I did took 1500 mg B1 hcl before due to my severe fatigue, blured vision, palpitation, nervousness. within a week of taking 1500mg of B1 I went to normal again. it even helped my hurting gums. Thiamine acts very fast. For me this B1 vitamin is the most important vitamin because it can mimic different types of illness if low in B1. Nice video
Oh Elliot, I've had fibro and migraines, angsiety, chemical intolerances etc for over 50 years; 4 days ago I took my 1st mega dose, the difference was noticible after 2 hours!! The neuropathic pain spasms and electric shocks went from my back, I've had them for 30 years. I am so, so ANGRY with the NHS for not believing me when I first asked them for help age 7, they labelled me as a hypochondriac, I'm not, I'm just forced to focus on my symptoms due to the life limiting effect they've had. Thank you so much, I waited a long time to find you!
Hi I understand you, because I didn't have good health since I was little and I didn't really enjoy life l was and I am always tired I'm in my late Sixties 😩
@@BelenAyala Hello and thank you, I'm 60. Have you tried mega dosing B1? I'm on day 16 now, I am finding exactly what Elliot says, flare up of fibro symptoms, but those terrible spasms have not returned. I've tried higher and lower doses, different times etc, in general I do feel better and it is still early days so will keep going......something will work one day, it's the law of averages!
My wife's fibromyalgia was cured when the read Dr. Gundry's book The Plant Paradox. Some plants have poisons called lectins. Avoiding these ended my wife's misery almost overnight.
@@prudenceseales735, just Google (or duck duck go, or qwant or bing) lectins in plants and how to reduce them - there's a reason old folks soaked so many foods before cooking, it reduces the amount of lectins in them. Pulses, grains, etc....
@daniellebrown5647 yes they knew so much. Iron deficiency had old wives cures like put 4 long iron nails into an apple for a day or 2. The iron leached into the apple. There's so much be lost due to modern medicine etc
Research done in both Italy and Israel has shown conclusively that the mitochondria in people with FM work at only 60-70% of the efficiency in healthy individuals. That's the reason FM patients suffer from chronic fatigue.
Yes the mitochondria is involved with CFS and Fibro. Feed your body to build a healthy cell, and you should get well. Alkaline and acid balance should be at Ph 6.5 saliva test.
I also have severe exercise intolerance. I have to plan days in advance, so I have lots of time to recover from outings etc. I sure hope the answers are coming finally!
@@Katrn30 I'm no expert yet and it's early days for me. I have other diagnosed illnesses, Lyme and mould, as well as having nasty side effects to the covid vaccine. All these things deplete or block thiamine so I'm giving it a go, I definitely have paradoxical reactions to 100mg though, I feel a little more agitated like it's energy my body doesn't know how to use and I get the odd heart flutter. Luckily I've just had a heart MRI showing everything is okay so I'm powering through it, just to warn you though, don't just straight to twice a day.
@ Don Ausmus - seems there are many pathways to fibro. I ran a support group for 14 yrs. I also eliminated all high oxalate foods for 2 years but with no changes, so I put them back, since they are very healthy foods. Very glad this worked for you!
@@meagiesmuse2334Yes, what works for some, doesn’t work for others. People swear by the Autoimmune Protocol and it did nothing for me. Neither did the guaifenesin protocol. I’ve yet to find an answer for myself.
wow, i've been searching for this since 2018, i came off ICU riddled with muscle pain and fatigue, slowly getting better but not to full health, i also have sleep apnea, i will give this a go, my fibro specialist told me to go home and listen to singing bowls, the NHS in the UK is not worth its name.
I have FM and did alot of research myself. I found that Thiamin is so important and started taking B1 and most symptoms resided. I have also found that the Mitochondria inside the cells plays a role and that other supplements like NAC has fixed that.
Years ago, a sleep Dr did a survey among our Fibromyalgia support group in Oregon. He was shocked to see that nearly all of our results (100s) seemed indicative of sleep apnea. Last week I heard Dr Berg say that insufficient Thiamin (B1) causes sleep apnea. Your video reinforces that information. When I was diagnosed in 1990, they believed it was caused by a lack of restorative sleep. At that time, Dr Bennett in Oregon was conducting research re: growth hormone.
That's fascinating. I have suffered from sleep apnea, but its not obstructive apnea, it's more akin to Central Sleep Apnea. I am waiting for further investigations but this will probably take a long time. I think its time to take a leap into taking B1 and experimenting (and recording) what effects it may have with both fibromyalgia and sleep apnea. It really helps when people comment on these posts to give others an insight into what other studies have been done. Thank you!
My opinion carries no weight. However, I'm just going to say. My casual, recent research indicates there's something here of real value. This might Also explain why my best days are after I take a handful of different "B"s. Edit: I rarely sleep. I nap, in multiples if I'm lucky.
I am so glad i came across your reply im experiencing sleep apnea dealing with fibro ive been doing my own digging i also am a fan of dr berg and peter osborne im grateful
@@magentamagenta1274 June 9th I purchased Solgar Vit B1, 500 mg. I take 2 a day plus 3/100 mg. Yesterday I did stuff! Physical work, I repotted plants I'd abandoned, because I haven't had the energy for years.. I've had some "productive" days. I hope you all try this for your FMS ME/CFS. I've read great things about red light therapy & green light for migraine & pain. After 1 week testing, I'm going to continue. I have not been this hopeful in 15 years.
I do believe that I have always suffered from a deficiency in many things from potassium ,lutein, Quercetin, iodine ,vitamin D and B1 ect . Going on low carb diets and carnivore diets only made it worse . I'm just now able to consume things like nutritional yeast and not get diarrhea.I think eating lots of asparagus ,mashed cauliflower and avoiding artificial sweetners and junk food has been very helpful in my recovery 👍
First of all, I just want to thank you for believing your patients. So many doctors label Fibromyalgia as mental. I have seen a psychiatrist and it did not do much for my Fibromyalgia. I have tried B1 but it was very low dose. I will try the high dose. Again, thank you so much.
I’ve had fibromyalgia for over 35 years. I’m 72 now. So I have started with low-dose of benfotiamine and magnesium glycinate and worked my way up to 1500 mg of the B1 and 1500 mg of the magnesium. My fm is I would say about 85 to 90% better. It’s been about three months since I started it. I’m going to try a B1 complex and potassium along with it (according to the video because that gets depleted) to try and get to 100%. Fingers crossed!
Diagnosed with fibromyalgia in 2018, had my ups and downs, prescribed Lyrica and amitriptyline. Deep down I thought this is masking the root problem. After all my research, I came across your channel and cried! This is it, So thorough and helpful!! I will be trying your supplement with some complementary mag, but complex.. Etc. I hope I get some relief, and wean my wsyoff the antidepressants. This is gold!! Thank you! ❤️
Incredible work! I’ve been a CFS/ FM sufferer for many years. Watched a huge amount of relevant videos, read a lot of research and seen many different doctors without any real relief. This is such a great upload. Haven’t tried high dosage thiamine therapy and will definitely do. Low dosage for about 3 months at a time didn’t do much at all for me. My muscles are always as hard as rock and I don’t even work out. So yes they seem to be filled with lactic acid. Thank you!
@@mihakavcic7237 Hi. Well I’m glad you asked cause I have good news. I’ve been on it since Dec.15th. I started out with 100mg of B1, which did nothing for me over two weeks. I then switched to 200mg and about 10 days later my pains started decreasing. It was hard to believe and thought it might be a placebo effect or something. I stayed on it and kept notes about it. I can definitely say that (for the time being at least) my overall pains have reduced by about 70-80% which is huge for me. It even helped with the pain of a chronic tendonitis in my left arm. I’m pretty amazed. It may actually have helped with energy levels too but I can’t tell since I started taking CoQ 10 coenzymes around the same time. I hope this helps.
I'm so glad to have found this information...have trigeminal neuralgia, and now also fibromyalgia. It is debilitating at this point. At the same time, I'm pretty pissed at all my doctors for not suggesting high dose thiamine. I've been suffering for decades, intractable pain from trigeminal neuralgia. Just got my Thiamax today, and I can already feel it doing something in my trigeminal nerve.
Try Low Dose Naltrexone. I've been taking it for about 8 years and am completely pain free now. The relief was gradual, not instant, and I've had no side effects at all.
