My neurologist certainly didn’t say anything about the 24 hr rule when a new or unexplained symptom arises. Your channel has been a godsend since being diagnosed last month. My family and I really are grateful for you and your willingness to help educate others about MS. Thank you Dr. Boster!
I can't believe I didn't know about that 24 hour rule either. It is so important. Especially when you are newly diagnosed and don't know what to expect. You can never know what to expect, but when you have lived with MS a while you're much less likely to freak out at every little thing. But even with experience, I tend to blame MS for everything. I now know to wait 24 hours.
I’m so glad that you’re my doctor. I saw a local neuro at first, and was told what MS is, but only after I had been diagnosed for a few days. I had been told not to Google it, because there is too much misinformation out there. Only use reputable sights for research. It was good timing that I was diagnosed while in college. I was able to access the online medical journals to start my research. I was also allowed to present the information that I had found in my college courses. Meeting you gave me a valuable resource for information as well. I really appreciate the time you’ve taken with me to explain everything. Thank you. Thank you for doing this for your patients and for those who are not.
I really wish I had you as my MS Specialist Dr.B, when I first got the news that I had MS. Unfortunately I had a horrible MS Doc that treated me with disrespect, and had no compassion to even tell me, just how serious MS was. I was only 34 yrs old, and he never really told me about the importance of getting on a medication asap. He said it’s no rush to do so, and that I really don’t need to be on any meds if I felt fine. Now 10 yrs later and 44 yrs old, & I can barely walk, and I’m mostly on a wheelchair. It’s a shame that I was treated that way. Cause now i look back and said to myself that if only I was guided right from the getgo, and was really informed properly how important meds were. I probably wouldn’t be disabled like I am today 🥲💔. I am now in an old age home at the age of 44. I have 3 kids ages 12,19,&21. I can’t believe my life turned out this way 🥲🥲
Looking back I’ve had MS since ‘95 or earlier but was only aware of it and diagnosed a year ago. I’ve binge watched your videos and feel I have a good understanding of MS, the medications, how to live my best life, etc. That is due to you. Thank you. I’m fortunate to have an excellent MS neurologist too.
I was dx’d and had my first relapse after a miscarriage. I felt like my life was over honestly. Exercise, mindfulness, my psychiatrist and MS neurologist and MS nurse at Cleveland Clinic have made me feel like it will be alright and life can still be good!
My relapse which caused my dx was also after a miscarriage. Without a doubt the worst month of my life! I too thought my life was over, but now I feel stronger and more clearer in my mind to be able to tackle whatever life may throw at me.
There is a lot to wrestle with when you first get diagnosed with MS. It is difficult if you're dealing with symptoms of MS and then a new diagnosis at the same time. Doctor Boster, his team, and his videos have been an amazing help in comfort. If you're not subscribed to his channel subscribe now, Dr. Boster's videos are always great and his monthly web meetings are fantastic. Doctor Boster and team, thank you for all you do
Emailing Dr office is a good idea, encouraged by many Drs to do so - No rambling, Just a few bullet points giving important notes that can be detailed in person helps - Worked for me 🤔
Nice video. The 24-hour rule makes a lot of sense. The reality of MS is that partially remyelinated fibers lead to a lot of fluctuation in symptoms which are disturbing but not true attacks.
I was just diagnosed with MS. I'll be 66 in April. For 2 and a half years the bottom of my feet have tingled nonstop. I've got balance problems, and everything makes me angry. The neurologist did a spinal tap and when I went back for the consultation, she very apologetically informed me that the lab had poured it out. Now I have to do another. 😤 She started me on an infusion of some kind of steroid every day for 5 days, then once a week for 4 weeks. Your videos have been very informative. Thanks much. O.G.
Thank you this was well needed as i have been "informally diagnosed" after my 2nd relapse with new lesions and drop foot. Still finding my feet after the initial shock (pun intended)
Thats a very important video for somebody that is new to this diagnose. Couldnt say it better. When you are aware of these things, you can live almost normally, at least in most cases. You shouldnt “tease” your MS and it will let you live. She wont go away, but treat her good and she wont be bothering you much. Thank you doctor
Thank you for sharing these tips. Even though I've been living with MS for 24 yrs I need to be mindful of each day. I've been having a tough time with my mobility with degeneration of my legs muscles I work hard each day with small exercises and stretching. So appreciate you explaining all MS quirks ;)
Thank you Dr B for all your hard work with educating PwMS. The tip about keeping a journal is the best tip I got when I started my journey with MS. 12 years later I still keep a journal to help with my Neurologist visits.
