Very nice summary. I always wondered why I could naever stay awake, for decades while in the Navy and being a professional engineer. It's now been 40+ years, and finally after going for a sleep study in 1995 I understood why. Don't ignore this. You will ALWAYS be tired. ALWAYS. Well, likely not uplifting, but maybe it helps someone. I am 62 years old, and been afflicted with this my entire life. It's easier before being an adult, completely horrible as a working adult, and still terrible in retirement. Sleep is a sometimes acquaintance. Always tired, unless you take amphetimines, and those are always incredibly expensive. Well, enough of that. Narcolepsy is a no shit problem. Apologies for posting, but if one person gets advantage, I have paid my dues to the future.
how did you solve it? with stimulants (amphetamines) like adderall? or did you take modafinil or ritalin or xyrem? narcolepsy type 1 or 2? i have excessive daytime sleepiness
@@amedeocristiano2026 Stimulants, yes. For me, the only thing that works is the good old fashioned dextroamphetamine. I tried all the rest, and nothing else really worked. It's a shame, because federal and state governments want to further limit or ban amphetamines, but can't because there are still a lot of people who actually need them. So they are difficult to get and expensive. And if you haven't gone for a sleep study, do so. Don't guess. When you have a diagnosis of narcolepsy, find a physician who specializes in its care and stay with them. It's worth the time and effort.
I had episodes of multiple sleep paralysis in a row while falling asleep, I'd wake myself up shaking it off just to fall into it again Like an unending assault, getting more tired with each instance of sleep paralysis and being unable to actually sleep. It sucked, but was sort of fascinating at the same time.
Thank you for sharing this valuable and vital information ! As a child I would wake up paralyzed and I could not cry out for my mom ! Eventually I realized that it I just fell asleep again , I would wake up just fine ! I hope that experience never comes back because it’s horrible ! Monday February 28th 2022 ! ❤️❤️❤️👍👍👍♥️♥️♥️😊😊😊🤗🤗🤗
That’s sleep paralysis If you only had a sleep paralysis episode once in several years then treatment’s not necessary But if it becomes more frequent or you have trouble sleeping then you should talk to your doctor about it
I honestly believe I have narcolepsy ever since I had cvid. I fell asleep in the drive thru, sitting at work, after a night of sleep. At random times I just fall asleep for a few seconds or minutes. Even happened while watching this video. I just wanna go back to normal 😥
@namoradadavi5357narcolepsy isn’t something you can just get rid of. A person with narcolepsy has it for their entire life. I was diagnosed with narcolepsy with cataplexy in 2015. You can manage it, but there is no “cure”
3:56 As someone with narcolepsy my only thing to add is that not all hallucinations are frightening, I’ll have hallucinations that have to do with my phone going off, or that my roommates are talking to me when they’re not. I’ve noticed that generally when I’m sleeping alone I don’t even notice them because I just think they’re real most of the time :), I’d also note that while not everyone has all five, whether or not you have Cataplexy actually determines wether you have type 1 or type 2 narcolepsy, which can be very important in day-to-day functioning. (These are just my observations as someone with narcolepsy, I’m watching these videos to find out more though, so if my info is wrong lmk :) )
For a while I've been wondering why I'm so tired all the time and can sleep three times during the day and still have my eight hours of sleep at night with short intervals. I've been looking into chronic fatigue but apparently you can't be diagnosed with depression or other mental illness in order to be diagnosed with fatigue? A fellow student told me a week ago she has narcolepsy and she recognises some of my symptoms. But now I'm too scared to go to the sleep clinic.