@@ricardohernandezvega8588 I was taking the B1 protocol and feeling better, and then went on a trip and I didn't stay consistent. By the end of the trip I really wasn't taking it. And I also felt awful. It took me like a month to get back to feeling good. I didn't start taking it right when I got back, though. I was having issues with nausea when taking pills and I was trying to figure out what was causing that. Once I started back on it, I started feeling better. But I tried to jump back in to the dosage I was at, and I got hit hard with what I guess was maybe a detox reaction...? So, I'm back to working myself back up. Like I said, finally feeling better. I haven't been able to do much housework for like a month, but now I'm better able to handle it. (Finally put away my suitcases yesterday, and now working on almost a month's worth of laundry.) I don't know if, after you take it for a longer time, maybe you can go down on it and that will work...? I guess it would depend on the root cause in your system. If your system just got overloaded and started down a path like a snowball creating an avalanche, then I would assume it would be possible to get the balance back, and maybe your system could take back over to maintain it. However, if you have some kind of genetic thing that is actually keeping your body from doing what it's supposed to do, I can see how you might then need to stay with higher supplementation. Even then, there's always epigenetics...who knows what we can change, really? My thought is, I would MUCH rather be on supplements for the rest of my life to maintain the function my body should be having, than taking pharmaceuticals that don't increase function, but instead are designed to make me feel like there's less, or nothing, wrong with my body's function. 🤷♀️ If you are asking about Low Dose Naltrexone, I have heard some people can eventually stop taking it and be fine. If I skip a night, I'll feel it hard the next day. I'm going to try to go down on it after I've been consistent again with the B1 protocol for a while, and see what happens then.
@@creatuitiveguru thank you very much for taking the time to respond, its of big value to me and my wife. O wish you the best on your path to living a good life, kudos for enduring these challenges.
@Weird Man - Yes! Many drugs that people with FM take can deplete choline too, to the point of increasing chances of dementia. The stress of being so ill can deplete B5 and cause adrenal issues.
@@meagiesmuse2334 the comment is 2 years old. and i updated with alot of news. people with FM significintly have less magnessium intracellular. thus if they take magnessium they might suddenly get started some pains in legs which uncovers iron and vitamin d deficiency.(deficiency of them were already exist, your not awared until u take magnessium) so this both(iron and vitamin d ) also need the dopamin syntezing which underlying in restless leg syndome. Btw dopamin syntezing is also depending on vitamin b5 . and find out what? if your're deficiency of vitamin D, then you can not produce enough vitamin b5 in gut ! and it effect all things. these all are my own experiencies with my supplements and observing the react of my body.
Excellent! This is the best presentation of Fibromyalgia and understanding what happens on cellular levels. God bless you Elliot. Thank you for sharing. I will try this high dose Thiamine.
I am so grateful to Dr Uzoya on UA-cam who cure me from fibromyalgia with his effective herbal products, I will continue to speard your good news here in the United States
Thank you doctor, for your sincerity and beautiful presentation. I have no words about my sufferings, pains , fatigue , stiffness, numbness ..endless problems and no one believe thekind of my pains.. ppl feel k am only acting.i shall tey this . Hope for some relief and freedom from suffrings of fibro.
This is a great video. I have fibro and the root cause is a kidney defect that causes retention of phosphate. I was hospitalized and Dr. St. Amands protocol saved me. However, there are still other factors like these that need to be looked into. But the phosphate retention is the root issue:)
@@sandrac11 if you have fibro you will always have it to some extent but it's phosphate retention from a genetic defect. I'm to where the phosphate is 80% cleared out of my body. I got off all prescription drugs because of this protocol. Definitely order his book, it must be done correctly or it won't work. He researched this his entire career and has helped thousands of people. It's not widely known because the treatment is over the counter. 💜
From thousands of patients they have saved from the debilitating effects of this illness. Read Dr. St Amands book. 4th edition. It's a miracle treatment 💕
@@Myworldmymind908 I did benfotiame for a week and due to me already being acetylcholine heavy I quit when symptoms subsided. When I get to much acetylcholine my body freaks out hard makes me dizzy when I stand up. Also b9 as FOLATE, B6 and B12 will lower homocysteine levels which could also be a problem at least it was for me. To much homocysteine in the blood can cause very bad inflammation in the body, endothelial dysfunction which can increase your chance for heart attack, stroke and bad nerves due to poor circulation. Hope this help brother. 🦍
@@tineeazyabuvall151 I am dealing with Flouroquinolone toxicity. I was prescribed an antibiotic named Ciprofloxacin back in September of 2020 . I haven't been the same since . 11 months now and I still have heavy & numb legs daily , cognitive issues such as lightheadedness , forgetfulness , brain fog , facial pressure , facial twitching . I've been to multiple specialist and no one can find anything.
@@Myworldmymind908 ua-cam.com/video/nMuuCS2h5IE/v-deo.html Check her video out but it sounds like you may be short of some neurotransmitters and your homocysteine(excitatory transmitter) level may be up a little. She will really break it down and help you out. Anytime involuntary twitching happens that’s a sign of high acetylcholine and low serotonin. Once you raise serotonin(inhibitory) transmitter that will make you feel better and that should lower acetylcholine which is a excitatory neurotransmitter. Also raising serotonin will also raise gaba( inhibitory) and lower glutamate which is also a excitatory transmitter. Try Taurine and magnesium glycine will also turn the body off. They are inhibitory transmitters aswell. 😎
Fibromyalgia is not a pain disorder, pain is merely one symptom from tightened muscles, from glutamic acid firing at eg:glutamate at 75% thus gaba is at 25% it is this imblance that is the root of it, through trauma from a psychological angle and an autoimmune condition working in conjunction. Pain is just the only symptom that people say to dr's. Its ones nervous system being on high alert for a long time.
THANK YOU so much Elliot! A fantastic presentation, giving much needed help for so many people suffering. I learnt so many new things about Fibro I didn't know. Keep up the excellent work! 👏
For me, i would try to stop/reduce all/most inflammation first, by sleeping grounded every night, also boost B1 taking Organic Non fortified Nutritional yeast for its B1 and other b vitamins. this is just for starters. Once you remove inflammation, the body can heal much easier. Pain equals Inflammation. Get rid of the Inflammation you reduce the pain, the body can heal once the inflammation is at a Low level. Inflammation is caused by a Electron Deficiency, Ground for Uptake Electrons. Grounding thus reduces Pain, But Grounding Plus B1 work Great together, and a Lower level of B1 is needed due to a Low level of Inflammation from the sleeping grounded. ROS is inflammation. Grounding for the uptake of electrons neutralizes ROS.
Yeast would be a good idea perhaps 30 years ago, not today when everyone is loaded with it. Also, how would you go about sleeping grounded every night?
My daughter complained of tingling and some numbness in extremities and as soon as she took one capsule the issue was resolved. This was years ago and we keep it around just incase...
@@dzeky7622 ... They say it's not toxic and your body doesn't retain it and it passes out through urine after doing the repair work, so I assume it's not dangerous... at least not for me, since I'm only experiencing relief. I can imagine my sister on the other hand... she'd be getting a headache and getting sick if she even took a 50mg without very very desperate need. It's how her body responds to intrusion by most meds and suppliments. Currently I have started 1000mg additional of B6 in the morning to have sufficient energy to have some level of function. Time will tell if there is any detriment to doing that... but these particular combinations and doses seem to have clicked with me and seeing on UA-cam how mega dosing is sometimes recommended by professionals I'm not too worried at this point at least, as I am only experiencing a substantial degree of relief from certain very painful and uncomfortable symptoms.
BE CAREFUL!!! Yeah, all this did for me was make me really anxious. I read all I could about how to deal with the issues that cause that and did what was recommended to ameliorate it. (You can see I tried this and fully educated myself by my other comment.) After five months I had to stop as my sleep was being destroyed (worse than normal) and I was tired of being anxious. I’d given up tea and coffee drinking (I only had one a day). For six months after giving it up, I had to give up tea. It’s 15 months later and I still can’t drink coffee. Also, I can’t take regular multivitamins anymore, not even with extra B2, without getting very anxious.
Coffee and tea can affect your absorption. They are diuretics, which can cause electrolytes imbalance. Absorption is often overlooked. There can be many varieties of causes. Genetics can cause deficiency. B1 deficiency can affect many organs. It’s more common then thought. Rarely checked for. Chemicals in food and drinks has been changing our bodies for decades.
Thank you for the warning. I have not tried it yet, but am very prone to reactions like yours. Melatonin and a prescribed Rx, both, caused me to react as you did.
Very interesting . Thank you . I have been researching fibromyalgia for myself . Suspect my contact with glyphosate was my main problem amongst other herbicides which would support your suggestion of a systemic problem . I found Stephanie Seneff to be very informative .
@@CarolBlaneyPhD Yes currently on some b vit supplements. Trying lots of different options. Even a half teaspoon of castor oil as a healing tool for long term stomach problems. Seems to be working. Though early days yet. Prayers and blessings xx Pat
Mitochondrial reboot/recharge was on my list of next treatments. Good to see this. Been researching this for months. Got diagnosed at OHSU in 2010, age 37. Likely had it 5 yes prior.
I was a patient of Dr. Robert M Bennett from 1990-2001 at OHSU. How do you like the Rheumatology department❓ I lived in Portland 1972-77 the good old days❗ Flew to Portland each year for fun and fibromyalgia 90-01. Best to you. How is your fibromyalgia doing ⁉️
For some reason so many cases have been treated with HCL not Benfotiamine so maybe ... try a mixture of both. Don’t put everything on one bucket. I seem to get better results myself with HCL so ...
