Breathtaking
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- Опубліковано 6 жов 2024
- This digital story was created by Kate McCarthy about her Mom, Maureen McCarthy, who has a fatal lung disease called Lymphangioleiomyomatosis (LAM) and sees the world in a completely different way. Maureen can be reached at maureen@maureenandzelle.com.
This is one of the most beautiful and informative videos I have ever seen. I not only know about LAM, but I have a new appreciation of what illness is. It does not define a person. It just is something different about a person. We are as different as snowflakes.The author, Kate McCarthy, is a gift to us all through her willingness to share this with all of the world. Thanks to all who had a hand in this production. Joan Hinsdale
Hi I'm Maureen's husband Zelle. Sounds like you had an amazing daughter. I'm sure you'll beautifully tell your grandchildren her story.
Hello. My name is Laurie and I too have LAM. I was diagnosed in 2000 when I was 19 years old, due to a collapsed lung. Since then I've had many more collapses(7 in total) and a number of surgeries. I am now 27 and I'm completely oxygen dependent. Over the years, my pulmonary doc told me that my lung function was slowly deteriorating. At my last appointment, last month, I was told that I'm down to 30% lung function. Thanks for posting this video! My thoughts and prayers are with you!
Whew! It was so good to hear your story about the group of families who had lost a child. My first son died from SIDS and I lost my second to drugs--but my life has had to move on. Sometimes I feel a bit of shame around not having a heavier heart long term. I did suffer terribly for some years, but had to heal and move forward! Subsequent to this, I worked as a hospice nurse where I encountered (and felt on a deep gut level) the immediate grief expressed by a number of parents who had just watched their child die. It always brought me back to that same moment in my life, but I had to quickly let that go and support the newly bereaved parent--hoping more than anything that they would also learn to move on, carrying the child in their heart, but not letting the loss consume their heads and lives. That said, I don't yet live life as fully as I wish to--there's more work to be done, growth to achieve... Thank you for this video!
Just popped in as I do from time to time to share this beauteous footage with yet other friends in my sphere. This time I am wondering, could Kate upload her utterly dear 'Breathtaking' song to soundcloud... or has she already?! Or can I find it in its entirety somewhere? Lovelove love evolving Always xoxox