I’m in British Columbia, Canada. I was dx’d in 2002. I haven’t seen my neurologist since before COVID:( I also have not had a MRI, in a couple years. I forwarded your video re: MRI frequency to my nursing team, hopefully they shared it with my Neurologist🙄
Great job on this morning's video Dr Aaron, even though I'm not newly I diagnosed anymore after 5 years I hope the people that are freshly diagnosed are listening to this video and taking note.
It seems like I was diagnosed yesterday but it was two years ago. I treated aggressively my MS and I had no issues since then. I had no physical problems but mentally was hard. I am a totally different person than before. I faced real problems, when people are stressed over a partner I am stressed for my MRI or my labs. I still believe that one day we will able to cure this disease
My neurologist is nice, but kinda useless, tbh. Learning a lot from you. Way more, than I'm getting from my medical team. Haven't gotten the official diagnosis yet, but they suspect it is MS. I do too... So many years of bizarre symptoms, and chronic pain. This state of being is not for the weak, that's a fact. Appreciate you, sir.🙏 And gotta add, present moment awareness is absolutely key to your peace & sanity!
I've been 4 years diagnosed and am finally getting help dealing with my symptoms by seeing a neuro-psychologist and having neuro PT at U of M. It was suggested that I check out Dr. Boster's videos. I am so impressed. He hits the nail right on the head on all of my issues I've been struggling with. I only wish that someone had pointed me in this direction in the beginning. It would have helped so much with dealing with this diagnosis. Dr Boster you are awesome. Thank you. Thank you.
Thank you so much for this. You explained what my neurologist never did. You are so reassuring when the future seems bleak. Sorry pain & resultant sleepless nights are getting to me xx
I wish I had your videos in 2014 when I was diagnosed! It would have made those early years so much easier. I’m looking forward to my first in person appointment with you in a couple weeks!!
Hi Dr. Boster. So thankful for another informative video. I would just like to add, I was not aware of what an “attack” could manifest on my body when I began to display “active” symptoms. I thought an attack was something hostile that hurt or displayed itself with puffiness or red, inflamed skin like a boil. I was unaware the incessant fatigue that would envelop me so quickly by late morning, was caused by inflammation. My ability to keep details, or stay focused on a conversation would run out after a minute. The nerve pain that was minimal in my right arm, would later become so agitated and feel so much stronger as the day progressed or the weather pattern was changing quickly. Sometimes, the pain was acute in my right jaw joint. I wish I had known that MS was not going to present itself and hang about in a stereotypical manner. My attention was so compromised, that finding a notebook to jot down details became too much for me. So I used my phone to record my changing symptoms. I would write text messages to my personal email so I could track how I felt throughout my day. Doing so would allow me to collect the symptoms and share with my doctor or nurse on my next visit.
I am newly diagnosed and watching these informative videos make me feel better. Thanks for presenting them in a simple, clear and fun way! Really appreciate it
Also surround yourself around positive people! I joined a support group and it helped me mentally and emotionally. Now im on my way to selecting an effective DMT🙏🏾
Your videos helped me so much ! Unfortunately I don’t hAve the most informative DR.s in rural PA , you make a world of difference with these videos . from someone who is brand spankin new to MS , thank you .
I live near PA as well and one lesion same after two years no medication can’t tell me definitely whether it is or not but it’s definitely demyelination so now my children and family think that I don’t have a ms but I do and I am in a lot of pain my MRI report the first one it said D myelination two years later the MRI said MS and lime so which one is it that are all just for us I’m told me it’s just a regular aging process and then I lost my insurance and how to go to a local yokel and she wouldn’t even answer any of my questions and didn’t even look at my MRIs from two years ago and compare them she said well I’m just going by what the report says from your MRI I could’ve done that I’ve had the same thing as she did how stupid is that help Dr. Aaron where are you located
This is good. At the beginning, you agree sensitive to everything - and everything feels like your body is going crazy. For myself, symptoms come and go for more than 24 hours (apparently my MS didn't get the memo). If I get a new symptom, I think back to whether it's really new or whether I had it a year ago. If it had happened before -and it's not growing- I don't worry about it.
