The True Cost Of Autistic Masking (Damaging Effects Of Unconscious Masking)

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  • Опубліковано 28 вер 2024
  • What is the true cost of autistic masking? Is unmasking really necessary? For autistic people, masking can become a useful skill that lets us blend in and sometimes even do very well in society. However, this mask takes energy to create and eventually becomes a barrier that hides our authentic selves. So the question is, what is the ultimate price we pay? What is the true cost of masking?
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    👋Welcome to Autism From The Inside!!!
    If you're autistic or think you or someone you love might be on the autism spectrum, this channel is for you!
    I'm Paul Micallef, and I discovered my own autism at age 30.
    Yes, I know, I don't look autistic. That's exactly why I started this channel in the first place because if I didn't show you, you would never know.
    Autism affects many (if not all!) aspects of our lives, so on this channel, I want to show you what Autism looks like in real people and give you some insight into what's happening for us on the inside. We'll break down myths and misconceptions, discuss how to embrace autism and live well, and share what it's like to be an autistic person.
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КОМЕНТАРІ • 525

  • @olga2you
    @olga2you Рік тому +576

    Trying to unmask is like trying to get myself to pee my pants in public. Like yeah I can technically do it but it feels so wrong and everything in me is fighting it.

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +41

      We need friends like Billy Madison to pee their pants in public with us for solidarity. 🤣
      “You ain’t cool unless you pee your pants!!”

    • @zigzag8392
      @zigzag8392 Рік тому +15

      @@clicheguevara5282 If unmasking is cool, then consider me miles davis.

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +5

      @@zigzag8392 LMFAOOO 🤣
      You just pulled landscaping duty!

    • @robertlecic9996
      @robertlecic9996 Рік тому +2

      Try to care less what other think about you.

    • @SKOMonster
      @SKOMonster Рік тому +55

      @@robertlecic9996 this advice is right there with telling depressed people to stop being sad, and obsessive-compulsives to stop thinking about it.

  • @flexico64
    @flexico64 Рік тому +337

    “She had blue skin, And so did he.
    He kept it hid, And so did she.
    They searched for blue
    Their whole life through,
    Then passed right by--
    And never knew.”
    ― Shel Silverstein, Every Thing on It

    • @Aiken47
      @Aiken47 Рік тому +24

      Instant 😢 wonderful poem that really hits home for me

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +15

      Shel always hit me hard as a kid. As an autistic adult, I definitely understand why.

    • @luluappler
      @luluappler Рік тому +5

      sad loveliness

    • @maf80
      @maf80 Рік тому +9

      omg i love that.. once i'd managed to read it. I got sidetracked by the blue skin and it all went a bit Startekky. Then I wondered if they both had boxes that they kept a piece of blue skin in and things started to get a bit Hammerish. Its that time of night :) Lovely yet sad. I'm assuming that a sea journey was involved. I'll go now

    • @Steertanzer
      @Steertanzer Рік тому +4

      Thank you for posting this.

  • @squidge125
    @squidge125 Рік тому +417

    As a 40 yr old late diagnosed female professional, when I was assessed the psychologist said I was one of the highest masking autistics he'd ever assessed. It's contributed to severe anxiety, frequent burnout and a major dissociative disorder. I am now changing my whole career and life to not have to mask as much as it's so automatic I can't just 'drop it'.

    • @Ripper13F1V
      @Ripper13F1V Рік тому +19

      I wish you the best of luck. I wish I could figure out how to change that. ugh.

    • @kimkimpa5150
      @kimkimpa5150 Рік тому +8

      What will your new career be?

    • @autisticexpressiongenx
      @autisticexpressiongenx Рік тому +5

      its so good to hear your empowered now.

    • @minusstage3
      @minusstage3 Рік тому +12

      Suffering seems to work wonders. As unfortunate as that sounds.

    • @TaxingIsThieving
      @TaxingIsThieving Рік тому +16

      I feel burned out. I'm 24 and wondering if I could possibly autistic. Would explain the friendlessness.

  • @zigzag8392
    @zigzag8392 Рік тому +135

    I found out I was autistic/adhd when I was 37. I'd been keeping up a mask on and off. A few things I found are that; 1) Masking is exhausting. It's like having a fragile origami swan in your hand and having to pay attention to not crush it. If I was working an 8 hour shift I would run out of energy by hour five or six. When I started dating it was full mask at first, but my long-term relationships slowly saw more and more mask-off, until those relationships crumbled. 2) People are bothered when the mask slips off. They don't like when I get hyper-excited about a specific topic. They don't like when I completely tune out things that don't interest me. It really does feel like the authentic, inner self, is somehow wrong or broken compared to other people. 3) My mask off oddities were more acceptable when I was younger. The older I get, the more people act hostile when I say what I really think or feel.

    • @stuartchapman5171
      @stuartchapman5171 Рік тому +19

      I self diagnosed five years ago aged 50. The mask has become a difficult outward image to remove now. I feel your pain when it comes to work. I work better on my own. I struggle on long shifts around others, especially as another person commented, "I don't mask very well". All that energy and people still see through it.
      The best I can hope for is the filters prevent the normal people becoming repulsed and horrified. Working on my own helps with the ADHD as well. It takes a long time to see every aspect of a task, before tipping over into hyper-focus and completing the task quickly and exceptionally well. People are happy with the end result. It does appear initially to onlookers that I'm slow and inept. I cant do the small talk thing, no matter how hard I try. So working alone also helps there.
      I've struggled to find partners and rarely can I truly be myself and therefore relaxed, as often as I would like around them, in order to maintain the relationship.
      Having always been a maker, I find a bit of comfort in the company of other "creatives" many I of who I seek out are also divergent in one way or another, I can show a limited amount of my nerdiness to them.

    • @unassailable6138
      @unassailable6138 Рік тому +1

      You dont need to mask, just date another ''autistic'' person or say you are an aspie first date. Masking is a choice.

    • @allieeverett9017
      @allieeverett9017 Рік тому +7

      Zig Zag your comment totally resonates with me. Thank you for putting it out there!

    • @BetheChange80
      @BetheChange80 Рік тому +1

      Reading so many comments that are similar and relating, I wonder there are more people with autism than ppl with neuro normal or whatever it is called.
      Then WHY ON THIS EARTH Neuro DIVERSITY is not encouraged in workplace or even at elementary schools
      Why majority of ppl that fall in the specrrum have mask for a minoity of ppl that are social butterflies.

    • @cvanderlinde9447
      @cvanderlinde9447 Рік тому +3

      Paul, thank you so much for what you bring to everyone that needs, information; encouragement and TRUTH ! You take the hits, of those, whom , feel angry, for whatever we trigger in them…, but never forget how much your transparency, and the price you pay, means to us! Always be kind to yourself first!! You have a beautiful mind and a brave and loving core/ heart!

  • @christofthedead
    @christofthedead Рік тому +303

    The very first thing I was told during my first psychologist appointment after receiving my autistic diagnosis at 38y.o. was "you have a personal responsibility to mask around other people so you don't make them feel uncomfortable". She followed this up with claiming to have the ability to read people via their body language (pseudoscience), "the problem with autistic people is" (strap yourselves in) they need to learn human behaviour like AI's learn maths (just plain ignorant ableism), ptsd triggers were because "autistic people lack theory of mind" (pseudoscience) & "cancel culture" (conspiracy theory). She got super angry when I challenged her on any of this misinformation & refuted it with claims to authority (she has professional training & I don't). It took 6+ months to build the courage to see that psychologist, and it's taken me over a year to recover from it.
    Thanks Paul, for reminding me that autistic people are not broken things that need fixing. We are human beings who benefit from compassion & understanding. We thrive when we are enabled to be our authentic selves, just like everyone else

    • @TaxingIsThieving
      @TaxingIsThieving Рік тому +13

      Blimey

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +39

      I was finally diagnosed at 39 (after developing C-PTSD from years of unknowingly masking). All of the local therapists who “specialize” in autism immediately wanted to start me on ABA therapy. Ugh! What a joke.
      But if I had been talked to like you were, I would have been absolutely ENRAGED. Just reading it second hand makes me incredibly angry. I’d rather be bullied and called re**rd by ignorant people than have to hear what that “expert” had to say.
      BTW: You know why I didn’t get diagnosed until 39? It’s because the eXpErTs were too ignorant about autism to see it in me. I was diagnosed with BPD, bipolar, general anxiety disorder, clinical depression, and even sociopathy at one point. These diagnoses usually came on my first or second appointment and drugs were immediately offered. I had to _self diagnose_ my C-PTSD and this self diagnoses led to autism - which I hadn’t considered before (thanks to my ignorant doctors telling me that I can’t be autistic because I seem too normal.) Evidently they don’t understand the concept of masking or spectrum.
      A lot of us on the Aspie end of the spectrum are FULLY capable of self diagnosis. We’re highly intelligent and can research a single topic obsessively for years before drawing a conclusion about it. I spent three years diagnosing myself and had already been studying psychology for 20 years.
      A lot of the “experts” can go F themselves tbh. Psychology is an amazing field of study but psychiatry is in large part, a glorified drug dealing operation. It has done irreparable damage to my entire family.
      I’ve gotten an official diagnosis for C-PTSD so I can get help, but I have no interest in an official autism diagnosis. I don’t need or even want their stamp of approval. ..and I certainly don’t want their ABA conversion therapy.