Ok so here’s my theory on why I have narcolepsy and nobody else in my family does: My body has a lot of tension. If I stop thinking I stop breathing because I actually can’t just breathe automatically. I actually have no chill because if I do I get cataplexy. I’m alive but I can’t really live and my only respite from the pain is sleep but even that is plagued with nightmares, sleep paralysis, tossing, turning and waking up so I can breathe again. My brain is trying to achieve the state of mind you would have when you are in the womb and trying to grow. I get sleep attacks to force my mind to shut down (and in doing so eventually I will stop breathing) and for it to suffocate. Why suffocate? This will cause my brain to fire off signals to the body to convulse and wake up, but more accurately it is trying to connect to the body in a less tense manner. It’s a bit hard to explain but I held my breath for a while to stop myself from breathing. I did it long enough to for it to feel like I needed to have a seizure. Part(s) of my brain that I don’t usually feel felt like they’d awakened, albeit briefly, from a long slumber and part of my chest felt looser. I held my breath for as long as I could, feeling my brain activity going crazy, then gasped deeply for air. I felt like part of my lungs were being used for the first time! The tightness in my chest is more on the right side and I feel like not a lot of oxygen goes to the right lung (evidenced by an observation I made whilst in a swimming pool. When I inhaled, only the left side of my chest rose above the water and when I exhaled it was still only the left side of my chest moving) BUT this time it felt like I was breathing like how I do sometimes in my dreams, even though its never happened in real life. I didn’t really do anything to deserve this torture but I’m listening to what it means and where it comes from as best I can. Narcolepsy may have undone my ego but it has put me on a unique life path that I will one day be able to say was all worthwhile!
@@RashminderKaurindia i was on dexamphetamine and modafinil. Both did nothing, except the dex turned my hereditary high functioning depression into just depression. Honestly its hard to say what (if anything) works but I'm going to keep trying. I'm very much on the 'live life the way I think it should' path, exploring new territory especially on the female relationships path and hoping my trust in others becomes a rewarding experience. I'm engaged with life and want to wake up to it every day, now moreso than ever. Perhaps your husband just needs some time ti listen to himself, what he wants out of life and to just go for it!? Hope this makes sense I'm half asleep as you know haja
I searched for this to find out what was wrong with the man i shared a room 10 years ago... The man would be fully awake and talking and suddenly falls asleep... I was shocked at how sudden his sleep pattern was.
I keep having extreme sleep through the day that gets better and worse for a few weeks or week at a time but like this week it’s so bad I can’t stay awake or im exhausted as hell and it affects my daily tasks it’s awful I want to do things but I am just so exhausted and don’t understand what’s happening
im starting to think i have narcolepsy, everything feels so unreal i cant explain it it just does i feel like a stranger to my own body im always tired no matter what i do i get atleast 3-4 sleep paralyses per week if im lucky per month im just trying to keep myself busy so i stop thinking about it
😢 i have since i dont have ritalin it ruins my life. I wait for my ritalin. I dont recognize myself sincethey stoppdd this. Living on coffee is not good. Hooe my doctor or a dictor will give me bsck inwould sleep every minute it impact my life.😢😢😢😢😢😢 i dont knoe whag i will do if i dont have it soon sm on zolift it dont hrlp at ALL.
@@karineaudet6270 I also so struggle with this. I almost 40 year old. Never marry, own a car or house, because I constantly tired. If by chance you get any alternative to treat this illness, please share with me
@@compassion7249 not me i was alcohoolic and it saved my life. I nearly died in a car thing and broke something too i could have die. And a psychiatrist gave ritalin, in 3 days j was focused, healed didnt need alcohol , went to school, began to study, and had my life back. I didnt touch alcohol since 15 years. Life saver miracle. Why did she stopped it??? She should not work its like removing insulin from a diabetic. You can try sugar too, coffee, exercice, bur at long term only thing that work realky for me is ritalin but its me. Now I have severe depression since ritalin withdrawal. What a good idea. Along with covid like. God help me. Give me my med back.
Hi, not to bother you but I'm curently working on my story right now and I'd like to make some research before writing any ideas, I'd like to make it somehow educational. In my story there is a girl with narcolepsy ( I think ), she just stuck on her dream thinking it's the reality but in reality, she was just sleeping in a hospital bed for weeks. do you think this type of disease also an example or narcolepsy?
yeah i’ll get so much sleep in the night, but still fall asleep uncontrollably in the day
:((
I have classic narcolepsy and found this clip spot on, 100% accurate 👌,
Thanks, be lucky!