My docs usually look at my records once they are in the room. I get maybe 10 minutes of doc or me talking. I usually feel like it's a waste of time going to the neuro right now.
Entering the pathway to finding out what’s wrong with me. I just got lots of MRIs done and now I wait. Love how you explain everything and yeah I wish you were my Dr too.
Excellent video! Taking notes on your symptoms is SO helpful to help your entire team have all the facts needed for treatment. Also, love the 24hr rule!
Thank you Dr Boster- these tips are awesome - the 24hr rule is so helpful and keeps you from panicking with every new sensation! 5 for 5 is so empowering 🔥🔥🔥🔥🔥
I truly appreciate your time and how you explain your knowledge and experience in your videos. They have been great help to me. Would it be possible to differentiate whether the topic is addressing ppms or rrms or both? I have rrms. Sometimes I'm not sure which way they are leading. I live in Canada, we have very good medical care and it's free but sometimes not as frequent as needed. Your videos fill in a lot of gaps between my visits. Thank you.
Your patients are truly gifted. God bless. My neurologist told me in my last appointment that I can stop all medications and need no consultions any more as I am 53 years old and MS stops creating issues after 50. Is it true? My condition is bad with additional issues of symptomatic Tarlov cysts throughout my spine, compressing nerves, and my osteoporosis very severe too. MS has its own isues of losing balance, numbness, tingling, spasms. The doctor wonders whats causing what.
Hi Dr. Boster. I’m so glad I found your channel! I’d love some guidance. My husband (41) was diagnosed last year with RRMS. He also has UC and a history of optic neuritis, but he was given a medication for his UC that’s NOT supposed to be given to those with hx of optic neuritis. His “Dr”, didn’t realize that till after 2 years but by then, he was already experiencing MS symptoms and sure enough, MRI showed several lesions on his spinal cord and base of brain. Due to his circumstance, he has VERY limited access to any medical treatment, and when he does see a provider, it’s a bottom of the class fresh out of med school. I’m left with trying to find info on MS and standard treatment/symptoms from the internet, a reddit page suggested your channel. I’d love to know more on how I can better learn about this disease (instead of scouring the web and getting contradictory info). I have so many questions. Will his vision ever come back? How many years into dx is it considered “early treatment”? His last vit d3 levels were 36 and he’s not given more than 2000iu a day, is that even enough? Is there enough studies to show that stem cell therapy is a possibility in the future? Is the damage already done, irreversible if he ends up getting adequate treatment years down the line? I understand no one on this page can give medical advice, but I’m just so lost now and I can’t talk to his providers and neither can he.
It effects your whole body. Its uncomfortable at times. Extremely uncomfortable. It sux. DX was age 39. My dad had his much younger. A dr sit with both of us on what we each did leading up to the attack. I smoked pot and he didn't. My dad and i had very similar problems with MS. Prayers for people just finding out. Amen 👍 truth 👍 pray 👍 always 👍 AMEN 👍 AMEN 👍
Thanks a lot for your videos. They help a lot I have a problem with you recommending exercise every time I exercise - 2 to 3 days is over, my symptoms worsen by 60-70%, severe pain occurs and spasticity increases. Do you have any idea how you can deal with it and why is it so with me that spasticity is always worse after exercise? and it lasts up to 5 days from the day of exercise ..
I have chronic primary ms. I seem to have a lot of trouble getting the information I need on a new medication’s. I don’t even know at my age if they will work. At 73 I am an outlier… Not even diagnosed until I was 70.
Hi Dr. Boster! I'm newly diagnosed (April) and am now looking for a specialist and have seen 2 neurologists so far that just don't listen. They won't treat my symptoms, they won't make any referrals, I've self-referred for cognitive testing, gastroenterology and despite my best efforts can't self-refer for PT. None of my symptoms besides the hot sensations I have in my feet are being treated, but I have begged for my dizziness and fatigue and cog fog to be managed. What am I doing wrong? Why aren't any doctors LISTENING to me and helping me? Is it normal during the first several months to just watch what the disease does? I advocated hard for Kesimpta and got that, thank God. Please give me advice. I'm worn out and feel so unheard.
