Thankyou so much for being there for us all! After a day of vomiting feeling like I’m passing out every few min… and being without energy or sleep This video brought me to a heart knowing I’m not completely alone… Thankyou beautiful ladies ❤️
Aloha Jill, thank you for sharing this! I am wondering if you know people with adrenal insufficiency who were first diagnosed with fibromyalgia and had a hard time getting an Addisons diagnosis because the doctors kept wanting to throw all their symptoms under fibromyalgia.
HI there friend....I haven't talk to anyone specifically in this situations but I am sure it happens...especially Addison's hides itself so well and so hard to dx. And yes so many illnesses over lap..we need to be dialgent with testing and look at everything. Hope you are well...thank you of the comment and watching my little videos.
Michelle, who is your endocrinologist? I am in Salem NH, and just starting testing for Addisons. My endo is taking forever to get this diagnosis. There aren't any endos around here without a 6 month wait on an appointment.
Some of these signs read in comments, seem also like iron(ferritin), B12 and other B's. Do people with addisons have an appetite? So if secondary can get better?
what is that called when on occasion or sometimes lots times of day, when feel like dont get a whole breath, so retry 1+ times rebreath (usually hot weather(wet scarf on neck spine helps)? Hot weather, turn weak. Did a saliva lab and was low "active" cortisol am (but high in serum cortisol), higher nite. Am pale now (dont tan), used to have yellow/brown knees and ankles. Cold easily also, did have lo BP but now quite variable. Energy is good sometimes these days, so maybe getting better, but never diagnosed with anything. What tests showed had addisons? Am learning not to push self so much. Is there a list of signs ? Hair loss , isnt that also thyroid? Mine was gone except a bit on legs and head for years . Am used to shakiness but thought was BG going low as a kid.
Hey there friend...I was tested for cortisol, sodium, potassium and also ACTH (this one is important) it flagged my adrenals were failing..then I had an ACTH stimulation test. I had no hair on my legs, cold all the time, sugar and salt cravings. Hope this gives you some direction..please take care friend.
@@chronicallyfit_withjill yes cold, even chilblains in winter, have craved salt for 25 yrs (on everything but ice cream). A non stim ACTH was 16, in range(will ck on STTM to see if ok lab). Found if start vitamin C in small amounts made me shaky in morning but evening felt better! Did find reacted to histamines and oxalic acid foods so reduced them for awhile and alittle better (if reduce oxalic acid than do so very slowly!). Recall as a child Mom telling me that President Kenndey had to take a med as his body didnt make it (adrenals), wow and his was a stressfull job. Are you both getting osteoporosis from the meds (cortisol)?
this lady advised her father did have high blood pressure.....I have had three deaths in my family the last 3 years years...i have had two strokes over the last three years....i am trying to find out why i have high blood pressure?
Fire word by dr John c.lowe recovering with T3. This man explain how t3. Fix cortisol. Adrenal insuficiente Addison. I hope You can fine this man on line
Every single person that shares their adrenal story says the exact same thing , weight loss joint pain and nerve pain and fatigue . This is all my issues but I’ve been attributing it to crps which does cAuse this too but this that I feel is completely different .
He doesn't really say much in the book...I think it was because he was young and the adrenal were faling but not completely...I know he rid is body of toxins and perhaps that stopped further atrophy of the adrenals...wish I knew too❤
I can eat all day and night I’m still losing . Can’t deep breathe , my heart rate is 200 resting without beta blocker . Not looking forward to tests and scans but can’t wait until it turns up I was right .
So much information and such a good great interview ❤️ Thank you ladies
Glad you enjoyed it ❤️
Thankyou so much for being there for us all!
After a day of vomiting feeling like I’m passing out every few min… and being without energy or sleep
This video brought me to a heart knowing I’m not completely alone…
Thankyou beautiful ladies ❤️
Hugs my friend...please take care
Thank you for another beautiful share I appreciate it ❤❤❤
Hope you enjoyed it!
Thank you both for this excellent interview! I could relate to so much. I Appreciate you sharing this information.
Thank you friend i really enjoyed recording the episode. ❤️❤️
Thank you both for doing this interview. Really helps me learn so much from you lovely ladies.❤❤ Totally resonates with me. Xx
Glad we could help out..Michelle is amazing
Aloha Jill, thank you for sharing this! I am wondering if you know people with adrenal insufficiency who were first diagnosed with fibromyalgia and had a hard time getting an Addisons diagnosis because the doctors kept wanting to throw all their symptoms under fibromyalgia.
