Chrissy your stew looks delicious. You should be proud of the boy's photos they are so handsome. I hope avery gets better soon. She has such a mild disposition and could even smile with a cold. Trust me that would not be me. Bless her heart.
Your boys are so handsome. The photos are gorgeous. So often school photos arent the best. Add chef to your many talents. Love the dumplings in your stew. I think I will do that next time i make a stew. Oh Avery you poor baby. I cant imagine how bad you must be feeling. Hopefully the cough will ease up. Im sad for you having to miss nursery.Would a cough supressant help? Hope you are feeling much better Crissie. Xx
Thank you ❤️ the dumplings make the stew 🥰 Avery is still coughing like mad 😞 cough medicine wouldn’t help apparently because those medicines work by soothing the throat and averys medicine goes straight to her stomach xx
Crissie, your stew looks delicious…and your boys are so handsome..great picture of them. When I saw you the title about the antibiotics not working and Avery is still not doing well, my heart sank. I immediately said a prayer for her and for you. So glad you are doing better. I can not believe have chill Avery is while feeling poorly…she is such a cutie and once again her sweet smile melted my heart. God be with you.
You could film ur normal day to day amd I would watch... I try to not watch like 4 videos in row so that I can save them mad listen to them as I clean... ur very motivating... u just are!!❤❤
I sure hope this round of Amoxicillin will clear up Avery's illness. Poor girl, she sounds so miserable. The school pictures of the boys came out so well. They really are very handsome! Take care. I will be praying for Avery to feel better.🩵🙏👓
She may have a virus such as RSV which could explain why her symptoms have persisted. However, you can have a continued cough for weeks after an infection. I hope she is doing better. Having CF myself, I am well acquainted with coughing until you vomit. It's bad enough as an adult with a MD, it must be terrible for the both of you, especially with her risk of aspiration. Sorry this just came up in my feed and maybe she already was tested for RSV. I am very impressed by your medical literacy as well as your calmness and patience in this difficult journey that nothing could have prepared you for. Maybe they can have you do a sputum culture if she is still ill which would tell them what she might have and what the appropriate antibiotic s are. Normally in the US we wait about 2 weeks if someone is ill before giving the flu vaccine. It cannot cause flu but the immune reaction from it can make you feel worse if you are already ill. You may also ask your physio about chest percussion which after a nebulizer treatment can help her to mobilize any thick mucus out of her lungs to help her clear her airways. Apologies for any unwanted/unnecessary information .❤
I just went through two weeks of misery in the hospital myself and had to be given serious antibiotics for a bloodstream infection that developed during my stay there . I had to have a picc put in so I could finish my course of treatment at home and got it removed just yesterday and yet I'm still struggling to get back to normal even nearly a week after discharge. Hopefully your daughter will have an easier time in her recovery. ❤
Good to hear you’re on the mend. Some of Avery’s coughs sounded a bit like croup especially if it’s worse later in the day. If so getting her to breathe in a steamy atmosphere like in a steamy bathroom might help?
Poor little Avery is having such a hard time fighting this cough. How are you feeling? The boys look so handsome in their school pictures. You have such a beautiful family. ❤️🇨🇦
Very handsome looking boys, Sounds like boys not knowing were to looking for things. I am glad you are feeling better Crissie. Avery, i mightily dislike when you are poorly. However i am glad mummy kept you home from nursery. Hope you are seeing improvements with Averys coughing.
First of all I'm sorry I'm behind I had this horrible cold what had took it right out of me still full of it but feeling a little better thank god lol its a horrible one poor little girl 💝💝💝💝 you did the right thing keep Avery off nursery all you needed is her getting something on top of what she had in hoping the next few days I feel better lol Love it when Avery looks up at you when your talking so cute do you put vicks on her feet bless her Xx
Hi I hope avery is feeling better soon! I’ve got this awful cold and cough and two ear infections to boot and I have epilepsy and mild cerebral palsy myself so understand how important not getting more ill is. Hopefully all of this goes away soon xxx
You are correct the boys school pictures were precious and great photographer as well, they look so happy and healthy. Might I suggest an anti-fog spray for Avery‘s glasses you can probably get it from your (optometrist) or even Amazon maybe? when you clean them you spray this on and it helps keep them from fogging up ….as a matter fact I need to get some for my glasses lol!