    • @nikolakorecki6967
      @nikolakorecki6967 Рік тому

      Sorry to hear about your experience, it must have been awfull... Good psychologist would actually congratulate on diagnosis and also points strengths of being autistic...Tony Attwood , leading autism scholar says "“I usually say to the child ‘Congratulations, you have Asperger’s syndrome’ and explain that this means he or she is not mad, bad or defective, but has a different way of thinking” - from The Complete Guide to Asperger’s Syndrome.

    • @anyascelticcreations
      @anyascelticcreations Рік тому +19

      I'm appalled at the behavior of that "doctor". And I'm sending acceptance and support your way.

    • @bronwynlennox1240
      @bronwynlennox1240 Рік тому +30

      Is it any wonder we hesitate to seek a diagnosis

  • @autisticexpressiongenx
    @autisticexpressiongenx Рік тому +81

    I am 47 I just realized I m autistic and my masking abilities are failing and meltdowning is in a cycle with exhaustion. I'm going to make it because of troops like u bro!

  • @Mandrake_root
    @Mandrake_root Рік тому +50

    One thing I started doing when I wanted to unmask was deliberately stim around my friends. I noticed that when I was home with my family I would sing to myself out loud all the time, but I never did that around my friends.
    I pretty much started trying out new stims too. Got new stim toys, started consciously rocking back and forth, etc.
    Since I had heard that stims are for emotional regulation, I figured that stimming around friends would make me feel more relaxed enough to unmask in different ways. Them not making me feel awkward for stimming was like a sort of acceptance that helped me trust them more.
    Since unmasking I havent feared someone hating the “real me” in a long time.

    • @mrtymek
      @mrtymek Рік тому +3

      Hear me out, because I think I just realised I have been unconciously nailing stimming in public: I usually do one of the two: I tap a drum beat with my fingers on my lap, or make a drum beat in my mouth - hitting tooth against tooth is kick drum, rubbing tooth against tooth is like a soft snare and by moving saliva around your mouth with your tongue you make a sharp snare. With that if I need to I can play elaborate drumrolls in front of everyone and nobody ever noticed. If I'm sitting I can tap my toe against the inside of my shoe on top of that and bob my head ever so slightly. xD

    • @ChantalM3
      @ChantalM3 Місяць тому

      @@mrtymek That's really cool! Be aware, though, of damaging your teeth over time. That's absolutely a thing with stims that involve your teeth.

  • @Onthe9thlife3730
    @Onthe9thlife3730 Рік тому +12

    My real me was rejected constantly as a child, as a teenager, and as an adult. It had to be cut away from me "don't do that, why are you like that, can't you do anything right". Any time I struggled and talked about it I was given denial, reduction of my experiences, and in some cases complete rejection "there are people who have it worse" even when I gave them support, acceptance, and confirmation.
    Learning I'm autistic and ADHD has just shown in sharp relief how much discrimination I've had against me, how much support I haven't had and how much I needed.

    • @murtazaarif6507
      @murtazaarif6507 Рік тому

      At primary school, my nickname was coco which the pupils rhymed with choco meaning chocolate because I had darker skin. Later in secondary school, they Rhymed my name Arif with riff-raff. I never finished school. I was taken out just as my exams were due to start. I tried again at another school but problems with family at home and making friends at school made me cocoon myself. Nobody understood me. They still don't.

  • @kathryncunliffe4935
    @kathryncunliffe4935 Рік тому +187

    “There is something wrong with me that I can’t let people see” this is how i have always lived my life

    • @autisticexpressiongenx
      @autisticexpressiongenx Рік тому +6

      knowing is half the battle the battle should get easier now.

    • @verabolton
      @verabolton Рік тому +8

      This sentence cut into my heart. So painfully true... 😢

    • @zigzag8392
      @zigzag8392 Рік тому +12

      I don't let people get close to me for fear they'll see the shameful, hidden me. My close friendships and my marriage were broken when I let the mask off. I never want to feel that rejection again.

    • @maf80
      @maf80 Рік тому +3

      @@zigzag8392 The word Shameful jumped out at me. I'm currently having EMDR for CPTSD and Shame is a word the features prominently. Only my shame has always been attributed to something else. Is autistic shame a thing ?

    • @truthmerchant1
      @truthmerchant1 Рік тому +4

      @@maf80I've found having cptsd and autism can be very confusing because trauma itself can cause shame, and also growing up feeling we have to hide our true autistic selves can also cause shame, so it all gets compounded. I'm trying to pick apart the pieces to make sense of things. I suspect the two things feed off each other 🙁

  • @clicheguevara5282
    @clicheguevara5282 Рік тому +86

    I’m so naturally good at masking that I was 39 when I finally found out that I’m autistic. By that time, I had already developed full blown C-PTSD from decades of masking and feeling “broken”. Oddly, I had already actually stopped masking in my early 30s. I didn’t even know what masking was. I just knew that I couldn’t keep “faking it” for other people’s comfort.
    Nowadays, I’ll only mask if it’s entirely appropriate - and it’s by choice, not out of desperation. I’m still trying to find balance though. Some days I’m so not up for masking that I’ll stay in my room just to avoid 30 seconds of small talk with my roommate. That’s more C-PTSD than autism though.

    • @autisticexpressiongenx
      @autisticexpressiongenx Рік тому +7

      we made it thru this far soldgier

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +6

      @@autisticexpressiongenx And we’re going to keep on marching, sarge!
      *salutes

    • @TaxingIsThieving
      @TaxingIsThieving Рік тому +4

      What's hating small talk got to do with CPTSD

    • @clicheguevara5282
      @clicheguevara5282 Рік тому +34

      @@TaxingIsThieving It’s not about “hating” small talk. It’s about C-PTSD causing your amygdalae to keep your brain in a constant state of fight or fight mode.
      Let’s say a big angry stray dog comes running straight for you in an alleyway. ..and then your friend walks up behind you and says “Yo! Have you seen the new Netflix show? It’s hilarious!” ..and you can’t mention the dog because only you can see it. ..but it’s real as far as your body is concerned.
      That’s what it feels like. It’s a full blown adrenaline dump, but you have to act normal.
      Here’s the other part: Fight or flight mode is such an intense mental state that your mind can only handle it for so long. Eventually “dissociation” kicks in and your brain goes into a dream like, out of body type experience. Small talk is very difficult in that state too. It’s like being WAY too high on pot and having to talk to strangers.

    • @anyascelticcreations
      @anyascelticcreations Рік тому +17

      @@clicheguevara5282 I don't think I've ever heard it described so clearly and eloquently as you did here. Very beautifully put.

  • @InsideAut
    @InsideAut Рік тому +49

    I was diagnosed in early 2020 and before that I did not understand what masking is or that I'm doing it. But I was very well aware that something was draining my energy every day. Now that I discovered that I am autistic, I found out that I mask very intensely. But unfortunately my masking isn't really convincing in the NT world. So basicly I put much energy in masking just to mask ineffectively. Not a good combination 😅
    I think, masking and unmasking are very important topics, we can not talk enough about in our videos 😊

    • @willow_wise
      @willow_wise Рік тому +6

      I can relate to your situation, I think I am similar. I can mask pretty well for short periods (grocery shopping, appointments, etc.) but when it comes to work I expend a lot of energy to mask just barely enough to get by. Usually the first year or so at a new job it's pretty good, then as the mask starts to slip I start running into communication issues, social expectattion issues, etc. I've only recently put all this together and its very helpful to hear about the experiences of other.