How often do you see patients that meet criteria for MS but don't yet meet the McDonalds Criteria? I have had several doctors including neurologists tell me that their best guess is that I have MS. Nothing else so far explains my symptoms. However, I do not have lesions on my spinal cord and the lesions in my brain are in the periventricular and subcortical areas. My neurologist at the Cleveland Clinic in FL says the only difference in how she will treat my at this time is that I won't receive immunotherapy medication but I am very anxious to get better as my symptoms are greatly impacting my quality of life. Any guidance based on your experience is appreciated.
Thank you for all the helpful videos Dr B, what meds other than Tysabri would you recommend to an MS patient who is also diagnosed with Crohns? I am JCV positive and have been on Ocrevus for 5 years
i have been diagnosed with MS 9 months ago actually my doctor don’t take my symptoms seriously i have had a weird symptom that ( i feel my hand is not mine and have a weak sensation in my left side of body ) he said that’s normal just do exercise and u don’t need anything now it’s been 3 weeks and i still have it and i’m still don’t know what to do when i have symptoms and if it’s need steroids or not 😔
Hi doc, i have diagnosed MS in march 2022. I have numbness in my both feet and legs, first my neurologist started medicine tecfidera. I took these medicine for 3 months, but my symptoms got worst. Now last month i had tysabri infusion. But my symptoms are getting more worse like i have severe numbness in feet, legs and burning feeling in my whole body, and with that symptoms i have red spots on chest and face. Can you guide me how to handle these symptoms?
I would also add to advise the newly diagnosed to try and avoid google as it usually provides the worst case senario when MS affects everyone differently. Diving down a google rabbit hole is going to stress them out. Get their advice from their MS medical team. When I first was diagnosed google told me I’d be in a wheelchair soon
Dear Dr Boster, Can a person have MS without optical neuritis? the neurologist I saw told me that I could not possible have MS because I did not have foot drop or optical neuritis even though I I had other symptoms that do align(like Lhermettes and my left arm is problematic), this neurologist would not even order an MRI I was told it was a functional disorder instead
I was diagnosed 2 weeks ago. I feel devastated, confused and I need y to o learn a lot. Am I going to die? I’m stressed. Can someone tell me their experiences? Thanks.
Please don’t stress that’s the worst you can do that’s gonna make your pain even worse cause that’s what I’ve done one day at a time and take the time to enjoy the little things and not think so much about it have your family members or someone to support you I don’t and it’s hard I don’t know if anyone really knows they say no to people of the same if you have other conditions as well it’s hard to tell my thoughts and prayers are with you and all that need them🌻
My neurologist certainly didn’t say anything about the 24 hr rule when a new or unexplained symptom arises. Your channel has been a godsend since being diagnosed last month. My family and I really are grateful for you and your willingness to help educate others about MS. Thank you Dr. Boster!
I can't believe I didn't know about that 24 hour rule either. It is so important. Especially when you are newly diagnosed and don't know what to expect. You can never know what to expect, but when you have lived with MS a while you're much less likely to freak out at every little thing. But even with experience, I tend to blame MS for everything. I now know to wait 24 hours.
Expect things to be omitted by your doc. You have to do your own research to know what you really need.
I’m so glad that you’re my doctor. I saw a local neuro at first, and was told what MS is, but only after I had been diagnosed for a few days. I had been told not to Google it, because there is too much misinformation out there. Only use reputable sights for research. It was good timing that I was diagnosed while in college. I was able to access the online medical journals to start my research. I was also allowed to present the information that I had found in my college courses. Meeting you gave me a valuable resource for information as well. I really appreciate the time you’ve taken with me to explain everything. Thank you. Thank you for doing this for your patients and for those who are not.
I was diagnosed with MS at the age of 66. Now I am 69. I was an artist who could paint for hours. Now I only sit and watch TV.