@mummyandavery the true test to see if it's croup which is worse at night. Take her on car ride with the window down. Seriously, I had daughter who got croup a lot. If it stops the coughing, it's croup. We also filled the bathroom with steam, that can work also. You can just stand outside with her and see if she gets better. My daughter would clear up in about 15 minutes. The first time we took her to the er, she was fine when we arrived and I though "how embarrassing " but the doctor explained it was probably croup. Well wishes to you and your baby. Croup can be dangerous if it's not bei g relieved. The secretions are thick and with her history of aspiration, you don't want to let it go.
@@mummyandavery I imagine it's not easy seeing her sick but you're doing everything you can to make her as comfortable as possible and I'm sure she appreciates that xx
Hi Chrissy how are you feeling now? So sorry Avery is still struggling with the cough. I think you did the right thing to get back in touch with the doctors. Fingers crossed she gets some relief soon. Her chest must be really hurting bless her xx
Retired pediatric nurse here. Doesn't Avery also get put on probiotics with her antibiotics? It would help with the explosive poo and boost her immune system. And the boys pictures are magnificent!
If averys cough dosent go ,maybe take her back to childrens hospital to well people let alone averay are at danger of sepsis, I comment any time I can bring awareness as sepsis is potentially fatal , my mum was 84 I cared for her, 20 years and she did have heart failure but had had 8 lots of antibiotics in 8 weeks even at her state of health early I trevinious antibiotics can save lives, gps easily miss sepsis sometimes, and in early stages there's no obvious signs in a fit person apart from a eorsening infection by the time symptons start its serious this isn't just for a very and mummy's its for everyone out there anyone of any age childcor adult csn get sepsis
Ugh kids always get sicker a night!!! What is that?! Lol ! Do you guys have suction at home? And do you do chest pyscio? I hear these really help kids similar to Avery with their needs. You are incredible! Truly a super hero! You must be exhausted. My son has reactive air way disorder. Which is like mini asthma. And when it flares up I am up all night because he’s is CONSTANTLY cough. Like no break at all. And it pulls his muscles in his chest 😢 you must be just wrecked. A two hour nap for you is a lot. Shows how devoted you are ❤ it’s like having a sick newborn forever 😢 but I’m sure she is worth every single thing that comes your way ❤
Yes she does have suction and a chest physio. It’s awful isn’t it? Avery is almost better throughout the day by the second 6pm hits she’s coughing again, no idea why it’s worse at night. Xx
Avery sounds like my daufhter when she had whooping cough..she has ashama and was in a room with a boy who wasn't vaxed and he had it and she got it...took 2 hospital's to figure it out she couched so hard and vomited so hard the whites of her eyes were bloody from the vessels bursting....give her the nuberlizer every 3 hours and pat her back with it to help break up the mucus. ....so glad you are feeling better...the boys are little princes! I love uniforms for school. I wish our schools wore them.
@@mummyandavery I know it must horrible for her not to be getting a break in between. You have made the right decision not putting her in her stander especially if she's throwing up. You and Josh really know what is best for her and I applaud both of you for that ♥🥰
My daughter had cdif for 18 months when she was little after lots of antibiotics. Her poor little bottom. The only thing that saved her poor sore bot was painting her bot with egg white,letting it dry before the nappy went back on. It forms a waterproof surface on the skin. Antibiotic poop is so caustic.Old wives remedy, but after buying every bum cream on the market,l saved her skin with egg white x
Sudacrem works pretty well, I feel like i use it for everything 😂 I will definitely have to keep the egg white trick in mind though I’ve not heard of this before xx
He is so adorable. If you don't want a child with a disability then don't have children. At any given time your healthy child can become a child with a disability. Love loves, love doesn't discriminate according to ability.