Thank you! 🙏🏼
Very nice summary. I always wondered why I could naever stay awake, for decades while in the Navy and being a professional engineer. It's now been 40+ years, and finally after going for a sleep study in 1995 I understood why. Don't ignore this. You will ALWAYS be tired. ALWAYS.
Well, likely not uplifting, but maybe it helps someone. I am 62 years old, and been afflicted with this my entire life. It's easier before being an adult, completely horrible as a working adult, and still terrible in retirement. Sleep is a sometimes acquaintance. Always tired, unless you take amphetimines, and those are always incredibly expensive.
Well, enough of that. Narcolepsy is a no shit problem. Apologies for posting, but if one person gets advantage, I have paid my dues to the future.
how did you solve it? with stimulants (amphetamines) like adderall? or did you take modafinil or ritalin or xyrem? narcolepsy type 1 or 2? i have excessive daytime sleepiness
@@amedeocristiano2026 Stimulants, yes. For me, the only thing that works is the good old fashioned dextroamphetamine. I tried all the rest, and nothing else really worked. It's a shame, because federal and state governments want to further limit or ban amphetamines, but can't because there are still a lot of people who actually need them. So they are difficult to get and expensive. And if you haven't gone for a sleep study, do so. Don't guess. When you have a diagnosis of narcolepsy, find a physician who specializes in its care and stay with them. It's worth the time and effort.
I had episodes of multiple sleep paralysis in a row while falling asleep, I'd wake myself up shaking it off just to fall into it again
Like an unending assault, getting more tired with each instance of sleep paralysis and being unable to actually sleep. It sucked, but was sort of fascinating at the same time.
this usually happens to me when I am exhausted.
same :/ I can tell it's happening but I can't stop it because I'm physically unable to keep myself awake
Thank you for sharing this valuable and vital information ! As a child I would wake up paralyzed and I could not cry out for my mom ! Eventually I realized that it I just fell asleep again , I would wake up just fine ! I hope that experience never comes back because it’s horrible ! Monday February 28th 2022 ! ❤️❤️❤️👍👍👍♥️♥️♥️😊😊😊🤗🤗🤗
That’s sleep paralysis
If you only had a sleep paralysis episode once in several years then treatment’s not necessary
But if it becomes more frequent or you have trouble sleeping then you should talk to your doctor about it
@@AlAl-bk5ei thank you ! ❤️❤️❤️👍👍👍♥️♥️♥️
There's a medicine called Prazosin that has wiped those out for me.
I honestly believe I have narcolepsy ever since I had cvid. I fell asleep in the drive thru, sitting at work, after a night of sleep. At random times I just fall asleep for a few seconds or minutes. Even happened while watching this video. I just wanna go back to normal 😥
Honestly i feel the same way, randomly i'll fall asleep, i dont even have to shut my eyes fully.
Get checked to anemia, thyroid hormones , check for depression and try to sleep on regular hours ,enjoy ur day more
@namoradadavi5357narcolepsy isn’t something you can just get rid of. A person with narcolepsy has it for their entire life. I was diagnosed with narcolepsy with cataplexy in 2015. You can manage it, but there is no “cure”
Well DON'T BELIEVE THIS OR drs.... seriously....
@@fozzz-vb5oj whenthey prescribe....
Thank you for the video, i was asleep when the professor explained this 😁
You're welcome, Lama! 😊
LOL-
FANTASY BOT
FIRST OFF.... NOT ACCURATE
DANGEROUS AND INACCURATE
Funny if YOU ARE A HEARTLESS and NOT REMOTELY HUMAN
Can you guys do a video on idiopathic hypersomnia ? Also, can one have a subclinical or like lower level of narcolepsy ?
Thanks
Thanks for your recommendation! Our team will be taking this into consideration. Have a wonderful weekend! 💖
This explains alot actually, thanks for the information
Glad it was helpful! 😊
😢 this is all spot on for me.
