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Hi Chrissy, how are you and Avery? so sorry this comment is so late- been so busy lately xx

You are such a good mum 🥰💚

How long was the EEG for? My son has only had an EEG for no longer than an hour and half

Thank you for taking the time to touch base with us! I fully understand your struggle to balance everything in your life and you are doing amazingly well! Much love to you, Avery and the rest of your family. From Vermont USA ❤️

Sweet❤

❤

You're really good at decorating cakes!

I don't know wether this would work but was thinking when you have her on your lap like this would a neck pillow help control her head ?

Slowly catching up on your vlogs. Been so busy last few weeks. Thank you for the vlog! 😊

At the end she was smiling Avery has a very beautiful smile ❤

Ellie uses an eye gaze device. She didn't get it until 2 years ago at the age of 10, and she took to it almost immediately. She has so much to say after a decade of not being able to communicate fully. We are still working daily on building those skills, but if you are willing to put in the work it is totally worth it! These kiddos are in there.

Definitely start looking into options now in regards to how big Avery is getting & being able to care for her & yourselves ❤

You're still 3inches taller than me. If you sitting on a chair is safer than walking down the stairs with Avery, It should be possible to get a chairlift which attaches to the stairs rather than the wall, in a rented property, (with permission) restored ones being cheaper. Obviously not for her to use without you.

Coukd her Involuntary movements be turets?

Wow I haven't watched in awhile! She has gotten bigger! She's almost to big for your lap! So cute I love her braids!

She is just darling!

Enjoyed this Crissie ❤ Avery is starting to look a bit like Eli 😊 Hello 👋🏼 Zach Hello 👋🏼 Eli Love y’all bunches 💙🩷💙💙💙🩷

Avery is getting to be a little big girl! Avery looks very happy & healthy!!

Avery is such a beautiful little girl! You are such a caring and loving mom. The way you treat her like any other child and include her in all activities, etc. shows your love and devotion to her

Hi chrissy, thank you for posting. Avery is growing so fast

I got my hoyer lift off amazon

I used to teach children with severe learning difficulties how to use assistive technology so yes it is possible foe avery to communicate. Ask for an assessment and for training

I see how busy you are, but would like to see more of all of you. Love your vlogs.

Hi, Avery and mummy. This is the most bright and glowing I have seen Avery. We spoke awhile back about my sons medical conditions he just had scoliosis surgery. If you ever want to chat, I am here ❤ my sons was caused by his nerve damaged he developed when age 4 is now age 15. His was growing fast within 6 months . Be carful my sons lungs was in his chest and lung function was poor. If the curve under 40 degrees then they like to brace over 40 like to do surgery my son had thoracolumbar scoliosis and was over 100 degrees. ❤❤❤

Averys hair looks gorgeous. Another lovely video 😍

Eye gaze I highly recommend it.

I wonder if she could use an electric wheelchair to get around as she gets older

I am so scared I have to have my gallbladder taken out as I have gallstones I hope your all ok xx

I would imagine you really need ceiling hoists that can run from room to another and a shower bed hoist cant nhs supply it all averys looking well

Has Avery got her special bed yet ?💕💕💓💛💛💛💛

The blends make no difference to her because she’s not tasting anything. She won’t be able to see or feel any different so it’s really just extra work for you.

She is so so precious and yes she is getting big. Her smile melts my heart. Thank you for answering a lot of questions we think about. I have often wondered how you will how you will take care of her the older and bigger she gets. Her braids are so cute,she doesn’t look Ike a baby anymore,she’s a bright and beautiful little girl. God Bless you Crissie. ❤

I love the Q&A's. Thank you. Love Avery's smilies.

Very interesting q and a! Thx for sharing. 😊

Crissie thank you for answering my question, on whether they make something that would mark it easier to carry Avery. I only wish there was something that could help you out. Avery is such a beautiful little girl, and she looked gorgeous today in her long braids! Thanks for the update, sending y’all loads of love and prayers!👋👋NC🫶🙏

Hi i agreed with you and do your best and she is a healthy girl and she is a wonderful girl and i like your amazing comments you are a lucky mom too ps♥️💚💙

Hello

Look at Avery’s plaits….. soooo cute. She is such a beautiful little girl. I love how you dress her and do her hair but today she looks really pretty. ❤

Hi Chrissy I’ve made my daughter a jelly cat birthday cake I’d love your thoughts on this recipe I found it’s called hot milk cake mine turned out nice ua-cam.com/video/OUBQih01SHc/v-deo.htmlsi=kg-AZG-CrWP7ac-Z

You like being a month early lol we have all done it lol 😂😂😂 hope your Pumpkin pie was nice hope you all Enjoyed it

Ok…As an American my mind is blown! Cold Pumpkin Pie and Icing on top?!?!?

In my opinion I wouldn’t do neuro surgery just yet. Avery is still growing. If she’s having tonic clonic seizures then it’s good. Little twitches are ok as long as they only last a few seconds. I have these little twitches seizures and my neurologist told me that they are fine

Why cant feed by mouth

Did avery get to go home

31:32 sohavei!

Happy belated Birthday wishes for Marley and Josh

I'm so glad that you use a play table with the stander. When I have seen some children in one, I've thought that no one else would be expected to stand for an hour of doing nothing!

16:47 yes, it can make a difference!

Oh and have you tried switch toys for her?

My daughter is on the keto diet. It works very well for her…… for now. Still has seizures, just much much less. I hope you manage to find something that works for you and Avery really soon💚