Of course, nothing could make me love my children any less. As a parent with both disabled, neuro diverse and neuro typical children, I can safely say I love them all the same xx
Does your health trust have a paediatric respiratory physiotherapist? Ours has recently started this service which is aimed at trying to keep children with bad chest problems and infections out of hospital.
Antibiotics do nothing for viral infections such as RSV,tests should be done to find out what the actual issue is. Whether it is a bacterial infection,virus etc ,not sure how you can boost her immune system other than pre and pro biotics. Hope you find some answers soon for her,she looks exhausted with it as do you.
Avery gets aspiration pneumonia as a result of viral infections. She has the antibiotics to treat the pneumonia, sadly nothing seems to be preventing it xx
Yes she was tested for both viral and bacterial infections. She tested positive for Rhinovirus on this occasion but that led to aspiration pneumonia which is what the antibiotics were for xx
@mummyandavery and she is on round 3 of Amoxcillin for the pneumonia? I would suggest another xray of lungs to see if what stage it is at and more bloodwork to check WBC etc. Dr's will know what else to check. Perhaps virus is fungal which would need a diff antibiotic. Or just a stronger antibiotic bc Amoxcillin isn't working. I think I've mentioned to you before my daughter was born with rare lung disease that required lots of hospitalizations so I've learned a lot over the yrs and I took a medical course as well. I'm a big worrier. I pray that Avery gets better real soon. Praying real hard
Chrissy your stew looks delicious. You should be proud of the boy's photos they are so handsome. I hope avery gets better soon. She has such a mild disposition and could even smile with a cold. Trust me that would not be me. Bless her heart.
She’s been doing really well considering this cough is consuming her. But we’ve been taking it easy on the therapies xx
Your boys are so handsome. The photos are gorgeous. So often school photos arent the best.
Add chef to your many talents. Love the dumplings in your stew. I think I will do that next time i make a stew.
Oh Avery you poor baby. I cant imagine how bad you must be feeling. Hopefully the cough will ease up. Im sad for you having to miss nursery.Would a cough supressant help?
Hope you are feeling much better Crissie. Xx
Thank you ❤️ the dumplings make the stew 🥰 Avery is still coughing like mad 😞 cough medicine wouldn’t help apparently because those medicines work by soothing the throat and averys medicine goes straight to her stomach xx
Crissie, your stew looks delicious…and your boys are so handsome..great picture of them. When I saw you the title about the antibiotics not working and Avery is still not doing well, my heart sank. I immediately said a prayer for her and for you. So glad you are doing better. I can not believe have chill Avery is while feeling poorly…she is such a cutie and once again her sweet smile melted my heart. God be with you.
Thank you ❤️ it’s just this cough! It’s exhausting me so I can’t bare to think what it must be doing to her xx
I'm sorry little Avery is still coughing 😢 Sending you both big hugs.
Thank you ❤️❤️
You could film ur normal day to day amd I would watch... I try to not watch like 4 videos in row so that I can save them mad listen to them as I clean... ur very motivating... u just are!!❤❤
Aww thank you 🥰 I really appreciate that xx
I agree @martinemikita9281, except i am always asking Google what time it is in the u.k. so I can watch the latest vlog.
I sure hope this round of Amoxicillin will clear up Avery's illness. Poor girl, she sounds so miserable. The school pictures of the boys came out so well. They really are very handsome! Take care. I will be praying for Avery to feel better.🩵🙏👓
I hope so too, although she finishes them tomorrow and the cough is still there 😞 thank you ❤️❤️
She may have a virus such as RSV which could explain why her symptoms have persisted. However, you can have a continued cough for weeks after an infection. I hope she is doing better. Having CF myself, I am well acquainted with coughing until you vomit. It's bad enough as an adult with a MD, it must be terrible for the both of you, especially with her risk of aspiration. Sorry this just came up in my feed and maybe she already was tested for RSV. I am very impressed by your medical literacy as well as your calmness and patience in this difficult journey that nothing could have prepared you for. Maybe they can have you do a sputum culture if she is still ill which would tell them what she might have and what the appropriate antibiotic s are. Normally in the US we wait about 2 weeks if someone is ill before giving the flu vaccine. It cannot cause flu but the immune reaction from it can make you feel worse if you are already ill. You may also ask your physio about chest percussion which after a nebulizer treatment can help her to mobilize any thick mucus out of her lungs to help her clear her airways. Apologies for any unwanted/unnecessary information .❤
Please use a humidifier 😊
Fresh air is so healthful ❤
I just went through two weeks of misery in the hospital myself and had to be given serious antibiotics for a bloodstream infection that developed during my stay there .