    • @InsideAut
      @InsideAut Рік тому +4

      @@willow_wise Exactly. For short periods of time it is manageable for me. Maybe even a year in a new job, but then it gets more difficult very fast.

    • @soanalaichnam344
      @soanalaichnam344 Рік тому +3

      @@InsideAut It's the same for me as well. How did you get your diagnosis? I'm currently self diagnosed, because I don't have the time and energie right now to go through the diagnosing process, but I'm trying to get an appointment next year, as I don't think I'm going to manage an 8 hour work day with lots of collegues and I definetly need an answer for myself. I'm living in Germany btw. but I'm currently in Spain, because of work and it is so much easier here :) People are much more relaxed and I only work 5 hours a day. Those 5 hours are extremely exhausting, because it is intense work, but it's also really focused and uninterrupted, so extremely productive.

    • @thebeautyfiles9686
      @thebeautyfiles9686 Рік тому +2

      Same here! I've been masking my whole life as well. Unfortunately, now at age 42 I'm starting to see the effects of decades of masking and how exhausting it really is. I also many high pressure sales jobs where you literally have to leave if you don't maintain a certain sales per hour goal so I have to mask constantly still. I have to be super talkative and it's very draining.

    • @InsideAut
      @InsideAut Рік тому

      @Soana Laichnam I'm from Germany, too ☺ 5 hours of work is less than most people work, but I think it is still exhausting. Great, that you can keep up with it and stay productive.
      An official diagnosis would be good, I think. Even if you want to do it next year I recommend getting in contact with the right people now. Because waiting time can be quite long. A year is not uncommon in Germany. It could be even longer than that. You could contact some "Autismusambulanzen" in big german cities even from Spain.
      By the way, Spain is beautiful 😍

  • @16Vagabond
    @16Vagabond Рік тому +13

    I never liked crowds, or loud noises, was always the loner at school who couldn't make real connections or hold conversations about things I don't like or find pointless. I can't understand the appeal of social gatherings and they stress me out immensely. I was never diagnosed, though, I'm still not at 26 yrs old.
    But, due to my job in education, I learned to "fake" social skills and how to please people, look approachable, etc. Students and colleagues actually really like me, I'm one of the most popular teachers. But it is all so, so very draining. By the end of a workday I always feel completely exhausted and want to disappear into my room at home. Some of my colleagues have asked me in the past to hang out with them in my own free time, I try to find excuses not to go. Being social already feels like a massive chore, I don't need to do it in my free time, too.
    I honestly wish I could find a romantic interest who is like me. I don't want to have to force myself to be something I'm not in my private life, too. I feel like it is even more difficult for women, because society doesn't generally expect us to be aloof or socially awkward. What is even my real personality? I feel like I never get to just let go and feel comfortable around other people.

  • @smicketysmoo
    @smicketysmoo Рік тому +122

    I think masking is generally more of an issue for the later discovered autistics, like myself. Not knowing for most of your life that you were ASD "encouraged" us to develop strategies to fit into a NT world when we felt that we couldn't otherwise. These start instinctively, but - I believe - we become more aware and strategic about their employment as we get older.

    • @tigrecito48
      @tigrecito48 Рік тому +23

      i got diagnosed with aspergers in my 40s.. because i didnt know i was autistic and was bullied a lot, i learned to try to hide some of my weirdness, or do it when im alone... and not liking eye contact i learned to look past people, behind them, thru them or at a near point on their face thats not their eye so they think im looking them in the eye etc.. its funny how, by learning to try to talk to people (even though its exhausting) and act like im ok and having a good time etc, and not show my emotions too much when upset by people being mean, so that the bullies cant feel theyve won etc, i now find myself having people using those "masks" as an excuse to not give me benefits or say im perfectly fine or even accuse me of faking being autistic etc.. i feel almost like i have to act in the complete opposite way now all the time in case people dont think im autistic enough... job centre sends me to some course to do interview techniques... they constantly tell me over & over again, make lots of eye contact.. then when i do (looking near the eye etc) they then say.. oh look you made plenty of eye contact, you had no trouble with that at all... maybe we should give you less benefits? i told them after.. even if i wanted to make plenty of eye contact (which I dont) doesnt mean i cant sometimes do it and also.. my eyesight is bad now im middle aged, so its not the same anyway.. im really just looking at a blurry face. i thought i might get treated better after diagnosis, more people being understanding.. nothing much changed... only now i dont try to hide some of the ways i used to want to act... people who used to moan at me for tapping my feet or fingers or something i now just ignore... i mean... in a cafe some woman was tutting at me for tapping my foot cos i was anxious due to her kid screaming loudly... and her not sorting the problem out.. who's the actual annoying person? id say her...

    • @autisticexpressiongenx
      @autisticexpressiongenx Рік тому +1

      @@tigrecito48 yeap take it easy i know it aint.

    • @cosmoshfa88savant66
      @cosmoshfa88savant66 Рік тому +1

      not if you were born in the 60s/70s then you learned very young to mark,,

    • @julieduncan1996
      @julieduncan1996 8 місяців тому +1

      Exactly!

  • @NautilusMusic
    @NautilusMusic Рік тому +10

    i can never tell if im masking or being myself until later on when im relaxing on my own and i think back and go "man i put so much energy into that".
    i kinda "fake it till i make it" with my social confidence and so when i am a bit weird, people take it like im just confident rather than having no idea what im doing socially.
    it seems to work for me, but im highly introverted, so it takes so much energy to be that way.

  • @annelogston
    @annelogston Рік тому +24

    My psychiatrist referred me to a neuropsychiatrist in his practice. After some seriously brutal testing, I was diagnosed with mild depression, moderate panic disorder, autism spectrum disorder, and sensory processing disorder. I should add, I’m 60 years old. My psychiatrist immediately blew off the tests, saying that since I could talk to him and look him in the eyes, I’m obviously not autistic. Yes, I mask big time. Honestly, at this point I’m not sure how to stop anymore.

    • @c.j3087
      @c.j3087 Рік тому +1

      His explanation is beyond superficial… unfortunately most of the doctors doesn’t know how to deal with people in the spectrum

    • @lrwiersum
      @lrwiersum Рік тому +1

      Masking is SURVIVAL !!

    • @assimilateborg
      @assimilateborg 8 місяців тому

      How is this looking into eyes thing? Apparently one has to look people in the eyes when talking. I look on their mouth which seems to be odd. I have to consciously look at the eyes.

  • @nerdipedia1142
    @nerdipedia1142 Рік тому +25

    I’ve spent 51 years masking until I got my diagnosis in June and I genuinely have no frigging idea who I am.
    Thank you for making this video. While everything you said was great, there were some major moments of clarity there that I think helped me and will help me explain stuff to the people I care about.

    • @bokusimondesu
      @bokusimondesu Рік тому +2

      Exactly. It’s a fricking hard puzzle to break down.😊

    • @talbrott
      @talbrott Рік тому

      same

  • @JBear87
    @JBear87 Рік тому +11

    ADHD-er here, but I also unconsciously masked most of my life until getting diagnosed in my 30s. I found it really helpful to realize that unmasking isn't about whether or not another person finds me "worthy"; it's about figuring out if pursuing this relationship will be worth the time and emotional energy for both people involved. If a person isn't going to accept me as myself, I'd much rather find that out early so I can move on and find other people that are more compatible. It's taken a while, but the friends I have now were worth the wait.

  • @9crutnacker985
    @9crutnacker985 Рік тому +69

    Thank you for clearing up for me what masking is. At an early age I took the saying 'just be yourself' literally. I don't think I've ever masked. Filters, yes, but the masking you describe, no.
    So how did that pan out?
    I hid. Literally at school I'd stay in the library at breaks or lunch time or round the back of the sports hall or anywhere where there weren't others or I couldn't be seen because I knew who I was wasn't acceptable & the RS would be too much. I learned to be (for the most part) invisible. By & large it worked. The cost - isolation. Lots of it.
    Better than masking - I've no idea. My ADHD brother (who did mask) seems to think I made a good choice. If that's the case I'm glad because I'd hate to experience the bad option.
    Any other 'invisibles' out there?