HI there friend....I haven't talk to anyone specifically in this situations but I am sure it happens...especially Addison's hides itself so well and so hard to dx. And yes so many illnesses over lap..we need to be dialgent with testing and look at everything. Hope you are well...thank you of the comment and watching my little videos.
How that guy in the book reversed his adrenal from going bad wonder how he done that
Michelle, who is your endocrinologist? I am in Salem NH, and just starting testing for Addisons. My endo is taking forever to get this diagnosis. There aren't any endos around here without a 6 month wait on an appointment.
How you tried asking for recommendations in any fb groups? ❤️
Some of these signs read in comments, seem also like iron(ferritin), B12 and other B's. Do people with addisons have an appetite? So if secondary can get better?
I have regular appetite...primary or secondary we dont get better. Yes iron, B12 and other b's can be involved...
St Elizabeth of Trinity had the same Addison’s
what is that called when on occasion or sometimes lots times of day, when feel like dont get a whole breath, so retry 1+ times rebreath (usually hot weather(wet scarf on neck spine helps)? Hot weather, turn weak. Did a saliva lab and was low "active" cortisol am (but high in serum cortisol), higher nite. Am pale now (dont tan), used to have yellow/brown knees and ankles. Cold easily also, did have lo BP but now quite variable. Energy is good sometimes these days, so maybe getting better, but never diagnosed with anything. What tests showed had addisons? Am learning not to push self so much. Is there a list of signs ? Hair loss , isnt that also thyroid? Mine was gone except a bit on legs and head for years . Am used to shakiness but thought was BG going low as a kid.
Hey there friend...I was tested for cortisol, sodium, potassium and also ACTH (this one is important) it flagged my adrenals were failing..then I had an ACTH stimulation test. I had no hair on my legs, cold all the time, sugar and salt cravings. Hope this gives you some direction..please take care friend.
@@chronicallyfit_withjill yes cold, even chilblains in winter, have craved salt for 25 yrs (on everything but ice cream). A non stim ACTH was 16, in range(will ck on STTM to see if ok lab). Found if start vitamin C in small amounts made me shaky in morning but evening felt better! Did find reacted to histamines and oxalic acid foods so reduced them for awhile and alittle better (if reduce oxalic acid than do so very slowly!). Recall as a child Mom telling me that President Kenndey had to take a med as his body didnt make it (adrenals), wow and his was a stressfull job. Are you both getting osteoporosis from the meds (cortisol)?
@@1aliveandwell yes im have osteoporosis. 6 fractures in mt feet and a compression fracture in my back in just over 2 years 🙁
@@chronicallyfit_withjill, from your cortisol med?
@@1aliveandwell yes I believe so. Since its never “perfect “ and at times too high it slowly pulls the calcium out over time. 🙁
this lady advised her father did have high blood pressure.....I have had three deaths in my family the last 3 years years...i have had two strokes over the last three years....i am trying to find out why i have high blood pressure?
Best of luck friend...i hope you find answers!
Fire word by dr John c.lowe recovering with T3. This man explain how t3. Fix cortisol. Adrenal insuficiente Addison. I hope You can fine this man on line
Not sure what you mean
Every single person that shares their adrenal story says the exact same thing , weight loss joint pain and nerve pain and fatigue . This is all my issues but I’ve been attributing it to crps which does cAuse this too but this that I feel is completely different .
So many illness that present similar it is so overwhelming...make good notes and trust your insticts until you find the answer
Wow, if you find out how he reversed that please let us know
He doesn't really say much in the book...I think it was because he was young and the adrenal were faling but not completely...I know he rid is body of toxins and perhaps that stopped further atrophy of the adrenals...wish I knew too❤
I can eat all day and night I’m still losing . Can’t deep breathe , my heart rate is 200 resting without beta blocker . Not looking forward to tests and scans but can’t wait until it turns up I was right .
Keep fighting for answers...one day at a time...take care friend
I would ask doctor for acth or cortisol test. I noticed black lines on my nails and told doc I read this is a sign of low cortisol.
Probably hyperthyroid take Selenium methionine 200 day follow Dr Alan Christianson utube google insta facebook
I don’t know how you were functioning