I had to have a picc put in so I could finish my course of treatment at home and got it removed just yesterday and yet I'm still struggling to get back to normal even nearly a week after discharge.
Hopefully your daughter will have an easier time in her recovery. ❤
That sounds awful! I wish you a speedy recovery ❤️❤️
love the boy's school pictures. So handsome. Avery's glasses are so cute.
Thank you 🥰
Loving the photos of the boys.
Thank you 🥰❤️
Hope Avery is better soon. Fabulous school pics. Such handsome boys xx
Thank you 🥰❤️
Good to hear you’re on the mend. Some of Avery’s coughs sounded a bit like croup especially if it’s worse later in the day. If so getting her to breathe in a steamy atmosphere like in a steamy bathroom might help?
The sound of her cough seems to change throughout the day. Bath time does seem to sooth her until I have to brush her teeth 😫 xx
Was going to comment her cough sounds like my daughters when she had croup. One shot if steroids helped tremendously
Poor little Avery is having such a hard time fighting this cough. How are you feeling? The boys look so handsome in their school pictures. You have such a beautiful family. ❤️🇨🇦
I know bless her, she’s doing a bit better now and I’m feeling much better thank you ❤️
Very handsome looking boys,
Sounds like boys not knowing were to looking for things.
I am glad you are feeling better Crissie.
Avery, i mightily dislike when you are poorly. However i am glad mummy kept you home from nursery.
Hope you are seeing improvements with Averys coughing.
Thank you so much ❤️
Omg at 13:58 😍😍😍😍😍😍 could she be more beautiful!!!!! Jesus!! She is just so special ❤❤❤
Thank you 🥰❤️
I hope Avery soon gets well. She is so cute and the boys look very handsome in their photos. Gorgeous family xx❤️
Thank you ❤️
Feel Better Avery 🙏
Thank you ❤️
First of all I'm sorry I'm behind I had this horrible cold what had took it right out of me still full of it but feeling a little better thank god lol its a horrible one poor little girl 💝💝💝💝 you did the right thing keep Avery off nursery all you needed is her getting something on top of what she had in hoping the next few days I feel better lol Love it when Avery looks up at you when your talking so cute do you put vicks on her feet bless her Xx
Bless you no need to apologise. Thank you so much and I hope you feel better soon ❤️
Praying Avery is better soon, and boys are so handsome in the photos. Have a good evening. Xx
Thank you ❤️
Well done on the school pictures. They’re so handsome. Sure hope Avery’s cough gets better soon. Thanks for keeping us updated
❤️❤️
Hope Avery feels better soon! That outfit she was wearing at the end is to die for. It doesn’t get cuter than those pantaloon bottoms!
Thank you ❤️ I like traditional clothes 🥰❤️❤️
The pics of your boys are beautiful! Hope Avery starts to feel better ❤️
Thank you ❤️
Hi I hope avery is feeling better soon! I’ve got this awful cold and cough and two ear infections to boot and I have epilepsy and mild cerebral palsy myself so understand how important not getting more ill is. Hopefully all of this goes away soon xxx
Thank you ❤️ I hope you feel better soon xx
@@mummyandavery thank you! ❤️ xx
All the best for Avery God bless you and your family 🙏🫶 respect lovely mom❤
Thank you ❤️❤️
❤❤Hi Chrissy. What do you put in your stew?
Diced beef, carrots, potatoes, flour, beef stock and seasoning, and dumplings 🥰
It does sounds like there is some gunk to bring up, and lots of it, the bugs this year seem really bad, hopefully she will be better soon x
I hope so 🤞🏼❤️
You are correct the boys school pictures were precious and great photographer as well, they look so happy and healthy. Might I suggest an anti-fog spray for Avery‘s glasses you can probably get it from your (optometrist) or even Amazon maybe? when you clean them you spray this on and it helps keep them from fogging up ….as a matter fact I need to get some for my glasses lol!
