Can you please make a video on how we determine the damaged lesion (brain, spinal, or peripheral nerves) through a motor clinical examination... Thank you!!
Good channel. Very informative and professional, yet accessible. I haven't been diagnosed, but I got questions about symptoms. Is MS numbness a full numb state or just tingling? How long it lasts? I been having lots of weird symptoms. Fasciculations everywhere, fatigue, drooling while sleeping, prickling/tingling, bad sleep... Im afraid it could be MS or even ALS which made my anxiety stratospheric high.
Yes, but don't you also need to start with what the patient's insurance will cover? In my experience, the insurance company would not cover the more effective dmd without trying the less effective ones first. So the conversation and decision w my neurologist ended up useless.
As usual a very useful video, thanks Dr. Boster! Q: how is bone marrow transplant considered in relation to MS? I heard about someone with MS having it transplanted, how can it be useful for the disease? Thank you
My partner, who has MS, was on Gilenya. He experienced a lowered heart rate throughout the duration of his treatment. He lost his ability to sweat. He suffered so many side effects. I don't think we know enough Abbott Gilenya yet to say these things don't happen. I'm hearing stories from more people who are deciding not to take treatments due to side effects.
Dr. Boster I was wondering how you feel about Bone Marrow transplants for an MS cure. As you know Selma Blair came out having MS and she just recently went through this procedure. I wanted to get your professional opinion on the subject. Thanks for all you do!
QUESTION: Can anything be done to stop physical progression of right side weakness? I have RR and have not had a relapse or new lesion for over 1 yr but my right side (old symptoms) continue to slowly worsen. (Walking, drop foot, arm weakness, hand weakness and spasticity are all worsening) I’m only 1 and a half years post MS diagnosis and I’m 6 months on Ocrevus. Nero says nothing more can be done, I’ve tried baclofen, amperia, and gabapentin but they’ve had no effect. (I’m in Canada) Thank you for the great work you do! You’re helping so many people!
Faulk You have to check, and perhaps change, your diet and lifestyle. Also, check to make sure you're not deficient in any nutrient, especially vitamin d and b12. Drink lots of pure water, exercise and stretch, sleep well, eat very (VERY) cleanly.
Kinda off topic: do you see any patients diagnosed with both MS and ALS (I know it's very rare)? I've been diagnosed with MS since 2013, started taking Aubagio about 3 weeks ago. I have been having quite a bit of generalized body twitching for the past 5 weeks (calves, thighs, biceps, finger, eyelids, rib cage area to name a few) and aches in my legs, forearms, upper and lower back. My anxiety has been very high as I am thinking these may be signs of ALS. I am not seeing any obvious weakness, but my anxiety and pessimism has gotten the best of me. Thank you in advance for any help you can provide.
Oh no, I have to go to the airport and will miss this. I'll certainly watch it later, Dr B. My question is about silent progression and the limitation of current outcome measures, whether subjective or objective. How significant do you think silent progression and when do you think we'll get close to better monitoring and managing it? Sorry, if my question isn't clear. This is what scares me, feeling perfectly well but knowing that it may always be smouldering.
Hey doc Can you please reply with link for the cool vests please? I am really having hard time with heat and we keep hitting between 110 and 125 degrees here with heat index lately :(
I don't know where to ask you about this but I'm interested in if you have any thought about the recent Trials of remyelination drugs or if it's too early to have an opinion? I'm very excited about that.
Paula here. Hi Doc. Thanks for what you do! Just got diagnosed. Doc wants to hop on Gilenya right away. Optic Nueritis bout in left eye then 6 months later second bout in right eye. About 6 lesions on my brain. Abnormal lumbar punture. AE of Gilenya is occular edema. I don't feel comfortable with that side effect. Do you?
I don't remember being so fatigued when I was on tysabri... as oppposed to now that I am on lemtrada... My second round will be on October and I wonder if it will get worse... 😔
Jamie Any NEW symptom that lasts for more than 24 hours. If it's an old symptom that resurfaces, say from being under stress, the heat, or being really tired, then it's a pseudo relapse.
