What a great storage container system, Jaquie! You are such an inspiring individual. You never dwell on the negatives of living with chronic illnesses but choose to be positive and thankful for medications and devices to assist you in your daily living. God bless you! 🙏🏻🤗❤️
It must feel so amazing to be able to do these procedures (IVIG, etc) at home and say that it went great! So proud of you and your journey :) have a safe drive home!!
I know things with your health haven't been as great. But your looking so much healthier with your weight. It seems like the medical marijuana is helping alot. I'm so happy you found something that works for you.
That is part of life with chronic illness: Some battles you win while you are still fighting others. You are SO right when you say the MMJ has helped. My GI/weight issues have become much more manageable and for that I am very thankful! Now if we could just get my chronic pain and MCAD under control... Working on it! Always working for more and more stability. :)
Chronically Jaquie totally understand I'm working on my GI issues, I have several procedures regarding neurological issues coming up. But we have found through previous surgery that I'll loose 20 lbs in a week if I take pain meds of any sort even iv Tylenol. I'm working on getting all of my things worked on it's only been a year. So I'm thankful everything has been going that fast in diagnosing. It's just my insurance company doesn't want to pay for anything I've had multiple referrals for iv infusions get denied. Even when I was hospitalized for a week and I would faint still but I'd recover much better than I would without. We're talking 3 hour nap recovery vs 3 day of solid sleeping. So I know it helps just hopefully my hemotologist or the endocrinologist will finally be able to get through to my insurance company. Your port videos have helped me so much in feeling comfortable with that decision so thank you so much for the help. It's hard to find a chronic illness UA-camr that has great quality content is upbeat easy to watch and still educational. So thank you so much for making content it has definitely helped me talk with family about diagnosis and testing.🙂
I enjoy watching your videos. I find a lot of videos on here that while they cheer me up don't typically allow me to relate in any way shape or form. So when I found your channel I got so excited. I personally, while not as chronic, for lack of a better term, have the chronic pain illness referred to as Fibromyalgia. I'm in a support group on Facebook but finding your channel genuinely made me so happy. I'm still in the early diagnosis stage and still have a long way to go but have a few other things going on that also take its toll on my body and I love the way you take on every challenge that you face. You're a major inspiration to not just me but I know so many other people as well. Keep it up and as always keep moving forward. :)
I know I am very late but I had to tell you that, I love you and your videos so much. You are so inspirational. Keep positive and just remember that we (your viewers) are always there to support you.
Just so you know- IV medications that come in a dark-colored glass vial have to be protected from light. It’s great that most of your meds are in the solid blue plastic section as that provides additional protection from light. It would be good if you could find a way to give extra protection to your heparin, too. Perhaps your home health company sometimes sends things in a dark brown plastic bag? That is for light protection- you could save one of those. A cardboard or plastic box works well, too. Don’t be overly concerned as the dark vial itself is protection for the medication but storing it in the dark is even better. Sorry to be so wordy but pharmacist mom couldn’t help herself. 😊
My HHC said the Heprin does not need to be protected from light, just the IV vials. At home it is all stored in the dark and so are the bins, we put them in the closet :)
Thank you for a great video! Although I can't travel my mobility problems require me to keep things nearby. These are great ideas for organizing all the stuff I want close at hand. Much better than the jumbled mess I have now.
Love love LOVE that necklace! And your outfit it so cute. Also, I love those organizer bins, i wonder if they would be good to use in my classroom! I hope you have had a good time, and i wish you safe travels going back home! Stay awesome! 💜
Jaquie your looking so much better now that you have put some weight back on...keep the good work going. Love and Belly Rubs from myself Katy and Foxy (we lost Pookie almost 3 weeks ago)
You’re amazing Jaquie! Were you a Girl Scout/Guide when you were little by any chance? Because you’re certainly living the “Be Prepared” lifestyle, my love! Hopingbyou’ve had a safe journey home and a good rest too xxxxx
oooooh, as an artist, I am tempted to give this a try for all my beads, findings, tiles, clay. etc. BTW, how does a person mail you a little something?
You NEED to submit an application with Target to be sponsored. I’m dead serious. A little income from sponsorships that you really use and endorse products from could be great. Do it girl!
Hey Jaquie, Have you ever looked into batteries that can be recharged! I find they save me lots of money! Just thought I would mention it! Keep up the awesome work!
Im new to your videos but im loving them. Im really curious about your feeding tube an when you get sick, how does it afect the feeding possess or does it not? But anyways thats just my question. I do have to say that you are looking alot better from the other videos ive seen keep up the good work an keep moving forward :) also harlow is soo adorable an amazing.
