she was clumsily trying to be friendly because she isn't aware of what someone sees and receives who doesn't have the same physical ability. she was talking to Samuel as if she was talking to a Beagle who was wagging its tail. it was cringe . i could picture her leaning forward with a sheepish smile and wide eyes.
I have a cousin in southern african who has variety of CP and it doesn't affect his speech much. i have always been amazed at how well he is treated by the extended family . Now it helps that 2 gen of a family live in the same compound and this means taking care of him is super easy since its split among 12 people.
Wow, communication really is freedom, like his t-shirt said.
You’re already proving the ableists wrong by everything you are and everything you do. Forget about them, prove yourself right. Keep focusing on what you do have; you sound extraordinarily intelligent and extremely able. Cheers.
Awesome stuff! As another disabled young person this was so cool to see.
I also respect how you baked in the audio description. Great little bit of accessibility
I love watching this documentary. I do not have a disability and I have rarely been exposed to people with disabilities, but I am glad to learn and understand what they are advocating for and break the internal biases I have when seeing someone with a disability. Hope to see more work from you Sam!!!
Great film! As a former teacher, I wish this film and films like it were part of the curriculum. As a dad, I will definitely be watching it again with my 10 year old. The preparation, dedication, participation by so many amazing guests, and the way those moments are shared with the level of cinematography they are captured makes me feel I was on this journey with you. I really only had time to watch part of it, but had to watch the whole thing. When time flies, it's good stuff!
I have Cerebral Palsy. I'm nearly 32 and yet still treated as a child. I don't think society will easily stop treating people with disabilities as permanent children. It could take generations
Samuel I love this. I have to say as a person with invisible disabilities it's great to see such an inclusive disability DOC done! Good luck in your advocacy, I really hope people stop infantalizing and talking down to you. You are definitely brilliant and the transition into adulthood is difficult. I hope you can find everything you're looking for!
Thank you for this. There are quite a few disabled college students in my university. I know a few of them, and it is good that you are showing that they are not to be treated as kids just because they are not as physically able as others.
Fantastic film, really well done. Sam, your questions throughout the doc were well thought out, your interview prep is on point. I had intended to take 5 minutes and briefly check this out, instead I watched from beginning to end (and now I'm leaving a comment!). Keep up the great work.
We are all one accident away from being disabled.
You made me cry because I felt so related to someone, which I haven't felt in months since I am starting college on Monday, and I feel like you know and understand what I'm going through. Thank you for making this video.
Fantastic film and very illuminating especially as my baby nephew may have a disability. Shared this video with my family and a million thanks for making this!
So proud of you Sam, Keep the hard work and inspire the world.
Sam, I’m not sure you read the comments, but my best friend Jen Ranney in Spokane Washington told me about you and your film making. I want to tell you I was SUPER impressed with your film, your vulnerability and your story telling. Keep showing the world you. It’s absolutely perfect! And btw, keep searching for your perfect person, they are definitely out there!
His tenacity is inspiring. Much love and respect!!! ❤ 💙 💜
Never give up!
Great and very educational. Ty for being so strong
I am looking forward to the full documentary!
That woman at the airport upset me as well, it was truly uncalled for.
It was strange after she was told to stop talking to him that way that she continued. I get that it’s hard to tell anyone’s age but don’t talk to anybody like they’re a baby or a dog.
She just didn't get it. It didn't register. Some people are like that. Naive and inexperienced even if the intention comes from a good spirited place. The airport is a strange environment. Interactions are rousing and hightened. People feel also more vulnerable and excited at airports I suppose. Giving her the benefit of doubt she most likely didn't mean any harm and she most likely had little experience with disability or exposure of disabled in her life. Not excusing her actions, but it is bound to happen. That being said there are far worse countries out there to be in as disabled. The US is moving in the right direction, perhaps even taking the lead, for sure.
@@MsKTMvalley And people are always like offended and like "what do you mean i was being nice?!?" and its like no you were treating me like I was beneath you because i have a disability. watching that clip hurt my soul.
