Batten Day 2022 - Joshua's Warriors

On 9th June, Batten Awareness Day, please support us by wearing Orange and telling people about Batten Disease.
Batten Disease is a life limiting terminal condition that affects 1 in 100,000 people worldwide. It reduces the cells ability to clear waste and repair damage, leading to a range of symptoms including skill, vision, motor and memory loss.
2024 Update
This video was made 2 years ago, Joshua's condition has continued to progress. We love being adventurous but it's getting so much harder with Joshua's increasing needs. We would love to have the freedom to take Joshua off road and on walks with his buddy dog.
Time isn't on our side with Batten disease being life limited, so need to sort something asap.
Please donate to help buy a new off road buggy for Joshua: www.justgiving...
Join the Joshua's Warriors Facebook group: / 305346063468953
The BDFA supports the families and the professionals that work with them. By raising awareness they aim to source funding for therapies and ultimately a range of cures.
More Information about the Batten Disease Family Association: www.bdfa-uk.org...