Akron baby battling rare condition
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- Опубліковано 15 вер 2024
- Jennifer Stefanich, MSN, APRN-CNP, a nurse practitioner at Akron Children's, discusses two-month-old Christopher Miller's fight against a rare genetic disorder called Zellweger's Syndrome. Originally aired on www.fox8.com on August 16, 2023. For more information about our Genetic Center, visit www.akronchild....
I have a nephew that has a daughter that has this same problem she is 14 months old and has not had any treatment. They are just now saying this is what she got . Praying for all
Still no treatment for this i think ,I have baby with same syndrome, but there is no treatment for this genetic disease
Lord bless this beautiful child with a long healthy abundant life. Bless his family and meet their every need. Lord I pray for a miracle healing that he will grow and thrive in Jesus' name ❤️