Iam in recovery from cushings. Took me 2 yrs to get diagnosed and I finally diagnosed myself with the help of google. I had all of your symptons except they were constant not cycling. My blood pressure was 200 over 100 for over a year! I was just a mess had it all! Found tumor on my adrenal gland size of a softball, although more common in pituitary gland. It has been removed 2 yrs ago, still have symptons but not as bad. Gets better everyday
Hi Rae, thank you so much for ALL of your videos. I really want to tell you that your videos are helping me going through the initial stages of the testing. Hope you are well.
I accidentally came across a cushings disease article a little bit ago and was brought to tears because I 100% believe I've finally found out the cause of my problems. I've gained 60lbs in a year, I have a buffalo hump that I thought was from bad posture although my posture isn't bad. I wear hoodies in the summer time to hide it. I have terrible anxiety and panic attacks which I thought was due to how stressed I am constantly for no reason. (I've starting blacking out from stress recently) I then started an antidepressant to combat this but it didn't help. I have bruises up to 6 years old. If I get a bruise or insect bite I expect it to last at least a few months. I can go a week on 10-12 hours of sleep and I'm just constantly tired without exerting myself which I chocked up to having 2 toddlers and obviously not sleeping. But I've felt like a hypochondriac forever because I've told everyone for so long I can FEEL something is wrong with me but nothing is ever found because I was only being treated for individual symptoms of this disease but now that I've realized I'm not crazy I'm nervous and happy to set up an appointment with an endocrinologist to prove this is what I have and I'm not just making it up
I have all the symptoms except I'm cyclicle so I'm waiting for an endocrinologist that will bare with me and test me more than once in the same month to catch highs for diagnosis.
Hi Rae, Thank you for the informative update. I am glad it was a good appointment and that you are on your way to a remission. You will help others by doing this...Happy Testing!
Thanks to your videos I was able to realize my symptoms and seek a diagnosis which taken 5 years..so you helped me tremendously. This is a horrible disease.god bless you
my doctor told me that i might have cushings syndrome. Today'i did cortisol test in the morning and in the afternoon. But cortisol level in the morning was little lower than normal. Still waiting for other results. But with Cushings it should be high, right? I feel like an idiot.
I have most of the symptoms of Cushing's including a lovely buffalo hump, but my 24 hour urine test came back normal. My Endo now just thinks I'm fat with insulin resistance and sleep apnea. I looked at your doctor's website. It seems that perhaps a full diagnosis is for those with the money to spend! Sheesh.
5 MONTHS AGO'. same here. i had a rash and given steroid triamcinolone 15 months ago and gave me cushings . doctor said it should go away but not so sure. if you ever took steroids check it out
Iam in recovery from cushings. Took me 2 yrs to get diagnosed and I finally diagnosed myself with the help of google. I had all of your symptons except they were constant not cycling. My blood pressure was 200 over 100 for over a year! I was just a mess had it all! Found tumor on my adrenal gland size of a softball, although more common in pituitary gland. It has been removed 2 yrs ago, still have symptons but not as bad. Gets better everyday
Hi Rae, thank you so much for ALL of your videos. I really want to tell you that your videos are helping me going through the initial stages of the testing. Hope you are well.
My cycles are the same. One week usually before my period I have the high, and I’m low the rest of the time- most of the time
I am in your exact shoes and well prepared thanks to those like you sharing your stories!! Giving me hope!! Thank you 💜💜
I accidentally came across a cushings disease article a little bit ago and was brought to tears because I 100% believe I've finally found out the cause of my problems. I've gained 60lbs in a year, I have a buffalo hump that I thought was from bad posture although my posture isn't bad. I wear hoodies in the summer time to hide it. I have terrible anxiety and panic attacks which I thought was due to how stressed I am constantly for no reason. (I've starting blacking out from stress recently) I then started an antidepressant to combat this but it didn't help. I have bruises up to 6 years old. If I get a bruise or insect bite I expect it to last at least a few months. I can go a week on 10-12 hours of sleep and I'm just constantly tired without exerting myself which I chocked up to having 2 toddlers and obviously not sleeping. But I've felt like a hypochondriac forever because I've told everyone for so long I can FEEL something is wrong with me but nothing is ever found because I was only being treated for individual symptoms of this disease but now that I've realized I'm not crazy I'm nervous and happy to set up an appointment with an endocrinologist to prove this is what I have and I'm not just making it up
I have all the symptoms except I'm cyclicle so I'm waiting for an endocrinologist that will bare with me and test me more than once in the same month to catch highs for diagnosis.
Hi Rae, Thank you for the informative update. I am glad it was a good appointment and that you are on your way to a remission. You will help others by doing this...Happy Testing!
Thanks to your videos I was able to realize my symptoms and seek a diagnosis which taken 5 years..so you helped me tremendously. This is a horrible disease.god bless you
I am also a patient of Dr F. I thank god for him cause this disease is horrible and he is fantastic. Hugs to you my fellow cushie!
Hugs back! Thanks
my doctor told me that i might have cushings syndrome. Today'i did cortisol test in the morning and in the afternoon. But cortisol level in the morning was little lower than normal. Still waiting for other results. But with Cushings it should be high, right? I feel like an idiot.
I cannot find your fb group.
I have most of the symptoms of Cushing's including a lovely buffalo hump, but my 24 hour urine test came back normal. My Endo now just thinks I'm fat with insulin resistance and sleep apnea. I looked at your doctor's website. It seems that perhaps a full diagnosis is for those with the money to spend! Sheesh.
5 MONTHS AGO'. same here. i had a rash and given steroid triamcinolone 15 months ago and gave me cushings . doctor said it should go away but not so sure. if you ever took steroids check it out
Thanks so much!
Can we chat email ?
I tried to find you on facebook. I could really use some advice. please!
Email me at cushingscountrygirl@gmail.com and my blog is www.2cushiegirls.blogspot.com