I feel like she was actually sorry. Some people just assume that someone needs to be treated differently because of a disability
I think she meant well and she wasn’t trying to put him down
But I do understand how frustrating that is
Great documentary. It definitely provides a look into Sam’s life, and that he is like everyone else, but just needs to do things differently. He deserves the same respect as those around him, as it is a human right. He desires the same things others around him want in life: respect, love, employment, and a home that is all both accessible to him and where you can be as independent as possible.
I too can relate to these same desires/wants, and struggle with it. Even though my disability is different from Sam’s, and like him, I have a good support system, some of the emotional struggles are a bit harder.
Great documentary!!
Absolutely loved this video. ❤️
I am so thankful for this video for I have learned a little bit more about the people that I live on this Earth with! Hope everyone gets to watch this very interesting educational video!
'Oh! You're in school now hein?' Even after being told several times not to speak to him as a child that lady can't help to patronize him. Probably one of those persons who allways brag about 'loving disabled people'!
i love your strength i too have disabilities you're amazing great job super proud that we're getting our stories noticed
WOW! You're my new hero!
You are one of the best inspiration
Wow, Samuel! I loved the documentary your father made when you were small and so delightfully cute, and so it's such an honour to be able to catch up with you in this documentary and to see how well you are doing and how mature, passionate and determined you've become as a grown man. I have a mental illness and a mild physical disability and it's so wonderful to see how hard you are fighting for disability rights. You still seem as happy and determined as you were as a young boy, but I know you must have to endure huge frustrations on a daily basis - I gasped in shock when I saw Biden stroke your face, and I was even more angry when that woman at the airport started speaking to you as if you were a 4 year-old! SURELY people know better than that nowadays?? Are there people who are really that STUPID?? I particularly loved what you said at the end of your documentary - people paved the way for you and so you want to pave the way for other disabled people. I think your dad started your legacy with his documentary, and now you are carrying that on splendidly by yourself: by making this new documentary, interviewing and speaking to those in power, and educating so many able-bodied people about what it's like living with a disability, as well as showing everyone how much further our society needs to go in terms of breaking down stigmas, increasing inclusion, and fighting for disability rights. I think you are a fabulous role-model for everyone, disabled as well as abled, and I very much hope you've been able to move out by now and have found a girlfriend too - any girl your age would be incredibly lucky to be in a relationship with you! If I were 25 years younger, I'd be writing you love letters for sure! Keep being amazing, Samuel, and keep making documentaries about yourself - you're a joy to watch and to listen to! How about starting a podcast or UA-cam channel - extraordinary individuals like yourself really need to be in the limelight these days, in order to influence and be role-models to as many people as possible, and also to give the rest of us hope!
I wish you all the success in the world, good health, and plenty of daring and exciting adventures!!
I am a 22 year old girl in my fifth year of university, my last year and I like being treated like a kid. I don't think I have any disability.
Stand up for yourself comes to mind.
I a a chronic kidney patient, who has started kidney dialysis in February 2022. Some days are tough others not so bad.
Not everyone understands what the process is about, some people avoid me in case they contract or too, -,not possible of course. Some are sympathic, whilst those who have family in the same boat, are very supportive
My advice to you is hold your head up high, pray to God for strength, courage, show love to all you meet, it will come back to you. God Bless You Everyday.
Hey Samuel - just watched your vid and gotta tell ya i was inspired by your journey and honesty. Wish you the best on your search for a girlfriend/wife - you'll make a great boyfriend/husband!
I am disabled , I go ballistic at those who treat me like a bratty child
"I'm a College Student with a Disability. Stop Treating Me Like a Child" the problem with the video since second 1
I don’t zipline man! Good for you!
Community junior colleges are two years then aa degree granted after that senior regular colleges
No offense i dont even have a disability and some people still treat me like im a child... im 25 years old
But nobody has talked to you the way that woman at the airport did, Samuel probably has those interactions way too frequently
@@sk0kiE you dont know me
@@brucewayne235 true
@@sk0kiE and yes he probably does, and im sorry for him nobody should have to endure that over and over again
This was an amazing film! I can’t wait to see more from Samuel.