@@tomregan9628 benfothiamine didn't work for my neuropathy, but ttfd worked as soon as i started taking it. Dont what effect regular thiamine hcl would have though, perhaps its better to diversify
Great video packed with information. Your knowledge is astounding. Lots to research to try and understand this deficiency in more depth. Thanks so much.
I hope you will do a feature like this on MS and Thiamine somewhere in the future. And can you maybe look into the substance Palmitoylethanolamide? I stumbled upon this topic recently and it seems to be very promising for treating neuropathic pain. It is a substance that the body produces itself in the cells. I would love to hear what you think about it.
Sorry that I'm not Elliot, but just wanted to say I have been using Palmitoylethanolamide for quite a while now. While it doesn't cure all my pain, it has certainly helped tremendously. Be sure to take it with some kind of good fat (fish oil, etc.). I also use it with luteolin. I will be upping my dose of TTFD based on this video. Chronic pain is so enervating!!! Best wishes to you. Love your tin foil hat! :)
@@oldegoatee8450 thank you so much for your input! Your results sound quite promising. The topic fell from my radar as I could not really figure out where to get it in Germany and how to use it properly. I really have to look into it again. Wishing you the best and should you have any updates to share in the future I would highly appreciate it!
The antibiotic family of floroquinolone antibiotics gave me this beware it destroyed my tendons joints and connective tissue also and I couldn't walk for a yr except to the bathroom.
Hi Matthew , I am sorry to hear this happened to you . I myself am suffering from Flouroquinolone toxicity it's going on 11 months now . I had an adverse reaction that sent me to the hospital in September of 2020 and here I am now 11 months later with daily numbing and heaviness in both my legs , daily cognitive issues such as lightheadedness , facial pressure , facial twitching from time to time , I forget things much easier now . I get bad anxiety from time to time now . And the brain fog sucks ! How are you feeling these days ? Have you healed from this ?
@@Myworldmymind908 sry to hear that I'm 5 years from my reaction I'm finally able to work a full week but my legs are like yours really heavy sometimes almost unbearable I've found low carb organic diet stay away from any sugar and chemicals stay away from unhealthy seed oils vitamins and supplements. And get yourself some cbd flower off the internet or oils from organically grown fams try these dealers wnc or arete cbd some ppl.are helped by magnesium but others it can make much worse and try the wim Hoff breathing method and just keep telling yourself you will get better. My tendons and joints are still severely damaged but I manage I just have to constantly stretch to keep them loose or I injure them easily
@@matthewanderson2538 glad to hear you're able to work . What type of work do you do if you don't mind me asking . It's been a rough couple of months for me . I was given Ciprofloxacin for a sinus infection . Was never warned about the 8 black box warnings . I've gotten better compared to how I was in the beginning but feel I have a long ways too go . Have you ever had eye exams after and gotten eyes dialated ?
@@Myworldmymind908 I paint now used to do residential construction but my tendon damage doesn't allow me to lift alot of weight so I decided to paint bc ita easiest thing on my body. No I told my eye doctor to dilute my eyes and check them bc I have floaters and stuff and at night lights look sort of redish at night out of my one eye but like I said he looked at the but said he didn't need to dilute them.
Please turn in the option for our being able to view an automatically created transcript, based upon closed captions. I see potential parallels to the effects of opiate (oxycodone) induced deficiency in Thiamine
Loved this video. It went over my head at times but thank you so much for giving me some hope. I have recently been diagnosed with Fibromyalgia after about 4 years of feeling like rubbish every day and in pain in my right shoulder, hip and pelvis, pins and needles in hands. I started with Primary Hyperparathyroidism 4 years ago and had the adenoma removed with the promised by doctors that I would go back to feeling my normal self. How wrong they were. I am now waiting for surgery to remove kidney stones, I also have fibroids and ovarian cysts and I am perimenopausal too. I don't have any energy and I am so depressed with it all. I am definitely going try this. I am currently taking magnesium and vitamin D3 supplements.
Given your kidney issues, you may want to try the guaifenesin protocol/treatment. I have fibro and have been taking Low Dose Naltrexone for it for about 8 years now. I'm completely pain free now (it took a couple of years for me to get to this point), and my brain fog is negligible.
Right shoulder pain is very often misdiagnosed, the root cause can be gall bladder sludge (stage prior to stone formation) or not enough stomach acid, Dr Eric Berg's channel can help. Unless you have now done so I'd hold off any operations, the underlying inflammation will cause mayhem. Kidney stones can be oxilate or calcium stones, treatable at home given the right information.
Hummm from experience vit D3 causes depression in some people. Try sunbathing instead and red light therapy lay off the vit D3 for a while and your mood will drastically improve.
I think this lack of "affinity" for thiamine shows we're not just clumps of mechanical cells. For people with chronic diseases after all it is "all in their heads" or "spirits". And in fact our lives whether we recognize somehow suffering or not, are spiritual. I'll probably try thiamine along with all the different supplements I plan on trying but if disease isn't rooted physical we need minds to come together on our spiritual problems. Also, we'll never be free of disease in modern society with all the technological pollutions
A have a LOT of questions! I bought your Thiamine (even though I live in Denmark, Scandinavia and probably will pay a LOT more 🤷♀️). You mention a LOT of supplements in your other video, and I'm afraid to miss some, or what to get. You've mentioned Magnesium and a B-Vitamin Complex. But in your video (speaking about side effects), you mention SO many more! Like Folate, Biotin, Cholin, and things that I wouldn't even know where to get, because the people selling this in our "drugstores" are not equipped to guide. What am I supposed to get when doing this? (And why haven't you made that 1 pill to go with your Thiamine and contains all that? 😉) Please help. 🙏🏽 Kindest regards from Denmark, Scandinavia ❤
@@EONutrition Hi, Elliot, I just found this/your video. Since it's a year past your post, could I ask, has the "one pill" been formulated, and is available? Thank you for all the studying and knowledge you've acquired, and share with us on UA-cam.
I have FMA, and have found the following beneficial: acupuncture (very fast action), D-Ribose and hydroxytyrosol . Victims who also have T2D might like to read up on the benefits of metformin for FMA.
If anyone out there has experience or has heard if this type of therapy has helped elderly or older chronic fibromyalgia pain patients to titrate off opiates, please chime in here or maybe it could be a related topic for future videos/study.
The Calgary Opioid Deprescribing Clinic has been doing this a few years now. The world pain summit has also had the doc who developed the weaning off method speak a few times and I think that is all online. I forget his name. Eventually, after weaning off, you may use suboxone to fully end OxyContin and then move to the once per month injection for pain management. Suboxone is a half antagonist. You move up this dosage slowly and decrease the rest of your oxy over the course of about two weeks. This is after slowly weaning off oxy as far as possible and doing lots of therapy.
One question..I started thiamine 250mg for about a week or 2 then got my blood levels tested...I tested high...at about 233. Does this mean I'm not deficient or should I continue with the regimine...will it be harmful to take to much?
I’m glad I watched more of your vids . As I bought your b1 but was only taking one at day and one at night . I’m thinking I need mega dose . How many thiamax can I take per day ? Higher dose means how much .? 3 or 4 per day ?
I have lupus and fibro. I have a severe vit d deficiency. If i dont take mega dose every week and two pills every day, i cant walk. My muscles dont work in my legs. Why does lupus or fibro cause vit d deficiency
I just purchased the Ecological Formulas and noticed it is a very small dose per capsule (50 mg). This is compared to another brand of regular B1 that is 500 mg per 1 capsule. Should I be taking a high dose of the Ecological Formula’s, like 1500 mg per day so that would be 30 capsules?? Or is it much more bio available and I need much less compared to other forms/brands?
I suffered an electrical shock (high and low voltage) with entry point through my head. I have suffered from horrible nerve pain, spine pain, neuropathy, tingling, muscle weakness, etc for a couple of years since this occured. I believe this incident caused a hyper reactive nervous system pain response which I can't seem to find a way to turn off. Do you think these supplements (Thiamine and Agmatine) could help me, too? I've been trying to find a solution and any avenues I can explore are greatly appreciated. Your research seems like it might be helpful. Thank you.
Its a very interesting video wery well explained thanks , you are an eccellent teaches and i will be watching more video presented from you🌷Keep up the good job and God Bless you!🌷
Most of the so called chronic diseases are mitochondrial dysfunctions. They are not diseases and they are not caused by genetics but by nutrient deficiencies and other environmental factors. According to the individual genetics the cells and the mitochondria will find a way to compensate und to maintain metabolism, which manifests in symptoms that are called chronic diseases. If the deficiency and imbalance is corrected, the symptoms disappear.
Do you find that people with conditions like fibromyalgia use the same mg of TTFD vs thiamine HCl. Or since TTFD is more bioavailable perhaps lower doses are sufficient? Which form of thiamine was used in the fibro case study (abstract did not say)?
Dr. Chandler Marrs, a very helpful and knowledgeable person in thiamine as well. She said there are no equivalency studies that she is aware of, but she would guess it is something in neighborhood of 250-500mg of HCL to 50mg TTFD. She didn't say it is 100% like this but it is a guess.