Hey Jacquie, how often do you change your tubie-pads? I'm asking because I'm going to order some for one of my students who has a tough time keeping the gauze pad on their tummy under their g-tube button! I think they would be a great option for this student and I'm trying to see how many the student will need. Thanks so much, love your videos, wishing you and your family the best! Kisses to Harlow :)
I haven't watched a video in some time, and I just wanted to say you look so good, like you can tell you have gained weight, and you look great! and healthy!
They cut off my port supplies and I can't get them to give them back unless I'm infusing and I have the worst Dr in the history of doctors. I have been intubated 11 times, four times already the ambulance and life flight told my dad had I not already been accessed they would not have been able to say me. I'm so frustrated with Kentucky drs! Sorry for the rant. Also I have one of those same bins I found through you!
How do you travel to different states with your MMJ? Or I should say how do you or DO you travel across state lines with your MMJ? Because what I understand and I can be wrong MMJ though legal in some states is illegal in others. Even though you obtain it legally? Praying for traveling mercy be safe on your ride home.
I just had it in my backpack. I'm not saying this is correct but I didn't really think about the implications until we were already well into our trip. But if I had not taken it with me, I would have gone back to not being able to eat hardly at all and puking relentlessly. With it, I could enjoy my trip.
It's something that people aren't aware of because you obtain it legally in your state but it's illegal in other states. (which is insane to me) I know you packed your medicine, everything you need to feel better & enjoy your trip and since MMJ to you is medicine I'm sure you didn't give it a second thought. I would've taken it too. I'm happy for you it's good to see you out & traveling.
Hi Jacquie! Thank you for showing us how you organize everything. You showed it quickly in a vlog one but having a seperate video to look back to is nice. I will be getting an NG tube tomorrow. Please wish me luck, it would mean a lot to me! I'm nervous but hopeful for some relieve
Jaquei i have the exact same necklece...lol....i am an organizer too....and a control freak as well....but its better to be that way rather than unorganized 🍇🍒🍎🍒🍇🍒🍇🍒🍇
Love how organization is great with everything for trips and traveling place 🚙love watch in joy y'all video adventures everyday ❤️say hey to Hipo pup 🐶 hope y'all have safe drive back to FL 🏡
Thank you :) It is a good example of "not all disabilities are visible." But, I don't think my looks are deceiving all the time... Sometimes I do in fact feel as good as I appear :D Other times, not so much.
Nope! I don't even feel it anymore. If someone else does it, it does hurt a bit but the only time I ever let someone else access me is if I am too sick to do it myself (usually when I am in patient).
It was unlisted for a few days (meaning only those with a link can view it). But, sometimes a glitch happens and others can watch without the link before I make it public. Not really a bother or anything, just a UA-cam thing. Or maybe you are thinking of the video from several months ago where I first showed these bins.
Chronically Jaquie thanks for the insights. That very well is what may have happened. You're looking good, hope you're feeling just as good. Take care ❤.
What a great storage container system, Jaquie! You are such an inspiring individual. You never dwell on the negatives of living with chronic illnesses but choose to be positive and thankful for medications and devices to assist you in your daily living. God bless you! 🙏🏻🤗❤️
It must feel so amazing to be able to do these procedures (IVIG, etc) at home and say that it went great! So proud of you and your journey :) have a safe drive home!!
I know things with your health haven't been as great. But your looking so much healthier with your weight. It seems like the medical marijuana is helping alot. I'm so happy you found something that works for you.