I really wish I had you as my MS Specialist Dr.B, when I first got the news that I had MS. Unfortunately I had a horrible MS Doc that treated me with disrespect, and had no compassion to even tell me, just how serious MS was. I was only 34 yrs old, and he never really told me about the importance of getting on a medication asap. He said it’s no rush to do so, and that I really don’t need to be on any meds if I felt fine. Now 10 yrs later and 44 yrs old, & I can barely walk, and I’m mostly on a wheelchair. It’s a shame that I was treated that way. Cause now i look back and said to myself that if only I was guided right from the getgo, and was really informed properly how important meds were. I probably wouldn’t be disabled like I am today 🥲💔. I am now in an old age home at the age of 44. I have 3 kids ages 12,19,&21. I can’t believe my life turned out this way 🥲🥲
Looking back I’ve had MS since ‘95 or earlier but was only aware of it and diagnosed a year ago. I’ve binge watched your videos and feel I have a good understanding of MS, the medications, how to live my best life, etc. That is due to you. Thank you. I’m fortunate to have an excellent MS neurologist too.
These are great reminders for the “ not so newly diagnosed “ as well.
#Sharngiscaring
#StrongerTogether
I was dx’d and had my first relapse after a miscarriage. I felt like my life was over honestly. Exercise, mindfulness, my psychiatrist and MS neurologist and MS nurse at Cleveland Clinic have made me feel like it will be alright and life can still be good!
My relapse which caused my dx was also after a miscarriage. Without a doubt the worst month of my life!
I too thought my life was over, but now I feel stronger and more clearer in my mind to be able to tackle whatever life may throw at me.
Similar for me but it was an ectopic pregnancy and the attack happened as I was recovering from surgery, so I thought it was surgery-related.
The 24hr rule really does help, i still use it after having MS for many years.
Thus video needs to be shared with every person newly diagnosed. Each office should have it or their own just as informative.
There is a lot to wrestle with when you first get diagnosed with MS. It is difficult if you're dealing with symptoms of MS and then a new diagnosis at the same time. Doctor Boster, his team, and his videos have been an amazing help in comfort. If you're not subscribed to his channel subscribe now, Dr. Boster's videos are always great and his monthly web meetings are fantastic. Doctor Boster and team, thank you for all you do
Emailing Dr office is a good idea, encouraged by many Drs to do so - No rambling, Just a few bullet points giving important notes that can be detailed in person helps - Worked for me 🤔
4:00 a.m. and happy to find this video this morning. Wish you were my doc! ♥️
Nice video. The 24-hour rule makes a lot of sense. The reality of MS is that partially remyelinated fibers lead to a lot of fluctuation in symptoms which are disturbing but not true attacks.
Agreed
I was just diagnosed with MS. I'll be 66 in April. For 2 and a half years the bottom of my feet have tingled nonstop. I've got balance problems, and everything makes me angry. The neurologist did a spinal tap and when I went back for the consultation, she very apologetically informed me that the lab had poured it out. Now I have to do another. 😤 She started me on an infusion of some kind of steroid every day for 5 days, then once a week for 4 weeks. Your videos have been very informative. Thanks much. O.G.
I was diagnosed in 2015. I and still find this information useful 👍👍👍.
Wonderful
Thank you this was well needed as i have been "informally diagnosed" after my 2nd relapse with new lesions and drop foot. Still finding my feet after the initial shock (pun intended)
Thats a very important video for somebody that is new to this diagnose. Couldnt say it better. When you are aware of these things, you can live almost normally, at least in most cases. You shouldnt “tease” your MS and it will let you live. She wont go away, but treat her good and she wont be bothering you much. Thank you doctor
Thank you for sharing these tips. Even though I've been living with MS for 24 yrs I need to be mindful of each day. I've been having a tough time with my mobility with degeneration of my legs muscles I work hard each day with small exercises and stretching. So appreciate you explaining all MS quirks ;)
You are so welcome!
Thank you Dr B for all your hard work with educating PwMS. The tip about keeping a journal is the best tip I got when I started my journey with MS. 12 years later I still keep a journal to help with my Neurologist visits.
That is fantastic! Thank you for sharing!
I’m in British Columbia, Canada. I was dx’d in 2002. I haven’t seen my neurologist since before COVID:(
I also have not had a MRI, in a couple years.
I forwarded your video re: MRI frequency to my nursing team, hopefully they shared it with my Neurologist🙄
As always a good video I’m seeing my neurologist next week and will take your tips with me. Thankyou from the UK.
Great job on this morning's video Dr Aaron, even though I'm not newly I diagnosed anymore after 5 years I hope the people that are freshly diagnosed are listening to this video and taking note.