@@EONutrition Wait, what? I don't understand. The study used 600-1800 mg. You mean that if one uses HCL they have to use 5-10 times as much? Both me and my sister suffer from fibromyalgia and I just need to know how much to take, from either form. It might be easier for me to get HCL. So, how much if I take TTFD and how much if I take HCL? I'm so confused.😄
@@cammieklund 600-1800 mg Thiamine Hcl... the study uses thiamine HcL. my mothr has fibromyalgia , so was jus wondering what ur LDHA levels and Vitamin D are .. Her LDHA levels are on the high end ....and vitamin D low. a simple touch goves her pain ...so does air from fans...
What are the necessary nutrient cofactors you keep talking about but not explaining? Are you saying it's dangerous to take diamond high levels without these nutrients cofactors?
@@robertjohnson3549 Sulfur supplements like ttfd can cause stomach upset, diarrhea, itchy skin, panic attacks and headaches. Some people take molybdenum to help process the sulfur and stay at lower dosages for long periods of time. Not to mention needing extra b2, biotin, and MAGnesium to process the thiamine.
@@tanyakormiltseva8633 The growling pretty much stopped, anyway it was just awkward never to the point of vomiting or something. Also, depends whatvyou are trying to solve, i was trying to solve neuropathy and it turned out to be only a symptom masker, not a cure. It looks like you have to fins the root cause, and the modt likely one is some kind of chronic pathogen inside.
Great video as always. Just wondering if you could do a video on sulfur, and specifically sulfur intolerance. How does the transsulfuration pathway get messed up and what can people who react to sulfur rich foods do to fix / mitigate the issue?
Yes, EONutrition please do a video on sulfur intolerance and transsulfuration pathways. I have heavy metals and they have messed up with my transsulfuration I believe. I am thiols sensitive. Thanks.
I've been reading about the relation between the gut microbiome and fibromyalgia. I personally had to stop my probiotics (that I've been taking for IBS-D for 7 years in a row) a month ago due to an upcoming surgery and suddenly I started feeling less muscle pain and fatigue. Could it be possible that the probiotics caused an imbalance in my gut microbiome resulting in fibromyalgia symptoms?
Thank you for educational video! I suffer from fibromyalgia for 20+ years. Due to very poor non restorative sleep I was prescribed lyrica 25 mg. My question is would it be okay to take thiamax in the morning and lyrica before going to bed? Thank you.
I was taking that poison for 6.5 years, despite my doctor's advice I took myself off it as I was having terrible co-ordination problems and brain fog as a result. Have you looked at chemical sensitivity? That causes some really nasty symptoms. Fasting always kills my fibro symptoms after 2 days, I don't get hungry if I set myself up with enough healthy fats before a fast. It's a minefield isn't it....
So if you don't have fibromaligia can you still take this B vitamin? I don't have my gallbladder and have devolop digestion, and constipation issues. I saw on Dr Berg's site that low stomach acid causes that.
If you are sleepy during the day it’s also a lack of b1. I use it to stay awake. Didn’t know it heals fibro too. I have LDN for my fibromyalgia. And MSM (sulfur).
I did took 1500 mg B1 hcl before due to my severe fatigue, blured vision, palpitation, nervousness. within a week of taking 1500mg of B1 I went to normal again. it even helped my hurting gums. Thiamine acts very fast. For me this B1 vitamin is the most important vitamin because it can mimic different types of illness if low in B1. Nice video
@Chris Jackson yes try it and feel the difference. avoid coffee and rice it depletes B1
My exact symptoms along with underactive thyroid.
@@TheSilverlover999 and sugar!
@@jerrylisby5376 yes sugar always bad.
See Dr Weston A Price study , and Dr Jerry Tennent.
Oh Elliot, I've had fibro and migraines, angsiety, chemical intolerances etc for over 50 years; 4 days ago I took my 1st mega dose, the difference was noticible after 2 hours!! The neuropathic pain spasms and electric shocks went from my back, I've had them for 30 years. I am so, so ANGRY with the NHS for not believing me when I first asked them for help age 7, they labelled me as a hypochondriac, I'm not, I'm just forced to focus on my symptoms due to the life limiting effect they've had. Thank you so much, I waited a long time to find you!
Hi I understand you, because I didn't have good health since I was little and I didn't really enjoy life l was and I am always tired
I'm in my late Sixties 😩
@@BelenAyala Hello and thank you, I'm 60. Have you tried mega dosing B1? I'm on day 16 now, I am finding exactly what Elliot says, flare up of fibro symptoms, but those terrible spasms have not returned. I've tried higher and lower doses, different times etc, in general I do feel better and it is still early days so will keep going......something will work one day, it's the law of averages!
How r u now ?,I'm thinking about getting my son on them,he has really bad fibro
avoid coffee and alcohol, they drive all the B vitamins out of your body very aggressively.
angsiety
My wife's fibromyalgia was cured when the read Dr. Gundry's book The Plant Paradox. Some plants have poisons called lectins. Avoiding these ended my wife's misery almost overnight.
Hi. Can you please inform me which vegetables your wife had to give up? Thanks.
@@prudenceseales735 Dr Gundry has videos and podcasts - so it would be pretty easy for you to answer your own question without having to buy the book.
@@prudenceseales735, just Google (or duck duck go, or qwant or bing) lectins in plants and how to reduce them - there's a reason old folks soaked so many foods before cooking, it reduces the amount of lectins in them. Pulses, grains, etc....
@daniellebrown5647 yes they knew so much. Iron deficiency had old wives cures like put 4 long iron nails into an apple for a day or 2. The iron leached into the apple.
There's so much be lost due to modern medicine etc
Thanks I’ll definitely check it out!
I knew my fibro had to have mitochondrial involvement. Exercising is so difficult because of recovery times. It all makes perfect sense 👌😌
Hi have you ever taken a Flouroquinolone Antibiotic ?
Me too I believe this. Dr Jack Kruse neurosurgeon has always said Fibro is mitochondrial in origin. Research suggests CFS is too .
Research done in both Italy and Israel has shown conclusively that the mitochondria in people with FM work at only 60-70% of the efficiency in healthy individuals. That's the reason FM patients suffer from chronic fatigue.
Yes the mitochondria is involved with CFS and Fibro. Feed your body to build a healthy cell, and you should get well. Alkaline and acid balance should be at Ph 6.5 saliva test.
I also have severe exercise intolerance. I have to plan days in advance, so I have lots of time to recover from outings etc. I sure hope the answers are coming finally!
This channel deserves more people watching it.
Totally agree!!
and it surely will get them!!!!!
we are blessed to have him!
insanely underrated, I agree.
He doesn't really give people time or answer any questions!! That's the difference between him and the bigger health channels here on UA-cam!!
Took 100mg twice a day! Within a week worked brilliantly for me!!
May I ask you what time of the day you took the b1, and what symptoms improved?
@@Katrn30 I've just started thiamine, did 100mg at breakfast and plan on adding second dosage at dinner time.
@@Peter-mo3pr I’m going to try that starting today.
@@Katrn30 I'm no expert yet and it's early days for me. I have other diagnosed illnesses, Lyme and mould, as well as having nasty side effects to the covid vaccine. All these things deplete or block thiamine so I'm giving it a go, I definitely have paradoxical reactions to 100mg though, I feel a little more agitated like it's energy my body doesn't know how to use and I get the odd heart flutter. Luckily I've just had a heart MRI showing everything is okay so I'm powering through it, just to warn you though, don't just straight to twice a day.
@@Peter-mo3prhow you are doing brother. Bcz I am also a covid vaccine suspect
B1 is a power plant. Selenium is a lubricant. When the muscle cells are dragging on each other both these I find help a lot.
Often an electrolyte or dehydration thing though
A month after eliminating as many high oxalate foods as I could, my fibromyalgia went away. Sometimes the answer is right in front of us.
@ Don Ausmus - seems there are many pathways to fibro. I ran a support group for 14 yrs. I also eliminated all high oxalate foods for 2 years but with no changes, so I put them back, since they are very healthy foods. Very glad this worked for you!
@@meagiesmuse2334Yes, what works for some, doesn’t work for others. People swear by the Autoimmune Protocol and it did nothing for me. Neither did the guaifenesin protocol. I’ve yet to find an answer for myself.
Oxalate toxicity and thiamine deficiency are linked. “Healthy foods” is a relative term when jt comes to foods containing poison.
wow, i've been searching for this since 2018, i came off ICU riddled with muscle pain and fatigue, slowly getting better but not to full health, i also have sleep apnea, i will give this a go, my fibro specialist told me to go home and listen to singing bowls, the NHS in the UK is not worth its name.
I have FM and did alot of research myself. I found that Thiamin is so important and started taking B1 and most symptoms resided. I have also found that the Mitochondria inside the cells plays a role and that other supplements like NAC has fixed that.
How much b1 did u take exCtly daily?
@@DarkoFitCoach One 250mg tablet daily. I dont take it all he time now, only when symptoms appear again.