Thank you ❤️ that’s not a bad idea I will ask the next time she has an appointment xx
She’s sounds like she has the croup, I hope the doctor looks at her. So hard to watch her cough like that and mummy needs to feel better too❤️❤️💜💙
A few people have said that although a doctor hasn’t brought that up once. She seems to be doing a bit better now but the cough is still there xx
@mummyandavery the true test to see if it's croup which is worse at night. Take her on car ride with the window down. Seriously, I had daughter who got croup a lot. If it stops the coughing, it's croup. We also filled the bathroom with steam, that can work also. You can just stand outside with her and see if she gets better. My daughter would clear up in about 15 minutes. The first time we took her to the er, she was fine when we arrived and I though "how embarrassing " but the doctor explained it was probably croup. Well wishes to you and your baby. Croup can be dangerous if it's not bei g relieved. The secretions are thick and with her history of aspiration, you don't want to let it go.
I feel so bad for her because it feels like she's saying mummy I don't feel well bless her xx
I know 😞 I wish I could take the cough away for her xx
@@mummyandavery I imagine it's not easy seeing her sick but you're doing everything you can to make her as comfortable as possible and I'm sure she appreciates that xx
Hi Chrissy how are you feeling now? So sorry Avery is still struggling with the cough. I think you did the right thing to get back in touch with the doctors. Fingers crossed she gets some relief soon. Her chest must be really hurting bless her xx
I’m doing much better now thank you ❤️ Avery seems to be getting a little bit better xx
@@mummyandavery Oh that's good to hear xx
You have such good looking children!! ❤❤❤
Thank you 🥰❤️
Retired pediatric nurse here. Doesn't Avery also get put on probiotics with her antibiotics? It would help with the explosive poo and boost her immune system. And the boys pictures are magnificent!
I totally agree with this. What a difference it makes.😊
We give Avery a probiotic every morning ❤️
If averys cough dosent go ,maybe take her back to childrens hospital to well people let alone averay are at danger of sepsis, I comment any time I can bring awareness as sepsis is potentially fatal , my mum was 84 I cared for her, 20 years and she did have heart failure but had had 8 lots of antibiotics in 8 weeks even at her state of health early I trevinious antibiotics can save lives, gps easily miss sepsis sometimes, and in early stages there's no obvious signs in a fit person apart from a eorsening infection by the time symptons start its serious this isn't just for a very and mummy's its for everyone out there anyone of any age childcor adult csn get sepsis
Ugh kids always get sicker a night!!! What is that?! Lol ! Do you guys have suction at home? And do you do chest pyscio? I hear these really help kids similar to Avery with their needs. You are incredible! Truly a super hero! You must be exhausted. My son has reactive air way disorder. Which is like mini asthma. And when it flares up I am up all night because he’s is CONSTANTLY cough. Like no break at all. And it pulls his muscles in his chest 😢 you must be just wrecked. A two hour nap for you is a lot. Shows how devoted you are ❤ it’s like having a sick newborn forever 😢 but I’m sure she is worth every single thing that comes your way ❤
Also maybe a steroid? Idk 🤷♀️
Yes she does have suction and a chest physio. It’s awful isn’t it? Avery is almost better throughout the day by the second 6pm hits she’s coughing again, no idea why it’s worse at night. Xx
Avery sounds like my daufhter when she had whooping cough..she has ashama and was in a room with a boy who wasn't vaxed and he had it and she got it...took 2 hospital's to figure it out she couched so hard and vomited so hard the whites of her eyes were bloody from the vessels bursting....give her the nuberlizer every 3 hours and pat her back with it to help break up the mucus. ....so glad you are feeling better...the boys are little princes! I love uniforms for school. I wish our schools wore them.