Thanks for the lesson John Mulaney
💕🥰🫀
3:56 As someone with narcolepsy my only thing to add is that not all hallucinations are frightening, I’ll have hallucinations that have to do with my phone going off, or that my roommates are talking to me when they’re not. I’ve noticed that generally when I’m sleeping alone I don’t even notice them because I just think they’re real most of the time :), I’d also note that while not everyone has all five, whether or not you have Cataplexy actually determines wether you have type 1 or type 2 narcolepsy, which can be very important in day-to-day functioning. (These are just my observations as someone with narcolepsy, I’m watching these videos to find out more though, so if my info is wrong lmk :) )
Tanks for te information
Our pleasure! ❤️
Thank you so much osmosis team for everything
Glad to help, Bella! 😊
Make a video on sodium oxybate (xywav), just got prescribed it but it’s not well known to doctors or people
thanks this is very helpful
You're welcome! 😊
For a while I've been wondering why I'm so tired all the time and can sleep three times during the day and still have my eight hours of sleep at night with short intervals. I've been looking into chronic fatigue but apparently you can't be diagnosed with depression or other mental illness in order to be diagnosed with fatigue? A fellow student told me a week ago she has narcolepsy and she recognises some of my symptoms. But now I'm too scared to go to the sleep clinic.
Ok so here’s my theory on why I have narcolepsy and nobody else in my family does:
My body has a lot of tension. If I stop thinking I stop breathing because I actually can’t just breathe automatically. I actually have no chill because if I do I get cataplexy. I’m alive but I can’t really live and my only respite from the pain is sleep but even that is plagued with nightmares, sleep paralysis, tossing, turning and waking up so I can breathe again.
My brain is trying to achieve the state of mind you would have when you are in the womb and trying to grow. I get sleep attacks to force my mind to shut down (and in doing so eventually I will stop breathing) and for it to suffocate. Why suffocate? This will cause my brain to fire off signals to the body to convulse and wake up, but more accurately it is trying to connect to the body in a less tense manner.
It’s a bit hard to explain but I held my breath for a while to stop myself from breathing. I did it long enough to for it to feel like I needed to have a seizure. Part(s) of my brain that I don’t usually feel felt like they’d awakened, albeit briefly, from a long slumber and part of my chest felt looser. I held my breath for as long as I could, feeling my brain activity going crazy, then gasped deeply for air. I felt like part of my lungs were being used for the first time!
The tightness in my chest is more on the right side and I feel like not a lot of oxygen goes to the right lung (evidenced by an observation I made whilst in a swimming pool. When I inhaled, only the left side of my chest rose above the water and when I exhaled it was still only the left side of my chest moving)
BUT this time it felt like I was breathing like how I do sometimes in my dreams, even though its never happened in real life.
I didn’t really do anything to deserve this torture but I’m listening to what it means and where it comes from as best I can. Narcolepsy may have undone my ego but it has put me on a unique life path that I will one day be able to say was all worthwhile!
You should try to do inpatient therapy, might really help ❤
What treatment have you tried if any has ever helped? My husband suffers something very very similar to this...
@@RashminderKaurindia i was on dexamphetamine and modafinil. Both did nothing, except the dex turned my hereditary high functioning depression into just depression.
Honestly its hard to say what (if anything) works but I'm going to keep trying. I'm very much on the 'live life the way I think it should' path, exploring new territory especially on the female relationships path and hoping my trust in others becomes a rewarding experience.
I'm engaged with life and want to wake up to it every day, now moreso than ever.
Perhaps your husband just needs some time ti listen to himself, what he wants out of life and to just go for it!?
Hope this makes sense I'm half asleep as you know haja
Oh joy.. I experience all 5.. 😂. They’ve subsided with medications but before I was on them, it was terrible!
What medications?
what medication ?
Tgank you
Advice for my nine years old son, who reacted badly on modafinil and we stopped the medication, currently at home can't cope with school
So can narcolepsy be acquired since your brain cells are naturally deteriorating?
I searched for this to find out what was wrong with the man i shared a room 10 years ago... The man would be fully awake and talking and suddenly falls asleep... I was shocked at how sudden his sleep pattern was.
