Jonathan's Humor Helps Ease the Pain of EB | Venture Into Cures 2021
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- Опубліковано 30 січ 2025
- Jonathan is a young man living with EB whose smile lights up a room despite the unbearable pain he experiences due to this devastating disorder. "As a mom, you want to comfort them. You want to kiss the boo boos away, and I can't. And it's probably the hardest part of this disorder - I can't make it better," says Jonathan's mom. We're on a mission to find life-saving treatments and a cure for EB for families like this one. Join us to give Jonathan's mom something that can make life better for her son. Donate to critical research at give.ebresearc....