What is NAC
500mg to 1000mg@@DarkoFitCoach
Years ago, a sleep Dr did a survey among our Fibromyalgia support group in Oregon. He was shocked to see that nearly all of our results (100s) seemed indicative of sleep apnea. Last week I heard Dr Berg say that insufficient Thiamin (B1) causes sleep apnea. Your video reinforces that information. When I was diagnosed in 1990, they believed it was caused by a lack of restorative sleep. At that time, Dr Bennett in Oregon was conducting research re: growth hormone.
That's fascinating. I have suffered from sleep apnea, but its not obstructive apnea, it's more akin to Central Sleep Apnea. I am waiting for further investigations but this will probably take a long time. I think its time to take a leap into taking B1 and experimenting (and recording) what effects it may have with both fibromyalgia and sleep apnea. It really helps when people comment on these posts to give others an insight into what other studies have been done. Thank you!
My opinion carries no weight. However, I'm just going to say. My casual, recent research indicates there's something here of real value.
This might Also explain why my best days are after I take a handful of different "B"s.
Edit: I rarely sleep. I nap, in multiples if I'm lucky.
I am so glad i came across your reply im experiencing sleep apnea dealing with fibro ive been doing my own digging i also am a fan of dr berg and peter osborne im grateful
@brrjohnson8131 same all night long for over 30 years :)
@@magentamagenta1274 June 9th I purchased Solgar Vit B1, 500 mg. I take 2 a day plus 3/100 mg. Yesterday I did stuff! Physical work, I repotted plants I'd abandoned, because I haven't had the energy for years.. I've had some "productive" days. I hope you all try this for your FMS ME/CFS.
I've read great things about red light therapy & green light for migraine & pain. After 1 week testing, I'm going to continue.
I have not been this hopeful in 15 years.
I do believe that I have always suffered from a deficiency in many things from potassium ,lutein, Quercetin, iodine ,vitamin D and B1 ect .
Going on low carb diets and carnivore diets only made it worse .
I'm just now able to consume things like nutritional yeast and not get diarrhea.I think eating lots of asparagus ,mashed cauliflower and avoiding artificial sweetners and junk food has been very helpful in my recovery 👍
You can purchase a vitamin and mineral deficiency test
This channel is a fountain of knowledge. Thanks so much Eliot and keep up the good work!
I always chuckled whenever seeing muscular bonk.
I needed none of that. Occasionally taking homeopathic remedy Arnica Montana 30 CH did the trick immediately and 100%.
First of all, I just want to thank you for believing your patients. So many doctors label Fibromyalgia as mental. I have seen a psychiatrist and it did not do much for my Fibromyalgia. I have tried B1 but it was very low dose. I will try the high dose. Again, thank you so much.
They love a bit of gadlighting these doctors....I experienced it numerous times I will never go again
@@natalie8518 I agree, they sure do.
@@natalie8518 They rather gaslight you than admit they know nothing about how to cure it
I’ve had fibromyalgia for over 35 years. I’m 72 now. So I have started with low-dose of benfotiamine and magnesium glycinate and worked my way up to 1500 mg of the B1 and 1500 mg of the magnesium. My fm is I would say about 85 to 90% better. It’s been about three months since I started it. I’m going to try a B1 complex and potassium along with it (according to the video because that gets depleted) to try and get to 100%. Fingers crossed!
@@gardengirl9099any updates?
Diagnosed with fibromyalgia in 2018, had my ups and downs, prescribed Lyrica and amitriptyline. Deep down I thought this is masking the root problem. After all my research, I came across your channel and cried! This is it, So thorough and helpful!! I will be trying your supplement with some complementary mag, but complex.. Etc. I hope I get some relief, and wean my wsyoff the antidepressants.
This is gold!! Thank you! ❤️
How do you feel now?
Incredible work! I’ve been a CFS/ FM sufferer for many years. Watched a huge amount of relevant videos, read a lot of research and seen many different doctors without any real relief. This is such a great upload. Haven’t tried high dosage thiamine therapy and will definitely do. Low dosage for about 3 months at a time didn’t do much at all for me. My muscles are always as hard as rock and I don’t even work out. So yes they seem to be filled with lactic acid. Thank you!
O. N. Good Day, how is going the thiamine therapy?
@@mihakavcic7237 Hi. Well I’m glad you asked cause I have good news. I’ve been on it since Dec.15th. I started out with 100mg of B1, which did nothing for me over two weeks. I then switched to 200mg and about 10 days later my pains started decreasing. It was hard to believe and thought it might be a placebo effect or something. I stayed on it and kept notes about it. I can definitely say that (for the time being at least) my overall pains have reduced by about 70-80% which is huge for me. It even helped with the pain of a chronic tendonitis in my left arm. I’m pretty amazed. It may actually have helped with energy levels too but I can’t tell since I started taking CoQ 10 coenzymes around the same time. I hope this helps.
@@orpheasnestos7444 how's it going, still continued relief, same dose etc?! 🍀
@@orpheasnestos7444 Still on B1 ? And Coq10 ? How are you doing ? 🙏 struggling so much fibro and CFS
Looking into B1 ubiniquol and d-ribose 🙏
@@EC-yd9yv Hi. Please see my answer to Karine below.
I'm so glad to have found this information...have trigeminal neuralgia, and now also fibromyalgia. It is debilitating at this point. At the same time, I'm pretty pissed at all my doctors for not suggesting high dose thiamine. I've been suffering for decades, intractable pain from trigeminal neuralgia. Just got my Thiamax today, and I can already feel it doing something in my trigeminal nerve.
Try Low Dose Naltrexone. I've been taking it for about 8 years and am completely pain free now. The relief was gradual, not instant, and I've had no side effects at all.
@@vaska1999 Actually, I am taking that. It helps, but I'm not pain free.
Is it one of those things where as long as you take it you're feeling better but if you stop you also stop feeling better?
@@ricardohernandezvega8588 I was taking the B1 protocol and feeling better, and then went on a trip and I didn't stay consistent. By the end of the trip I really wasn't taking it. And I also felt awful. It took me like a month to get back to feeling good. I didn't start taking it right when I got back, though. I was having issues with nausea when taking pills and I was trying to figure out what was causing that. Once I started back on it, I started feeling better. But I tried to jump back in to the dosage I was at, and I got hit hard with what I guess was maybe a detox reaction...? So, I'm back to working myself back up. Like I said, finally feeling better. I haven't been able to do much housework for like a month, but now I'm better able to handle it. (Finally put away my suitcases yesterday, and now working on almost a month's worth of laundry.)
I don't know if, after you take it for a longer time, maybe you can go down on it and that will work...? I guess it would depend on the root cause in your system. If your system just got overloaded and started down a path like a snowball creating an avalanche, then I would assume it would be possible to get the balance back, and maybe your system could take back over to maintain it. However, if you have some kind of genetic thing that is actually keeping your body from doing what it's supposed to do, I can see how you might then need to stay with higher supplementation. Even then, there's always epigenetics...who knows what we can change, really?
My thought is, I would MUCH rather be on supplements for the rest of my life to maintain the function my body should be having, than taking pharmaceuticals that don't increase function, but instead are designed to make me feel like there's less, or nothing, wrong with my body's function. 🤷♀️
If you are asking about Low Dose Naltrexone, I have heard some people can eventually stop taking it and be fine. If I skip a night, I'll feel it hard the next day. I'm going to try to go down on it after I've been consistent again with the B1 protocol for a while, and see what happens then.
@@creatuitiveguru thank you very much for taking the time to respond, its of big value to me and my wife. O wish you the best on your path to living a good life, kudos for enduring these challenges.
I take 400mg B1 morning , 300mg night .
Feeling better x
if vitamin b1 helps FM , then they might have acetylcholine deficiency. cuz the body produce acetylcholine by b1, b5 and choline
@Weird Man - Yes! Many drugs that people with FM take can deplete choline too, to the point of increasing chances of dementia. The stress of being so ill can deplete B5 and cause adrenal issues.
@@meagiesmuse2334 the comment is 2 years old. and i updated with alot of news. people with FM significintly have less magnessium intracellular. thus if they take magnessium they might suddenly get started some pains in legs which uncovers iron and vitamin d deficiency.(deficiency of them were already exist, your not awared until u take magnessium) so this both(iron and vitamin d ) also need the dopamin syntezing which underlying in restless leg syndome.
Btw dopamin syntezing is also depending on vitamin b5 . and find out what? if your're deficiency of vitamin D, then you can not produce enough vitamin b5 in gut ! and it effect all things.
these all are my own experiencies with my supplements and observing the react of my body.
@oneweirdman are you feeling better? what helped?
I love his accent and his brain 🧠😍
Excellent! This is the best presentation of Fibromyalgia and understanding what happens on cellular levels. God bless you Elliot. Thank you for sharing. I will try this high dose Thiamine.
I am so grateful to Dr Uzoya on UA-cam who cure me from fibromyalgia with his effective herbal products, I will continue to speard your good news here in the United States
@@reginaldneal675 Who is doctor uzoya? Where can I find him?