It seems like I was diagnosed yesterday but it was two years ago. I treated aggressively my MS and I had no issues since then. I had no physical problems but mentally was hard. I am a totally different person than before. I faced real problems, when people are stressed over a partner I am stressed for my MRI or my labs. I still believe that one day we will able to cure this disease
My neurologist is nice, but kinda useless, tbh.
Learning a lot from you.
Way more, than I'm getting from my medical team.
Haven't gotten the official diagnosis yet, but they suspect it is MS.
I do too...
So many years of bizarre symptoms, and chronic pain.
This state of being is not for the weak, that's a fact.
Appreciate you, sir.🙏
And gotta add, present moment awareness is absolutely key to your peace & sanity!
I've been 4 years diagnosed and am finally getting help dealing with my symptoms by seeing a neuro-psychologist and having neuro PT at U of M. It was suggested that I check out Dr. Boster's videos. I am so impressed. He hits the nail right on the head on all of my issues I've been struggling with. I only wish that someone had pointed me in this direction in the beginning. It would have helped so much with dealing with this diagnosis. Dr Boster you are awesome. Thank you. Thank you.
Thank you so much for this. You explained what my neurologist never did. You are so reassuring when the future seems bleak. Sorry pain & resultant sleepless nights are getting to me xx
you nailed it! It took me 3 years to accept that I needed a DMT. But i get it now. Thanks for your video. I want to be 5/5.
I wish I had your videos in 2014 when I was diagnosed! It would have made those early years so much easier. I’m looking forward to my first in person appointment with you in a couple weeks!!
Hi Dr. Boster. So thankful for another informative video. I would just like to add, I was not aware of what an “attack” could manifest on my body when I began to display “active” symptoms. I thought an attack was something hostile that hurt or displayed itself with puffiness or red, inflamed skin like a boil. I was unaware the incessant fatigue that would envelop me so quickly by late morning, was caused by inflammation. My ability to keep details, or stay focused on a conversation would run out after a minute. The nerve pain that was minimal in my right arm, would later become so agitated and feel so much stronger as the day progressed or the weather pattern was changing quickly. Sometimes, the pain was acute in my right jaw joint. I wish I had known that MS was not going to present itself and hang about in a stereotypical manner. My attention was so compromised, that finding a notebook to jot down details became too much for me. So I used my phone to record my changing symptoms. I would write text messages to my personal email so I could track how I felt throughout my day. Doing so would allow me to collect the symptoms and share with my doctor or nurse on my next visit.
Preach!! I love your messaging and your 5 for 5!
Fabulous tips, ❤️felt thank yous … immensely helpful to newly diagnosed, at all ages.
Glad it was helpful!
I am newly diagnosed and watching these informative videos make me feel better. Thanks for presenting them in a simple, clear and fun way! Really appreciate it
Also surround yourself around positive people! I joined a support group and it helped me mentally and emotionally. Now im on my way to selecting an effective DMT🙏🏾
useful as always
Glad to hear that!
Your videos helped me so much ! Unfortunately I don’t hAve the most informative DR.s in rural PA , you make a world of difference with these videos . from someone who is brand spankin new to MS , thank you .
Glad it was helpful!
I live near PA as well and one lesion same after two years no medication can’t tell me definitely whether it is or not but it’s definitely demyelination so now my children and family think that I don’t have a ms but I do and I am in a lot of pain my MRI report the first one it said D myelination two years later the MRI said MS and lime so which one is it that are all just for us I’m told me it’s just a regular aging process and then I lost my insurance and how to go to a local yokel and she wouldn’t even answer any of my questions and didn’t even look at my MRIs from two years ago and compare them she said well I’m just going by what the report says from your MRI I could’ve done that I’ve had the same thing as she did how stupid is that help Dr. Aaron where are you located
Thank you for the Monday morning video. Brought back fond memories of my first anxiety filled visit. Doug coffee in hand from Lyndhurst.
Wow I wish my doc would have explained even half of this when I was diagnosed. Thank you.
Glad it was helpful!
Thanks for the video Dr. Boster! I was diagnosed this past December at 27. Hopefully Ocrevus is working. 🤞
You got this!