Could this MRI report be the start of MS I had a heart cath and developed a blood clot in my arm. And woke up with dizzyness and a bad headache and had vertigo. This is a paragraph of MRI report . (Punctate T2 signal abnormality in the substantia nigra location above the right and left pons location. Findings likely represent focal gliosis mainly secondary to focal microvascular infarction. Again, this is chronic.) My hands and arm go numb and my feet hard all the time and I have 1200 large grander cells and my white count stays high also. Please tell me if I need to have this investigating by a doctor. Thanks
I would recommend that if you have other relatives with this disease, don't just say "my (relatives connection to you) takes xxx medicine so it will work for me." That's a big no-no! (Learned that the hard way). Also, does interferons cause your body become adjusted to the treatment and become less effective after years of treatment? Thanks for your channel!
Is it possible to still have perfectly working organs (liver, kidneys, heart, pancreas, etc..) while taking Ocrevus, or is some damage inevitable? Thank you!
When I knew I was going to start Ocrevus, I saw my PCP, and got every vaccine I could; The anti-shingles one, the pneumonia ones, all generally safe boosters including tetanus and MMR. Doc, I think you ought to explain about vaccines and Ocrevus!! People need flu-shots, etc., while on Ocrevus. If you could highlight why Ocrevus affects d
Hi. Great video. My question is related to age and disease progression. I haven’t had any MRI activity or relapses on Ocrevus but I am still progressing. At over 50 would you still recommend Lemtrada and why?
Doc, when I knew I was going to start Ocrevus, I saw my PCP, and got every vaccine I could; (turned out to be more than I thought, and some require a second shot) I definitely got the anti-shingles one, the latest flu shot, the pneumonia ones, all the generally safe boosters including tetanus and MMR. Doc, I think you ought to explain about vaccines and Ocrevus!! People need flu-shots, etc., while on Ocrevus. Get that info out there. Don't let people risk getting something as miserable as flu or shingles, for instance, b/c they have to dance around the Ocrevus schedule. Explain how Ocrevus can suppress the ability to develop new immunities based on when the Ocrevus infusions are given, and give pts the opportunity to get vaccines. That should be a priority for all ppl who plan to start Ocrevus so they can plan and time their annual flu shots, for instance. What I typed here may alarm some people considering Ocrevus, and that is not my intention. I'm on it, and I love it. I would never risk missing a flu shot, however, bc I was not warned about adjusting my vacc schedule around Ocrevus. Ppl need to know how to time them for best possible effectiveness. Personally, I think that ought to be the first instruction; While waiting for the approval process, etc., ppl should get their shots!!!
@@meloneyparker thanks. I get a bit weird about vaccines! Sorry I was so adamant. I know the info is out there and I shouldn't be such a panicker. I had a terrible flu in '13, (variant missed that year in the mix), and my mom had the luck to get shingles twice -- very unusual, and very scary. Two of the the ppl in my MS Wellness exercise class never came across it before starting Ocrevus. Sorry about my verbal panic attack!
Hello, dr Boster, and thanks for everything! I have a question: I'm late with the dose of Ocrevus, because my doctor is on vacation. I think the delay will be about s month. Are there any possible consequences because of the delay? Thanks :)
Great video as always ~ But to be honest... I felt a little bit disappointed with the last question about Lemtrada.. In 3 weeks I'll start Lemtrada and I had an inner hope that maybe some symptoms could fade away.. Actually not everything. I don't care about everything. I just wanted to stop feeling dizzy n having endless headaches. A weak leg or balance it's a piece of cake.. but heavy n dizzy head. . I can't stand it.
Thanks Dr. Boster for the video. As always very informative. Q: Can MS patients donate blood/organs? I received conflicting answers from two blood banks to this question. Also, it’s my understanding that taking ibuprofen with each Rebif injection is harmful to the kidneys. I was advised to switch to paracetamol.
Here in Israel, people seem to take paracetamol or ibuprofen according to personal preference as to what quells their headache / lowers their fever better. If I remember my brand names, it's like the difference between Bufferin, or rather what they call here Acemol, and Tylenol. Small change compared to what we've been through. Good luck.
I asked the blood donation questions to the American Red Cross. They said having MS does NOT preclude one from donating blood. The one caveat is people taking Aubagio, who are supposed to wait to donate 2 years after finishing Aubagio.