Thank you doctor, for your sincerity and beautiful presentation. I have no words about my sufferings, pains , fatigue , stiffness, numbness ..endless problems and no one believe thekind of my pains.. ppl feel k am only acting.i shall tey this . Hope for some relief and freedom from suffrings of fibro.
This is a great video. I have fibro and the root cause is a kidney defect that causes retention of phosphate. I was hospitalized and Dr. St. Amands protocol saved me. However, there are still other factors like these that need to be looked into. But the phosphate retention is the root issue:)
Do you no longer suffer Fibro symptoms?
@@sandrac11 if you have fibro you will always have it to some extent but it's phosphate retention from a genetic defect. I'm to where the phosphate is 80% cleared out of my body. I got off all prescription drugs because of this protocol. Definitely order his book, it must be done correctly or it won't work. He researched this his entire career and has helped thousands of people. It's not widely known because the treatment is over the counter. 💜
How did they know that??
From thousands of patients they have saved from the debilitating effects of this illness. Read Dr. St Amands book. 4th edition. It's a miracle treatment 💕
Watch the documentary called tender points. Excellent video that describes the treatment and doc himself gives a ton of info :)
I cried watching this! My nerves in my back been hurting for so long and In my feet. I love you Bro ty.
Have you tried the b1 ? If so how is it working ?
@@Myworldmymind908 I did benfotiame for a week and due to me already being acetylcholine heavy I quit when symptoms subsided. When I get to much acetylcholine my body freaks out hard makes me dizzy when I stand up. Also b9 as FOLATE, B6 and B12 will lower homocysteine levels which could also be a problem at least it was for me. To much homocysteine in the blood can cause very bad inflammation in the body, endothelial dysfunction which can increase your chance for heart attack, stroke and bad nerves due to poor circulation. Hope this help brother. 🦍
@@tineeazyabuvall151 I am dealing with Flouroquinolone toxicity. I was prescribed an antibiotic named Ciprofloxacin back in September of 2020 . I haven't been the same since . 11 months now and I still have heavy & numb legs daily , cognitive issues such as lightheadedness , forgetfulness , brain fog , facial pressure , facial twitching . I've been to multiple specialist and no one can find anything.
@@Myworldmymind908 ua-cam.com/video/nMuuCS2h5IE/v-deo.html
Check her video out but it sounds like you may be short of some neurotransmitters and your homocysteine(excitatory transmitter) level may be up a little. She will really break it down and help you out. Anytime involuntary twitching happens that’s a sign of high acetylcholine and low serotonin. Once you raise serotonin(inhibitory) transmitter that will make you feel better and that should lower acetylcholine which is a excitatory neurotransmitter. Also raising serotonin will also raise gaba( inhibitory) and lower glutamate which is also a excitatory transmitter. Try Taurine and magnesium glycine will also turn the body off. They are inhibitory transmitters aswell. 😎
@@Myworldmymind908 we was trained in life to go go go but they never taught us how to hit the breaks and that’s when your body recovers.
Malic Acid helps tremendously with pain and fatigue!!
God bless you. I hope my brain fog lifts so I can really, deeply learn and understand the physiology behind all of this. So grateful for you. 🙏
You saved my life.
Receive all my Gratitude.
✨💛✨
Oh?
Fibromyalgia is not a pain disorder, pain is merely one symptom from tightened muscles, from glutamic acid firing at eg:glutamate at 75% thus gaba is at 25% it is this imblance that is the root of it, through trauma from a psychological angle and an autoimmune condition working in conjunction. Pain is just the only symptom that people say to dr's. Its ones nervous system being on high alert for a long time.
What is you advice for people who are dealing with this?
THANK YOU so much Elliot! A fantastic presentation, giving much needed help for so many people suffering. I learnt so many new things about Fibro I didn't know. Keep up the excellent work! 👏
Great info regarding excess lactate. I have mitochondrial dysfunction and have chronic high lactate, pain and fatigue.
For me, i would try to stop/reduce all/most inflammation first, by sleeping grounded every night, also boost B1 taking Organic Non fortified Nutritional yeast for its B1 and other b vitamins. this is just for starters. Once you remove inflammation, the body can heal much easier. Pain equals Inflammation. Get rid of the Inflammation you reduce the pain, the body can heal once the inflammation is at a Low level. Inflammation is caused by a Electron Deficiency, Ground for Uptake Electrons. Grounding thus reduces Pain, But Grounding Plus B1 work Great together, and a Lower level of B1 is needed due to a Low level of Inflammation from the sleeping grounded. ROS is inflammation. Grounding for the uptake of electrons neutralizes ROS.
Yeast would be a good idea perhaps 30 years ago, not today when everyone is loaded with it. Also, how would you go about sleeping grounded every night?
@@robertjohnson3549 it isn't that kind of yeast. No bad effects.
@@robertjohnson3549 buy a grounding pad for your bed & thats a different type of yeast
apparently, methylene blue is an electron donor in mitochondrial respiration.
My daughter complained of tingling and some numbness in extremities and as soon as she took one capsule the issue was resolved. This was years ago and we keep it around just incase...
Of thiamax?
@@crazikidgaming5326 of benfotiamine
Thankyou cause I’ve been taking the cheap one for months n it helped to an extent but didn’t resolve the issue
@@crazikidgaming5326 good luck!
@@marie3611 thank you, by chance can you tell me the brand you bought?
I'm taking B1..1500mg , B6.. 500mg, with some other suppliments and it works for me Alhamdulillah.
Isn't 500mg of B6 to much?
@@dzeky7622 ... They say it's not toxic and your body doesn't retain it and it passes out through urine after doing the repair work, so I assume it's not dangerous... at least not for me, since I'm only experiencing relief. I can imagine my sister on the other hand... she'd be getting a headache and getting sick if she even took a 50mg without very very desperate need. It's how her body responds to intrusion by most meds and suppliments. Currently I have started 1000mg additional of B6 in the morning to have sufficient energy to have some level of function. Time will tell if there is any detriment to doing that... but these particular combinations and doses seem to have clicked with me and seeing on UA-cam how mega dosing is sometimes recommended by professionals I'm not too worried at this point at least, as I am only experiencing a substantial degree of relief from certain very painful and uncomfortable symptoms.
@@ummadam4663 Can you tell me plz what were your symptoms? Do you have a fibro diagnoses?
Do you have fibromyalgia
Thank goodness for practitioners like you. I’m waiting for Derrick Lonsdale book to arrive. All the best.
What’s the name of the book ?
@@SC-oi9wp Hi, thiamine deficiency disease, dysautonomia and high calorie malnutrition.
BE CAREFUL!!! Yeah, all this did for me was make me really anxious. I read all I could about how to deal with the issues that cause that and did what was recommended to ameliorate it. (You can see I tried this and fully educated myself by my other comment.) After five months I had to stop as my sleep was being destroyed (worse than normal) and I was tired of being anxious. I’d given up tea and coffee drinking (I only had one a day). For six months after giving it up, I had to give up tea. It’s 15 months later and I still can’t drink coffee. Also, I can’t take regular multivitamins anymore, not even with extra B2, without getting very anxious.
Coffee and tea can affect your absorption. They are diuretics, which can cause electrolytes imbalance. Absorption is often overlooked. There can be many varieties of causes. Genetics can cause deficiency. B1 deficiency can affect many organs. It’s more common then thought. Rarely checked for. Chemicals in food and drinks has been changing our bodies for decades.
Thank you for the warning. I have not tried it yet, but am very prone to reactions like yours. Melatonin and a prescribed Rx, both, caused me to react as you did.
B1 and Niacin shd b taken with magnesium. try magnesium. and coffee and alcohol drive all the B vitamins out of your body dont forget.
Are you taking enough magnesium and potassium? The coffee/tea thing sounds like magnesium deficiency.
Very interesting . Thank you . I have been researching fibromyalgia for myself . Suspect my contact with glyphosate was my main problem amongst other herbicides which would support your suggestion of a systemic problem . I found Stephanie Seneff to be very informative .
YEs me too, due to her I am taking MSM and Allicin. Did you try B1?
@@CarolBlaneyPhD Yes currently on some b vit supplements. Trying lots of different options. Even a half teaspoon of castor oil as a healing tool for long term stomach problems. Seems to be working. Though early days yet. Prayers and blessings xx Pat
I take glycine for glyphosate detox and b3 for stomach. After taking b3 my bowel movement and bloating has gotten better 100%
@@kae2678 how much b3 do you take and which brand?
Thiamax has been out of stock for about 5 weeks now - I am writing on Nov. 18th, 2020
Mitochondrial reboot/recharge was on my list of next treatments. Good to see this. Been researching this for months. Got diagnosed at OHSU in 2010, age 37. Likely had it 5 yes prior.
I was a patient of Dr. Robert M Bennett from 1990-2001 at OHSU. How do you like the Rheumatology department❓ I lived in Portland 1972-77 the good old days❗ Flew to Portland each year for fun and fibromyalgia 90-01. Best to you. How is your fibromyalgia doing ⁉️
Thank you Elliot for sharing this invaluable information!!!!
