Even after diagnosis and treatment for LAM, a rare lung disease, Meghan leads an active lifestyle
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- Опубліковано 29 кві 2017
- When Meghan needed to know why she couldn’t keep up with her active lifestyle, Loyola Medicine pulmonologist Daniel Dilling, MD, was able to diagnose and get her the treatment she needed for LAM, a rare lung disease. Access to an innovative clinical trial and expert care at Loyola’s LAM clinic meant that Meghan got the help she needed fast. “Knowing that I have that support community within Loyola is huge.” For more information or to make an appointment, please visit www.loyolamedicine.org/find-a... or call 888-584-7888.
- Наука та технологія
Pls help me what should we do
Does anybody know if any research has been done with CBD oils (Cannabidiol) or THC (Tetrahydrocannabinol)? As it is such a rare disease, I'm having trouble finding any studies online regarding LAM and CBD oil. I know that CBD has had amazing results with reversing and even curing other pulmonary diseases, cancers and even seizures, and I was hoping to read any and all data regarding this kind of treatment specifically for LAM. If anyone has any links or information please, I'd love to know. I would greatly appreciate any and all help with this. Thank you very much
My mom Has this.. and we lost every thing over it
rest in peace to your mother man, same with my family horrible disease straight from the fucking devil himself
@@KillumiGnarly same I'm a widower now
I have LAM but no cyst. I just have fluid pleural effusions non stop and the medicine is not helping. I wish there was more I could do
I am going to see a lung specialist about LAM disease very soon. I am hopeful to live until my kids finish college.
Hello sir/mam
My mother had LAM from past 8 years. Please if you can share any info about this disease or any specialist doctor. It would be great help
Did you see a specialist? How you doing? I live in HOuston, Texas. Not happy with my doctoe. There are only a few doctors that treat this disease.
@@barkhatiwari5011 How is your mother doing? Is she getting any treatment?
@@lilinurio8348no, she went through operation during june month... because air cyst(balloon) burst out inside lungs, and due to which fluid get filled inside lungs...so doctor performed an thoracentesis procedure. They were saying it as lung cancer, they dont have any cure or treatment for LAM
My wife is in the hospital with tsc lam. She's pregnant and been in the hospital for almost 2 wks. It's been very tough on us.
Hi i hope she's okay. Can you update us?
@@---do3wv She passed away leaving her daughter and I. She had an apparent respiratory arrest so they intubated. She never was able to recover. She wasn't on rapamycin. She died at 34.
@@Akira282 Im so sorry for your loss. She was very young. I hope you are healing from your loss of your wife and the life you imaged for you both. ❤
@@---do3wv Not really, but it is what it is.
@@Akira282 I have no words that will probably help you, but I do wish the best for you and your daughter
Is there anyone with LAM from Poland?
I have been diagnosed with lam can you please help me
Hi, Jenny! If you're in the Chicago area, you can schedule an appointment with one of our specialists so that they can assess your particular situation to determine the right course of treatment for you. You can schedule either online at www.loyolamedicine.org/appointment or by phone at 888-584-7888. Good luck! -Keisha
i've been diagnosed with LAM and got so stressed about it.
Hi, Nur! I'm sorry to hear about the stress this condition is causing you. If you're in the Chicago area, you can schedule an appointment with one of our specialists either online at www.loyolamedicine.org or by phone at 888-584-7888 to determine your treatment options. Good luck! -Keisha
thank you! I'm from malaysia anyway. i used to met my specialist before, but i believed that there's nothing like those treatments here in my country. even if it was, that will cost a lot and not gonna be covered by medical insurances. anyway, this video is such an inspiring for me. i really hope i could live a better life in future.
Nur Hidayah hi！I also from Malaysia with LAM and FU at IPR. Have just started Sirolimus for 10 days.
Nur Hidayah where do you follow up？
Mei Hing Wong hey there! I did my follow up treatments before in Pantai Hospital Ayer Keroh, Melaka. But m working in johor. It's been a while since my last check up. Where r u from?
Pls any body tell me in hindi