That is part of life with chronic illness: Some battles you win while you are still fighting others. You are SO right when you say the MMJ has helped. My GI/weight issues have become much more manageable and for that I am very thankful! Now if we could just get my chronic pain and MCAD under control... Working on it! Always working for more and more stability. :)
Chronically Jaquie totally understand I'm working on my GI issues, I have several procedures regarding neurological issues coming up. But we have found through previous surgery that I'll loose 20 lbs in a week if I take pain meds of any sort even iv Tylenol. I'm working on getting all of my things worked on it's only been a year. So I'm thankful everything has been going that fast in diagnosing. It's just my insurance company doesn't want to pay for anything I've had multiple referrals for iv infusions get denied. Even when I was hospitalized for a week and I would faint still but I'd recover much better than I would without. We're talking 3 hour nap recovery vs 3 day of solid sleeping. So I know it helps just hopefully my hemotologist or the endocrinologist will finally be able to get through to my insurance company. Your port videos have helped me so much in feeling comfortable with that decision so thank you so much for the help. It's hard to find a chronic illness UA-camr that has great quality content is upbeat easy to watch and still educational. So thank you so much for making content it has definitely helped me talk with family about diagnosis and testing.🙂
She looks amazing and I'm sooo happy for her.😊
I enjoy watching your videos. I find a lot of videos on here that while they cheer me up don't typically allow me to relate in any way shape or form. So when I found your channel I got so excited. I personally, while not as chronic, for lack of a better term, have the chronic pain illness referred to as Fibromyalgia. I'm in a support group on Facebook but finding your channel genuinely made me so happy. I'm still in the early diagnosis stage and still have a long way to go but have a few other things going on that also take its toll on my body and I love the way you take on every challenge that you face. You're a major inspiration to not just me but I know so many other people as well. Keep it up and as always keep moving forward. :)
The bins look amazing. They certainly are good for your use. Makes things easier and who doesn't want that. I think you are wonderful!
Thanks for sharing your story with us. I hope you have a safe trip back to Florida.
Jaquie I hope your feeling better from your anaphylaxis attack. I love when you share these videos. Continued prayers for you!
I know I am very late but I had to tell you that,
I love you and your videos so much. You are so inspirational. Keep positive and just remember that we (your viewers) are always there to support you.
Just so you know- IV medications that come in a dark-colored glass vial have to be protected from light. It’s great that most of your meds are in the solid blue plastic section as that provides additional protection from light. It would be good if you could find a way to give extra protection to your heparin, too. Perhaps your home health company sometimes sends things in a dark brown plastic bag? That is for light protection- you could save one of those. A cardboard or plastic box works well, too. Don’t be overly concerned as the dark vial itself is protection for the medication but storing it in the dark is even better.
Sorry to be so wordy but pharmacist mom couldn’t help herself. 😊
My HHC said the Heprin does not need to be protected from light, just the IV vials. At home it is all stored in the dark and so are the bins, we put them in the closet :)
Thank you for a great video! Although I can't travel my mobility problems require me to keep things nearby. These are great ideas for organizing all the stuff I want close at hand. Much better than the jumbled mess I have now.
You look so pretty today! I love your outfit, especially your necklace and the orange sweater!
I've been looking at those containers for awhile... thanks for the positive feedback! Love your necklace btw💜🦓
Those are great! I love organization ☺️
Beautiful lace sweater. Color is great for you.
Love love LOVE that necklace! And your outfit it so cute. Also, I love those organizer bins, i wonder if they would be good to use in my classroom! I hope you have had a good time, and i wish you safe travels going back home! Stay awesome! 💜
Ann (Judd's mom) got me the necklace :)
Chronically Jaquie she has very good taste!
Good organizing Jaquie!
This was so helpful Jaq!! I'm going to go to target and pick some up :) Also, your comment on the saline fairy was so funny
Two guestion grin lock were do you order it and g tube pads as well
Jaquie your looking so much better now that you have put some weight back on...keep the good work going. Love and Belly Rubs from myself Katy and Foxy (we lost Pookie almost 3 weeks ago)
FYI, Sterilite changes their "styles" so you might want to pick up a few extras of the specific storage boxes you currently have!
Thanks for this video! I'm always looking for travel hacks and this is awesome.
You’re amazing Jaquie! Were you a Girl Scout/Guide when you were little by any chance? Because you’re certainly living the “Be Prepared” lifestyle, my love! Hopingbyou’ve had a safe journey home and a good rest too xxxxx
where's your sweater from?
Thanks! On my way to Target!
They are perfect for travel too, I would rather have to much of something that run out of it too, I always worry about stuff like that
oooooh, as an artist, I am tempted to give this a try for all my beads, findings, tiles, clay. etc. BTW, how does a person mail you a little something?
Love your necklace!
Cute outfit!!
You NEED to submit an application with Target to be sponsored. I’m dead serious. A little income from sponsorships that you really use and endorse products from could be great. Do it girl!
Hey Jaquie,
Have you ever looked into batteries that can be recharged! I find they save me lots of money! Just thought I would mention it! Keep up the awesome work!
I don’t know why more people don’t watch this. Someone elaborate
Thank you, you have given me some ideas for my diabetes supplies when traveling. Have safe travels home.
Im new to your videos but im loving them. Im really curious about your feeding tube an when you get sick, how does it afect the feeding possess or does it not? But anyways thats just my question. I do have to say that you are looking alot better from the other videos ive seen keep up the good work an keep moving forward :) also harlow is soo adorable an amazing.