I keep having extreme sleep through the day that gets better and worse for a few weeks or week at a time but like this week it’s so bad I can’t stay awake or im exhausted as hell and it affects my daily tasks it’s awful I want to do things but I am just so exhausted and don’t understand what’s happening
Automatic behaviors is also a big symptom
I need to get meds or those sine waves are going to make me sleep every 3 hours.....
My life is already ruined by narcolepsy. 😢
It horrible to have even fun stuff is like work. If your not on medication get Vyvanse and look at testosterone levels.
Give me my meds!
im starting to think i have narcolepsy, everything feels so unreal i cant explain it it just does i feel like a stranger to my own body im always tired no matter what i do i get atleast 3-4 sleep paralyses per week if im lucky per month im just trying to keep myself busy so i stop thinking about it
Sounds like you’re dissociating too. Derealization/depersonalization
Is this narcolepsy?
Well its been a week now and I kept sleeping and sleeping every afternoon and I can't control it. It's been affecting me so bad.
Here again because this video is great for explaining to people who don't understand what I have lol
We hope this helps! 🙏🏼
A documentary about narcolepsy
Idk if i have this coz ik constantly tired in class
What are the treatments?
Stimulants usually
@@taracori8 but many stimulants will ruin havoc our health. Such as caffeine make us insomnia and nervous
😢 i have since i dont have ritalin it ruins my life. I wait for my ritalin. I dont recognize myself sincethey stoppdd this. Living on coffee is not good. Hooe my doctor or a dictor will give me bsck inwould sleep every minute it impact my life.😢😢😢😢😢😢 i dont knoe whag i will do if i dont have it soon sm on zolift it dont hrlp at ALL.
@@karineaudet6270 I also so struggle with this. I almost 40 year old. Never marry, own a car or house, because I constantly tired. If by chance you get any alternative to treat this illness, please share with me
@@compassion7249 not me i was alcohoolic and it saved my life. I nearly died in a car thing and broke something too i could have die. And a psychiatrist gave ritalin, in 3 days j was focused, healed didnt need alcohol , went to school, began to study, and had my life back. I didnt touch alcohol since 15 years. Life saver miracle. Why did she stopped it??? She should not work its like removing insulin from a diabetic. You can try sugar too, coffee, exercice, bur at long term only thing that work realky for me is ritalin but its me. Now I have severe depression since ritalin withdrawal. What a good idea. Along with covid like. God help me. Give me my med back.
I'm sleepy all of the time but it's called multiple sclerosis.
My mom has this
Hi, not to bother you but I'm curently working on my story right now and I'd like to make some research before writing any ideas, I'd like to make it somehow educational. In my story there is a girl with narcolepsy ( I think ), she just stuck on her dream thinking it's the reality but in reality, she was just sleeping in a hospital bed for weeks. do you think this type of disease also an example or narcolepsy?
can you explain it in simple words, sorry I'm just 14 years old a wanna be writer>.
The title of my story is REM if ever you wonder.
No, fellow narcoleptic here, this is not an exemple of Narcolepsy, we have sleep paralysis so frequently that most of the times we are aware of it.
And it doesn't last more than a few minutes.
Even tough sometimes we are trying to break out of but we're unable to do so.
Can People with Narcolepsy hear while sleeping?
Most of the time for me
A lot of the time I can hear and am aware of what's going on around me
I'm sleep walking 💤
I never knew I had narcolepsy. Iva had it all my life. I thought I was just different in a weird way . :(
I will be doing something and then a minute or 2 I'll wake up
Any boddy here overcome cataplexy ?
I fell asleep watching this diagnosis 💀
Or you take a nap for 5 hours during the day and wide awake the whole freaking night.
🥂
First .
I felt asleep while watching this😢
NOT ACCURATE
NOT EVEN REMOTELY ACCURATE
THIS IS EXTREMELY HARMFUL
THIS IS NOT ACCURATE
That damn turtle cracked me up bro