This is good. At the beginning, you agree sensitive to everything - and everything feels like your body is going crazy. For myself, symptoms come and go for more than 24 hours (apparently my MS didn't get the memo). If I get a new symptom, I think back to whether it's really new or whether I had it a year ago. If it had happened before -and it's not growing- I don't worry about it.
My docs usually look at my records once they are in the room. I get maybe 10 minutes of doc or me talking. I usually feel like it's a waste of time going to the neuro right now.
Thanks again
Always welcome
Hi Dr. Boster! Do you have any videos similiar to this with advice for support persons ("village members") of the newly diagnosed?
Yes I do, One is called "caring for the carer" I believe
Thank You Dr. Aaron Boster for all that you do, always good to to get reminders to fight back.
Never thought I would be first to comment.. another great video Doctor Boster. Great ideas even for the not-newly diagnosed.
Thanks again!
Good advice thanks ❤
I appreciate this guidance as a newly diagnosed person. Thank you. I'm grateful for your channel
Entering the pathway to finding out what’s wrong with me. I just got lots of MRIs done and now I wait. Love how you explain everything and yeah I wish you were my Dr too.
Excellent video! Taking notes on your symptoms is SO helpful to help your entire team have all the facts needed for treatment. Also, love the 24hr rule!
Thank you Dr Boster- these tips are awesome - the 24hr rule is so helpful and keeps you from panicking with every new sensation! 5 for 5 is so empowering 🔥🔥🔥🔥🔥
You're most welcome!
Wow I needed you 18 years ago instead of who I saw🙄 and seen since.
I truly appreciate your time and how you explain your knowledge and experience in your videos. They have been great help to me. Would it be possible to differentiate whether the topic is addressing ppms or rrms or both? I have rrms. Sometimes I'm not sure which way they are leading. I live in Canada, we have very good medical care and it's free but sometimes not as frequent as needed. Your videos fill in a lot of gaps between my visits. Thank you.
Your patients are truly gifted. God bless. My neurologist told me in my last appointment that I can stop all medications and need no consultions any more as I am 53 years old and MS stops creating issues after 50. Is it true? My condition is bad with additional issues of symptomatic Tarlov cysts throughout my spine, compressing nerves, and my osteoporosis very severe too. MS has its own isues of losing balance, numbness, tingling, spasms. The doctor wonders whats causing what.
Hi Dr. Boster. I’m so glad I found your channel! I’d love some guidance.
My husband (41) was diagnosed last year with RRMS. He also has UC and a history of optic neuritis, but he was given a medication for his UC that’s NOT supposed to be given to those with hx of optic neuritis. His “Dr”, didn’t realize that till after 2 years but by then, he was already experiencing MS symptoms and sure enough, MRI showed several lesions on his spinal cord and base of brain.
Due to his circumstance, he has VERY limited access to any medical treatment, and when he does see a provider, it’s a bottom of the class fresh out of med school.
I’m left with trying to find info on MS and standard treatment/symptoms from the internet, a reddit page suggested your channel.
I’d love to know more on how I can better learn about this disease (instead of scouring the web and getting contradictory info).
I have so many questions.
Will his vision ever come back?
How many years into dx is it considered “early treatment”?
His last vit d3 levels were 36 and he’s not given more than 2000iu a day, is that even enough?
Is there enough studies to show that stem cell therapy is a possibility in the future?
Is the damage already done, irreversible if he ends up getting adequate treatment years down the line?
I understand no one on this page can give medical advice, but I’m just so lost now and I can’t talk to his providers and neither can he.
It effects your whole body. Its uncomfortable at times. Extremely uncomfortable. It sux. DX was age 39. My dad had his much younger. A dr sit with both of us on what we each did leading up to the attack. I smoked pot and he didn't. My dad and i had very similar problems with MS. Prayers for people just finding out. Amen 👍 truth 👍 pray 👍 always 👍 AMEN 👍 AMEN 👍
Thanks a lot for your videos.
They help a lot
I have a problem with you recommending exercise every time I exercise - 2 to 3 days is over, my symptoms worsen by 60-70%, severe pain occurs and spasticity increases. Do you have any idea how you can deal with it and why is it so with me that spasticity is always worse after exercise? and it lasts up to 5 days from the day of exercise ..
Доктор, вы большой молодец🌹
Сделайте пожалуйста видео полностью посвященное стрессу и о здоровом мышлении.