Hey Doctor B.Nice video.I do have a small question.I have had MS for ohhhh 15-20 years now(7 yrs officially diagnosed)..I take Baclofen and I still twitch and hurt a lot.Take neurontin 300mg X2 a day and BP meds. what DMT would you advise that I look towards or ask more about when I see my Neurologist?lots of spasms ,face,chest and gut and arm.and my legs LOL ok whole body really and my Jaw(rt side) never sleeps.always up twitching and hard spasms at times. and what other meds might I look towards for potential pain relief with MS mellowing maybe? have not been seeing my Doc for long but she nice and seems to wanna help but when I asked her what DMT or series of meds I should be on,she was like hmmm, so Im just trying to gain a little knowledge in what you would might advise.Thank you doc. :) Also take methacarbomol 300mg as needed but doesnt help much.THX again man, Love ya.
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I think the DMT Birth Control comparison/prevention idea is right on!
Thank you for your videos!!! Can you do a video on clinical trials that look promising.
Sharing
Can you please make a video on how we determine the damaged lesion (brain, spinal, or peripheral nerves) through a motor clinical examination... Thank you!!
Yes please
Good channel. Very informative and professional, yet accessible. I haven't been diagnosed, but I got questions about symptoms. Is MS numbness a full numb state or just tingling? How long it lasts? I been having lots of weird symptoms. Fasciculations everywhere, fatigue, drooling while sleeping, prickling/tingling, bad sleep... Im afraid it could be MS or even ALS which made my anxiety stratospheric high.
Good morning. I have rrms for 23 years. Im on tecfidera now
Thanks again
👌🏼👍🏻 great video
Yes, but don't you also need to start with what the patient's insurance will cover? In my experience, the insurance company would not cover the more effective dmd without trying the less effective ones first. So the conversation and decision w my neurologist ended up useless.
As usual a very useful video, thanks Dr. Boster!
Q: how is bone marrow transplant considered in relation to MS? I heard about someone with MS having it transplanted, how can it be useful for the disease? Thank you
My partner, who has MS, was on Gilenya. He experienced a lowered heart rate throughout the duration of his treatment. He lost his ability to sweat. He suffered so many side effects. I don't think we know enough Abbott Gilenya yet to say these things don't happen. I'm hearing stories from more people who are deciding not to take treatments due to side effects.
I love ocuverus. I hope it remains good.
Thank you for everything in our knowlege base that you are contributing to all of us!! A huge heartfelt thank you fron me. ❤❤❤❤❤
Dr. Boster I was wondering how you feel about Bone Marrow transplants for an MS cure. As you know Selma Blair came out having MS and she just recently went through this procedure. I wanted to get your professional opinion on the subject. Thanks for all you do!
What are your thoughts on aubagio?
QUESTION:
Can anything be done to stop physical progression of right side weakness?
I have RR and have not had a relapse or new lesion for over 1 yr but my right side (old symptoms) continue to slowly worsen.
(Walking, drop foot, arm weakness, hand weakness and spasticity are all worsening)
I’m only 1 and a half years post MS diagnosis and I’m 6 months on Ocrevus. Nero says nothing more can be done, I’ve tried baclofen, amperia, and gabapentin but they’ve had no effect. (I’m in Canada)
Thank you for the great work you do! You’re helping so many people!
Faulk You have to check, and perhaps change, your diet and lifestyle. Also, check to make sure you're not deficient in any nutrient, especially vitamin d and b12. Drink lots of pure water, exercise and stretch, sleep well, eat very (VERY) cleanly.
Great overview on subscribers question! Thanks Aaron!!
+1 subscriber
Kinda off topic: do you see any patients diagnosed with both MS and ALS (I know it's very rare)? I've been diagnosed with MS since 2013, started taking Aubagio about 3 weeks ago. I have been having quite a bit of generalized body twitching for the past 5 weeks (calves, thighs, biceps, finger, eyelids, rib cage area to name a few) and aches in my legs, forearms, upper and lower back. My anxiety has been very high as I am thinking these may be signs of ALS. I am not seeing any obvious weakness, but my anxiety and pessimism has gotten the best of me. Thank you in advance for any help you can provide.