Great documentary!
Shalom, Rachel, its eye opening for sure . That bird at the airport who was talking to him as if he is a puppy. Schande !
I like Samuel have wondered what people have sacrificed to get where they are, what were the risks they stared down. It's a good question.
you have ability and very able every level of logic and you are not unable you are not unequal.
Man i cried so hard watching this, and it made me wonder if i were to meet samuel and cry in front of him if that would also be seen as a form of looking down on him when i simply absolutely do not at all. I wonder how i would try to successfully explain to him that I do not look down at him but merely am emotional towards how the world treats him and only wanting the best for him.
Yea agreed. I guess we should remember that he’s a guy who with assistance loves all the same things as able bodied people, like skiing or jogging or having intellectual conversations. Each of us all have our own sets of challenges and differences.
I'm a Quad. Dw, it's appreciated
@@janberger2339but not in person, i’d imagine…someone breaking down crying in front of a disabled person just bc they feel so bad for them? Let’s think that through…
i don't want to be treated like a child due to autism.
Or a monster
Hey, they fixed the audio descriptions!
Yes! The filmmaker didn’t waste one second when he found out. Dan got them to fix it right away.
We hope you like what the social audio description crew did!
I’m low vision, yet I can shoot a gun and aim pretty well. Agreed. Stop treating me like a child. Lol.
Not Biden stroking Samuel's face ew
They need to do this with every video
Agreed. Audio Description can be used by sighted people. In fact, Netflix has many audio described originals. You can listen to movies while cooking or driving.
Hi
Amen thank you
It just goes to show you can have fun and you dont hve to be superfit
What an inspiring young man!
New on there's and getting tup
Think I’m in love with Sam 😍☺️
THAT'S ONLY FAIR...!
Every living being that can think should close its eyes for 5 minutes and think about it: what are the consequences/ what training does my behavior have..? !! Then you ask yourself: HOW WOULD THE WORLD BE BEAUTIFUL AGAIN...?
IF EVERY PERSON GIVES TO A COMPLETELY FOREIGN PERSON THE SAME AS HE GIVES HIS FAMILY AND HIMSELF. .!!!
then you open your eyes and try to think of these thoughts as often as possible. .!
maybe man is the most intelligent creature after all. .!??!
13:55 the audio speeds up a little.
Happens in other parts of the video
That is so the audio description does not talk over dialog.
10 question on there's
be careful what you wish for
MAyAQeeN ❤
MAyAQeeN ❤😊
diz was awesomazingly beautiful.
i can't even make a jokey comment, jellybean.
💘🤭🤗😍💎🌟💟
حبيبي
Don’t wear a New England Patriots shirt if you don’t like being treated like a child.
I am there's and there's
Shouts out to Stephen Hawking! What? He doesn't have a sense of humor????
Tony Pitsacola, Stephen is greatly missed. fr fr
00
U BETTER BE MORE AMERICA 🇺🇸 THAN SELFISH LIARS
I DARE U TO CHALLENGE ME 😡
Yes I disability and I am imbarries a about it's or angry a about all of it's
Amazing young man. Thank you for creating this descriptive version of the video. My son is completely blind and I wanted him to hear this story. My son is graduating with high honors from college this weekend. Never underestimate anyone with a disability!
LAVORIAMO FRA CCTV ED IL NEW YORK TIMES-🔥✡🕋🔥
The girl that went to the prom with him wins
First
What a cute and I know how he feel’s because I’m On Disability and I been getting made fun of since I was a kid.
CAN you interview the new elected President BBM , MARCOS JR why He did not pay the tax
Converted to hinduism from islam 3 years ago, now never looking back. It was the best decision of my life.
JAI SHREE RAM
Remember God loves you♥️!!
John 3:16
For God so loved the world that he gave his only begotten son that whosoever believeth in him should not perish but have everlasting life.
Please repent, change your life around and live for Him🙏🙏
He is coming back soon🥳😊..............
Stop telling people what to do!
Yeah, because it's *such a burden* treating someone like a human being. Jesus Christ, listen to yourself.