Living With Fibrous Dysplasia

Living with #fibrousdysplasia is challenging, especially as there is no direct cure.
In this video, we sit with Pel, who shares the socio-economic and psychological challenges that come with living with such a rare illness.
#RareDiseasesInNigeria
⏱️ TIMESTAMPS ⏱️
00:00 Introduction to Pel
02:00 Fibrous Dysplasia Explained
03:30 Early Symptoms and Diagnosis
06:00 Medication Challenges
08:00 Medicalization and Misdiagnosis
10:00 Mental Health Impact
12:00 Societal Exclusion
14:00 Vision for the Future

[@josephineegbodo2502]

Can’t believe she can’t afford treatment for herself 😢