I take 150mg Benfotiamine once a day. I heard it was better than regular thiamine since it's fat soluble. I will increase the dose.
For some reason so many cases have been treated with HCL not Benfotiamine so maybe ... try a mixture of both. Don’t put everything on one bucket. I seem to get better results myself with HCL so ...
@@tomregan9628 benfothiamine didn't work for my neuropathy, but ttfd worked as soon as i started taking it. Dont what effect regular thiamine hcl would have though, perhaps its better to diversify
Robert Johnson Yep I totally agree with you. So far HCL works for me but I still take the TTFD one as well. Once in a while the Benfotiamine.
@ Tom Regan what dose of hcl do you use?
@@tomregan9628 TTFD is a form of B1 ? And HCL ? Which is better ? I was looking into ubiniquol or d-ribose too ... Maybe you have insigh ? Thanks
You need magnesium for the B1.
Which form is better? Malate?
@@tyrese5089 probably glycinate.
@@tyrese5089 greens, nuts, fatty fish, bananas are good sources.
Love your videos. Super informative and love your honesty about how either brand will work. Says a lot about you.
What a great video, Dr. Overton! What profound knowledge and good explaination. Thank you so much!
I just found your channel and after listening to this one video, I subscribed. Excellent information. Thank you!
Great video packed with information. Your knowledge is astounding. Lots to research to try and understand this deficiency in more depth. Thanks so much.
I hope you will do a feature like this on MS and Thiamine somewhere in the future. And can you maybe look into the substance Palmitoylethanolamide? I stumbled upon this topic recently and it seems to be very promising for treating neuropathic pain. It is a substance that the body produces itself in the cells. I would love to hear what you think about it.
Sorry that I'm not Elliot, but just wanted to say I have been using Palmitoylethanolamide for quite a while now. While it doesn't cure all my pain, it has certainly helped tremendously. Be sure to take it with some kind of good fat (fish oil, etc.). I also use it with luteolin. I will be upping my dose of TTFD based on this video. Chronic pain is so enervating!!! Best wishes to you. Love your tin foil hat! :)
@@oldegoatee8450 thank you so much for your input! Your results sound quite promising. The topic fell from my radar as I could not really figure out where to get it in Germany and how to use it properly. I really have to look into it again. Wishing you the best and should you have any updates to share in the future I would highly appreciate it!
Is that PEA?
That WOULD be awesome - I have MS and fibromyalgia, I'm interested, too.
Thank you, i wish our Drs would look into this as part 9f their training, im definitely going to try B1 supplements ❤
The antibiotic family of floroquinolone antibiotics gave me this beware it destroyed my tendons joints and connective tissue also and I couldn't walk for a yr except to the bathroom.
Hi Matthew , I am sorry to hear this happened to you . I myself am suffering from Flouroquinolone toxicity it's going on 11 months now . I had an adverse reaction that sent me to the hospital in September of 2020 and here I am now 11 months later with daily numbing and heaviness in both my legs , daily cognitive issues such as lightheadedness , facial pressure , facial twitching from time to time , I forget things much easier now . I get bad anxiety from time to time now . And the brain fog sucks !
How are you feeling these days ? Have you healed from this ?
@@Myworldmymind908 sry to hear that I'm 5 years from my reaction I'm finally able to work a full week but my legs are like yours really heavy sometimes almost unbearable I've found low carb organic diet stay away from any sugar and chemicals stay away from unhealthy seed oils vitamins and supplements. And get yourself some cbd flower off the internet or oils from organically grown fams try these dealers wnc or arete cbd some ppl.are helped by magnesium but others it can make much worse and try the wim Hoff breathing method and just keep telling yourself you will get better. My tendons and joints are still severely damaged but I manage I just have to constantly stretch to keep them loose or I injure them easily
@@matthewanderson2538 glad to hear you're able to work . What type of work do you do if you don't mind me asking . It's been a rough couple of months for me . I was given Ciprofloxacin for a sinus infection . Was never warned about the 8 black box warnings . I've gotten better compared to how I was in the beginning but feel I have a long ways too go .
Have you ever had eye exams after and gotten eyes dialated ?
@@Myworldmymind908 I paint now used to do residential construction but my tendon damage doesn't allow me to lift alot of weight so I decided to paint bc ita easiest thing on my body. No I told my eye doctor to dilute my eyes and check them bc I have floaters and stuff and at night lights look sort of redish at night out of my one eye but like I said he looked at the but said he didn't need to dilute them.
@@matthewanderson2538 so you haven't had them dialated since ?
Please turn in the option for our being able to view an automatically created transcript, based upon closed captions. I see potential parallels to the effects of opiate (oxycodone) induced deficiency in Thiamine
I can't take in all the medical facts, sounds like miracle B1. Can it be broken down to basics please.
Supplement with B1.
Especially info on fibromyalgia. I have worse case in the world. 37 years half my life. Thanks 💕🙏✌️
well did u take B1? shd b taken with magnesium. avoid coffee and alcohol, they drive all the B vitamins out of the body aggressively.
Phenomenal video!!
Wish I could see you as a patient!
You're a legend. You should do an interview with Dr. Ken Berry
Loved this video. It went over my head at times but thank you so much for giving me some hope. I have recently been diagnosed with Fibromyalgia after about 4 years of feeling like rubbish every day and in pain in my right shoulder, hip and pelvis, pins and needles in hands. I started with Primary Hyperparathyroidism 4 years ago and had the adenoma removed with the promised by doctors that I would go back to feeling my normal self. How wrong they were. I am now waiting for surgery to remove kidney stones, I also have fibroids and ovarian cysts and I am perimenopausal too. I don't have any energy and I am so depressed with it all. I am definitely going try this. I am currently taking magnesium and vitamin D3 supplements.
Given your kidney issues, you may want to try the guaifenesin protocol/treatment.
I have fibro and have been taking Low Dose Naltrexone for it for about 8 years now. I'm completely pain free now (it took a couple of years for me to get to this point), and my brain fog is negligible.
Right shoulder pain is very often misdiagnosed, the root cause can be gall bladder sludge (stage prior to stone formation) or not enough stomach acid, Dr Eric Berg's channel can help. Unless you have now done so I'd hold off any operations, the underlying inflammation will cause mayhem. Kidney stones can be oxilate or calcium stones, treatable at home given the right information.
avoid coffee and alcohol; they drive all the B vitamins out of your body aggressively
@@vaska1999
What is the protocol please.
Hummm from experience vit D3 causes depression in some people. Try sunbathing instead and red light therapy lay off the vit D3 for a while and your mood will drastically improve.
Thank you for this innovative way to treat fibromyalgia. I believe I will see great improvements when I start taking thiamine.
I sent this to my brother in San Diego. Hey Jim, I hope you are reading this comment and know I want you CURED!
Aw
I think this lack of "affinity" for thiamine shows we're not just clumps of mechanical cells. For people with chronic diseases after all it is "all in their heads" or "spirits". And in fact our lives whether we recognize somehow suffering or not, are spiritual. I'll probably try thiamine along with all the different supplements I plan on trying but if disease isn't rooted physical we need minds to come together on our spiritual problems. Also, we'll never be free of disease in modern society with all the technological pollutions
Thankyou brilliant and helpfully 🌷God bless you.
So does one need to give up coffee in order for Thiamine supplementation to work?
This is wonderful information. Thamk you so much.
A have a LOT of questions! I bought your Thiamine (even though I live in Denmark, Scandinavia and probably will pay a LOT more 🤷♀️). You mention a LOT of supplements in your other video, and I'm afraid to miss some, or what to get. You've mentioned Magnesium and a B-Vitamin Complex. But in your video (speaking about side effects), you mention SO many more! Like Folate, Biotin, Cholin, and things that I wouldn't even know where to get, because the people selling this in our "drugstores" are not equipped to guide. What am I supposed to get when doing this? (And why haven't you made that 1 pill to go with your Thiamine and contains all that? 😉) Please help. 🙏🏽 Kindest regards from Denmark, Scandinavia ❤
"one pill" will be available VERY soon!
The b-vitamins you should be able to find them in a good b-complex co-enzymes form.
@@EONutrition That gives me hope 🙏 so discouraged 😥 Thanks 🙏
@@EONutrition Hi, Elliot, I just found this/your video. Since it's a year past your post, could I ask, has the "one pill" been formulated, and is available? Thank you for all the studying and knowledge you've acquired, and share with us on UA-cam.
Thank you
Thank you so much for sending me this AWESOME INFORMATIVE VIDEO ON THIAMINE B 1....💖
Thanks very much. Going to try it.
Thank you Sir.. you are a blessing 🙏
Pain medication can cause deficiencies in B1, oxycodone specifically. Perhaps this is a mechanism driving tolerance also.
Thank you so much…glad I found your channel. Well explained.