Thank you Dr.Boster for this video. Thanks for the humour with the beard😂
You mentioned tecfidera and oxidative stress is there any advantage to taking supplements to reduce oxidative stress?
Oh no, I have to go to the airport and will miss this. I'll certainly watch it later, Dr B. My question is about silent progression and the limitation of current outcome measures, whether subjective or objective. How significant do you think silent progression and when do you think we'll get close to better monitoring and managing it? Sorry, if my question isn't clear. This is what scares me, feeling perfectly well but knowing that it may always be smouldering.
Question about Gilenya: 1. Are Flulikesymptoms possible? 2. right or wrong? the longer you take Gilenya the Risk of "Reboundpossibility" is higher?
What MRI’s should we typically have? I have had brain & cervical spine, are there others we should have to show disease progression?
Hey doc
Can you please reply with link for the cool vests please? I am really having hard time with heat and we keep hitting between 110 and 125 degrees here with heat index lately :(
I don't know where to ask you about this but I'm interested in if you have any thought about the recent Trials of remyelination drugs or if it's too early to have an opinion? I'm very excited about that.
Paula here. Hi Doc. Thanks for what you do! Just got diagnosed. Doc wants to hop on Gilenya right away. Optic Nueritis bout in left eye then 6 months later second bout in right eye. About 6 lesions on my brain. Abnormal lumbar punture. AE of Gilenya is occular edema. I don't feel comfortable with that side effect. Do you?
Ha! Waiting for that picture of you with long curly hair!
Love the curly hair!! (coming from someone who has curly hair).
I don't remember being so fatigued when I was on tysabri... as oppposed to now that I am on lemtrada... My second round will be on October and I wonder if it will get worse... 😔
What you think about rituxan and for how long you can take it thank u doctor hace nice day god bless
I'm sorry I cant watch ur show any longer.It makes me scared of what may happen to me.
Hey Doc it is wednesday and I went to go watch your podcast and it said it wasnt on here. What happened? Just wondering Elaine in Kingman Az
Can you do a video on how to recognize a relapse? I have been told i have RRMS but i dont think i know what a relapse feels like.
Jamie
Any NEW symptom that lasts for more than 24 hours. If it's an old symptom that resurfaces, say from being under stress, the heat, or being really tired, then it's a pseudo relapse.
Could this MRI report be the start of MS I had a heart cath and developed a blood clot in my arm. And woke up with dizzyness and a bad headache and had vertigo. This is a paragraph of MRI report . (Punctate T2 signal abnormality in the substantia nigra location above the right and left pons location. Findings likely represent focal gliosis mainly secondary to focal microvascular infarction. Again, this is chronic.) My hands and arm go numb and my feet hard all the time and I have 1200 large grander cells and my white count stays high also. Please tell me if I need to have this investigating by a doctor. Thanks
I would recommend that if you have other relatives with this disease, don't just say "my (relatives connection to you) takes xxx medicine so it will work for me." That's a big no-no! (Learned that the hard way). Also, does interferons cause your body become adjusted to the treatment and become less effective after years of treatment? Thanks for your channel!
Do you have any suggestions on exercise and MS?
ua-cam.com/video/jFMCUA0igu4/v-deo.html
Is it possible to still have perfectly working organs (liver, kidneys, heart, pancreas, etc..) while taking Ocrevus, or is some damage inevitable? Thank you!
When I knew I was going to start Ocrevus, I saw my PCP, and got every vaccine I could; The anti-shingles one, the pneumonia ones, all generally safe boosters including tetanus and MMR. Doc, I think you ought to explain about vaccines and Ocrevus!! People need flu-shots, etc., while on Ocrevus. If you could highlight why Ocrevus affects d
I recall hearing about vaccines in a few of his Ocrevus videos. See the Ocrevus playlist. I remember because I did research on it before starting it.
Hi. Great video. My question is related to age and disease progression. I haven’t had any MRI activity or relapses on Ocrevus but I am still progressing. At over 50 would you still recommend Lemtrada and why?
is hurting inside your ears a symptom ??????