    • @autisticexpressiongenx
      @autisticexpressiongenx Рік тому +3

      you know this is true now. we will overcome the bumps in the road i believe

    • @andreabuntpercy
      @andreabuntpercy Рік тому +11

      I can relate to hiding.... that's what I did too. It continued into two marriages where I became invisible. My spouses were fine with that since that made them the centres of the universe. But I couldn't sustain invisibility forever and became very angry instead, because nobody came forward to make me feel visible!!! Grrrrrr. 🙃

    • @Kayd33
      @Kayd33 Рік тому +4

      I can relate. I've done both. Much love to you & your brother. 🫶

    • @willow_wise
      @willow_wise Рік тому +18

      I seem to do a combination of hiding and masking. I hide when I can and then pull out the mask when hiding isn't a good option. This basically means all my energy goes to masking at work (so I can pay bills and survive) and then I hide out the rest of the time to recharge so I can mask again the next day. Fun times.

    • @Flutterbyby
      @Flutterbyby Рік тому +6

      Ah yes, I know toilets and libraries very well 😊

  • @Super_Bunny_
    @Super_Bunny_ Рік тому +10

    Thanks Paul. I have experienced the damaging effects of masking full time. I’m now on long term disability. I even realized I mask at home too. Now I rock and sing and make sound effects all I like at home and it feels great. I have been off for almost a year and I can’t put my full mask back on now, it’s like I wore it out.

  • @jliller
    @jliller Рік тому +15

    As a middle aged not-formally-diagnosed Aspie, there is one mask I know I wear and there is an unknown mask.
    The known mask is that I am a very opinionated person about pretty much everything. This lead to lots of criticism for being judgmental. So I learned to seriously dial back expressing my opinions to others at all.
    The unknown mask is that because I've spent my life until very recently unaware of my ASD+iADHD I've surely unconsciously masked most or all of my life in ways I have yet to figure out. I'm sure I have anxiety as a side effect, perhaps specifically due to masking. One possibility is that at a young age I may have started suppressing my emotions as a defensive mechanism.
    Before I ever heard of masking, I had contemplated the existential question of how much of who I am is defined by who and what I am not. Much of my life I've felt like I am "None of the above."

  • @anyascelticcreations
    @anyascelticcreations Рік тому +17

    It took moving, by myself, to a completely new state where I knew no one to drop my mask. That wasn't my intention. I moved for other reasons. But I don't think dropping the mask would have been possible for me without something that extreme.

  • @altitudeiseverything3163
    @altitudeiseverything3163 Рік тому +8

    Masking is like wearing a pair of high heels: sometimes it’s necessary in order to command respect in a professional setting, sometimes I may choose to wear them to make myself more ‘appealing’ socially. I can can walk quite well in them, though it’s never really comfortable. I can even run short distances, if I must. However, as soon as I walk into my front door, the first thing I do is kick them off and breathe a big sigh of relief! And I may need a bit of time before I can put them on again. Same with masking: I can do it well, to a point, and it’s useful, but never quite comfortable.

  • @MrAtheistQueen
    @MrAtheistQueen Рік тому +13

    I was just diagnosed a year ago at age 45, and I'm still struggling to figure out if any parts of my mask are me or not. It has been a very grueling process that involves re-examining every moment of my life, and I've not been able to convey to my family what I'm going through. Your description was SPOT ON!!! Thank you for putting into words what I could not express on my own. I'm DEFINITELY sharing this one!!!

  • @kensears5099
    @kensears5099 Рік тому +4

    I'm 65 years old and am about one week into this realization. I have taken a couple of online tests, including the "AQ" one you featured, where my score was 35/50. The other test, likewise, placed me as "Level 1 High Functioning." The congruence of, 1) affirmation from the tests (even if they don't qualify as "professional diagnosis"), 2) simply everything you're saying in your videos slamming straight into my consciousness as absolutely real, absolutely "me," 3) my own inward reflections stimulated by all this, uncovering fathomless depths of memories, of interactions, confusions, disorientations, perplexities and, in general, the "visitor from a different planet" feeling, that suddenly all make sense, and, 4) my experience ALREADY, even within my first week, of unmasking--well, it all combines to a certainty I find utterly impossible to deny, even if I wanted to. But it makes just too much sense of my life for me to want to. The last point dovetails with this video. When I say I'm unmasking, it doesn't mean I'm presenting behaviors that are starkly and confusingly going to strike people in my circles as bizzarely new, arbitrary and even play-acting sorts of idiosyncracies. It's more subtle than that. There is a myriad of reactions, feelings, subtle physical coping methods, that have always been normal for me, but I've been painfully aware they were somehow inappropriate, rude, childish or just weak-willed. So I'd repress them and end up paying the price by a sense of being hollowed-out inside, like a totally withered vine ready to be blown away by a hot desert wind. What I have immediately begun doing is to stop all the inner recriminations, to stop all the censoring that begins on the inside, on the affective level even before, or even if, there is any externally observable symptom. Just doing that within, accepting that these instincts aren't bad but actually what I need, has allowed me, in a deep way that belies the casualness of the word, to RELAX. For instance, standing in a room, in a circle, with 5-10 other men at church prior to the start of services, discussing what will go on during the service, as we all stand there rather statically and soberly, paying due respectful attention to each other, as one then another of the men starts "sharing" in a sometimes rambling, not entirely coherent way, perhaps going off on a tangent, perhaps getting interrupted by some joking, and I'm standing there doing my best to appear as focused and "mature" and serious and in-the-flow with exactly what everybody's saying and the whole tenor of the moment....this has always been a spot in which I am simply dying inside, torn between a screaming impulse either to just fall down in a stupor-like state or to MOVE, to DO something, for stimulation to center on and be immediately present to. This is a spot in which I've tried some unmasking, allowing myself to differ from the others in my demeanor, to move around a bit, to not necessarily zero in so intensely and fixedly on every word and expression coming from each of the men, but to allow myself a "field" where my senses can roam while these men are a bit on the periphery (though I remain fully aware what they taking about, at least the essential gist). This might mean some staring out the window, or calm "pacing" (more like strolling) in the room while the discussion is going on, or focusing on things like flowers in the room or beautiful decorations or children's art on the walls, anything that pulls my eyes in and gives me a aesthetic/affective charge. I have found this subtle degree of unmasking, even when none of them know I'm doing it, to be simply incredibly liberating. I'm not suffering those self-inflicted inner recriminations anymore.It's like I can breathe again since...I don't know when.

  • @user-lx6pk9os2d
    @user-lx6pk9os2d Рік тому +10

    The only thing I'd add is to be very, very careful about unmasking to long standing so called friends. Because the reality is that some just can't handle it. I explained to a couple I've known for years about my Aspergers and particularly my experience of Alien Planet Syndrome and how my daily reality is akin to watching animals in a zoo. Didn''t go down too well - they just can't comprehend it. Good job I didn't tell them how I fake friendship cos I actually don't feel anything...!

    • @assimilateborg
      @assimilateborg 8 місяців тому

      Oh, my building friendship thing is like a whole project. Planning things out, taking years to make it work. I have very few friends because I invest so much time into having them in the first place. I will never tell "hey you are my friend because I planned 5 years long how to be friends". That will obviously result in a failed friendship. But my current friends are quite OK. Some even know about my diagnosis. One even said "yes of course you are autistic!" So I probably drop the mask a bit when with close friends.

  • @ScenicFilms
    @ScenicFilms Рік тому +8

    I had this conversation with my therapist. I thought it was important for me to find out who I am, and why it is important. It's an ongoing process, but also difficult. Good luck to us all :)

  • @jacekiser5876
    @jacekiser5876 Рік тому +5

    Thank you! After a lifetime of being an unsolvable riddle to myself, I've finally discovered that I'm (almost certainly) autistic. I'm finding your videos immensely helpful.

  • @danielnelson2725
    @danielnelson2725 Рік тому +5

    In the process of getting diagnosed in my 40s. Obviously have done research, such as this video. But I'm finding out my marks are starting to drop. Last week at a therapist we were talking about a stressful thing and I suddenly realised I was rocking back and forth in the chair. It hit me then that was something I used to do as a child when in a stressful situation. And also rubbing both knees as I do it. I didn't consciously do it, maybe I have done so as an adult, but this really stood out.
    And there's other things as well that have come back to me like how I hate being in a pokies room (slot machines) with all the music and lights. And having meltdowns, just wanting to curl up and be alone and lashing out if at people, even though I knew they were concerned.
    On new medication and it has made me so clear compared to the previous. Finally I feel like I belong to a community!

  • @anders95
    @anders95 Рік тому +16

    I went to my weekly appointment with my therapist today, because I'm trying to get a diagnosis. He told me even though I scored very, very high on my test, I couldn't be autistic because I have a job and I get by seemingly okay (I'm not btw). Well, what if I'm really good at faking it, I said. "No, that's simply not possible." I am furious.