I hope you've had a lovely holiday Jaquie 🌞😎 xxxx
Harlow is so cute
Hey Jacquie, how often do you change your tubie-pads? I'm asking because I'm going to order some for one of my students who has a tough time keeping the gauze pad on their tummy under their g-tube button! I think they would be a great option for this student and I'm trying to see how many the student will need. Thanks so much, love your videos, wishing you and your family the best! Kisses to Harlow :)
I haven't watched a video in some time, and I just wanted to say you look so good, like you can tell you have gained weight, and you look great! and healthy!
Your outfit is so cute.
Always enjoy your videos, but I must admit that I miss the vlogs. Wishing you well...❣️
They cut off my port supplies and I can't get them to give them back unless I'm infusing and I have the worst Dr in the history of doctors. I have been intubated 11 times, four times already the ambulance and life flight told my dad had I not already been accessed they would not have been able to say me. I'm so frustrated with Kentucky drs! Sorry for the rant. Also I have one of those same bins I found through you!
With your Ivig will you always have to take steroids along side it? Because I know it causes you some swelling ect or can you deal with that?
How do you travel to different states with your MMJ? Or I should say how do you or DO you travel across state lines with your MMJ? Because what I understand and I can be wrong MMJ though legal in some states is illegal in others. Even though you obtain it legally?
Praying for traveling mercy be safe on your ride home.
I just had it in my backpack. I'm not saying this is correct but I didn't really think about the implications until we were already well into our trip. But if I had not taken it with me, I would have gone back to not being able to eat hardly at all and puking relentlessly. With it, I could enjoy my trip.
It's something that people aren't aware of because you obtain it legally in your state but it's illegal in other states. (which is insane to me) I know you packed your medicine, everything you need to feel better & enjoy your trip and since MMJ to you is medicine I'm sure you didn't give it a second thought. I would've taken it too. I'm happy for you it's good to see you out & traveling.
Good morning! I love how organized you are, I really need to step up my game lol
I live in North Carolina
Target sponsorship, where you at!? 😂
Hi Jacquie! Thank you for showing us how you organize everything. You showed it quickly in a vlog one but having a seperate video to look back to is nice. I will be getting an NG tube tomorrow. Please wish me luck, it would mean a lot to me! I'm nervous but hopeful for some relieve
You can do it! Best wishes to you
Chronically Jaquie thank you!!!💜💙💚💛🖤
You are looking great and you are truly a amazing young lady & very informative. Many blessings to you , your husband, Harlow and your family 💗
Jaquei i have the exact same necklece...lol....i am an organizer too....and a control freak as well....but its better to be that way rather than unorganized 🍇🍒🍎🍒🍇🍒🍇🍒🍇
I love your necklace!!
Btw you are an amazing young lady
Love how organization is great with everything for trips and traveling place 🚙love watch in joy y'all video adventures everyday ❤️say hey to Hipo pup 🐶 hope y'all have safe drive back to FL 🏡
You look beautiful, I know your health is bad, but you really do look great
Thank you :) It is a good example of "not all disabilities are visible." But, I don't think my looks are deceiving all the time... Sometimes I do in fact feel as good as I appear :D Other times, not so much.
OH YOU LOOK HEALTHER NOW YOU LOOK GOOD AND WELLER TOO MAY GOD BLESS YOU AND KEEP YOU JAQUIE AND JUDD SORRY IF I SPELLED YOUR NAME WRONG BLESSINGS
Does it hurt when you access and deaccess your port?
Nope! I don't even feel it anymore. If someone else does it, it does hurt a bit but the only time I ever let someone else access me is if I am too sick to do it myself (usually when I am in patient).
Happy holiday
The way you have it organized, anyone can help you if needed.
How are you and how's hippo
I wish Target was my home.
Did I miss something? I've already watched this video last week. Is this a repost or something?
It was unlisted for a few days (meaning only those with a link can view it). But, sometimes a glitch happens and others can watch without the link before I make it public. Not really a bother or anything, just a UA-cam thing. Or maybe you are thinking of the video from several months ago where I first showed these bins.
Chronically Jaquie thanks for the insights. That very well is what may have happened. You're looking good, hope you're feeling just as good. Take care ❤.
And keep moving farward
Where's a place you want to go around the world I want to go to Germany
Lol HOME, I am over traveling for a while. But I do miss Disney!
And hey Jude and juqie
🙋🙋
Heeeeello
super early ahh (3rd comment)