Спасибо.
You are awesome and thank you so much for your empathy and compassion 👩
I have chronic primary ms. I seem to have a lot of trouble getting the information I need on a new medication’s. I don’t even know at my age if they will work. At 73 I am an outlier… Not even diagnosed until I was 70.
How do I get the energy to go to the gym? Newly diagnosed and I am wiped out all the time
Can you do a video about MOG?
Hi Dr. Boster! I'm newly diagnosed (April) and am now looking for a specialist and have seen 2 neurologists so far that just don't listen. They won't treat my symptoms, they won't make any referrals, I've self-referred for cognitive testing, gastroenterology and despite my best efforts can't self-refer for PT. None of my symptoms besides the hot sensations I have in my feet are being treated, but I have begged for my dizziness and fatigue and cog fog to be managed. What am I doing wrong? Why aren't any doctors LISTENING to me and helping me? Is it normal during the first several months to just watch what the disease does? I advocated hard for Kesimpta and got that, thank God. Please give me advice. I'm worn out and feel so unheard.
Same 💕
👍👍
How often do you see patients that meet criteria for MS but don't yet meet the McDonalds Criteria? I have had several doctors including neurologists tell me that their best guess is that I have MS. Nothing else so far explains my symptoms. However, I do not have lesions on my spinal cord and the lesions in my brain are in the periventricular and subcortical areas.
My neurologist at the Cleveland Clinic in FL says the only difference in how she will treat my at this time is that I won't receive immunotherapy medication but I am very anxious to get better as my symptoms are greatly impacting my quality of life.
Any guidance based on your experience is appreciated.
Thank you for all the helpful videos Dr B, what meds other than Tysabri would you recommend to an MS patient who is also diagnosed with Crohns? I am JCV positive and have been on Ocrevus for 5 years
🔥🔥🌄🔥🔥
i have been diagnosed with MS 9 months ago actually my doctor don’t take my symptoms seriously i have had a weird symptom that ( i feel my hand is not mine and have a weak sensation in my left side of body ) he said that’s normal just do exercise and u don’t need anything now it’s been 3 weeks and i still have it and i’m still don’t know what to do when i have symptoms and if it’s need steroids or not 😔
Do you consider vaping, smoking? I stopped smoking cigarettes years ago, but continue to use a vape mod.
And what about vaping THC for pain medical cannabis
Hi doc, i have diagnosed MS in march 2022. I have numbness in my both feet and legs, first my neurologist started medicine tecfidera. I took these medicine for 3 months, but my symptoms got worst. Now last month i had tysabri infusion. But my symptoms are getting more worse like i have severe numbness in feet, legs and burning feeling in my whole body, and with that symptoms i have red spots on chest and face. Can you guide me how to handle these symptoms?
Is swimming good for ms patient as daily exercise ?
Absolutely yes yes and yes from personal experience it’s easy to move around in the water and less stress on your body and calming
I would also add to advise the newly diagnosed to try and avoid google as it usually provides the worst case senario when MS affects everyone differently. Diving down a google rabbit hole is going to stress them out.
Get their advice from their MS medical team.
When I first was diagnosed google told me I’d be in a wheelchair soon
Dear Dr Boster, Can a person have MS without optical neuritis? the neurologist I saw told me that I could not possible have MS because I did not have foot drop or optical neuritis even though I I had other symptoms that do align(like Lhermettes and my left arm is problematic), this neurologist would not even order an MRI I was told it was a functional disorder instead
Hi ya Dr B what happens when i take more than 50 >100 vitamin D
During a flare, can the symptoms change over a 24 hr period, or would you have the same symptoms for 24 hrs?
I was diagnosed 2 weeks ago. I feel devastated, confused and I need y to o learn a lot. Am I going to die? I’m stressed. Can someone tell me their experiences? Thanks.
Please don’t stress that’s the worst you can do that’s gonna make your pain even worse cause that’s what I’ve done one day at a time and take the time to enjoy the little things and not think so much about it have your family members or someone to support you I don’t and it’s hard I don’t know if anyone really knows they say no to people of the same if you have other conditions as well it’s hard to tell my thoughts and prayers are with you and all that need them🌻
@@pamelaalfieri382 Thank you. You are very kind.
Gusta