    • @JR-playlists
      @JR-playlists Рік тому +1

      Get a second opinion

    • @anders95
      @anders95 Рік тому +1

      @@JR-playlists I did, thankfully. I'm currently doing my diagnosis with a specialist. Fingers crossed🤞🏻

    • @c.j3087
      @c.j3087 Рік тому

      His explanation is beyond superficial 😔

    • @tusla6889
      @tusla6889 Рік тому

      Its because the paradigm is not built to acknowledge those that are outside its view

    • @amys0482
      @amys0482 9 місяців тому

      new therapist

  • @xxBreakxxAwayxx3
    @xxBreakxxAwayxx3 Рік тому +4

    When I started my new job, my employers were so quick to tell me that I would NEVER be required to mask in the workplace. It immediately made me feel worried and misunderstood. It was obvious they had no idea what masking was, except that it was "bad." I tried to explain that my masking was necessary if I wanted to be understood. The faces and tone of voice are ubiquitous and needed if I dont want people to treat me like I am rude, sarcastic, or rebellious for simply being calm and direct. Masking is such an important skill for being understood by society as a whole, and yet society takes for granted how endless it becomes for us. Instead of rushing to offer meaningless gestures, I wish my managers had stopped to ask what masking was. Or whether I was struggling with anything in particular. Instead, they got to pat themselves on the back and I remain lacking any realistic support or understanding.

  • @alib1255
    @alib1255 Рік тому +4

    This is me! I don’t have a diagnosis yet (I’m currently struggling with the red tape of that process). I’ve been masking for decades and don’t know any difference. I feel the need to mask in order for me to cope and preserve myself in public around co workers and acquaintances. Only my immediate family and very close friends see the real me. If I don’t mask, I’m extremely vulnerable in public.

  • @ThroughTheLensOfAutism
    @ThroughTheLensOfAutism Рік тому +6

    That rubik's cube was a great tool and metaphor.

  • @EmbodiedIFS
    @EmbodiedIFS Рік тому +1

    I appreciate the distinction you make between filters and masking. This is much like the therapy model Internal Family Systems. A step that is important in IFS is to acknowledge the good intention of the mask (or "protector" in IFS language) and the when the mask is willing spend some time giving witness and compassion to both the mask and the "unacceptable part" that the mask is hiding. That will bring healing to the "exile" (IFS language) and then, the mask can transform into a more helpful role that is more like the filter you mentioned - a part that is protective in a flexible, authentic, way, not rigid or self-abandoning.

  • @Kimbird29
    @Kimbird29 Рік тому +7

    I was also late diagnosed. My mask developed over several years, of being made fun of, harassed and bullied. I thought of it as telling lies but it helped me hide my true self. I’m now beginning to accept myself and slowly remove the mask. I think society is now more accepting of us as well. So earlier this year I disclosed my autism to the management at work and it’s probably the best thing I’ve ever done. They have made adjustments to help me, and one of them said it explains a lot. So actually they must have suspected. Maybe my masking hasn’t been as good as I thought. My friend used the same analogy as you did, he’s gay and he said it was similar to him “coming out” knowing who you can trust to tell and when.

  • @RhetoricalBean
    @RhetoricalBean Рік тому +9

    I’ve been trying to figure out how to unmask. It has been difficult to parse through what is real and what is a mask, so I’ve kinda given up on that and am taking a different approach instead. I am trying to unmask by repeatedly making a choice to be vulnerable. The big one: I’m asking questions when I’m confused. I know when I ask my friends what the appeal of going out to bars is, I out myself as socially different. However, despite the anxiety this causes, I’ve found value in letting my guard down in this way, and it can even strengthen the social bond with the people I ask

    • @roomclear
      @roomclear Рік тому +3

      Same. Realizing I could just ASK was a big step for me. As much as I'd like to believe I can suss it all out...admitting that I can't has been a huge relief.

    • @francesbaker7233
      @francesbaker7233 Рік тому +2

      Yes reading your response, I realise that this is how I have started the process of unmasking after over 60 years of bring unaware that I was autistic.
      I tell others what is too much for me. For instance socialising for more than 2 hours, asking for patience or help with things I find difficult and displaying my stress when in the past I held it in and it would feel like my head would explode.

    • @roomclear
      @roomclear Рік тому

      @@francesbaker7233 I'm 52 and only recently figured it out during the pandemic.

    • @marthamurphy3913
      @marthamurphy3913 11 місяців тому

      I'd have to ask friends what the appeal of playing competitive sports is. I really never got it.

  • @markmccaskie9413
    @markmccaskie9413 Рік тому +5

    I'm 59 and I was diagnosed with Autism 3 years ago, i diagnosed myself for 7 years before getting tested. I have tinitus, raynauds syndrome, sad seasonal disorder, I am also gender fluid and have Complex trauma from being instutionalised from the age of 5, i am a survivor of childhood sexual abuse. I have been masking my whole life, which has made me burntout and exhausted. I also struggle with daily skils like cooking, basic housework, gardening, shopping and everyday general things which requires workers all the time. Im in a complex place and i can't do this anymore. People punished me for having Austism before I was diagnosed so I learnt to mask. Watching people on UA-cam that have the same experience as me helps me to understand that I am not alone. I've been trying to unmask for the last 5 years, I'm finding it hard as I'm being vulnerable and I'm worried that people think I'm being rude and abrupt. I prefer pets and nature over people as people in the past have punished me for just being me and pets don't judged. I am currently getting funding for ongoing high level support to assist with my autism, learning difficulties and trauma. I would like to get tested for ADHD, OCD and ADA. If anyone has any tips on how to unmask with my workers please let me know.
    What is my autism superpower?
    A. Being autistic
    I was born autistic, I am living autistic and I will die being autistic.
    The world is not made for autistic people that's why we have to mask.
    Self care ya'll

    • @ashleyhall1384
      @ashleyhall1384 Рік тому +1

      I'm so sorry for the traumas you have unfairly suffered, none of this is your fault. I can hear you are a kind, caring and strong person. Be proud of who you are and make sure you take the time to recharge your battery. Full respect to you and thank you for so bravely sharing your story with us all 😊

  • @lettingitgo
    @lettingitgo Рік тому +5

    “Fake it till you make it” can be useful but it’s exhausting if it’s done all the time. I don’t think masking is the same thing as behaving within a society’s social norms but some of the masking may overlap with certain norms, so it’s good to understand what is and isn’t . It’ s also important to learn behaviors that keep you safe because this world can be rough.

  • @NerdyNanaSimulations
    @NerdyNanaSimulations Рік тому +1

    At my age i don't know any other way to be. I am 100% me with my husband, i have a friend i can be that way with. The rest of the world is different, and it's gotten so tiring that I just don't mingle anymore outside of my home. Even my children to a point laugh at me when I struggle so I just don't spend time there. This is new and I'm still trying to figure out if this is why I'm so weird. My husband says yes I fit with the autistic spectrum and I trust him. I was taught to hate those things about me at a very young age and not sure I have enough time left to reverse the damage. Just trying to understand myself though and being able to finally put a name to my struggles is a real help. Thank you for these videos and helping me to see why I've struggled all my life. Blessings

  • @linden5165
    @linden5165 Рік тому +14

    I loved this video Paul, I think you captured well the complexity of our identity and how we share it socially. (I actually really appreciate in your videos that there are moments you don't look at the camera but look away to gather your thoughts as it's how I am too and so it feels familiar and comfortable.)
    So many of my memories of masking are painful, the horrible feeling of enthusiastic acceptance when I wasn't being true to myself, particularly when it was from my closest loved ones. But I am more and more authentic now and any connection and acceptance that comes with that is so meaningful and fulfilling.
    When I had my autistic realisation it opened me up to my entire authentic identity with three main strands - neurotype, cultural identity, and gender and romantic identity. I've taken each at a different pace but all three are interlinked for me. It's a lot to have up in the air all at once, to feel as if I'm turning myself inside out, or more accurately coming out of a cage and stretching long-constrained limbs. It is hard, and it is vulnerable, but it also becomes incredibly rewarding and healing too. I'm so thankful for community to support and validate each other as we come home to ourselves.