Thank you ‼️ Keep us informed 💕🙏✌️
I have FMA, and have found the following beneficial: acupuncture (very fast action), D-Ribose and hydroxytyrosol . Victims who also have T2D might like to read up on the benefits of metformin for FMA.
When will you have your thiamine product in stock again? Thank you.
Thank you , be well. 👏🏻🙏🏻👏🏻🙏🏻👏🏻🙏🏻
If anyone out there has experience or has heard if this type of therapy has helped elderly or older chronic fibromyalgia pain patients to titrate off opiates, please chime in here or maybe it could be a related topic for future videos/study.
Just like they started, wean them off 1 pill at a time. Giving less and less each day. Replace with curcumin (for pain management) and black pepper
@@8675-__ Curcumin is loaded with OXALIC acid which is very inflammatory. Oxley?
@@8675-__ you will have a lot of mad hurting patients 🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣.
The Calgary Opioid Deprescribing Clinic has been doing this a few years now. The world pain summit has also had the doc who developed the weaning off method speak a few times and I think that is all online. I forget his name. Eventually, after weaning off, you may use suboxone to fully end OxyContin and then move to the once per month injection for pain management. Suboxone is a half antagonist. You move up this dosage slowly and decrease the rest of your oxy over the course of about two weeks. This is after slowly weaning off oxy as far as possible and doing lots of therapy.
One question..I started thiamine 250mg for about a week or 2 then got my blood levels tested...I tested high...at about 233. Does this mean I'm not deficient or should I continue with the regimine...will it be harmful to take to much?
Nutritional Yeast is high in the B vitamins.
I asked my doctor for thiamine and she said I can only get it in a hospital. I'm having a blood test on the 25th and they will check for Parkinson.
Can i stop taking pregabalin and start with b complex? Thank you
I’m glad I watched more of your vids . As I bought your b1 but was only taking one at day and one at night . I’m thinking I need mega dose . How many thiamax can I take per day ? Higher dose means how much .? 3 or 4 per day ?
I have lupus and fibro. I have a severe vit d deficiency. If i dont take mega dose every week and two pills every day, i cant walk. My muscles dont work in my legs. Why does lupus or fibro cause vit d deficiency
What dosage of TTFD?
Hi I have fibro n I took 550mg magnesium glycinate for 3-4 days and it seems that caused low bp. Is that more?
Thank you for this.
I just purchased the Ecological Formulas and noticed it is a very small dose per capsule (50 mg). This is compared to another brand of regular B1 that is 500 mg per 1 capsule. Should I be taking a high dose of the Ecological Formula’s, like 1500 mg per day so that would be 30 capsules?? Or is it much more bio available and I need much less compared to other forms/brands?
Look up Dr. Derrick Lonsdale’s articles on thiamin types on the Hormone’s Matter Website! He explains that your last sentence is correct.
I have the same brand, and one capsule twice a day at diff intervals is what ive found works for me
I suffered an electrical shock (high and low voltage) with entry point through my head. I have suffered from horrible nerve pain, spine pain, neuropathy, tingling, muscle weakness, etc for a couple of years since this occured. I believe this incident caused a hyper reactive nervous system pain response which I can't seem to find a way to turn off. Do you think these supplements (Thiamine and Agmatine) could help me, too? I've been trying to find a solution and any avenues I can explore are greatly appreciated. Your research seems like it might be helpful. Thank you.
Its a very interesting video wery well explained
thanks , you are an eccellent teaches and i will be watching
more video presented from you🌷Keep up the good job
and God Bless you!🌷
Most of the so called chronic diseases are mitochondrial dysfunctions. They are not diseases and they are not caused by genetics but by nutrient deficiencies and other environmental factors. According to the individual genetics the cells and the mitochondria will find a way to compensate und to maintain metabolism, which manifests in symptoms that are called chronic diseases. If the deficiency and imbalance is corrected, the symptoms disappear.
Ok then, how do you fix the mitochondria?
You are 100% right congratulations
Do you find that people with conditions like fibromyalgia use the same mg of TTFD vs thiamine HCl. Or since TTFD is more bioavailable perhaps lower doses are sufficient? Which form of thiamine was used in the fibro case study (abstract did not say)?
Dr. Chandler Marrs, a very helpful and knowledgeable person in thiamine as well. She said there are no equivalency studies that she is aware of, but she would guess it is something in neighborhood of 250-500mg of HCL to 50mg TTFD. She didn't say it is 100% like this but it is a guess.
The study used Thiamine HCL.
TTFD is approx 5-10 times as bioavailable as THCL, so lower doses are more appropriate :)
@@EONutrition Wait, what? I don't understand. The study used 600-1800 mg. You mean that if one uses HCL they have to use 5-10 times as much? Both me and my sister suffer from fibromyalgia and I just need to know how much to take, from either form. It might be easier for me to get HCL. So, how much if I take TTFD and how much if I take HCL? I'm so confused.😄
@@cammieklund 600-1800 mg Thiamine Hcl...
the study uses thiamine HcL.
my mothr has fibromyalgia , so was jus wondering what ur LDHA levels and Vitamin D are ..
Her LDHA levels are on the high end ....and vitamin D low.
a simple touch goves her pain ...so does air from fans...
What are the necessary nutrient cofactors you keep talking about but not explaining? Are you saying it's dangerous to take diamond high levels without these nutrients cofactors?
Also D3 helps alot
I really appreciate you ❤️.
Does anyone know if you take the 1500 mg B1 all at once or divide it up during the day?
I’ve just read another comment suggesting splitting into 3 x 500mg with meals.
I just ordered TTFD transdermal to avoid the stomach problems with sulfur supplements.
what stomach problem are you referring to exactly? Im asking because im having some weird stomach growling as soon as i started ttfd
@@robertjohnson3549 Sulfur supplements like ttfd can cause stomach upset, diarrhea, itchy skin, panic attacks and headaches. Some people take molybdenum to help process the sulfur and stay at lower dosages for long periods of time. Not to mention needing extra b2, biotin, and MAGnesium to process the thiamine.
@@Jayla-dj2gj interesting points.
@@tanyakormiltseva8633 The growling pretty much stopped, anyway it was just awkward never to the point of vomiting or something.
Also, depends whatvyou are trying to solve, i was trying to solve neuropathy and it turned out to be only a symptom masker, not a cure. It looks like you have to fins the root cause, and the modt likely one is some kind of chronic pathogen inside.
Great video thank you
Great video as always. Just wondering if you could do a video on sulfur, and specifically sulfur intolerance. How does the transsulfuration pathway get messed up and what can people who react to sulfur rich foods do to fix / mitigate the issue?
Good idea. I will stick it on the list :)
I wish others would leave the answers to Elliott. Since he has done the research and this is his site I need sound advice not hearsay and maybe’s
Yes, EONutrition please do a video on sulfur intolerance and transsulfuration pathways. I have heavy metals and they have messed up with my transsulfuration I believe. I am thiols sensitive. Thanks.
I have this too! Glutathione and msm lysine makes me feel awful!!!! I wasn’t like this before!
@@EONutrition I have fibromuscular disease and fibromyalgia. Do you have any suggestions for me? Nothing seems to work.
I've been reading about the relation between the gut microbiome and fibromyalgia. I personally had to stop my probiotics (that I've been taking for IBS-D for 7 years in a row) a month ago due to an upcoming surgery and suddenly I started feeling less muscle pain and fatigue. Could it be possible that the probiotics caused an imbalance in my gut microbiome resulting in fibromyalgia symptoms?
Hi have you ever taken a Flouroquinolone Antibiotic?
How is your Fibro doing now? Has it still been improving?
Yes, probiotics can cause SIBO to worsen, thus increasing pain and nervous system dysfunction. Stopping probiotics and fermented foods has helped me.
@@stephanielieb27 you may have histamine intolerance then. Many probiotic strains are high histamine and fermented foods are high in histamine.
Thank you for educational video! I suffer from fibromyalgia for 20+ years. Due to very poor non restorative sleep I was prescribed lyrica 25 mg. My question is would it be okay to take thiamax in the morning and lyrica before going to bed? Thank you.
I was taking that poison for 6.5 years, despite my doctor's advice I took myself off it as I was having terrible co-ordination problems and brain fog as a result. Have you looked at chemical sensitivity? That causes some really nasty symptoms. Fasting always kills my fibro symptoms after 2 days, I don't get hungry if I set myself up with enough healthy fats before a fast. It's a minefield isn't it....
THANK YOU !!!
Your product and information is fantastic! Thank you! Now when does it come back in stock?
So if you don't have fibromaligia can you still take this B vitamin? I don't have my gallbladder and have devolop digestion, and constipation issues. I saw on Dr Berg's site that low stomach acid causes that.
If you are sleepy during the day it’s also a lack of b1. I use it to stay awake. Didn’t know it heals fibro too. I have LDN for my fibromyalgia. And MSM (sulfur).
Are there are any foods or nutrients that correct the enzymatic deficiency for processesing thiamine? So we don’t have to dose so much thiamine?
How fast should we expect results? I've got benfotamine 150 plus, ok to take 2 day?