Doc, when I knew I was going to start Ocrevus, I saw my PCP, and got every vaccine I could; (turned out to be more than I thought, and some require a second shot) I definitely got the anti-shingles one, the latest flu shot, the pneumonia ones, all the generally safe boosters including tetanus and MMR. Doc, I think you ought to explain about vaccines and Ocrevus!! People need flu-shots, etc., while on Ocrevus. Get that info out there. Don't let people risk getting something as miserable as flu or shingles, for instance, b/c they have to dance around the Ocrevus schedule. Explain how Ocrevus can suppress the ability to develop new immunities based on when the Ocrevus infusions are given, and give pts the opportunity to get vaccines. That should be a priority for all ppl who plan to start Ocrevus so they can plan and time their annual flu shots, for instance. What I typed here may alarm some people considering Ocrevus, and that is not my intention. I'm on it, and I love it. I would never risk missing a flu shot, however, bc I was not warned about adjusting my vacc schedule around Ocrevus. Ppl need to know how to time them for best possible effectiveness. Personally, I think that ought to be the first instruction; While waiting for the approval process, etc., ppl should get their shots!!!
In my research on Ocrevus I watched all of the Ocrevus videos and vaccinations were discussed. He has an Ocrevus playlist. 👍👍
@@meloneyparker thanks. I get a bit weird about vaccines! Sorry I was so adamant. I know the info is out there and I shouldn't be such a panicker. I had a terrible flu in '13, (variant missed that year in the mix), and my mom had the luck to get shingles twice -- very unusual, and very scary. Two of the the ppl in my MS Wellness exercise class never came across it before starting Ocrevus. Sorry about my verbal panic attack!
Hello, dr Boster, and thanks for everything! I have a question: I'm late with the dose of Ocrevus, because my doctor is on vacation. I think the delay will be about s month. Are there any possible consequences because of the delay? Thanks :)
Great video as always ~ But to be honest... I felt a little bit disappointed with the last question about Lemtrada.. In 3 weeks I'll start Lemtrada and I had an inner hope that maybe some symptoms could fade away.. Actually not everything. I don't care about everything. I just wanted to stop feeling dizzy n having endless headaches. A weak leg or balance it's a piece of cake.. but heavy n dizzy head. . I can't stand it.
Can you comment on tysabri and elevated NRBC and interaction with TY kicking your bone marrow into releasing these cells.
Omg even looking at your face makes me feel happier !
I would like to ask about pregnancy and before how long woman must stop taking them for each ?!
Thanks Dr. Boster for the video. As always very informative.
Q: Can MS patients donate blood/organs? I received conflicting answers from two blood banks to this question.
Also, it’s my understanding that taking ibuprofen with each Rebif injection is harmful to the kidneys. I was advised to switch to paracetamol.
Here in Israel, people seem to take paracetamol or ibuprofen according to personal preference as to what quells their headache / lowers their fever better. If I remember my brand names, it's like the difference between Bufferin, or rather what they call here Acemol, and Tylenol. Small change compared to what we've been through. Good luck.
I asked the blood donation questions to the American Red Cross. They said having MS does NOT preclude one from donating blood. The one caveat is people taking Aubagio, who are supposed to wait to donate 2 years after finishing Aubagio.
11:30 I wasn't expecting that hahaha
Aaron boster, is there anything that can be done to help a person that refuses to eat! Please help!!!!
Hey Doctor B.Nice video.I do have a small question.I have had MS for ohhhh 15-20 years now(7 yrs officially diagnosed)..I take Baclofen and I still twitch and hurt a lot.Take neurontin 300mg X2 a day and BP meds. what DMT would you advise that I look towards or ask more about when I see my Neurologist?lots of spasms ,face,chest and gut and arm.and my legs LOL ok whole body really and my Jaw(rt side) never sleeps.always up twitching and hard spasms at times. and what other meds might I look towards for potential pain relief with MS mellowing maybe? have not been seeing my Doc for long but she nice and seems to wanna help but when I asked her what DMT or series of meds I should be on,she was like hmmm, so Im just trying to gain a little knowledge in what you would might advise.Thank you doc. :) Also take methacarbomol 300mg as needed but doesnt help much.THX again man, Love ya.
Hi Dr B what do you think about sponimod?