  • @tigrecito48
    @tigrecito48 Рік тому +13

    i got diagnosed with aspergers in my 40s.. because i didnt know i was autistic and was bullied a lot, i learned to try to hide some of my weirdness, or do it when im alone... and not liking eye contact i learned to look past people, behind them, thru them or at a near point on their face thats not their eye so they think im looking them in the eye etc.. its funny how, by learning to try to talk to people (even though its exhausting) and act like im ok and having a good time etc, and not show my emotions too much when upset by people being mean, so that the bullies cant feel theyve won etc, i now find myself having people using those "masks" as an excuse to not give me benefits or say im perfectly fine or even accuse me of faking being autistic etc.. i feel almost like i have to act in the complete opposite way now all the time in case people dont think im autistic enough... job centre sends me to some course to do interview techniques... they constantly tell me over & over again, make lots of eye contact.. then when i do (looking near the eye etc) they then say.. oh look you made plenty of eye contact, you had no trouble with that at all... maybe we should give you less benefits? i told them after.. even if i wanted to make plenty of eye contact (which I dont) doesnt mean i cant sometimes do it and also.. my eyesight is bad now im middle aged, so its not the same anyway.. im really just looking at a blurry face. i thought i might get treated better after diagnosis, more people being understanding.. nothing much changed... only now i dont try to hide some of the ways i used to want to act... people who used to moan at me for tapping my feet or fingers or something i now just ignore... i mean... in a cafe some woman was tutting at me for tapping my foot cos i was anxious due to her kid screaming loudly... and her not sorting the problem out.. who's the actual annoying person? id say her...

    • @unassailable6138
      @unassailable6138 Рік тому +2

      ''Talk to people'' for what. Just to spew some small talk about the weather, trivia and other crap? Nah.. I'll pass.

    • @tigrecito48
      @tigrecito48 Рік тому +2

      @@unassailable6138 yeah i hate small talk... often i dont even know hwat response they want from me... and i usually just ignore people in the street just to avoid awkward conversations.. its easier just to pretend you didnt notice them...

    • @Mraquanetchris
      @Mraquanetchris Рік тому +2

      word

  • @NothingByHalves
    @NothingByHalves Рік тому +4

    I missed the streaming of this video because I was out at the time, masking in front of my Dad.. He doesn't know about the autism, has no real clue what is going on in my life, and in short, it's too much for him to understand. I would rather let that one go, but over the past year have realised that all the friends I stuck with from school and university (who are few and far between) are all on the spectrum, some have been diagnosed, others don't want to be labelled. Other new tribes are introverts, nature lovers, and I feel free to be me. So the lack of acceptance from my family for a variety of reasons, are no different than those without ASD. I am 52 and only figured this out a year ago myself.
    Thank you for the distinction as to what masking is, and what it's not, as most people feel the need to mask appropriately in some way which is easy to forget.

  • @deedeskin2439
    @deedeskin2439 Рік тому +1

    There's a difference between masking and self-improvement, and as a high functioning aspy, I chose the latter. The brain is a very flexible organ, we can 'unlearn' and re-educate ourselves. I still have certain behaviors and thought processes I struggle with, and it wasn't easy to readjust, but I'm much more comfortable with myself and others. Just a thought, take it or leave it. It's not for everyone, but it works for me. Thanks for the videos and I wish you success!

  • @flyleafrpgwo4008
    @flyleafrpgwo4008 Рік тому +6

    Until recently, I would have insisted I rarely mask anymore. I started realizing just a couple of days ago that so much of my life, even with immediate family, is spent masking. They have a hard enough time accepting me as I am now with the small amount of unmasking I have done. I can't risk unmasking completely. I don't even know who I would be if I unmasked much more.

  • @craigbrowning9448
    @craigbrowning9448 Рік тому +5

    Masking is related to repression. Repressed tendencies can sometimes come out in very inappropriate ways.

  • @ApocApocrypha
    @ApocApocrypha Рік тому +5

    I discovered I was on the spectrum in my 30s, by reading on Autism I don't remember why exactly. Learning about Masking totally changed my life. It took a couple years but I finally know who I really am and that it's ok to be myself and not try to be someone else. I still mask to some extent but it's different versions of myself and not trying to be what my mind perceive as a "normal" person anymore.

  • @unassailable6138
    @unassailable6138 Рік тому +9

    When I am myself people say, -you should smile more. The point is, society won' t let you NOT masking.

    • @anniestumpy9918
      @anniestumpy9918 Рік тому +5

      I kept hearing that sentence all my life.
      One of the tiny steps in unmasking I allowed myself to make is: fewer fake smiles! Just because me not smiling apparently makes people uncomfortable. At some point I realized: that's a you problem, not a me problem.

    • @denisbax5961
      @denisbax5961 Рік тому +1

      Hi. Go to Russia, we dont smile as much, national distrust for fake smiles. Can't imagine the world of fake smiles! (that's a joke partly)
      Wish you all the best. Stay you.

    • @unassailable6138
      @unassailable6138 Рік тому

      @@anniestumpy9918 I am a 6'4 feet tall guy and people always tell me to smile more. It's very annoying. Don't get me wrong I love a good laugh, I watch some comedy guys like Peter Sellers and I laugh my house down, but that doesn't mean I have to keep wearing a fake smile on my face all day long. I think it has to do with people feeling a big guy is not a threat. This making ppl feel comfy is a pain, more so because many ppl in our lives are fake co-workers or fake friends who just want to use us for their ends, so why please them by being nice?

    • @unassailable6138
      @unassailable6138 Рік тому

      @@denisbax5961 THX, I never saw my german dad smile in 42 years (my mom very few times, german woman too), I think it's a German thing . Too bad I'm German-Brazilian and live in southeast asia the land of smiles.

    • @unassailable6138
      @unassailable6138 Рік тому

      @@anniestumpy9918 Well said Annie, we do NOT have to cater to other people's emotional states.

  • @eileenfb1948
    @eileenfb1948 Рік тому +3

    I agree that we all need to hold back to some degree - people don't want us to be so totally open. Can it be that the struggle comes from a person being upset at the difference between their real self and their public self. Knowing the public like their false self, not their real self.
    Neurotypical people don't reveal their whole personality - there is always a choice as to what to show of self in order to be acceptable AND to not impose how we feel onto others.
    I think the problem comes not from holding back a part of ourselves but from 'deliberately acting out' a feeling we do not feel as this is false.
    But it is okay to behave as though you are okay by saying a pleasant good morning or hello.

  • @andreabuntpercy
    @andreabuntpercy Рік тому +3

    Who Am I... that's the feeling alright. You're suggesting, decide what parts of your pre-diagnosis self would feel comfortable almost anywhere. Stick with those. The parts you adopted because they could be labeled 'acceptable' can go.... they come from a superficial place. You'll recognize them because you will feel a huge relief to drop them. I recognize now I've felt all of that, just couldn't make the distinctions. Thanks for providing them, Paul. I would add, the part of me that's most authentic is the 'deep, philosophical' part, as it turns out. I've trotted it out whenever I could because I was always looking for someone to share that conversation. Didn't get me very far though, most of the time. 😉

  •  Рік тому +1

    I like your distinction between masking and filtering. Makes perfect sense. You must filter, I think, even with your family. For example, when there's a rage outburst because your sensory is overloaded. You're not hiding, you're controlling it in order not to hurt those that you love.
    But masking... I'm The Master, I have always called myself a chameleon and I was kind of proud of it because it worked well for me. Until it didn't anymore and I crashed.
    I'm still learning to walk after that one and it's not easy, I still get paralyzed too often (it's kind of a metaphor but making my body actually move has been a problem for a long time due to huge problems with executive function).
    Diagnosed with ADHD at 34, year later self-diagnozed with autism thanks to people like you.
    Have you done any videos regarding the mindfuck of being autistic+ADHD? If not, it's an interesting topic that many women would highly appreciate.

  • @irisl7817
    @irisl7817 Рік тому +4

    I really appreciate this video. I've been working on unmasking... it is quite hard. I've been using it for over 30 years. My work is incredibly stressful and I realized that I just can't anymore. I'm tired all the time and I can't maintain it.

  • @jacobe1074
    @jacobe1074 7 місяців тому

    i've suspected myself to be autistic for a long time (diagnosed this year)
    i've always struggled with thoughts of "there's something massive wrong with me"
    i've always been unable to fully internalise posivite reinforcement, compliments, praise etc.
    watching this video is the first time i've really put these together and realised there's a unifying theme - social masking.
    thank you for articulating what i really needed to hear

  • @lolitajade
    @lolitajade Рік тому +1

    Thank you for this so much. I joined the fb group and what you said happened yesterday Paul. The odd things in common youd never expect. Can not unsee said thing now. You said it would happen and it was exactly like this. I am still amused as even my acceptable unmasked ish reply was well received. No wonder your content is linked from the national service in Australia. This one was very helpful in particular. I have to remember this one. Your a wonderfully articulate but accessible to all abilities as possible as a presenter too. I am sure you know this but I think your particularly great at this. Thank you Paul.