Oh my goodness that sounds awful! What a horrible experience that must have been ❤️
She sound like she is fed up bless her and too be honest I would be too if I was coughing so much xx
I know, poor girl ❤️
@@mummyandavery I know it must horrible for her not to be getting a break in between. You have made the right decision not putting her in her stander especially if she's throwing up. You and Josh really know what is best for her and I applaud both of you for that ♥🥰
My daughter had cdif for 18 months when she was little after lots of antibiotics. Her poor little bottom. The only thing that saved her poor sore bot was painting her bot with egg white,letting it dry before the nappy went back on. It forms a waterproof surface on the skin. Antibiotic poop is so caustic.Old wives remedy, but after buying every bum cream on the market,l saved her skin with egg white x
Sudacrem works pretty well, I feel like i use it for everything 😂 I will definitely have to keep the egg white trick in mind though I’ve not heard of this before xx
Omg we make the same beef stew. It is delicious xx
It is 😋 xx
@@mummyandavery 100% agree xx
I hope Avery is feeling better. Do you would ever do a live stream on your channel?
Thank you ❤️ I’ve not thought about it to be honest, I’m not even sure how to do it xx
Your boys are so handsome omg xx
Thank you 🥰
@@mummyandavery You're so welcome xx
Poor baby and poor mummy…exhausting for both of you. That cough sounds like Croup. Cool air or shower steam helped my son with recurring croup.
We certainly have enough cool air at the moment 😂❤️
My daughter had a flu vaccination and next day she was so ill with fever and coughing. greetings from Germany ❤❤
I think the flu vaccine may have made things worse. Hope your daughter feels better soon ❤️
He is so adorable. If you don't want a child with a disability then don't have children. At any given time your healthy child can become a child with a disability. Love loves, love doesn't discriminate according to ability.
Of course, nothing could make me love my children any less. As a parent with both disabled, neuro diverse and neuro typical children, I can safely say I love them all the same xx
😮😢
She should have an X-ray done
She had one in the hospital but her dr is going to refer her to a respiratory specialist xx
❤❤❤
❤️❤️
Poor Avery . It sounds like a bit of croup . Speedy recovery gorgeous girl
Thank you ❤️❤️
Does your health trust have a paediatric respiratory physiotherapist? Ours has recently started this service which is aimed at trying to keep children with bad chest problems and infections out of hospital.
Yes we have check ins every now and again, but apart from the nebuliser, suction and percussions I’m not sure there’s much else we can be doing xx
Your voice still sounds a little croaky but glad you're feeling better xx
Thank you ❤️ I’m feeling much better xx
@@mummyandavery I'm glad xx
Antibiotics didn't help when it's a virus.
The antibiotics are for the chest infection caused by the aspiration xx
Sounds like a bit of croup in her cough too
It does a bit, the sound of her cough changes throughout the day xx
Antibiotics do nothing for viral infections such as RSV,tests should be done to find out what the actual issue is. Whether it is a bacterial infection,virus etc ,not sure how you can boost her immune system other than pre and pro biotics. Hope you find some answers soon for her,she looks exhausted with it as do you.
Avery gets aspiration pneumonia as a result of viral infections. She has the antibiotics to treat the pneumonia, sadly nothing seems to be preventing it xx
Too many antibiotics not good, become resistant to them. Has she been tested for flu, RSV, covid?
Yes she was tested for both viral and bacterial infections. She tested positive for Rhinovirus on this occasion but that led to aspiration pneumonia which is what the antibiotics were for xx
@mummyandavery and she is on round 3 of Amoxcillin for the pneumonia? I would suggest another xray of lungs to see if what stage it is at and more bloodwork to check WBC etc. Dr's will know what else to check. Perhaps virus is fungal which would need a diff antibiotic. Or just a stronger antibiotic bc Amoxcillin isn't working.
I think I've mentioned to you before my daughter was born with rare lung disease that required lots of hospitalizations so I've learned a lot over the yrs and I took a medical course as well. I'm a big worrier. I pray that Avery gets better real soon. Praying real hard
I still think she needs a chest film to make sure it's not going into pneumonia.
She’s going to be referred to a respiratory specialist soon xx
She may need an expectorant to help bring the mucous up.
Expectorant? I’m not sure I know what that is xx