  • @yateleyhypnotherapy2111
    @yateleyhypnotherapy2111 Рік тому +4

    I think people mask also trying to appear better than they are, or to fit in with other people.
    I like this video very much and will follow you. Authenticity is such an important thing. You are authentic. :-). One can tell.

  • @CaffeinatedFrostbite
    @CaffeinatedFrostbite Рік тому +2

    I am so bad at social situations I will legitimately just shut down. In situations where I can't leave it is very awkward. But I also have no ability to fake it.

    • @anniestumpy9918
      @anniestumpy9918 Рік тому +3

      I had a similar experience all my life. Many times in social outings I just sat there, completely overwhelmed, and got very silent pretty quickly. And then people would think I was arrogant.
      I'm trying to be a bit more authentic to myself and others now in situations like that: when in any way possible, I will leave early (totally avoided that earlier because I wanted to be polite).

  • @adamlaceky8127
    @adamlaceky8127 Рік тому +2

    I have autism. Learning to fit in is part of who I am. Everyone wants to grow and be liked. If I sat in the corner and flapped my hands at a party, I wouldn't be invited again. My authentic self wants to change. I think that's true of anyone capable of introspection.
    When I truly engage someone in conversation, and enjoy their company, I suppress the urge to steer the conversation to my special interests. I listen and empathize and ask about them. I find it refreshing to let go of my ego. Is that masking? Or is it just trying to be my best self?

  • @EphemeralProductions
    @EphemeralProductions Рік тому +4

    I’m 48 and to be, masking is necessary. No one knows I’m autistic because i don’t tell them because most ppl i know would poopoo it And say “no you’re not” or “you are using it as an excuse”. So i don’t bother. Plus I’m a HSP (highly sensitive person) which means if anyone is even slightly annoyed with me, I’m my mind that means they’re pissed off which makes me feel like crap & i equate with they don’t like me. I don’t understand how NTs can get past that stuff and sarcastic cutting humor and still have a good relationship and not be offended by it. With me, i get VERY offended by it and in many cases remember such small comments up to 40+ years later.

  • @DunderMifflin_ThisisPam
    @DunderMifflin_ThisisPam Рік тому +4

    Paul, you are absolutely amazing at communicating these things. I've learned so much from your videos and appreciate them greatly.

  • @nestrior7733
    @nestrior7733 Рік тому +2

    When I sought my diagnosis, the literal question I posed in that email was "Where is the line between my self and my depression?"
    Because I had been aware of masking for decades, that was what led to my first major episode of depression. Even now I still struggle with taking off the mask completely, including around family. Not that it's entirely easy to do unmask. I've finally come to accept all of my self over these years of the pandemic, but that only added to the question of what I could show to my family. I have online friends and found family I can be open with, but they were also there when I had these realizations. Yet all the other problems remain.

  • @ChristophersMum
    @ChristophersMum Рік тому +1

    After being through severe depression and anxiety I was diagnosed at the age of 72!!...now a year later, things are slowly coming together...before I was always asking myself...''just who am I''...I've been masking my whole life...some more successful than others I might add...now I am much less anxious about being in some situations and facing others on my terms as they are at the time...lots more time with my psychologist is in store yet...but I'm living in my own skin a lot easier...with far less masking which is a relief...love to all from Perth Scotland😁

  • @rachelthompson7487
    @rachelthompson7487 Рік тому +3

    Hello Paul. I have been enjoying and learning a lot from your videos. I found out that I have autism earlier this year.

  • @ChristophersMum
    @ChristophersMum Рік тому +2

    Thank you so much Paul...over the past year or so you have become like family through your videos...and the help that you have given me is immeasurable...so much that I am now in a place to be able to recognise most the aspects of this video...thank you so much Paul for all the help that perhaps has to travel thousands of miles away...love to the family from Perth Scotland😁

  • @blofeld2430
    @blofeld2430 Рік тому +1

    That's a brilliant video, and every word is strongly relatable, you're a wizard Paul !

  • @jrr2045
    @jrr2045 Рік тому +1

    I have ADHD and I feel such a connection to autistic people. Especially when it comes to masking. During a long term therapy group I went to, (back when I didn't know I had ADHD) I remember trying to explain this feeling of constantly suppressing my needs, stims, boredom and inability to stay present in conversations. The therapist in the group kept saying 'just be yourself ' and I realized I didn't really know what that is. I've been suppressing so much of myself for so long that I don't know how to be "free" in front of others. When the mask slipped in the past because I've been too exhausted or too excited, people have not liked it and made it clear that I need to "get my act together". 😐

  • @tiffaniechristensen8745
    @tiffaniechristensen8745 10 місяців тому

    The ‘not good enough wound’ it has ran deep in me.

  • @nancywysemen7196
    @nancywysemen7196 7 місяців тому

    so your orderly background is a video-.......this is a riot! have wondered how so many tubers have floating shelves and neatly placed cds,plants,books even art. jokes on me. friend has started to youtube. room is upsy authentic. all amusing. thank you for "fact".

  • @ahkeepmateefnajar9237
    @ahkeepmateefnajar9237 Рік тому +1

    Thanks for your insightful video, Paul. I enjoy using an adaptation of the 'I'm not acceptable as I am' maxim. Sometimes I'm content to mask because I suspect the person I'm talking with isn't likely to show much empathy. Thus, I check my privilege (I'm capable of masking) and show them the mask that saves my energy. Thus: 'You're not acceptable to me as you are right now, but I have no desire to try to influence you at the moment.'

  • @understandablepodcast
    @understandablepodcast Рік тому

    Really interesting video about masking! I watched it while researching an episode about autism. Subscribed as well!

  • @TheSquidworm
    @TheSquidworm Рік тому +1

    Thanks for this topic. I've subscribed. Loved seeing the Underdogs book series on your shelf!

  • @dejavugodssonxrp6624
    @dejavugodssonxrp6624 Рік тому +2

    This talk is amazing my brother 🙏

  • @lrwiersum
    @lrwiersum Рік тому +1

    My Daughter is practically BEGGING me to mask better. I trigger her and will do my best to be a version of me that doesn’t disrupt her. My Son takes it much better but fucked up with him recently too. Thus, I got busy learning that I’m autistic and the whole thing. It explains me %100.

  • @pinkgoth6
    @pinkgoth6 Рік тому +1

    things that help me unmask are small things i do in public that i would otherwise hide. i used to hold my breath when a person passed me, now sometimes ill take a big breath on purpose to show that i can.

  • @tinaopancar8384
    @tinaopancar8384 Рік тому

    On the other hand, it's a skill. Ability to adapt to a wide range of people can be energy consuming, but also rewarding, especially if this skill is being used professionally.

  • @claiomhdubh
    @claiomhdubh Рік тому +2

    Thanks for this one, Paul. It helped me to articulate some of my own thoughts and questions on the matter.

  • @inekekyriacou2282
    @inekekyriacou2282 Рік тому +1

    Hello
    You have explained the masking very well.
    I have stopped masking.
    And now I am avoiding conversations in total
    Thats no good I know
    It is very difficult to go out there and be yourself it is a big challenge.

  • @Aroniyun
    @Aroniyun Рік тому +3

    I sometimes wonder how much I have masked over my life. I feel like I've always been just quirky enough to fit in despite being an oddball. I'm definitely a different person by myself though.

  • @nickmoore5105
    @nickmoore5105 Рік тому

    Thank you so much for these videos. I am glad they found me. I’m still processing everything. I think I’ve been doing this for 40 years

  • @amuletts
    @amuletts Рік тому +1

    I made a promise to myself to mask as little as possible during my assessment, and now I have ridiculous imposter syndrome. I have a lot of negative feelings about my autistic self, like that is the bad version of me and my mask is the good version. This is probably due to being bullied and abused for 'being myself' and rewarded whenever I masked. It is definately a defence mechanism, but also, post-diagnosis I'm still running into a lot of advice which goes: try to act more neurotypical!

  • @alexadellastella5247
    @alexadellastella5247 Рік тому +2

    I feel that adapting to fit in the NT world in order just to be understood and get what we need as autistic people IS already masking actually! Cos we have to make mental effort to do so, it doesn't come naturally, hence we modify how we would communicate if people were autistic around us. An autistic person choosing to show part of herself in order to live in an NT society is masking, cos it requires mental efforts. This is how I feel personally, masking is not only presenting an inauthentic version of myself, to me masking is having to filter myself constantly to an extent I would not if people around me were not so formal with what is expected socially. Hiding more of myself and practicing small talk when I do not need is masking even though I'm not totally inauthentic since what I show about myself is not untrue but I adapt according to what others need first in order to have peace and so I am not completely who I would be otherwise. The point is that it is never fluid but a mental process which is tiring and for NTs it is not or it doesn't make them suffer and exhaust them at least.

    • @Nami-dq3ox
      @Nami-dq3ox Рік тому +1

      I have systems and scripts for small talk (probably most of us do). It is tiring and annoying, but I don't do it all the time- I think of the people who really need the small talk as having "special needs" that I accommodate a little. But that's all, I wouldn't make friends with people who I'd have to mask around all the time.

    • @alexadellastella5247
      @alexadellastella5247 Рік тому

      @@Nami-dq3ox I understand but why are you the one accomodating to non disabled people? it should be the other way round, "normal" people accomodating for disabled people, isn't it? All these social expectations just do not make any sense.... people say stuff and words have no meaning, it is painful to me and I doubt that NT are truly deeply happy being superficial

  • @allhimwithme5115
    @allhimwithme5115 20 днів тому

    You're the only one that lays out the difference between revealing different sides of yourself under different conditions and lying about who you are. I married an autistic man and having just put this together I've been watching videos on autism and NONE of them make the distinction. They ALL say, "Masking isn't lying," and then go on to describe how it's showing certain sides of yourself you're comfortable with. As you clearly delineate, no, it isn't.
    Listening to autistic people shame me for calling masking lying infuriated me as the neurotypical wife who got TRICKED into marrying someone who was lying about who he was the entire time we dated. Surprise, none of it was authentic, not one moment. There's no other way to say it - he hoodwinked me, and it was on purpose because the day we got married things immediately went to hell in a hand basket.
    He's been learning to be his authentic self for the last 7 years, thankfully, but the damage done for the first 10 is very hard to repair.

  • @BachBeethovenBerg
    @BachBeethovenBerg Рік тому +1

    Has anyone ever found themselves masking for themselves? Like without anyone else seeing, but because you can't accept who you really are?

  • @Elodie_N_INTJ_Analyzes
    @Elodie_N_INTJ_Analyzes Рік тому

    You are more than that ^^ .We all have différents sides of our personality ^^, 4 sides of our mind if we take the 8 functions models of John Beebe.
    For those who want to know their personality/psychological type and how they function : MBTI, 8 functions, 16 personalities (16 way of functioning, of thinking, of process information).
    I am an INTJ with Asperger and gifted.

  • @SheenaSpeaks
    @SheenaSpeaks Рік тому

    It's really hard when it's a pleasant occasion you mask for too.
    Then experience restraint collapse after getting in the car.

  • @1Hawkears1
    @1Hawkears1 Рік тому +1

    I would love to hear about people's experiences masking at home alone without realizing

  • @mauriwestmoreland5687
    @mauriwestmoreland5687 Рік тому

    Thank you for the video, I learned some insights that I wasn't aware of before.

  • @Lance.West4
    @Lance.West4 Рік тому +1

    I've been trying to "unmask" to people that i will be working around for a while, hoping they could understand my quarks. If I'm around 3 or more people in a conversation, especially on a subject I'm not comfortable with I can hang in there for like 20 minutes but after that I've got to get away, and all the other traits that come along with this condition. The typical ones...
    My experience has been mostly terrible in doing this. Either they call BS because they only see me once a month for 20 minutes, or the others take advantage of my condition especially in my profession in which I'm pretty good at due to my condition. I've begged my closest friends to study the condition, because I study anything I don't understand, so I think they should be the same lol.
    It's very hard the older I get. I've turned into a recluse at 37. I don't necessarily hate it because it's less acting and less getting let down and used for my talent, then thrown to the side because "I'm weird"... I've tried everything, my conclusion is everyone else is weird, insensitive, and lack the intelligence to understand something different, so stay away from them and then life's OK. My .02

  • @jonathanp___________3606
    @jonathanp___________3606 Рік тому +1

    Using the phrase "being authentic" helped me start making the change from masking for decades to unmasking.

    • @ChristophersMum
      @ChristophersMum Рік тому

      be gentle with the unmasking...for your sake as much as theirs...😁

    • @jonathanp___________3606
      @jonathanp___________3606 Рік тому

      @@ChristophersMum Absolutely! Being gentle and taking my time have been the most important parts of keeping unmasking a mostly pleasant process. Also, my wife encourages me to be more authentic even if it means revealing some inconvenient idiosyncrasies, which is incredibly helpful, since I'm around her more than anyone.

  • @verabolton
    @verabolton Рік тому +4

    Masking takes energy. The body becomes exhausted and the immune system weakens. Masking can cause fatigue and physical illness. Anyone else gets ill more often then the average?

    • @jwren357
      @jwren357 Рік тому

      Not usually, but right now I am laid up with a kidney infection,bright 'out of the blue' except that I had already been thinking this is not so out of the blue', I trust my body, if t got this sick what do I need to notice? Ah yes, for the past few weeks I have had a niggling feeling that I'm masking too much again - why ? Food for thought and I have some ideas about the answers.

    • @jwren357
      @jwren357 Рік тому

      Meant to say Right Out Of The Blue (not Bright out)

    • @verabolton
      @verabolton Рік тому

      @Martins Stop stalking me

    • @verabolton
      @verabolton Рік тому

      @Martins No. You have different accounts and you only approach women. You use other accounts under other videos to do the same.
      Your behaviour is like of a stalker and a troll.

  • @loozerid
    @loozerid Рік тому

    Is this why i easily floated between social groups in high school but never really fit in one?

  • @kxkxkxkx
    @kxkxkxkx Рік тому

    Everyone assumes different presentations depending on the audience, genius 👍

  • @Danedza
    @Danedza Рік тому +1

    Jesus, this is what I've been living through this week. I masked to survive, because the "different" was beaten out of me. It's been a literal flood of information.

  • @youngwillis63
    @youngwillis63 Місяць тому

    The term for this is Code Switching, Can you please do a video on Masking vs Code Switching. I feel this is one of the biggest barriers to promoting acceptance of neurodiversity.

  • @songsnowenvtuber9271
    @songsnowenvtuber9271 6 місяців тому

    This is something I struggle with every single day, I found out I was autistic a couple years ago already an adult at this point and quite frankly honestly I don't even know who I am, I feel like I'm just an amalgamation of the masking I've done over the years with each friend group.
    Who am I and what do I want I cant even answer that question all I can answer is that I'm trans as sad as that is its quite literally the only thing I know to be a fact about myself.

  • @La_Desolada
    @La_Desolada Рік тому +2

    Amazing video!!! 👏🏽🙏🏽🤍✨

  • @user-eg8ht4im6x
    @user-eg8ht4im6x Рік тому

    Thank you for explaining this, masking or filtering interesting, I think I filter now more than I mask, since diagnoses I’ve been more accepting of myself and some of my ways. I think it true to say that now I tend to filter, depending of social situation. I’m less likely to use a full blown Mask. It’s still a work in progress. Thank you so much, you have really helped me through your videos get better understand.

  • @funkymonkey8777
    @funkymonkey8777 Рік тому

    Very helpful. Thanks Paul 🙏🏻

  • @Heykittygirrrl
    @Heykittygirrrl 10 місяців тому

    Ohh that's interesting as I've wondered the same about people with asc making these videos. It's not something I could do unless I masked heavily and had a lot to drink!!

  • @xandyr427
    @xandyr427 Рік тому +3

    I fucking love your channel

  • @minusstage3
    @minusstage3 Рік тому +1

    And thanks again, Paul!

  • @WhataCharlie1920
    @WhataCharlie1920 Рік тому

    This was a tough one. Late diagnosis at 47. Masking most, if not all my life it may seem. Fear of rejection I think. Find it difficult to socialise due to fatigue it causes. Dip in and escape to sanctuary of quiet to recover.

  • @alien5589
    @alien5589 Рік тому +1

    Unmasking is very hard when you’re job is in customer service. I’ve turned wearing my mask into a job. It’s even scarier being at a place that depends on tips. If I take off my mask and people don’t respond well, my financial security takes a hit. Idk how to deal with this